2012-09-06T17:24:24-05:00 2012-01-31 953001179 WINDES & MCCLAUGHRY ACCT CORP PO BOX 87 LONG BEACH CA 908010087 990 2011-02-01 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSN AMYO 2024078580 1275 K STREET NW NO 1050 WASHINGTON DC 20005 DANIEL M REZNIKOV 2024078580 2012-09-04 1 DONITA M JOSEPH P00286656 5624351191 2011 2016-02-24 21:20:13Z THE ALS ASSOCIATION JANE H GILBERT 1275 K STREET NW NO 1050 WASHINGTON DC 20005 21850929 0 4119 X WWW.ALSA.ORG X 1985 DE TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH. 21 21 63 34 0 0 17744381 19126742 39580 39475 86488 283223 159020 309386 18029469 19758826 3054267 4394391 0 0 4429339 4865099 32721 298692 3307795 6442061 6266025 13958388 15824207 4071081 3934619 17742395 20256339 3854362 2760956 13888033 17495383 LEADS THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 4255049 3815928 RESEARCH PROGRAMS: FUND SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) DISEASE. (55 RESEARCH GRANTS) 4629111 578463 PATIENT & COMMUNITY SERVICES - WE SERVE AS A CLEARING HOUSE FOR ALS SPECIFIC INFORMATION, RESOURCES AND REFERRALS TO PATIENTS, FAMILIES, HEALTH CARE PROFESSIONALS AND THE GENERAL COMMUNITY AT LARGE.(34 CLINICAL MANAGEMENT & ALSA CENTER GRANTS) 1859100 39475 PUBLIC & PROFESSIONAL EDUCATION - TO DEVELOP AWARENESS AND UNDERSTANDING OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND THE WORK OF THE ALS ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS AND SCIENTIFIC COMMUNITIES. 10743260 1 1 0 1 0 0 0 0 0 1 1 0 0 1 0 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 70 0 1 63 1 0 0 0 0 0 1 1 0 0 0 1 0 X 21 21 0 0 1 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 CA AL AZ AK AR CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS NE NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VA WA WV WI X X X JOHN W APPLEGATE 8188809007 27001 AGOURA ROAD SUITE 250 CALABASAS HILLS CA 91301 JAY DAUGHERTY 2.00 X X 0 0 0 ROBIN R GANZERT 2.00 X X 0 0 0 LUIS E LEON 2.00 X X 0 0 0 WILLIAM THOET 2.00 X X 0 0 0 LAWRENCE R BARNETT ESQ 2.00 X 0 0 0 ANDREW T BROPHY 2.00 X 0 0 0 PHYLLIS R BROURMAN 2.00 X 0 0 0 DOUG BUTCHER 2.00 X 0 0 0 DANIEL DEGRANDPRE 2.00 X 0 0 0 CYNTHIA D DOUTHAT 2.00 X 0 0 0 WILSON KRAHNKE 2.00 X 0 0 0 WILLIAM G MATTHEWS 2.00 X 0 0 0 EDMUND G MCCURTAIN II 2.00 X 0 0 0 TIMOTHY O'TOOLE 2.00 X 0 0 0 ELLYN G PHILLIPS 2.00 X 0 0 0 JOHNATHAN ROBERTS 2.00 X 0 0 0 ELIZABETH ROSENBERG 2.00 X 0 0 0 HOWARD B SAFENOWITZ ESQ 2.00 X 0 0 0 STEPHEN H SALTZMAN 2.00 X 0 0 0 WILLIAM D SOFFEL 2.00 X 0 0 0 ALLAN J TOBIN 2.00 X 0 0 0 JANE H GILBERT 38.00 X 265908 0 15342 DANIEL M REZNIKOV 42.00 X 187058 0 6204 KENNETH W NICHOLLS 42.00 X 173164 0 13110 GORDON S LAVIGNE 37.50 X 159966 0 12419 STEVE W GIBSON 64.00 X 162339 0 12802 KAREN L STARLEAF 40.00 X 116625 0 11186 JOHN W APPLEGATE 45.00 X 113274 0 11137 SHARON MATLAND 47.00 X 120684 0 5131 THERESA SORACCO 48.00 X 106399 0 10453 DAVID MOSES 39.00 X 105579 0 10940 1510996 0 108724 11 0 1 0 NNE MARKETING 105 PAUL REVERE RD CONCORD MA 01742 MARKETING 327125 LOST HILLS OFFICE PARTNERS LLC 26901 AGOURA RD STE 180-B CALABASAS HILLS CA 91301 LANDLORD 314146 LUCIE BRUIJN PHD FLAT 5 15 ST GERMANS PLACE LONDON UK SE3 ONN RESEARCH CONSULTANT 235000 METRO K LLC PO BOX 4857 PORTLAND OR 972084857 LANDLORD 137175 4 334174 781790 100093 17910685 18405 19126742 CONFERENCE FEES 900099 39475 39475 39475 119967 119967 2193407 2030151 163256 163256 163256 5793 781790 61952 -56159 -56159 UNUSED/REIMB GRANTS 900099 350809 350809 MISCELLANEOUS INCOME 900099 14736 14736 365545 19758826 39475 0 592609 X 3658405 3658405 24518 24518 711468 711468 1032847 532858 217493 282496 3185358 1643369 670762 871227 82361 42492 17344 22525 217160 112036 45728 59396 347373 179213 73149 95011 2557526 1210249 222014 1125263 7905 4940 2965 41460 41460 31465 31465 298692 298692 427479 340455 4309 82715 265499 98635 74122 92742 784787 353209 262686 168892 990212 855355 61754 73103 153243 83543 37595 32105 36598 36598 CHAPTER SUPPORT 786669 776396 5625 4648 TELECOMMUNICATIONS 154065 75329 39520 39216 BANK FEES 59167 10052 49115 OTHER 27125 318 19418 7389 -57175 9007 -69442 3260 15824207 10743260 1773152 3307795 X 1007845 319387 0 688458 2836720 5017270 6503756 1817700 4938546 5068863 158646 305027 1246647 1080764 279028 165883 2330676 6724420 695023 1157176 17742395 20256339 2508477 2307400 1345885 453556 3854362 2760956 X 6719179 8106576 6301552 8492325 867302 896482 13888033 17495383 17742395 20256339 X 3934619 -327269 X 0 1 1 X 0 X 14631277 15917492 14583917 17744381 19126742 82003809 14631277 15917492 14583917 17744381 19126742 82003809 718263 81285546 428296 186824 77526 55620 283223 1031489 14630 49499 47654 31744 14736 158263 83193561 108377 0.97710 0.98410 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 32593 342090 374683 14017987 14392670 869634 217409 0 0 853321 661049 757265 869634 3141269 4711904 412018 380508 370155 374683 1537364 213330 165262 189316 217409 785317 1177976 46020 48887 34220 32593 161720 PART IV, SUPPLEMENTAL INFORMATION: THE PURPOSE OF OUR ADVOCACY PROGRAM IS TO SENSITIZE LEGISLATORS TO, AND OBTAIN THEIR SYMPATHY FOR, THE PLIGHT OF ALS VICTIMS, PATIENTS AND THEIR FAMILIES, AND TO INFLUENCE LEGISLATION REGARDING THE APPROPRIATION OF FEDERAL FUNDS FOR ALS RESEARCH AND THE USE AND COST TO PATIENTS OF "ORPHAN" DRUGS. THE ASSOCIATION BELIEVES THIS KIND OF ACTIVITY, WHICH IT INTENDS TO CONTINUE AS ITS ADVOCACY PROGRAM, IS CRITICAL TO THE ACHIEVEMENT OF ITS MISSION, AND THEREFORE, IS IN DIRECT RELATION TO ITS TAX-EXEMPT PURPOSE. 240000 8091 8091 240000 240000 26305 26305 240000 240000 12739 12739 240000 240000 18675 18675 240000 1.00000 0 0 185327 89248 96079 1061320 991516 69804 165883 OFFICE LEASE DEPOSITS 24158 VENDOR DEPOSITS 19033 OTHER RECEIVABLES 174318 BENEFICIAL INTEREST IN PERPETUAL TRUSTS 939667 1157176 19758826 15824207 3934619 -184048 -143221 -327269 3607350 19042577 -184048 -143221 -327269 19369846 388980 388980 19758826 15435227 0 15435227 388980 388980 15824207 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE RESEARCH ENDOWMENT PRINCIPAL IS HELD IN PERPETUITY TO GENERATE EARNINGS TO SUPPORT RESEARCH EXPENDITURES. DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: THE ASSOCIATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND STATE TAXES RELATED TO REVENUE RECEIVED IN CONNECTION WITH EXEMPT PROGRAMS. THE ASSOCIATION RECOGNIZES THE FINANCIAL STATEMENT BENEFIT OF TAX POSITIONS, SUCH AS ITS FILING STATUS AS TAX-EXEMPT, ONLY AFTER DETERMINING THAT THE RELEVANT TAX AUTHORITY WOULD MORE LIKELY THAN NOT SUSTAIN THE POSITION FOLLOWING AN AUDIT. THE ASSOCIATION IS SUBJECT TO POTENTIAL INCOME TAX AUDITS ON OPEN TAX YEARS BY ANY TAXING JURISDICTION IN WHICH IT OPERATES. THE STATUTE OF LIMITATIONS FOR FEDERAL PURPOSES IS THREE YEARS AND FOR STATE PURPOSES IS GENERALLY THREE TO FOUR YEARS. PART XI, LINE 8 - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 29,180. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -172,401. TOTAL TO SCHEDULE D, PART XI, LINE 8: -143,221. PART XII, LINE 2D - OTHER ADJUSTMENTS: GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 29,180. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -172,401. PART XII, LINE 4B - OTHER ADJUSTMENTS: RETURNED PORTIONS OF UNUSED GRANTS 350,809. CAR DONATION PROGRAM COST 38,171. PART XIII, LINE 4B - OTHER ADJUSTMENTS: RETURNED PORTIONS OF UNUSED GRANTS 350,809. CAR DONATION PROGRAM COST 38,171. 1 EUROPE (INCLUDING ICELAND & GREENLAND) - 0 0 GRANT MAKING RESEARCH 704802 NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES 0 0 GRANT MAKING RESEARCH 6667 0 0 0 0 0 0 711469 0 711469 EUROPE (INCLUDING ICELAND & GREENLAND) TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES POST DOCTORAL FELLOWSHIP RESEARCH GRANTS 6667 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 20000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 150000 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS 60114 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) 337500 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 37500 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 39688 CHECK & WIRE TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) - TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS 40000 CHECK & WIRE TRANSFER 14 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH CONSULTANT. METHOD USED TO ACCCOUNT FOR EXPENDITURES: SCHEDULE F, PART I, LINE 3: ALL FOREIGN APPLICANTS, SIMILAR TO US INVESTIGATORS, PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. X X X X X X 1 AMERICA'S CAR DONATION CENTER 3755 OMEC CR 4 RANCHO CORDOVA CA 95742 CAR DONATIONS 1 105747 38171 67576 105747 38171 67576 AL AK AZ AK CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO NE NH NJ NM NY NC ND OH OK OR PA RI SC SD TN UT VA WA WV WI ALSA WALK - PORTLAND 158066 158066 643 1279 21 8150 ALSA WALK - BUFFALO 105653 105653 250 838 9160 15 523864 518071 5793 2192 1339 413 37667 787583 781790 5793 3085 3456 434 54977 61952 -56159 FUNDRAISING EVENTS SCHEDULE G, PART II, LINE 11 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE. 1 AMERICAN ACADEMY OF NEUROLOGY FOUNDATION 1080 MONTREAL AVENUE ST PAUL MN 55116 410726167 501(C)3 25000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MASSACHUSETTS GENERAL HOSPITAL 101 HUNTINGTON AVENUE BOSTON MA 02199 042697983 501(C)3 225000 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) DUKE UNIVERSITY MEDICAL CENTER DUMC BOX 3333 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)3 35000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY RESEARCH ADMINISTRATION UNIVERSITY OF CHICAGO 970 EAST 58TH STREET CHICAGO IL 60637 362177139 501(C)3 60000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY RESEARCH ADMINISTRATION UNIVERSITY OF CHICAGO 971 EAST 58TH STREET CHICAGO IL 60638 362177139 501(C)3 15000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 06508 060646973 501(C)3 29270 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF WASHINGTON 3903 BROOKLYN AVENUE NE SEATTLE WA 98105 916001537 501(C)3 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BAYLOR COLLEGE OF MEDICINE ONE BAYLOR PLAZA BCM206 HOUSTON TX 77030 741613878 501(C)3 20000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRANDEIS UNIVERSITY 415 SOUTH STREET MS 144 WALTHAM MA 02454 041103552 501(C)3 60000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF ROCHESTER 518 HYLAND BUILDING ROCHESTER NY 14627 160743209 501(C)3 60000 TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS THE OHIO STATE UNIVERSITY RES FOUNDATION 1960 KENNY ROAD COLUMBUS OH 43210 316401599 501(C)3 10000 TRADITIONAL-INVESTIGATOR INITIATED RESEARCH GRANTS TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST P-221 FRANKLIN BLDG PHILADELPHIA PA 19104 231352685 501(C)3 167759 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS IPIERIAN INC 951 GATEWAY BLVD SOUTH SAN FRANCISCO CA 94080 260440235 501(C)3 150000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS OSSIANIX INC 3711 MARKET ST PHILADELPHIA PA 19104 800604594 501(C)3 225000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS BETH ISRAEL MEDICAL CENTER 10 UNION SQUARE EAST NEW YORK NY 10003 135564934 501(C)3 53400 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS AMERICAN ACADEMY OF NEUROLOGY FOUNDATION 1080 MONTREAL AVENUE ST PAUL MN 55116 410726167 501(C)3 40750 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE J DAVID GLADSTONE INSTITUTES 1650 OWENS STREET SAN FRANCISCO CA 94158 237203666 501(C)3 164722 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS BANYAN BIOMARKERS INC 13400 PROGRESS BLVD ALACHUA FL 32615 201449566 501(C)3 71400 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS CHILDREN'S HOSPITAL AND RESEARCH CENTER OAKLAND 5700 MARTIN LUTHER KING JNR WAY OAKLAND CA 94609 940382330 501(C)3 100000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 100000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD SOUTH JACKSONVILLE FL 32224 593337028 501(C)3 25000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS WASHINGTON UNIVERSITY 660 SOUTH EUCLID AVENUE ST LOUIS MO 63110 430653611 501(C)3 60000 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS NORTHWESTERN UNIVERSITY 750 NORTH LAKE SHORE DR RUBHOLFF 7TH FLOOR CHICAGO IL 60611 362167817 501(C)3 50000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC 0660 CMM-EAST ROOM 3041 LA JOLLA CA 92093 237121131 501(C)3 10000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY AT EASTERN 1101 EAST 33RD STREET SUITE B-219 BALTIMORE MD 21218 520595110 501(C)3 148480 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE GENERAL HOSPITAL CORPORATION 101 HUNGTINGTON AVENUE BOSTON MA 02199 042697983 501(C)3 30319 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) THE GENERAL HOSPITAL CORPORATION 101 HUNGTINGTON AVENUE BOSTON MA 02199 042697983 501(C)3 212758 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) RESEARCH FOUNDATION OF SUNY 750 EAST ADAMS STREET WEISKOTTEN HALL ROOM 1111D SYRACUSE NY 13210 141368361 501(C)3 137661 TREAT ALS GRANTS (DRUG DEVELOPMENT & CLINICAL TRIALS) AMERICAN ACADAMY OF NEUROLOGY FOUNDATION 1080 MONTREAL AVE ST PAUL MN 55116 410726167 501(C)3 52500 ALS CLINICAL SCIENTIST AWARD TACONIC FARMS INC 273 HOVER AVE GERMANTOWN NY 12526 141381104 501(C)3 75667 LOU GEHRIG CHALLENGE - ALS ASSOCIATION INITIATED RESEARCH GRANTS THE PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 415649 BOSTON MA 02241 042103580 501(C)3 120000 LOU GEHRIG CHALLENGE -ALS ASSOC INITIATED RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 1830 E MONUMENT STREET SUITE 9030 BALTIMORE MD 21215 520595110 501(C)3 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS JOHNS HOPKINS UNIVERSITY 855 N WOLFE ST RANGOS 242 BALTIMORE MD 21205 520595110 501(C)3 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS MAYO CLINIC JACKSONVILLE FLORIDA 4500 SAN PABLO ROAD JACKSONVILLE FL 32224 593337028 501(C)3 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS LUDWIG INSTITUTE FOR CANCER RESEARCH 9500 GILMAN DRIVE MC-0660 LA JOLLA CA 92093 237121131 501(C)3 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS PRESIDENT AND FELLOWS OF HARVARD COLLEGE 13500 MASSACHUSETTS AVENUE CAMBRIDGE CA 02138 042103580 501(C)3 40000 POST DOCTORAL FELLOWSHIP RESEARCH GRANTS UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON PO BOX 203382 HOUSTON TX 77216 741761309 501(C)3 16910 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS OREGON HEALTH AND SCIENCE UNIVERSITY 0690 SW BANCROFT L106SPA PORTLAND OR 97239 931176109 501(C)3 40000 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS LSU HEALTH SCIENCES CENTER 433 BOLIVAR STREET NEW ORLEANS LA 70112 726087770 501(C)3 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS EMORY UNIVERSITY 1599 CLIFTON RD 4TH FLOOR ATLANTA GA 30322 580566256 501(C)3 34162 TRADITIONAL- INVESTIGATOR INITIATED RESEARCH GRANTS BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM 21 N PARK ST SUITE 6401 MADISON WI 53715 396006492 501(C)3 39990 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS BRIGHAM AND WOMEN'S HOSPITAL RESEARCH PO BOX 3887 BOSTON MA 02241 042312909 501(C)3 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UCSD-OPAFS 9500 GILMAN DRIVE MC 0009 LA JOLLA CA 92093 956006144 501(C)3 40000 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 337 FRANK D PETERSON SERVICE BLDG LEXINGTON KY 40506 616033693 501(C)3 38712 TRADITIONAL - INVESTIGATOR INITIATED RESEARCH GRANTS UNIVERSITY OF MASSACHUSETTTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 501(C)3 20000 ALAN PHILLIPS ROCKEFELLER UNIVERSITY 1230 YORK AVENUE BOX 259A NEW YORK NY 10065 131624158 501(C)3 20000 ALAN PHILLIPS ALS CENTER AT SUNY UPSTATE MEDICAL UNIV 750 EAST ADAMS STREET SYRACUSE NY 13210 141368361 501(C)3 13100 ALSA CENTER BANNER GOOD SAMARITAN MEDICAL CENTER 1012 E WILLETTA STREET PHOENIX AZ 85006 410726167 501(C)3 12500 ALSA CENTER BAYLOR COLLEGE OF MEDICINE 6550 FANNIN SUITE 1801 SMITH TOWER HOUSTON TX 77030 741613878 501(C)3 11800 ALSA CENTER BETH ISRAEL MEDICAL CENTER ALS CLINIC 10 UNION SQUARE EAST NEW YORK NY 10003 042103881 501(C)3 13100 ALSA CENTER CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)3 13100 ALSA CENTER CURT AND SHONDA SCHILLING ALS CLINIC 41 MALL ROAD BURLINGTON MA 01805 237121131 501(C)3 11800 ALSA CENTER DARTMOUTH HITCHCOCK MEDICAL CENTER ONE MEDICAL CENTER DRIVE LEBANON NH 03756 020222139 501(C)3 11800 ALSA CENTER DUKE UNIVERSITY MEDICAL CENTER DUMC BOX 3333 932 MORREENE ROAD DURHAM NC 27705 560532129 501(C)3 13100 ALSA CENTER FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94115 262047755 501(C)3 23600 ALSA CENTER FORBES NORRIS ALS RESEARCH CENTER 2324 SACRAMENTO ST SAN FRANCISCO CA 94151 262047755 501(C)3 13100 ALSA CENTER GEORGE WASHINGTON UNIVERSITY 2150 PENNSYLVANIA AVE NW 7-401 WASHINGTON DC 20037 542126575 501(C)3 11800 ALSA CENTER GEORGIA HEALTH SCIENCES FOUNDATION INC 1120 15TH STREET BP 4390 AUGUSTA GA 30912 352310573 501(C)3 13100 ALSA CENTER HARRY J HOENSLAAR ALS CLINIC 2799 WEST GRAND AVE K-11 NEUROLOGY DETROIT MI 04802 381357020 501(C)3 12500 ALSA CENTER HENNEPIN FACULTY ASSOCIATES MULTI-SPECIALTY CLINIC 825 SOUTH EIGHTH STREET SUITE 250 MINNEAPOLIS MD 55404 381357020 501(C)3 12500 ALSA CENTER INDIANA UNIVERSITY ALS CENTER 1050 WISHARD BLVD REGENSTRIEF 6TH FLOOR INDIANAPOLIS IN 46202 520595110 501(C)3 13100 ALSA CENTER MAYO CLINIC - ALS CLINIC 13400 EAST SHEA BLVD SCOTTSDALE AZ 85259 153337028 501(C)3 11800 ALSA CENTER MAYO CLINIC JACKSONVILLE 4500 SAN PABLO ROAD S CANNADAY 2E JACKSONVILLE FL 32224 593337028 501(C)3 13100 ALSA CENTER MAYO MEDICAL CLINIC 200 FIRST STREET SW ROCHESTER MD 55905 416011702 501(C)3 12500 ALSA CENTER MEDICAL COLLEGE OF WISCONSINFROEDTERT HOSPITAL 9200 W WISCONSIN AVE MILWAUKEE WI 53226 390806261 501(C)3 13100 ALSA CENTER NEUROLOGY ASSOCIATES OF STONY BROOK 179 BELLE MEADE ROAD SUITE 3 EAST SETAUKET NY 11733 113243405 501(C)3 11800 ALSA CENTER UNIVERSITY OF NEW MEXICO-SCHOOL OF MEDICINE 2211 LOMAS NE - MSC 10 5620 ALBUQUERQUE NM 87131 856000642 501(C)3 12500 ALSA CENTER UNIVERSITY OF NEW MEXICO-SCHOOL OF MEDICINE 2212 LOMAS NE - MSC 10 5620 ALBUQUERQUE NM 87132 856000642 501(C)3 10000 ALSA CENTER PENN STATE UNIVERSITY 500 UNIVERSITY DRIVE HERSHEY NM 17033 246000376 501(C)3 13100 ALSA CENTER PROVIDENCE ALS CENTER 5050 NE HOYT STE 315 PORTLAND PA 97213 931176109 501(C)3 13100 ALSA CENTER ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL & MEDICAL 97 PATERSON ST NEW BRUNSWICK OR 08903 201285267 501(C)3 12500 ALSA CENTER SOUTH TEXAS ALS CLINIC 8300 FLOYD CURL DRIVE MSC 7883 SAN ANTONIO NJ 78229 741586031 501(C)3 13100 ALSA CENTER ST LOUIS UNIVERSITY HOSPITAL 1438 SOUTH GRAND BLVD MONTELEONE HALL ST LOUIS TX 63104 430654872 501(C)3 11800 ALSA CENTER SUNY RESEARCH FOUNDATION 750 E ADAMS ST SYRACUSE MO 13210 141368361 501(C)3 13100 ALSA CENTER THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 03756 020222139 501(C)3 11800 ALSA CENTER THE NEUROMUSCULAR ALS CLINIC 2150 CORBIN AVE NEW BRITAIN CT 06053 060546766 501(C)3 13100 ALSA CENTER UNIVERSITY OF CALIFORNIA-SAN FRANCISCO 350 PARNASSUS AVENUE SUITE 500 SAN FRANCISCO CA 94117 946036493 501(C)3 13100 ALSA CENTER UNIVERSITY OF KANSAS MEDICAL CENTER 3599 RAINBOW BLVD MAIL STOP 2012 KANSAS CITY KS 66130 480647721 501(C)3 13100 ALSA CENTER UNIVERSITY OF KENTUCKYCARDINAL HILL ALSA CTR ALBERT CHANDLER MED CTR LEXINGTON KY 40506 616001218 501(C)3 13100 ALSA CENTER UNIVERSITY OF MICHIGAN HEALTH SYSTEM 1500 E MEDICAL CENTER DR ANN ARBOR MI 48109 386006309 501(C)3 13100 ALSA CENTER UNIVERSITY OF PENNSYLVANIA-ALS CENTER 330 S NINTH ST PHILADELPHIA PA 19107 246000376 501(C)3 13100 ALSA CENTER UNIVERSITY OF VERMONT COLLEGE OF MEDICINE 89 BEAUMONT AVENUE BURLINGTON VT 05405 030179440 501(C)3 12500 ALSA CENTER VIRGINIA MASON MEDICAL CENTER ALS CLINIC PO BOX 900 M/S X7 NEU SEATTLE WA 98111 741586031 501(C)3 10000 ALSA CENTER VIRGINIA MASON MEDICAL CENTER ALS CLINIC PO BOX 900 M/S X7 NEU SEATTLE WA 98111 910565539 501(C)3 13100 ALSA CENTER WAKE FOREST BAPTIST MEDICAL CENTER MEDICAL CENTER BLVD 3RD FLOOR MEADS MEADS WINSTONSALEM NC 27157 223849199 501(C)3 12500 ALSA CENTER COLUMBIA UNIVERSITY 622 WEST 168TH STREET NEW YORK NY 10032 135598093 501(C)3 12500 CLINICAL GRANT CALIFORNIA PACIFIC MEDICAL CENTER RESEARCH INSTITUTE 475 BRANNAN STREET SUITE 220 SAN FRANCISCO CA 94107 262047755 501(C)3 12500 CLINICAL GRANT UNIVERSITY OF PITTSBURGH 130 DESOTO STREET RM A211 PITTSBURGH PA 15261 250965591 501(C)3 3945 CLINICAL GRANT UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON 7703 FLOYD CURL DRIVE SAN ANTONIO TX 78229 741586031 501(C)3 12500 CLINICAL GRANT CALIFORNIA PACIFIC MEDICAL CENTER RESEARCH INSTITUTE 475 BRANNAN STREET SUITE 220 SAN FRANCISCO CA 94107 262047755 501(C)3 12500 CLINICAL GRANT RESPITE CARE PROGRAM 24 24518 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: ALL APPLICANTS PROVIDE A DETAILED APPLICATION OUTLINING THEIR EXPERIMENTAL PLAN AND TIMELINES. THESE ARE SCIENTIFICALLY REVIEWED, AND IF APPROVED FOR FUNDING, THE INVESTIGATORS ARE REQUIRED TO PROVIDE WRITTEN REPORTS THAT ARE REVIEWED AND APPROVED PRIOR TO ADDITIONAL FUNDS BEING RELEASED. ALL REPORTS ARE ELECTRONICALLY RECEIVED. SCHEDULE I, PART III ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH CONSULTANT. 1 X X X X 0 0 0 0 0 0 0 0 0 JANE H GILBERT 265908 0 0 0 0 0 7288 0 8054 0 281250 0 0 0 DANIEL M REZNIKOV 187058 0 0 0 0 0 5638 0 566 0 193262 0 0 0 KENNETH W NICHOLLS 173164 0 0 0 0 0 5225 0 7885 0 186274 0 0 0 GORDON S LAVIGNE 159966 0 0 0 0 0 5087 0 7332 0 172385 0 0 0 STEVE W GIBSON 162339 0 0 0 0 0 4937 0 7865 0 175141 0 0 0 PART I, LINE 3 THE EXECUTIVE COMPENSATION & EVALUATION COMMITTEE OF THE BOARD OF DIRECTORS DETERMINES THE COMPENSATION OF THE PRESIDENT AND CEO AND MUST BE APPROVED BY THE EXECUTIVE COMMITTEE. X 159 105747 FMV X EXPENSES INCURRED BY THE ALSA GREATER NY CHAPTER 1 18388 FMV X STAMPS 1 17 FMV 0 0 1 1 THIRD PARTY USE: PART I, LINE 32B: THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) USED THE SERVICES OF A CAR DONATION PROGRAM, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. FORM 990, PART VI, SECTION A, LINE 4 ALSA MADE THE FOLLOWING CHANGES TO IT'S BYLAWS FOR FYE 01/31/12: - THE COMPOSITION OF THE BOARD OF REPRESENTATIVES WAS ALTERED TO ADD ALTERNATE VOTING REPRESENTATIVES. - THE POSITION OF BOR VICE CHAIR WAS ADDED. - THE BOR REPRESENTATIVES WHO SIT ON THE CHAPTER RELATIONS COMMITTEE WILL ACT AS THE NOMINATING COMMITTEE OF BOR OFFICERS. - A PROVISION WAS ADDED SO THAT IF THE SLATE OF NOMINEES WAS NOT ELECTED, THEN EACH NOMINEE LISTED ON THE SLATE SHALL BE VOTED ON SEPARATELY BY PRIVATE BALLOT. FORM 990, PART VI, SECTION B, LINE 11 THE CFO OF ALSA WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL MAIL THE FINAL COPY TO THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PART VI, SECTION B, LINE 12C EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO CALCULATE THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED BY THE COMPENSATION COMMITTEE. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. FORM 990, PART VI, SECTION C, LINE 19 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED LOSSES ON INVESTMENTS: -184,048. GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUST 29,180. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -172,401. TOTAL TO FORM 990, PART XI, LINE 5: -327,269. FUNDRAISING EVENTS FORM 990, PART VIII, LINE 8C THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (ALSA) HELD WALKS TO BOTH FUNDRAISE AND RAISE PUBLIC AWARENESS ABOUT ALS. ALL REVENUE RAISED FROM EVENTS ARE CONSIDERED TO BE CHARITABLE CONTRIBUTIONS. ALL INCOME FROM THE WALKS AND EVENTS HELD IS CATEGORIZED AS CONTRIBUTION REVENUE, AS THE SUPPORTERS OF THE WALKS WHO CONTRIBUTE MONEY ARE ABLE TO FULLY DEDUCT THEIR CONTRIBUTIONS IN SUPPORT OF THE EVENT. AS SUCH, THE ENTITY REPORTS A LOSS FROM SPECIAL EVENTS, EVEN THOUGH THE EVENTS WERE PROFITABLE.