2012-11-15T13:02:05-06:00 2012-06-30 410746749 CLIFTONLARSONALLEN LLP 2301 VILLAGE DRIVE ST JOSEPH MO 64506 990 2011-07-01 431266906 PKD FOUNDATION PKDF 8169312600 8330 WARD PARKWAY NO 510 KANSAS CITY MO 641142000 RAY SMITH 8169312600 2012-11-15 1 CARLA R LACKEY CPA P00138993 8162328441 2011 2016-02-24 21:20:13Z GARY GODSEY 8330 WARD PARKWAY NO 510 KANSAS CITY MO 641142000 7086498 0 X WWW.PKDCURE.ORG X 1982 MO PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR PKD. 15 15 67 885 0 0 7528329 6838360 42760 223000 -462 295 8076 6480 7578703 7068135 1022748 1425167 0 0 3774383 2547869 0 5417 608476 3511365 2952654 8308496 6931107 -729793 137028 2390354 2409330 716250 598488 1674104 1810842 PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS. 0 0 2903449 1425167 ACCELERATING TREATMENTS TO PATIENTS - THE FOUNDATION'S INTEGRATED RESEARCH AND DEVELOPMENT DEPARTMENT IS FOCUSED ON AN INITIATIVE CALLED ACCELERATING TREATMENTS TO PATIENTS (ATP). THIS INITIATIVE IS TRANSLATIONAL IN SCOPE, MEANING IT IS FOCUSED ON TAKING BASIC SCIENCE AND TURNING IT INTO CLINICAL ADVANCES. EACH PROGRAM WITHIN ATP TOUCHES ONE OF THE FOLLOWING AREAS: NEW DISCOVERIES IN BASIC PKD SCIENCE, THE DEVELOPMENT OF POTENTIAL CLINICAL CANDIDATES THROUGH A DRUG REPURPOSING STRATEGY, DEVELOPMENT OF REGISTRATION ENDPOINTS FOR CLINICAL DEVELOPMENT (PKDOC), SUPPORT OF CLINICAL TRIALS THROUGH EDUCATION AND AWARENESS PROGRAMS, AND SCIENTIFIC MEETING SUPPORT. 1408682 229429 PUBLIC AWARENESS - THE FOUNDATION RAISES AWARENESS OF PKD THROUGH NATIONAL, REGIONAL AND LOCAL PUBLIC RELATIONS AND MARKETING EFFORTS. THE FOUNDATION ALSO EDUCATES THE PKD COMMUNITY THROUGH A QUARTERLY MAGAZINE (PKD PROGRESS), ONLINE BOOKS, WEBINARS, VIDEOS, A FREE MONTHLY ELECTRONIC NEWSLETTER AND THE WEBSITES WWW.PKDCURE.ORG AND WWW.KIDNEYLINK.ORG. AWARENESS IS ALSO GENERATED WITH NATIONAL AND LOCAL LAWMAKERS THROUGH OUR MONTHLY E-PUBLICATION (PKD CHAMPION CONNECTION) AND OUR ANNUAL GOVERNMENTAL ADVOCACY CONFERENCE IN WASHINGTON, D.C. (UNITED ON THE HILL). 1131140 PATIENT EDUCATION AND ENGAGEMENT - THE FOUNDATION PROVIDES EDUCATION AND SUPPORT FOR PATIENTS, FAMILY AND FRIENDS THROUGH 52 VOLUNTEER-LED CHAPTERS IN CITIES ACROSS THE COUNTRY. THESE CHAPTERS WORK TO RAISE AWARENESS AND FUNDS FOR PKD FOUNDATION PROGRAMS VIA EVENTS SUCH AS THE ANNUAL WALK FOR PKD WHICH INVOLVES THOUSANDS OF FAMILIES. THE CHAPTERS ALSO PROVIDE LOCAL OPPORTUNITIES FOR EDUCATION, NETWORKING AND SUPPORT. 5443271 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 15 0 67 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 1 1 AK AL AR AZ CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV X X X RAY SMITH 8169312600 8330 WARD PARKWAY STE 510 KANSAS CITY MO 64114 X BRAZELL BILL 1.00 X 0 0 0 COWLEY BEN MD 1.00 X 0 0 0 HAGGARD MICHAEL 1.00 X 0 0 0 HAZELWOOD BLAISE 1.00 X 0 0 0 HUNT WALTER PHD 1.00 X 0 0 0 LIENHARD JEROME T II 1.00 X 0 0 0 MCCALL JOHN 1.00 X 0 0 0 NELSON RICHARD 1.00 X 0 0 0 PEPPET SCOTT 2.00 X 0 0 0 ROBERTS JULIA 1.00 X 0 0 0 WAXMAN KARYN 1.00 X 0 0 0 WOLFE HILARY 1.00 X 0 0 0 GOODMAN SCOTT 2.00 X X 0 0 0 CONDELLA FRANK 2.00 X X 0 0 0 PARKER STEPHANIE 1.00 X X 0 0 0 GODSEY GARY AS OF 1111 40.00 X 21302 0 2978 SMITH RAY 40.00 X 100032 0 22325 PANETTA JILL PHD 40.00 X 170568 0 20642 LARSON DAN THRU 211 0.00 X 295942 0 19124 587844 0 65069 3 1 1 0 PRECLINOMICS PO BOX 68845 INDIANAPOLIS IN 46268 DRUG REPURPOSING EVALUATION 758046 1 6838360 250851 6838360 CLINICAL AWARENESS 900099 222600 222600 ANNUAL CONFERENCE 900099 400 400 223000 330 330 17802 17837 -35 -35 -35 6955 526 6429 6429 MISCELLANEOUS INCOME 900099 51 51 51 7068135 229429 0 346 1425167 1425167 475317 257756 173280 44281 1534887 947372 333426 254089 69312 42280 16635 10397 313694 196830 67508 49356 154659 93752 36778 24129 14770 9630 482 4658 26000 26000 5417 5417 419175 341219 21190 56766 152005 152005 170604 119402 11848 39354 42130 22057 14261 5812 273101 143814 92983 36304 158982 96718 18513 43751 184181 183157 729 295 322809 302429 3015 17365 18670 14968 2301 1401 EXTERNAL RESEARCH 854363 854363 PATIENT PROGRAMS 217706 217706 BANK CHARGES 57711 57711 DUES, FEES, MEMBERSHIPS 40447 22646 2700 15101 6931107 5443271 879360 608476 X 569634 231425 0 338209 146717 92103 408220 1421974 1297475 611179 28823 2051 24015 23489 105343 127581 282814 233744 56410 49070 350123 55111 2390354 2409330 693845 504343 22405 94145 716250 598488 X -773646 534739 2447750 1276103 1674104 1810842 2390354 2409330 X 137028 -290 X X 0 1 1 X 0 X 8537192 6933636 8359686 7528329 6838361 38197204 8537192 6933636 8359686 7528329 6838361 38197204 2569074 35628130 115304 4735 365 228 330 120962 92860 65914 41751 639 51 201215 38519381 281853 0.92490 0.93430 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS INCOME RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 28917 28917 6902190 6931107 496555 124139 0 0 282814 233744 49070 49070 7068135 6931107 137028 -290 -290 136738 7097278 -290 28907 526 29143 7068135 0 7068135 6960540 28907 526 29433 6931107 0 6931107 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: THE ORGANIZATION CONSIDERED UNCERTAIN TAX POSITIONS UNDER FIN 48 (ASC 740) AND DETERMINED THAT NO LIABILITY FOR UNCERTAIN TAX POSITIONS SHOULD BE RECORDED AS OF JUNE 30, 2012. THEREFORE, THERE IS NO FOOTNOTE REGARDING SUCH LIABILITY IN THE ORGANIZATION'S FINANCIAL STATEMENTS. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD 526. PART XIII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD 526. 1 MAYO CLINIC COLLEGE OF MEDICINE 200 FIRST ST SW PLUMMER 5 ROCHESTER MN 55905 416011702 501(C)(3) 391971 CASH GRANT FOR RESEARCH - VARIOUS PROJECTS INCLUDING DATA EVALUATION RESEARCH PROJECT INDIANA UNIVERSITY SCHOOL OF MEDICINE 635 BARNHILL DR INDIANAPOLIS IN 46202 356001673 501(C)(3) 60000 CASH GRANT FOR RESEARCH CRITICAL PATH INSTITUTE 1730 E RIVER ROAD SUITE 200 TUCSON AZ 85718 201991334 501(C)(3) 591582 CASH PAYMENTS FOR DATA EVALUATION RESEARCH PROJECT EMORY UNIVERSITY 1599 CLIFTON ROAD NE ATLANTA GA 30322 580566256 501(C)(3) 180644 CASH PAYMENTS FOR DATA EVALUATION RESEARCH PROJECT TUFTS MEDICAL CENTER PHYSICIANS ORGANIZATION INC 750 WASHINGTON ST BOSTON MA 02111 042743894 501(C)(3) 89494 CASH PAYMENTS FOR DATA EVALUATION RESEARCH PROJECT UNIVERSITY OF COLORADO DEPARTMENT 238 DENVER CO 809210238 846000555 501(C)(3) 51476 CASH PAYMENTS FOR DATA EVALUATION RESEARCH PROJECTS KUMC RESEARCH INSTITUTE 3901 RAINBOW BLVD KANSAS CITY KS 66160 481108830 501(C)(3) 60000 CASH GRANT FOR RESEARCH 7 0 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: ALL GRANTEES ARE REQUIRED TO SUBMIT AN ANNUAL RESEARCH PROGRESS REPORT AND AN ANNUAL INSTITUTIONAL FINANCIAL STATUS REPORT. MOST GRANTEES ARE ALSO REQUIRED TO SUBMIT INTERIM QUARTERLY PROGRESS REPORTS. X X X 1 0 0 0 0 0 0 0 0 PANETTA JILL PHD 170568 0 0 0 0 0 6800 0 13842 0 191210 0 0 0 LARSON DAN THRU 211 85089 0 0 0 210853 0 1921 0 17203 0 315066 0 0 0 PART I, LINE 4A DAN LARSON RECEIVED SEVERANCE OF $210,853. X 10 22352 FAIR VALUE X EVENT ITEMS 401 82610 FAIR VALUE X ADV/TECH 2 121677 FAIR VALUE X BOARD TRAVEL 30 24213 FAIR VALUE 0 0 1 1 THIRD PARTY USE: PART I, LINE 32B: ORGANIZATION UTILIZES ONGOING BANKING RELATIONSHIPS TO MARKET DONATED SECURITIES. FORM 990, PART VI, SECTION B, LINE 11 PRIOR TO FILING THE 990 FOR PKD FOUNDATION, A DRAFT COPY WILL BE PROVIDED TO THE BOARD OF TRUSTEES FOR REVIEW AND COMMENT. ANY COMMENTS WILL BE ACCUMULATED BY MANAGEMENT AND ADDRESSED ACCORDINGLY. FORM 990, PART VI, SECTION B, LINE 12C MEMBERS OF THE BOARD OF TRUSTEES OF PKD FOUNDATION ARE REQUIRED TO SIGN AN ANNUAL STATEMENT DISCLOSING ANY CONFLICTS OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 A SALARY SURVEY WAS CONDUCTED BY AN INDEPENDENT CONSULTANT. THE SURVEY IS THEN REVIEWED BY THE BOARD OF TRUSTEES. UPON THAT REVIEW, SALARIES ARE COMPARED TO THE RANGES RECOMMENDED FOR EACH POSITION. FOUNDATION MANAGEMENT THEN ACTS TO ENSURE THAT SALARIES ARE WITHIN APPROPRIATE RANGES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON THEIR OWN WEBSITE AND UPON REQUEST. ADDITIONAL EXPLANATION FORM 990, PART VII, SEC. A: JILL PANETTA, PH.D SERVED AS CHIEF SCIENTIFIC OFFICER FOR THE ENTIRE YEAR. SHE ALSO SERVED AS INTERIM PRESIDENT AND CEO FEBRUARY 2011 THROUGH OCTOBER 2011. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED LOSSES ON INVESTMENTS: -290. AUDIT RESPONSIBILITY AND SELECTION OF AN INDEPENDENT ACCOUNTANT: FORM 990, PART XII, LINE 2C: THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOR THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THERE HAS BEEN NO CHANGE IN THIS PROCESS FROM THE PRIOR YEAR. COMPENSATION: FORM 990, PART VII, SEC. A: PKD FOUNDATION CONTRACTS WITH INSPERITY TO PROVIDE CERTAIN EMPLOYEE BENEFITS AND PAYROLL SERVICES. EMPLOYEES ARE CONSIDERED TO BE JOINTLY EMPLOYED BY BOTH PKD FOUNDATION AND INSPERITY. IN ORDER TO COMPLY WITH TRANSPARENCY DIRECTIVES AS A PART OF THE REFORMATTED 990, THE FOUNDATION HAS DECIDED TO REPORT COMPENSATION IN PART VII TO INCLUDE AMOUNTS PAID AND REPORTED ON W-2'S BY INSPERITY.