2011-09-23T12:33:43-05:00 2011-01-31 WINDES & MCCLAUGHRY ACCT CORP PO BOX 87 LONG BEACH CA 908010087 990 2010-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 8188809007 1275 K STREET NW NO 1050 WASHINGTON DC 20005 DANIEL M REZNIKOV 8188809007 2011-09-22 1 BRIAN D YACKER 5624351191 2010 2016-02-24 21:20:13Z THE ALS ASSOCIATION JANE H GILBERT 1275 K STREET NW NO 1050 WASHINGTON DC 20005 18607524 0 4119 X WWW.ALSA.ORG X 1985 DE TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH. 24 24 70 38 0 0 14583917 17744381 29322 39580 20780 86488 120274 159020 14754293 18029469 4467581 3054267 0 0 4746685 4429339 0 32721 3284467 4561314 6442061 13775580 13958388 978713 4071081 15234195 17742395 5715985 3854362 9518210 13888033 LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 3164116 2788594 RESEARCH PROGRAMS: FUND SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) DISEASE.(50 RESEARCH GRANTS) 3361459 265673 PATIENT & COMMUNITY SERVICES - WE SERVE AS A CLEARING HOUSE FOR ALS SPECIFIC INFORMATION, RESOURCES AND REFERRALS TO PATIENTS, FAMILIES, HEALTH CARE PROFESSIONALS AND THE GENERAL COMMUNITY AT LARGE.(32 CLINICAL MANAGEMENT & ALSA CENTER GRANTS) 2295049 39580 PUBLIC & PROFESSIONAL EDUCATION - TO DEVELOP AWARENESS AND UNDERSTANDING OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS AND SCIENTIFIC COMMUNITIES. FOR CERTAIN CONFERENCES HOSTED BY ALSA, FEES ARE CHARGED FOR ATTENDANCE. 8820624 1 1 0 1 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 81 0 1 70 1 0 0 0 0 0 1 1 0 0 0 1 0 X 24 24 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AZ AK AR CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO NE NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VA WA WV WI X X X JOHN W APPLEGATE 8188809007 27001 AGOURA ROAD SUITE 250 CALABASAS HILLS CA 91301 HONORABLE JAY DAUGHERTY 2.00 X X 0 0 0 ROBIN R GANZERT 2.00 X X 0 0 0 BENJAMIN S OHRENSTEIN 2.00 X X 0 0 0 LAURAL WINSTON 2.00 X X 0 0 0 LAWRENCE R BARNETT 2.00 X 0 0 0 ROBERT V ABENDROTH 2.00 X 0 0 0 ROBERT J BJORSETH 2.00 X 0 0 0 ANDREW T BROPHY 2.00 X 0 0 0 BARBARA J DICKINSON 2.00 X 0 0 0 CYNTHIA D DOUTHAT 2.00 X 0 0 0 RICHARD P ESSEY 2.00 X 0 0 0 ALLEN FINKELSTEIN 2.00 X 0 0 0 ANDREW FLEESON 2.00 X 0 0 0 ALAN R GRIFFITH 2.00 X 0 0 0 WILSON N KRAHNKE 2.00 X 0 0 0 JOHN P KRAVE 2.00 X 0 0 0 LUIS E LEON 2.00 X 0 0 0 WILLIAM G MATTHEWS 2.00 X 0 0 0 EDMUND G MCCURTAIN II 2.00 X 0 0 0 VALERIE HARWELL MYERS 2.00 X 0 0 0 STUART OBERMANN 2.00 X 0 0 0 ELIZABETH ROSENBERG 2.00 X 0 0 0 HOWARD SAFENOWITZ 2.00 X 0 0 0 STEPHEN H SALTZMAN 2.00 X 0 0 0 KENNETH F WIEGAND 2.00 X 0 0 0 DOUG BUTCHER 2.00 X 0 0 0 PHYLLIS R BROURMAN 2.00 X 0 0 0 DANIEL DEGRANDPRE 2.00 X 0 0 0 TIMOTHY O'TOOLE 2.00 X 0 0 0 ELLYN C PHILLIPS 2.00 X 0 0 0 JONATHAN ROBERTS 2.00 X 0 0 0 WILLIAM SOFFEL 2.00 X 0 0 0 WILLIAM THOET 2.00 X 0 0 0 JANE H GILBERT 47.00 X 250000 0 14394 DANIEL REZNIKOV 49.00 X 118779 0 1510 GORDON LAVIGNE 42.00 X 158125 0 8169 STEVE GIBSON 67.00 X 160000 0 11532 SHARON MATLAND 52.00 X 146000 0 11088 LEE ASHTON CHASE 53.00 X 140964 0 4594 KENNETH NICHOLLS 44.00 X 110634 0 5932 1084502 0 57219 10 0 1 0 GRIZZARD COMMUNICATIONS GROUP 229 PEACHTREE ST SUITE 1400 ATLANTA UK 30303 CONSULTANT 1326736 LUCIE BRUIJN FLAT 5 15 ST GERMANS PLACE LONDON UK SE3 ONN IMPLEMENTATION MANAGEMENT 235000 CHARITY DYNAMICS 3420 EXECUTIVE CENTER DR STE 160 AUSTIN TX 787311630 MANAGEMENT SUPPORT 187400 PREMIER FULFILLMENT & PROCESSING INC 4841 DILLON DRIVE PUEBLO CO 81008 REMITTANCE PROCESSING SERVICES 102470 4 202134 690533 296611 16555103 122553 17744381 CONFERENCE FEES 900099 39580 39580 39580 55620 55620 551611 520743 30868 30868 30868 1330 690533 57312 -55982 -55982 UNUSED/REIMB GRANTS 900099 183258 183258 MISCELLANEOUS INCOME 900099 31744 31744 215002 18029469 39580 0 245508 2682381 2682381 13553 13553 358333 358333 398433 199216 119530 79687 3478683 1772086 762187 944410 90937 46314 20017 24606 189742 96541 42571 50630 271544 138075 61672 71797 1014864 907354 107510 3539 3539 43000 43000 105597 94411 11186 32721 32721 1587835 143653 17021 1427161 944582 823127 5257 116198 266003 86246 62395 117362 572050 259782 162171 150097 1161094 991042 92442 77610 265391 94876 40201 130314 30351 30351 TELECOMMUNICATIONS 161291 77810 42772 40709 BAD DEBT EXPENSE 156141 156141 BANK FEES 73334 73334 EQUIPMENT 49293 35824 13469 7696 7696 13958388 8820624 1853297 3284467 X 1024000 382000 0 642000 3409136 2836720 2734586 6503756 5718330 4938546 139891 158646 1245234 966206 491563 279028 2069848 2330676 670841 695023 15234195 17742395 2329252 2508477 3386733 1345885 5715985 3854362 X 4240391 6719179 4445646 6301552 832173 867302 9518210 13888033 15234195 17742395 X 4071081 298742 X 0 1 1 X 0 X 17748215 14631277 15917492 14583917 17744381 80625282 17748215 14631277 15917492 14583917 17744381 80625282 80625282 414455 428296 186824 77526 55620 1162721 14630 49499 47654 31744 143527 81931530 68902 0.98410 0.98000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 34220 335935 370155 11775137 12145292 757265 189316 0 0 882073 853321 661049 757265 3153708 4730562 550581 412018 380508 370155 1713262 220518 213330 165262 189316 788426 1182639 51726 46020 48887 34220 180853 240000 26305 26305 240000 240000 12739 12739 240000 240000 18675 18675 240000 1.00000 0 0 185327 63988 121339 1059907 902218 157689 279028 18029469 13958388 4071081 228112 70630 298742 4369823 18112232 228112 70630 298742 17813490 215979 215979 18029469 13742409 0 13742409 215979 215979 13958388 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES. DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX-EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS. PART XI, LINE 8 - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 35,129. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 35,501. PART XII, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 35,129. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 35,501. PART XII, LINE 4B - OTHER ADJUSTMENTS: RETURNED PORTIONS OF UNUSED GRANTS 183,258. CAR DONATION PROGRAM COST 32,721. PART XIII, LINE 4B - OTHER ADJUSTMENTS: RETURNED PORTIONS OF UNUSED GRANTS 183,258. CAR DONATION PROGRAM COST 32,721. 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANT MAKING 237500 NORTH AMERICA 0 0 GRANT MAKING 80000 SOUTH AMERICA 0 0 GRANT MAKING 37500 0 0 0 355000 0 355000 EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 80000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 80000 CHECK & WIRE TRANSFER NORTH AMERICA TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 80000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 37500 CHECK & WIRE TRANSFER SOUTH AMERICA TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 37500 CHECK & WIRE TRANSFER 6 0 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY THE CHIEF SCIENTIST. X X X X X X 1 AMERICA'S CAR DONATION CENTER 3755 OMEC CR 4 RANCHO CORDOVA CA 95742 CAR DONATIONS 1 97406 32721 64685 97406 32721 64685 AL AK AZ AK CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO NE NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VA WA WV WI ALSA WALK - PORTLAND 120679 120679 867 133 6043 ALSA WALK - BUFFALO 95638 95638 1619 1050 7580 14 475546 474216 1330 4069 391 35560 691863 690533 1330 6555 1574 49183 57312 -55982 FUNDRAISING EVENTS SCHEDULE G, PART II, LINE 11 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. 1 THE GENERAL HOSPITAL CORPORATION 50 STANIFORD STREET SUITE 1001 BOSTON MA 021142554 042697983 501(C)(3) 173450 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVENUE BOSTON MA 02199 042697983 501(C)(3) 150000 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE RESEARCH FOUNDATION OF SUNY PO BOX 9 ALBANY NY 12201 141368361 501(C)(3) 129550 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST P-221 FRANKLIN BLDG PHILADELPHIA PA 191046205 231352685 501(C)(3) 116970 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF MIAMI PO BOX 025405 MIAMI FL 331025405 590624458 501(C)(3) 102700 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS NATIONAL INSTITUTE ON AGING 251 BAYVIEW BLVD BRC/04C029 BALTIMORE MD 21224 520858115 501(C)(3) 100000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BOARD OF REGENTS OF THE UNIVERSITYOF WISCONSIN SYSTEM 21 NORTH PARK STREET SUITE 6401 MADISON WI 53715 396006492 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS NORTHWESTERN UNIVERSITY 633 CLARK STREET EVANSTON IL 602081110 362167817 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF WASHINGTON 3903 BROOKLYN AVENUE NE SEATTLE WA 98105 916001537 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA BCM206 HOUSTON TX 77030 741613878 501(C)(3) 80000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS CEDARS SINAI 8700 BEVERLY BLVD 6500 WIL 11504720-5940 LOS ANGELES CA 99048 951644600 501(C)(3) 75000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY AT EASTERN 1101 EAST 33RD STREET SUITE B-219 BALTIMORE MD 21218 520595110 501(C)(3) 74240 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 065081873 060646973 501(C)(3) 72000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS RUXTON PHARMACEUTICALS INC 12321 MIDDLEBROOK RD STE 210 GERMANTOWN MD 20874 430654872 501(C)(3) 70482 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) DUKE UNIVERSITY MEDICAL CENTER DUMC BOX 3333 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)(3) 70000 ALSA CENTER GRANT MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD SOUTH JACKSONVILLE FL 32224 593337028 501(C)(3) 55000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS AMERICAN ACADAMY OF NEUROLOGY FOUNDATION 1080 MONTREAL AVE ST PAUL MN 55116 410726167 501(C)(3) 52500 ALS CLINICAL SCIENTIST AWARD THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 046091500 010211513 501(C)(3) 43278 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS THE REGENTS OF THE UNIVERSITY OF CALIFORNIA 11000 KINROSS AVE STE 102 LOS ANGELES CA 90095 956006143 501(C)(3) 40000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3615 CIVIC CENTER BLVD PHILADELPHIA PA 19104 042697983 501(C)(3) 40000 MAJOR DONOR RESEARCH PROGRAM GRANT OREGON HEALTH AND SCIENCE UNIVERSITY 2525 SW FIRST STE 220 PORTLAND OR 97201 931176109 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE ROOM 3041 CMM EAST LA JOLLA CA 920930660 237121131 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD SOUTH JACKSONVILLE FL 32224 593337028 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS BRANDEIS UNIVERSITY 415 SOUTH STREET MS 144 WALTHAM MA 02454 041103552 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF ROCHESTER 518 HYLAND BUILDING ROCHESTER NY 14627 160743209 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS WASHINGTON UNIVERSITY 700 ROSEDALE AVE BOX 1034 ST LOUIS MO 63112 430653611 501(C)(3) 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS NORTHWESTERN UNIVERSITY 303 E CHICAGO AVE TARRY 13-715 CHICAGO IL 606113008 362167817 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DR RM 3041 CMM EAST MC0660 LA JOLLA CA 920930660 237121131 501(C)(3) 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF MIAMI PO BOX 025405 MIAMI FL 331025405 590624458 501(C)(3) 39986 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS INDIANA UNIVERSITY 1050 WISHARD BLVD INDIANAPOLIS IN 46202 520595110 501(C)(3) 39603 ALSA CENTER GRANT BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM 21 NORTH PARK STREET STE 6401 MADISON WI 537151218 396006492 501(C)(3) 36000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY RESEARCH ADMINISTRATION UNIVERSITY OF CHICAGO 970 EAST 58TH STREET CHICAGO IL 60637 362177139 501(C)(3) 30000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY RESEARCH ADMINISTRATION - UNIV OF CHICAGO 6030 S ELLLIS AVENUE ROOM 114 CHICAGO IL 60637 362177139 501(C)(3) 30000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)(3) 30000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS AMERICAN ACADAMY OF NEUROLOGY FOUNDATION 1080 MONTREAL AVE ST PAUL MN 55116 410726167 501(C)(3) 25000 ALS CLINICAL SCIENTIST AWARD PENNSYLVANIA HOSPITAL 330 S NINTH STREET PHILADELPHIA PA 19107 246000376 501(C)(3) 21000 ALSA CENTERS THE OHIO STATE UNIVERSITY RES FOUNDATION 1960 KENNY ROAD COLUMBUS OH 43210 316025986 501(C)(3) 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH PA 15260 250965591 501(C)(3) 12500 CLINICAL GRANT - OPTIMIZING NIPPV USE FOR PATIENTS CALIFORNIA PACIFIC MEDICAL CENTER 2324 SACRAMENTO STREET SAN FRANCISCO CA 94115 262047755 501(C)(3) 12500 WILL ROGERS GRANT VIRGINIA MASON MEDICAL CENTER 1100 NINTH AVENUE PO BOX 900 SEATTLE WA 98111 910565539 501(C)(3) 11000 ALSA CENTERS UNIVERSITY OF CALIFORNIA-SF 350 PARNASUS AVENUE SUITE 500 SAN FRANCISCO CA 94117 946036493 501(C)(3) 10500 ALSA CENTERS MIRKEN DEPARTMENT OF NEUROLOGY 10 UNION SQUARE EAST NEW YORK NY 10003 042103881 501(C)(3) 10500 ALSA CENTERS UNIVERSITY OF KENTUCKY DEPARTMENT OF NEUROLOGY LEXINGTON KY 40536 616001218 501(C)(3) 10500 ALSA CENTERS CENTER FOR ALS & RELATED DISORDERS 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 10500 ALSA CENTERS CALIFORNIA PACIFIC MEDICAL CENTER 2324 SACRAMENTO STREET SAN FRANCISCO CA 94115 262047755 501(C)(3) 10500 ALSA CENTERS HARRY JHOENSELAAR ALS CLINIC 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MN 55404 381357020 501(C)(3) 10500 ALSA CENTERS INDIANA UNIVERSITY 1050 WISHARD BLVD INDIANAPOLIS IN 46202 520595110 501(C)(3) 10500 ALSA CENTERS MAYO CLINIC 13400 EAST SHEA BLVD SCOTTSDALE AZ 852595404 593337028 501(C)(3) 10500 ALSA CENTERS UNIVERSITY OF MICHIGAN HEALTH SYSTEM 1500 E MEDICAL CENTER DRIVE ANN ARBOR MI 481090316 386006309 501(C)(3) 10500 ALSA CENTERS UTHSCSA 7703 FLOYD CURL DR SAN ANTONIO TX 782847883 741586031 501(C)(3) 10500 ALSA CENTERS ALS CLINIC DUMC BOX 3333 932 MORREENE RD DURHAM NC 27705 560532129 501(C)(3) 10500 ALSA CENTERS THE UNIVERSITY OF MISSOURI PO BOX 80712 KANSAS CITY MO 64180 436003859 501(C)(3) 10000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS NEUROSCIENCE CLINICS 1012 E WILLETTA STREET PHOENIX AZ 85006 410726167 501(C)(3) 10000 ALSA CENTERS HENNEPIN FACULTY ASSOCIATES 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MN 55404 381357020 501(C)(3) 10000 ALSA CENTERS MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD S JACKSONVILLE FL 32224 593337028 501(C)(3) 10000 ALSA CENTERS MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)(3) 10000 ALSA CENTERS ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL 97 PATERSON STREET NEW BRUNSWICK NJ 08903 201285267 501(C)(3) 10000 ALSA CENTERS UNIVERSITY OF KANSAS MEDICAL CENTER 1008 WESCOE 3901 RAINBOW BLVD KANSAS CITY KS 661607314 480647721 501(C)(3) 10000 ALSA CENTERS UNIVERSITY OF VERMONT 89 BEAUMONT AVENUE BURLINGTON VT 05405 030179440 501(C)(3) 10000 ALSA CENTERS WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 271571063 223849199 501(C)(3) 10000 ALSA CENTERS UNIVERSITY OF VERMONT COLLEGE OF MEDICINE 89 BEAUMONT AVENUE BURLINGTON VT 05405 030179440 501(C)(3) 10000 NNE - ALSA CENTER GRANT THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)(3) 9500 ALSA CENTERS DEPT OF NEUROLOGY-ALS CENTER 2150 PENNSYLVANIA AVENUE NW 7-401 WASHINGTON DC 20037 542126575 501(C)(3) 9500 ALSA CENTERS LAHEY CLINIC - DEPARTMENT OF NEUROLOGY 41 MALL ROAD BURLINGTON MA 01805 237121131 501(C)(3) 9500 ALSA CENTERS MASSACHUSETTS GENERAL HOSPITAL 50 STANIFORD STREET STE 1001 BOSTON MA 021142554 042103594 501(C)(3) 9500 ALSA CENTERS ST LOUIS UNIVERSITY HOSPITAL 3660 VISTA AVENUE ST LOUIS MO 63110 141381104 501(C)(3) 9500 ALSA CENTERS UNIVERSITY OF NEW MEXICO 2211 LOMAS NE - MSC 10 5620 ALBUQUERQUE NM 87131 856000642 501(C)(3) 9500 ALSA CENTERS THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 037560001 020222139 501(C)(3) 9500 NNE - ALSA CENTER GRANT ALS CENTER AT STONYBROOK UNIV MED CTR 179 BELLE MEADE RD STE 3 EAST SETAUKET NY 11733 113243405 501(C)(3) 7470 ALSA CENTERS 70 0 RESPITE CARE PROGRAM 16 13553 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED AND IF APPROVED FOR FUNDING THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. REPORTS ARE RECEIVED EITHER ELECTRONICALLY OR VIA MAIL. OTHER INFORMATION: PART IV: SCHEDULE I, PART III APPLICANTS THAT RECEIVE GRANTS FOR THE RESPITE CARE PROGRAMS ARE REQUIRED TO SUBMIT TIMESHEETS FOR CAREGIVERS THAT THE GRANTS ARE PROVIDED FOR. X 1 1 X X X X 0 0 0 0 0 0 0 0 0 JANE H GILBERT 250000 0 0 0 0 0 7500 0 6894 0 264394 0 0 0 GORDON LAVIGNE 158125 0 0 0 0 0 2475 0 5694 0 166294 0 0 0 STEVE GIBSON 160000 0 0 0 0 0 4800 0 6732 0 171532 0 0 0 SHARON MATLAND 146000 0 0 0 0 0 4380 0 6708 0 157088 0 0 0 PART I, LINE 1A THE CEO, JANE GILBERT, IS REIMBURSED EXPENSES INCURRED FOR TIME SPENT BETWEEN THE WASHINGTON, DC AND CALABASAS OFFICES OF THE ALS ASSOCIATION. SHE RESIDES IN WASHINGTON, DC AND THE ORGANIZATION PROVIDES HER AN ALLOWANCE FOR AN APARTMENT IN CALABASAS, CALIFORNIA. THAT, ALONG WITH A LIMITED AMOUNT OF EXPENSES ASSOCIATED WITH HER TRAVEL, ARE REIMBURSED BY ALSA. THIS ENDED IN JULY 2010. X 174 97406 FMV X SOFTWARE 1 22817 FMV X MISCELLANEOUS 1 1760 FMV X TRAVEL 1 500 FMV X STAMPS 8 70 FMV 0 0 1 1 THIRD PARTY USE: PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION B, LINE 11 THE CFO OF ALSA WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA AND A COMPENSATION STUDY TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN VOTED ON BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES AS WELL AS THE ASSOCIATION'S DEPARTMENT CHIEFS AND VICE PRESIDENTS, IS SET BY THE PRESIDENT AND SUBJECT TO REVIEW BY THE COMPENSATION COMMITTEE. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA WITH SUCH REVIEW BEING DOCUMENTED IN THE MINUTES OF THE COMPENSATION COMMITTEE AND THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED GAINS ON INVESTMENTS: 228,112. GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 35,129. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 35,501. TOTAL TO FORM 990, PART XI, LINE 5: 298,742. FUNDRAISING EXPENSES - OTHER PROFESSIONAL SERVICES FORM 990, PART IX, LINE 11G, COLUMN D OTHER FUNDRAISING EXPENSES ARE PRIMARILY PROFESSIONAL SERVICES RELATED TO THE CONSULTING, ANALYSIS, PRINTING AND POSTAGE FOR DIRECT MAIL AND OTHER FUNDRAISING ACTIVITIES. FUNDRAISING EVENTS FORM 990, PART VIII, LINE 8C THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.