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        <ProgramServices>13186</ProgramServices>
        <ManagementAndGeneral>2826</ManagementAndGeneral>
        <Fundraising>2826</Fundraising>
      </Occupancy>
      <ConferencesMeetings>
        <Total>376560</Total>
        <ProgramServices>368107</ProgramServices>
        <ManagementAndGeneral>8453</ManagementAndGeneral>
      </ConferencesMeetings>
      <DepreciationDepletion>
        <Total>6143</Total>
        <ManagementAndGeneral>6143</ManagementAndGeneral>
      </DepreciationDepletion>
      <OtherExpenses>
        <Description>SPECIAL PROJECTS</Description>
        <Total>97638</Total>
        <Fundraising>97638</Fundraising>
      </OtherExpenses>
      <OtherExpenses>
        <Description>POSTAGE</Description>
        <Total>40821</Total>
        <ProgramServices>30587</ProgramServices>
        <ManagementAndGeneral>5571</ManagementAndGeneral>
        <Fundraising>4663</Fundraising>
      </OtherExpenses>
      <OtherExpenses>
        <Description>PRINTING</Description>
        <Total>30660</Total>
        <ProgramServices>26837</ProgramServices>
        <Fundraising>3823</Fundraising>
      </OtherExpenses>
      <OtherExpenses>
        <Description>RESEARCH MATERIALS</Description>
        <Total>30457</Total>
        <ProgramServices>30457</ProgramServices>
      </OtherExpenses>
      <OtherExpenses>
        <Description>MISCELLANEOUS</Description>
        <Total>16803</Total>
        <ProgramServices>11633</ProgramServices>
        <ManagementAndGeneral>5170</ManagementAndGeneral>
      </OtherExpenses>
      <AllOtherExpenses>
        <Total>25143</Total>
        <ProgramServices>12370</ProgramServices>
        <ManagementAndGeneral>8722</ManagementAndGeneral>
        <Fundraising>4051</Fundraising>
      </AllOtherExpenses>
      <TotalFunctionalExpenses>
        <Total>1366049</Total>
        <ProgramServices>1119987</ProgramServices>
        <ManagementAndGeneral>95957</ManagementAndGeneral>
        <Fundraising>150105</Fundraising>
      </TotalFunctionalExpenses>
      <CashNonInterestBearing>
        <BOY>524625</BOY>
        <EOY>422414</EOY>
      </CashNonInterestBearing>
      <SavingsAndTempCashInvestments>
        <BOY>20518</BOY>
        <EOY>18331</EOY>
      </SavingsAndTempCashInvestments>
      <PledgesAndGrantsReceivable>
        <BOY>180000</BOY>
        <EOY>30000</EOY>
      </PledgesAndGrantsReceivable>
      <PrepaidExpensesDeferredCharges>
        <BOY>2227</BOY>
        <EOY>2135</EOY>
      </PrepaidExpensesDeferredCharges>
      <LandBuildingsEquipmentBasis>90856</LandBuildingsEquipmentBasis>
      <LandBldgEquipmentAccumDeprec>78327</LandBldgEquipmentAccumDeprec>
      <LandBuildingsEquipmentBasisNet>
        <BOY>2020</BOY>
        <EOY>12529</EOY>
      </LandBuildingsEquipmentBasisNet>
      <InvestmentsOtherSecurities>
        <BOY>4413630</BOY>
        <EOY>4542570</EOY>
      </InvestmentsOtherSecurities>
      <OtherAssetsTotal>
        <BOY>20851</BOY>
        <EOY>16461</EOY>
      </OtherAssetsTotal>
      <TotalAssets>
        <BOY>5163871</BOY>
        <EOY>5044440</EOY>
      </TotalAssets>
      <AccountsPayableAccruedExpenses>
        <BOY>8928</BOY>
        <EOY>10565</EOY>
      </AccountsPayableAccruedExpenses>
      <GrantsPayable>
        <BOY>985533</BOY>
        <EOY>434330</EOY>
      </GrantsPayable>
      <TotalLiabilities>
        <BOY>994461</BOY>
        <EOY>444895</EOY>
      </TotalLiabilities>
      <FollowSFAS117>X</FollowSFAS117>
      <UnrestrictedNetAssets>
        <BOY>4130985</BOY>
        <EOY>4540320</EOY>
      </UnrestrictedNetAssets>
      <TemporarilyRestrictedNetAssets>
        <BOY>38425</BOY>
        <EOY>59225</EOY>
      </TemporarilyRestrictedNetAssets>
      <TotalNetAssetsFundBalances>
        <BOY>4169410</BOY>
        <EOY>4599545</EOY>
      </TotalNetAssetsFundBalances>
      <TotalLiabNetAssetsFundBalances>
        <BOY>5163871</BOY>
        <EOY>5044440</EOY>
      </TotalLiabNetAssetsFundBalances>
      <InfoInScheduleOPartXI>X</InfoInScheduleOPartXI>
      <ReconcilationRevenueExpenses>468639</ReconcilationRevenueExpenses>
      <ReconcilationOtherChanges>-38504</ReconcilationOtherChanges>
      <InfoInScheduleOPartXII>X</InfoInScheduleOPartXII>
      <MethodOfAccountingAccrual>X</MethodOfAccountingAccrual>
      <AccountantCompileOrReview>0</AccountantCompileOrReview>
      <FSAudited>1</FSAudited>
      <AuditCommittee>1</AuditCommittee>
      <FinancialStatementSeparate>X</FinancialStatementSeparate>
      <FederalGrantAuditRequired>0</FederalGrantAuditRequired>
    </IRS990>
    <IRS990ScheduleA documentId="RetDoc1039100001">
      <PubliclySupportedOrg170b1Avi>X</PubliclySupportedOrg170b1Avi>
      <GiftsGrantsContribReceived170>
        <CurrentTaxYearMinus4Years>1768716</CurrentTaxYearMinus4Years>
        <CurrentTaxYearMinus3Years>1313423</CurrentTaxYearMinus3Years>
        <CurrentTaxYearMinus2Years>2500473</CurrentTaxYearMinus2Years>
        <CurrentTaxYearMinus1Year>1792265</CurrentTaxYearMinus1Year>
        <CurrentTaxYear>1696806</CurrentTaxYear>
        <Total>9071683</Total>
      </GiftsGrantsContribReceived170>
      <Total170>
        <CurrentTaxYearMinus4Years>1768716</CurrentTaxYearMinus4Years>
        <CurrentTaxYearMinus3Years>1313423</CurrentTaxYearMinus3Years>
        <CurrentTaxYearMinus2Years>2500473</CurrentTaxYearMinus2Years>
        <CurrentTaxYearMinus1Year>1792265</CurrentTaxYearMinus1Year>
        <CurrentTaxYear>1696806</CurrentTaxYear>
        <Total>9071683</Total>
      </Total170>
      <AmountsSubstContributorsTotal>749281</AmountsSubstContributorsTotal>
      <PublicSupportTotal170>8322402</PublicSupportTotal170>
      <GrossInvestmentIncome170>
        <CurrentTaxYearMinus4Years>169877</CurrentTaxYearMinus4Years>
        <CurrentTaxYearMinus3Years>210948</CurrentTaxYearMinus3Years>
        <CurrentTaxYearMinus2Years>214568</CurrentTaxYearMinus2Years>
        <CurrentTaxYearMinus1Year>187424</CurrentTaxYearMinus1Year>
        <CurrentTaxYear>139545</CurrentTaxYear>
        <Total>922362</Total>
      </GrossInvestmentIncome170>
      <TotalSupport>9994045</TotalSupport>
      <GrossReceiptsFromAdmissionsEtc>597608</GrossReceiptsFromAdmissionsEtc>
      <PublicSupportPertcentage170>0.83270</PublicSupportPertcentage170>
      <PublicSupportPertcentPriorYear>0.82970</PublicSupportPertcentPriorYear>
      <ThirtyThreePercntTestsCY170>X</ThirtyThreePercntTestsCY170>
    </IRS990ScheduleA>
    <IRS990ScheduleB documentId="RetDoc1234500001">
      <ContributorInfo>
        <ContributorNumber>RESTRICTED</ContributorNumber>
        <ContributorNameBusiness>
          <BusinessNameLine1>RESTRICTED</BusinessNameLine1>
        </ContributorNameBusiness>
        <ContributorAddressUS>
          <AddressLine1>RESTRICTED</AddressLine1>
          <AddressLine2>RESTRICTED</AddressLine2>
          <City>RESTRICTED</City>
          <State>RESTRICTED</State>
          <ZIPCode>RESTRICTED</ZIPCode>
        </ContributorAddressUS>
        <AggregateContributions>RESTRICTED</AggregateContributions>
      </ContributorInfo>
    </IRS990ScheduleB>
    <IRS990ScheduleD documentId="RetDoc1039900001">
      <NumberDAFsHeld>8</NumberDAFsHeld>
      <DonorAdvisedContributions>293553</DonorAdvisedContributions>
      <GrantsPaidFromDonorFunds>39099</GrantsPaidFromDonorFunds>
      <AggregateDAFValue>557850</AggregateDAFValue>
      <DisclosedOrgsLegalControl>1</DisclosedOrgsLegalControl>
      <DisclosedForCharitablePurposes>1</DisclosedForCharitablePurposes>
      <Equipment>
        <OtherCostOrOtherBasis>90856</OtherCostOrOtherBasis>
        <Depreciation>78327</Depreciation>
        <BookValue>12529</BookValue>
      </Equipment>
      <TotalOfBookValueLandBuildings>12529</TotalOfBookValueLandBuildings>
      <OtherSecurities>
        <Description>INVESTMENTS - OTHER SECURITIES</Description>
        <BookValue>4542570</BookValue>
        <MethodOfValuation>F</MethodOfValuation>
      </OtherSecurities>
      <TotalOfBookValueSecurities>4542570</TotalOfBookValueSecurities>
      <TotalRevenue>1834688</TotalRevenue>
      <TotalExpenses>1366049</TotalExpenses>
      <ExcessOrDeficitForYear>468639</ExcessOrDeficitForYear>
      <OtherAmount>-38504</OtherAmount>
      <TotalAdjustments>-38504</TotalAdjustments>
      <ExcessOrDeficitPerFS>430135</ExcessOrDeficitPerFS>
      <TotRevenueEtcAuditedFinclStmt>1903288</TotRevenueEtcAuditedFinclStmt>
      <NetUnrealizedGainsInvestments>-38504</NetUnrealizedGainsInvestments>
      <OtherRevenues>107104</OtherRevenues>
      <RevenueNotRptdF990>68600</RevenueNotRptdF990>
      <RevenueSubtotal>1834688</RevenueSubtotal>
      <RevenueNotRptdOnFinStmt>0</RevenueNotRptdOnFinStmt>
      <TotalRevenuePerForm990>1834688</TotalRevenuePerForm990>
      <TotExpensesEtcAuditedFinclStmt>1473153</TotExpensesEtcAuditedFinclStmt>
      <OtherExpensesIncluded>107104</OtherExpensesIncluded>
      <ExpensesNotRptdF990>107104</ExpensesNotRptdF990>
      <ExpensesSubtotal>1366049</ExpensesSubtotal>
      <ExpensesNotRptdOnFinStmt>0</ExpensesNotRptdOnFinStmt>
      <TotalExpensesPerForm990>1366049</TotalExpensesPerForm990>
      <Form990ScheduleDPartXIV>
        <Explanation>PART XI, LINE 8: UNREALIZED GAIN (LOSS) ON SECURITIES PART XII, LINE 4B: GRANT ADJUSTMENT PART XIII, LINE 4B: GRANT ADJUSTMENT</Explanation>
      </Form990ScheduleDPartXIV>
    </IRS990ScheduleD>
    <IRS990ScheduleF documentId="RetDoc1040500001">
      <GrantRecordsMaintained>1</GrantRecordsMaintained>
      <AcctsActvsOutUSTable>
        <Region>UNITED KINGDOM</Region>
        <NumberOfOffices>0</NumberOfOffices>
        <NumberOfEmployees>0</NumberOfEmployees>
        <TypeOfActivitiesConducted>GRANTS TO RECEIPIENTS LOCATED IN REGION</TypeOfActivitiesConducted>
        <SpecificServicesProvided>RESEARCH GRANTS</SpecificServicesProvided>
        <TotalExpenditures>111331</TotalExpenditures>
      </AcctsActvsOutUSTable>
      <SubtotalNumberOfEmployees>0</SubtotalNumberOfEmployees>
      <ContNumberOfEmployees>0</ContNumberOfEmployees>
      <TotalNumberOfEmployees>0</TotalNumberOfEmployees>
      <SubtotalAmountSpent>111331</SubtotalAmountSpent>
      <ContAmountSpent>0</ContAmountSpent>
      <TotalAmountSpent>111331</TotalAmountSpent>
      <NoRecipientOver5K>X</NoRecipientOver5K>
      <GrantsToOrgsOutsideUS>
        <Region>UNITED KINGDOM</Region>
        <PurposeOfGrant>G QUADRUPLEX-INDUCED EPIGENETIC INSTABILITY IN FA</PurposeOfGrant>
        <AmountOfCashGrant>111331</AmountOfCashGrant>
        <MethodOfValuation>BOOK</MethodOfValuation>
      </GrantsToOrgsOutsideUS>
      <TransferToForeignCorp>0</TransferToForeignCorp>
      <InterestInForeignTrust>0</InterestInForeignTrust>
      <OwnForeignCorp>0</OwnForeignCorp>
      <PassiveForeignInvestCo>0</PassiveForeignInvestCo>
      <ForeignPartnership>0</ForeignPartnership>
      <BoycottCountries>0</BoycottCountries>
      <Form990ScheduleFPartV>
        <Identifier>PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.:</Identifier>
        <Explanation>SCHEDULE F, PART I, LINE 2: GRANTS MADE OUTSIDE OF THE UNITED STATES ARE MONITORED THE SAME WAY AS GRANTS WITHIN THE UNITED STATES. ALL GRANTS ARE FOR RESEARCH AND THE RESULTS ARE REPORTED BACK TO THE ORGANIZATION.</Explanation>
      </Form990ScheduleFPartV>
    </IRS990ScheduleF>
    <IRS990ScheduleI documentId="RetDoc1041900001">
      <RecordsMaintained>1</RecordsMaintained>
      <RecipientTable>
        <RecipientNameBusiness>
          <BusinessNameLine1>INDIANA UNIVERSITY MEDICAL SCHOOL OFFICE OF RESEARCH ADMINISTRATION</BusinessNameLine1>
        </RecipientNameBusiness>
        <AddressUS>
          <AddressLine1>PO BOX 66057</AddressLine1>
          <City>INDIANAPOLIS</City>
          <State>IN</State>
          <ZIPCode>462666057</ZIPCode>
        </AddressUS>
        <EINOfRecipient>356001673</EINOfRecipient>
        <IRCSection>501(C)(3)</IRCSection>
        <AmountOfCashGrant>81950</AmountOfCashGrant>
        <PurposeOfGrant>INVESTIGATING THE ROLE OF MICROENVIRONMENT IN THE DEVELOPMENT OF BONE MARROW FAILURE IN FA</PurposeOfGrant>
      </RecipientTable>
      <RecipientTable>
        <RecipientNameBusiness>
          <BusinessNameLine1>MEMORIAL SLOAN KETTERING CANCER CENTER</BusinessNameLine1>
        </RecipientNameBusiness>
        <AddressUS>
          <AddressLine1>633 3RD AVENUE 28TH FLOOR</AddressLine1>
          <City>NEW YORK</City>
          <State>NY</State>
          <ZIPCode>10017</ZIPCode>
        </AddressUS>
        <EINOfRecipient>131924236</EINOfRecipient>
        <IRCSection>501(C)(3)</IRCSection>
        <AmountOfCashGrant>29328</AmountOfCashGrant>
        <PurposeOfGrant>MULTICENTER PILOT TRIAL OF HSCT LACKING A GENOTYPE IDENTICAL DONOR</PurposeOfGrant>
      </RecipientTable>
      <RecipientTable>
        <RecipientNameBusiness>
          <BusinessNameLine1>NORTHWESTERN UNIVERSITY OFFICE OF SPONSORED RESEARCH (OSR)</BusinessNameLine1>
        </RecipientNameBusiness>
        <AddressUS>
          <AddressLine1>750 N LAKE SHORE DRIVE RUBLOFF 7TH</AddressLine1>
          <AddressLine2>FL</AddressLine2>
          <City>CHICAGO</City>
          <State>IL</State>
          <ZIPCode>606114579</ZIPCode>
        </AddressUS>
        <EINOfRecipient>362167817</EINOfRecipient>
        <IRCSection>501(C)(3)</IRCSection>
        <AmountOfCashGrant>127500</AmountOfCashGrant>
        <PurposeOfGrant>PREDISPOSES TO ACUTE MYELOID LEUKEMIA</PurposeOfGrant>
      </RecipientTable>
      <RecipientTable>
        <PurposeOfGrant>PATHOPHYSIOLOGY AND TREATMENT OF FA</PurposeOfGrant>
      </RecipientTable>
      <TotalNbrOf501C3AndGovtGrants>3</TotalNbrOf501C3AndGovtGrants>
      <TotalNbrOfOtherOrganizations>0</TotalNbrOfOtherOrganizations>
      <Form990ScheduleIPartIV>
        <Identifier>PROCEDURE FOR MONITORING GRANTS IN THE U.S.:</Identifier>
        <ReturnReference>PART I, LINE 2:</ReturnReference>
        <Explanation>SCHEDULE I, PART I, LINE 2: GRANTS ARE MADE FOR MEDICAL RESEARCH. ALL RESEARCH RESULTS ARE MONITORED BY THE BOARD OF DIRECTORS.</Explanation>
      </Form990ScheduleIPartIV>
    </IRS990ScheduleI>
    <IRS990ScheduleO documentId="RetDoc1044400001">
      <GeneralExplanation>
        <Identifier>FORM 990, PART VI, SECTION B, LINE 11</Identifier>
        <Explanation>THE 990 IS REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR AND THEN DISTRIBUTED TO THE BOARD.</Explanation>
      </GeneralExplanation>
      <GeneralExplanation>
        <ReturnReference>FORM 990, PART VI, SECTION B, LINE 12C</ReturnReference>
        <Explanation>BOARD MEMEBERS ANNUALLY STATE ANY REAL OR POTENTIAL CONFLICTS OF INTEREST ON A CONFLICT OF INTEREST DISCLOSURE FORM.</Explanation>
      </GeneralExplanation>
      <GeneralExplanation>
        <ReturnReference>FORM 990, PART VI, SECTION B, LINE 15</ReturnReference>
        <Explanation>IN 2010, EMPLOYEE COMPENSATION WAS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES.</Explanation>
      </GeneralExplanation>
      <GeneralExplanation>
        <ReturnReference>FORM 990, PART VI, SECTION C, LINE 19</ReturnReference>
        <Explanation>WHEN REQUESTED, WE MAKE A COPY AND MAIL THEM TO THE REQUESTING PARTY.</Explanation>
      </GeneralExplanation>
      <GeneralExplanation>
        <Identifier>CHANGES IN NET ASSETS OR FUND BALANCES:</Identifier>
        <ReturnReference>FORM 990, PART XI, LINE 5:</ReturnReference>
        <Explanation>UNREALIZED GAIN (LOSS) ON SECURITIES -38,504. TOTAL TO FORM 990, PART XI, LINE 5: -38,504.</Explanation>
      </GeneralExplanation>
      <GeneralExplanation>
        <Identifier>FINANCIAL STATEMENT PROCESS</Identifier>
        <ReturnReference>990, PART XII, LINE 2C</ReturnReference>
        <Explanation>THE ORGANIZATION HAS NOT CHANGED THE FINANCIAL STATEMENT REVIEW OR SELECTION PROCESSES FROM THE PRIOR YEAR.</Explanation>
      </GeneralExplanation>
    </IRS990ScheduleO>
  </ReturnData>
</Return>