2011-11-15T09:12:47-06:00 2011-06-30 CLIFTON GUNDERSON LLP 2301 VILLAGE DRIVE ST JOSEPH MO 64506 990 2010-07-01 431266906 PKD FOUNDATION PKDF 8169312600 8330 WARD PARKWAY NO 510 KANSAS CITY MO 641142000 JILL PANETTA PHD 8169312600 2011-11-17 1 JO A EYBERG CPA 8162328441 2010 2016-03-07 17:11:31Z JILL PANETTA PHD 8330 WARD PARKWAY NO 510 KANSAS CITY MO 641142000 8669670 0 X WWW.PKDCURE.ORG X 1982 MO PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR PKD. 15 15 72 919 0 0 8359686 7528329 0 42760 -4213 -462 38805 8076 8394278 7578703 359871 1022748 0 0 3920834 3774383 0 0 777874 3955077 3511365 8235782 8308496 158496 -729793 3964042 2390354 1248145 716250 2715897 1674104 PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS. 0 0 2480197 1022748 ACCELERATING TREATMENTS TO PATIENTS - ACCELERATING DRUG DEVELOPMENT FOR PKD THROUGH A REPURPOSING STRATEGY IS THE CORNERSTONE OF THIS NEW INITIATIVE. OTHER PROGRAMS WITHIN THIS INITIATIVE INCLUDE THE PKD OUTCOMES CONSORTIUM PROJECT (PKDOC) WHICH IS FOCUSED ON FACILITATING CLINICAL TRIAL DEVELOPMENT FOR ADPKD THERAPIES, CORE GRANTS WHICH SUPPORT AN AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE (ADPKD) GENE MUTATION REGISTRY, AND AN AUTOSOMAL RECESSIVE POLYCYSTIC KIDNEY DISEASE (ARPKD) CLINICAL DATABASE AND ELECTRON MICROSCOPY FACILITY. OUR TISSUE DONATION PROGRAM SUPPORTS PKD SCIENTISTS AND THEIR RESEARCH. THE FOUNDATION ALSO PROVIDES SCIENTIFIC MEETING SUPPORT AND SUPPORT FOR CONTINUING MEDICAL EDUCATION IN PKD FOR NEPHROLOGISTS. 2320936 50197 PUBLIC AWARENESS - THE FOUNDATION RAISES AWARENESS OF PKD THROUGH NATIONAL, REGIONAL AND LOCAL PUBLIC RELATIONS AND MARKETING EFFORTS. THE FOUNDATION ALSO EDUCATES THE PKD COMMUNITY THROUGH A QUARTERLY MAGAZINE (PKD PROGRESS), ONLINE BOOKS, WEBINARS, VIDEOS, A FREE MONTHLY ELECTRONIC NEWSLETTER AND THE WEBSITES WWW.PKDCURE.ORG AND WWW.KIDNEYLINK.ORG. AWARENESS IS ALSO GENERATED WITH NATIONAL AND LOCAL LAWMAKERS THROUGH OUR MONTHLY E-PUBLICATION (PKD CHAMPION CONNECTION) AND OUR ANNUAL GOVERNMENTAL ADVOCACY CONFERENCE IN WASHINGTON, D.C. (UNITED ON THE HILL). 1767260 PATIENT EDUCATION AND ENGAGEMENT - THE FOUNDATION PROVIDES EDUCATION AND SUPPORT FOR PATIENTS, FAMILY AND FRIENDS THROUGH 61 VOLUNTEER-LED CHAPTERS IN CITIES ACROSS THE COUNTRY. THESE CHAPTERS WORK TO RAISE AWARENESS AND FUNDS FOR PKD FOUNDATION PROGRAMS VIA EVENTS SUCH AS THE ANNUAL WALK FOR PKD WHICH INVOLVES THOUSANDS OF FAMILIES. THE CHAPTERS ALSO PROVIDE LOCAL OPPORTUNITIES FOR EDUCATION, NETWORKING AND SUPPORT. 6568393 1 1 0 1 0 0 0 0 0 1 0 0 1 0 0 1 0 0 0 1 0 1 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 25 0 72 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 1 1 X X X RAY SMITH 8169312600 8330 WARD PARKWAY STE 510 KANSAS CITY MO 64114 COWLEY BEN MD 1.00 X 0 0 0 FLESCH BILL 1.00 X 0 0 0 HAZELWOOD BLAISE 1.00 X 0 0 0 HUNT WALTER PHD 1.00 X 0 0 0 LIENHARD JEROME T II 1.00 X 0 0 0 MCCALL JOHN 1.00 X 0 0 0 NELSON RICHARD 1.00 X 0 0 0 PERRONE RONALD MD 1.00 X 0 0 0 ROBERTS JULIA 1.00 X 0 0 0 STEINMAN THEODORE MD 1.00 X 0 0 0 WAXMAN KARYN 1.00 X 0 0 0 WOLFE HILARY 1.00 X 0 0 0 BRAZELL BILL 1.00 X 0 0 0 HAGGARD MICHAEL 1.00 X 0 0 0 PEPPET SCOTT 2.00 X X 0 0 0 GOODMAN SCOTT 2.00 X X 0 0 0 PARKER STEPHANIE 1.00 X X 0 0 0 CONDELLA FRANK 1.00 X X 0 0 0 STONE MARK 40.00 X 240079 0 41194 LARSON DAN 40.00 X 189139 0 47330 PANETTA JILL PHD 20.00 X 66667 0 8056 KAHTAVA KEN 40.00 X 116272 0 34780 CANTOR KIMBERLY 40.00 X 100023 0 20882 712180 0 152242 4 0 1 0 ITX CORP 1169 PITTSFORD-VICTOR RD STE100 PITTSFORD NY 14534 WEBSITE DEVELOPMENT & SERVER MANAGEMENT 472627 PRECLINOMICS PO BOX 68845 INDIANAPOLIS IN 46268 DRUG REPURPOSING EVALUATION 356696 VOLTAGE CREATIVE 524 WALNUT STE 220 KANSAS CITY MO 64106 WEBSITE & GRAPHIC DESIGN SERVICES 196273 AXELA GOVERNMENT RELATIONS LLC 575 SEVENTH ST NW WASHINGTON DC 20004 GOVERNMENT AND PUBLIC RELATIONS 114500 4 7528329 351066 7528329 ANNUAL CONFERENCE 900099 42760 42760 42760 228 228 1088575 1088565 700 10 -700 -690 -690 9139 1702 7437 7437 MISCELLANEOUS INCOME 900099 639 639 639 7578703 50197 0 177 922748 922748 50000 50000 50000 50000 908396 703248 111942 93206 2127990 1337508 455817 334665 107143 68571 21429 17143 455295 278792 97732 78771 175559 110344 37605 27610 37777 33060 501 4216 28700 28700 81000 81000 712831 639978 24377 48476 178522 178522 417262 341414 12983 62865 37759 23466 9372 4921 245415 149738 63334 32343 232831 187556 18219 27056 279503 279404 99 357464 332528 4744 20192 17764 14738 1726 1300 EXTERNAL RESEARCH 462999 462999 DEVELOPMENT ACTIVITIES 278031 278031 DUES, FEES, MEMBERSHIPS 67868 37682 5175 25011 BANK CHARGES 67863 70 67793 AWARDS 7776 6996 780 8308496 6568393 962229 777874 X 1649049 993595 0 655454 142445 146717 408220 2697552 1297475 93678 2051 25717 24015 87539 105343 275377 218967 71208 56410 157672 688231 350123 3964042 2390354 654959 693845 216000 22405 27186 350000 1248145 716250 X -578783 -773646 3294680 2447750 2715897 1674104 3964042 2390354 X -729793 -312000 X X 0 1 1 X 0 X 11278421 8537192 6933636 8359686 7528329 42637264 11278421 8537192 6933636 8359686 7528329 42637264 2310047 40327217 139900 115304 4735 365 228 260532 65276 92860 65914 41751 639 266440 43164236 51898 0.93430 0.92050 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS INCOME RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 137652 0 0 137652 0 275377 218967 56410 56410 DEPOSITS 1150 LEASE DEPOSITS 22589 INTELLECTUAL PROPERTY RIGHTS TO BE TRANSFERRED 326384 350123 7578703 8308496 -729793 -312000 -312000 -1041793 7610205 29800 1702 31502 7578703 0 7578703 8339998 29800 1702 31502 8308496 0 8308496 PART XI, LINE 8 - OTHER ADJUSTMENTS: IMPAIRMENT OF INVESTMENT IN UNCONSOLIDATED SUBSIDIARY -312,000. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES - INVENTORY DECREASE 1,702. PART XIII, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES - INVENTORY DECREASE 1,702. 1 GERMANY 0 0 GRANTS TO RECIPIENTS LOCATED IN THE REGION N/A 50000 0 0 0 50000 0 50000 LILLIAN JEAN KAPLAN INTERNATIONAL PRIZE FOR PKD RESEARCH GERMANY 1 50000 CHECK 0 0 0 0 0 0 METHOD USED TO ACCCOUNT FOR EXPENDITURES: SCHEDULE F, PART I, LINE 3: THE LILLIAN JEAN KAPLAN INTERNATIONAL PRIZES FOR PKD RESEARCH ARE AWARDED FOLLOWING AN EXTENSIVE NOMINATION AND SELECTION PROCESS. THE NATURE OF THE SELECTION PROCESS IS TO DETERMINE QUALIFIED AND WORTHY NOMINEES; THEREFORE, THE AWARDS ARE BASED UPON THE SELECTION PROCESS AND NOT SUBSEQUENT ACTIVITY. THERE IS NO ADDITIONAL MONITORING FOLLOWING THE PRESENTATION OF THE AWARDS. 1 MAYO CLINIC COLLEGE OF MEDICINE 200 FIRST ST SW PLUMMER 5 ROCHESTER MN 55905 416011702 501(C)(3) 153705 CASH GRANT FOR RESEARCH - VARIOUS PROJECTS INCLUDING DATA EVALUATION RESEARCH PROJECT INDIANA UNIVERSITY SCHOOL OF MEDICINE 635 BARNHILL DR INDIANAPOLIS IN 46202 356001673 501(C)(3) 60000 CASH GRANT FOR RESEARCH FASEB SUMMER RESEARCH CONFERENCE 9650 ROCKVILLE PIKE BETHESDA MD 20814 520700497 501(C)(3) 55000 CASH GRANT FOR CONFERENCES CRITICAL PATH INSTITUTE 1730 E RIVER ROAD SUITE 200 TUCSON AZ 85718 201991334 501(C)(3) 514499 CASH PAYMENT FOR DATA EVALUATION RESEARCH PROJECT EMORY UNIVERSITY 1599 CLIFTON ROAD NE ATLANTA GA 30322 580566256 501(C)(3) 39096 CASH PAYMENTS FOR DATA EVALUATION RESEARCH PROJECT TUFTS MEDICAL CENTER PHYSICIANS ORGANIZATION INC 750 WASHINGTON ST BOSTON MA 02111 042743894 501(C)(3) 55968 CASH PAYMENT FOR DATA EVALUATION RESEARCH PROJECT UNIVERSITY OF COLORADO DEPARTMENT 238 DENVER CO 809210238 846000555 501(C)(3) 46550 CASH PAYMENTS FOR DATA EVALUATION RESEARCH PROJECTS LESS RETURNED GRANTS FROM PRIOR YEARS -2070 VARIOUS CASH GRANTS FROM PRIOR YEARS THAT WERE RETURNED 7 0 LILLIAN JEAN KAPLAN INTERNATIONAL PRIZE FOR PKD RESEARCH 1 50000 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: ALL GRANTEES ARE REQUIRED TO SUBMIT AN ANNUAL RESEARCH PROGRESS REPORT AND AN ANNUAL INSTITUTIONAL FINANCIAL STATUS REPORT. MOST GRANTEES ARE ALSO REQUIRED TO SUBMIT INTERIM QUARTERLY PROGRESS REPORTS. THE LILLIAN JEAN KAPLAN INTERNATIONAL PRIZES FOR PKD RESEARCH ARE AWARDED FOLLOWING AN EXTENSIVE NOMINATION AND SELECTION PROCESS. THE NATURE OF THE SELECTION PROCESS IS TO DETERMINE QUALIFIED AND WORTHY NOMINEES; THEREFORE, THE AWARDS ARE BASED UPON THE SELECTION PROCESS AND NOT SUBSEQUENT ACTIVITY. NO ADDITIONAL MONITORING IS COMPLETED FOLLOWING PRESENTATION. X X X 1 0 0 0 0 0 0 0 0 STONE MARK 152282 0 0 0 87797 0 11489 0 29705 0 281273 0 0 0 LARSON DAN 182469 0 0 0 6670 0 13875 0 33455 0 236469 0 0 0 KAHTAVA KEN 91512 0 0 0 24760 0 6861 0 27919 0 151052 0 0 0 PART I, LINE 4A MARK STONE RECEIVED A SEVERANCE PAYMENT OF $87,797. KEN KAHTAVA RECEIVED A SEVERANCE PAYMENT OF $24,760 X 14 91810 FAIR VALUE X EVENT SUPPLIES/MATERIALS 141 116726 FAIR VALUE X ADVERTISING/TECHNOLOGY 2 125130 FAIR VALUE X TRAVEL 29 17400 FAIR VALUE 0 0 1 1 METHOD FOR DETERMINING NUMBER OF CONTRIBUTORS: PART I, COLUMN (B): NUMBER OF CONTRIBUTORS MAKING DONATIONS THIRD PARTY USE: PART I, LINE 32B: ORGANIZATION UTILIZES ONGOING BANKING RELATIONSHIPS TO MARKET DONATED SECURITIES. FORM 990, PART VI, SECTION B, LINE 11 PRIOR TO FILING THE 990 FOR PKD FOUNDATION, A DRAFT COPY WILL BE PROVIDED TO THE FINANCIAL OVERSIGHT COMMITTEE FOR REVIEW AND COMMENT. ANY COMMENTS WILL BE ACCUMULATED BY MANAGEMENT AND ADDRESSED ACCORDINGLY. FORM 990, PART VI, SECTION B, LINE 12C MEMBERS OF THE BOARD OF TRUSTEES OF PKD FOUNDATION ARE REQUIRED TO SIGN AN ANNUAL STATEMENT DISCLOSING ANY CONFLICTS OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 A SALARY SURVEY WAS CONDUCTED BY AN INDEPENDENT CONSULTANT. THE SURVEY IS THEN REVIEWED BY THE BOARD OF TRUSTEES. UPON THAT REVIEW, SALARIES ARE COMPARED TO THE RANGES RECOMMENDED FOR EACH POSITION. FOUNDATION MANAGEMENT THEN ACTS TO ENSURE THAT SALARIES ARE WITHIN APPROPRIATE RANGES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON THEIR OWN WEBSITE AND UPON REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: IMPAIRMENT OF INVESTMENT IN UNCONSOLIDATED SUBSIDIARY -312,000. TOTAL TO FORM 990, PART XI, LINE 5: -312,000. AUDIT RESPONSIBILITY AND SELECTION OF AN INDEPENDENT ACCOUNTANT FORM 990, PART XII, LINE 2C: THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOR THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THERE HAS BEEN NO CHANGE IN THIS PROCESS FROM THE PRIOR YEAR. COMPENSATION FORM 990, PART VII, SEC. A: PKD FOUNDATION CONTRACTS WITH INSPERITY TO PROVIDE CERTAIN EMPLOYEE BENEFITS AND PAYROLL SERVICES. EMPLOYEES ARE CONSIDERED TO BE JOINTLY EMPLOYED BY BOTH PKD FOUNDATION AND INSPERITY. IN ORDER TO COMPLY WITH TRANSPARENCY DIRECTIVES AS A PART OF THE REFORMATTED 990, THE FOUNDATION HAS DECIDED TO REPORT COMPENSATION IN PART VII TO INCLUDE AMOUNTS PAID AND REPORTED ON W-2'S BY INSPERITY. FIN 48 ANALYSIS FROM 990, PART IV, LINE 11F: THE ORGANIZATION CONSIDERED UNCERTAIN TAX POSITIONS UNDER FIN 48 (ASC 740) AND DETERMINED THAT NO LIABILITY FOR UNCERTAIN TAX POSITIONS SHOULD BE RECORDED AS OF JUNE 30, 2011. THEREFORE, THERE IS NO FOOTNOTE REGARDING SUCH LIABILITY IN THE ORGANIZATION'S FINANCIAL STATEMENTS. KIDNEYWISE INC 8330 WARD PARKWAY STE 510 KANSAS CITY MO 641142000 271306220 SUPPORTING ORGANIZATION MO 501(C)(3) LINE 11A, I PKD FOUNDATION 1 501 TECHNOLOGY LLC 1169 PITTSFORD VICTOR RD STE 104 PITTSFORD NY 14534 271743836 RESEARCH AND DEVELOPMENT NY ITX CAPITAL CORP RELATED 0 0 0.50000 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0