2012-11-07T08:55:55-06:00 2012-06-30 521511275 RAFFA PC 1899 L STREET NW SUITE 900 WASHINGTON DC 20036 990 2011-07-01 237135845 THE FOUNDATION FIGHTING BLINDNESS INC FOUN 4104230600 7168 COLUMBIA GATEWAY DRIVE NO 100 COLUMBIA MD 21046 ANNETTE HINKLE 4104230600 2012-11-01 1 FRANK H SMITH P00639053 2028225000 2012-11-07 2011 2016-02-24 21:20:13Z ANNETTE HINKLE 7168 COLUMBIA GATEWAY DRIVE NO 100 COLUMBIA MD 21046 72975170 0 X WWW.FIGHTBLINDNESS.ORG X 1971 MD FFB FUNDS RESEARCH TO DISCOVER CAUSES AND CURES FOR RETINAL DISEASES LEADING TO BLINDNESS. 24 24 107 2500 0 0 36268303 38553517 145258 113715 643086 1639783 -358348 -677402 36698299 39629613 12738171 15724312 0 0 7082164 7479697 165452 176306 7815055 6006685 6345047 25992472 29725362 10705827 9904251 46755869 60105388 13346028 17120795 33409841 42984593 THE MISSION OF THE FOUNDATION FIGHTING BLINDNESS, INC. (FFB) IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. 0 0 17418416 15724312 RESEARCH - FFB FUNDED RESEARCHERS AND CLINICIANS HAVE FURTHER DEVELOPED TREATMENTS IN GENE THERAPY, CELL BASED THERAPIES, NEUROPROTECTIVE THERAPIES, AND NUTRITIONAL THERAPIES IN ANIMAL MODELS AS WELL AS HUMANS. MANY OF THESE THERAPIES RESULT IN INCREASED PHOTORECEPTOR AND RETINAL FUNCTIONS AND SEVERAL HAVE SLOWED OR STOPPED RETINAL DEGENERATIONS AND OR HAVE ACTUALLY IMPROVED VISION. 2356348 113715 PUBLIC HEALTH EDUCATION - FFB FUNDED HEALTH EDUCATION PROGRAMS REACH OVER 120,000 PEOPLE THROUGH FFB EDUCATIONAL SEMINARS, AND COMMUNITY OUTREACH THROUGH FFB'S APPROXIMATELY 50 CHAPTERS AROUND THE U.S., AND THROUGH FFB'S PARTNERSHIPS WITH RETINAL SPECIALISTS. 19774764 1 1 0 0 0 0 0 0 0 1 1 1 0 0 1 1 0 1 0 0 1 1 0 1 1 1 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 178 0 1 107 1 0 0 0 0 0 1 1 0 0 0 0 X 24 24 1 0 0 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AR CA CO CT FL GA HI KS IL IN MA ME MD MI MN MS NH NJ NM NY NC OH OK OR PA SC TN UT VA WA WV X X ANNETTE HINKLE 4104230600 7168 COLUMBIA GATEWAY DRIVE 100 COLUMBIA MD 21046 X GORDON GUND 10.00 X X 0 0 0 JEREMIAH SHAW 1.00 X X 0 0 0 EDWARD GOLLOB 1.00 X X 0 0 0 JOEL DAVIS 1.00 X X 0 0 0 DAVID BRINT 1.00 X X 0 0 0 HAYNES LEA 1.00 X X 0 0 0 YVONNE CHESTER 1.00 X X 0 0 0 GREGORY AUSTIN 1.00 X 0 0 0 DANIEL BERGSTEIN 1.00 X 0 0 0 MARILYN GREEN 1.00 X 0 0 0 ALAN KAHN 1.00 X 0 0 0 JAMES MCNIEL 1.00 X 0 0 0 NANCY MENDELOW 1.00 X 0 0 0 EVAN MITTMAN 1.00 X 0 0 0 KAREN PETROU 1.00 X 0 0 0 NANCY POLLAK 1.00 X 0 0 0 EDWARD RUSSNOW 1.00 X 0 0 0 BRUCE SAWYER 1.00 X 0 0 0 DEBBIE SHAW 1.00 X 0 0 0 MOIRA SHEA 1.00 X 0 0 0 WARREN THALER 1.00 X 0 0 0 GEORGE VILLERE 1.00 X 0 0 0 DAVID WALSH 1.00 X 0 0 0 TED WELP 1.00 X 0 0 0 WILLIAM SCHMIDT 40.00 X 320147 0 6753 JAMES MINOW 40.00 X 266953 0 15297 STEVE BRAMER THRU 102011 40.00 X 259897 0 14363 STEPHEN ROSE 40.00 X 220477 0 20440 ANNETTE HINKLE 40.00 X 188981 0 9799 PAT DUDLEY 40.00 X 142482 0 18694 SUSAN BRUMLEY 40.00 X 163601 0 14457 KRISTIN WHITE THRU 102011 40.00 X 178468 0 17424 TIM SCHOEN 40.00 X 117553 0 18115 LORRAINE HIRSCH 40.00 X 118085 0 3188 MICHELE MERCER 40.00 X 107198 0 13275 2083842 0 151805 13 0 1 0 DP SOLUTIONS 9160 RED BRANCH ROAD SUITE W-1 COLUMBIA MD 21045 IT SERVICES 423423 PRODUCTION ADVANTAGE 13873 PARK CENTER ROAD SUITE 15 OAK HILL VA 20171 PRINTING SERVICES 366596 CONVIO INC PO BOX 671445 DALLAS TX 75267 ONLINE GIVING FEES 262434 MOONLIGHT DESIGN 1324 PALMS BLVD VENICE CA 90291 LITERATURE DESIGN 186612 MSK PARTNERS EXECUTIVE PLAZA ONE SUITE 901 HUNT VALLEY MD 21031 NEWSLETTER DESIGN 177956 6 186468 9581022 28786027 2722678 38553517 CONFERENCE FEES 900099 113715 113715 113715 1638396 1638396 70 70 31589264 31587877 1387 1387 1387 860494 9581022 1738280 -877786 -877786 24273 19400 4873 4873 NNRI SERVICE FEES 900099 99900 99900 MISCELLANEOUS 900099 60383 60383 SUBLEASE INCOME 900099 32638 32638 2520 2520 195441 39629613 113715 0 962381 13410300 13410300 2314012 2314012 1431894 652241 442165 337488 4871198 1173207 524566 3173425 71674 18168 6788 46718 616928 145784 95705 375439 488003 134346 70665 282992 8033 7105 928 73210 73210 176306 176306 11972 11972 971968 433619 142542 395807 1137061 146827 163609 826625 274671 14435 260236 676435 88107 95400 492928 559134 122423 50583 386128 841342 603684 51953 185705 461107 303536 27461 130110 141446 40279 19115 82052 PRINTING 787165 141979 52750 592436 MISCELLANEOUS 401503 31817 311926 57760 29725362 19774764 2135543 7815055 9040254 5929922 5727 6189 6594116 6452717 857553 711053 439455 470628 4726424 2920405 2014556 1806019 22356673 39235957 5340630 5396099 106905 96804 46755869 60105388 2399583 2447013 9741609 13326558 251244 324008 953592 1023216 13346028 17120795 X 4587562 4811606 28322279 37672987 500000 500000 33409841 42984593 46755869 60105388 X 9904251 -329499 X 0 1 1 X 1 1 X 31204252 27483731 30918188 36268303 38553517 164427991 31204252 27483731 30918188 36268303 38553517 164427991 50609663 113818328 676305 483120 368024 717281 1671104 3915834 99386 158807 185097 155990 162804 762084 169105909 4672619 0.67310 0.73410 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 500000 19092 17076 2016 500000 500000 32633 29953 2680 500000 500000 54476 52024 2452 500000 500000 38341 36101 2240 500000 1.00000 0 0 770768 120106 650662 1548297 982437 565860 2407359 1817862 589497 1806019 CHARITABLE GIFT ANNUITY FUNDS 689768 F POOLED INCOME FUNDS 45172 F BENEFICIAL INTEREST IN REMAINDER TRUSTS 4661159 F 5396099 POOLED INCOME FUND OBLIGATION 14070 CHARITABLE GIFT ANNUITY OBLIGATION 715080 DEFERRED COMPENSATION OBLIGATION 294066 1023216 39629613 29725362 9904251 -329499 -329499 9574752 41360224 -329499 129735 2870275 2670511 38689713 939900 939900 39629613 32558113 129735 3642916 3772651 28785462 939900 939900 29725362 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE INCOME EARNED ON THESE NET ASSETS IS RESTRICTED BY THE DONORS FOR RESEARCH. INVESTMENT EARNINGS ON ENDOWMENT FUNDS ARE EXPENDED FOR THE RESTRICTED PURPOSE REQUIRED IN THE YEAR EARNED. DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: THE FOUNDATION HAS PERFORMED AN EVALUATION OF ITS UNCERTAIN TAX POSITIONS FOR THE YEAR ENDED JUNE 30, 2012, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. PART XII, LINE 2D - OTHER ADJUSTMENTS: SUBSIDIARY REVENUE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS PART XII, LINE 4B - OTHER ADJUSTMENTS: INTERCOMPANY GRANTS AND MANAGEMENT FEE PART XIII, LINE 2D - OTHER ADJUSTMENTS: SUBSIDIARY EXPENSES INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS PART XIII, LINE 4B - OTHER ADJUSTMENTS: INTERCOMPANY GRANTS AND MANAGEMENT FEE 1 EUROPE (INCLUDING ICELAND AND GREENLAND) 0 0 GRANTMAKING 1887012 MIDDLE EAST AND NORTH AFRICA 0 0 GRANTMAKING 352000 SOUTH ASIA 0 0 GRANTMAKING 75000 0 0 0 0 0 0 2314012 0 2314012 X EUROPE (INCLUDING ICELAND AND GREENLAND) RESEARCH 591405 CHECK EUROPE (INCLUDING ICELAND AND GREENLAND) RESEARCH 411797 CHECK EUROPE (INCLUDING ICELAND AND GREENLAND) RESEARCH 346432 CHECK EUROPE (INCLUDING ICELAND AND GREENLAND) RESEARCH 335378 CHECK MIDDLE EAST AND NORTH AFRICA RESEARCH 352000 CHECK EUROPE (INCLUDING ICELAND AND GREENLAND) RESEARCH 102000 CHECK EUROPE (INCLUDING ICELAND AND GREENLAND) RESEARCH 100000 CHECK SOUTH ASIA RESEARCH 75000 CHECK 8 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS. X X X X X X 1 THE MCINTOSH COMPANY 5310 HARVEST HILL ROAD SUITE 209 DALLAS TX 75230 SPECIAL EVENT FUNDRAISING COUNSEL 0 251525 25000 226525 STRATEGIC FUNDRAISING 7591 9TH STREET N ST PAUL MN 55128 TELEMARKETING FUNDRAISING COUNSEL 0 227973 131206 96767 NICOLE OSSOLOA CONSULTING PO BOX 11 ANNAPOLIS MD 21404 SPECIAL EVENT FUNDRAISING COUNSEL 0 146480 15000 131480 CONVIO PO BOX 671445 DALLAS TX 75267 DIRECT MAIL FUNDRAISING COUNSEL 0 0 5100 -5100 625978 176306 449672 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY SAN FRANCISCO DINNER 630293 563549 66744 15395 68272 28936 NEW YORK DINNER 596090 513150 82940 84634 6586 700 18396 81 9215133 8528596 686537 19400 269797 844238 66149 335179 10441516 9605295 836221 19400 369826 919096 66849 382511 1757682 -921461 24273 19400 0 24273 19400 19400 4873 NC FL GA NJ MA 1 0 0 0 1.00000 ANNETTE HINKLE CFO 7168 COLUMBIA GATEWAY DRIVE 100 COLUMBIA MD 21046 0 0 1 NATIONAL NEUROVISION RESEARCH INSTITUTE 7168 COLUMBIA GATEWAY DRIVE COLUMBIA MD 21046 450524687 501(C)(3) 840000 RESEARCH MITOCHEM THERAPEUTIC INC 2 FRANKLIN STREET CHARLESTON SC 29401 433845208 N/A 820667 RESEARCH MASSACHUSETTS EYE AND EAR INFIRMARY 243 CHARLES STREET BOSTON MA 02114 042103591 501(C)(3) 749227 RESEARCH UNIVERSITY OF WISCONSIN 1500 HIGHLAND AVENUE MADISON WI 53705 390743975 501(C)(3) 562756 RESEARCH UNIVERSITY OF PENNSYLVANIA 422 CURIE BLVD PHILADELPHIA PA 19104 232810852 501(C)(3) 500000 RESEARCH UNIVERSITY OF OKLAHOMA HEALTH SCIENCE CENTER 1000 STANTON L YOUNG BLVD OKLAHOMA CITY OK 73117 730762267 501(C)(3) 392685 RESEARCH OREGON HEALTH AND SCIENCE UNIVERSITY 3375 TERWILLIGER BOULEVARD SW PORTLAND OR 97201 237083114 501(C)(3) 338985 RESEARCH HARVARD UNIVERSITY 243 CHARLES STREET BOSTON MA 02114 042103580 501(C)(3) 338200 RESEARCH JOHNS HOPKINS UNIVERSITY 600 NORTH WOLFE STREET BALTIMORE MD 21287 520595110 501(C)(3) 329163 RESEARCH UNIVERSITY OF IOWA 200 HAWKINS DRIVE IOWA CITY IA 52242 237436761 501(C)(3) 329000 RESEARCH UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER 1200 HERMAN PRESSLER DRIVE HOUSTON TX 77030 741761309 501(C)(3) 310576 RESEARCH JOHNS HOPKINS UNIVERSITY 600 NORTH WOLFE STREET BALTIMORE MD 21287 520595110 501(C)(3) 310100 RESEARCH REGENTS OF UNIV CALIFORNIA 100 STEIN PLAZA LOS ANGELES CA 90095 956006143 501(C)(3) 297684 RESEARCH APPLIED GENETIC TECHNOLOGIES 11801 RESEARCH DRVIE SUITE D ALACHUA FL 32615 593533710 N/A 286430 RESEARCH CORNELL UNIVERSITY 373 PINE TREE STREET ITHACA NY 14850 150532082 501(C)(3) 270000 RESEARCH UNIVERSITY OF MICHIGAN 100 WALL STREET ANN ARBOR MI 48105 386006309 501(C)(3) 267461 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 242738 RESEARCH UNIVERSITY OF OKLAHOMA HEALTH SCIENCES 608 STANTON L YOUNG BLVD OKLAHOMA CITY OK 73104 730762267 501(C)(3) 237526 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 230000 RESEARCH OREGON HEALTH AND SCIENCE UNIVERSITY 2525 SW 1ST AVENUE PORTLAND OR 97201 237083114 501(C)(3) 212680 RESEARCH UNIVERSITY OF IOWA 2 GILMORE HALL IOWA CITY IA 52242 237436761 501(C)(3) 212551 RESEARCH THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 211652 RESEARCH COLUMBIA UNIVERSITY 635 WEST 165TH STREET NEW YORK NY 10032 135598093 501(C)(3) 211303 RESEARCH MEDICAL UNIVERSITY OF SOUTH CAROLINA 167 ASHLEY AVENUE CHARLESTON SC 29425 576028985 501(C)(3) 200000 RESEARCH THE CLEVELAND CLINIC FOUNDATION 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 200000 RESEARCH UNIVERSITY OF CALIFORNIA 300 UNIVERSITY TOWER IRVINE CA 92697 952540117 501(C)(3) 168701 RESEARCH UNIVERSITY OF FLORIDA COLLEGE OF MEDICINE 219 GRINTER HALL GAINESVILLE FL 32611 592729133 501(C)(3) 125000 RESEARCH SCHEIE EYE INSTITUTE 3535 MARKET STREET PHILADELPHIA PA 19104 231352685 501(C)(3) 111547 RESEARCH RETINA FOUNDATION OF THE SOUTHWEST 9900 NORTH CENTRAL EXPRESSWAY DALLAS TX 75231 510151514 501(C)(3) 105013 RESEARCH REGENTS OF UNIVERSITY OF CALIFORNIA 100 STEIN PLAZA LOS ANGELES CA 90095 956006143 501(C)(3) 104827 RESEARCH UNIV OF CAL BERKELEY 2150 SHATTUCK AVENUE BERKELEY CA 94720 946002123 501(C)(3) 100000 RESEARCH UNIVERSITY OF OKLAHOMA HEALTH SCIENCES 608 STANTON L YOUNG BLVD OKLAHOMA CITY OK 73104 730762267 501(C)(3) 100000 RESEARCH UNIVERSITY OF FLORIDA BOX 115500 GAINESVILLE FL 32610 592729133 501(C)(3) 100000 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 100000 RESEARCH JOHNS HOPKINS UNIVERSITY 600 NORTH WOLFE STREET BALTIMORE MD 21287 520595110 501(C)(3) 100000 RESEARCH FOUNDATION OF UMDNJ 90 BERGEN STREET NEWARK NJ 07103 237313160 501(C)(3) 100000 RESEARCH NYU MEDICAL CENTER 545 FIRST AVENUE GBH-SC1-81 NEW YORK NY 10016 135562308 501(C)(3) 100000 RESEARCH UNIV MASS MEDICAL CENTER S6-408 55 LAKE AVENUE NORTH WORCHESTER MA 01655 043167352 501(C)(3) 100000 RESEARCH TUFTS UNIV SCHOOL OF MEDICINE 800 WASHINGTON STREET BOX 817 BOSTON MA 02111 042103634 501(C)(3) 100000 RESEARCH MASSACHUSETTS EYE AND EAR INFIRMARY 243 CHARLES STREET BOSTON MA 02114 042103591 501(C)(3) 100000 RESEARCH SHILEY EYE CENTER 9500 GILMAN DR MC 0009 LA JOLLA CA 92093 956006144 501(C)(3) 99446 RESEARCH MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 139080626 501(C)(3) 99254 RESEARCH EMORY UNIVERSITY 1599 CLIFTON ROAD ATLANTA GA 30322 580566256 501(C)(3) 98844 RESEARCH UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER PO BOX 20036 HOUSTON TX 77225 741761309 501(C)(3) 97307 RESEARCH THE SCHEPENS EYE RESEARCH INSTITUTE 20 STANIFORD STREET BOSTON MA 02114 042129889 501(C)(3) 95525 RESEARCH MEDICAL UNIVERSITY OF SOUTH CAROLINA 167 ASHLEY AVENUE CHARLESTON SC 29425 576028985 501(C)(3) 89440 RESEARCH UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER 1200 HERMAN PRESSLER DRIVE HOUSTON TX 77030 741761309 501(C)(3) 88924 RESEARCH REGENTS OF UNIV CALIFORNIA 100 STEIN PLAZA LOS ANGELES CA 90095 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75000 RESEARCH UNIVERSITY OF IOWA 375 NEWBORN ROAD IOWA CITY IA 52245 237436761 501(C)(3) 75000 RESEARCH OREGON HEALTH & SCIENCE UNIVERSITY 3375 TERWILLIGER BOULEVARD SW PORTLAND OR 97201 237083114 501(C)(3) 75000 RESEARCH COLUMBIA UNIVERSITY MEDICAL CENTER 630 WEST 168TH STREET NEW YORK NY 10032 135598093 501(C)(3) 75000 RESEARCH HELEN WILLS NEUROSCIENCE INSTITUTE 112 BARKER HALL BERKELEY CA 94720 946090626 501(C)(3) 74836 RESEARCH UNIVERSITY OF PENNSYLVANIA 422 CURIE BLVD PHILADELPHIA PA 19104 232810852 501(C)(3) 70000 RESEARCH UNIV OF CALIFORONIA - SAN FRANCISCO 3333 CALIFORNIA ST SUITE 315 SAN FRNACISCO CA 94148 946036494 501(C)(3) 65000 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 65000 RESEARCH FATHER FLANAGANS BOY'S HOME 14100 CRAWFORD ST BOYS TOWN NE 68010 470376606 501(C)(3) 65000 RESEARCH UNIVERSITY OF IOWA 2 GILMORE HALL IOWA CITY IA 52242 237436761 501(C)(3) 65000 RESEARCH UNIVERSITY OF UTAH 75 SOUTH 2000 EAST SALT LAKE CITY UT 84132 237112869 501(C)(3) 65000 RESEARCH OREGON HEALTH & SCIENCE UNIVERSITY 3375 TERWILLIGER BOULEVARD SW PORTLAND OR 97201 237083114 501(C)(3) 65000 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 65000 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 59220 RESEARCH UNIVERSITY OF FLORIDA PO BOX 100284 GAINESVILLE FL 32610 592729133 501(C)(3) 59186 RESEARCH UNIVERSITY OF UTAH 75 SOUTH 2000 EAST SALT LAKE CITY UT 84132 237112869 501(C)(3) 57000 RESEARCH UNIVERSITY OF PENNSYLVANIA 3900 DELANCY STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 56443 RESEARCH CASE WESTERN RESERVE UNIVESITY 10900 EUCLID AVENUE CLEVELAND OH 44106 341018992 501(C)(3) 53200 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 52083 RESEARCH UNIV OF MASSACHUSSETS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCHESTER MA 01655 043167352 501(C)(3) 51217 RESEARCH UNIVERSITY OF UTAH SCHOOL OF MEDICINE 65 N MEDICAL DRIVE SALT LAKE CITY UT 84132 237112869 501(C)(3) 50000 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 46684 RESEARCH UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 232810852 501(C)(3) 39000 RESEARCH YALE UNIV SCHOOL OF MEDICINE 47 COLLEGE STREET NEW HAVEN CT 06510 060646973 501(C)(3) 39000 RESEARCH CHICAGO LIGHTHOUSE FOR BLIND 1850 W ROOSEVELT ROAD CHICAGO IL 60608 362169139 501(C)(3) 32675 RESEARCH OREGON HEALTH AND SCIENCE UNIVERSITY 2525 SW 1ST AVENUE PORTLAND OR 97201 237083114 501(C)(3) 32675 RESEARCH SCHEIE EYE INSTITUTE 3535 MARKET STREET PHILADELPHIA PA 19104 231352685 501(C)(3) 32675 RESEARCH VARIOUS PRIOR YEAR REFUNDS AND MISC -135424 RESEARCH 42 2 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS. X X X X X 1 0 0 0 0 0 0 0 0 WILLIAM SCHMIDT 320147 0 0 0 0 0 4807 0 1946 0 326900 0 0 0 JAMES MINOW 241953 0 25000 0 0 0 2601 0 12696 0 282250 0 0 0 STEVE BRAMER THRU 102011 223451 0 0 0 36446 0 2009 0 12354 0 274260 0 0 0 STEPHEN ROSE 220477 0 0 0 0 0 3291 0 17149 0 240917 0 0 0 ANNETTE HINKLE 188981 0 0 0 0 0 2839 0 6960 0 198780 0 0 0 PAT DUDLEY 142482 0 0 0 0 0 2144 0 16550 0 161176 0 0 0 SUSAN BRUMLEY 163601 0 0 0 0 0 2328 0 12129 0 178058 0 0 0 KRISTIN WHITE THRU 102011 114131 0 0 0 64337 0 1616 0 15808 0 195892 0 0 0 PART I, LINE 4A IN 2011, STEVE BRAMER, CHIEF DRUG DEVELOPMENT OFFICER, RECEIVED A SEVERANCE PAYMENT OF $36,446 AND KRISTIN WHITE, SENIOR NATIONAL DIRECTOR OF EVENTS, RECEIVED A SEVERANCE PAYMENT OF $64,337. X 38 2312430 FAIR MARKET VALUE X VARIOUS EVENT SUPPLIES 62780 FAIR MARKET VALUE X MINERAL RIGHTS 347468 SALES PRICE 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 JEREMIAH H. SHAW, VICE CHAIRMAN, HAS A FAMILY RELATIONSHIP WITH DEBBIE SHAW, DIRECTOR. FORM 990, PART VI, SECTION A, LINE 6 MEMBERS OF FFB ARE KNOWN AS NATIONAL TRUSTEES. THE QUALIFICATIONS AND ELIGIBILITY FOR MEMBERSHIP AND THE MANNER OF ADMISSION INTO MEMBERSHIP IS PRESCRIBED BY RESOLUTION OF THE BOARD OF DIRECTORS. THE NATIONAL TRUSTEES ARE ENTITLED TO VOTE. FORM 990, PART VI, SECTION A, LINE 7A DURING THE ANNUAL MEETING OF THE NATIONAL TRUSTEES, MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED. FORM 990, PART VI, SECTION B, LINE 11 DATA TO PREPARE THE FEDERAL FORM 990 IS PROVIDED TO OUR OUTSIDE ACCOUNTING FIRM FOR PREPARATION AND GUIDANCE. AFTER IT HAS BEEN COMPLETED, A DRAFT OF THE FEDERAL FORM 990 IS REVIEWED BY THE CHIEF FINANCIAL OFFICER. WITH THE CFO'S APPROVAL THE DRAFT FEDERAL FORM 990 IS THEN MADE AVAILABLE TO ALL BOARD MEMBERS WHO ARE ALSO INVITED TO A SPECIAL MEETING OF THE FINANCE COMMITTEE TO REVIEW THE FEDERAL FORM 990 BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY FORMS ARE OBTAINED UPON BOARD ELECTION AND HIRING. NEW FORMS ARE OBTAINED AT THE BEGINNING OF EVERY FISCAL YEAR. SENIOR MANAGEMENT AND BOARD MEMBERS ARE AWARE THAT CONFLICT OF INTERESTS MUST BE DOCUMENTED AND DISCLOSED TO THE BOARD OF DIRECTORS. FINANCE STAFF REVIEW ACTIVITY THROUGHOUT THE YEAR FOR PROPER DISCLOSURE. FORM 990, PART VI, SECTION B, LINE 15 AS PART OF THE ANNUAL BUDGET PROCESS, FFB REVIEWS ALL SALARIES AND PERFORMANCES, INCLUDING OFFICERS AND KEY EMPLOYEES, IN ORDER TO DETERMINE APPROPRIATE SALARY ADJUSTMENTS. AN OVERALL INCREASE POOL, BASED ON FEEDBACK FROM MARKET DATA, IS APPROVED BY THE BOARD OF DIRECTORS FOR USE IN THIS PROCESS. ON A ROUTINE BASIS, EXTERNAL DATA PROVIDED BY OUTSIDE EXPERT COMPENSATION CONSULTANTS IS USED TO MEASURE REASONABLENESS OF SALARIES TO THE MARKET PLACE AND RESULTS ARE COMMUNICATED BY OUTSIDE CONSULTANTS TO THE BOARD CHAIR/COMPENSATION COMMITTEE. FORM 990, PART VI, SECTION C, LINE 19 FFB'S FEDERAL FORM 990, FORM 1023 AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.FIGHTBLINDNESS.ORG. OTHER PUBLIC GOVERNING DOCUMENTS INCLUDING THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST THROUGH THE CONTACT INFORMATION DISCLOSED ON FFB'S WEB SITE. PART VII FFB ACTS AS THE COMMON PAYMASTER FOR THE NATIONAL NEUROVISION RESEARCH INSTITUTE, A RELATED ORGANIZATION. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: UNREALIZED LOSSES -329,499. TOTAL TO FORM 990, PART XI, LINE 5: -329,499. NATIONAL NEUROVISION RESEARCH INSTITUTE 7168 COLUMBIA GATEWAY DRIVE SUITE 1 COLUMBIA MD 21046 450524687 RESEARCH DE 501(C)(3) LINE 11A N/A 1 MACULAR DEGENERATION INTERNATIONAL INC 7168 COLUMBIA GATEWAY DRIVE SUITE 1 COLUMBIA MD 21046 363923922 FUNDRAISING IL 501(C)(3) LINE 7 N/A 1 NATIONAL RETINITIS PIGMENTOSA FOUNDATION 7168 COLUMBIA GATEWAY DRIVE SUITE 1 COLUMBIA MD 21046 522072391 FUNDRAISING MD 501(C)(3) LINE 11A N/A 1 0 1 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0 NATIONAL NEUROVISION RESEARCH INSTITUTE B 840000 FMV NATIONAL NEUROVISION RESEARCH INSTITUTE K 99900 FMV NATIONAL NEUROVISION RESEARCH INSTITUTE N 541424 FMV