2026-07-29T08:42:31-07:00 2025-12-31 473103489 Camerlengo & Associates 107 Audubon Road Bldg 2 Ste 110 Wakefield MA 01880 990 2025-01-01 206745475 THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION ADEN 7812489699 PO BOX 442 NEEDHAM MA 02494 JEFFREY KAUFMAN Executive Dir. 2026-07-29 true Joseph Trainor P02264599 7814381416 X 2025 2025-03-06 01:10:19Z JEFFREY KAUFMAN PO BOX 442 NEEDHAM MA 02494 1159582 false X N/A X 2005 MA SUPPORTING RESEARCH INTO THE TREATMENT AND CURE OF ADENOID CYSTIC CARCINOMA. 9 7 3 0 654137 887749 395168 191061 96890 80772 0 1146195 1159582 464311 401246 0 421071 430751 0 66454 572816 389813 1458198 1221810 -312003 -62228 2251893 2250095 20252 80682 2231641 2169413 THE ADENOID CYCTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE. false false 909594 401246 187661 SCIENTIFIC RESEARCH: ACCRF SUPPORTS AND COORDINATES BASIC, TRANSLATIONAL AND CLINICAL RESEARCH THAT IS LIKELY TO LEAD TO BETTER OUTCOMES FOR PATIENTS WITH ADENOID CYSTIC CARCINOMA. THE FOUNDATION FACILITATES PROJECTS THAT SPAN BIOBANKING, MODEL DEVELOPMENT, DIAGNOSTICS, FUNCTIONAL STUDIES, TARGET IDENTIFICATION, PRECLINICAL DRUG SCREENING AND CLINICAL TRIALS. 110296 PATIENT EDUCATION: ACCRF PROVIDES MULTIPLE WAYS IN WHICH INDIVIDUALS WITH ADENOID CYSTIC CARCINOMA AND THEIR CAREGIVERS MAY LEARN ABOUT THEIR PATIENT JOURNEYS. BY BUILDING COMMUNITY THROUGH ITS WEBSITE, EMAILS, SOCIAL MEDIA, PATIENT MEETINGS WEBINARS AND OTHER COMMUNICATIONS, THE FOUNDATION PROVIDES KNOWLEDGE ABOUT TREATMENT OPTIONS, SUPPORTIVE NETWORKS AND HOPE FOR ITS PATIENTS. 1019890 true true false false false false false false false false false false false false false true true false false false true true false false false false false true false false false false false false false false false false false false false false false false false false false true 1 0 true 3 true false false false false false false false 0 false false false false false false false X 9 7 true false false false false false false true true false false true true true true false false true false false CA CT FL MA MI NC NH NJ NY OH PA VA X JEFFREY A KAUFMAN 7812489699 PO BOX 442 NEEDHAM MA 02494 JEFFREY KAUFMAN Executive Dir. 50.00 0.00 X X 150000 0 0 NICOLE SPARDY BURR DIRECTOR OF RESEAR 0.00 0.00 148750 0 0 THOMAS DILENGE BOARD VICE CHAI 5.00 0.00 X X 0 0 0 MARNIE KAUFMAN Director 35.00 0.00 X 0 0 0 RALPH MOLLIS Treasurer 5.00 0.00 X X 0 0 0 EMMA KINLOCH Director 5.00 0.00 X 0 0 0 ELIZABETH WEHLAGE Director 5.00 0.00 X 0 0 0 DAVID MORSE Director 5.00 0.00 X 0 0 0 BOZHO TODORICH Director 5.00 0.00 X 0 0 0 SHALIL GIANNONE Director 5.00 0.00 X 0 0 0 298750 2 false false false 0 887749 887749 MISCELLANEOUS 621500 3400 3400 RESEARCH STUDIES 621500 187661 187661 191061 80772 80772 0 0 0 0 0 0 0 0 1159582 191061 80772 301246 301246 0 100000 100000 0 150000 93011 35993 20996 0 247883 153687 59492 34704 0 0 32868 20368 7895 4605 0 0 28703 26567 2136 0 0 0 0 0 50164 40632 5519 4013 0 0 0 0 0 41065 41065 0 0 0 0 CONTRACT STUDIES EXPENSE 260844 260844 OTHER CONTRACT SERVICES 9037 9037 0 1221810 1019890 135466 66454 47328 264242 2183175 1866233 0 21300 69620 0 0 0 0 90 0 0 0 50000 0 0 0 2251893 2250095 20252 80682 20252 80682 X 2231641 2169413 2231641 2169413 2251893 2250095 -62228 X false true X true false X 1588834 807996 748287 654139 887749 4687005 0 0 1588834 807996 748287 654139 887749 4687005 1023581 3663424 403 30851 90836 96890 80772 299752 0 0 4986757 0.73460 0.70700 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1159582 1159582 1159582 1221810 1221810 1221810 Part X : FIN48 Footnote The Foundation is exempt from income taxes under Section 501(c)(3) of the Internal Revenue Code. Management believes that the Foundation operates in a manner consistent with its tax-exempt status at both the state and federal level.The Foundation annually files IRS Form 990 Return of Organization Exempt From Income Tax, reporting various information that the IRS uses to monitor the activities of tax-exempt entities. These tax returns are subject to review by the taxing authorities generally for a period of three years after they were filed. The Foundation currently has no tax examinations in progress.The Foundation evaluates all significant tax positions. As of December 31, 2025, the Foundation does not believe that it has taken any tax positions that would require the recording of any additional tax liability nor does it believe that there are any unrealized tax benefits that would either increase or decrease within the next 12 months. The Foundation did not pay any interest or penalties in 2025. false EUROPE 0 0 GRANTS TO RECIPIENTS MULTICENTER VALIDATION 100000 100000 100000 ITALY MULTICENTER VALID 25000 CHECK/TRANS UNITED KINGDOM GENETIC MODELS 50000 CHECK/TRANS UNITED KINGDOM MULTICENTER VALID 25000 CHECK/TRANS 3 false false false false false false false BOSTON UNIVERSITY ONE SILBER WAY BOSTON MA 02215 042103547 501(C)(3) 20000 0 PROTEASE-ACTIVATED ANTIBODIES MASSACHUSETTS GENERAL HOSPITA 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)(3) 165000 0 IMMUNE MICROENVIRONMENT OF ACC MD ANDERSON CANCER CENTER 1515 HOLCOMBE BLVD HOUSTON TX 77030 746001118 501(C)(3) 15000 0 MULTICENTER VALIDATION MD ANDERSON CANCER CENTER 1515 HOLOCOMBE BLVD HOUSTON TX 77030 746001119 501(C)(3) 35000 0 MULTICENTER VALIDATION MEMORIAL SLOAN KETTERING 1275 YORK AVENUE NEW YORK NY 10065 131924236 501(C)(3) 24920 0 MULTICENTER VALIDATION 5 0 Form 990, Part VI, Section A, Line 2 THE EXECUTIVE DIRECTOR, JEFFREY KAUFMAN, IS MARRIED TO MARNIE KAUFMAN, A DIRECTOR AND CHIEF FINANCIAL OFFICER. Form 990, Part VI, Section B, Line 11b THE FORM 990 IS PREPARED BY THE EXTERNAL AUDITORS AND REVIEWED BY MANAGEMENT. ONCE ALL ARE SATISFIED WITH THE FORM, IT IS FINALIZED AND A COPY IS SENT TO ALL DIRECTORS. THE DIRECTORS ARE ASKED IF THEY HAVE ANY QUESTIONS OR COMMENTS AND A GENERAL REVIEW OF THE FORM IS CONDUCTED BY MANAGEMENT. REVISIONS AND CORRECTIONS ARE MADE AS NECESSARY. SUBSEQUENTLY, THE FORM IS SUBMITTED TO THE IRS. Form 990, Part VI, Section B, Line 12c A FORMAL PROCESS IS UNDERTAKEN EACH YEAR TO MONITOR AND ENFORCE THE CONFLICT OF INTEREST POLICY CONTAINED WITHIN THE BYLAWS. EACH JANUARY, AN ANNUAL SURVEY OF CONFLICTS OF INTEREST IS COMPLETED BY EVERY DIRECTOR AND OFFICER COVERING THE PRIOR CALENDAR YEAR. ALL BUSINESS RELATIONSHIPS, IF ANY, ARE REPORTED TO THE BOARD OF DIRECTORS. EXCLUDING ANY INTERESTED PARTIES, A MAJORITY OF REMAINING DIRECTORS DETERMINES WHETHER A CONFLICT OF INTEREST HAS OCCURRED AND WHETHER A MORE ADVANTAGEOUS TRANSACTION IS AVAILABLE TO THE FOUNDATION THAT WOULD NOT LEAD TO A CONFLICT OF INTEREST. THE BOARD IS CHARGED WITH TAKING APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION IN THE CASE OF A VIOLATION OF THE CONFLICT OF INTEREST POLICY. Form 990, Part VI, Section B, Line 15a A FORMAL STRATEGIC REVIEW, OBJECTIVE SETTING AND PERFORMACE REVIEW PROCESS IS UNDERTAKEN EACH YEAR. THE BOARD OF DIRECTORS REVIEWS THE PERFORAMNCE OF THE ORGANIZATION AND EXECUTIVE DIRECTOR, BASED ON GOALS AND OBJECTIVES PREVIOUSLY AGREED UPON DURING THE PRIOR CALENDAR YEAR AND ON A PERFORMANCE REPORT SUBMITTED BY THE EXECUTIVE DIRECTOR IN ADVANCE. THE INDEPENDENT DIRECTORS OF THE BOARD MEET SEPARATELY TO ASSESS THE EXECUTIVE DIRECTOR'S PERFORMANCE, AGREE ON A PROCESS TO INFORM THE EXECUTIVE DIRECTOR OF ANY AREAS OF NEEDED IMPROVEMENT, AND AGREE UPON A MERIT AND/OR COST OF LIVING SALARY INCREASE FOR THE DIRECTOR, SUBJECT TO AVAILABILITY OF FUNDS AND MAINTENANCE OF AN APPROPRIATE RATIO BETWEEN SUCH SALARY AND ACCRF FUNDRAISING/REVENUE TOTALS IN ANY GIVEN YEAR. THE BOARD OF DIRECTORS SETS PERFORMANCE OBJECTIVES AND METRICS FOR THE ORGANIZATION AND THE EXECUTIVE DIRECTOR FOR THE CURRENT CALENDAR YEAR. Form 990, Part VI, Section C, Line 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS (ARTICLES OF INCORPORATION AND BY-LAWS, ITS CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS) AVAILABLE UPON REQUEST. THE ORGANIZATION WILL MAIL COPIES UPON REQUEST OR PROVIDE COPIES TO THOSE WHO COME TO THE ADMINISTRATIVE OFFICE DURING NORMAL BUSINESS HOURS.