2012-11-15T16:08:26-06:00 2011-12-31 CONDON O'MEARA MCGINTY & DONNELLY L ONE BATTERY PARK PLAZA NEW YORK NY 100041405 990 2011-01-01 202014968 CHARLEY'S FUND INC % TRACY SECKLER/THE FUND CHAR 4135280400 635 MAIN STREET SUITE 3 GREAT BARRINGTON MA 01230 BENJAMIN SECKLER 2012-11-15 true 2126617777 2011 2016-02-24 21:20:13Z X BENJAMIN SECKLER MD 635 MAIN STREET SUITE 3 GREAT BARRINGTON MA 01230 1633889 false X WWW.CHARLEYSFUND.ORG X 2004 MA FORMED FOR THE PURPOSE OF RAISING MONEY TO FUND A CURE OR TREATMENT FOR DUCHENNE MUSCULAR DYSTROPHY. 7 3 4 4 0 0 1407549 1580560 0 0 5526 1593 36247 33167 1449322 1615320 533308 259000 0 0 418786 163888 0 0 59663 229247 213863 1181341 636751 267981 978569 3231789 3783996 957471 645646 2274318 3138350 X SEE SCHEDULE O false false 420570 259000 0 DUCHENNE MUSCULAR DYSTROPHY - SEE SCHEDULE O 420570 true true false false false false false false false false true false true false false true true false false false false false false false false false false true false false false false false true false false false false false false false false false true false false false false true 13 0 true 4 true false false false false false true true false false false false X 7 3 true false false false false false false true true false false true true true true true true false true false CA MA NY X TRACY SECKLERTHE FUND 4132984300 38 MAIN STREET STOCKBRIDGE MA 01262 X BENJAMIN SECKLER MD 15.0 X X EARL KRAMER 2.0 X X KATHE KRAMER CHASE 5.0 X KAREN CLIMO 5.0 X X RANDY REIFF 2.0 X TRACY KRAMER SECKLER 2.0 X Ellen Wilner 2.0 X 0 false false false 0 9191 1571369 1580560 0 1593 1593 0 0 0 4550 9191 413 4137 4137 0 47186 18156 29030 29030 0 1615320 29030 5730 259000 259000 0 0 0 0 0 139649 99616 24701 15332 1385 1385 11553 11553 11301 11301 0 18272 18272 27154 27154 0 0 0 67526 35869 12823 18834 0 36761 12882 23879 0 0 7150 6150 1000 3560 1846 1446 268 0 0 30626 30626 0 1647 1647 8089 7739 350 MISCELLANEOUS 13078 13078 636751 420570 156518 59663 13119 -1000 593008 144347 114324 108431 0 0 0 0 0 0 0 0 15888 27555 1926 3623 8861 5725 4783 3136 0 0 0 0 2488241 3497404 0 0 500 500 3231789 3783996 59331 15779 0 0 0 0 0 0 0 0 898140 629867 0 0 0 0 0 0 957471 645646 X 2274318 3138350 0 0 0 0 2274318 3138350 3231789 3783996 X 978569 -114537 X false true true X false X 2983623 3068077 1613439 1407549 1580560 10653248 2983623 3068077 1613439 1407549 1580560 10653248 2798828 7854420 79928 16715 5451 5526 1593 109213 -65 97 -807 0 0 -775 10761686 913743 0.72985 0.61859 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 963 289 674 3843 3322 521 4055 2114 1941 3136 INVESTMENT IN PROSENSA, B.V. 652516 C INVESTMENT IN DMD THERAPIES,LL 748955 C INVESTMENT IN DMD SOLUTIONS,LL 114487 C INVESTMENT IN TCW CATALYST,LLC 998925 C INVESTMENT IN CHARLEY'S FUND 776000 C INVESTMENT IN DART THERAPEUTIC 206521 C 3497404 0 0 1615320 636751 978569 -114537 -114537 864032 1639856 24536 24536 1615320 1615320 661287 24536 24536 636751 636751 OTHER LIABILITIES PART X - LINE 2 As of December 31, 2011, no amounts have been recognized for uncertain income tax positions. The Organization's tax returns for the year 2008 and forward are subject to the usual review by the appropriate taxing authorities. true DARIUS GOES WEST 135 PINE TOPS COURT ATHENS GA 30606 521640403 501(c)(3) 24000 FILM PRODUCTION OF EDUCATIONAL FILM TO RAISE AWARENESS REGARDING DUCHENNE MUSCULAR DYSTROPHY HUGO W MOSER RESEARCH INSTITUTE 707 NORTH BROADWAY BALTIMORE MD 21205 521524967 501(C)(3) 35000 GRANT CINCINNATI CHILDREN'S HOPSITAL MEDICAL CTR (CCHMC) 3333 BURNET AVENUE CINCINNATI OH 45229 501(C)(3) 200000 GRANT 3 GRANT MONITORING SCHEDULE I PART I, LINE 2 ALL GRANTS ARE PROVIDED UNDER CONTRACTS WITH THE GRANT RECIPIENTS. THE CONTRACTS REQUIRE GRANTEES TO MEET CERTAIN EVENT AND PERFORMANCE MILESTONES AND PERIODIC PROGRESS REPORTS TO CHARLEY'S FUND, INC. ARE REQUIRED. THE BOARD OF DIRECTORS REVIEWS ALL CONTRACTS AND PROGRESS REPORTS. EARL KRAMER RESEARCH GRANT X 1200000 629867 false true true 629867 STATEMENT OF PROGRAM SERVICE ACCOMPLISHMENTS PART III - LINE 1 THE PURPOSE OF CHARLEY'S FUND, INC. IS BEING ACHIEVED BY MAKING STRATEGIC GRANTS AND RELATED INVESTMENTS IN TRANSITIONAL RESEARCH (RESEARCH THAT FOCUSES ON MOVING SCIENCE FROM THE LAB INTO HUMAN CLINICAL TRIALS) BEING PERFORMED BY RESEARCHERS, SCIENTISTS AND PHYSICIANS WHO ARE PUSHING THE ENVELOPE OF DUCHENNE MUSCULAR DYSTROPHY TREATMENT. HISTORICALLY, MOST OF THE FUNDS RAISED FOR DUCHENNE HAVE SUBSIDIZED THE TREMENDOUS COST OF CARING FOR CHILDREN WITH THIS BRUTAL DISEASE, NOT RESEARCH TO CURE IT. SEVERAL ESTABLISHED ORGANIZATIONS PROVIDE HELPFUL SERVICES FOR FAMILIES STRUGGLING TO PROVIDE FOR THEIR DMD-AFFLICTED CHILDREN. IN CONTRAST, OUR SOLE MISSION IS TO FUND A CURE OR TREATMENT FOR DUCHENNE. WE INVEST OUR MONEY IN TRANSLATIONAL RESEARCH - RESEARCH THAT FOCUSES ON MOVING SCIENCE FROM THE LAB INTO HUMAN CLINICAL TRIALS. STATEMENT OF PROGRAM SERVICE ACCOMPLISHMENTS PART III - LINE 4A CLINICAL TRIAL AT HUGO MOSER RESEARCH INSTITUTE (KENNEDY KRIEGER INSTITUTE). WE ARE SUPPORTING A CLINICAL TRIAL FOR CHILDREN WITH DMD TO TEST REVATIO, A HEART MEDICATION. CLINICAL TRIAL AT CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER. WE ARE SUPPORTING A CLINICAL TRIAL TO TEST INCREUX, A MUSCLE MEMBRANE STABILIZER. PSYCHOGENICS - TESTING FDA - APPROVED DWGS IN THE MOUSE MODEL FOR DMD. GOVERNANCE, MANAGEMENT, AND DISCLOSURE PART VI, SECTION A. - QUESTION 2 BENJAMIN SECKLER, MD (PRESIDENT), IS HUSBAND TO TRACY KRAMER SECKLER (BOARD MEMBER). EARL KRAMER (TREASURER), IS FATHER TO TRACY KRAMER SECKLER (BOARD MEMBER). KATHE KRAMER CHASE (BOARD MEMBER), AND TRACY KRAMER SECKLER (BOARD MEMBERS), ARE SISTERS. GOVERNANCE, MANAGEMENT, AND DISCLOSURE PART VI, SECTION B. - QUESTION 11B TO REVIEW THE FORM 990, THE DOCUMENT IS DISTRIBUTED BY THE PRESIDENT TO THE BOARD MEMBERS. BOARD MEMBERS ARE ASKED TO REVIEW THE DOCUMENT AND SUBMIT QUESTIONS VIA E-MAIL. GOVERNANCE, MANAGEMENT, AND DISCLOSURE PART VI, SECTION B. - QUESTION 12C ANNUALLY BOARD MEMBERS AND KEY EMPLOYEES ARE REQUIRED TO REVIEW THE POLICY AND CONSENT WITH COMPLYING. GOVERNANCE, MANAGEMENT, AND DISCLOSURE PART VI, SECTION B. - QUESTION 15B THE ORGANIZATION'S CEO AND TOP MANAGEMENT OFFICIALS RECEIVE NO COMPENSATION. SALARIES FOR OTHER EMPLOYEES ARE REVIEWED AND APPROVED BY THE BOARD ANNUALLY. GOVERNANCE, MANAGEMENT, AND DISCLOSURE PART VI, SECTION C. - QUESTION 19 THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, OR FINANCIAL STATEMENTS AVAILABLE TO THE GENERAL PUBLIC. RECONCILIATION OF NET ASSETS PART XI - LINE 5 5. LOSS ON INVESTMENTS IN LIMITED LIABILITY COMPANIES: -114,537. DARIUS GOES WEST INC C/O LOGAN SMALLEY 135 PINE TOPS CT ATHENS GA 30606 262174272 FUNDRAISING GA 501(C)(3) 509(A)(3) NA false DMD THERAPIES LLC 36 MAIN STREET STOCK BRIDGE MA 01262 261371428 INVESTMENT MA NA RELATED -530 748955 false 0 true 0.25000 DMD SOLUTIONS LLC 36 MAIN STREET STOCK BRIDGE MA 01262 271107747 INVESTMENT MA NA RELATED -192 114487 false 0 true 0.25000 TCW CATALYST LLC 2900 THOMAS AVENUE SOUTH APT 2416 MINNEAPOLIS MN 55416 208875302 INVESTMENT MN NA RELATED -237 998925 false 0 false 0.33300 PROSENSA BV INVESTMENT NL NA RELATED 654516 false 0 false 0.03000 CHARLEY'S FUND VENTURES LLC INVESTMENT DE NA RELATED 776000 false 0 true DART therapeutics llc 900600955 INVESTMENT MA NA RELATED -153417 206521 false 0 true 0.50000 false true false false false false false false false false false false false false false false false false DARIUS GOES WEST B 24000 CASH