2011-12-01T15:12:34-06:00 2011-06-30 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX ST SUITE 400 ALEXANDRIA VA 22314 990 2010-07-01 112779073 SJOGREN'S SYNDROME FOUNDATION FOUNDATION INC SJOG 3015304420 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 STEVEN TAYLOR 3015304420 2011-11-23 1 JOAN MRENNER 7035351200 2010 2016-02-24 21:20:13Z STEVEN TAYLOR 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 2178482 0 X WWW.SJOGRENS.ORG X 1983 NY THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 19 19 11 0 134142 0 1145076 1379765 622438 577034 8009 5804 32344 24626 1807867 1987229 213000 250750 0 0 823901 948574 0 0 195923 774257 837997 1811158 2037321 -3291 -50092 879824 745613 650663 512991 229161 232622 X THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 0 0 392209 250750 RESEARCH GRANTS TO PROMOTE CONTINUED MEDICAL AND SCIENTIFIC RESEARCH IN THE AREA OF SJOGREN'S SYNDROME. SEVEN GRANTS WERE AWARDED TO UNIVERSITY AFFILIATED RESEARCHERS DURING FYE 2011. TWO FELLOWSHIPS WERE ALSO AWARDED FOR INTERNSHIPS IN A SJOGREN'S RESEARCH LABORATORY. 283543 NEWSLETTER - "THE MOISTURE SEEKERS" CONTAINS MEDICAL AND PATIENT INFORMATION AND IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" PROFESSIONAL PUBLICATION IS PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 234779 188547 TWO REGIONAL SEMINARS WERE HELD THIS PAST YEAR AND ONE NATIONAL PATIENT CONFERENCE. THESE PROGRAMS WERE HELD FOR PATIENTS AND THEIR FAMILIES TO LEARN FROM HEALTHCARE PROFESSIONALS ABOUT TREATMENT AND MANAGEMENT OF SJOGRENS SYNDROME. COLLECTIVELY, OVER 700 INDIVIDUALS ATTENDED THESE CONFERENCES. 334097 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO PROFESSIONALS. 488521 275501 OTHER MEMBER SERVICES 822618 275501 1733149 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 1 0 1 11 1 1 1 0 0 0 0 1 1 0 0 0 0 X 19 19 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 X X SJOGREN'S SYNDROME FOUNDATION 3015304420 6707 DEMOCRACY BLVD SUITE 325 BETHESDA MD 20817 GARY FOULKS MD 2.00 X 0 0 0 DENISE FAUSTMAN MD PHD 2.00 X 0 0 0 FRED FERNANDEZ 2.00 X 0 0 0 STEVEN CARSONS MD 2.00 X 0 0 0 MARY MCNEIL 2.00 X 0 0 0 TROY E DANIELS DDS MS 2.00 X 0 0 0 NELSON RHODUS DMD MPH 2.00 X 0 0 0 AUSTIN K MIRCHEFF PHD 2.00 X 0 0 0 LYNN M PETRUZZI RN MSN 2.00 X 0 0 0 VIDYA SANKAR DMD MPH 2.00 X 0 0 0 PETER DONSHIK MD 2.00 X 0 0 0 NANCY L CARTERON MD FACR 2.00 X 0 0 0 ESTRELLA BIBBEY 2.00 X 0 0 0 SHARI ROOD 2.00 X 0 0 0 S LANCE FORSTOT MD 2.00 X 0 0 0 KATHRYN P MCCARREN 2.00 X 0 0 0 PAMELA S BROWN 2.00 X 0 0 0 KEN ECONOMOU 2.00 X 0 0 0 ELAINE ALEXANDER MD PHD 2.00 X 0 0 0 STEVEN TAYLOR 40.00 X X 213702 0 21170 213702 0 21170 1 0 1 0 0 372339 1007426 29859 1379765 MEMBERSHIP DUES 541900 254345 254345 CONFERENCES 541900 188547 188547 ADVERTISING 541800 134142 134142 577034 13684 13684 3470 3470 70661 76814 1727 -6153 -1727 -7880 -7880 91907 372339 91907 0 41961 20805 21156 21156 1987229 464048 134142 9274 250750 250750 256353 205083 25635 25635 555687 479750 27329 48608 80179 68645 4407 7127 56355 47593 3622 5140 19550 19550 3896 3896 41386 35148 347 5891 166156 114705 1973 49478 20997 17732 1350 1915 100728 85064 6477 9187 61873 61811 62 195717 195149 568 5247 5247 29517 24926 1899 2692 13085 11050 842 1193 POSTAGE AND DELIVERY 114000 82147 3507 28346 BANK AND CREDIT CARD FE 21938 13500 24 8414 DUES, SUBSCRIPTIONS, AN 14698 12942 725 1031 AWARENESS ACTIVITIES 10890 10890 MISCELLANEOUS 7887 7300 244 343 10432 8964 607 861 2037321 1733149 108249 195923 212762 22309 101272 21673 106397 188324 7902 6875 31030 29341 185308 100258 87483 85050 326119 385182 6859 6859 879824 745613 25487 28825 243000 321250 350363 134339 31813 28577 650663 512991 X 229161 232622 229161 232622 879824 745613 X -50092 53553 X X 0 1 1 X 0 X 1345026 1626173 1481166 1403954 1634110 7490429 273020 292991 334570 246454 230508 1377543 24958 15372 743 6101 -4410 42764 1643004 1934536 1816479 1656509 1860208 8910736 723050 636405 903042 817293 791836 3871626 0 723050 636405 903042 817293 791836 3871626 5039110 17204 29887 16266 8368 13684 85409 17204 29887 16266 8368 13684 85409 1660208 1964423 1832745 1664877 1873892 8996145 0.56010 0.60060 0.00950 0.00960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 124462 72878 51584 60846 27380 33466 85050 CAPITAL LEASE PAYABLE-ST 7168 CAPITAL LEASE PAYABLE-LT 17771 DEFERRED RENT-ST 3638 28577 1987229 2037321 -50092 53554 -1 53553 3461 2059419 53554 53554 2005865 3896 -22532 -18636 1987229 2055957 22532 22532 2033425 3896 3896 2037321 PART XI, LINE 8 - OTHER ADJUSTMENTS: ROUNDING -1. PART XII, LINE 4B - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII -20,805. LOSS ON DISPOSAL OF PROPERTY -1,727. PART XIII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII 20,805. LOSS ON DISPOSAL OF PROPERTY 1,727. WALKABOUTS AND SIPS EVENTS 396947 305040 91907 91907 ADDRESS LABEL 32864 32864 2 34435 34435 464246 372339 91907 91907 91907 0 1 UNIVERSITY OF CALIFORNIA 374 PARNASSUS AVENUE PO BOX 0500 SAN FRANCISCO CA 94143 946036493 SECTION 501(C)(3) 35000 TO SUPPORT THE PROJECT TITLED, "EPIGENETIC PROFILING OF MULTIPLE CELL AND TISSUE TYPES IN SJOGREN'S SYNDROME." UNIVERSITY OF FLORIDA 2476 NW 49TH AVENUE GAINESVILLE FL 32608 111267359 SECTION 501(C)(3) 35000 TO SUPPORT THE PROJECT TITLED, "SUPPRESSION OF TH17 CELLS USING IL-27 GENE THERAPY: A POTENTIAL THERAPEUTIC APPROACH FOR THE TREATMENT OF SJOGREN'S SYNDROME." OKLAHOMA MEDICAL RESEARCH FOUNDATION 825 NE 13TH STREET OKLAHOMA CITY OK 73104 173058027 SECTION 501(C)(3) 35000 TO SUPPORT THE PROJECT TITLED, "THE GENETIC BASIS OF HUMAN SJOGREN'S SYNDROME." SCHEPENS EYE RESEARCH INSTITUTE 20 STANIFORD STREET BOSTON MA 02114 042129889 SECTION 501(C)(3) 35000 TO SUPPORT THE PROJECT TITLED, "MECHANISM AND FUNCTIONAL RELEVANCE OF CORNEAL LYMPHANGIOGENESIS IN DRY EYE DISEASE." ALLEGHENY-SINGER RESEARCH INSTITUTE 320 EAST NORTH AVE PITTSBURGH PA 15212 251320493 SECTION 501(C)(3) 50000 TO SUPPORT THE PROJECT TITLED "ULTRASOUND-ASSISTED GENE TRANSFER OF IL17R:FC TO THE SALIVARY GLANDS AS A GENE THERAPHY FOR SJOGREN'S SYNDROME" THE RESEARCH FOUNDATION OF SUNY UNIVERSITY AT ALBANY 1400 WASHINGTON AVE LSRB 1086 ALBANY NY 12222 141368361 SECTION 501(C)(3) 35000 TO SUPPORT THE PROJECT TITLED "APPLICATION OF MULTIPLEXING TECHNOLOGY TO THE STUDY OF SJOGREN'S SYNDROME" UCLA SCHOOL OF DENTISTRY 10833 LE CONTE AVE CHS LOS ANGELES CA 90095 956006143 SECTION 501(C)(3) 35000 TO SUPPORT THE PROJECT TITLED "INTERFERON-Y INDUCES IMMUNOPROTEASOME IN HUMAN SALIVARY GLAD CELLS" UNIVERSITY OF CALIFORNIA 300 UNIVERSITY TOWER IRVINE CA 92697 952226406 SECTION 501(C)(3) -17500 FORFEITURE OF GRANT 8 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE SJOGREN'S SYNDROME FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S SYNDROME BY OFFERING ANNUAL RESEARCH GRANT AND STUDENT FELLOWSHIPS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 STEVEN TAYLOR 149365 0 64337 0 0 0 2967 0 18203 0 234872 0 0 0 X 2 2268 X VARIOUS 5 27591 FAIR MARKET VALUE 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BE CONTACTING MAIN OFFICE. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED GAINS ON INVESTMENTS: 53,554. ROUNDING -1. TOTAL TO FORM 990, PART XI, LINE 5: 53,553. RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT: FORM 990, PART XI, LINE 2C THE ORGANIZATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR.