2011-11-10T14:27:40-06:00 2011-06-30 HOFFMAN STEWART & SCHMIDT PC 4900 MEADOWS ROAD STE 200 LAKE OSWEGO OR 970353295 990 2010-07-01 930571472 NATIONAL PSORIASIS FOUNDATION NATI 5032447404 6600 SW 92ND AVE NO 300 PORTLAND OR 972237195 RANDY BERANEK 5032447404 2011-11-01 1 ROBERT M PRILL 5032205900 2010 2016-02-24 21:20:13Z RANDY BERANEK 6600 SW 92ND AVE NO 300 PORTLAND OR 972237195 7257539 0 X WWW.PSORIASIS.ORG X 1968 OR TO FIND A CURE FOR PSORIASIS AND PSORIATIC ARTHRITIS AND TO ELIMINATE THEIR DEVASTATING EFFECTS THROUGH RESEARCH, ADVOCACY AND EDUCATION. 15 15 48 7821 699842 0 5509700 6190828 666947 872398 39045 82299 7618 -97470 6223310 7048055 1018000 1152121 0 0 2597601 3037359 0 0 1093643 2839555 2741528 6455156 6931008 -231846 117047 5982234 6276884 466502 500879 5515732 5776005 X TO FIND A CURE FOR PSORIASIS AND PSORIATIC ARTHRITIS AND TO ELIMINATE THEIR DEVASTATING EFFECTS THROUGH RESEARCH, ADVOCACY AND EDUCATION. 0 0 1513148 PUBLIC EDUCATION: PROGRAMS WHICH EDUCATE THE PUBLIC ABOUT THE CAUSES, TREATMENTS, AND DIAGNOSIS OF PSORIASIS, INCLUDES THE FOUNDATION'S BASIC INFORMATION AND REFERRAL PROGRAM, EDUCATIONAL BOOKLETS, INTERNET WEBSITE, NATIONAL CONFERENCE AND COMMUNITY EDUCATION MEETINGS. 1769755 1152121 RESEARCH: PROGRAMS INCLUDE AWARDS AND GRANTS MADE TO INSTITUTIONS CONDUCTING PSORIASIS RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS, SUPPORT OF THE FOUNDATION'S SCIENTIFIC MEETINGS, AND ADVOCACY ON RESEARCH ISSUES. 857372 ADVOCACY AND GOVERNMENT RELATIONS: COMMUNITY-BASED PROGRAMS, INCLUDING THE FOUNDATION'S MEDICAL OFFICE AND COMMUNITY LITERATURE PROGRAM, INSURANCE ADVOCACY AND GOVERNMENT AFFAIRS. 806358 PATIENT SERVICES: THE FOUNDATION'S PATIENT SERVICES INCLUDE THE PSORIASIS NETWORK GROUPS (SUPPORT GROUPS), ONLINE PHYSICIAN FINDER, AND INDIVIDUAL ASSISTANCE. 492321 162349 PROFESSIONAL EDUCATION: PROGRAMS DESIGNED TO IMPROVE THE DELIVERY OF PSORIASIS CARE BY HEALTH PROFESSIONALS. THE FOUNDATION'S PROGRAMS INCLUDE PSORIASIS FORUM NEWSLETTER AND EXHIBITS AT PROFESSIONAL CONVENTIONS. 1298679 162349 5438954 1 1 0 1 0 0 0 0 1 1 0 0 0 0 0 1 0 0 0 1 0 1 0 1 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 30 0 48 1 1 1 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X BETTE DRAKE 5032447404 6600 SW 92ND AVE STE 300 PORTLAND OR 97223 DANIEL E FARRINGTON 1.00 X X 0 0 0 KRISTA KELLOGG 1.00 X X 0 0 0 MARK S LILLIE 1.00 X X 0 0 0 CHIP NEWTON 1.00 X X 0 0 0 ERIC KIMBLE 1.00 X X 0 0 0 RICHARD SEIDEN 1.00 X X 0 0 0 COLBY EVANS MD 1.00 X 0 0 0 KATHLEEN GALLANT 1.00 X 0 0 0 LAWRENCE GREEN MD 1.00 X 0 0 0 HOLLY FIELDS KRAFSUR 1.00 X 0 0 0 SARAH KURTS 1.00 X 0 0 0 MIKE LAUB 1.00 X 0 0 0 MARK LEBWOHL MD 1.00 X 0 0 0 PETE REDDING 1.00 X 0 0 0 TERRI THEISEN 1.00 X 0 0 0 RANDY BERANEK 40.00 X 235080 0 17036 WILLIAM CARDMON 40.00 X 201788 0 15786 BRUCE BEBO JR 40.00 X 102238 0 11808 SHEILA RITTENBERG 40.00 X 104798 0 11622 643904 0 56252 4 0 1 0 DRINKER BIDDLE REATH LLP ONE LOGAN SQUARE STE 2000 PHILADELPHIA PA 19103 CONSULTING 183723 GENETIC ALLIANCE 4301 CONNECTICUT AVE NW SUITE 404 WASHINGTON DC 20854 BIOBANK 109410 2 63511 1314104 4813213 6190828 ADVERTISING INCOME 541800 699842 699842 SAMPLE FEES 711300 90055 90055 FEES FROM SURVEY PANEL 561000 55000 55000 EDUCATION CONFERENCES 611710 27501 27501 872398 82130 82130 100000 99831 169 169 169 0 1314104 87263 -87263 -87263 12183 22390 -10207 -10207 7048055 162349 699842 -4964 1002121 1002121 150000 150000 237921 180599 14974 42348 2227296 1690664 140185 396447 89658 68113 5663 15882 275691 209427 17409 48855 206793 156970 13016 36807 24497 19498 1351 3648 206804 206804 740490 544415 52032 144043 354463 192729 16665 145069 380876 275177 42358 63341 275923 166810 44578 64535 334549 289498 43009 2042 22660 17194 1420 4046 35011 26566 2194 6251 PRINTING 349234 231688 2000 115546 DUES & SUBSCRIPTIONS 11567 7100 1557 2910 OTHER 5454 3581 1873 6931008 5438954 398411 1093643 X 853891 657885 0 196006 2517980 2141289 742625 1109457 146662 213850 41184 20186 103818 176533 616889 564715 70839 52174 2359126 2563395 5982234 6276884 366502 476786 100000 24093 466502 500879 X 4089459 4285183 1426273 1490822 5515732 5776005 5982234 6276884 X 117047 143226 X X 0 1 1 X 0 X 4458874 3929185 4497080 5509700 6190828 24585667 4458874 3929185 4497080 5509700 6190828 24585667 8334001 16251666 150050 230259 112826 73409 82130 648674 25234341 1443234 0.64400 0.68890 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 13135 443861 456996 6474012 6931008 496550 124138 0 0 334641 407047 472758 496550 1710996 2566494 330200 374716 347625 456996 1509537 83660 101762 118190 124138 427750 641625 8126 11521 11906 13135 44688 2193590 288450 202725 105885 2578880 431146 1749437 13007 2193590 428946 3259 1059 431146 1.00000 0 0 616889 564715 52174 52174 7048055 6931008 117047 143226 143226 260273 7213671 143226 22390 165616 7048055 0 7048055 6953398 22390 22390 6931008 0 6931008 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE ENDOWMENT WILL BE USED FOR SUPPORT OF THE ORGANIZATION'S EXEMPT PURPOSE, LIMITED TO 5 PERCENT PERCENT OF PRINCIPAL PER YEAR AS WELL AS SUBJECT TO APPROVAL. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 22,390. PART XIII, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 22,390. 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTS TO RECIPIENTS RESEARCH 150000 0 0 0 150000 0 150000 DISCOVERY GRANT EUROPE (INCLUDING ICELAND AND GREENLAND) 1 50000 CHECK COST TRANSLATIONAL GRANT EUROPE (INCLUDING ICELAND AND GREENLAND) 1 100000 CHECK COST 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: NATIONAL PSORIASIS REQUIRES WRITTEN PROGRESS REPORTS AND A FINANCIAL ACCOUNTING AT THE END OF EACH PROJECT. WALK FOR A CURE 1314104 1314104 25691 1587 59985 1314104 1314104 25691 1587 59985 87263 -87263 1 DISCOVERY GRANTS 6 300000 TRANSLATIONAL GRANTS 3 250000 FELLOWSHIP GRANTS 12 452121 GENERAL GRANTS PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: NATIONAL PSORIASIS REQUIRES WRITTEN PROGRESS REPORTS AND A FINANCIAL ACCOUNTING AT THE END OF THE PROJECT. X X X 0 0 0 0 0 0 0 0 0 RANDY BERANEK 205440 0 29640 0 0 0 10461 0 6575 0 252116 0 0 0 WILLIAM CARDMON 184224 0 17564 0 0 0 9211 0 6575 0 217574 0 0 0 FORM 990, PART VI, SECTION A, LINE 4 THE BYLAWS OF THE ORGANIZATION CHANGED TO REFLECT UPDATED COMMITTEE CHARTERS AND POWERS OF THE BOARD. FORM 990, PART VI, SECTION B, LINE 11 THE CEO AND THE FINANCE DIRECTOR REVIEW THE FORM 990 BEFORE IT IS FILED. IT IS ALSO E-MAILED TO THE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICIES ARE RENEWED QUARTERLY. ANY INDIVIDUAL THAT HAS A CONFLICT REFRAINS FROM DISCUSSING AND VOTING ON RELATED MATTERS. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF TRUSTEES ANNUALLY REVIEWS AND APPROVES THE CEO'S COMPENSATION AND PERFORMANCE. THE FOUNDATION UTILIZES AND INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY TO HAVE COMPARABLE INFORMATION FOR SALARIES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED GAINS ON INVESTMENTS: 143,226. FORM 990, PART XI, LINE 2C: THERE HAS BEEN NO CHANGE IN THE PROCESS FROM THE PRIOR YEAR REGARDING THE OVERSIGHT OF THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS OR THE SELECTION PROCESS OF THE INDEPENDENT ACCOUNTANT THAT AUDIT THE FINANCIAL STATEMENTS OF THE ORGANIZATION.