2012-12-12T15:28:21-06:00 2012-04-30 131517563 LOEB & TROPER LLP 655 THIRD AVENUE 12TH FLOOR NEW YORK NY 10017 990 2011-05-01 133444882 NATIONAL EATING DISORDERS ASSOCIATION NATI 2125756200 165 WEST 46TH STREET SUITE 402 NEW YORK NY 10036 LYNN S GREFE 2125756200 2012-12-12 1 FREDERICK H ROTHMAN P01275277 2128674000 2011 2016-02-24 21:20:13Z LYNN S GREFE SAME AS C ABOVE NEW YORK NY 10036 2377813 0 X WWW.NATIONALEATINGDISORDERS.ORG X 1987 DE SUPPORTS INDIVIDUALS AND FAMILIES AFFECTED BY EATING DISORDERS, & SERVES AS A CATALYST FOR PREVENTION, CURES AND ACCESS TO QUALITY CARE. 17 17 23 261 0 0 1940350 1850936 134165 197927 4864 11087 -13873 209872 2065506 2269822 8705 13187 0 0 677226 956534 26000 37892 228388 827115 1163427 1539046 2171040 526460 98782 1623031 1842296 122789 243272 1500242 1599024 X THE NATIONAL EATING DISORDERS ASSOCIATION (NEDA) SUPPORTS INDIVIDUALS AND FAMILIES AFFECTED BY EATING DISORDERS AND SERVES AS A CATALYST FOR PREVENTION, CURES AND ACCESS TO QUALITY CARE. 0 1 1672926 13187 197927 THE NEDA INFORMATION AND REFERRAL HELPLINE AND WEBSITE ARE NATIONWIDE, FREE RESOURCES LINKING SUFFERERS AND THEIR LOVED ONES TO VITAL INFORMATION AND SUPPORT AS WELL AS A REFERRAL DATABASE WITH HUNDREDS OF EATING DISORDERS TREATMENT PROFESSIONALS. NEDA PROVIDED 40 HOURS PER WEEK OF LIVE HELPLINE SERVICES THANKS TO A HELPLINE SUPERVISOR AND DOZENS OF TRAINED VOLUNTEERS.THE HELPLINE CHARACTERISTICALLY RECEIVES A SIGNIFICANT INCREASE IN CALL VOLUME DURING NATIONAL EATING DISORDERS AWARENESS WEEK (ANNUAL THE LAST WEEK OF FEBRUARY.)THIS PAST YEAR THE HELPLINE EXPERIENCED THE PREDICTED INCREASE IN CALLS BEGINNING IN JANUARY WITH AN EVEN HIGHER PEAK IN NUMBER OF CALLS IN FEBRUARY THAN IN PREVIOUS YEARS. THIS INCREASE OVER PREVIOUS YEARS IS EASILY UNDERSTOOD AS REFLECTING THE RECORD NUMBER OF PARTICIPANTS IN THE NEDAWARENESS WEEK THIS YEAR. THE WEBSITE PROVIDES FREE TO THE PUBLIC OUR TOOLKITS FOR PARENTS AND EDUCATORS. OUR COACHES AND ATHLETIC TRAINERS TOOLKITS ARE NOW ONLINE. IN ADDITION, OUR WEBSITE LISTS THE MANY EATING DISORDER SPECIALISTS AND TREATMENT PROGRAMS FOR THE REFERRALS.HELD ANNUALLY SINCE 1987, NATIONAL EATING DISORDERS AWARENESS WEEK (NEDAWARENESS WEEK) IS THE LARGEST COLLABORATIVE EATING DISORDERS OUTREACH EFFORT IN THE NATION AND HAS EXPANDED TO MANY COUNTRIES THROUGHOUT THE WORLD. THOUSANDS OF COMMUNITY PARTNERS DISTRIBUTE NEDA'S EDUCATIONAL MATERIALS AND COORDINATE OUTREACH ACTIVITIES THAT ATTRACT PUBLIC AND MEDIA ATTENTION TO THE SEVERITY OF EATING DISORDERS, SIGNS AND SYMPTOMS, AND WHERE TO GO FOR HELP AND RESOURCES. IN 2012, THAT CAMPAIGN REACHED NEARLY 70 MILLION PEOPLE THROUGH EVENTS, VOLUNTEER EDUCATION AND ONLINE SOCIAL MEDIA CAMPAIGNS. THE PROMOTIONAL AND PUBLIC RELATIONS EFFORTS THAT GO TOWARD THIS ANNUAL WEEKS RESULT IN MILLIONS OF MEDIA IMPRESSIONS REPRESENTING OUTREACH TO THE GENERAL PUBLIC.NEDA SERVES AS THE INFORMATION CLEARINGHOUSE FOR THE LATEST AND MOST ACCURATE EATING DISORDERS INFORMATION BY WORKING WITH THE TOP EXPERTS IN THE FIELD TO CREATE AND DISTRIBUTE RESOURCES AND EDUCATIONAL MATERIALS. OUR PARENT, FAMILY & FRIENDS NETWORK IS A FREE RESOURCE THAT PROVIDES SUPPORT TO THOSE WHO HAVE A LOVED ONE STRUGGLING WITH AN EATING DISORDER. THE PFN CONTINUED OUR NEW NEDA NAVIGATORS PROGRAM IN 2011-2012 WITH VOLUNTEERS WHO ARE TRAINED BY EATING DISORDERS PROFESSIONALS AND NEDA STAFF TO BE KNOWLEDGEABLE SOURCE OF INFORMATION, SUPPORT AND GUIDANCE TO THOSE WHO ARE NEW TO THE ILLNESS.WE NOW HAVE 111 ACTIVE NAVIGATORS IN 33 STATES AND 2 CANADIAN PROVINCES. OUR MEDIA WATCHDOG PROGRAM IMPROVES MEDIA MESSAGES ABOUT SIZE, WEIGHT AND BEAUTY. NEDA'S SOLUTIONS THROUGH ADVOCACY AND REFORM (STAR) PROGRAM FIGHTS FOR IMPROVED ACCESS TO THE TREATMENT OF EATING DISORDERS BY EDUCATING THE PUBLIC, LEGISLATORS AND HEALTH CARE PROVIDERS AND BY MOBILIZING MEMBERS, AND FORGING ALLIANCES WITH OTHER GROUPS WHO SHARE OUR VISION. WE ESTABLISHED THE FIRST EVER NATIONAL EATING DISORDERS AWARENESS CAUCUS IN CONGRESS. THE ANNUAL NEDA CONFERENCE PROVIDES AN OPPORTUNITY FOR FAMILY MEMBERS, TREATMENT PROVIDERS, HEALTH EDUCATORS AND EATING DISORDERS ACTIVISTS TO CONNECT AND SHARE INFORMATION THAT CAN BE TRANSFORMED INTO ACTION. THE 2011 CONFERENCE: "REACHING FOR THE STARS: ADVANCING THE PREVENTION AND TREATMENT OF EATING DISORDERS." IT WAS ATTENDED BY 550 PLUS PEOPLE FROM AROUND THE US AND ABROAD.THIS PAST FISCAL YEAR WE WORKED WITH THE AMERICAN MEDICAL ASSOCIATION TO ENCOURAGE THE DEVELOPMENT OF AN ONLINE COURSE TO RECOGNIZE EATING DISORDERS AND TO REFER. WE ALSO DEVELOPED THE MAKING CONNECTIONS MAGAZINE TO BRING MORE INFORMATION TO MORE PEOPLE WITH REAL LIFE STORIES, FINALLY, PROUD2BME.ORG OUR NEW INTERACTIVE YOUTH DRIVEN WEBSITE IS GROWING AND ATTRACTING A MUCH WIDER AUDIENCE THAN EXPECTED. THIS PROGRAM IS DESIGNED FOR THE SUPPORT AND EARLY INTERVENTION FOR BODY IMAGE ISSUES, SELF ESTEEM ETC. 1672926 1 1 0 1 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 16 0 23 1 0 0 0 0 0 1 1 0 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK AR AZ CA CO CT DE FL GA IL KS X X THE ORGANIZATION 2125756200 165 WEST 46TH STREET SUITE 402 NEW YORK NY 10036 ROBERTA KATZ 2.00 X X 0 0 0 RUSSELL MARX 2.00 X X 0 0 0 KIMBERLI MCCALLUM 2.00 X X 0 0 0 ROBBIE MUNN 2.00 X X 0 0 0 DEBORAH BELFATTO 2.00 X 0 0 0 OVIDIO BERMUDEZ 2.00 X 0 0 0 MARY CURRAN 2.00 X 0 0 0 AMY BAKER DENNIS 2.00 X 0 0 0 ELIZABETH FENN 2.00 X 0 0 0 JOHN A BUDDY HOWARD 2.00 X 0 0 0 WALTER KAYE 2.00 X 0 0 0 BOB KOVARIK 2.00 X 0 0 0 PHOEBE MEGNA 2.00 X 0 0 0 DON NIELSON 2.00 X 0 0 0 DOROTHY SPRAGUE 2.00 X 0 0 0 DIANA WILLIAMS 2.00 X 0 0 0 LISA RYAN BURKE 2.00 X 0 0 0 DEEMANA A CHRISTOFF 40.00 X 93050 0 9597 LINDA S GREFE 40.00 X 169575 0 13761 262625 0 23358 1 0 1 0 0 280931 1570005 199717 1850936 REGISTRATION FEES 611710 197927 197927 197927 11087 11087 298950 280931 77930 221020 221020 18913 30061 -11148 -11148 2269822 197927 0 220959 13187 13187 173926 130444 26089 17393 666095 491172 116619 58304 3332 2467 662 203 49076 36315 8343 4418 64105 47437 10898 5770 62 62 26040 26040 72250 72250 37892 37892 217147 199781 10670 6696 101582 101582 198636 141351 8714 48571 86189 63780 14652 7757 76603 56686 13023 6894 50323 50323 208750 202219 1121 5410 49970 36978 8495 4497 FEES 54925 11315 20591 23019 BAD DEBT EXPENSE 200 200 20750 15639 3547 1564 2171040 1672926 269726 228388 3699 25505 899035 1340502 177200 259258 45573 769 26575 24505 15940 28969 303006 140218 204959 162788 250050 0 1623031 1842296 94339 129172 28450 114100 122789 243272 X 1248902 1427961 251340 171063 1500242 1599024 1623031 1842296 98782 0 X X 0 1 1 X 0 X 1444741 1285385 1833023 1880772 1850936 8294857 1444741 1285385 1833023 1880772 1850936 8294857 214757 8080100 5089 2973 1147 1500 11087 21796 114529 144602 23714 143624 221020 647489 8964142 269140 0.90140 0.95900 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 1 0 0 0 0 1 12250 1 60000 0 72250 0 EXPLANATION OF LOBBYING ACTIVITIES: PART II-B, LINE 1: NIXEON PEABODY LLP REPRESENTS NEDA IN CONGRESS. MACAULAY & BURTCH, PC DOES STATE ADVOCACY FOR NEDA. NEDA HAD LOCAL LOBBY DAY AND A BRIEFINGS TO STATE LEGISLATORS AND THE JOINT COMMISSION OF HEALTH IN VIRGINIA 303006 140218 162788 162788 2269822 2171040 98782 98782 2269822 0 2269822 0 2269822 2171040 0 2171040 0 2171040 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: PART X, LINE 2: NEDA HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSTIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PERIODS ENDING APRIL 30, 2009 AND SUBSEQUENT REMAIN SUBJECT TO REVIEW BY APPLICABLE TAXING AUTHORITIES. X X X X X X 1 AFFAIRS EVENT SERVICES 201 MARIN BLVD 1210 JERSEY CITY NJ 07302 NY BENEFIT DINNER 0 577590 15750 561840 AFFAIRS EVENT SERVICES 201 MARIN BLVD 1210 JERSEY CITY NJ 07302 NY WALK 0 116877 22142 94735 694467 37892 656575 AL AK AZ AR CA CO CT DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY NY BENEFIT DINNER 579881 280931 298950 33592 10500 33838 579881 280931 298950 33592 10500 33838 77930 221020 1 UNIVERSITY OF FLORIDA FOUNDATION 686 MUSEUM ROAD GAINESVILLE FL 32604 590974739 9930 AWARD AWARD AWARD 1 AWARDS GIVEN OUT 4 13187 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: NEDA OBTAINS WRITTEN REPORTS FROM THE GRANTEES OF PERFORMANCE RESULTS X X X X 0 0 0 0 0 0 0 0 0 LINDA S GREFE 169575 0 0 0 0 0 4797 0 8964 0 183336 0 0 0 X MSN.COM ADVERTISEMENT FOR NEDA HOMEPAGE 1 90000 FMV X FOOD & BEVERAGES FOR ANNUAL DINNER 1 64000 FMV 0 0 0 METHOD FOR DETERMINING NUMBER OF CONTRIBUTORS: PART I, COLUMN (B): THE ORGANIZATION IS REPORTING THE NUMBER OF CONTRIBUTORS. CHANGES IN PROGRAM SERVICES FORM 990, PART III, LINE 3 WE LAUNCHED OUR DIVERSITY TASK FORCE AND INCORPORATED CHANGES INTO OUR MESSAGING. IN ADDITON, WE DEVELOPED A TASK FORCE AMONG EXPERTS ON THE SUBJECT OF BINGE EATING DISORDER AS IT WILL SOON BE ADDED TO THE NEW DSMV. WE ALSO CREATED THE LOSS SUPPORT NETWORK FOR PEOPLE WHO HAVE LOST A LOVED ONE AND CREATED MONTHLY WEBINARS FOR OUTREACH TO FAMILIES THAT ARE PROVING VERY SUCCESSFUL. FORM 990, PART VI, SECTION B, LINE 11 NEDA PROVIDES A COPY OF THE 990 TO BE FILED WITH THE IRS TO ITS BOARD MEMBERS VIA EMAIL. THE BOARD MEMBERS ARE PROVIDED SUFFICIENT TIME TO REVIEW AND ASK ANY QUESTIONS THEY MAY HAVE. ONCE THE REVIEW OF THE 990 IS PERFORMED BY THE MEMBERS AND ALL THE QUESTIONS HAVE BEEN ANSWERED, THE ORGANIZATION FILES THE 990 WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C BOARD DIRECTORS ARE REQUIRED TO REVIEW AND SIGN OFF ON THE DISCLOSURE OF THE CONFLICT OF THE INTEREST POLICY ON AN ANNUAL BASIS.ANY POTENTIAL CONFLICT OF INTEREST ON THE PART OF ANY PERSON IS DISCLOSED TO THE BOARD OF DIRECTORS AND MADE A MATTER OF RECORD THROUGH AN ANNUAL PROCEDURE AND ALSO WHEN SUCH INDIVIDUAL PROPOSED TO ENGAGE IN ANY ACTION WHICH RAISES THE POSSIBILITY OF A CONFLICT. ANY POTENTIAL CONFLICT OF INTEREST ON THE PART OF A STAFF MEMBER IS DISCLOSED TO THE CEO, WHO MUST TRANSMIT THIS INFORMATION DIRECTLY TO THE BOARD OF DIRECTORS FOR BOARD DISCUSSION AND ACTION. FORM 990, PART VI, SECTION B, LINE 15A THE COMPENSATION FOR THE CURRENT PRESIDENT/CEO WAS ESTABLISHED BY A REPUTABLE NOT-FOR-PROFIT CONSULTANT IN MAY 2003. THE BOARD CHAIR AND EXECUTIVE COMMITTEE OF THE BOARD PERFORM AN ANNUAL REVIEW AND ADJUST SUCH COMPENSATION ACCORDINGLY. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS ARE AVAILABLE TO THE PUBLIC. INDIVIDUALS CAN FIND THE STATEMENTS ON THE GUIDSTAR OR AVAILABLE UPON REQUEST. THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY ARE NOT PUBLICLY AVAILABLE. FINANCIAL STATEMENT AND REPORTING PART XII THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR