2026-08-27T11:43:44-05:00 2025-09-30 390859910 BAKER TILLY ADVISORY GROUP LP 2882 PROSPECT PARK DR STE 300 RANCHO CORDOVA CA 95670 990 2024-10-01 474011296 THE MYALGIC ENCEPHALOMYELITIS ACTION NETWORK MYAL 6263547833 1217 WILSHIRE BOULEVARD 3639 SANTA MONICA CA 90403 OMAR WASOW CO-CHAIR 6263547833 2026-08-14 1 1 AMY L HENDLEY P01300654 9165038100 2026-08-14 2024 2025-03-06 01:10:19Z OMAR WASOW 1217 WILSHIRE BOULEVARD 3639 SANTA MONICA CA 90403 654524 0 X WWW.MEACTION.NET X 2014 NJ TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH ME WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 8 8 9 100 0 0 694380 650704 0 1500 0 2 -694 -464 693686 651742 400 500 0 0 509345 561055 0 0 95232 180584 125260 690329 686815 3357 -35073 144752 96202 2887 4780 141865 91422 X TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH M.E. WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 0 0 149275 0 0 MINNESOTA ME/CFS PROGRAM: #MEACTION'S WORK FOCUSED ON BETTER CONNECTING MINNESOTANS WITH ME/CFS, LONG COVID, AND RELATED CONDITIONS TO VITAL HOME AND COMMUNITY-BASED SUPPORT SERVICES THAT THEY OFTEN STRUGGLE TO EFFECTIVELY ACCESS. WE HELP MINNESOTANS NAVIGATE ACCESSING SERVICES TO MEET THEIR DAILY NEEDS, AND TO CAREFULLY EVALUATE THE EFFECTIVENESS OF THIS FUNDED SERVICE DELIVERY. THIS PROGRAM IS A STATE PROGRAM THAT WE HOPE TO EXPAND TO A NATIONAL PROGRAM TO CONNECT PEOPLE ACROSS THE COUNTRY TO HOME AND COMMUNITY-BASED SERVICES. 139987 0 0 DIGITAL ADVOCACY AND AWARENESS:ADVOCACY IS A CORNERSTONE OF OUR WORK AT #MEACTION. EVERY YEAR, WE TAKE DECISIVE STEPS TO STRENGTHEN OUR VOICE WITH THE US GOVERNMENT THROUGH THE NATIONAL INSTITUTE OF HEALTH, THE CENTER FOR DISEASE CONTROL & PREVENTION, AND THE DEPARTMENT OF HEALTH AND HUMAN SERVICES. WE URGE EACH AGENCY TO PRIORITIZE THE HEALTH OF PEOPLE WITH ME THROUGH ACCELERATED RESEARCH, CLINICAL EDUCATION, AND A DEDICATED SEARCH FOR AN FDA-APPROVED TREATMENT. INFLUENCED BY THE HIV/AIDS MOVEMENT, OUR ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN GOVERNMENT COMMITTEES, PUBLISHED PETITIONS, OPEN LETTERS, MEETINGS, PEACEFUL PROTESTS, PRESS CONFERENCES, ADVOCACY DAYS AND MORE. 130686 500 1500 #MILLIONSMISSING:#MILLIONSMISSING IS OUR GLOBAL EFFORT TO RAISE AWARENESS AND ACHIEVE RIGHTS FOR ME/CFS PATIENTS. SINCE 2016, WE HAVE BANDED TOGETHER EVERY YEAR TO RAISE AWARENESS AND ADVOCATE FOR ACTION. 66684 0 0 RESEARCH AND MEDICAL:WE AIM TO GROW THE SCIENTIFIC FIELD THROUGH OUTREACH, EDUCATION AND PATIENT-DRIVEN RESEARCH SO THAT TREATMENTS, DIAGNOSIS, AND OUTCOMES CAN IMPROVE FOR PEOPLE WITH ME. 66684 0 0 486632 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 9 1 0 0 0 0 0 0 0 0 0 0 0 0 X 8 8 0 0 0 1 0 0 0 1 1 0 1 1 0 1 1 1 1 1 0 0 0 AL AK CA CO GA KY ME MO NJ NV NH NM NC OH OK OR SC UT VA WA DC X ROBIN RHINE 6263547833 1217 WILSHIRE BOULEVARD SUITE 3639 SANTA MONICA CA 90403 KEHSI IMAN WILSON CO-CHAIR 1.00 X X 0 0 0 OMAR WASOW CO-CHAIR 2.00 X X 0 0 0 STEVE MAZUR TREASURER 1.00 X X 0 0 0 NIRANJAN SHEKAR SECRETARY 6.00 X X 0 0 0 SHAQUILE COONCE DIRECTOR 1.00 X 0 0 0 JENNIFER ENGLAND DIRECTOR 1.00 X 0 0 0 ROBERT SKLANS DIRECTOR 1.00 X 0 0 0 ELIZABETH WEAVER DIRECTOR 1.00 X 0 0 0 LAURIE JONES EXECUTIVE DIRECTOR 40.00 X 75450 0 0 75450 0 0 0 0 0 0 0 157245 493459 650704 PROGRAM SERVICE FEES 900099 1500 1500 1500 2 2 2168 2782 -614 -614 OTHER INCOME 900099 150 150 150 651742 1500 0 -462 X 500 500 95333 68631 11179 15523 422884 304436 49590 68858 2360 1699 277 384 40478 29140 4747 6591 755 755 11000 11000 71895 50860 21035 7680 5807 1646 227 26358 23013 1345 2000 419 419 4807 2529 629 1649 50 17 33 BUSINESS REGISTRATION F 589 589 1707 1707 686815 486632 104951 95232 142934 91568 4634 0 1818 4634 144752 96202 2887 4780 2887 4780 X 141865 91422 141865 91422 144752 96202 X -35073 500 -15870 X X 0 0 0 X 511765 709854 839488 694380 650704 3406191 511765 709854 839488 694380 650704 3406191 1225394 2180797 16 0 0 0 2 18 20145 150 20295 3426504 1500 0.63640 0.61190 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS INCOME - 2020 AMOUNT: $ 0. 2021 AMOUNT: $ 0. 2022 AMOUNT: $ 20,145. 2023 AMOUNT: $ 0. 2024 AMOUNT: $ 150. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 1 0 0 0 0 1 900 0 0 900 0 PART II-B, LINE 1: #MEACTION ENGAGED IN LEGISLATIVE ADVOCACY ACTIVITIES, INCLUDING MEETINGS WITH ELECTED OFFICIALS REGARDING FUNDING FOR ME/CFS RESEARCH INITIATIVES. THE ORGANIZATION ALSO CONDUCTED GRASSROOTS ADVOCACY EFFORTS ENCOURAGING CONSTITUENTS TO CONTACT ELECTED OFFICIALS CONCERNING THE EXTENSION OF TELEHEALTH SERVICES AND MEDICAID FUNDING. TOTAL LOBBYING-RELATED STAFF TIME AND ASSOCIATED EXPENSES WERE ESTIMATED AT APPROXIMATELY $900. 4634 4634 4634 FORM 990, PART VI, SECTION A, LINE 5 THE ORGANIZATION EXPERIENCED A THEFT/DIVERSION OF ASSETS DUE TO FRAUDULENT CREDIT CARD USE TOTALING $15,870. THE FUNDS HAVE BEEN PARTIALLY RETURNED BY THE FINANCIAL INSTITUTION AS OF THE FILING DATE AND ARE EXPECTED TO BE FULLY RETURNED SUBSEQUENT TO THE FILING. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WILL BE REVIEWED BY MANAGEMENT AND A COMMITTEE OF THE BOARD OF DIRECTORS PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE #ME ACTION CONFLICT OF INTEREST POLICY COVERS STAFF MEMBERS AND BOARD MEMBERS. EACH COVERED PERSON IS GIVEN A COPY OF THE CONFLICT OF INTEREST POLICY AT THE TIME THEY BECOME AFFILIATED WITH THE ORGANIZATION AND MUST AGREE IN WRITING TO ABIDE BY IT. COVERED PERSONS ARE REQUIRED TO DISCLOSE TO THE CHAIR OF THE BOARD OR FULL BOARD OF DIRECTORS IF A POTENTIAL CONFLICT EXISTS. THE REMAINING BOARD MEMBERS WILL DETERMINE WHETHER AN ACTUAL CONFLICT OF INTEREST EXISTS. THE COVERED PERSON THAT DISCLOSED THE RELATIONSHIP WILL NOT PARTICIPATE IN OR BE PRESENT DURING THE DISCUSSION OR VOTE. ALL PROCEEDINGS ARE DOCUMENTED IN THE MEETING MINUTES. FORM 990, PART VI, SECTION C, LINE 19 #MEACTION DOES NOT CURRENTLY MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FINANCIAL STATEMENTS ARE MADE AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G PAYROLL PROCESSING FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 5,663. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 5,663. OTHER OUTSIDE SERVICES: PROGRAM SERVICE EXPENSES 50,860. MANAGEMENT AND GENERAL EXPENSES 7,478. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 58,338. CONTRACT SERVICES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 7,824. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 7,824. DIGITAL SERVICES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 70. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 70. FORM 990, PART XI, LINE 9: DIVERSION OF FUNDS, SUBSEQUENTLY RETURNED -15,870. FORM 990, PART XII, LINE 2C: THE ORGANIZATION DID NOT CHANGE ITS SELECTION OR OVERSIGHT PROCESS IN THE CURRENT YEAR.