2026-08-26T10:39:57-05:00 2025-12-31 410746749 CLIFTONLARSONALLEN LLP 220 S 6TH STREET SUITE 300 MINNEAPOLIS MN 55402 990 2025-01-01 832016277 I AM ALS IAMA 3013377334 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 JENNIFER FORTNER TREASURER 3013377334 2026-08-07 1 LIZ COOK P01878112 6123764500 2026-07-30 2025 2025-03-06 01:10:19Z JENNIFER FORTNER 1200 PENNSYLVANIA AVE NW 14135 WASHINGTON DC 20044 2583558 0 X WWW.IAMALS.ORG X 2018 IL THE MISSION OF I AM ALS IS TO ACCELERATE A CURE FOR ALS BY MOBILIZING COLLECTIVE POWER TO DRIVE URGENT POLICY AND SYSTEMS CHANGE. 13 13 13 256 0 0 4027369 2454903 0 0 64456 89388 26117 22128 4117942 2566419 5255 0 0 0 1732743 1812783 0 0 224219 828632 756552 2566630 2569335 1551312 -2916 3413223 3450337 57550 98584 3355673 3351753 THE MISSION OF I AM ALS IS TO ACCELERATE A CURE FOR ALS BY MOBILIZING COLLECTIVE POWER TO DRIVE URGENT POLICY AND SYSTEMS CHANGE. 0 0 478099 0 0 COMMUNITY SUPPORTI AM ALS OFFERS A MULTI-PRONGED, PERSON-CENTERED SUPPORT PORTFOLIO OF PROGRAMS FOR PEOPLE LIVING WITH ALS, CAREGIVERS, AND LOVED ONES AS THEY NAVIGATE THE EMOTIONAL, PRACTICAL, AND INFORMATIONAL CHALLENGES OF THE DISEASE. THROUGH DIRECT 1:1 SUPPORT, VIRTUAL SUPPORT GROUPS, PEER MATCHING, AND CURATED RESOURCES, THE COMMUNITY SUPPORT TEAM HELPS INDIVIDUALS FEEL LESS ALONE, CONNECT CLIENTS WITH TRAINED COMMUNITY MEMBER MENTORS WHO SHARE SIMILAR EXPERIENCES, AND NAVIGATE CLIENTS TO THE RESOURCES, INFORMATION, AND PROGRAMS THEY NEED. THIS INITIATIVE IMPROVES QUALITY OF LIFE WHILE BUILDING A COMMUNITY ROOTED IN CONNECTION, DIGNITY, AND HOPE. 526421 0 0 GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS LEVERAGES THE EXPERTISE AND LIVED EXPERIENCE OF THE ALS COMMUNITY TO DRIVE URGENT FEDERAL POLICY AND SYSTEMS CHANGE. THE LEGISLATIVE PROGRAMS ARE INTENDED TO FORCE MULTIPLY ALS RESEARCH AND TREATMENT RESOURCES BY USING FEDERAL POLICY AND FUNDING BUCKETS TO MAXIMIZE INVESTMENTS. THE GOVERNMENT AFFAIRS TEAM WORKS ALONGSIDE COMMUNITY LEADERS, POLICYMAKERS, RESEARCHERS, REGULATORS, AND OTHER PARTNERS TO SECURE APPROPRIATIONS, POLICY, AND LEGISLATION THAT: 1) INCREASES ALS RESEARCH FUNDING, 2) PROTECTS AND EXPANDS ACCESS TO PROMISING TREATMENTS, AND 3) IMPROVES CLINICAL RESEARCH SYSTEMS AND A PATH TO REGULATORY SUCCESS, ALL ULTIMATELY ACCELERATING THE PATH TOWARDS A CURE. 903058 0 0 COMMUNITY ORGANIZING AND COMMUNICATIONI AM ALS BUILDS AND SUSTAINS A NATIONAL MOVEMENT BY EQUIPPING COMMUNITY MEMBERS THOSE LIVING WITH AND IMPACTED BY ALS TO TAKE COLLECTIVE ACTION. THROUGH WEEKLY COMMUNITY TEAMS, DIGITAL ACTIONS, EVENTS, STORY-SHARING, AWARENESS CAMPAIGNS, AND COMMUNICATIONS, THE ORGANIZATION TRAINS AND EQUIPS VOLUNTEERS, FACILITATES ADVOCACY, AND MOBILIZES A COMMUNITY AND NATIONAL CONVERSATION AROUND BOLD PRIORITIES AND A FOCUS ON A CURE. I AM ALS STRIVES TO ENSURE PEOPLE LIVING WITH ALS ARE CENTERED IN THE DECISIONS THAT SHAPE THE FUTURE OF ALS SCIENCE, CARE, AND ACCESS. THESE EFFORTS STRENGTHEN COMMUNITY LEADERSHIP, INCREASE ALS AWARENESS AND COMPETENCY, AND CATALYZE PROGRESS ON POLICY CHANGE, RESEARCH, TRIAL ACCESS, CARE, AND PUBLIC ENGAGEMENT. 111596 0 0 111596 2019174 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 24 0 1 13 1 0 0 0 0 0 0 0 0 0 0 0 0 X 13 13 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA FL GA HI IL KS KY MD MI MN MS NH NJ NM NY OR PA RI SC TN UT VA WV WI MA NC X X ERIN ALRED 4043377350 1200 PENNSYLVANIA AVE NW UNIT 14135 WASHINGTON DC 20044 PETER BOWEN BOARD CHAIR 2.00 X X 0 0 0 JENNY FORTNER BOARD TREASURER 2.00 X X 0 0 0 PEGGY PLEWS-OGAN BOARD SECRETARY 2.00 X X 0 0 0 BRIAN WALLACH CO-FOUNDER 2.00 X X 0 0 0 TIM ABESKA BOARD MEMBER 2.00 X 0 0 0 SANDRA ABREVAYA CO-FOUNDER 2.00 X 0 0 0 JANO CABRERA BOARD MEMBER 2.00 X 0 0 0 LOUISE LANGHEIER BOARD MEMBER 2.00 X 0 0 0 MICHAEL O'NEIL BOARD MEMBER 2.00 X 0 0 0 NEEL PAREKH BOARD MEMBER 2.00 X 0 0 0 JUAN A REYES BOARD MEMBER 2.00 X 0 0 0 CHUCK SMITH BOARD MEMBER 2.00 X 0 0 0 DAN TATE BOARD MEMBER 2.00 X 0 0 0 ANDREA GOODMAN CEO 40.00 X 300303 0 57925 ERIN ALRED CHIEF OF STAFF 40.00 X 120205 0 34652 ADITI NARAYAN MINKOFF VP OF COMMUNITY SUPPORT 40.00 X 160778 0 41705 MICHAEL LECKER VP OF COMMUNITY ORGANIZING 40.00 X 148955 0 20248 DUSTIN WATSON VP OF GOVERNMENT RELATIONS 40.00 X 154595 0 1096 884836 0 155626 5 0 1 0 WINNING STRATEGIES WASHINGTON LLC 409 7TH STREET NW SUITE 450 WASHINGTON DC 20044 LOBBYING, GOVERNMENT AFFAIRS AND COUNSEL 120000 1 2454903 2454903 89388 89388 17139 17139 0 0 MERCHANDISE SALES 455000 22128 22128 22128 2566419 22128 0 89388 X 358228 293747 35823 28658 1123174 948071 63456 111647 18938 16104 856 1978 207725 175171 12042 20512 104718 87860 6877 9981 67216 67216 94308 94308 277140 234940 35037 7163 7253 1800 5453 152327 74303 56470 21554 80132 43775 19239 17118 11022 8255 2767 42078 32514 9409 155 3210 663 2547 10214 10214 MISCELLANEOUS 10458 7538 2920 RECRUITMENT FEES 1194 125 1069 2569335 2019174 325942 224219 1069885 1081204 1435252 1355678 93501 203975 21521 14492 791612 793536 1452 1452 3413223 3450337 43320 72299 14230 26285 57550 98584 X 3255673 3281753 100000 70000 3355673 3351753 3413223 3450337 -2916 -1004 0 X 0 1 X 1 0 X 3338131 1609370 2290726 4027369 2454903 13720499 3338131 1609370 2290726 4027369 2454903 13720499 1853876 11866623 162 1004 5295 64456 85321 156238 470 225 695 13877432 48245 0.85510 0.82340 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER INCOME - 2021 AMOUNT: $ 470. 2022 AMOUNT: $ 225. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 36212 58096 94308 2475028 2569336 278467 69617 0 0 275761 278467 554228 831342 68588 94308 162896 21130 36212 57342 86013 21130 36212 57342 0 ACCRUED EXPENSES 3334 PAYROLL LIABILITIES 22951 26285 2576974 -1004 11559 10555 2566419 0 2566419 2580894 11559 11559 2569335 0 2569335 X 1 1 X X X X X 0 0 0 0 0 0 0 0 0 ANDREA GOODMAN CEO 270033 0 30000 0 270 0 11298 0 46627 0 358228 0 0 0 ADITI NARAYAN MINKOFF VP OF COMMUNITY SUPPORT 159157 0 1500 0 121 0 6625 0 35080 0 202483 0 0 0 MICHAEL LECKER VP OF COMMUNITY ORGANIZING 147837 0 1000 0 118 0 6239 0 14009 0 169203 0 0 0 DUSTIN WATSON VP OF GOVERNMENT RELATIONS 143295 0 11000 0 300 0 0 0 1096 0 155691 0 0 0 ERIN ALRED CHIEF OF STAFF 118125 0 2000 0 80 0 0 0 34652 0 154857 0 0 0 PART I, LINE 1A PER OUR BOARD REIMBURSEMENT POLICY, I AM ALS COVERS TRAVEL COSTS FOR CAREGIVERS OF BOARD MEMBERS WHO ARE LIVING WITH ALS WHEN TRAVEL IS REQUIRED FOR I AM ALS BOARD ACTIVITIES. FORM 990, PART VI, SECTION A, LINE 2 CO-FOUNDERS AND MEMBERS OF THE BOARD, SANDRA ABREVAYA AND BRIAN WALLACH, HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE ORGANIZATION'S AUDIT COMMITTEE. THE RETURN WAS THEN PROVIDED TO THE FULL BOARD, PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, KEY PERSON AND MEMBER OF A COMMITTEE ANNUALLY SIGNS A CONFLICT OF INTEREST STATEMENT, WHICH AFFIRMS THAT SUCH PERSON HAS RECEIVED, READ, UNDERSTANDS AND AGREES WITH THE POLICY. A CONFLICT OF INTEREST ARISES WHEN A PERSON HAS AN EXISTING OR POTENTIAL FINANCIAL INTEREST OR OTHER MATERIAL INTEREST THAT IMPAIRS, OR APPEARS TO IMPAIR, HIS OR HER INDEPENDENCE OR OBJECTIVITY IN THE DISCHARGE OF RESPONSIBILITIES AND DUTIES TO I AM ALS. IF A CONFLICT ARISES, EACH RELATED PARTY DISCLOSES ANY DIRECT OR INDIRECT FINANCIAL OR OTHER MATERIAL INTEREST WHICH HE OR SHE OR HIS OR HER RELATIVES HAS OR REASONABLY EXPECTS TO HAVE IN A RELATED PARTY TRANSACTION PRIOR TO OR AS SOON AS PRACTICABLE FOLLOWING THE START OF ANY NEGOTIATIONS WITH RESPECT TO SUCH MATTER. INTERESTS WILL BE DISCLOSED IN WRITING TO THE SECRETARY OF THE CORPORATION. THE SECRETARY OF THE CORPORATION PROVIDES A COPY OF ALL SUCH DISCLOSURES TO THE DIRECTORS OF THE CORPORATION. THE BOARD REVIEWS ALL TRANSACTIONS, AGREEMENTS OR ANY OTHER ARRANGEMENTS BETWEEN THE CORPORATION AND A RELATED PARTY, AND ANY OTHER TRANSACTIONS WHICH MAY INVOLVE A POTENTIAL CONFLICT OF INTEREST. NO RELATED PARTY VOTES ON ANY MATTER WITH RESPECT TO WHICH HE OR SHE HAS BEEN DETERMINED BY THE BOARD TO HAVE A FINANCIAL INTEREST. IF THE BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE THAT A MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT INFORMS THE MEMBER OF THE BASIS FOR SUCH BELIEF AND AFFORDS THE MEMBER AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE MEMBER'S RESPONSE AND INVESTIGATING FURTHER, AS WARRANTED BY THE CIRCUMSTANCES, THE BOARD OR COMMITTEE DETERMINES THAT THE MEMBER HAS IN FACT FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, THE BOARD TAKES APPROPRIATE CORRECTIVE ACTION. FORM 990, PART VI, SECTION B, LINE 15 WHISTLEBLOWER POLICY: I AM ALS'S WHISTLEBLOWER POLICY REQUIRES ALL DIRECTORS, OFFICERS, AND EMPLOYEES TO REPORT ETHICS VIOLATIONS OR SUSPECTED VIOLATIONS, INITIALLY TO THEIR DIRECT SUPERVISOR UNLESS THE SUPERVISOR IS INVOLVED OR THE RESPONSE IS UNSATISFACTORY, IN WHICH CASE REPORTS ARE MADE DIRECTLY TO THE COMPLIANCE OFFICER USING THE EMPLOYEE COMPLAINT FORM. THE COMPLIANCE OFFICER INVESTIGATES AND RESOLVES CONCERNS, INFORMS THE BOARD CHAIR, ADVISES THE CEO, BOARD, AND/OR AUDIT COMMITTEE AS NEEDED, AND REPORTS ANNUALLY TO THE BOARD. ALL COMPLAINTS ARE ACKNOWLEDGED WITHIN FIVE BUSINESS DAYS, INVESTIGATED PROMPTLY, AND CORRECTIVE ACTION IS TAKEN WHEN WARRANTED. THE POLICY PROHIBITS RETALIATION AGAINST INDIVIDUALS WHO REPORT IN GOOD FAITH, WITH DISCIPLINARY ACTION FOR RETALIATORS UP TO TERMINATION, AND ALLOWS CONFIDENTIAL OR ANONYMOUS REPORTING. THE AUDIT COMMITTEE ADDRESSES COMPLAINTS RELATED TO ACCOUNTING, INTERNAL CONTROLS, OR AUDITING, WITH THE COMPLIANCE OFFICER ENGAGED UNTIL RESOLUTION, AND REPORTS MUST BE MADE IN GOOD FAITH, WITH FALSE OR MALICIOUS CLAIMS TREATED AS A SERIOUS OFFENSE. RECORD RETENTION POLICY: I AM ALS'S RECORD RETENTION POLICY PROVIDES GUIDELINES FOR IDENTIFYING, RETAINING, STORING, PROTECTING, AND DISPOSING OF ORGANIZATIONAL RECORDS IN COMPLIANCE WITH LEGAL AND BUSINESS REQUIREMENTS. THE POLICY REQUIRES MAINTAINING ACCURATE, COMPLETE, AND HIGH-QUALITY RECORDS FOR SPECIFIED RETENTION PERIODS, WITH PERMANENT RETENTION FOR CERTAIN DOCUMENTS (E.G., GOVERNING DOCUMENTS, TAX EXEMPTION LETTERS, DONOR RECORDS FOR RESTRICTED GIFTS), AND DESTRUCTION OF INACTIVE RECORDS IN AN APPROPRIATE MANNER ONCE RETENTION PERIODS EXPIRE. RECORDS RELEVANT TO ANY ACTUAL, PENDING, OR REASONABLY ANTICIPATED LEGAL PROCEEDING MUST BE PRESERVED FOR ITS DURATION. ALL STAFF, INCLUDING VOLUNTEERS UNDER SUPERVISION, ARE RESPONSIBLE FOR COMPLIANCE, WITH THE SECRETARY SERVING AS THE RECORD RETENTION COMPLIANCE OFFICER TO OVERSEE IMPLEMENTATION, REVIEW, AND PROPER DESTRUCTION. RETENTION TIMELINES VARY BY RECORD TYPE, RANGING FROM PERMANENT TO TWO YEARS, AND INCLUDE DETAILED CATEGORIES FOR ACCOUNTING, DONATIONS, LEGAL DOCUMENTS, PERSONNEL, PROGRAM/GRANT FILES, INSURANCE, AND TAX RECORDS. NONCOMPLIANCE MAY RESULT IN DISCIPLINARY ACTION UP TO TERMINATION, AND THE POLICY IS PERIODICALLY REVIEWED TO ENSURE ALIGNMENT WITH APPLICABLE LAWS. COMPENSATION PROCESS: THE BOARD OF DIRECTORS SOUGHT DATA FROM SEVERAL SOURCES TO ASSESS EXECUTIVE COMPENSATION RANGES, INCLUDING AN INDEPENDENT SEARCH FIRM, AND REVIEWED SEVERAL COMPENSATION STUDIES FROM PROFESSIONALS FOR NONPROFITS TO KOYA LEADERSHIP PARTNERS. WE DETERMINED THE KEY CRITERIA FOR OUR DECISION WERE: 1) COMPETITIVE DATA FROM THE SOURCES I AM ALS 83-2016277 LISTED ABOVE, 2) LEADER QUALIFICATIONS INCLUDING EXPERIENCE AND ADVANCED DEGREES, AND 3) A COMPENSATION PHILOSOPHY TO PAY COMPETITIVELY GIVEN THE DEMANDING, HEAVY, AND URGENT NATURE OF THE MISSION. THE CEO'S 2024 AND 2025 GOALS AND PERFORMANCE REVIEWS WERE PRESENTED TO THE FULL BOARD. IN ADDITION TO THE CEO'S SALARY AND BONUS, THE BOARD APPROVES THE ANNUAL BUDGET, WHICH INCLUDES THE SALARIES OF ALL EMPLOYEES. THE PROCESS DESCRIBED HERE WAS LAST COMPLETED IN 2025. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC PER REQUEST. FORM 990, PART IX, LINE 11G COMMUNICATION: PROGRAM SERVICE EXPENSES 54,916. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 54,916. CONSULTING: PROGRAM SERVICE EXPENSES 104,293. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 104,293. IT: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 22,154. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 22,154. PAYROLL & HR FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 12,883. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 12,883. FUNDRAISING: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 7,163. TOTAL EXPENSES 7,163. OTHER ADVOCACY NOT LOBBYING: PROGRAM SERVICE EXPENSES 75,731. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 75,731.