2011-07-26T12:22:38-05:00 2010-12-31 ARGY WILTSE & ROBINSON PC 8405 GREENSBORO DRIVE 7TH FLOOR MCLEAN VA 22102 990 2010-01-01 131930701 CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS CYST 3019514422 6931 ARLINGTON ROAD BETHESDA MD 20814 ROBERT J BEALL PHD 2011-07-23 7038930600 2010 2016-02-24 21:20:13Z ROBERT J BEALL PHD 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 250179596 false X WWW.CFF.ORG X 1955 DE THE MISSION IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. 17 16 308 250000 0 0 94548345 106799244 17000938 21411864 -38516232 5617212 744699 639501 73777750 134467821 78204458 21487961 0 0 22968489 24796813 0 0 10029667 20146198 21688722 121319145 67973496 -47541395 66494325 169126881 221040934 43054165 32747225 126072716 188293709 X THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION, A NONPROFIT DONOR SUPPORTED ORGANIZATION, IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. A LIFE SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF NEARLY 30,000 CHILDREN AND YOUNG ADULTS IN THE U.S. CURRENTLY, THERE IS NO CURE. false false 31896940 20891238 1616348 Medical Programs - Since 1955, the Cystic Fibrosis Foundation has been dedicated to curing and controlling cystic fibrosis (CF). The treatment and care protocols developed by the CF Foundation are helping tens of thousands of people with the disease live longer, healthier lives. To support its mission, the Foundation funds and accredits a nationwide network of 110 care centers. The care center network provides the best care for people with CF and has been recognized by the National Institutes of Health as a model of care for a chronic disease. -Cayston, a new inhaled antibiotic developed by Gilead Sciences, Inc., was approved in 2010 by the FDA. This was the first drug to progress completely through CFFT's Therapeutics Development Program and it offers an antibiotic alternative for CF patients who battle recurrent lung infections and often develop resistance to existing antibiotics. -Thanks in large part to the Foundation, in 2010, all 50 states and the District of Columbia began requiring that all newborns be screened for cystic fibrosis. In 2005, only five states required newborn screening. This progress is critically important because early diagnosis allows for early treatment, which leads to better overall health. The median predicted age of survival for a person with CF is in the mid-30s. More than 45 percent of people with CF are age 18 or older. -Medical programs consist of approximately 330 grants and other costs to support scientific studies/investigations and cystic fibrosis centers. Approximately 197 grants totaling $11.6 million were awarded to cystic fibrosis care centers serving approximately 24,000 patients. 9482058 596723 8921267 Cystic Fibrosis Foundation Pharmacy, LLC (CFFP) provides program management services to Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) and program management services and licensing to Cystic Fibrosis Services, Inc. (CFS). It provides availability and access to cystic fibrosis medications, as well as assistance with the complex insurance issues faced in obtaining these medications. CFFP provides personalized service, patient advocacy, patient education and reimbursement support to the CF community. In 2010, CFFP served 9,150 patients. CFFP fulfilled 80,229 orders to CF patients under manufacturer programs to assist patients in need. CFFP staff assisted CF patients with 176,505 prescriptions in 2010 by filing primary, secondary and tertiary insurance claims, as needed. Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) responded to 9,480 calls for assistance and provided $596,723 in patient assistance grants to 696 CF patients in need during 2010. 8795940 0 0 Public and Professional Information and Education - to broaden its reach and to support its mission, the CF Foundation has programs designed to improve the knowledge of CF patients and their families, medical professionals and the general public regarding the disease. In 2010, there were 26 publications, 11 webcasts and 24 videos produced and made available for patients and their families and medical professionals, and the general public. Year-round conferences provide updates for CF researchers, physicians and allied health professionals and opportunities for collaboration on future CF research projects and treatment/care efforts. In 2010, nearly 2 million unique visitors came to the organization's website. 2485924 0 0 52660862 true true false true false false false false false true true false true false false false true false false true true false false false false false true true true false false false false false false false false false false false false true true true false false false true 166 0 true 308 true false false false false false false false false false true false X 17 16 false false false false false false false true true false true true true true true true true true true true false AZ AR CA CO CT FL GA IL IN KS KY MD MA MI MN MS NH NJ NM NY ND OH OK OR PA RI SC TN UT VA WA WV WI X X X ROBERT J BEALL PHD 3019514422 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 X Amy S Weinberg 3.0 X 0 0 0 Barry M Gump 3.0 X 0 0 0 Catherine C McLoud 3.0 X 0 0 0 Chad T Moore 3.0 X 0 0 0 Charles J Thayer 3.0 X 0 0 0 David A Mount 3.0 X 0 0 0 Gary B Sabin 3.0 X 0 0 0 J Taylor Crandall 3.0 X 0 0 0 KC Bryan White 3.0 X 0 0 0 Paul W Whetsell 3.0 X 0 0 0 Richard J Gray 3.0 X 0 0 0 Richard L Dandurand 3.0 X 0 0 0 Robert S Kaplan 3.0 X 0 0 0 Steven Shak MD 3.0 X 0 0 0 Susan L Hook 3.0 X 0 0 0 Theodore J Torphy PhD 3.0 X 0 0 0 Robert J Beall PhD 34.0 X X 403094 198548 239406 C Richard Mattingly 50.0 X 427271 0 172429 Preston W Campbell MD 34.0 X 278976 140934 157898 Vera H Twigg 50.0 X 273807 0 82369 Daniel Klein 50.0 X 202479 0 23164 Ann Palmer 50.0 X 199614 0 34563 David McLoughlin 50.0 X 208853 0 45817 Gregory August 50.0 X 179978 0 41268 Glen Goldmark 50.0 X 176282 0 34330 Amy DeMaria 50.0 X 175994 0 24704 Maureen Fraser 50.0 X 163765 0 32542 2690113 339482 888490 11 false true false ICS CORPORATION 2225 RICHMOND ST PHILADELPHIA PA 19125 MAILSHOP 1612213 DIAMONDBACK DIRECT 844 RITCHIE HWY SEVERNA PARK MD 21146 MAILSHOP 1087635 HUB LABELS 18223 SHAWLEY DRIVE HAGERSTOWN MD 21740 PRINTING 1064775 RMI DIRECT MARKETING 42 OLD RIDGEWAY RD DANBURY CT 06810 LIST MANAGEMENT 603656 CENTERPLATE 700 14TH ST DENVER CO 80202 EVENT CATERING 493835 33 90875118 15924126 106799244 SCIENTIFIC CONFERENCE 611600 1616348 1616348 PROGRAM MANAGEMENT FEES 541900 7344991 7344991 CALL CENTER 541900 1576276 1576276 LICENSE FEES 900003 10874249 10874249 21411864 2676228 2676228 0 171894 171894 118652759 115711775 2940984 2940984 2940984 0 0 0 LIST RENTAL 533110 467607 467607 467607 134467821 10537615 17130962 20885838 20885838 596723 596723 5400 5400 0 3480415 2556735 510437 413243 0 17189270 12627344 2520976 2040950 899349 660667 131898 106784 1869019 1372993 274110 221916 1358760 1015201 175554 168005 0 418245 335784 82461 0 177810 58991 118819 0 45600 45600 0 0 0 101164 0 101164 0 2349407 1533403 0 816004 10996 6593 2028 2375 1385665 1216906 95540 73219 2763447 2119331 208244 435872 0 1459323 1134555 204654 120114 640974 551840 27977 61157 0 2383462 2335003 18509 29950 0 0 469209 411782 30288 27139 378346 301152 29778 47416 DIRECT MAIL PRINTING 3758425 1149326 0 2609099 DIRECT MAIL POSTAGE 3354197 1025713 0 2328484 TRAINING 365661 270118 45001 50542 MAILING LIST RENTAL 622384 190325 0 432059 QUALITY IMPROVEMENT TRAINING 149283 149283 0 0 855124 104256 705529 45339 67973496 52660862 5282967 10029667 X 9824693 3004390 0 6820303 12351611 0 13681118 10129208 24734094 23195345 2664184 3394223 413890 513317 1424848 1074652 6977144 5023094 2052042 1954050 83584449 99508241 21265585 37241095 6955060 44030803 169126881 221040934 7876059 10639429 18280778 19417980 1566466 2689816 15330862 0 43054165 32747225 X 100674842 165901802 22579133 19046213 2818741 3345694 126072716 188293709 169126881 221040934 X 66494325 -4273332 X false true true X false X false false false 112053277 125762419 112573276 94548345 106799244 551736561 112053277 125762419 112573276 94548345 106799244 551736561 551736561 4731799 9254984 5292496 2946628 2848122 25074029 0 0 1916 0 0 1916 1140889 1086167 998418 636827 467607 4329908 581142414 60258909 0.94940 0.94639 X THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATIVE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. PROGRAM MANAGEMENT FEES REPRESENT CHARGES FOR THE MANAGEMENT OF OPERATIONS PROVIDED BY CYSTIC FIBROSIS FOUNDATION PHARMACY, LLC (CFFP)(A DISREGARDED ENTITY OF THE ORGANIZATION) TO CYSTIC FIBROSIS SERVICES, INC. (A SUBSIDIARY OF CFFP). LICENSE FEES ARE PAID BY CYSTIC FIBROSIS SERVICES, INC. TO CFFP, LLC, FOR PROMOTION OF THE CFS PHARMACY, FEATURING ON THE WEBSITE, USE OF PATIENT EDUCATION AND COMMUNICATION MATERIALS, USE OF ORGANIZATION NAME, LOGO AND TRADEMARK, ETC. CF'S SOLE ACTIVITY IS TO OPERATE AND MANAGE A SPECIALTY PHARMACY THAT SELLS CYSTIC FIBROSIS RELATED PRESCRIPTION PHARMACEUTICALS, RELATED DURABLE MEDICAL EQUIPMENT AND NON-PRESCRIPTION CYSTIC FIBROSIS RELATED VITAMINS AND SUPPLEMENTS. CFS SERVES PATIENTS WHO HAVE BEEN DIAGNOSED WITH CYSTIC FIBROSIS. THIS REVENUE IS NOT TAXABLE BECAUSE THE ORGANIZATION RECEIVED A PRIVATE LETTER RULING DETERMINING THAT CFS'S ACTIVITIES WERE RELATED TO THE ORGANIZATION'S EXEMPT PURPOSE. OTHER INCOME INCLUDES MAILING LIST RENTAL REVENUE RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 11250 245773 257023 67716473 67973496 1000000 250000 1000000 1000000 1000000 1000000 4000000 6000000 124713 150679 165973 257023 698388 250000 250000 250000 250000 1000000 1500000 16500 14000 14000 11250 55750 777830 403975 373855 6199314 4619119 1580195 1954050 OTHER INVESTMENT FUNDS 7492504 F MARKETABLE ALT. INV. FUNDS 26630169 F INTEREST IN PERPETUAL TRUSTS 3118422 F 37241095 INTERCOMPANY RECEIVABLE 39368519 INVESTMENT IN SUBSIDIARY -5393313 OTHER ASSETS 55597 LOAN TO SUBSIDIARY 10000000 44030803 FIN 48 FOOTNOTE FORM 990, SCHEDULE D, PART X, LINE 2 IN 2009, THE FOUNDATION ADOPTED AUTHORITATIVE GUIDANCE SPECIFIC TO THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. THE ADOPTION DID NOT HAVE A MATERIAL EFFECT ON THE FINANCIAL STATEMENTS. true North America 0 0 Grantmaking NONE 5400 0 0 0 0 5400 5400 North America QUAL IMPROV 5400 CHECK 1 false false false false false false Procedures for monitoring grant funds outside of the U.S. Schedule F, Part I, Line 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. the cf foundation's internal auditors conduct audits on samples of grant expenditure reports by examining supporting records from the sponsored institutions. true Advocate Hope Children's Hospital 4440 West 95th Street Oak Lawn IL 60453 362169147 501c(3) 42726 CF CARE CENTER Albany Medical College Elsmere A-107 Albany NY 12208 141338310 501c(3) 88030 CF CARE CENTER Alfred I DuPont Institute of the Nemours Foundati 1600 Rockland Road Wilmington DE 19899 590634433 501c(3) 186060 CF CARE CENTER All Children's Hospital Dept 9010 PO Box 269 St Petersburg FL 33731 590683252 501c(3) 73830 CF CARE CENTER Arizona Board of Regents University of Arizona Sponsored Projects Services PO Box 31020 Tucson AZ 857223308 742652689 501c(3) 49270 CF CARE CENTER Arkansas Children's Hospital Research Institute I 800 Marshall Street 888 N Euclid Room 510 Little Rock AR 72202 710694931 501c(3) 68340 CF CARE CENTER Asthma and Allergy Specialists PA 411 Billings Road Slot 512-17 Charlotte NC 28211 561913043 C Corp. 38312 CF CARE CENTER Atlantic Health System 100 Madison Avenue Suite 104 Morristown NJ 07962 521958352 501c(3) 66360 CF CARE CENTER Atlantic Health System 100 Madison Avenue Morristown NJ 07962 521958352 501c(3) 27000 ADULT CARE Baylor College of Medicine PO Box 1 Houston TX 77212 741613878 501c(3) 407299 CF CARE CENTER Baylor College of Medicine PO Box 1 Houston TX 77212 741613878 501c(3) 27000 ADULT CARE Baystate Medical Center (95-196) 759 Chestnut Street Springfield MA 01199 042790311 501c(3) 28880 CF CARE CENTER Beth Israel Medical Center 36 Seventh Avenue Suite 509 New York NY 10011 135564934 501c(3) 87740 CF CARE CENTER Board of Trustees Southern Illinois University Division of Pulmonary Medicine Springfield IL 62794 376005961 501c(3) 6390 CF CARE CENTER California Pacific Medical Center Research Institu 2200 Webster Street Room 405 PO Box 19636 San Francisco CA 94115 940562680 501c(3) 16710 CF CARE CENTER CAMC Health Education and Research Institute PO Box 765 Charleston WV 25323 550753754 501c(3) 14360 CF CARE CENTER Carle Clinic Association Department of Pediatrics Urbana IL 61801 371188284 C. Corp. 10598 CF CARE CENTER Case Western Reserve University 10900 Euclid Avenue 602 W University Avenue Cleveland OH 441067015 341018992 501c(3) 42500 RESEARCH Case Western Reserve University 10900 Euclid Avenue Cleveland OH 441067015 341018992 501c(3) 97200 RESEARCH STUDIES Case Western Reserve University 10900 Euclid Avenue Cleveland OH 441067015 341018992 501c(3) 450000 RESEARCH CENTERS Central Florida Pulmonary Group 326 North Mills Avenue Orlando FL 32803 591760017 C Corp. 35570 CF CARE CENTER Children's Healthcare of Atlanta 1001 Johnson Ferry Road North Atlanta GA 30342 582367819 501c(3) 72830 CF CARE CENTER Children's Hospital & Research Center at Oakland 747 52nd Street Oakland CA 94609 940382330 501c(3) 33270 CF CARE CENTER Children's Hospital & Research Center at Oakland 747 52nd Street Oakland CA 94609 940382330 501c(3) 10000 RESEARCH STUDIES Children's Hospital and Regional Medical Center 4800 Sand Point Way NE Seattle WA 981050371 910564748 501c(3) 83850 CF CARE CENTER Children's Hospital and Regional Medical Center 4800 Sand Point Way NE Seattle WA 981050371 910564748 501c(3) 43200 PILOT STUDIES Children's Hospital Central California 9300 Valley Childrens Place Madera CA 93638 941294954 501c(3) 46750 CF CARE CENTER Children's Hospital Corporation 300 Longwood Ave Boston MA 021155737 042774441 501c(3) 163148 TRAINING Children's Hospital Corporation 300 Longwood Ave Boston MA 021155737 042774441 501c(3) 215017 CF CARE CENTER Children's Hospital Corporation 300 Longwood Ave Boston MA 021155737 042774441 501c(3) 42500 RESEARCH Children's Hospital Corporation 300 Longwood Ave Boston MA 021155737 042774441 501c(3) 27000 ADULT CARE Children's Hospital Foundation at Westchester Medi Pediatric Pulmonology Valhalla NY 10595 133940462 501c(3) 65010 CF CARE CENTER Children's Hospital Medical Center Akron One Perkins Square Munger Pavilion Room 106 Akron OH 443081062 340714357 501c(3) 102550 CF CARE CENTER Children's Hospital Medical Center Akron One Perkins Square Akron OH 443081062 340714357 501c(3) 54000 ADULT CARE Children's Hospital Medical Center Cincinnati Research Accounting Cincinnati OH 45229 310833936 501c(3) 48000 TRAINING Children's Hospital Medical Center Cincinnati Research Accounting 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 95430 CF CARE CENTER Children's Hospital Medical Center Cincinnati Research Accounting 3333 Burnet Avenue Cincinnati OH 45229 310833936 501c(3) 333000 RESEARCH CENTERS Children's Hospital of Michigan 3663 Woodward Ave S Ste 200 3333 Burnet Avenue Detroit MI 48201 381357994 501c(3) 74860 CF CARE CENTER Children's Hospital Los Angeles Research Institute Los Angeles CA 90027 951690977 501c(3) 78740 CF CARE CENTER Children's Lung Specialists 3838 Meadows Lane 4650 Sunset Blvd Las Vegas NV 89107 880271963 501c(3) 71030 CF CARE CENTER Children's Medical Center One Childrens Plaza Dayton OH 454041815 310672132 501c(3) 76230 CF CARE CENTER Children's Memorial Hospital 2300 Childrens Plaza - Box 205 Chicago IL 60614 362170833 501c(3) 48000 TRAINING Children's Memorial Hospital 2300 Childrens Plaza - Box 205 Chicago IL 60614 362170833 501c(3) 108334 CF CARE CENTER Children's Memorial Hospital 2300 Childrens Plaza - Box 205 Chicago IL 60614 362170833 501c(3) 27000 QUALITY IMPROVEMENT Children's Memorial Hospital 2300 Childrens Plaza - Box 205 Chicago IL 60614 362170833 501c(3) 43200 PILOT STUDIES Children's Mercy Hospital 2401 Gillham Road Kansas City MO 64108 440605373 501c(3) 108790 CF CARE CENTER Children's National Medical Center 111 Michigan Avenue NW Washington DC 20010 521654453 501c(3) 79640 CF CARE CENTER Children's National Medical Center 111 Michigan Avenue NW Washington DC 20010 521654453 501c(3) 7406 RESEARCH Children's Respiratory Center 58 Bear Drive Greenville SC 29605 570971539 C Corp. 26960 CF CARE CENTER Children's Specialty Group PLLC PO Box 11049 Norfolk VA 23517 541871633 PLLC 65240 CF CARE CENTER Christus Santa Rosa Healthcare 333 North Santa Rosa San Antonio TX 78207 741109665 501c(3) 78600 CF CARE CENTER Clinical Practices of the University of Pennsylvan The University of Pennsylvania Heal Philadelphia PA 19104 231352685 501c(3) 78241 CF CARE CENTER Clinical Practices of the University of Pennsylvan The University of Pennsylvania Heal Philadelphia PA 19104 231352685 501c(3) 10960 RESEARCH Clinical Practices of the University of Pennsylvan The University of Pennsylvania Heal Philadelphia PA 19104 231352685 501c(3) 306000 RESEARCH CENTERS Connecticut Children's Medical Center 282 Washington Street Hartford CT 06106 060646755 501c(3) 46329 CF CARE CENTER Connecticut Children's Medical Center 282 Washington Street Hartford CT 06106 060646755 501c(3) 32109 QUALITY IMPROVEMENT COOK CHILDREN'S MEDICAL CENTER 801 Seventh Avenue Ft Worth TX 76104 752051646 501c(3) 108840 CF CARE CENTER Daughters of Charing Health Services of Austin 4900 Mueller Blvd Austin TX 78723 741109643 501c(3) 54730 CF CARE CENTER Drexel University College of Medicine 3201 Arch St Suite 100 Philadelphia PA 191291191 232979433 501c(3) 90110 CF CARE CENTER Drexel University College of Medicine 3201 Arch St Suite 100 Philadelphia PA 191291191 232979433 501c(3) 27000 ADULT CARE Duke University Medical Center Office of Sponsored Programs Durham NC 27710 560532129 501c(3) 49750 TRAINING Duke University Medical Center Office of Sponsored Programs Box 104025 Durham NC 27710 560532129 501c(3) 62360 CF CARE CENTER East Tennessee Children's Hospital Association I 2100 Clinch Avenue 310 Box 104025 Knoxville TN 37916 626002604 501c(3) 68260 CF CARE CENTER Eastern Maine Medical Center 417 State Street Bangor ME 04401 010211501 501c(3) 29960 CF CARE CENTER Emory University 1380 South Oxford Road Suite 305 Atlanta GA 30322 580566256 501c(3) 185600 CF CARE CENTER Emory University 1380 South Oxford Road Atlanta GA 30322 580566256 501c(3) 27000 QUALITY IMPROVEMENT Emory University 1380 South Oxford Road Atlanta GA 30322 580566256 501c(3) 20250 ADULT CARE Fairfax Neonatal Associates PC dbaPediatric Lung 2730-B Prosperity Avenue Fairfax VA 22031 541110106 C Corp. 20878 CF CARE CENTER Fletcher Allen Health Care 111 Colchester Ave Burlington VT 05401 030219309 501c(3) 66210 CF CARE CENTER Geisinger Medical Center Pediatric Allergy Immunology Pul Danville PA 17822 236291113 501c(3) 46390 CF CARE CENTER Good Samaritan Hospital 1000 Montauk Highway 100 N Academy Drive New York NY 11795 111888924 501c(3) 11050 CF CARE CENTER Gundersen Lutheran Medical Foundation 1900 South Avenue La Crosse WI 54601 391249705 501c(3) 13500 CF CARE CENTER Hartford Hospital Department of Medicine Hartford CT 06102 060646668 501c(3) 30441 CF CARE CENTER Henry M Jackson Foundation for the advancement of 1404 Rockville Pike Suite 600 80 Seymour Street Rockville MD 20852 521317896 501c(3) 38505 CF CARE CENTER Indiana University (Indianapolis) Indiana University Research and Spo Indianapolis IN 462025167 356001673 501c(3) 97750 TRAINING Indiana University (Indianapolis) Indiana University Research and Spo Indianapolis IN 462025167 356001673 501c(3) 189040 CF CARE CENTER Iowa Health Foundation 1440 Ingersoll Avenue Des Moines IA 50309 421467682 501c(3) 42680 CF CARE CENTER Kaiser Foundation Hospitals Center for Health Res 3800 North Interstate Avenue Portland OR 97227 911105628 501c(3) 20336 CF CARE CENTER Kaiser Foundation Research Institute 1800 Harrison Street OAKLAND CA 94612 941105628 501c(3) 119500 CF CARE CENTER Kaleida Health 219 Bryant Street 16th floor Buffalo NY 14209 161533232 501c(3) 80400 CF CARE CENTER Kosair Children's Hospital - CF Center PO Box 35070 Louisville KY 402325070 611028725 501c(3) 47860 CF CARE CENTER Landon Pediatric Foundation 3160 Loma Vista Road Ventura CA 93003 931097216 501c(3) 22620 CF CARE CENTER Lee Memorial Health System Foundation Inc 9800 S HealthPark Dr Ft Myers FL 339083630 650645343 501c(3) 23320 CF CARE CENTER Loma Linda University Medical Center Coleman Pavilion Loma Linda CA 92350 330672915 501c(3) 47530 CF CARE CENTER Long Island Jewish Medical Center Finance Department PO Box 2000 Westbury NY 11590 112241326 501c(3) 29788 CF CARE CENTER Loyola University of Chicago 2160 S First Avenue 972 Brushhollow Road Maywood IL 60153 361408475 501c(3) 39450 CF CARE CENTER LSUMC - Shreveport P O Box 33932 Shreveport LA 71130 720702002 501c(3) 68140 CF CARE CENTER Lutheran Hospital of Indiana 7950 West Jefferson Boulevard FT Wayne IN 46804 351963748 LP 25360 CF CARE CENTER Maine Medical Center 22 Bramhall Street Portland ME 04102 010238552 501c(3) 76590 CF CARE CENTER Marshfield Clinic Research Foundation 1000 North Oak Avenue Marshfield WI 54449 390452970 501c(3) 12008 CF CARE CENTER Mary Bridge Children's Foundation 311 South L Street Tacoma WA 98405 943030039 501c(3) 33290 CF CARE CENTER Medical College of Georgia PO box 945552 Mailstop B1-OC Atlanta GA 303945552 586002053 501c(3) 75790 CF CARE CENTER Medical University of South Carolina PO Box 997 Charleston SC 29402 576000722 501c(3) 77320 CF CARE CENTER Medical University of South Carolina PO Box 997 Charleston SC 29402 576000722 501c(3) 27000 ADULT CARE Memorial Medical Center Foundation 2801 Atlantic Avenue Long Beach CA 90806 956105984 501c(3) 80790 CF CARE CENTER Memorial Medical Center Foundation 2801 Atlantic Avenue Long Beach CA 90806 956105984 501c(3) 23000 ADULT CARE Miami Children's Hospital MOB 203 Miami FL 33155 590638499 501c(3) 26580 CF CARE CENTER Michigan State University 301 Administration Bldg 3200 SW 60th Court East Lansing MI 488241046 386005984 501c(3) 55514 CF CARE CENTER Mission Healthcare Foundation Inc 980 Hendersonville Road Asheville NC 28803 561881331 501c(3) 14304 CF CARE CENTER Monmouth Medical Center Foundation 300 Second Avenue Suite C Long Branch NJ 07740 222456079 501c(3) 55410 CF CARE CENTER Monmouth Medical Center Foundation 300 Second Avenue Long Branch NJ 07740 222456079 501c(3) 27000 ADULT CARE National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 84960 CF CARE CENTER National Jewish Medical and Research Center 1400 Jackson Street Denver CO 80206 742044647 501c(3) 91000 RESEARCH North Suburban Pulmonary Research and Education 8780 W Gold Niles IL 60714 364393617 C Corp. 8000 CF CARE CENTER Northeastern University 360 Huntington Avenue Suite 102 Boston MA 02115 041679980 501c(3) 45800 RESEARCH Northwestern Medical Faculty Foundation Financial Services 405 Lake Hall Chicago IL 60611 363097297 501c(3) 6000 CF CARE CENTER Northwestern University 750 N Lake Shore Drive 680 N Lake Shore Dr Suite 1118 Chicago IL 606113008 362167817 501c(3) 27000 ADULT CARE Norton Hospital Inc PO Box 35070 Rubloff 7th Floor Louisville KY 402325070 610703799 501c(3) 27130 CF CARE CENTER Oregon Health & Sciences University 3181 SW Sam Jackson Park Road L-1 Portland OR 97201 237083114 501c(3) 134164 CF CARE CENTER Oregon Health & Sciences University 3181 SW Sam Jackson Park Road L-1 Portland OR 97201 237083114 501c(3) 25289 QUALITY IMPROVEMENT Oregon Health & Sciences University 3181 SW Sam Jackson Park Road L-1 Portland OR 97201 237083114 501c(3) 42500 RESEARCH Oregon Health & Sciences University 3181 SW Sam Jackson Park Road L-1 Portland OR 97201 237083114 501c(3) 97200 RESEARCH STUDIES Oregon Health & Sciences University 3181 SW Sam Jackson Park Road L-1 Portland OR 97201 237083114 501c(3) 27000 ADULT CARE Pennsylvania State University College of Medicine Hershey PA 17033 246000376 501c(3) 103470 CF CARE CENTER Phoenix Children's Hospital 1300 North 12th Street Office of Research Affairs H138 Phoenix AZ 85006 860422559 501c(3) 123640 CF CARE CENTER Providence Alaska Medical Center 3200 Providence Drive Anchorage AK 995196604 920016429 501c(3) 24840 CF CARE CENTER Providence Physician Service 101 W 8th Ave PO Box 196604 Spokane WA 99204 911216033 C Corp. 56760 CF CARE CENTER Regents of the University of Colorado Grants Contracts Aurora CO 800450508 846000555 501c(3) 129798 TRAINING Rhode Island Hospital 593 Eddy Street F428 Fitzsimons Building 500 Providence RI 02903 050258954 501c(3) 53110 CF CARE CENTER Rosalind Franklin University of Medicine and Scien Green Bay Rd North Chicago IL 60064 362181973 501c(3) 197387 RESEARCH STUDIES Rush-Presbyterian-St Luke's Medical Center 1725 West Harrison Suite 718 Chicago IL 60612 362174823 501c(3) 36950 CF CARE CENTER Saint Barnabas Medical Center Pediatric Pulmonary Division Livingston NJ 07039 221494440 501c(3) 19290 CF CARE CENTER Saint Francis Medical Center 530 NE Glen Oak Avenue 200 S Orange Avenue Peoria IL 61637 370662569 501c(3) 47970 CF CARE CENTER Saint Joseph's Hospital and Medical Center 703 Main Street Paterson NJ 07503 221487602 501c(3) 16410 CF CARE CENTER Samaritan Medical Center Child Adolescent Health Services Watertown NY 13601 150533577 501c(3) 7120 CF CARE CENTER Sanford Children's Specialty Clinic 1305 W 18th Street 513 Washington Street Sioux Falls SD 571175039 460447693 501c(3) 56010 CF CARE CENTER South Broward Hospital District Joe DiMaggios Childrens Hospital Hollywood FL 33321 596014973 501c(3) 42800 CF CARE CENTER Spectrum Health Downtown Campus Cystic Fibrosis Clinic Grand Rapids MI 49503 382752328 501c(3) 99490 CF CARE CENTER St Alexius Medical Center PO Box 1658 100 Michigan Street NE Bismarck ND 58502 450226711 501c(3) 30040 CF CARE CENTER St Joseph's Regional Medical Center 720 East Cedar Street South Bend IN 46617 351568821 501c(3) 20910 CF CARE CENTER St Louis University 3500 Lindell Blvd Suite 440 St Louis MO 63103 430654872 501c(3) 76786 CF CARE CENTER St Luke's Regional Medical Center 100 East Idaho Boise ID 83712 820161600 501c(3) 38950 CF CARE CENTER Stanford University 651 Serra Street Suite 220 Suite 200 Stanford CA 943056215 941156365 501c(3) 52250 TRAINING Stanford University 651 Serra Street Suite 220 Mail Code 5402 Stanford CA 943056215 941156365 501c(3) 122060 CF CARE CENTER Stanford University 651 Serra Street Suite 220 Mail Code 5402 Stanford CA 943056215 941156365 501c(3) 97200 RESEARCH STUDIES Stanford University 651 Serra Street Suite 220 Mail Code 5402 Stanford CA 943056215 941156365 501c(3) 27000 ADULT CARE Sutter Medical Center Sacramento 5609 J Street Suite C Mail Code 5402 Sacramento CA 95819 941156621 501c(3) 47260 CF CARE CENTER TC Thompson Children's Hospital 910 Blackford Street Chattanooga TN 37403 626000101 501c(3) 28170 CF CARE CENTER Tenet St Mary's Inc Cystic Fibrosis Center PO Box 24620 West Palm Beach FL 33407 752932830 C Corp. 36980 CF CARE CENTER The Children's Hospital Association 13123 East 16th Avenue B321 901 45th Street Aurora CO 80045 840166760 501c(3) 188740 CF CARE CENTER The Children's Hospital at Scott & White 2401 South 31st Street Temple TX 76508 741166904 501c(3) 13000 CF CARE CENTER The Children's Hospital of Philadelphia 3516 Civic Center Blvd Philadelphia PA 191044318 231352166 501c(3) 78748 CF CARE CENTER The Curators of the University of Missouri Office of Sponsored Program Adminis Columbia MO 65211 436003859 501c(3) 57604 CF CARE CENTER The Curators of the University of Missouri Office of Sponsored Program Adminis 310 Jesse Hall Columbia MO 65211 436003859 501c(3) 43600 RESEARCH The Curators of the University of Missouri Office of Sponsored Program Adminis 310 Jesse Hall Columbia MO 65211 436003859 501c(3) 27000 ADULT CARE The Feinstein Institute for Medical Research 350 Community Drive 310 Jesse Hall Manhasset NY 11030 112673595 501c(3) 27000 QUALITY IMPROVEMENT The General Hospital Corporation (aka Massachus Research Management Boston MA 021142554 042697983 501c(3) 166971 TRAINING The General Hospital Corporation (aka Massachus Research Management 50 Staniford Street Suite 1001 Boston MA 021142554 042697983 501c(3) 88380 CF CARE CENTER The Hitchcock Foundation One Medical Center Drive 50 Staniford Street Suite 1001 Lebanon NH 03756 020222139 501c(3) 85430 CF CARE CENTER The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 197550 CF CARE CENTER The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 89750 RESEARCH The Johns Hopkins University 600 N Wolfe Street Park 316 Baltimore MD 21205 520595110 501c(3) 414000 RESEARCH CENTERS The Medical College of Wisconsin 8701 Watertown Plk Rd Milwaukee WI 53226 390806261 501c(3) 125230 CF CARE CENTER The Ohio State University Research Foundation 1960 Kenny Road Columbus OH 432101063 316401599 501c(3) 97200 RESEARCH STUDIES The President and Fellows of Harvard College Holyoke Center Suite 600 Cambridge MA 02138 042103580 501c(3) 45800 RESEARCH The Rector and Visitors of the University of Virgi PO Box 400195 1350 Massachusetts Ave Charlottesville VA 22904 546001796 501c(3) 108492 CF CARE CENTER The Rector and Visitors of the University of Virgi PO Box 400195 Charlottesville VA 22904 546001796 501c(3) 42500 RESEARCH The Rector and Visitors of the University of Virgi PO Box 400195 Charlottesville VA 22904 546001796 501c(3) 182112 RESEARCH STUDIES The Regents of the University of California Davis Cashiers Office 1200 Dutton Hall Davis CA 95616 956036494 501c(3) 67118 CF CARE CENTER The Regents of the University of California Davis Cashiers Office 1200 Dutton Hall One Shields Avenue Davis CA 95616 956036494 501c(3) 25388 ADULT CARE The Regents of the University of California Los A UCLA Office of Contract and Grant A One Shields Avenue Los Angeles CA 900241406 956006143 501c(3) 43200 PILOT STUDIES The Regents of the University of California San D Office of Post Award Financial Serv 10920 Wilshire Blvd Suite 200 La Jolla CA 920930954 956006144 501c(3) 101592 CF CARE CENTER The Regents of the University of California San D Office of Post Award Financial Serv 9500 Gilman Drive 0954 La Jolla CA 920930954 956006144 501c(3) 27000 ADULT CARE The Regents of the University of California San F UCSF Office of Sponsored Research 9500 Gilman Drive 0954 San Francisco CA 941430962 946036493 501c(3) 48000 TRAINING The Regents of the University of California San F UCSF Office of Sponsored Research 3333 California Street Suite 315 San Francisco CA 941430962 946036493 501c(3) 71080 CF CARE CENTER The Regents of the University of California San F UCSF Office of Sponsored Research 3333 California Street Suite 315 San Francisco CA 941430962 946036493 501c(3) 414000 RESEARCH CENTERS The Regents of the University of California San F UCSF Office of Sponsored Research 3333 California Street Suite 315 San Francisco CA 941430962 946036493 501c(3) 27000 ADULT CARE The Regents of the University of Michigan 3003 South State Street Room 3089 3333 California Street Suite 315 Ann Arbor MI 481091274 386006309 501c(3) 189200 CF CARE CENTER The Regents of the University of Minnesota Sponsored Projects Administration Minneapolis MN 554552070 416007513 501c(3) 49197 TRAINING The Regents of the University of Minnesota Sponsored Projects Administration 200 Oak St SE Minneapolis MN 554552070 416007513 501c(3) 296640 CF CARE CENTER The Research Institute at Nationwide Children's H Huntington National Bank 200 Oak St SE Columbus OH 43260 316056230 501c(3) 182140 CF CARE CENTER The Research Foundation of SUNY P O Box 9 Dept 4656 / Ref 413407 Albany NY 122010009 141368361 501c(3) 122950 CF CARE CENTER The Research Foundation of SUNY P O Box 9 Albany NY 122010009 141368361 501c(3) 27000 ADULT CARE The Tampa General Hospital Foundation PO Box 1289 Tampa FL 33601 237354477 501c(3) 48910 CF CARE CENTER The Trustees of Columbia University in the City of 351 Engineering Terrace New York NY 10027 135598093 501c(3) 49750 TRAINING The Trustees of Columbia University in the City of 351 Engineering Terrace New York NY 10027 135598093 501c(3) 119050 CF CARE CENTER The University of Alabama at Birmingham AB 990 Birmingham AL 352940109 636005396 501c(3) 49662 TRAINING The University of Alabama at Birmingham AB 990 1530 3rd Avenue S Birmingham AL 352940109 636005396 501c(3) 150950 CF CARE CENTER The University of Alabama at Birmingham AB 990 1530 3rd Avenue S Birmingham AL 352940109 636005396 501c(3) 27000 QUALITY IMPROVEMENT The University of Alabama at Birmingham AB 990 1530 3rd Avenue S Birmingham AL 352940109 636005396 501c(3) 414000 RESEARCH CENTERS The University of Chicago 5801 S Ellis Avenue 1530 3rd Avenue S Chicago IL 60637 362177139 501c(3) 50550 CF CARE CENTER The University of North Carolina at Chapel Hill North Carolina State Treasurer Chapel Hill NC 275991350 566001393 501c(3) 236094 CF CARE CENTER The University of North Carolina at Chapel Hill North Carolina State Treasurer 300 Bynum Hall Chapel Hill NC 275991350 566001393 501c(3) 27000 QUALITY IMPROVEMENT The University of North Carolina at Chapel Hill North Carolina State Treasurer 300 Bynum Hall Chapel Hill NC 275991350 566001393 501c(3) 87956 RESEARCH The University of North Carolina at Chapel Hill North Carolina State Treasurer 300 Bynum Hall Chapel Hill NC 275991350 566001393 501c(3) 86073 PILOT STUDIES The University of North Carolina at Chapel Hill North Carolina State Treasurer 300 Bynum Hall Chapel Hill NC 275991350 566001393 501c(3) 486000 RESEARCH CENTERS The University of Vermont and State Agricultural C 85 So Prospect Street 300 Bynum Hall Burlington VT 054050160 030179440 501c(3) 68250 TRAINING Toledo Children's Hospital 2142 N Cove Blvd Toledo OH 43606 344428256 501c(3) 76040 CF CARE CENTER Trustees of Boston University 881 Commonwealth Avenue Boston MA 02215 042103547 501c(3) 43200 PILOT STUDIES Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover NH 037551404 020222111 501c(3) 183825 QUALITY IMPROVEMENT Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover NH 037551404 020222111 501c(3) 97200 RESEARCH STUDIES Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover NH 037551404 020222111 501c(3) 43072 PILOT STUDIES Trustees of Dartmouth College 11 Rope Ferry Road 6210 Hanover NH 037551404 020222111 501c(3) 340347 RESEARCH CENTERS Tulane University Medical School 6401 Freret St New Orleans LA 70118 720423889 501c(3) 85460 CF CARE CENTER UMDNJ- Robert Wood Johnson Medical School UMDNJ New Brunswick NJ 08903 221775306 501c(3) 61860 CF CARE CENTER UMDNJ- Robert Wood Johnson Medical School UMDNJ 1 Robert Wood Johnson Place New Brunswick NJ 08903 221775306 501c(3) 27000 ADULT CARE University Hospitals of Cleveland 2074 Abingdon Road 1 Robert Wood Johnson Place Cleveland OH 44106 340714775 501c(3) 154980 CF CARE CENTER University Internal Medicine Associates Inc Cardio-Pulmonary Research Center Cincinnati OH 45326 310896517 501c(3) 46340 CF CARE CENTER University of Arkansas for Medical Sciences 4301 West Markham Street PO Box 670564 Little Rock AR 72205 716046242 501c(3) 38010 CF CARE CENTER University of Arkansas for Medical Sciences 4301 West Markham Street Mail Slot 555 Little Rock AR 72205 716046242 501c(3) 27000 ADULT CARE University of Cincinnati 560 University Hall Mail Slot 555 Cincinnati OH 45221 316000989 501c(3) 99500 TRAINING University of Florida PO Box 115500 Sponsored Programs Accounting Dept Gainesville FL 32611 596002052 501c(3) 85050 CF CARE CENTER University of Iowa Office of Vice President for Resear Iowa City IA 52242 426004813 501c(3) 115080 CF CARE CENTER University of Iowa Office of Vice President for Resear Division of Sponsored Programs Iowa City IA 52242 426004813 501c(3) 27000 QUALITY IMPROVEMENT University of Iowa Office of Vice President for Resear Division of Sponsored Programs Iowa City IA 52242 426004813 501c(3) 68250 TRAINING University of Iowa Office of Vice President for Resear Division of Sponsored Programs Iowa City IA 52242 426004813 501c(3) 91300 RESEARCH University of Iowa Office of Vice President for Resear Division of Sponsored Programs Iowa City IA 52242 426004813 501c(3) 93829 RESEARCH STUDIES University of Iowa Office of Vice President for Resear Division of Sponsored Programs Iowa City IA 52242 426004813 501c(3) 450000 RESEARCH CENTERS University of Kansas Medical Center Research Insti 3901 Rainbow Boulevard Division of Sponsored Programs Kansas City KS 661607702 481108830 501c(3) 51390 CF CARE CENTER University of Kentucky Research Foundation Kentucky CF Clinic J424 Lexington KY 405360284 616033693 501c(3) 99160 CF CARE CENTER University of Massachusetts Medical Center 55 Lake Avenue 740 South Limestone Worcester MA 10655 043167352 501c(3) 51790 CF CARE CENTER University of Miami Pediatric/Pulmonary Division Miami FL 33137 590624458 501c(3) 51290 CF CARE CENTER University of Miami Pediatric/Pulmonary Division 1601 NW 12th Avenue Miami FL 33137 590624458 501c(3) 49646 ADULT CARE University of Mississippi Medical Center 2500 North State Street 1601 NW 12th Avenue Jackson MS 392164505 646008520 501c(3) 51630 CF CARE CENTER University of Nebraska Medical Center Service Building Omaha NE 681987835 470049123 501c(3) 125210 CF CARE CENTER University of Nebraska Medical Center Service Building 985100 Nebraska Medical Center Omaha NE 681987835 470049123 501c(3) 5400 QUALITY IMPROVEMENT University of New Mexico Health Sciences Center Controllers Office 985100 Nebraska Medical Center Albuquerque NM 871315041 856000642 501c(3) 46862 CF CARE CENTER University of Oklahoma Health Sciences Center PO Box 26901 Health Sciences and Services Bldg Oklahoma City OK 73190 736017987 501c(3) 104740 CF CARE CENTER University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 5400 QUALITY IMPROVEMENT University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 128600 RESEARCH University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 450000 RESEARCH CENTERS University of Pittsburgh 350 Thackeray Hall Pittsburgh PA 15260 250965591 501c(3) 27000 ADULT CARE University of Rochester 1325 Mt Hope Avenue Rochester NY 14642 160743209 501c(3) 78910 CF CARE CENTER University of Rochester 1325 Mt Hope Avenue Suite 260 Rochester NY 14642 160743209 501c(3) 27000 ADULT CARE University of South Alabama Admin Bldg 362 Suite 260 Mobile AL 36688 630477348 501c(3) 34750 CF CARE CENTER University of South Carolina Research Foundation 901 Sumter Street Columbia SC 29208 570967350 501c(3) 31941 CF CARE CENTER University of South Florida Department of Pediatrics Suite 501 Tampa FL 33606 593102112 501c(3) 22520 CF CARE CENTER University of Southern California USC Contracts and Grants 17 Davis Boulevard Suite 200 Los Angeles CA 900339002 951642394 501c(3) 42777 CF CARE CENTER University of Southern California USC Contracts and Grants 1540 Alcazar Street Los Angeles CA 900339002 951642394 501c(3) 54000 ADULT CARE University of Tennessee 62 S Dunlap 1540 Alcazar Street Memphis TN 38163 626001636 501c(3) 61210 CF CARE CENTER University of Texas Health Center at Tyler 11937 US Hwy 271 Tyler TX 75708 756001354 501c(3) 18000 CF CARE CENTER University of Utah 406 Park Bldg Salt Lake City UT 84112 876000525 501c(3) 175550 CF CARE CENTER University of Washington Grant Contract Accounting Seattle WA 981056692 916001537 501c(3) 74930 CF CARE CENTER University of Washington Grant Contract Accounting 3917 University Way NE Seattle WA 981056692 916001537 501c(3) 97200 RESEARCH STUDIES University of Washington Grant Contract Accounting 3917 University Way NE Seattle WA 981056692 916001537 501c(3) 378000 RESEARCH CENTERS University of Wisconsin Board of Regents 750 University Avenue 3917 University Way NE Madison WI 53706 396006492 501c(3) 48000 TRAINING University of Wisconsin Board of Regents 750 University Avenue Madison WI 53706 396006492 501c(3) 138462 CF CARE CENTER UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd Dallas TX 753909040 756002868 501c(3) 144220 CF CARE CENTER UT Southwestern Medical Center at Dallas 5323 Harry Hines Blvd Dallas TX 753909040 756002868 501c(3) 92882 RESEARCH STUDIES Vanderbilt University Medical Center PO Box 30195 Nashville TN 372410195 620476822 501c(3) 153980 CF CARE CENTER Via Christi Regional Medical Center CF Clinic 3311 East Murdock Street Wichita KS 67218 481172106 501c(3) 55120 CF CARE CENTER Virginia Commonwealth University Box 2506 - VCU Station Richmond VA 232842506 546001758 501c(3) 59940 CF CARE CENTER Wake Forest University Health Sciences Medical Center Blvd WinstonSalem NC 271571064 223849199 501c(3) 53275 CF CARE CENTER Washington University Campus Box 1034 St Louis MO 631121408 430653611 501c(3) 210095 CF CARE CENTER Wayne State University Grants Contracts Office III 700 Rosedale Avenue Detroit MI 48201 386028425 501c(3) 40790 CF CARE CENTER Weill Medical College of Cornell University Whitney Pavillion Rm W-706 Research and Sponsored Programs New York NY 10021 150532082 501c(3) 43600 RESEARCH West Virginia University Research Corporation West Virginia University 1300 York Avenue Box 62 Morgantown WV 265066001 550665758 501c(3) 56160 CF CARE CENTER Wright State University School of Medicine One Childrens Plaza PO Box 6001 Dayton OH 45404 310732831 501c(3) 27000 ADULT CARE Yale University Cashier Office of the Asst Treasu New Haven CT 065208231 060646973 501c(3) 62000 CF CARE CENTER Yale University Cashier Office of the Asst Treasu PO Box 208231 New Haven CT 065208231 060646973 501c(3) 68250 TRAINING Yale University Cashier Office of the Asst Treasu PO Box 208231 New Haven CT 065208231 060646973 501c(3) 43200 PILOT STUDIES 165 10 PATIENT ASSISTANCE PROGRAM 696 596723 PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGREYS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLEs OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. X X X X X X false true false false false false false false false C Richard Mattingly 345800 0 62006 0 19465 0 149016 0 23413 0 599700 0 62006 0 Robert J Beall PhD 323652 164014 54003 26599 25439 7935 154438 63690 21278 0 578810 262238 54003 26599 Preston W Campbell MD 222712 115272 41046 20217 15218 5445 95170 34498 28230 0 402376 175432 41046 20217 Vera H Twigg 237095 0 25969 0 10743 0 54772 0 27597 0 356176 0 25969 0 Daniel Klein 200635 0 0 0 1844 0 20164 0 3000 0 225643 0 0 0 Ann Palmer 197800 0 0 0 1814 0 19835 0 14728 0 234177 0 0 0 David McLoughlin 208167 0 0 0 686 0 21587 0 24230 0 254670 0 0 0 Gregory August 179592 0 0 0 386 0 18038 0 23230 0 221246 0 0 0 Glen Goldmark 174685 0 0 0 1597 0 17302 0 17028 0 210612 0 0 0 Amy DeMaria 175629 0 0 0 365 0 16952 0 7752 0 200698 0 0 0 Maureen Fraser 162305 0 0 0 1460 0 15727 0 16815 0 196307 0 0 0 SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN PART I, LINE 4B Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. COMPENSATION PART II Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $308,912, 401(k) bonus - $14,740; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $54,003; (B)(iii) Other Reportable Compensation: health insurance benefit - $2,912, automobile allowance - $4,824, other benefits including taxable general organization group term life insurance premiums - $17,703; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefits (6) - $63,650, SERP (3) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $11,932, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $4,346 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $156,754, 401(k) bonus - $7,260; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $26,599; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,434, automobile allowance - $2,376, other benefits including general organization group term life insurance premiums - $4,125; (C) Deferred Compensation: long-term incentive plan benefits (6) - $31,350, SERP (3) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $222,712; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $41,046; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premiums - $4,163, Section 457(b) Plan (5) - $11,055; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefits (6) - $46,855, SERP (4) - $23,187; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $16,905, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $6,325 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $115,272; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $20,217; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,445; (C) Deferred Compensation: long-term incentive plan benefit (6) - $23,077, SERP (4) - $11,421; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $345,800; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $62,006; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $16,500; other benefits including taxable general organization group term life insurance premiums - $2,965; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefit (6) - $70,780, SERP (4) - $53,108; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $15,273, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $5,640 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $237,095; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1)- $25,969; (B)(iii) Other Reportable Compensation: taxable general organization group term life insurance premiums - $1,368, Section 457(b) Plan (5) - $9,375; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefit (6) - $29,644; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,908, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $4,689 (1) This figure represents payment of an award that accrued over a three-year performance period (years 2007-2009), and which was based on achievement of long term performance standards established in advance by the Compensation Committee of the Board. As required, this award was reported as "Deferred Compensation" on prior years' Forms 990 in each year it accrued and therefore (as required by the instructions) is double-reported here. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2010 Plan Year. (3) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to December 31, 2012. C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining age 60. C. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which SERP contribution amounts are determined. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $16,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards related to a 3-year performance period, which ends on 12/31/12, based on achievement of performance objectives established in advance by the Compensation Committee of the Board. The individual must be employed on 12/31/12 to be eligible to receive full payment of the award. As required by the Form 990 instructions, this reported amount is an estimate of the portion of the award that accrued under the Plan by the executive for performance in 2010 but it has not been earned, awarded or paid under the Plan. OTHER PROGRAM SERVICES PART III, LINE 4D (PAGE 2 CORE FORM) Community Services - The Cystic Fibrosis Foundation provides year-round efforts to educate, inform and empower patients and their families about the latest developments in treatment and care. Consists of programs designed to help the general public and cystic fibrosis families in the detection of the disease by providing a referral service and handling inquiries concerning patients. Approximately 25,000 patients were served in 2010, including approximately 911 patients who were newly diagnosed. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 11B (PAGE 6 CORE FORM) The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990 to ensure completeness and accuracy. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. CONFLICT OF INTEREST MONITORING PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM) A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2010 and had no conflicts of interest as defined by the policy. DETERMINING COMPENSATION PART VI, SECTION B, LINE 15A AND 15B (PAGE 6 CORE FORM) The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of assuring the development of the means to cure and control CF and improving the quality of life for those with the disease. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers or positions: President & CEO Executive Vice President & COO Executive Vice President for Medical Affairs Senior Vice President & CFO The process was last undertaken in 2009. PUBLIC INSPECTION PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM) Forms 1023 and 990-T for the Organization are available on its website, CFF.org. The Organization's website provides a link to Guidestar.org for access to Form 990. The Foundation's governing documents (Bylaws and Articles of Incorporation) are available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents is also available on the Foundation's website, www.cff.org. The Board and Officer Conflict of Interest Policy and the audited financial statements are available on the Foundation's website, www.cff.org. OTHER CHANGE IN NET ASSETS FORM 990, PART XI, LINE 5 UNREALIZED GAIN ON INVESTMENTS = 5,228,703 CHANGE IN EQUITY IN SUBSIDIARY (CFS) = -9,502,034 ----------- TOTAL CHANGES IN NET ASSETS -4,273,331 ACCOUNTS IN FOREIGN COUNTRIES FORM 990, PART V, LINE 4B THE FINANCIAL ACCOUNTS IN FOREIGN COUNTRIES THAT THE ORGANIZATION HAS AN INTEREST IN WERE SHARES INVESTMENT MUTUAL FUNDS. HOURS DEVOTED FOR RELATED ORGANIZATION FORM 990 PART VII NAME:Robert J. Beall, Ph.D. TITLE:President & CEO HOURS:23 HOURS DEVOTED FOR RELATED ORGANIZATION FORM 990 PART VII NAME:C. Richard Mattingly TITLE:Exec VP and COO HOURS:10 HOURS DEVOTED FOR RELATED ORGANIZATION FORM 990 PART VII NAME:Preston W. Campbell, MD TITLE:Exec VP of Medical Affairs HOURS:23 HOURS DEVOTED FOR RELATED ORGANIZATION FORM 990 PART VII NAME:Vera H. Twigg TITLE:Sr. VP and CFO HOURS:10 CYSTIC FIBROSIS FOUNDATION PHARMACY LLC 6931 ARLINGTON RD BETHESDA MD 20814 510636432 PROGRAM MGT DE 20090267 14982238 NA cystic fibrosis patient assistance fdn 6931 arlington rd bethesda MD 20814 900350985 patient asst DE 142728 1672655 na cystic fibrosis foundation therapeutics 6931 ARLINGTON RD BETHESDA MD 20814 912059167 RESEARCH MD 501(C)(3) 11A CFF-HQ CYSTIC FIBROSIS FOUNDATION GROUP 6931 ARLINGTON RD BETHESDA MD 20814 136161105 EDUCATION DE 501(C)(3) 7 cfF-hq CYSTIC FIBROSIS SERVICES INC 6931 ARLINGTON RD BETHESDA MD 20814 521850490 PHARMACY MD CFF PHARMACY C 13585954 27829457 1.00000 true false true true false false false false false false true false true true false false false true cystic fibrosis foundation therapeutics C 11352615 CYSTIC FIBROSIS FOUNDATION GROUP C 79522503 CYSTIC FIBROSIS FOUNDATION THERAPEUTICS M 242526 CYSTIC FIBROSIS FOUNDATION THERAPEUTICS N 1684291 CYSTIC FIBROSIS SERVICES INC D 10000000 CYSTIC FIBROSIS SERVICES INC A(I) 57404 CYSTIC FIBROSIS SERVICES INC K 7344991 CYSTIC FIBROSIS SERVICES INC R 10874249 CYSTIC FIBROSIS SERVICES INC B 7200940