2011-07-27T15:32:51-05:00 2010-09-30 ALEXANDER ARONSON FINNING & CO PC 21 EAST MAIN STREET WESTBORO MA 01581 990 2009-10-01 043068130 national brain tumor society inc NATI 6179249997 124 watertown street No 2D watertown MA 02472 MICHAEL CORKIN 6179249997 2011-07-20 1 JOHN R BUCKLEY CPA 5083669100 2009 2016-02-24 21:20:13Z N PAUL TONTHAT 124 watertown street No 2D watertown MA 02472 7252310 0 X www.braintumor.org X 1989 MA NATIONAL BRAIN TUMOR SOCIETY, INC. (NBTS) IS A NONPROFIT ORGANIZATION INSPIRING HOPE AND PROVIDING LEADERSHIP WITHIN THE BRAIN TUMOR COMMUNITY. WE EXIST TO FIND A CURE AND IMPROVE THE QUALITY OF LIFE FOR THOSE AFFECTED BY BRAIN TUMORS. WE FUND STRATEGIC RESEARCH, DELIVER SUPPORT SERVICES, AND PROMOTE COLLABORATION. NBTS IS DEDICATED TO HELP: (1) EMPOWER INDIVIDUALS WITH COMPREHENSIVE INFORMATION, ONLINE PROGRAMS, CARING SUPPORT, AND DIRECT CONNECTIONS TO OTHERS GOING THROUGH THE SAME CHALLENGES, (2) FUND TRANSFORMATIVE RESEARCH TO LEAD MORE RAPIDLY TO NEW THERAPIES FOR ADULT AND PEDIATRIC BRAIN TUMORS, AND ULTIMATELY TO CURES, AND (3) ADVOCATE FOR BRAIN TUMOR PATIENTS, FAMILIES, CAREGIVERS, HEALTHCARE PROFESSIONALS, AND RESEARCHERS. 17 17 46 1120 0 0 6836725 6778425 0 360145 1076 -951767 -340584 6245103 6438917 3468697 1007476 0 2723580 3139484 0 815684 2556731 2762209 8749008 6909169 -2503905 -470252 8171988 7571085 2460160 2004266 5711828 5566819 National Brain Tumor Society, inc. is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration. 0 0 3010897 1007476 Research: National Brain Tumor Society, Inc. (NBTS) focuses on funding transformative research for both adult and pediatric brain tumors within north america and does not restrict its funding by city, state, or institution. All research grants go through a rigorous review process in order to fund what will have the fastest and most significant impact in leading more rapidly to new therapies and ultimately to cures. NBTS feels this approach benefits everyone in the greatest way possible because it accelerates momentum in scientific areas where the greatest progress is being made. As results from these advances are made available, they help to further or redirect other findings within the brain tumor research community. 2399366 Patient Services: This program educates and connects members of the brain tumor community, no matter where they are. With online resources and traveling programs, NBTS connects local individuals and support groups to our national network, so that comprehensive information is available to individuals everywhere. NBTS offers the following as a part of this program: (1) Helpful staff available at our Patient Services hotline and email, (2) Comprehensive Website, (3) An online community to join and connect with others through discussion forums, blogs, and groups, (4) Online directories for support groups in all states, (5) Peer-to-peer matching program for patients, survivors, and caregivers, (6) Clinical trials matching database (with EmergingMed), (7) Medical Information Specialist to answer questions about treatments, side effects, changes, and more, (8) Patient and Family Conferences, online caregiver workshops, and webinars, (9) The Essential Guide to Brain Tumors and other helpful publications, (10) Spanish-language resources and information, and (11) A wide array of other resources for those affected by a brain tumor 132514 Public Policy - Having a unified voice is critical in impacting public policies and funding for the brain tumor cause. Focusing on creating legislative, regulatory, and policy change, this program takes both what we know and believe about brain tumor research and the needs of people affected by brain tumors and puts it to work in the public policy arena. 5542777 1 1 0 1 0 0 0 0 1 1 0 1 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 13 0 46 1 0 0 0 0 0 0 0 0 0 0 0 17 17 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MA CA X X X JODY SUNDQUIST 6179249997 124 WATERTOWN STREET WATERTOWN MA 02472 MARY CATHERINE CALISTO 2.00 X 0 0 0 MICHAEL CORKIN 2.00 X 0 0 0 PAUL FISHER MD 2.00 X 0 0 0 BARRY GLASSMAN 2.00 X 0 0 0 ANN GORDON 2.00 X 0 0 0 KEN GREY 2.00 X X 0 0 0 SHEILA KILLEEN 2.00 X 0 0 0 JEFFREY KOLODIN 2.00 X X 0 0 0 STEPHEN T LANCTOT ESQ 2.00 X 0 0 0 SHARON LAMB RN 2.00 X 0 0 0 ERIC LINDQUIST 2.00 X 0 0 0 SUSAN PANNULLO MD 2.00 X 0 0 0 VINCENT PATRONE ESQ 2.00 X 0 0 0 ALISON ROSS ESQ 2.00 X 0 0 0 CORD SCHLOBOHM 2.00 X X 0 0 0 ALLISON JONES THOMSON 2.00 X 0 0 0 FRANCESCA VENEZIA DUNBAR 2.00 X X 0 0 0 Scott Memmott Esq 2.00 X 0 0 0 N PAUL TONTHAT 40.00 X 124729 0 26805 david hurwitz 40.00 X X 142517 0 21911 MARK COLE 40.00 X 128269 0 26656 HArriet Patterson 40.00 X 114231 0 17279 KEITH LAMPMAN 40.00 X 92846 0 21739 509746 0 92651 4 0 1 0 Accountability Advertising 1475 N Broadway Ste 281 Walnut Creek CA 94596 advertising 135894 FILCO EVENTS 605 South First Street San jose CA 951132809 Event management 133750 2 5171267 1607158 26478 6778425 274679 274679 199206 445772 27037 -246566 -27037 -273603 -273603 0 5171267 340584 -340584 -340584 6438917 0 0 -339508 908416 908416 99060 99060 383510 230106 115053 38351 2288546 1710196 197567 380783 58935 43903 5523 9509 217761 159000 23222 35539 190732 139652 21395 29685 44351 5347 39004 27365 27365 12628 12628 222521 202519 13880 6122 153733 153733 657262 527899 30962 98401 306415 242864 21877 41674 426850 315038 9551 102261 57457 57365 92 135080 105287 11488 18305 56478 41572 6227 8679 SPECIAL EVENT 359147 358994 153 WEBSITE 190538 180606 9932 DUES AND SUBSCRIPTIONS 36562 32049 1596 2917 MISCELLANEOUS 33776 1121 8074 24581 TRAINING AND RECRUITING 22744 12314 5143 5287 19302 15736 3566 6909169 5542777 550708 815684 1678097 319152 1340779 1348511 46500 255450 80354 83612 111679 278490 779382 431781 304250 347601 4589561 4802179 20768 136090 8171988 7571085 586919 705762 1490180 580074 339217 718308 43844 122 2460160 2004266 X 5166050 4914731 249124 355434 296654 296654 5711828 5566819 8171988 7571085 X 0 1 1 X 0 X 3321828 5788550 5215596 6836725 6778425 27941124 3321828 5788550 5215596 6836725 6778425 27941124 161521 27779603 176202 264811 262197 360145 274679 1338034 82720 44964 8233 8894 144811 29423969 0.94410 0.93960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 17189 2796 19985 5542777 5562762 428138 107035 0 0 428138 428138 642207 19985 19985 107035 107035 160553 17189 17189 308473 5845 11819 302499 314763 12219 18509 308473 1.00000 0 0 113627 54219 59408 665755 377562 288193 347601 FISCAL AGENT PAYABLE 122 122 12628 Part V, Line 4: Description of Intended Use of Endowment Funds: The Society has permanently restricted net assets in which the principal and any current contributions are permanently restricted. The balance as of September 30, 2010 was invested in bond funds. Income and appreciation earned on the permanently restricted net assets are restricted to support the costs of producing and distributing The Essential Guide to Brain Tumors. 1 North America 0 0 Grants to Recipients Located in Region ReSEARCH 99060 0 0 99060 North America RESEARCH 99060 CHECK DISBURSEMENT FAIR MARKET VALUe 1 Procedure for Monitoring Grants Outside the U.S.: Schedule F, Part I, Line 2: The National Brain Tumor Society, iNC.'s (NBTS) research grant application review is a two-step process built on standards set by the National Institutes of Health. Letters of Intent (LoI) are submitted electronically and immediately undergo an administrative review to ensure that application guidelines are met. Members of the NBTS Scientific Advisory Council (SAC), led by the Chair and Vice Chair, oversee the review process for each NBTS grant program. Two reviewers are assigned to each application: a Primary Reviewer and Secondary Reviewer. Careful consideration is made to prevent conflict of interest between the reviewers and the applicants. Reviewers are responsible for scoring the application based on scientific merit and presenting the project during the review teleconferences. The review conference is comprised of all members of the SAC, key members of the Research Committee, and senior research staff members. The SAC Chair facilitates project presentations (made by the reviewers) and the ensuing discussion among SAC members. During this review, those reviewers who are recognized as having a conflict of interest with the applicant and/or the project are asked to disconnect from the call. They do not participate in the discussion, nor are they permitted to submit a score. At the end of the discussion, all SAC members (who do not have a recognized conflict of interest) assign the LOI a collective, final score. When discussion concludes, the final scores are reviewed. With these scores, the SAC determines the LOIs that will be invited to submit a full application. The scoring and discussion process (during a second teleconference) of full applications follows the phases of the LOI review. The Research Committee of the NBTS Board of Directors, in consultation with senior research staff, reviews the SAC recommendations, discusses the financial considerations of each, and determines if the research furthers NBTS's research portfolio. The Research Committee then presents their findings to the full NBTS Board of Directors for the final vote. Selected Research Grant Awards are formally announced and distributed at the NBTS Annual Meeting in the fall of each year. Walk - race for hope - D.C. 1140741 1140741 66936 walk - race for hope - PA 748386 748386 67665 9 2562238 2562238 215760 4451365 4451365 350361 350361 -350361 1 memorial sloan-kettering cancer center - anna m kennedy phd 1275 york avenue new york NY 10065 131924236 100000 Fair Market Value Research ohio state university - mariano viapiano phd 154 w 12th avenue columbus OH 43210 316401599 99395 Fair Market Value Research university of minnesota - david largaespada phd 420 delaware street se minneapolis MI 55455 416007513 191347 Fair Market Value Research university of california - james waschek phd 3501 s figueroa street los angeles CA 90007 956006143 150000 Fair Market Value Research st jude children's research hospital - suzanne baker phd 262 danny thomas place memphis TN 38105 620646012 150000 Fair Market Value Research AANSCNS section on Tumors 5550 meadowbrook drive rolling meadows IL 60008 521660107 501 (C)(6) 50000 Fair Market Value Research dana farber institute 44 binney street boston MA 02115 042263040 150000 Fair Market Value Research american association for cancer research 615 chestnut street philadelphia PA 19106 236251648 501 (C)(3) 20000 Fair Market Value Research TOcagen 3030 bunker hill Street suite 230 san diego CA 92109 261243872 100000 Fair Market Value research philanthropic initiative 160 federal street floor 8 boston MA 02110 043060549 501 (C)(3) 100000 Fair Market Value research stanford university - samira guccione phd 450 serra mall stanford CA 94305 941156365 501 (C)(3) -202326 Fair Market Value Reversal of Grant previously granted in FY 2008 RESEARCH 3 8 Procedure for Monitoring Grants in the U.S.: Part I, Line 2: Schedule I, Part I, Line 2: The National Brain Tumor Society, iNC.'s (NBTS) research grant application review is a two-step process built on standards set by the National Institutes of Health. Letters of Intent (LoI) are submitted electronically and immediately undergo an administrative review to ensure that application guidelines are met. Members of the NBTS Scientific Advisory Council (SAC), led by the Chair and Vice Chair, oversee the review process for each NBTS grant program. Two reviewers are assigned to each application: a Primary Reviewer and Secondary Reviewer. Careful consideration is made to prevent conflict of interest between the reviewers and the applicants. Reviewers are responsible for scoring the application based on scientific merit and presenting the project during the review teleconferences. The review conference is comprised of all members of the SAC, key members of the Research Committee, and senior research staff members. The SAC Chair facilitates project presentations (made by the reviewers) and the ensuing discussion among SAC members. During this review, those reviewers who are recognized as having a conflict of interest with the applicant and/or the project are asked to disconnect from the call. They do not participate in the discussion, nor are they permitted to submit a score. At the end of the discussion, all SAC members (who do not have a recognized conflict of interest) assign the LOI a collective, final score. When discussion concludes, the final scores are reviewed. With these scores, the SAC determines the LOIs that will be invited to submit a full application. The scoring and discussion process (during a second teleconference) of full applications follows the phases of the LOI review. The Research Committee of the NBTS Board of Directors, in consultation with senior research staff, reviews the SAC recommendations, discusses the financial considerations of each, and determines if the research furthers NBTS's research portfolio. The Research Committee then presents their findings to the full NBTS Board of Directors for the final vote. Selected Research Grant Awards are formally announced and distributed at the NBTS Annual Meeting in the fall of each year. X X X X 0 0 0 0 0 0 0 0 0 N PAUL TONTHAT 124729 0 0 0 0 0 0 0 26805 0 151534 0 0 0 david hurwitz 142517 0 0 0 0 0 0 0 21911 0 164428 0 0 0 MARK COLE 128269 0 0 0 0 0 0 0 26656 0 154925 0 0 0 X 20 14250 X silent auction items 98 12228 0 1 0 Form 990, Part VI, Section B, line 11 A COPY OF THE FEDERAL FORM 990 AND MASSACHUSETTS FORM PC is EMAILED TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. Form 990, Part VI, Section B, line 12c the board requires that all members conduct an annual review for any conflicts of interest and should any arise, that they be disclosed to the Board and Management. THE ETHICS COMMITTEE REVIEWS THIS EACH YEAR. Form 990, Part VI, Section B, line 15 The co-chairs of the board of directors, in conjunction with the Executive Committee, determine the executive director's salary. In order to determine his salary, comparability figures were provided to the Executive Committee and Co-Chairs of the Board, which represented comparable positions in scope, responsibility, size of organization and budget, and similar industry. The salary deliberation was made by the Co-Chairs in conjunction with the Chair of the HR/Compensation Committee. In regards to other officers and key employees - the H.R. manager reviews comparable data for job responsibilities and reviews with the Executive Director to verify compensation. Form 990, Part VI, Section C, line 19 The financial statements are available on NBTS' website. All other documents are available upon request. Form 990, Part XI, Line 2c: OVERSIGHT OF AUDIT The audit committee is responsible for oversight and selection of the independent auditors. THE KELLY HEINZ-GRUNDER BRAIN TUMOR FOUNDATION INC 300 WATER STREET SUITE 103 WILMINTON DE 19801 550887286 Brain Tumor awareness and research DE 501(c)(3) Line 9 NATIONAL BRAIN TUMOR SOCIETY INC 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0