2011-02-03T12:14:26-06:00 2010-06-30 KPMG LLP 345 PARK AVENUE NEW YORK NY 101540102 990 2009-07-01 135644916 THE LEUKEMIA & LYMPHOMA SOCIETYINC INC LEUK 9149495213 1311 MAMARONECK AVENUE ROOM/SUITE 310 WHITE PLAINS NY 10605 JAMES T NANGLE 9149495213 2011-02-03 true KPMG LLP 2127589700 2011-02-03 2009 2016-02-24 21:20:13Z JOHN WALTER 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 396255432 false X WWW.LLS.ORG X 1949 NY THE LEUKEMIA & LYMPHOMA SOCIETY'S MISSION IS TO CURE LEUKEMIA, LYMPHOMA, HODGKIN'S DISEASE AND MYELOMA, AND IMPROVE THE QUALITY OF LIFE OF PATIENTS AND THEIR FAMILIES. 33 31 2087 3000000 -6739 268661802 238276411 0 5638674 5945189 3477294 2522446 277777770 246744046 90994934 85577867 0 88469224 81834903 9542900 9299646 44205434 74131495 73769925 263138553 250482341 14639217 -3738295 217104128 221660340 114241808 112213271 102862320 109447069 THE LEUKEMIA & LYMPHOMA SOCIETY'S MISSION IS TO CURE LEUKEMIA, LYMPHOMA, HODGKIN'S DISEASE AND MYELOMA, AND IMPROVE THE QUALITY OF LIFE OF PATIENTS AND THEIR FAMILIES. false false 68144902 65515876 A) RESEARCH PROGRAMS: WITH ADVISORY INPUT FROM RECOGNIZED BIOMEDICAL RESEARCH EXPERTS, LLS FUNDS EXEMPLARY PROJECTS ACROSS THE ENTIRE RESEARCH CONTINUUM RELEVANT TO IMPROVED OUTCOMES FOR BLOOD CANCER PATIENTS, FROM BASIC LABORATORY SCIENCE THROUGH CLINICAL TRIALS, AND FROM INVESTIGATOR-INITIATED RESEARCH TO PRIVATE-SECTOR DRUG DEVELOPMENT ALLIANCES. LLS IS DELIBERATE AND PURPOSEFUL IN FINDING AND SUPPORTING RESEARCH THAT IS MOST LIKELY TO HELP PATIENTS, AS SOON AS POSSIBLE. (CONTINUED ON SCHEDULE O) TO DATE, LLS HAS INVESTED MORE THAN 750 MILLION IN RESEARCH AIMED AT HELPING ALL BLOOD CANCER PATIENTS LIVE LONGER, HEALTHY LIVES. WE WILL CONTINUE TO SUPPORT RESEARCH THROUGH OUR INNOVATIVE AND INTEGRATED FUNDING PROGRAMS, UNTIL EVERY PATIENT HAS A SAFE AND EFFECTIVE THERAPY. IN FISCAL YEAR 2010, LLS SUPPORTED RESEARCH IN THE U.S., CANADA, AND 9 OTHER COUNTRIES.RESEARCH FUNDING WAS DISPERSED ACROSS ALL BLOOD CANCER CATEGORIES, INCLUDING: LEUKEMIA RESEARCH: APPROXIMATELY 25 MILLION LYMPHOMA RESEARCH: APPROXIMATELY 18 MILLION THERAPY ACCELERATION: APPROXIMATELY 8 MILLION BASIC BIOLOGY: APPROXIMATELY 6 MILLION MYELOMA RESEARCH: APPROXIMATELY 4 MILLION IMMUNOTHERAPY: APPROXIMATELY 4 MILLION STEM CELL: APPROXIMATELY 1 MILLION OUR CRITICAL ROLE LLS PROGRAMS ACCELERATE RELEVANT RESEARCH OUTCOMES BY: -BUILDING A FOCUSED RESEARCH WORK-FORCE: ASSURING THE NEXT ROUND OF BREAKTHROUGHS REQUIRES THAT YOUNG INVESTIGATORS BE ENCOURAGED TO WORK IN THE BLOOD CANCER RESEARCH FIELD. -TURNING DISCOVERIES INTO CLINICAL PROGRESS: BASIC SCIENCE DISCOVERIES MUST BE TRANSLATED INTO NEW, SAFE AND EFFECTIVE TREATMENTS THAT CAN ULTIMATELY PROLONG AND ENHANCE PATIENT LIVES. -SUPPORTING SYNERGY: LARGE GRANTS AND CONTRACTS ENABLE SCIENTISTS IN ACADEMIA AND THE PRIVATE-SECTOR TO COLLABORATE, COMBINING RESOURCES AND EXPERTISE TO PRODUCE MORE AND FASTER ADVANCES. -FILLING A VOID: RESEARCH PROJECTS THAT ARE HIGH-RISK OR ADDRESS RARE CANCERS ARE LESS LIKELY TO BE FUNDED BY THE GOVERNMENT OR BY FOR-PROFIT COMPANIES. LLS SUPPORTS MANY PROMISING PROJECTS THAT MIGHT OTHERWISE NEVER PROVIDE ADVANCES FOR THE BLOOD CANCER PATIENTS WHO NEED THEM. -INCREASING ACCESS TO CLINICAL TRIALS: PARTNERING WITH LEADING CLINICAL TRIAL CENTERS CAN ACCELERATE THE CLINICAL TESTING OF NEW BLOOD CANCER THERAPIES THAT ARE OFTEN A PATIENT'S BEST CHANCE FOR CURE. LLS ADMINISTERS TWO INTEGRATED RESEARCH FUNDING PROGRAMS, THE RESEARCH GRANT PROGRAM AND THE THERAPY ACCELERATION PROGRAM, TO SUPPORT OUR MISSION: CURE LEUKEMIA, LYMPHOMA, HODGKIN'S DISEASE AND MYELOMA, AND IMPROVE THE QUALITY OF LIFE OF PATIENTS AND THEIR FAMILIES. THE RESEARCH GRANT PROGRAM PROVIDES GRANT FUNDING TO SUPPORT SCIENTIFIC STUDIES AT ACADEMIC CENTERS AROUND THE WORLD, THROUGH THREE GRANT MECHANISMS: 1.THE CAREER DEVELOPMENT PROGRAM PROVIDES STIPENDS TO INVESTIGATORS OF EXCEPTIONAL PROMISE IN THE EARLY STAGES OF THEIR CAREERS, HELPING THEM TO DEVOTE THEIR CAREERS TO LEUKEMIA, LYMPHOMA AND/OR MYELOMA RESEARCH. SCHOLAR GRANTS ARE AWARDED AT 110,000 PER YEAR FOR A TOTAL OF 550,000 OVER FIVE YEARS. SPECIAL FELLOW GRANTS ARE AWARDED AT 65,000 PER YEAR FOR A TOTAL OF 195,000 OVER THREE YEARS. FELLOW GRANTS ARE AWARDED AT 55,000 PER YEAR FOR A TOTAL OF 165,000 OVER THREE YEARS. 2. THE TRANSLATIONAL RESEARCH PROGRAM SUPPORTS OUTSTANDING INVESTIGATIONS DEEMED BY OUR EXPERT ADVISORS MOST LIKELY TO TRANSLATE BASIC BIOMEDICAL DISCOVERIES INTO NEW, SAFE AND EFFECTIVE TREATMENTS, ULTIMATELY PROLONGING AND ENHANCING PATIENTS' LIVES. TRANSLATIONAL RESEARCH AWARDS ARE MADE FOR AN INITIAL THREE-YEAR PERIOD. AWARDS UP TO 200,000 PER YEAR FOR THREE YEARS, FOR A TOTAL OF 600,000 ARE GRANTED EACH YEAR. FUNDING FOR AN ADDITIONAL TWO YEARS MAY BE PROVIDED FOR HIGHLY PROMISING PROJECTS THAT ARE ENTERING PHASE I CLINICAL TRIAL. 3. THE SPECIALIZED CENTER OF RESEARCH PROGRAM ENCOURAGES MULTIDISCIPLINARY RESEARCH BY TEAMS OF LEADING-EDGE ACADEMIC INVESTIGATORS THAT HASTENS THE DISCOVERY AND DEVELOPMENT OF BETTER TREATMENTS FOR LEUKEMIA, LYMPHOMA AND MYELOMA PATIENTS. A CENTER IS COMPOSED OF AT LEAST THREE INDEPENDENT RESEARCH PROGRAMS THAT ARE INTEGRATED AND SUPPORTED BY SCIENTIFIC CORE LABORATORIES. EACH SPECIALIZED CENTER OF RESEARCH IS FUNDED UP TO 1.25 MILLION ANNUALLY OVER A FIVE-YEAR PERIOD, TO A TOTAL COST OF 6.25 MILLION. APPLICATION REVIEW PROCESS SCIENTISTS AND PHYSICIAN SCIENTISTS WHO ARE EXPERTS IN THE FIELD OF LEUKEMIA, LYMPHOMA, AND MYELOMA RESEARCH CAREFULLY EVALUATE ALL GRANT APPLICATIONS. GUIDELINES, INSTRUCTIONS, AND APPLICATIONS FOR LLS'S THREE RESEARCH PROGRAMS MAY BE OBTAINED BY VISITING WWW.LLS.ORG. THE THERAPY ACCELERATION PROGRAM (TAP) IS A STRATEGIC LLS INITIATIVE LAUNCHED IN 2007 WITH 4 MILLION IN SEED FUNDING. THIS PROGRAM PROMISES TO ACCELERATE NEW AND BETTER TREATMENTS AND CLINICAL TESTS INTO PRECLINICAL DEVELOPMENT AND CLINICAL TRIALS. WORKING IN CONCERT WITH ACADEMIC INVESTIGATORS, MEDICAL CENTERS, AND COMPANIES, TAP IS FURTHER BRIDGING THE GAP BETWEEN DISCOVERY AND HUMAN APPLICATIONS TO INCREASE THE LIKELIHOOD THAT NOVEL, POSSIBLY BREAKTHROUGH, TREATMENTS WILL BE MADE AVAILABLE TO PATIENTS AS SOON AS POSSIBLE. TAP ENCOMPASSES THREE INNOVATIVE EFFORTS: 1.THE ACADEMIC CONCIERGE DIVISION IDENTIFIES CURRENT LLS-FUNDED RESEARCH WITH THE GREATEST CLINICAL PROMISE AND PROVIDES THE FUNDING AND SUPPORT NEEDED TO ADVANCE SELECTED PROJECTS TO THE PRODUCT STAGE. 2.THE CLINICAL TRIAL DIVISION PARTNERS LLS WITH CERTAIN OF THE COUNTRY'S LEADING CLINICAL TRIAL CENTERS TO ACCELERATE THE TESTING OF NEW BLOOD CANCER THERAPIES IN CLINICAL TRIALS. 3.THE BIOTECHNOLOGY ACCELERATOR DIVISION ALLIES LLS WITH COMPANIES TO COMBINE SCIENTIFIC AND FINANCIAL RESOURCES AND ACCELERATE THE DEVELOPMENT OF POTENTIAL THERAPIES WHICH WOULDN'T OTHERWISE BE PRIORITIZED BY THE COMPANY. APPLICATION REVIEW PROCESS ALL THERAPY ACCELERATION PROJECTS ARE REVIEWED AND APPROVED BY A VOLUNTEER PANEL INCLUDING MEDICAL, SCIENTIFIC, BUSINESS, AND INTELLECTUAL PROPERTY LAW EXPERTS. FUNDING IS GOVERNED BY A CONTRACT WITH EXPLICIT TIMELINES, MILESTONES, AND GO/NO GO DECISION POINTS, WHICH ALSO CONTEMPLATES A RETURN ON INVESTMENT FOR LLS. GUIDELINES, INSTRUCTIONS, AND APPLICATIONS FOR THE THERAPY ACCELERATION PROGRAM MAY BE OBTAINED BY VISITING WWW.LLS.ORG. 73274140 20061991 B) PATIENT & COMMUNITY SERVICES : AN ESTIMATED 957,902 PEOPLE ACROSS THE UNITED STATES (US) CURRENTLY BATTLE LEUKEMIA, LYMPHOMA AND MYELOMA. THE LEUKEMIA & LYMPHOMA SOCIETY (LLS) OFFERS THE MOST COMPREHENSIVE ARRAY OF SERVICES TO BLOOD CANCER PATIENTS AND THEIR FAMILIES. LAST YEAR ALONE, LLS MADE 4.7 MILLION CONTACTS WITH PATIENTS, CAREGIVERS AND HEALTHCARE PROFESSIONALS. (CONTINUED ON SCHEDULE O) -TELECONFERENCES & WEBCASTS: LLS SPONSORS TELECONFERENCES AND WEB CASTS FOR PATIENTS, CAREGIVERS, SURVIVORS AND HEALTH CARE PROFESSIONALS ON LEUKEMIA, LYMPHOMA, MYELOMA AND MYELODYSPLASTIC SYNDROMES. A CALENDAR OF THESE FREE EVENTS AND ARCHIVES OF PAST EVENTS ARE AVAILABLE IN THE "NATIONAL EDUCATION PROGRAMS" SECTION OF WWW.LLS.ORG. 438,105 TELEPHONE AND WEB-BASED PROGRAM PARTICIPANTS IN 2010 -EDUCATIONAL MATERIALS: AN EXTENSIVE COLLECTION OF EDUCATIONAL MATERIALS IS OFFERED FREE-OF-CHARGE TO PATIENTS AND HEALTH CARE PROFESSIONALS. EACH YEAR, LLS DISTRIBUTES BOOKLETS, BROCHURES, FACT SHEETS AND DVDS THROUGH THE INFORMATION RESOURCE CENTER AND LOCAL LLS CHAPTERS. 1,207,000 PRINTED BOOKLETS, BROCHURES, FACT SHEETS AND DVDS DISTRIBUTED IN 2010 MANY MATERIALS ARE ALSO AVAILABLE TO VIEW AND DOWNLOAD AT WWW.LLS.ORG/FREEMATERIALS. DOWNLOADABLE MATERIALS ARE AVAILABLE IN ENGLISH,SPANISH AND FRENCH. -CHAPTER-BASED PROGRAMS: EACH LLS CHAPTER IS STAFFED WITH A PATIENT SERVICES MANAGER WHO OVERSEES THE CHAPTER'S SERVICES TO PATIENTS AND THEIR FAMILIES. PATIENT SERVICES MANAGERS ARE HEALTHCARE PROFESSIONALS, OFTEN WITH A BACKGROUND IN ONCOLOGY NURSING OR SOCIAL WORK. -COMMUNITY BASED EDUCATION: 42,848 PATIENT AND CAREGIVER PARTICIPANTS IN 2010 11,953 HEALTHCARE PROFESSIONAL PARTICIPANTS IN 2010 EACH OF THE FOLLOWING FOUR PROGRAMS ARE OFFERED THROUGH ALL OF OUR CHAPTERS. 1.NEW DIRECTIONS IN BLOOD CANCER THERAPIES THIS PROGRAM PROVIDES PATIENTS, FAMILIES AND HEALTHCARE PROFESSIONALS WITH A CLEAR DESCRIPTION OF WHAT CLINICAL TRIALS ARE, HOW CANCER DRUGS ARE DEVELOPED, AND WHAT THE EMERGING TREATMENT OPTIONS ARE FOR LEUKEMIA, LYMPHOMA,AND MYELOMA. 2.LIVING WITH MYELOMA: AN OVERVIEW OF DIAGNOSIS AND TREATMENT THIS PROGRAM PROVIDES PATIENTS, FAMILY MEMBERS AND CAREGIVERS WITH THE LATEST INFORMATION ON MYELOMA AND MYELOMA THERAPY, INCLUDING A QUESTION AND ANSWER SESSION WITH A MEDICAL EXPERT IN THEIR COMMUNITY. 3.GETTING THE BEST CANCER CARE AT AGE 55 AND OLDER THIS EDUCATION PROGRAM PRESENTS AN OVERVIEW OF THE MANY FACTORS, NOT AGE ALONE, THAT HEALTHCARE PROFESSIONALS SHOULD ASSESS TO DETERMINE AN APPROPRIATE CANCER TREATMENT PLAN FOR AN OLDER ADULT. 4.WELCOME BACK: FACILITATING THE SCHOOL EXPERIENCE FOR CHILDHOOD CANCER SURVIVOR THIS EDUCATION PROGRAM DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE SHORT- AND LONG-TERM EFFECTS THAT CHILDREN MAY EXPERIENCE AFTER TREATMENT, AND OFFERS NUMEROUS RESOURCES THAT CAN ASSIST CHILDHOOD CANCER SURVIVORS TO FLOURISH IN THE SCHOOL POST TREATMENT. -SUPPORT SERVICES: 1.FAMILY SUPPORT GROUPS LLS HAS DEVELOPED NEARLY 531 FAMILY SUPPORT GROUPS AT CHAPTERS THROUGHOUT THE US AND CANADA. LLS ALSO HAS MORE THAN 930 VOLUNTEER SUPPORT GROUP FACILITATORS WITH BACKGROUNDS IN ONCOLOGY NURSING OR SOCIAL WORK. GROUPS ARE GUIDED BY TWO VOLUNTEER ONCOLOGY HEALTH PROFESSIONALS, AND PROVIDE INFORMATION AND SUPPORT, AND ENCOURAGE GREATER COMMUNICATION AMONG PATIENTS, FAMILIES, FRIENDS AND HEALTH CARE PROFESSIONALS. 10,420 PARTICIPANTS IN FAMILY SUPPORT GROUPS IN 2010 2.FIRST CONNECTION FIRST CONNECTION IS A PROGRAM THAT LINKS NEWLY DIAGNOSED PATIENTS TO A PEER VOLUNTEER WHO HAS EXPERIENCED A SIMILAR DIAGNOSIS. A TRAINED PATIENT-VOLUNTEER CURRENTLY IN REMISSION CONTACTS THE NEW PATIENT TO SHARE INFORMATION AND SUPPORT. THIS PROGRAM IS AVAILABLE THROUGH LLS CHAPTERS. 5,376 FIRST CONNECTIONS IN 2010 3.PATIENT FINANCIAL AID PROGRAM FOR MORE THAN 45 YEARS, LLS HAS HELPED PATIENTS DEMONSTRATING SIGNIFICANT NEED TO OBTAIN FINANCIAL ASSISTANCE TO COVER A PORTION OF THEIR TREATMENT COSTS. THE LLS PATIENT FINANCIAL AID PROGRAM OFFERS 150 PER YEAR TO THOSE WITH A CONFIRMED BLOOD CANCER DIAGNOSIS IN ACTIVE TREATMENT OR ONGOING FOLLOW-UP. PATIENT FINANCIAL AID FUNDS ARE SUBJECT TO AVAILABILITY. 40,392 PATIENT FINANCIAL AID RECIPIENTS IN 2010 4.CO-PAY ASSISTANCE PROGRAM THIS ASSISTANCE PROGRAM HELPS PATIENTS WITH MANY KINDS OF BLOOD CANCERS MEET THEIR HEALTH INSURANCE OR MEDICARE PLAN PART B OR D PREMIUMS OR CO-PAYMENT OBLIGATIONS RELATED TO TREATING THEIR CANCER. PATIENTS WITH PRESCRIPTION DRUG COVERAGE, MEDICARE BENEFICIARIES UNDER MEDICARE PART B AND/OR MEDICARE PART D, MEDICARE SUPPLEMENTARY HEALTH INSURANCE OR MEDICARE ADVANTAGE SHOULD CHECK WITH LLS TO SEE IF THEY MEET ELIGIBILITY REQUIREMENTS TO RECEIVE FINANCIAL SUPPORT. CO-PAY ASSISTANCE IS SUBJECT TO FUND AVAILABILITY BY SPECIFIC BLOOD CANCER DIAGNOSIS. FOR MORE INFORMATION CALL, (877) LLS-COPAY (877) 557-2672 OR VISIT WWW.LLS.ORG/COPAY. 5536 PATIENTS RECEIVED LLS CO-PAY ASSISTANCE IN 2010 5.THE TRISH GREENE BACK TO SCHOOL PROGRAM FOR CHILDREN WITH CANCER THIS PROGRAM IS DESIGNED TO INCREASE COMMUNICATION AMONG HEALTH CARE PROFESSIONALS, PARENTS, PATIENTS AND SCHOOL PERSONNEL TO ASSURE YOUNGSTERS A SMOOTH TRANSITION FROM ACTIVE TREATMENT BACK TO SCHOOL. PRINTED LITERATURE, VIDEOS AND OTHER MATERIALS TO AID THE PROCESS ARE AVAILABLE THROUGH ALL LOCAL CHAPTERS, INCLUDING: -WELCOME BACK: FACILITATING THE SCHOOL EXPERIENCE FOR CHILDHOOD CANCER SURVIVORS CHAPTER EDUCATION PROGRAM. THIS EDUCATION PROGRAM FOR SCHOOL PERSONNEL AND PARENTS DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE LATE EFFECTS OF CANCER TREATMENT IN CHILDREN AND OFFERS NUMEROUS RESOURCES THAT CAN ASSIST CHILDHOOD CANCER SURVIVORS TO FLOURISH IN THE SCHOOL ENVIRONMENT POST-TREATMENT. IN FISCAL YEAR 2010 2,609 SCHOOL PERSONNEL, HEALTHCARE PROFESSIONALS AND PARENTS PARTICIPATED IN THE 67 WELCOME BACK PROGRAMS ACROSS THE USA AND CANADA. -LEARNING AND LIVING WITH CANCER,ADVOCATING FOR YOUR CHILD'S EDUCATIONAL NEEDS: THIS BOOKLET OFFERS PARENTS INFORMATION ON THE LEARNING CHALLENGES CHILDREN MAY FACE DURING AND AFTER CANCER TREATMENT, LAWS THAT PROTECT THE EDUCATIONAL NEEDS OF CHILDREN WITH CANCER AND SPECIFIC WAYS THAT SCHOOLS CAN HELP MEET A CHILD'S EDUCATIONAL NEEDS. 36746427 C) PUBLIC HEALTH EDUCATION: INFORMATION AND EDUCATION NATIONAL PROGRAMS: INFORMATION RESOURCE CENTER THE INFORMATION RESOURCE CENTER (IRC) PROVIDES INFORMATION AND RESOURCES USEFUL TO PATIENTS, THEIR FAMILIES AND HEALTH CARE PROFESSIONALS, AND IS STAFFED BY MASTER'S LEVEL ONCOLOGY SOCIAL WORKERS, NURSES AND HEALTH EDUCATORS. (CONTINUED ON SCHEDULE O) FACT SHEETS FOR FREQUENTLY ASKED QUESTIONS AND A REFERRAL DATABASE TO OTHER HELPING ORGANIZATIONS ARE AVAILABLE. PATIENTS, FAMILIES AND PROFESSIONALS MAY CALL THE INFORMATION RESOURCE CENTER TOLL-FREE NUMBER AT (800) 955-4572 MONDAY THROUGH FRIDAY, 9 A.M. TO 6 P.M., ET OR EMAIL TO INFOCENTER@LLS.ORG. 77,159 INQUIRIES IN 2010 TRANSLATION SERVICES AVAILABLE IN MORE THAN 165 LANGUAGES ONLINE ENGAGEMENT THE LLS WEBSITE SERVES A WIDE VARIETY OF EDUCATION AND INFORMATION NEEDS. USERS CAN PERSONALIZE THEIR LLS WEB PAGES TO KEEP CURRENT WITH DISEASE SPECIFIC UPDATES AND LOCAL CHAPTER EDUCATION, SUPPORT AND EVENT ACTIVITIES. THE SITE FEATURES A COMPREHENSIVE OVERVIEW OF LLS PROGRAMS AND SERVICES, FAMILY SUPPORT GROUP LOCATIONS, INFORMATION ABOUT OUR PEER-TO-PEER PROGRAM "FIRST CONNECTION", AND OTHER PROGRAMS. PATIENTS, CAREGIVERS AND HEALTHCARE PROFESSIONALS CAN INTERACT WITH LLS IN CONVENIENT AND PERSONAL WAYS THROUGH SOCIAL NETWORKING, PODCASTS AND ENEWSLETTERS. 3.6 MILLION UNIQUE VISITS TO PATIENT SERVICES/DISEASE INFORMATION PAGES IN 2010 176,847 ENEWSLETTER SUBSCRIBERS 113,493 BLOOD CANCER DISCUSSION BOARDS UNIQUE VISITS 103,994 TELECONFERENCE PODCASTS DOWNLOADS 7863476 D) PROFESSIONAL EDUCATION: LLS ALSO SERVES THE EDUCATIONAL NEEDS OF THE MEDICAL AND RESEARCH COMMUNITY THROUGH A NUMBER OF PROFESSIONAL EDUCATION SYMPOSIA OFFERED THROUGHOUT THE YEAR. THE EDUCATIONAL PROGRAM OFFERS VARYING FORMATS TO FACILITATE THE EXCHANGE OF INFORMATION AND IDEAS ON THE NEWEST DEVELOPMENTS IN CANCER RESEARCH AND TREATMENT. 7863476 186028945 true true false true false false true false true true false true false true true true false true true true false true true true false false false false true false false true true false false false false true true false false true 1152 40 true 2087 true true true true CA false false true true true true false false false 33 31 false false false false true true true true true false true true true true true true true true true true false AK AR AZ CA CT DE FL GA IL IN KS KY LA MA MD ME MI MN MO MS NH NJ NM NV NY OH OK OR PA PR RI SC TN UT VA WA WI WV X X JAMES T NANGLE CFO 9149495213 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 STEVEN HOOKER 1.00 X 0 0 0 SCOTT CARROLL 1.00 X 0 0 0 KEVIN RYAN 1.00 X 0 0 0 DAVID FRANTZE 1.00 X 0 0 0 TIMOTHY DURST 1.00 X 0 0 0 JAMES BECK 1.00 X 0 0 0 ALEXANDRA MAYES BIRNBAUM 1.00 X 0 0 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PACIFIC HEDGED ENDOWMENT 503076 F GROSVENOR ENDOWMENT 502470 F RAFI INTERNATIONAL ENDOWMENT 450000 F RAFI POOLED ENDOWMENT 306345 F OTHER 3204 F 46943952 246744046 250482341 -3738295 10322289 742006 11064295 7326000 274808000 10322289 6819125 11480908 28622322 246185678 558368 558368 246744046 267703000 6819125 10959902 17779027 249923973 558368 558368 250482341 COLLECTIONS AND RELATION TO EXEMPT PURPOSE SCHEDULE D, PAGE 2, PART III, LINE 4 THE LLS'S COLLECTION IS OF PHOTOGRAPHS WHICH ARE USED FOR PUBLIC EXHIBITION AT FUNDRAISING EVENTS HELD TO SUPPORT LLS'S PROGRAMS. INTENDED USES FOR ENDOWMENT FUNDS SCHEDULE D, PAGE 2, PART V, LINE 4 LLS'S ENDOWMENTS ARE INTENDED TO FUND RESEARCH AS WELL AS SUPPORT LLS'S PUBLIC EDUCATION PROGRAMS. RECONCILATION OF CHANGES - OTHER SCHEDULE D, PAGE 4, PART XI, LINE 8 LSRP REVENUE 34,484 LLS CANADA REVENUE 11,446,309 ROUNDING FOR AUDITED FINANCIAL STATEMENTS 115 LLS CANADA EXPENSE -10,964,445 ROUNDING FOR AUDITED FINANCIAL STATEMENTS 4,543 REVENUE AMOUNTS INCLUDED IN FINANCIALS - OTHER SCHEDULE D, PAGE 4, PART XII, LINE 2D LSRP REVENUE 34,484 LLS CANADA REVENUE 11,446,309 ROUNDING FOR AUDITED FINANCIAL STATEMENTS 115 EXPENSE AMOUNTS INCLUDED IN FINANCIALS - OTHER SCHEDULE D, PAGE 4, PART XIII, LINE 2D LLS CANADA EXPENSE 10,964,445 ROUNDING FOR AUDITED FINANCIAL STATEMENTS -4,543 SUPPLEMENTAL FINANCIAL INFORMATION SCHEDULE D, PAGE 4, PART XIV PART III, LINE 1A: THE LEUKEMIA & LYMPHOMA SOCIETY MAINTAINS A SMALL PHOTOGRAPH COLLECTION FOR PUBLIC EXHIBITION WHICH HAS AN ESTIMATED VALUE BETWEEN 20,000 AND 50,000. AS THIS REPRESENTS A RELATIVELY SMALL PERCENTAGE OF LLS'S ASSETS, IT IS NOT SEPARATELY DISCLOSED IN THE FINANCIAL STATEMENTS OR FOOTNOTES. PART X, LINE 2: IN 2010, LLS ADOPTED ASC 740, ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. LLS EVALUATED THE IMPACT OF ADOPTING THE ACCOUNTING AND DISCLOSURE REQUIREMENTS OF ASC 740 FOR UNCERTAINTIES IN INCOME TAXES RECOGNIZED IN THE CONSOLIDATED FINANCIAL STATEMENTS, WHICH PRESCRIBES A THRESHOLD OF MORE-LIKELY-THAN-NOT FOR RECOGNITION AND DE-RECOGNITION OF TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THERE WAS NO SIGNIFICANT IMPACT TO LLS'S CONSOLIDATED FINANCIAL STATEMENTS AS A RESULT OF THE ADOPTION OF ASC740. PART XI, LINE 8: RECONCILIATION OF CHANGE IN NET ASSETS ON A CONSOLIDATED BASIS TO SEPARATE COMPANY BASIS: CHANGE IN NET ASSETS PER AUDITED FINANCIAL STATEMENTS 7,326,000 PLUS: CHANGE IN NET ASSETS LLS CANADA (481,864) PLUS: LLSRF AND LLSRP ACTIVITY (33,729) PLUS: FOREIGN CURRENCY TRANSLATION ADJUSTMENT (221,000) PLUS: AUDITED FINANCIAL STATEMENT ROUNDING (4,658) EQUALS: CHANGE IN NET ASSETS PER 990 6,584,749 THE AUDITED FINANCIAL STATEMENTS FOR THE LEUKEMIA & LYMPHOMA SOCIETY, INC. INCLUDE THE LEUKEMIA & LYMPHOMA SOCIETY OF CANADA, THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH PROGRAMS, INC., AND THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH FOUNDATION IN ADDITION TO LLS. true EAST ASIA 6 6 RESEARCH FUNDING RESEARCH GRANTS 2005000 NORTH AMERICA 12 12 RESEARCH FUNDING RESEARCH GRANTS 1635071 EUROPE 9 9 RESEARCH FUNDING RESEARCH GRANTS 2189000 MIDDLE EAST 1 1 RESEARCH FUNDING RESEARCH GRANTS 200000 28 28 6029071 EAST ASIA & PACIFIC RESEARCH GRANT 1250000 CHECK EAST ASIA & PACIFIC RESEARCH GRANT 55000 CHECK EAST ASIA & PACIFIC RESEARCH GRANT 200000 CHECK EAST ASIA & PACIFIC RESEARCH GRANT 200000 CHECK EAST ASIA & PACIFIC RESEARCH GRANT 200000 CHECK NORTH AMERICA RESEARCH GRANT 200000 CHECK NORTH AMERICA RESEARCH GRANT 200000 CHECK NORTH AMERICA RESEARCH GRANT 200000 CHECK NORTH AMERICA RESEARCH GRANT 55000 CHECK NORTH AMERICA RESEARCH GRANT 65000 CHECK NORTH AMERICA RESEARCH GRANT 110000 CHECK NORTH AMERICA RESEARCH GRANT 200000 CHECK NORTH AMERICA RESEARCH GRANT 200000 CHECK NORTH AMERICA RESEARCH GRANT 65000 CHECK EUROPE RESEARCH GRANT 55000 CHECK MIDDLE EAST AND NORTH AFRICA RESEACH GRANT 200000 CHECK EUROPE RESEARCH GRANT 200000 CHECK EUROPE RESEARCH GRANT 65000 CHECK EAST ASIA & PACIFIC RESEARCH GRANT 100000 CHECK EUROPE RESEARCH GRANT 200000 CHECK EUROPE RESEARCH GRANT 54000 CHECK EUROPE RESEARCH GRANT 1250000 CHECK EUROPE RESEARCH GRANT 110000 CHECK EUROPE RESEARCH GRANT 200000 CHECK EUROPE RESEARCH GRANT 55000 CHECK NORTH AMERICA THERAPY ACCELERATION 307026 CHECK NORTH AMERICA THERAPY ACCELERATION 26159 CHECK NORTH AMERICA THERAPY ACCELERATION 6886 CHECK 28 PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS OUTSIDE THE UNITED STATES SCHEDULE F, PAGE 1, PART I, LINE 2 FIDUCIARY RESPONSIBILITY AND TRANSPARENCY TO OUR DONORS IS A HIGH PRIORITY. THE LEUKEMIA & LYMPHOMA SOCIETY (LLS) PLACES CONSIDERABLE EMPHASIS ON THE OVERSIGHT OF GRANT SPENDING. TO ACCOMPLISH THIS OBEJECTIVE WE REQUIRE THE SUBMISSION OF ANNUAL FINANCIAL REPORTS FOR EACH OF OUR ACTIVE GRANTS. THE REPORT MUST BE SIGNED BY THE FINANCIAL OFFICER AND/OR THE DESIGNATED OFFICIAL OF THE INSTITUTION HOSTING THE AWARD. AT THE END OF THE GRANT, WE REQUIRE A FINAL FINANCIAL REPORT THAT PROVIDES AN OVERVIEW OF ALL SPENDING THROUGH THE DURATION OF THE AWARD. WE REQUIRE SPECIFIC ACCOUNTING OF SPENDING ON PERSONNEL, CONSULTANTS, EQUIPMENT PURCHASES, SUPPLIES, TRAVEL, PATIENT CARE COSTS, ANIMAL CARE COSTS, AND ANY OTHER EXPENSE A GRANTEE MAY INCUR. WE HAVE SPECIFIC INSTRUCTIONS AND DOLLAR AMOUNT LIMITATIONS SET FOR MANY OF THESE CATEGORIES DEPENDING ON THE AWARD TYPE. FINANCIAL REPORTS ARE REVIEWED FOR NUMERICAL ACCURACY, ADHERENCE TO OUR GUIDELINES, AND FOR THE VERIFICATION OF APPROVAL FROM THE INSTITUTION'S FINANCIAL OFFICER. IF THE GRANTEE DOES NOT SUBMIT AN ANNUAL FINANCIAL REPORT BY THE DUE DATE OUTLINED IN THEIR CONTRACT, FUNDING IS SUSPENDED UNTIL LLS RECEIVES AND APPROVES THE DELINQUENT REPORT. 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3 55000 RESEARCH GRANT YALE UNIVERSITY 10 AMISTAD STREET ROOM 414 NEW HAVEN CT 06509 060646973 3 55000 RESEARCH GRANT YALE UNIVERSITY BCMM 133 YALE UNIVERSITY 295 CONGR NEW HAVEN CT 06519 060646973 3 55000 RESEARCH GRANT YALE UNIVERSITY 333 CEDAR STREET PO BOX 208032 NEW HAVEN CT 06520 060646973 3 110000 RESEARCH GRANT YALE UNIVERSITY YALE UNIVERSITY BCMM 133 295 CONG NEW HAVEN CT 06519 060646973 3 65000 RESEARCH GRANT OCONOVA 375 PHEASANT RUN NEWTON PA 18940 2000000 THERAPY ACCELERATION CELATOR 303B COLLEGE ROAD EAST PRINCETON NJ 08540 1817242 THERAPY ACCELERATION AVILA 100 BEAVER STREET WALTHAM MA 02453 961985 THERAPY ACCELERATION FORMA THERAPEUTICS 790 MEMORIAL DRIVE CAMBRIDGE MA 01239 950000 THERAPY ACCELERATION MEMGEN 757 RAMBLER ROAD SUITE 700 DALLAS TX 75231 837636 THERAPY ACCELERATION SHAPE 55 CAMBRIDGE PARKWAY SUITE 102 CAMBRIDGE MA 02142 600000 THERAPY ACCELERATION BIOTECHNOLOGY INNOVATION & OPTIMIZA 2097 CONSTANT AVENUE LAWRENCE KS 66047 321055 THEREAPY ACCELERATIO NANAOSYN 3760 MAVEN AVENUE MENLO PARK CA 94025 125000 THERAY ACCELERATION BECKLOFF ASSOCIATES INC 3203 SOLUTIONS CENTER CHICAGO IL 60677 62887 THERAPY ACCELERATION 300 309 PATIENT AID 40351 6058760 CO-PAY ASSISTANCE-AML 40 112500 CO-PAY ASSISTANCE-CML 846 2103731 CO-PAY ASSISTANCE-CLL 832 1511000 CO-PAY ASSISTANCE-LYMPHOM 3010 5416000 CO-PAY ASSISTANCE-MDS 656 900000 CO-PAY ASSISTANCE-MYELOMA 2585 3960000 PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS INSIDE THE UNITED STATES SCHEDULE I, PAGE 1, PART I, LINE 2 FIDUCIARY RESPONSIBILITY AND TRANSPARENCY TO OUR DONORS IS A HIGH PRIORITY. THE LEUKEMIA & LYMPHOMA SOCIETY (LLS) PLACES CONSIDERABLE EMPHASIS ON THE OVERSIGHT OF GRANT SPENDING. TO ACCOMPLISH THIS WE REQUIRE THE SUBMISSION OF ANNUAL FINANCIAL REPORTS FOR EACH OF OUR ACTIVE GRANTS. THE REPORT MUST BE SIGNED BY THE FINANCIAL OFFICER AND/OR THE DESIGNATED OFFICIAL OF THE INSTITUTION HOSTING THE AWARD. AT THE END OF THE GRANT, WE REQUIRE A FINAL FINANCIAL REPORT THAT PROVIDES AN OVERVIEW OF ALL SPENDING THROUGH THE DURATION OF THE AWARD.WE REQUIRE SPECIFIC ACCOUNTING OF SPENDING ON PERSONNEL, CONSULTANTS,EQUIPMENT PURCHASES, SUPPLIES, TRAVEL, PATIENT CARE COSTS, ANIMAL CARE COSTS, AND ANY OTHER EXPENSE A GRANTEE MAY INCUR. WE HAVE SPECIFIC INSTRUCTIONS AND DOLLAR AMOUNT LIMITATIONS SET FOR MANY OF THESE CATEGORIES DEPENDING ON THE AWARD TYPE. FINANCIAL REPORTS ARE REVIEWED FOR NUMERICAL ACCURACY, ADHERENCE TO OUR GUIDELINES, AND FOR THE VERIFICATION OF APPROVAL FROM THE INSTITUTION'S FINANCIAL OFFICER. IF THE GRANTEE DOES NOT SUBMIT AN ANNUAL FINANCIAL REPORT BY THE DUE DATE OUTLINED IN THEIR CONTRACT, FUNDING IS SUSPENDED UNTIL LLS RECEIVES AND APPROVES THE DELINQUENT REPORT. X X X true false false true false false false false false JOHN WALTER 460417 45000 13082 30870 19241 568610 JAMES T NANGLE 231456 6283 10282 23146 18763 289930 LOUIS DEGENNERO PHD 299450 8129 8870 17150 13463 347062 NANCY KLEIN 288975 8039 9514 24500 18879 349907 BARTON KAMEN MD 129663 151270 17150 18907 316990 DAVID TIMKO 228375 6826 11813 22837 13374 283225 JANE KARLIN 231120 5634 16178 13572 266504 SEVERANCE, NONQUALIFIED, AND EQUITY-BASED PAYMENTS SCHEDULE J, PAGE 1, PART I, LINE 4 BARTON KAMEN, MD 141,450 0 0 COMPENSATION CONTINGENT UPON REVENUES OF ORGANIZATION SCHEDULE J, PAGE 1, PART I, LINE 5A BONUSES WERE PAID BASED ON THE ACHIEVEMENT OF GROSS REVENUE EXCEEDING BUDGETED GROSS REVENUE AND EMPLOYEE INDIVIDUAL PERFORMANCE. BONUSES WERE CAPPED ACCORDING TO LLS'S POLICY. DR ALAN GERWITZ BOD MEMBER 74159 JAMES DAVIS BOD MEMBER 307026 EQUITY IN AEGERA false X 76 412179 MARKET VALUE X 28 X PRINTING 9 X FURNITURE&EQUIP 9 X VARIOUS OTHERS 51 false true true THIRD PARTY USED TO PROCESS NONCASH CONTRIBUTIONS SCHEDULE M, PAGE 1, PART I, LINE 32B LLS USES ITS INVESTMENT CUSTODIAN TO LIQUIDATE ANY DONATED SECURITIES. EXPLANATION FOR NOT REPORTING REVENUE SCHEDULE M, PAGE 1, PART I, LINE 33 LLS ONLY RECORDS DONATED SECURITIES AS REVENUE. ALL OTHER ITEMS FOR WHICH COLUMN A IS CHECKED ARE NOT RECORDED AS REVENUE OR EXPENSE BECAUSE THEY WOULD NOT HAVE BEEN PURCHASED HAD THEY NOT BEEN DONATED, AND ARE IMMATERIAL IN AMOUNT RELATIVE TO THE STATEMENTS OF LLS. SUPPLEMENTAL INFORMATION SCHEDULE M, PAGE 2, PART II PART I, COLUMN (B) LLS IS REPORTING THE NUMBER OF CONTRIBUTIONS FOR EACH OF THE ITEMS IN PART I, NOT THE NUMBER OF INDIVIDUAL ITEMS. FIRST ACHIEVEMENT DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4A TO DATE, LLS HAS INVESTED MORE THAN 750 MILLION IN RESEARCH AIMED AT HELPING ALL BLOOD CANCER PATIENTS LIVE LONGER, HEALTHY LIVES. WE WILL CONTINUE TO SUPPORT RESEARCH THROUGH OUR INNOVATIVE AND INTEGRATED FUNDING PROGRAMS, UNTIL EVERY PATIENT HAS A SAFE AND EFFECTIVE THERAPY. IN FISCAL YEAR 2010, LLS SUPPORTED RESEARCH IN THE U.S., CANADA, AND 9 OTHER COUNTRIES.RESEARCH FUNDING WAS DISPERSED ACROSS ALL BLOOD CANCER CATEGORIES, INCLUDING: LEUKEMIA RESEARCH: APPROXIMATELY 25 MILLION LYMPHOMA RESEARCH: APPROXIMATELY 18 MILLION THERAPY ACCELERATION: APPROXIMATELY 8 MILLION BASIC BIOLOGY: APPROXIMATELY 6 MILLION MYELOMA RESEARCH: APPROXIMATELY 4 MILLION IMMUNOTHERAPY: APPROXIMATELY 4 MILLION STEM CELL: APPROXIMATELY 1 MILLION OUR CRITICAL ROLE LLS PROGRAMS ACCELERATE RELEVANT RESEARCH OUTCOMES BY: -BUILDING A FOCUSED RESEARCH WORK-FORCE: ASSURING THE NEXT ROUND OF BREAKTHROUGHS REQUIRES THAT YOUNG INVESTIGATORS BE ENCOURAGED TO WORK IN THE BLOOD CANCER RESEARCH FIELD. -TURNING DISCOVERIES INTO CLINICAL PROGRESS: BASIC SCIENCE DISCOVERIES MUST BE TRANSLATED INTO NEW, SAFE AND EFFECTIVE TREATMENTS THAT CAN ULTIMATELY PROLONG AND ENHANCE PATIENT LIVES. -SUPPORTING SYNERGY: LARGE GRANTS AND CONTRACTS ENABLE SCIENTISTS IN ACADEMIA AND THE PRIVATE-SECTOR TO COLLABORATE, COMBINING RESOURCES AND EXPERTISE TO PRODUCE MORE AND FASTER ADVANCES. -FILLING A VOID: RESEARCH PROJECTS THAT ARE HIGH-RISK OR ADDRESS RARE CANCERS ARE LESS LIKELY TO BE FUNDED BY THE GOVERNMENT OR BY FOR-PROFIT COMPANIES. LLS SUPPORTS MANY PROMISING PROJECTS THAT MIGHT OTHERWISE NEVER PROVIDE ADVANCES FOR THE BLOOD CANCER PATIENTS WHO NEED THEM. -INCREASING ACCESS TO CLINICAL TRIALS: PARTNERING WITH LEADING CLINICAL TRIAL CENTERS CAN ACCELERATE THE CLINICAL TESTING OF NEW BLOOD CANCER THERAPIES THAT ARE OFTEN A PATIENT'S BEST CHANCE FOR CURE. LLS ADMINISTERS TWO INTEGRATED RESEARCH FUNDING PROGRAMS, THE RESEARCH GRANT PROGRAM AND THE THERAPY ACCELERATION PROGRAM, TO SUPPORT OUR MISSION: CURE LEUKEMIA, LYMPHOMA, HODGKIN'S DISEASE AND MYELOMA, AND IMPROVE THE QUALITY OF LIFE OF PATIENTS AND THEIR FAMILIES. THE RESEARCH GRANT PROGRAM PROVIDES GRANT FUNDING TO SUPPORT SCIENTIFIC STUDIES AT ACADEMIC CENTERS AROUND THE WORLD, THROUGH THREE GRANT MECHANISMS: 1.THE CAREER DEVELOPMENT PROGRAM PROVIDES STIPENDS TO INVESTIGATORS OF EXCEPTIONAL PROMISE IN THE EARLY STAGES OF THEIR CAREERS, HELPING THEM TO DEVOTE THEIR CAREERS TO LEUKEMIA, LYMPHOMA AND/OR MYELOMA RESEARCH. SCHOLAR GRANTS ARE AWARDED AT 110,000 PER YEAR FOR A TOTAL OF 550,000 OVER FIVE YEARS. SPECIAL FELLOW GRANTS ARE AWARDED AT 65,000 PER YEAR FOR A TOTAL OF 195,000 OVER THREE YEARS. FELLOW GRANTS ARE AWARDED AT 55,000 PER YEAR FOR A TOTAL OF 165,000 OVER THREE YEARS. 2. THE TRANSLATIONAL RESEARCH PROGRAM SUPPORTS OUTSTANDING INVESTIGATIONS DEEMED BY OUR EXPERT ADVISORS MOST LIKELY TO TRANSLATE BASIC BIOMEDICAL DISCOVERIES INTO NEW, SAFE AND EFFECTIVE TREATMENTS, ULTIMATELY PROLONGING AND ENHANCING PATIENTS' LIVES. TRANSLATIONAL RESEARCH AWARDS ARE MADE FOR AN INITIAL THREE-YEAR PERIOD. AWARDS UP TO 200,000 PER YEAR FOR THREE YEARS, FOR A TOTAL OF 600,000 ARE GRANTED EACH YEAR. FUNDING FOR AN ADDITIONAL TWO YEARS MAY BE PROVIDED FOR HIGHLY PROMISING PROJECTS THAT ARE ENTERING PHASE I CLINICAL TRIAL. 3. THE SPECIALIZED CENTER OF RESEARCH PROGRAM ENCOURAGES MULTIDISCIPLINARY RESEARCH BY TEAMS OF LEADING-EDGE ACADEMIC INVESTIGATORS THAT HASTENS THE DISCOVERY AND DEVELOPMENT OF BETTER TREATMENTS FOR LEUKEMIA, LYMPHOMA AND MYELOMA PATIENTS. A CENTER IS COMPOSED OF AT LEAST THREE INDEPENDENT RESEARCH PROGRAMS THAT ARE INTEGRATED AND SUPPORTED BY SCIENTIFIC CORE LABORATORIES. EACH SPECIALIZED CENTER OF RESEARCH IS FUNDED UP TO 1.25 MILLION ANNUALLY OVER A FIVE-YEAR PERIOD, TO A TOTAL COST OF 6.25 MILLION. APPLICATION REVIEW PROCESS SCIENTISTS AND PHYSICIAN SCIENTISTS WHO ARE EXPERTS IN THE FIELD OF LEUKEMIA, LYMPHOMA, AND MYELOMA RESEARCH CAREFULLY EVALUATE ALL GRANT APPLICATIONS. GUIDELINES, INSTRUCTIONS, AND APPLICATIONS FOR LLS'S THREE RESEARCH PROGRAMS MAY BE OBTAINED BY VISITING WWW.LLS.ORG. THE THERAPY ACCELERATION PROGRAM (TAP) IS A STRATEGIC LLS INITIATIVE LAUNCHED IN 2007 WITH 4 MILLION IN SEED FUNDING. THIS PROGRAM PROMISES TO ACCELERATE NEW AND BETTER TREATMENTS AND CLINICAL TESTS INTO PRECLINICAL DEVELOPMENT AND CLINICAL TRIALS. WORKING IN CONCERT WITH ACADEMIC INVESTIGATORS, MEDICAL CENTERS, AND COMPANIES, TAP IS FURTHER BRIDGING THE GAP BETWEEN DISCOVERY AND HUMAN APPLICATIONS TO INCREASE THE LIKELIHOOD THAT NOVEL, POSSIBLY BREAKTHROUGH, TREATMENTS WILL BE MADE AVAILABLE TO PATIENTS AS SOON AS POSSIBLE. TAP ENCOMPASSES THREE INNOVATIVE EFFORTS: 1.THE ACADEMIC CONCIERGE DIVISION IDENTIFIES CURRENT LLS-FUNDED RESEARCH WITH THE GREATEST CLINICAL PROMISE AND PROVIDES THE FUNDING AND SUPPORT NEEDED TO ADVANCE SELECTED PROJECTS TO THE PRODUCT STAGE. 2.THE CLINICAL TRIAL DIVISION PARTNERS LLS WITH CERTAIN OF THE COUNTRY'S LEADING CLINICAL TRIAL CENTERS TO ACCELERATE THE TESTING OF NEW BLOOD CANCER THERAPIES IN CLINICAL TRIALS. 3.THE BIOTECHNOLOGY ACCELERATOR DIVISION ALLIES LLS WITH COMPANIES TO COMBINE SCIENTIFIC AND FINANCIAL RESOURCES AND ACCELERATE THE DEVELOPMENT OF POTENTIAL THERAPIES WHICH WOULDN'T OTHERWISE BE PRIORITIZED BY THE COMPANY. APPLICATION REVIEW PROCESS ALL THERAPY ACCELERATION PROJECTS ARE REVIEWED AND APPROVED BY A VOLUNTEER PANEL INCLUDING MEDICAL, SCIENTIFIC, BUSINESS, AND INTELLECTUAL PROPERTY LAW EXPERTS. FUNDING IS GOVERNED BY A CONTRACT WITH EXPLICIT TIMELINES, MILESTONES, AND GO/NO GO DECISION POINTS, WHICH ALSO CONTEMPLATES A RETURN ON INVESTMENT FOR LLS. GUIDELINES, INSTRUCTIONS, AND APPLICATIONS FOR THE THERAPY ACCELERATION PROGRAM MAY BE OBTAINED BY VISITING WWW.LLS.ORG. SECOND ACHIEVEMENT DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4B -TELECONFERENCES & WEBCASTS: LLS SPONSORS TELECONFERENCES AND WEB CASTS FOR PATIENTS, CAREGIVERS, SURVIVORS AND HEALTH CARE PROFESSIONALS ON LEUKEMIA, LYMPHOMA, MYELOMA AND MYELODYSPLASTIC SYNDROMES. A CALENDAR OF THESE FREE EVENTS AND ARCHIVES OF PAST EVENTS ARE AVAILABLE IN THE "NATIONAL EDUCATION PROGRAMS" SECTION OF WWW.LLS.ORG. 438,105 TELEPHONE AND WEB-BASED PROGRAM PARTICIPANTS IN 2010 -EDUCATIONAL MATERIALS: AN EXTENSIVE COLLECTION OF EDUCATIONAL MATERIALS IS OFFERED FREE-OF-CHARGE TO PATIENTS AND HEALTH CARE PROFESSIONALS. EACH YEAR, LLS DISTRIBUTES BOOKLETS, BROCHURES, FACT SHEETS AND DVDS THROUGH THE INFORMATION RESOURCE CENTER AND LOCAL LLS CHAPTERS. 1,207,000 PRINTED BOOKLETS, BROCHURES, FACT SHEETS AND DVDS DISTRIBUTED IN 2010 MANY MATERIALS ARE ALSO AVAILABLE TO VIEW AND DOWNLOAD AT WWW.LLS.ORG/FREEMATERIALS. DOWNLOADABLE MATERIALS ARE AVAILABLE IN ENGLISH,SPANISH AND FRENCH. -CHAPTER-BASED PROGRAMS: EACH LLS CHAPTER IS STAFFED WITH A PATIENT SERVICES MANAGER WHO OVERSEES THE CHAPTER'S SERVICES TO PATIENTS AND THEIR FAMILIES. PATIENT SERVICES MANAGERS ARE HEALTHCARE PROFESSIONALS, OFTEN WITH A BACKGROUND IN ONCOLOGY NURSING OR SOCIAL WORK. -COMMUNITY BASED EDUCATION: 42,848 PATIENT AND CAREGIVER PARTICIPANTS IN 2010 11,953 HEALTHCARE PROFESSIONAL PARTICIPANTS IN 2010 EACH OF THE FOLLOWING FOUR PROGRAMS ARE OFFERED THROUGH ALL OF OUR CHAPTERS. 1.NEW DIRECTIONS IN BLOOD CANCER THERAPIES THIS PROGRAM PROVIDES PATIENTS, FAMILIES AND HEALTHCARE PROFESSIONALS WITH A CLEAR DESCRIPTION OF WHAT CLINICAL TRIALS ARE, HOW CANCER DRUGS ARE DEVELOPED, AND WHAT THE EMERGING TREATMENT OPTIONS ARE FOR LEUKEMIA, LYMPHOMA,AND MYELOMA. 2.LIVING WITH MYELOMA: AN OVERVIEW OF DIAGNOSIS AND TREATMENT THIS PROGRAM PROVIDES PATIENTS, FAMILY MEMBERS AND CAREGIVERS WITH THE LATEST INFORMATION ON MYELOMA AND MYELOMA THERAPY, INCLUDING A QUESTION AND ANSWER SESSION WITH A MEDICAL EXPERT IN THEIR COMMUNITY. 3.GETTING THE BEST CANCER CARE AT AGE 55 AND OLDER THIS EDUCATION PROGRAM PRESENTS AN OVERVIEW OF THE MANY FACTORS, NOT AGE ALONE, THAT HEALTHCARE PROFESSIONALS SHOULD ASSESS TO DETERMINE AN APPROPRIATE CANCER TREATMENT PLAN FOR AN OLDER ADULT. 4.WELCOME BACK: FACILITATING THE SCHOOL EXPERIENCE FOR CHILDHOOD CANCER SURVIVOR THIS EDUCATION PROGRAM DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE SHORT- AND LONG-TERM EFFECTS THAT CHILDREN MAY EXPERIENCE AFTER TREATMENT, AND OFFERS NUMEROUS RESOURCES THAT CAN ASSIST CHILDHOOD CANCER SURVIVORS TO FLOURISH IN THE SCHOOL POST TREATMENT. -SUPPORT SERVICES: 1.FAMILY SUPPORT GROUPS LLS HAS DEVELOPED NEARLY 531 FAMILY SUPPORT GROUPS AT CHAPTERS THROUGHOUT THE US AND CANADA. LLS ALSO HAS MORE THAN 930 VOLUNTEER SUPPORT GROUP FACILITATORS WITH BACKGROUNDS IN ONCOLOGY NURSING OR SOCIAL WORK. GROUPS ARE GUIDED BY TWO VOLUNTEER ONCOLOGY HEALTH PROFESSIONALS, AND PROVIDE INFORMATION AND SUPPORT, AND ENCOURAGE GREATER COMMUNICATION AMONG PATIENTS, FAMILIES, FRIENDS AND HEALTH CARE PROFESSIONALS. 10,420 PARTICIPANTS IN FAMILY SUPPORT GROUPS IN 2010 2.FIRST CONNECTION FIRST CONNECTION IS A PROGRAM THAT LINKS NEWLY DIAGNOSED PATIENTS TO A PEER VOLUNTEER WHO HAS EXPERIENCED A SIMILAR DIAGNOSIS. A TRAINED PATIENT-VOLUNTEER CURRENTLY IN REMISSION CONTACTS THE NEW PATIENT TO SHARE INFORMATION AND SUPPORT. THIS PROGRAM IS AVAILABLE THROUGH LLS CHAPTERS. 5,376 FIRST CONNECTIONS IN 2010 3.PATIENT FINANCIAL AID PROGRAM FOR MORE THAN 45 YEARS, LLS HAS HELPED PATIENTS DEMONSTRATING SIGNIFICANT NEED TO OBTAIN FINANCIAL ASSISTANCE TO COVER A PORTION OF THEIR TREATMENT COSTS. THE LLS PATIENT FINANCIAL AID PROGRAM OFFERS 150 PER YEAR TO THOSE WITH A CONFIRMED BLOOD CANCER DIAGNOSIS IN ACTIVE TREATMENT OR ONGOING FOLLOW-UP. PATIENT FINANCIAL AID FUNDS ARE SUBJECT TO AVAILABILITY. 40,392 PATIENT FINANCIAL AID RECIPIENTS IN 2010 4.CO-PAY ASSISTANCE PROGRAM THIS ASSISTANCE PROGRAM HELPS PATIENTS WITH MANY KINDS OF BLOOD CANCERS MEET THEIR HEALTH INSURANCE OR MEDICARE PLAN PART B OR D PREMIUMS OR CO-PAYMENT OBLIGATIONS RELATED TO TREATING THEIR CANCER. PATIENTS WITH PRESCRIPTION DRUG COVERAGE, MEDICARE BENEFICIARIES UNDER MEDICARE PART B AND/OR MEDICARE PART D, MEDICARE SUPPLEMENTARY HEALTH INSURANCE OR MEDICARE ADVANTAGE SHOULD CHECK WITH LLS TO SEE IF THEY MEET ELIGIBILITY REQUIREMENTS TO RECEIVE FINANCIAL SUPPORT. CO-PAY ASSISTANCE IS SUBJECT TO FUND AVAILABILITY BY SPECIFIC BLOOD CANCER DIAGNOSIS. FOR MORE INFORMATION CALL, (877) LLS-COPAY (877) 557-2672 OR VISIT WWW.LLS.ORG/COPAY. 5536 PATIENTS RECEIVED LLS CO-PAY ASSISTANCE IN 2010 5.THE TRISH GREENE BACK TO SCHOOL PROGRAM FOR CHILDREN WITH CANCER THIS PROGRAM IS DESIGNED TO INCREASE COMMUNICATION AMONG HEALTH CARE PROFESSIONALS, PARENTS, PATIENTS AND SCHOOL PERSONNEL TO ASSURE YOUNGSTERS A SMOOTH TRANSITION FROM ACTIVE TREATMENT BACK TO SCHOOL. PRINTED LITERATURE, VIDEOS AND OTHER MATERIALS TO AID THE PROCESS ARE AVAILABLE THROUGH ALL LOCAL CHAPTERS, INCLUDING: -WELCOME BACK: FACILITATING THE SCHOOL EXPERIENCE FOR CHILDHOOD CANCER SURVIVORS CHAPTER EDUCATION PROGRAM. THIS EDUCATION PROGRAM FOR SCHOOL PERSONNEL AND PARENTS DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE LATE EFFECTS OF CANCER TREATMENT IN CHILDREN AND OFFERS NUMEROUS RESOURCES THAT CAN ASSIST CHILDHOOD CANCER SURVIVORS TO FLOURISH IN THE SCHOOL ENVIRONMENT POST-TREATMENT. IN FISCAL YEAR 2010 2,609 SCHOOL PERSONNEL, HEALTHCARE PROFESSIONALS AND PARENTS PARTICIPATED IN THE 67 WELCOME BACK PROGRAMS ACROSS THE USA AND CANADA. -LEARNING AND LIVING WITH CANCER,ADVOCATING FOR YOUR CHILD'S EDUCATIONAL NEEDS: THIS BOOKLET OFFERS PARENTS INFORMATION ON THE LEARNING CHALLENGES CHILDREN MAY FACE DURING AND AFTER CANCER TREATMENT, LAWS THAT PROTECT THE EDUCATIONAL NEEDS OF CHILDREN WITH CANCER AND SPECIFIC WAYS THAT SCHOOLS CAN HELP MEET A CHILD'S EDUCATIONAL NEEDS. THIRD ACHIEVEMENT DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4C FACT SHEETS FOR FREQUENTLY ASKED QUESTIONS AND A REFERRAL DATABASE TO OTHER HELPING ORGANIZATIONS ARE AVAILABLE. PATIENTS, FAMILIES AND PROFESSIONALS MAY CALL THE INFORMATION RESOURCE CENTER TOLL-FREE NUMBER AT (800) 955-4572 MONDAY THROUGH FRIDAY, 9 A.M. TO 6 P.M., ET OR EMAIL TO INFOCENTER@LLS.ORG. 77,159 INQUIRIES IN 2010 TRANSLATION SERVICES AVAILABLE IN MORE THAN 165 LANGUAGES ONLINE ENGAGEMENT THE LLS WEBSITE SERVES A WIDE VARIETY OF EDUCATION AND INFORMATION NEEDS. USERS CAN PERSONALIZE THEIR LLS WEB PAGES TO KEEP CURRENT WITH DISEASE SPECIFIC UPDATES AND LOCAL CHAPTER EDUCATION, SUPPORT AND EVENT ACTIVITIES. THE SITE FEATURES A COMPREHENSIVE OVERVIEW OF LLS PROGRAMS AND SERVICES, FAMILY SUPPORT GROUP LOCATIONS, INFORMATION ABOUT OUR PEER-TO-PEER PROGRAM "FIRST CONNECTION", AND OTHER PROGRAMS. PATIENTS, CAREGIVERS AND HEALTHCARE PROFESSIONALS CAN INTERACT WITH LLS IN CONVENIENT AND PERSONAL WAYS THROUGH SOCIAL NETWORKING, PODCASTS AND ENEWSLETTERS. 3.6 MILLION UNIQUE VISITS TO PATIENT SERVICES/DISEASE INFORMATION PAGES IN 2010 176,847 ENEWSLETTER SUBSCRIBERS 113,493 BLOOD CANCER DISCUSSION BOARDS UNIQUE VISITS 103,994 TELECONFERENCE PODCASTS DOWNLOADS ALL OTHER ACHIEVEMENTS DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4D D) PROFESSIONAL EDUCATION: LLS ALSO SERVES THE EDUCATIONAL NEEDS OF THE MEDICAL AND RESEARCH COMMUNITY THROUGH A NUMBER OF PROFESSIONAL EDUCATION SYMPOSIA OFFERED THROUGHOUT THE YEAR. THE EDUCATIONAL PROGRAM OFFERS VARYING FORMATS TO FACILITATE THE EXCHANGE OF INFORMATION AND IDEAS ON THE NEWEST DEVELOPMENTS IN CANCER RESEARCH AND TREATMENT. FINANCIAL ACCOUNTS IN FOREIGN COUNTRIES FORM 990, PART V, LINE 4B CANADA CLASSES OF MEMBERS OR STOCKHOLDERS FORM 990, PAGE 6, PART VI, LINE 6 THE MEMBERS OF LLS CONSIST OF ONE ELECTED REPRESENTATIVE FROM EACH CHAPTER. ELECTION OF MEMBERS AND THEIR RIGHTS FORM 990, PAGE 6, PART VI, LINE 7A THE BOARD OF REPRESENTATIVES (REPRESENTING THE CHAPTERS) ELECTS THE MEMBERS OF LLS'S GOVERNING BODY, ITS NATIONAL BOARD OF DIRECTORS. DECISIONS SUBJECT TO APPROVAL OF MEMBERS FORM 990, PAGE 6, PART VI, LINE 7B SIGNIFICANT DECISIONS AFFECTING THE CHAPTERS REQUIRE AN APPROVING VOTE BY THE CHAPTER DELEGATES. DECISIONS NOT SIGNIFICANTLY AFFECTING THE CHAPTERS DO NOT REQUIRE APPROVAL FROM THE CHAPTER DELEGATES. POLICIES AND PROCEDURES GOVERNING CHAPTERS FORM 990, PAGE 6, PART VI, LINE 10B LLS HAS ONE SET OF WRITTEN POLICIES AND PROCEDURES THAT GOVERN ALL OF OUR CHAPTERS AND OUR NATIONAL OFFICE. ORGANIZATION'S PROCESS USED TO REVIEW FORM 990 FORM 990, PAGE 6, PART VI, LINE 11 THE FORM 990 WAS PREPARED BY THE LLS FINANCE DEPARTMENT AND WAS REVIEWED BY THE CFO, VICE PRESIDENT OF FINANCE, AND KPMG FOR COMMENT AND SUGGESTED REVISIONS. THE FORM 990 WAS THEN PROVIDED TO THE AUDIT COMMITTEE, WHICH IS A COMMITTEE OF THE BOARD OF DIRECTORS. THE AUDIT COMMITTEE REVIEWED THE 990 AND PROVIDED INPUT PRIOR TO FILING. THE FINAL DRAFT FORM 990 WAS MADE AVAILABLE TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING BY POSTING THE FORM ON AN INTRANET WEBSITE. ENFORCEMENT OF CONFLICTS POLICY FORM 990, PAGE 6, PART VI, LINE 12C ALL EMPLOYEES, BOARD OF DIRECTORS MEMBERS, BOARD OF REPRESENTATIVES MEMBERS, CHAPTER BOARD MEMBERS, FAMILY SUPPORT GROUP FACILITATORS, AND TNT COACHES ARE REQUIRED TO REVIEW THE CONFLICT OF INTEREST POLICY ON AN ANNUAL BASIS AND SUBMIT A SIGNED FORM ACKNOWLEDGING THAT THEY HAVE REVIEWED THE POLICY AND DISCLOSED ANY CONFLICTS OF INTEREST. ALL FORMS ARE COLLECTED AND THE AUDIT COMMITTEE REVIEWS ANY FORMS DISCLOSING A POSSIBLE CONFLICT OF INTEREST AND DETERMINES WHETHER OR NOT A CONFLICT EXISTS. COMPENSATION PROCESS FOR TOP OFFICIAL FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE, COMPRISED OF INDEPENDENT MEMBERS OF THE BOARD OF DIRECTORS, REVIEWS AND MONITORS THE CHIEF EXECUTIVE OFFICER'S PERFORMANCE AND COMPENSATION. THE COMMITTEE OBTAINED A SURVEY OF OTHER NOT-FOR-PROFIT ORGANIZATIONS' COMPENSATION RANGES AND SET THE CHIEF EXECUTIVE'S SALARY COMMENSURATELY. THE REVIEW WAS DOCUMENTED IN THE EXECUTIVE COMMITTEE'S MINUTES. COMPENSATION PROCESS FOR OFFICERS FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE COMMITTEE, COMPRISED OF INDEPENDENT MEMBERS OF THE BOARD OF DIRECTORS, REVIEWED A SURVEY OF OTHER NOT-FOR-PROFIT ORGANIZATIONS' COMPENSATION RANGES AND COMPARED THIS TO THE OTHER OFFICER'S SALARY AND DETERMINED THAT IT WAS APPROPRIATE. THE REVIEW WAS DOCUMENTED IN THE EXECUTIVE COMMITTEE'S MINUTES. STATES WHERE COPY OF RETURN IS FILED FORM 990, PAGE 6, PART VI, LINE 17 ALASKA, ARKANSAS, ARIZONA, CALIFORNIA, CONNECTICUT, DELAWARE, FLORIDA, GEORGIA, ILLINOIS, INDIANA, KANSAS, KENTUCKY, LOUISIANA, MASSACHUSETTS, MARYLAND, MAINE, MICHIGAN, MINNESOTA, MISSOURI, MISSISSIPPI, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEVADA, NEW YORK, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, PUERTO RICO, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, UTAH, VIRGINIA, WASHINGTON, WISCONSIN, WEST VIRGINIA GOVERNING DOCUMENTS DISCLOSURE EXPLANATION FORM 990, PAGE 6, PART VI, LINE 19 THE LEUKEMIA & LYMPHOMA SOCIETY, INC. MAKES ITS ANNUAL FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON ITS WEBSITE AT WWW.LLS.ORG. ITS GOVERNING DOCUMENTS ARE MADE AVAILABLE, WHEN CHANGES ARE MADE, AS PART OF THE 990 AVAILABLE FOR PUBLIC INSPECTION. ANY IDENTIFIED CONFLICTS OF INTEREST ARE DISCLOSED IN THE 990. STATES WITH GAMING OPERATIONS SCHEDULE G, PAGE 2, PART III, LINE 9 CALIFORNIA, CONNECTICUT, FLORIDA, LOUISIANA, MARYLAND, MICHIGAN, MINNESOTA, NEW YORK, OHIO, PENNSYLVANIA, RHODE ISLAND, TEXAS, WISCONSIN, ARIZONA, GEORGIA, MASSACHUSETTS, DIST OF COLUMBIA, NEW JERSEY, NEVADA, VIRGINIA, WASHINGTON GROUP EXEMPTION RELATIONSHIPS SCHEDULE R SCHEDULE R, PART II, COLUMN B - THE LEUKEMIA & LYMPHOMA SOCIETY OF CANADA CARRIES OUT THE SAME PRIMARY ACTIVITIES AS THE LEUKEMIA & LYMPHOMA SOCIETY,INC., IN CANADA. THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH PROGRAMS,INC. AND THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH FOUNDATION SUPPORT THE ACTIVITIES OF THE LEUKEMIA & LYMPHOMA SOCIETY, INC. ADDITIONAL INFORMATION SCHEDULE O PART IV, LINE 12 - THE AUDITED FINANCIAL STATEMENTS FOR THE LEUKEMIA & LYMPHOMA SOCIETY, INC. INCLUDE THE LEUKEMIA & LYMPHOMA SOCIETY OF CANADA, THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH PROGRAMS, INC., AND THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH FOUNDATION IN ADDITION TO LLS. SCHEDULE G, PART I, LINE 2B - LLS USED INFOCISION, HAINES & CO., AND THOMPSON HABIB DENISON FOR ITS NATIONAL COMMUNITY CAMPAIGN AND DIRECT MAIL PROGRAMS.THESE PROGRAMS GENERATED GROSS RECEIPTS OF 29,088,073 DURING FISCAL YEAR 2010. LLS USED DIRECT PRINT COMMUNICATIONS, PARADYSZ MATERA, AND PIDI FOR ALL OF ITS OTHER FUNDRAISING EVENTS. PART VII, SECTION B, LINE 1 - THE VENDORS INCLUDED HERE ARE USED FOR THE NATIONAL COMMUNITY CAMPAIGN AND DIRECT MAIL PROGRAMS. MSP IS A PRINTING COMPANY,PARADYZ MATERA PROVIDES ADDRESS LISTS, INFOCISION DOES TELEMARKETING, AND DIRECT PRINT COMMUNICATIONS PROVIDES PRINTING AND MAILING SERVICES. AT LEAST THREE BIDS ARE OBTAINED FOR THESE SERVICES ON AN ANNUAL BASIS. THE LLS OF CANADA 804-2 LANSING SQUARE TORONTO CA M2J4P8 SCHED O CA NA THE LLS RESEARCH PROGRAMS INC 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 133470494 SCHED O DE 501 11B NA THE LLS RESEARCH FOUNDATION 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 133709252 SCHED O DE 501 11B NA false false true true false false false false false false false false true true false false false false THE LEUKEMIA & LYMPHOMA SOCIETY D 210113 OF CANADA