2011-11-07T10:31:43-06:00 2010-12-31 SS&G FINANCIAL SERVICES INC 301 SPRINGSIDE DRIVE AKRON OH 443332434 990 2010-01-01 650404623 CREUTZFELDT-JAKOB DISEASE FOUNDATION INC CREU 3306682978 PO BOX 5312 AKRON OH 44334 FLORENCE KRANITZ 3306682978 2011-11-02 1 ANNETTE L HOELZER 3306689696 2011-11-02 2010 2016-03-07 17:11:31Z FLORENCE KRANITZ PO BOX 5312 AKRON OH 44334 510429 0 X WWW.CJDFOUNDATION.ORG X 1993 OH TO PROMOTE RESEARCH, EDUCATION, AWARENESS, PATIENT AND FAMILY SUPPORT SERVICES, AND OTHER CHARITABLE PROGRAMS REGARDING CREUTZFELDT-JAKOB DISEASE. 18 18 4 50 0 0 334262 336883 30235 30988 14652 14344 45007 87644 424156 469859 80000 70000 0 0 104596 99656 0 0 38286 242121 151745 426717 321401 -2561 148458 698821 797419 66400 11706 632421 785713 THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. 0 0 205747 30988 ADVOCACY EXPENSE TO PROMOTE RESEARCH ON THE DISEASE. EDUCATION SEMINARS TO FUNDERS OF CREUTZFELDT-JAKOB DISEASE. GRANTS TO SUPPORT RESEARCH ON HUMAN PRION DISEASE. 205747 1 1 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 4 1 0 0 0 0 0 1 1 0 0 0 0 X 18 18 1 0 0 0 0 0 0 1 1 0 0 1 0 0 1 0 0 0 OH FL X RUTHIE R GEORGE TREASURER 3306655590 3632 WEST MARKET STREET 105N AKRON OH 44333 FLORENCE KRANITZ 40.00 X X 0 0 0 SYBIL WILLEN 1.00 X X 0 0 0 RUTHIE R GEORGE 10.00 X X 0 0 0 DR PIERLUIGI GAMBETTI 1.00 X X 0 0 0 ANA BETRO 5.00 X X 0 0 0 MARK GOLDFARB 1.00 X X 0 0 0 TOM HAUGHT 1.00 X 0 0 0 NICK GEORGE 1.00 X 0 0 0 MAYRA LICHTER 1.00 X 0 0 0 SCOTT PATERNOSTER 1.00 X 0 0 0 TOM SAWYER 1.00 X 0 0 0 JIM SIMON 1.00 X 0 0 0 CHRIS SZUCH 1.00 X 0 0 0 STUART YAFFA 1.00 X 0 0 0 CAROLE LADERMAN 1.00 X 0 0 0 DEANA SIMPSON RN 1.00 X 0 0 0 VERONICA OBERDORF RN 1.00 X 4000 0 0 PAUL PATERNOSTER 1.00 X 0 0 0 4000 0 0 0 0 0 0 0 42023 294860 336883 CONFERENCE INCOME 541900 30988 30988 30988 14344 14344 124358 42023 38333 86025 86025 3856 2237 1619 1619 469859 30988 0 101988 30000 30000 40000 40000 4000 4000 86335 46500 17726 22109 12 12 9309 5660 1711 1938 12120 12120 9550 4000 5550 17317 8275 5069 3973 23739 643 22997 99 3502 3502 19 19 3772 3772 1146 1146 PROGRAM EXPENSES 62540 62540 ANNUAL FUND EXPENSE 8440 8440 WEBSITE & DATABASE 3604 3604 MISCELLANEOUS 2139 2139 SPRING APPEAL EXPENSE 1727 1727 2130 525 1605 321401 205747 77368 38286 226330 206591 100000 3924 3027 109 8347 26570 13438 8739 13132 458025 464628 1694 1694 698821 797419 4312 10147 60095 1993 1559 66400 11706 X 596060 785713 36361 0 632421 785713 698821 797419 X 148458 4834 X X 0 1 1 X 0 X 275825 458820 428856 334262 336883 1834646 275825 458820 428856 334262 336883 1834646 23284 1811362 7146 11696 14627 14652 14344 62465 60807 68301 86662 73040 156996 445806 2342917 5040 0.77310 0.82270 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 26570 13438 13132 13132 PAYROLL LIABILITIES 1559 1559 469859 321401 148458 4834 4834 153292 618644 4834 103381 40570 148785 469859 0 469859 465352 103381 40570 143951 321401 0 321401 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: THE FOUNDATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER THE PROVISIONS OF INTERNAL REVENUE CODE SECTION 501(C)(3). THE FOUNDATION QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A) AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A)(2). PART XII LINE 2D: STORE EXPENSES OF $1,762 AND FUNDRAISING EXPENSES OF $38,808 THAT ARE REPORTED SEPARATELY ON THE FINANCIAL STATEMENTS BUT NETTED AGAINST THE INCOME ON THE TAX RETURN. PART XIII LINE 2D: STORE EXPENSES OF $1,762 AND FUNDRAISING EXPENSES OF $38,808 THAT ARE REPORTED SEPARATELY ON THE FINANCIAL STATEMENTS BUT NETTED AGAINST THE INCOME ON THE TAX RETURN. 0 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION RESEARCH FOR HUMAN PRION DISEASE 40000 0 0 0 40000 0 40000 X EUROPE THE GRANT WAS GIVEN FOR THE PURPOSE OF HUMAN PRION DISEASE RESEARCH. 20000 WIRE TRANSFER FMV EUROPE THE GRANT WAS GIVEN FOR THE PURPOSE OF HUMAN PRION DISEASE RESEARCH. 20000 WIRE TRANSFER FMV 2 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: THE ORGANIZATION REQUESTS A SIX MONTH AND END OF YEAR EVALUATION OF THE FUNDS AND RESEARCH PROGRESS. GOLF OUTING 66525 21975 44550 1794 15104 11414 9548 AUCTION 23736 23736 4 65500 20048 45452 155761 42023 113738 1794 15104 11414 9548 37860 75878 1 NATIONAL PRION DISEASE PATHOLOGY SURVEILLANCE CENTER (CASE WESTERN RESERVE) 2085 ADELBERT ROAD ROOM 418 CLEVELAND OH 44106 341018992 501(C)(3) 10000 FMV THE GRANT WAS GIVEN FOR THE PURPOSE OF HUMAN PRION DISEASE RESEARCH. DEPARTMENT OF PATHOLOGY (CASE WESTERN RESERVE) 2085 ADELBERT ROAD CLEVELAND OH 44106 341018992 501(C)(3) 20000 FMV THE GRANT WAS GIVEN FOR THE PURPOSE OF HUMAN PRION DISEASE RESEARCH. 2 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE ORGANIZATION REQUESTS A SIX MONTH AND END OF YEAR EVALUATION OF THE FUNDS AND RESEARCH PROGRESS. FORM 990, PART VI, SECTION A, LINE 2 NICK GEORGE AND RUTHIE GEORGE HAVE A FAMILY RELATIONSHIP. AS WELL AS, PAUL AND SCOTT PATERNOSTER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11 CREUTZELDT-JAKOB DISEASE FOUNDATION RECEIVES A COPY OF FORM 990 TO REVIEW BEFORE THE RETURN IS FILED. FORM 990 IS REVIEWED BY THE PRESIDENT AND BOARD OF DIRECTORS FOR REVIEW OF ACCURACY AND COMPLETENESS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED GAINS ON INVESTMENTS: 4,834. FORM 990, PART XII, LINE 2C THE ORGANIZATION'S FINANCE COMMITTEE ASSUMES THE RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS AND THE SELECTION OF THE INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.