2026-08-19T13:42:25-05:00 2025-12-31 521392008 GELMAN ROSENBERG AND FREEDMAN PC 4550 MONTGOMERY AVENUE SUITE 800N BETHESDA MD 20814 990 2025-01-01 860947831 COLORECTAL CANCER ALLIANCE COLO 2026280123 1156 15TH STREET NW 600 WASHINGTON DC 20005 MICHAEL SAPIENZA CEO 2026280123 2026-08-19 1 ELIZABETH W HELLER P00397829 3019519090 2025 2025-03-06 01:10:19Z X MICHAEL SAPIENZA 1156 15TH STREET NW 600 WASHINGTON DC 20005 24338943 0 X HTTPS://COLORECTALCANCER.ORG X 1999 DE SEE PART III, LINE 1 14 13 80 2200 0 0 21297625 17238272 175797 91881 453764 1004688 -1191067 -927412 20736119 17407429 3162884 4183877 0 0 7058327 8127687 16032 23976 2270928 7542450 10440692 17779693 22776232 2956426 -5368803 16350846 14642547 2159490 6151124 14191356 8491423 X THE MISSION OF THE COLORECTAL CANCER ALLIANCE IS END COLON AND RECTAL CANCER AND SUPPORT THE NEARLY 50,000 AFFLICTED WITH THIS DISEASE EACH YEAR. THIS IS ACHIEVED BY SUPPORTING PREVENTATIVE MEASURES, ACCELERATING RESEARCH TOWARD CURES, AND PROVIDING CANCER CARE SUPPORT SERVICES TO PATIENTS, FAMILIES AND CAREGIVERS. 0 0 8261259 2486454 PROJECT CURE CRC:THE COLORECTAL CANCER ALLIANCE ACCELERATES RESEARCH AIMED AT DISCOVERING INNOVATIVE TREATMENTS AND ULTIMATELY A CURE FOR THE DISEASE THROUGH PROJECT CURE CRC, A GROUNDBREAKING INITIATIVE CONVENING THE WORLD'S TOP SCIENTISTS AT AN ANNUAL SUMMIT AND CONNECTING CUTTING-EDGE STUDIES, CLINICAL TRIALS, AND COLLABORATIONS TO DRIVE PROGRESS TOWARD A CURE. 3967115 721516 55129 SCREENING AWARENESS & NAVIGATION:THE COLORECTAL CANCER ALLIANCE PROMOTES PREVENTION, SCREENING, AND EARLY DETECTION THROUGH A VARIETY OF AWARENESS INITIATIVES, PARTNERSHIPS, SCREENING PROJECTS AND TOOLS, AND CAMPAIGNS AT THE NATIONAL AND LOCAL LEVEL. 3576073 408255 36752 GRASSROOTS COMMUNITY ENGAGEMENT AND ADVOCACY:THE COLORECTAL CANCER ALLIANCE FOSTERS COMMUNITY ENGAGEMENT THROUGH OUTREACH AND ADVOCACY EFFORTS ACROSS THE NATION AND IN LOCAL COMMUNITIES THAT GIVE ADVOCATES THE OPPORTUNITY TO SHARE THEIR STORIES, CONNECT WITH EACH OTHER, AND BECOME LEADERS TO AMPLIFY THE ALLIANCE'S MISSION TO END THIS DISEASE. FEDERAL FUNDING & POLICY ADVOCACYTHE COLORECTAL CANCER ALLIANCE ENGAGES IN EFFORTS TO EDUCATE LAWMAKERS AND GOVERNMENT AGENCIES ABOUT THE DISEASE THROUGH MEETINGS AND WRITTEN COMMUNICATIONS TO HELP SHAPE LEGISLATION AND SECURE FINANCIAL RESOURCES FOR COLORECTAL CANCER RESEARCH TO IMPROVE OUTCOMES. 2582794 567652 CANCER CARE:THE COLORECTAL CANCER ALLIANCE PATIENT AND FAMILY SUPPORT PROGRAM PROVIDES CANCER CARE EDUCATION, MEDICAL ADVOCACY, AND DIRECT NAVIGATION THROUGH A HELPLINE, CHAT AND GROUP CHAT NAVIGATION, ONLINE COMMUNITY FORUMS, A BUDDY PROGRAM, AND A NATIONAL CONFERENCE. 2582794 567652 18387241 1 1 0 0 0 0 0 0 0 0 1 0 0 1 1 0 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 123 0 1 80 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 DC FL NY CA X X HEIDI JAAFAR 2026280123 1156 15TH STREET NW 600 WASHINGTON DC 20005 JOHN MARSHALL DIRECTOR, (SEE SCHEDULE L) 2.00 X 109397 0 0 JOHN WOERNER CHAIR 2.00 X X 0 0 0 AVI BENAIM VICE CHAIR 2.00 X X 0 0 0 JOE WHALEN TREASURER 2.00 X X 0 0 0 JANA BABATUNDE-BEY DIRECTOR 2.00 X 0 0 0 KAY CHANDLER DIRECTOR 2.00 X 0 0 0 YEKATERINA CHUDNOVSKY DIRECTOR 2.00 X 0 0 0 LEE DRANIKOFF DIRECTOR 2.00 X 0 0 0 CHARLES GUEVARA DIRECTOR 2.00 X 0 0 0 ALISA LESSING DIRECTOR 2.00 X 0 0 0 CRAIG MELVIN DIRECTOR 2.00 X 0 0 0 JENNIFER REDMOND DIRECTOR 2.00 X 0 0 0 DAVID SCHOEMAN DIRECTOR 2.00 X 0 0 0 SCOTT SOUSSA DIRECTOR 2.00 X 0 0 0 MICHAEL SAPIENZA CHIEF EXECUTIVE OFFICER 40.00 X 391472 0 32017 MELISSA LYNCH CHIEF PEOPLE OFFICER 40.00 X 283514 0 20408 TINA ZEFF CHIEF OPERATING OFFICER 40.00 X 262428 0 18586 BRIAN COWART CHIEF DEVELOPMENT OFFICER 40.00 X 255758 0 23773 MARC MASON CHIEF DATA & ANALYTICS OFFICER 40.00 X 234487 0 33739 ANGIE LAWRY CHIEF MARKTING & COMMS OFFICER 40.00 X 242825 0 22552 AMY GANDERSON VP OF MARKETING & DIGITAL STRATEGY 40.00 X 169581 0 31044 HEIDI JAAFAR VP OF FINANCE & OPERATIONS 40.00 X 152601 0 30548 DAVID FENSTERMACHER SEN. DIR. OF RESEARCH & MED AFFAIRS 40.00 X 156861 0 21274 MARIANNE PEARSON VP OF CANCER CARE 40.00 X 153974 0 23032 EMILY BLASI SEN. DIR. OF COMMS & PUB RELATIONS 40.00 X 150652 0 23546 2563550 0 280519 22 0 1 0 TEIF MOREAUX INC 2755 CANYON BLVD FIRST FLOOR BOULDER CO 80302 EVENT CONSULTING 750697 AMAZON WEB SERVICES PO BOX 84023 SEATTLE WA 98124 DATA OPS AND SYSTEMS 550522 RADIANHUB 11528 MINOT COURT FISHERS IN 46037 DATA OPS AND SYSTEMS 523212 SALESFORCE PO BOX 203141 DALLAS TX 753203141 DATA OPS AND SYSTEMS 399824 BOOM BROADCAST INC 4 HILL SPRUCE LITTLETON CO 80127 MARKETING MEDIA SERVICES 244288 24 3179832 14058440 17238272 MERCHANDISE INCOME 900099 91881 91881 91881 254500 254500 6061599 5311411 750188 750188 750188 653968 3179832 1620103 -966135 -966135 OTHER INCOME 900099 38723 38723 38723 17407429 91881 0 77276 3728337 3728337 200645 200645 254895 254895 1821560 1243569 274311 303680 4842635 3430828 674513 737294 167851 117990 22962 26899 794701 558636 113586 122479 500940 351466 71289 78185 604302 490895 79799 33608 23976 23976 54109 54109 1945241 1632630 290624 21987 602391 543469 493 58429 71802 53669 6389 11744 2889229 2468283 148295 272651 478286 408602 24549 45135 729897 516746 63044 150107 2144568 1813460 6190 324918 71152 60786 3652 6714 46118 39399 2367 4352 BAD DEBT 245004 245004 PRINTING AND PUBLICATIO 203423 173785 10441 19197 BANK AND CREDIT CARD CH 169535 144834 8702 15999 RECRUITMENT 101781 82680 13440 5661 83854 71637 4304 7913 22776232 18387241 2118063 2270928 X 3370554 2896366 0 474188 828543 787735 3452499 1256252 4894503 4201581 1249590 103152 56452 1207791 1006192 272751 201599 5076588 5623728 40000 473220 2475200 16350846 14642547 1770812 3722315 388678 2428809 2159490 6151124 X 3464442 1675323 10726914 6816100 14191356 8491423 16350846 14642547 -5368803 -331130 0 X 0 1 X 1 0 X 13096668 11216010 20092372 21297626 17238272 82940948 13096668 11216010 20092372 21297626 17238272 82940948 18599097 64341851 66895 110995 238785 259532 254500 930707 49655 54248 40880 47966 38723 231472 84103127 267678 0.76500 0.78700 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 735241 533642 201599 472550 472550 0 201599 RIGHT-OF-USE ASSET - OPERATING LEASE 2405547 SECURITY DEPOSITS 69653 2475200 OPERATING LEASE LIABILITY 2428809 2428809 64868074 -331130 46225781 1620103 47514754 17353320 54109 54109 17407429 70568007 46225781 1620103 47845884 22722123 54109 54109 22776232 PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES REPORTED AS EXPENSE IN THE 1,620,103. AUDITED FINANCIAL STATEMENTS, AND NETTED AGAINST EVENT REVENUE ON FORM 990, PART VIII, LINE 8C. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES REPORTED AS EXPENSE IN THE 1,620,103. AUDITED FINANCIAL STATEMENTS, AND NETTED AGAINST EVENT REVENUE ON FORM 990, PART VIII, LINE 8C. 1 EUROPE 0 0 GRANTMAKING 45000 EAST ASIA AND THE PACIFIC 0 0 GRANTMAKING 74895 MIDDLE EAST 0 0 GRANTMAKING 45000 NORTH AMERICA 0 0 GRANTMAKING 90000 0 0 0 0 0 0 254895 0 254895 EUROPE RESEARCH GRANT 45000 WIRE TRANSFER 0 EAST ASIA AND THE PACIFIC RESEARCH GRANT 74895 WIRE TRANSFER 0 MIDDLE EAST RESEARCH GRANT 45000 WIRE TRANSFER 0 NORTH AMERICA RESEARCH GRANT 90000 WIRE TRANSFER 0 0 4 1 0 0 0 0 0 PART I, LINE 2: ALL PAYMENTS ARE MADE IN ACCORDANCE WITH A SCHEDULE OF DELIVERABLES AND AWARD GRANT TERMS AND CONDITIONS. FUNDING AFTER THE FIRST YEAR IS CONTINGENT UPON, AMONG OTHER FACTORS, SATISFACTORY PROGRESS AS DEMONSTRATED WITHIN THE ANNUAL PROGRESS REPORT SUBMITTED UNDER THE TERMS OF THE AWARD. FOR THE AVOIDANCE OF DOUBT, THE ALLIANCE MAY WITHDRAW FUNDING, REQUEST REPAYMENT, OR CANCEL FURTHER INSTALLMENTS SHOULD THE AWARD BE USED FOR PURPOSES OUTSIDE THE SCOPE OF THE CONDUCT OF THE RESEARCH PROPOSAL. FURTHER, THIS AWARD IS SUBJECT TO THE AWARD GRANT TERMS AND CONDITIONS THAT FOLLOW. THE INSTITUTION DESIGNATES THE INVESTIGATOR TO SERVE AS THE PRINCIPAL INVESTIGATOR OF THE RESEARCH PROPOSAL. THE INSTITUTION AND PRINCIPAL INVESTIGATOR WILL BE RESPONSIBLE FOR PERFORMING THE RESEARCH PROPOSAL IN FULL COMPLIANCE WITH ALL APPLICABLE LOCAL, STATE, AND FEDERAL LAWS AND REGULATIONS, THE RFP, THE AWARD GRANT TERMS AND CONDITIONS, AND THE SUBMITTED RESEARCH PROPOSAL. THE ALLIANCE HAS A DESIGNATED TEAM OF EXPERTS WHO REVIEW REPORTS SUBMITTED BY THE PRINCIPAL INVESTIGATOR AND DETERMINE WHETHER THE PROGRESS REPORT IS SATISFACTORY. IF THE REPORT IS SATISFACTORY, THE NEXT PAYMENT WILL BE PROCESSED. X X X X X 0 LYDIA FENET AGENCY 41 WARREN STREET APT 5 NEW YORK NY 10007 AUCTIONEER 0 221957 16476 205481 RED APPLE AUCTIONS 1670 FITZGERALD LANE ALEXANDRIA VA 22302 AUCTIONEER 0 36900 7500 29400 258857 23976 234881 CA CA CT FL IL MA MD MI NJ NY OH PA RI TN TX VA WI NATIONAL BLUE HOPE BASH 1642993 1429891 213102 15000 176376 107080 73971 160141 BOTTOMS UP INVITATIONAL 1100198 927338 172860 22767 213407 35311 242941 1 1090609 822603 268006 36942 260563 2110 16205 257289 3833800 3179832 653968 74709 650346 109190 125487 660371 1620103 -966135 1 THE UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER PO BOX 4266 HOUSTON TX 77210 746001118 501(C)(3) 521106 0 RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 3910 KESWICK ROAD BALTIMORE MD 21211 520595110 501(C)(3) 487500 0 RESEARCH GRANTS CITY OF HOPE 1500 EAST DUARTE ROAD - RIVERGRADE DUARTE CA 91010 953435919 501(C)(3) 480000 0 RESEARCH GRANTS THE TRUSTEES OF UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST 5TH FLOOR FRANKLIN BLDG PHILADELPHIA PA 191046205 231352685 GOVT 513333 0 COMMUNITY GRANTS/ RESEARCH GRANTS THE J DAVID GLADSTONE INSTITUTES 1650 OWENS STREET SAN FRANCISCO CA 94158 237203666 501(C)(3) 320000 0 RESEARCH GRANTS INDIANA UNIVERSITY 1024 E 3RD STREET ROOM 132 BLOOMINGTON IN 47405 356001673 GOVT 280000 0 RESEARCH GRANTS THE GENERAL HOSPITAL CORPORATION 185 CAMBRIDGE STREET MCPZN 7106 BOSTON MA 02114 042697983 501(C)(3) 180000 0 RESEARCH GRANTS GEORGETOWN UNIVERSITY 3700 O STREET NW WASHINGTON DC 20057 530196603 501(C)(3) 90000 0 RESEARCH GRANTS REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 S STATE STREET ANN ARBOR MI 48109 386006309 501(C)(3) 90000 0 RESEARCH GRANTS THE REGENTS OF THE UNIVERSITY OF CALIFORNIA PO BOX 748872 LOS ANGELES CA 900744872 943067788 GOVT 90000 0 RESEARCH GRANTS THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BOULEVARD MC 9029 DALLAS TX 75390 756002868 GOV'T 90000 0 RESEARCH GRANTS UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 371 PETERSON SERVICE BUILDING LEXINGTON KY 40506 616033693 501(C)(3) 90000 0 RESEARCH GRANTS UNIVERSITY OF MIAMI OFFICE OF RESEARCH ADMINISTRATION PO BOX 405803 ATLANTA GA 30384 590624458 501(C)(3) 90000 0 RESEARCH GRANTS UNIVERSITY OF SOUTH DAKOTA 414 EAST CLARK STREET VERMILLION SD 57069 466000364 501(C)(3) 90000 0 RESEARCH GRANTS LA JOLLA INSTITUTE FOR IMMUNOLOGY LA JOLLA INSTITUTE FOR IMMUNOLOGY SAN DIEGO CA 92037 330328688 501(C)(3) 47500 0 RESEARCH GRANTS HMH HOSPITALS CORPORATION 111 IDEATION WAY NUTLEY NJ 07110 221487576 501(C)(3) 45000 0 RESEARCH GRANTS STANFORD UNIVERSITY 485 BROADWAY REDWOOD CITY CA 94063 941156365 501(C)(3) 45000 0 RESEARCH GRANTS VANDERBILT UNIVERSITY MEDICAL CENTER 3319 WEST END AVENUE NASHVILLE TN 37203 352528741 501(C)(3) 45000 0 RESEARCH GRANTS VIRGINIA POLYTECHNIC INSTITUTE AND STATE UNIVERSITY NORTH END CENTER SUITE 3300 300 TURNER STREET NW BLACKSBURG VA 24061 546001805 GOVT 45000 0 RESEARCH GRANTS UNIVERSITY OF ARIZONA PO BOX 41867 TUCSON AZ 85717 742652689 GOVT 42000 0 RESEARCH GRANTS PURDUE UNIVERSITY 2550 NORTHWESTERN AVENUE WEST LAFAYETTE IN 47906 356002041 501(C)(3) 24398 0 RESEARCH GRANTS USF BRIDGE HEALTHCARE CLINIC 552 RIVIERA DRIVE TAMPA FL 33606 463502696 501(C)(3) 10000 0 COLONOSCOPIES 22 0 STIPENDS AND TREATMENT AWARDS 576 200645 PART I, LINE 2: ALL PAYMENTS ARE MADE IN ACCORDANCE WITH A SCHEDULE OF DELIVERABLES AND AWARD GRANT TERMS AND CONDITIONS. FUNDING AFTER THE FIRST YEAR IS CONTINGENT UPON, AMONG OTHER FACTORS, SATISFACTORY PROGRESS AS DEMONSTRATED WITHIN THE ANNUAL PROGRESS REPORT SUBMITTED UNDER THE TERMS OF THE AWARD. FOR THE AVOIDANCE OF DOUBT, THE ALLIANCE MAY WITHDRAW FUNDING, REQUEST REPAYMENT, OR CANCEL FURTHER INSTALLMENTS SHOULD THE AWARD BE USED FOR PURPOSES OUTSIDE THE SCOPE OF THE CONDUCT OF THE RESEARCH PROPOSAL. FURTHER, THIS AWARD IS SUBJECT TO THE AWARD GRANT TERMS AND CONDITIONS THAT FOLLOW. THE INSTITUTION DESIGNATES THE INVESTIGATOR TO SERVE AS THE PRINCIPAL INVESTIGATOR OF THE RESEARCH PROPOSAL. THE INSTITUTION AND PRINCIPAL INVESTIGATOR WILL BE RESPONSIBLE FOR PERFORMING THE RESEARCH PROPOSAL IN FULL COMPLIANCE WITH ALL APPLICABLE LOCAL, STATE, AND FEDERAL LAWS AND REGULATIONS, THE RFP, THE AWARD GRANT TERMS AND CONDITIONS, AND THE SUBMITTED RESEARCH PROPOSAL. THE ALLIANCE HAS A DESIGNATED TEAM OF EXPERTS WHO REVIEW REPORTS SUBMITTED BY THE PRINCIPAL INVESTIGATOR AND DETERMINE WHETHER THE PROGRESS REPORT IS SATISFACTORY. IF THE REPORT IS SATISFACTORY, THE NEXT PAYMENT WILL BE PROCESSED. X X 1 1 X X 0 0 0 0 0 0 0 1 0 MICHAEL SAPIENZA CHIEF EXECUTIVE OFFICER 341472 0 50000 0 0 0 14331 0 17686 0 423489 0 0 0 MELISSA LYNCH CHIEF PEOPLE OFFICER 237615 0 45899 0 0 0 11457 0 8951 0 303922 0 0 0 TINA ZEFF CHIEF OPERATING OFFICER 243678 0 18750 0 0 0 900 0 17686 0 281014 0 0 0 BRIAN COWART CHIEF DEVELOPMENT OFFICER 240758 0 15000 0 0 0 0 0 23773 0 279531 0 0 0 MARC MASON CHIEF DATA & ANALYTICS OFFICER 219862 0 14625 0 0 0 9966 0 23773 0 268226 0 0 0 ANGIE LAWRY CHIEF MARKTING & COMMS OFFICER 217385 0 25440 0 0 0 9856 0 12696 0 265377 0 0 0 AMY GANDERSON VP OF MARKETING & DIGITAL STRATEGY 159909 0 9672 0 0 0 7271 0 23773 0 200625 0 0 0 HEIDI JAAFAR VP OF FINANCE & OPERATIONS 141577 0 11024 0 0 0 6830 0 23718 0 183149 0 0 0 DAVID FENSTERMACHER SEN. DIR. OF RESEARCH & MED AFFAIRS 152226 0 4635 0 0 0 6522 0 14752 0 178135 0 0 0 MARIANNE PEARSON VP OF CANCER CARE 143180 0 10794 0 0 0 6256 0 16776 0 177006 0 0 0 EMILY BLASI SEN. DIR. OF COMMS & PUB RELATIONS 140460 0 10192 0 0 0 6429 0 17117 0 174198 0 0 0 PART I, LINE 1A SOMETIMES WITH THE APPROVAL OF THE BOARD CHAIR THE CEO MAY UPGRADE TO BUSINESS CLASS (NOT FIRST AND NO CHARTER). THE COO HAS APPROVED THE COVERING OF ANNUAL MEMBERSHIP FEES FOR AIRLINE CLUBS FOR THE C-SUITE AS A COST SAVING MEASURE. PART I, LINE 1B THE BOARD CHAIR APPROVES ANY OF THE CEO'S UPGRADES TO BUSINESS CLASS. PART I, LINE 7 THE FOLLOWING EMPLOYEES RECEIVED MERIT BASED BONUSES DURING THE YEAR: - MICHAEL SAPIENZA $50,000 - MELISSA LYNCH $45,899 - TINA ZEFF $18,750 - BRIAN COWART $15,000 - MARC MASON $14,625 - ANGELINE LAWRY $25,440 - AMY GANDERSON $9,672 - HEIDI JAAFAR $11,024 - DAVID FENSTERMACHER $4,635 - MARIANNE PEARSON $10,794 - EMILY BLASI $10,192 JOHN MARSHALL DIRECTOR OF THE ORGANIZATION 109397 CONTRACTED CONSULTANT/MEDICAL ADVISOR RECEIVE MONTHLY COMPENSATION. 0 FORM 990, PART VI, SECTION B, LINE 11B THE CEO WILL DISTRIBUTE TO THE BOARD. THE CEO AND KEY ALLIANCE STAFF WILL REVIEW THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C CONFLICTS OF INTEREST ARE REVIEWED ANNUALLY AS PART OF THE JUNE BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 15 A SUBCOMMITTEE OF THE BOARD OF DIRECTORS CONDUCTED A SURVEY OF SIMILAR ORGANIZATIONS AND SET KEY MANAGEMENT PERSONNEL SALARIES ACCORDING TO INDUSTRY AVERAGES. SALARY INCREASES ARE REVIEWED AT THE ANNUAL FACE TO FACE BOARD MEETING. THE MOST RECENT REVIEW OF THE CEO'S SALARY TOOK PLACE IN FEBRUARY 2026. FORM 990, PART VI, SECTION C, LINE 19 NO DOCUMENTS AVAILABLE TO THE PUBLIC.