2011-04-14T11:02:14-00:00 2010-12-31 SECHLER CPA PC 921 E ORANGE DRIVE PHOENIX AZ 85014 990 2010-01-01 208237159 ALPORT SYNDROME FOUNDATION INC ALPO 4804600621 1608 E BRIARWOOD TERRACE PHOENIX AZ 85048 STANLEY SILVER 2011-04-14 true CAROLYN SECHLER 6022302700 2011-04-14 2010 2016-03-07 17:11:31Z SHARON LAGAS 1608 E BRIARWOOD TERRACE PHOENIX AZ 85048 221698 false X WWW.ALPORTSYNDROME.ORG X 2007 AZ THE ALPORT SYNDROME FOUNDATION IS A 501C3 NPO CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH THE GOAL OF FUNDING RESEARCH TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY CURE THE DISEASE. THE ALPORT SYNDROME FOUNDATION IS A 501C3 NPO CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH THE GOAL OF FUNDING RESEARCH TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY CURE THE DISEASE. 5 5 0 50 0 68260 75138 0 351 216 138190 68611 213544 27500 12800 0 0 0 0 38947 74469 66447 87269 2164 126275 75508 201783 0 75508 201783 X THE ALPORT SYNDROME FOUNDATION IS A 501C3 NPO CEATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH THE GOAL OF FUNDING RESEARCH TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY CURE THE DISEASE. false false 63148 SPONSORED AN ALL DAY INTERNATIONAL SYMPOSIUM ON ALPORT SYNDROME IN CONJUNCTION WITH THE INTERNATIONAL PEDIATRIC NEPHROLOGY ASSOCIATION IN NEW YORK, NEW YORK ON AUGUST 28, 2011 ATTENDED BY ALMOST 500 PHYSICIANS, PATIENTS AND FAMILIES. 5052 ATTENDED AND EXHIBITED AT AMERICAN SOCIETY OF NEPHROLOGY RENAL WEEK IN DENVER, CO NOVEMBER 16-21, 2010 INCREASING AWARENESS AND DISTRIBUTING EDUCATIONAL INFORMATION TO THE MEDICAL AND RESEARCH COMMUNITY. OVER 12000 MEDICAL PROFESSIONALS ATTEND ASN RENAL WEEK. 8632 INCREASED OUTREACH AND AWARENESS THROUGH AN UPGRADE TO THE FOUNDATION WEBSITE AND USE OF SOCIAL MEDIA WITH 639 FACEBOOK FRIENDS, USE OF TWITTER AND EXPANDED FORUM PARTICIPATION ON OUR WEBSITE TO OVER 1200 INDIVIDUALS. 3655 80487 true true false false false false false false false false false false false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false false false false false false false false false false true 4 0 true 0 false false false false false false false false false false X 5 5 true false false false false false false true true false false true true true true true true false false false AZ X STANLEY SILVER 4804600621 30042 N 77TH PLACE SCOTTSDALE AZ 85266 X SHARON LAGAS 025.00 X 0 0 0 VINT DEGRAW 003.00 X 0 0 0 MARGARET BLUE 001.00 X 0 0 0 STANLEY SILVER 030.00 X 0 0 0 MICHAEL PANELLA 010.00 X 0 0 0 false false false 75138 75138 216 216 146344 8154 138190 213544 216 0 3250 3250 9550 9550 0 0 0 0 0 0 0 11599 8586 3013 0 1294 1294 0 0 0 0 2449 1284 1165 6755 6755 0 0 0 0 3655 3655 0 0 0 1660 350 1310 ASN RENAL WEEK 4908 4908 IPNA PROGRAM 40539 40539 INFORMATIONAL BROCHURE 1610 1610 0 87269 80487 6782 0 75508 201783 75508 201783 0 0 X 75508 201783 75508 201783 75508 201783 126275 X false false false X 44837 68826 67467 221482 402612 44837 68826 67467 221482 402612 18896 383716 351 216 567 403179 X 0.00000 0.00000 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED TRAVEL STIPEND North America 1 750 CHECK TRAVEL STIPEND Sub-Saharan Africa 2 2200 CHECK TRAVEL STIPEND East Asia and the Pacific 2 2200 CHECK TRAVEL STIPEND Europe 3 3300 CHECK TRAVEL STIPEND South Asia 1 1100 CHECK false false false false false false ANNUAL CAMPAIGN 62923 62923 385 AZ 5K WALK/RUN 47505 47505 4441 1 35916 35916 3328 146344 146344 8154 8154 138190 Form 990 Part VI 2 SHARON LAGAS, PRESIDENT IS DAUGHTER OF STANLEY SILVER, TREASURER Form 990 Part VI 11B THE TREASURER OF THE ORGANIZATION DISTRIBUTES A PDF COPY OF THE 990 TO ALL BOARD MEMBERS FOR REVIEW AND COMMENT PRIOR TO THE RETURN BEING FILED. Form 990 Part VI 12C AT EACH BOARD AND COMMITTEE MEETING, IF THERE IS A DISCUSSION OF SELECTING OR ENGAGING A VENDOR OR SERVICE PROVIDER, ALL IN ATTENDANCE ARE ASKED PARTICIPATE THIS DISCUSSION IF THERE COULD BE A PERCEIVED CONFLICT. ANNUALLY THE ORGANIZATION REVIEWS AND DISCUSSES THE CONFLICT OF INTEREST POLICY AND REQUESTS THAT EACH BOARD MEMBER LIST AND ACKNOWLEDGE ANY KNOWN CONFLICTS. Form 990 Part VI 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL REPORTS ARE AVAILABLE TO PUBLIC UPON REQUEST.