2012-11-06T09:55:58-06:00 2011-12-31 232896692 BBD LLP 1835 MARKET STREET 26TH FLOOR PHILADELPHIA PA 19103 990 2011-01-01 383569922 NEPHCURE FOUNDATION NEPH 6105400186 15 WATERLOO AVENUE BERWYN PA 19312 IRVING A SMOKLER 6105400186 2012-11-06 1 MARIANNE MAK P00297744 2155677770 2012-11-06 2011 2016-02-24 21:20:13Z IRVING A SMOKLER 15 WATERLOO AVENUE BERWYN PA 19312 2633062 0 X WWW.NEPHCURE.ORG X 2000 MI SEE PAGE 2, PART III STATEMENT OF PROGRAM SERVICE ACCOMPLISHMENTS, LINE 1. 16 16 0 607 0 0 2063743 2348653 6000 10113 6097 4205 0 0 2075840 2362971 908154 1658609 0 0 0 0 0 0 445292 1087785 1205665 1995939 2864274 79901 -501303 1484682 1607780 2065325 2689726 -580643 -1081946 THE NEPHCURE FOUNDATION IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORT RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME, IMPROVE TREATMENT AND FIND A CURE. 0 0 1980179 1658609 RESEARCH - THE NEPHCURE FOUNDATION COMMITTED TO MULTI-YEAR GRANTS FOR BASIC, TRANSLATIONAL AND CLINICAL SCIENTIFIC RESEARCH. THE PURPOSE BEING TO DETERMINE CAUSES OF KIDNEY DISEASE, FSGS & NEPHROTIC SYNDROME THAT COULD LEAD TO EFFECTIVE TREATMENTS. (DONATED PROFESSIONAL SERVICES: $56,861 AND DONATED SUPPLIES: $40,000) 283951 10113 HEALTH AND EDUCATION - THE NEPHCURE FOUNDATION FUNDS AND MANAGES PROGRAMS TO EDUCATE PATIENT/FAMILIES ABOUT NEPHROTIC SYNDROME & FSGS. THE NEPHCURE FOUNDATION ALSO PROVIDES EDUCATION MATERIALS (BI-LINGUAL) FOR PHYSICIANS AND DIRECTLY TO PATIENT FAMILIES. (DONATED PROFESSIONAL SERVICES: $142,000) 76560 ADVOCACY - THE NEPHCURE FOUNDATION WORKS WITH THE NATIONAL INSTITUTES OF HEALTH AND OTHER HEALTH FUNDING ORGANIZATIONS TO ENCOURAGE MORE RESEARCH INTO NEPHROTIC SYNDROME & FSGS. 2340690 1 1 0 1 0 1 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 1 29 0 0 0 0 0 0 0 1 1 0 0 0 0 X 16 16 1 1 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 AL AK AZ AR CA CO CT FL GA KS KY IL LA ME MD MA MI MN MS MO NH NJ NM NY NC OK OH OR PA RI SC TN UT VA WV WA WI X EXECUTIVE DIRECTOR 6105400186 15 WATERLOO AVENUE BERWYN PA 19312 X IRVING A SMOKLER PHD 7.00 X X 0 0 0 RON COHEN 1.00 X X 0 0 0 CAROL SMOKLER PHD 1.00 X X 0 0 0 MICHAEL LEVINE 15.00 X X 0 0 0 KATHLEEN BRODERICK 5.00 X 0 0 0 CLAIRE CASCIO RN 5.00 X 0 0 0 JIM DUQUETTE 2.00 X 0 0 0 SCOTT GOLDSTEIN 1.00 X 0 0 0 ELAINE KAMIL MD 1.00 X 0 0 0 DAVID KERSHAW MD 1.00 X 0 0 0 SARETTA MCDONOUGH ESQ 2.00 X 0 0 0 JOHN ROY 1.00 X 0 0 0 JENNIFER GEISSER 1.00 X 0 0 0 WILLIAM SMOYER MD 1.00 X 0 0 0 CHARLES TURNER 4.00 X 0 0 0 MANU VARMA 1.00 X 0 0 0 HENRY BREHM 60.00 X 0 0 0 0 0 0 0 0 0 0 VIZION GROUP 15 WATERLOO AVENUE BERWYN PA 19312 MGT & OTHER SERVICES 515331 1 1433447 915206 45310 2348653 PATIENT EDUC SEMINARS 900099 10113 10113 10113 4205 4205 231433 1433447 231433 0 38658 38658 0 2362971 0 0 14318 1658609 1658609 416850 291002 17270 108578 28245 28245 79268 42572 36696 81504 71452 10052 61670 13950 38797 8923 59784 51499 3692 4593 38993 27295 1560 10138 1478 1463 15 45038 45038 7983 4790 1597 1596 SPECIAL EVENTS 262516 262516 GRANT EXPENSES 62785 62785 PROFESSIONAL SERVICES 43610 26049 15361 2200 DISCOUNT ON GRANTS PAY. 15500 15500 441 441 2864274 2340690 78292 445292 509203 685044 735382 713721 224600 116835 15497 92180 1484682 1607780 48736 91915 2016589 2520686 77125 2065325 2689726 X -638703 -1140156 58060 58210 -580643 -1081946 1484682 1607780 -501303 0 X 0 1 1 X 0 X 1484180 1632256 2021853 2069743 2358766 9566798 1484180 1632256 2021853 2069743 2358766 9566798 100792 9466006 26121 30928 19274 6097 4205 86625 249316 132417 181334 270091 833158 10486581 0.90270 0.91640 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 0 0 0 0 0 1 28245 0 0 28245 0 4 11579 -24826 110029 1 1 0 2362971 2864274 -501303 -501303 2831923 198861 270091 468952 2362971 0 2362971 3333226 198861 270091 468952 2864274 0 2864274 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: UNCERTAIN TAX POSITIONS UNDER FIN 48 NEPHCURE FOUNDATION BELIEVES THAT IT HAD NO UNCERTAIN TAX POSITIONS UNDER FIN 48 AND, AS A RESULT, THE ADOPTION OF THE STANDARD HAS HAD NO IMPACT ON NEPHCURE FOUNDATION'S FINANCIAL STATEMENTS. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 270,091. PART XIII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 270,091. 1 NORTH AMERICA 0 0 FUNDRAISING 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 NEPHCURE WALKS 676434 644944 31490 8010 23480 COUNTDOWN TO A CURE 534459 448089 86370 129 9000 73075 4166 4 453987 340414 113573 0 2081 106374 5118 1664880 1433447 231433 129 19091 179449 32764 231433 0 38658 2650 36008 1 0.98000 38658 2650 36008 38658 NY 0 THE STATE OF NEW YORK DOES NOT PROVIDE LICENSES FOR CHARITY CASINO EVENTS. 0 1 0 1.00000 EXECUTIVE DIRECTOR OF THE ORGANIZAT 15 WATERLOO AVENUE BERWYN PA 19312 0 0 1 BETH ISRAEL DEACONESS HOSPITAL 330 BROOKLINE AVENUE BOSTON MA 02215 042103881 501(C)(3) 875000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT CHILDREN'S HOSPITAL BOSTON 300 LONGWOOD AVENUE BOSTON MA 02115 104277444 501(C)(3) 100000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT COLLEGE OF MEDICINE THE ALBERT EINSTEIN 1300 MORRIS PARK AVENUE BRONX NY 10461 131624225 501(C)(3) 9609 YOUNG INVESTIGATOR SCIENTIFIC AND POST-DOCTORAL FELLOWSHIP GRANTS MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST BOSTON MA 02114 041564655 501(C)(3) 100000 ESTABLISHED INVESTIGATOR NEW DIRECTION GRANTS MOUNT SINAI SCHOOL OF MEDICINE OF NEW YORK UNIVERSITY ONE GUSTAVE LEVY PLACE NEW YORK NY 10029 113617119 501(C)(3) 100000 ESTABLISHED INVESTIGATOR NEW DIRECTION GRANT SUNY UPSTATE MEDICAL UNIVERSITY 750 E ADAMS STREET SYRACUSE NY 13210 141368631 501(C)(3) 100000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT UNIVERSITY OF MIAMI SCHOOL OF MEDICINE BATCHELOR BUILDING MIAMI FL 33136 590624458 501(C)(3) 150000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT UNIVERSITY OF MICHIGAN 02 OBSERVATORY ANN ARBOR MI 48109 386006309 501(C)(3) 125000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT UNIVERSITY OF WASHINGTON 815 MERCER STREET SEATTLE WA 98109 112673595 501(C)(3) 58000 40000 FMV MEDICAL SUPPLIES FOR RESEARCH PILOT STUDYING ON FSGS GRANT 9 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE ORGANIZATION MONITORS THE USE OF GRANT FUNDS THROUGH ITS GRANT APPLICATION PROCESS, WHICH REQUESTS A NUMBER OF DEPARTMENT AUTHORIZATIONS THAT ENSURE SUPPORT FOR EACH GRANT RECIPIENT. THE ORGANIZATION ALSO REQUIRES AN INTERIM REPORT FROM EACH GRANT RECIPIENT. UPON APPROVAL OF THE RECIPIENT'S INTERIM REPORT THE REMAINDER OF FUNDING IS DISBURSED. A FINAL REPORT IS ALSO REQUESTED OF THE GRANT RECIPIENT ONCE THE GRANT PERIOD HAS ENDED. VIZION GROUP ENTITY >35% OWNED BY THE EXECUTIVE DIRECTOR 511714 INDEPENDENT CONTRACTOR ARRANGEMENT 0 VIZION GROUP ENTITY >35% OWNED BY THE EXECUTIVE DIRECTOR 9084 OCCUPANCY COSTS 0 X 1 5310 FMV X 1 40000 SELLING PRICE 0 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 FAMILY RELATIONSHIP AMONG VOTING MEMBERS IRVING A. SMOKLER, PHD AND CAROL SMOKLER, PHD ARE HUSBAND AND WIFE AND SERVE AS OFFICERS OF THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION A, LINE 3 DELEGATION OF MANAGEMENT DUTIES TO A MANAGEMENT COMPANY THE ORGANIZATION OUTSOURCES ITS ADMINISTRATIVE AND MANAGEMENT FUNCTIONS TO AN INDEPENDENT MANAGEMENT SERVICE COMPANY, INCLUDING THE POSITION OF EXECUTIVE DIRECTOR (NON-VOTING MEMBER OF THE BOARD) AND OTHER MANAGEMENT PERSONNEL OF THE ORGANIZATION. THE ORGANIZATION INCURRED MANAGEMENT FEES AND OTHER PROFESSIONAL SERVICES FOR A TOTAL OF $520,798 FOR THE TAX YEAR ENDING 2011. FORM 990, PART VI, SECTION B, LINE 11 GOVERNING BODY REVIEW OF FORM 990 PRIOR TO ITS FILING, A FINAL COPY OF THE FORM 990 IS DISTRIBUTED TO EACH VOTING MEMBER OF THE GOVERNING BOARD. FORM 990, PART VI, SECTION B, LINE 12C MONITORING AND ENFORCEMENT OF CONFLICTS POLICY THE BOARD REVIEWS COMPLETED QUESTIONNAIRES AND DISCLOSES INFORMATION DURING THE ANNUAL BOARD MEETING FOR BOARD APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 PUBLIC AVAILABILITY OF OTHER DOCUMENTS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENT, AND FORM 990 ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.