2011-08-15T12:30:31-05:00 2010-12-31 BBD LLP 1835 MARKET STREET 26TH FLOOR PHILADELPHIA PA 19103 990 2010-01-01 383569922 NEPHCURE FOUNDATION NEPH 6105400186 15 WATERLOO AVENUE BERWYN PA 19312 IRVING A SMOKLER 6105400186 2011-08-15 1 MARIANNE MAK 2155677770 2010 2016-02-24 21:20:13Z IRVING A SMOKLER 15 WATERLOO AVENUE BERWYN PA 19312 2257174 0 X WWW.NEPHCURE.ORG X 2000 MI SEE PAGE 2, PART III STATEMENT OF PROGRAM SERVICE ACCOMPLISHMENTS, LINE 1. 18 18 0 200 0 0 1994853 2063743 27000 6000 19274 6097 0 0 2041127 2075840 2793636 908154 0 0 0 0 0 0 297638 963153 1087785 3756789 1995939 -1715662 79901 1515243 1484682 2175787 2065325 -660544 -580643 THE NEPHCURE FOUNDATION IS THE ONLY NONPROFIT ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORT RESEARCH OF THE CAUSE OF THE TWO POTENTIALLY DEBILITATING KIDNEY DISEASES, NEPHROTIC SYNDROME AND FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS), IMPROVE TREATMENT AND FIND A CURE. 0 0 1251130 908154 RESEARCH - THE NEPHCURE FOUNDATION COMMITTED TO MULTI-YEAR GRANTS FOR BASIC, TRANSLATIONAL AND CLINICAL SCIENTIFIC RESEARCH. THE PURPOSE BEING TO DETERMINE CAUSES OF KIDNEY DISEASE, NEPHROTIC SYNDROME & FSGS THAT COULD LEAD TO EFFECTIVE TREATMENTS. 292160 6000 HEALTH AND EDUCATION - THE NEPHCURE FOUNDATION FUNDS AND MANAGES PROGRAMS TO EDUCATE PATIENT/FAMILIES ABOUT NEPHROTIC SYNDROME & FSGS. THE NEPHCURE FOUNDATION ALSO PROVIDES EDUCATION MATERIALS (BI-LINGUAL) FOR PHYSICIANS AND DIRECTLY TO PATIENT FAMILY. 56523 ADVOCACY - THE NEPHCURE FOUNDATION WORKS WITH THE NATIONAL INSTITUTE OF HEALTH AND OTHER HEALTH FUNDING ORGANIZATIONS TO ENCOURAGE MORE RESEARCH INTO NEPHROTIC SYNDROME & FSGS. 1599813 1 1 0 1 1 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 23 0 0 0 0 0 0 0 1 1 0 0 0 0 X 18 18 1 1 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 AL AK AZ AR CA CO CT FL GA KS KY IL LA ME MD MA MI MN MS MO NH NJ NM NY NC OK OH OR PA RI SC TN UT VA WV WA WI X EXECUTIVE DIRECTOR 6105400186 15 WATERLOO AVENUE BERWYN PA 19312 X IRVING A SMOKLER PHD 7.00 X X 0 0 0 RON COHEN 1.00 X X 0 0 0 CAROL SMOKLER PHD 1.00 X X 0 0 0 MICHAEL LEVINE 15.00 X X 0 0 0 LOU ANTOSH 1.00 X 0 0 0 BRUCE BOYLE 0.50 X 0 0 0 KATHLEEN BRODERICK 5.00 X 0 0 0 CLAIRE CASCIO RN 5.00 X 0 0 0 CLAUDINE CONAWAY 0.50 X 0 0 0 JIM DUQUETTE 2.00 X 0 0 0 SCOTT GOLDSTEIN 1.00 X 0 0 0 ELAINE KAMIL MD 1.00 X 0 0 0 LAURIE B KAZENOFF 1.00 X 0 0 0 SARRETTA MCDONOUGH ESQ 2.00 X 0 0 0 JOHN ROY 1.00 X 0 0 0 JENNIFER GEISSER SIEGEL 1.00 X 0 0 0 WILLIAM SMOYER MD 1.00 X 0 0 0 CHARLES TURNER 4.00 X 0 0 0 HENRY BREHM 60.00 X 0 0 0 0 0 0 0 0 0 0 VIZION GROUP 15 WATERLOO AVENUE BERWYN PA 19312 MGT & OTHER SERVICES 488414 1 1440014 623729 2063743 PATIENT EDUC SEMINARS 900099 6000 6000 6000 6097 6097 135915 1440014 135915 0 45419 45419 0 2075840 0 0 12097 908154 908154 404381 266891 28307 109183 27366 27366 73871 67338 337 6196 88112 80156 7956 70689 10901 50236 9552 29867 25810 513 3544 30228 22671 1511 6046 8915 8780 12 123 96406 95363 1043 7943 4766 1589 1588 SPECIAL EVENTS 146099 146099 DISCOUNT ON GRANTS PAY. 61500 61500 PROFESSIONAL SERVICES 38965 16873 14741 7351 MISCELLANEOUS 3443 3244 199 1995939 1599813 98488 297638 334636 509203 972995 735382 190344 224600 17268 15497 1515243 1484682 76734 48736 2099053 2016589 2175787 2065325 X -680544 -638703 20000 58060 -660544 -580643 1515243 1484682 79901 0 X 0 1 1 X 0 X 886334 1483300 1626256 1994853 2063743 8054486 886334 1483300 1626256 1994853 2063743 8054486 51972 8002514 14969 26121 30928 19274 6097 97389 17140 249316 132417 181334 580207 8732082 52368 0.91640 0.86510 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 0 0 0 0 0 1 27366 0 0 27366 0 5 114766 442549 123276 1 1 0 2075840 1995939 79901 0 79901 2423015 165841 181334 347175 2075840 0 2075840 2343114 165841 181334 347175 1995939 0 1995939 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: UNCERTAIN TAX POSITIONS UNDER FIN 48 NEPHCURE FOUNDATION BELIEVES THAT IT HAD NO UNCERTAIN TAX POSITIONS UNDER FIN 48 AND, AS A RESULT, THE ADOPTION OF THE NEW STANDARD HAD NO IMPACT ON NEPHCURE FOUNDATION'S FINANCIAL STATEMENTS. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 181,334. PART XIII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 181,334. 1 NORTH AMERICA 0 0 FUNDRAISING 0 0 0 0 0 0 0 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 0 0 0 0 COUNTDOWN TO A CURE 614538 534778 79760 999 1500 75427 1834 0 NEPHCURE WALKS 579567 557514 22053 4421 11965 2610 3057 0 4 379754 345652 34102 913 15351 17438 400 1573859 1437944 135915 6333 28816 95475 5291 135915 0 45419 3217 3180 39022 1 0.98000 45419 3217 3180 39022 45419 NY 0 THE STATE OF NEW YORK DOES NOT PROVIDE LICENSES FOR CHARITY CASINO EVENTS. 0 1 0 0.00000 1.00000 EXECUTIVE DIRECTOR OF THE ORGANIZAT 15 WATERLOO AVENUE BERWYN PA 19312 0 0 1 CHILDREN'S HOSPITAL BOSTON 300 LONGWOOD AVENUE BOSTON MA 02115 104277444 501(C)(3) 83332 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT COLLEGE OF MEDICINE THE ALBERT EINSTEIN 1300 MORRIS PARK AVENUE BRONX NY 10461 131624225 501(C)(3) 65000 YOUNG INVESTIGATOR SCIENTIFIC AND POST-DOCTORAL FELLOWSHIP GRANTS FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH THE 972 BRUSH HOLLOW ROAD 5TH FLOOR WESTBURY NY 11590 112673595 501(C)(3) 50000 PILOT STUDYING ON FSGS GRANT HARVARD MEDICAL SCHOOL 149 13TH STREET LAB OFFICE 8214 CHARLESTOWN MA 02109 104210358 501(C)(3) 100000 YOUNG INVESTIGATOR SCIENTIFIC GRANT MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST BOSTON MA 02114 041564655 501(C)(3) 100000 ESTABLISHED INVESTIGATOR NEW DIRECTION GRANTS MEDICAL UNIVERSITY OF SOUTH CAROLINA 179 ASHLEY AVENUE CHARLESTON SC 29425 576007222 501(C)(3) 99822 YOUNG INVESTIFATOR CAREER DEVELOPMENT GRANT MOUNT SINAI SCHOOL OF MEDICINE OF NEW YORK UNIVERSITY ONE GUSTAVE LEVY PLACE NEW YORK NY 10029 113617119 501(C)(3) 10000 ESTABLISHED INVESTIGATOR NEW DIRECTION GRANT SUNY UPSTATE MEDICAL UNIVERSITY 750 E ADAMS STREET SYRACUSE NY 13210 141368631 501(C)(3) 100000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT UNIVERSITY OF MIAMI SCHOOL OF MEDICINE BATCHELOR BUILDING MIAMI FL 33136 590624458 501(C)(3) 200000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT UNIVERSITY OF MICHIGAN 02 OBSERVATORY ANN ARBOR MI 48109 386006309 501(C)(3) 100000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT 10 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE ORGANIZATION MONITORS THE USE OF GRANT FUNDS THROUGH ITS GRANT APPLICATION PROCESS, WHICH REQUESTS A NUMBER OF DEPARTMENT AUTHORIZATIONS THAT ENSURE SUPPORT FOR EACH GRANT RECIPIENT. THE ORGANIZATION ALSO REQUIRES AN INTERIM REPORT FROM EACH GRANT RECIPIENT. UPON APPROVAL OF THE RECIPIENT'S INTERIM REPORT THE REMAINDER OF FUNDING IS DISBURSED. A FINAL REPORT IS ALSO REQUESTED OF THE GRANT RECIPIENT ONCE THE GRANT PERIOD HAS ENDED. VIZION GROUP ENTITY >35% OWNED BY THE EXECUTIVE DIRECTOR 441678 INDEPENDENT CONTRACTOR ARRANGEMENT 0 VIZION GROUP ENTITY >35% OWNED BY THE EXECUTIVE DIRECTOR 9238 OCCUPANCY COSTS 0 FORM 990, PART VI, SECTION A, LINE 2 FAMILY RELATIONSHIP AMONG VOTING MEMBERS IRVING A. SMOKLER, PHD AND CAROL SMOKLER, PHD ARE HUSBAND AND WIFE AND SERVE AS OFFICERS OF THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION A, LINE 3 DELEGATION OF MANAGEMENT DUTIES TO A MANAGEMENT COMPANY THE ORGANIZATION OUTSOURCES ITS ADMINISTRATIVE AND MANAGEMENT FUNCTIONS TO AN INDEPENDENT MANAGEMENT SERVICE COMPANY, INCLUDING THE POSITION OF EXECUTIVE DIRECTOR (NON-VOTING MEMBER OF THE BOARD) AND OTHER MANAGEMENT PERSONNEL OF THE ORGANIZATION. IN ACCORDANCE WITH ANNOUNCEMENT 2001-33, THE ORGANIZATION INCURRED MANAGEMENT FEES AND OTHER PROFESSIONAL SERVICES FOR A TOTAL OF $441,678 FOR THE TAX YEAR ENDING 2010. FORM 990, PART VI, SECTION B, LINE 11 GOVERNING BODY REVIEW OF FORM 990 PRIOR TO ITS FILING, A FINAL COPY OF THE FORM 990 IS DISTRIBUTED TO EACH VOTING MEMBER OF THE GOVERNING BOARD. FORM 990, PART VI, SECTION B, LINE 12C MONITORING AND ENFORCEMENT OF CONFLICTS POLICY THE BOARD REVIEWS COMPLETED QUESTIONNAIRES AND DISCLOSES INFORMATION DURING THE ANNUAL BOARD MEETING FOR BOARD APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 PUBLIC AVAILABILITY OF OTHER DOCUMENTS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENT, AND FORM 990 ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. DONATED SERVICES PROVIDED TO THE NEPHCURE FOUNDATION SCHEDULE D, PART XII LINE 2B AND PART XIII LINE 2B THE NEPHCURE FOUNDATION RECEIVED IN TOTAL $165,841 IN DONATED SERVICES. THIS AMOUNT IS LISTED ON THEIR FINANCIAL STATEMENTS AND CONSISTS OF THE FOLLOWING DONATED SERVICES: $10,345 CONSISTS OF VARIOUS SERVICES RELATED TO THE STEP FORWARD WALK EVENT. $102,379 CONSISTS OF HEALTHCARE PROFESSIONALS DONATING THEIR TIME AND SERVICES. $53,117 WHICH CONSISTS OF MARKETING SERVICES.