2012-08-15T11:13:26-05:00 2011-09-30 ALEXANDER ARONSON FINNING & CO PC 21 EAST MAIN STREET WESTBORO MA 01581 990 2010-10-01 043068130 NATIONAL BRAIN TUMOR SOCIETY NATI 6179249997 124 WATERTOWN STREET NO 2D WATERTOWN MA 02472 MICHAEL CORKIN 6179249997 2012-08-15 1 DAVID F TURNER JR CPA 5083669100 2012-08-15 2010 2016-02-24 21:20:13Z N PAUL TONTHAT 124 WATERTOWN STREET NO 2D WATERTOWN MA 02472 9923871 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY IS A NONPROFIT ORGANIZATION INSPIRING HOPE AND PROVIDING LEADERSHIP WITHIN THE BRAIN TUMOR COMMUNITY. WE EXIST TO FIND A CURE AND IMPROVE THE QUALITY OF LIFE FOR THOSE AFFECTED BY BRAIN TUMORS. WE FUND STRATEGIC RESEARCH, DELIVER SUPPORT SERVICES, AND PROMOTE COLLABORATION. NBTS IS DEDICATED TO HELP: (1) EMPOWER INDIVIDUALS WITH COMPREHENSIVE INFORMATION, ONLINE PROGRAMS, CARING SUPPORT, AND DIRECT CONNECTIONS TO OTHERS GOING THROUGH THE SAME CHALLENGES, (2) FUND TRANSFORMATIVE RESEARCH TO LEAD MORE RAPIDLY TO NEW THERAPIES FOR ADULT AND PEDIATRIC BRAIN TUMORS, AND ULTIMATELY TO CURES, AND (3) ADVOCATE FOR BRAIN TUMOR PATIENTS, FAMILIES, CAREGIVERS, HEALTHCARE PROFESSIONALS, AND RESEARCHERS. 16 16 58 1002 0 0 6778425 7626704 0 0 1076 338285 -340584 -525313 6438917 7439676 1007476 752337 0 0 3139484 3779206 0 0 935699 2762209 2845496 6909169 7377039 -470252 62637 7571085 7392862 2004266 1927528 5566819 5465334 X NATIONAL BRAIN TUMOR SOCIETY IS A NONPROFIT ORGANIZATION INSPIRING HOPE AND PROVIDING LEADERSHIP WITHIN THE BRAIN TUMOR COMMUNITY. WE EXIST TO FIND A CURE AND IMPROVE THE QUALITY OF LIFE FOR THOSE AFFECTED BY BRAIN TUMORS. WE FUND STRATEGIC RESEARCH, DELIVER SUPPORT SERVICES, AND PROMOTE COLLABORATION. 0 0 2539781 752337 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY, INC. (NBTS) FOCUSES ON FUNDINGTRANSFORMATIVE RESEARCH FOR BOTH ADULT AND PEDIATRIC BRAIN TUMORSWITHIN NORTH AMERICA AND DOES NOT RESTRICT ITS FUNDING BY CITY, STATE,OR INSTITUTION. ALL RESEARCH GRANTS GO THROUGH A RIGOROUS REVIEWPROCESS IN ORDER TO FUND WHAT WILL HAVE THE FASTEST AND MOSTSIGNIFICANT IMPACT IN LEADING MORE RAPIDLY TO NEW THERAPIES ANDULTIMATELY TO CURES. NBTS FEELS THIS APPROACH BENEFITS EVERYONE IN THEGREATEST WAY POSSIBLE BECAUSE IT ACCELERATES MOMENTUM IN SCIENTIFICAREAS WHERE THE GREATEST PROGRESS IS BEING MADE. AS RESULTS FROM THESEADVANCES ARE MADE AVAILABLE, THEY HELP TO FURTHER OR REDIRECT OTHERFINDINGS WITHIN THE BRAIN TUMOR RESEARCH COMMUNITY. 2074377 PATIENT SERVICES: THIS PROGRAM EDUCATES AND CONNECTS MEMBERS OF THEBRAIN TUMOR COMMUNITY, NO MATTER WHERE THEY ARE. WITH ONLINE RESOURCESAND TRAVELING PROGRAMS, NBTS CONNECTS LOCAL INDIVIDUALS AND SUPPORTGROUPS TO OUR NATIONAL NETWORK, SO THAT COMPREHENSIVE INFORMATION ISAVAILABLE TO INDIVIDUALS EVERYWHERE. NBTS OFFERS THE FOLLOWING AS APART OF THIS PROGRAM: (1) HELPFUL STAFF AVAILABLE AT OUR PATIENTSERVICES HOTLINE AND EMAIL, (2) COMPREHENSIVE WEBSITE, (3) AN ONLINECOMMUNITY TO JOIN AND CONNECT WITH OTHERS THROUGH DISCUSSION FORUMS,BLOGS, AND GROUPS, (4) ONLINE DIRECTORIES FOR SUPPORT GROUPS IN ALLSTATES, (5) PEER-TO-PEER MATCHING PROGRAM FOR PATIENTS, SURVIVORS, ANDCAREGIVERS, (6) CLINICAL TRIALS MATCHING DATABASE (WITH EMERGINGMED),(7) MEDICAL INFORMATION SPECIALIST TO ANSWER QUESTIONS ABOUT TREATMENTS, SIDE EFFECTS, CHANGES, AND MORE, (8) PATIENT AND FAMILYCONFERENCES, ONLINE CAREGIVER WORKSHOPS, AND WEBINARS, (9) THEESSENTIAL GUIDE TO BRAIN TUMORS AND OTHER HELPFUL PUBLICATIONS, (10)SPANISH-LANGUAGE RESOURCES AND INFORMATION, AND (11) A WIDE ARRAY OFOTHER RESOURCES FOR THOSE AFFECTED BY A BRAIN TUMOR. 636718 PUBLIC POLICY: HAVING A UNIFIED VOICE IS CRITICAL IN IMPACTING PUBLICPOLICIES AND FUNDING FOR THE BRAIN TUMOR CAUSE. FOCUSING ON CREATINGLEGISLATIVE, REGULATORY, AND POLICY CHANGE, THIS PROGRAM TAKES BOTHWHAT WE KNOW AND BELIEVE ABOUT BRAIN TUMOR RESEARCH AND THE NEEDS OFPEOPLE AFFECTED BY BRAIN TUMORS AND PUTS IT TO WORK IN THE PUBLICPOLICY ARENA. 511062 AWARENESS: BUILDING AWARENESS IS A CRITICAL PIECE IN REACHING PEOPLE. IT IS AN IMPORTANT WAY TO EDUCATE PEOPLE ABOUT BRAIN TUMORS, PROVIDE INFORMATION, AND MAKE THEM FAMILIAR WITH OUR ORGANIZATION AND THAT WE ARE A RESOURCE FOR THEM. WE SUPPORT AWARENESS PROGRAMMING THROUGH VARIOUS CAMPAIGNS AND ACTIVITIES IN WHICH TO EDUCATE THE PUBLIC AND HEIGHTEN AWARENESS 511062 5761938 1 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 1 7 0 1 58 1 0 0 0 0 0 0 0 0 0 0 0 0 X 16 16 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MA CA X X X JODY SUNDQUIST 6179249997 124 WATERTOWN STREET WATERTOWN MA 02472 MARY CATHERINE CALISTO 2.00 X 0 0 0 MICHAEL CORKIN 2.00 X 0 0 0 PAUL FISHER MD 2.00 X X 0 0 0 BARRY GLASSMAN 2.00 X 0 0 0 ANN GORDON 2.00 X 0 0 0 KEN GREY 2.00 X X 0 0 0 SHEILA KILLEEN 2.00 X 0 0 0 JEFFREY KOLODIN 2.00 X X 0 0 0 ERIC LINDQUIST 2.00 X 0 0 0 SUSAN PANNULLO MD 2.00 X 0 0 0 VINCENT PATRONE ESQ 2.00 X 0 0 0 ALISON ROSS 2.00 X 0 0 0 CORD SCHLOBOHM DMD 2.00 X X 0 0 0 RICHARD GENDERSON 2.00 X 0 0 0 MICHAEL NATHANSON 2.00 X 0 0 0 RABBI ERIC B WISNIA 2.00 X 0 0 0 N PAUL TONTHAT 40.00 X 189053 0 18932 DAVID HURWITZ 40.00 X 154754 0 11062 MARK COLE 40.00 X 140248 0 18353 HARRIET PATTERSON 40.00 X 120078 0 10416 KEITH LAMPMAN 40.00 X 149674 0 10768 KRISTINA KNIGHT 40.00 X 103170 0 9490 856977 0 79021 6 0 1 0 FILCO EVENTS 605 SOUTH FIRST STREET SAN JOSE CA 951132809 EVENT MANAGEMENT 236940 ACCOUNTABILITY ADVERISING 1475 N BROADWAY STE 281 WALNUT CREEK CA 94596 ADVERTISING 201485 2 6043316 1583388 7626704 287337 287337 2009830 1958882 50948 50948 50948 0 6043316 525313 -525313 -525313 7439676 0 0 -187028 622117 622117 130220 130220 382793 229676 114838 38279 2815284 2184442 182106 448736 80538 62588 5099 12851 253295 195083 18786 39426 247296 186986 22496 37814 41076 40767 309 28270 28270 263672 198378 38788 26506 214643 211156 2487 1000 454767 266155 70162 118450 358096 253607 52533 51956 302486 237173 23693 41620 49626 44931 1211 3484 139482 118125 12999 8358 25070 5739 19331 SPECIAL EVENTS 465680 436541 17813 11326 TECHNOLOGY 227381 170891 12664 43826 WEBSITE 139898 116059 6735 17104 TRAINING AND RECRUITING 63774 44242 2117 17415 MISCELLANEOUS 45087 29620 1635 13832 26488 18209 4872 3407 7377039 5761938 679402 935699 319152 224346 1348511 255450 447330 83612 4572 278490 212645 798782 554224 347601 244558 4802179 6238643 136090 20768 7571085 7392862 705762 283467 580074 752581 718308 891480 122 0 2004266 1927528 X 4914731 4893247 355434 275433 296654 296654 5566819 5465334 7571085 7392862 X 62637 -164122 X X 0 1 1 X 0 X 5788550 5215596 6836725 6778425 7626704 32246000 5788550 5215596 6836725 6778425 7626704 32246000 77118 32168882 264811 262197 360145 274679 174163 1335995 44964 8233 8894 62091 33644086 0.95620 0.93250 X 25481 25481 7351558 7377039 518852 129713 0 0 428138 518852 946990 1420485 19985 25481 45466 107035 129713 236748 355122 17189 17189 302499 8283 4676 306106 308473 5845 11819 302499 314763 12219 18509 308473 1.00000 0 0 798782 554224 244558 244558 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE SOCIETY HAS PERMANENTLY RESTRICTED NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY RESTRICTED. THE BALANCE AS OF SEPTEMBER 30, 2011 WAS INVESTED IN BOND FUNDS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS. 0 NORTH AMERICA 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH 130220 0 0 0 0 0 0 130220 0 130220 X NORTH AMERICA RESEARCH 130220 CHECK DISBURSEMENT FAIR MARKET VALUE 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY, INCS (NBTS) RESEARCH GRANT APPLICATION REVIEW IS A TWO-STEP PROCESS BUILT ON STANDARDS SET BY THE NATIONAL INSTITUTES OF HEALTH. LETTERS OF INTENT (LOI) ARE SUBMITTED ELECTRONICALLY AND IMMEDIATELY UNDERGO AN ADMINISTRATIVE REVIEW TO ENSURE THAT APPLICATION GUIDELINES ARE MET. MEMBERS OF THE NBTS SCIENTIFIC ADVISORY COUNCIL (SAC), LED BY THE CHAIR AND VICE CHAIR, OVERSEE THE REVIEW PROCESS FOR EACH NBTS GRANT PROGRAM. TWO REVIEWERS ARE ASSIGNED TO EACH APPLICATION: A PRIMARY REVIEWER AND SECONDARY REVIEWER. CAREFUL CONSIDERATION IS MADE TO PREVENT CONFLICT OF INTEREST BETWEEN THE REVIEWERS AND THE APPLICANTS. REVIEWERS ARE RESPONSIBLE FOR SCORING THE APPLICATION BASED ON SCIENTIFIC MERIT AND PRESENTING THE PROJECT DURING THE REVIEW TELECONFERENCES. THE REVIEW CONFERENCE IS COMPRISED OF ALL MEMBERS OF THE SAC, KEY MEMBERS OF THE RESEARCH COMMITTEE, AND SENIOR RESEARCH STAFF MEMBERS. THE SAC CHAIR FACILITATES PROJECT PRESENTATIONS (MADE BY THE REVIEWERS) AND THE ENSUING DISCUSSION AMONG SAC MEMBERS. DURING THIS REVIEW, THOSE REVIEWERS WHO ARE RECOGNIZED AS HAVING A CONFLICT OF INTEREST WITH THE APPLICANT AND/OR THE PROJECT ARE ASKED TO DISCONNECT FROM THE CALL. THEY DO NOT PARTICIPATE IN THE DISCUSSION, NOR ARE THEY PERMITTED TO SUBMIT A SCORE. AT THE END OF THE DISCUSSION, ALL SAC MEMBERS (WHO DO NOT HAVE A RECOGNIZED CONFLICT OF INTEREST) ASSIGN THE LOI A COLLECTIVE, FINAL SCORE. WHEN DISCUSSION CONCLUDES, THE FINAL SCORES ARE REVIEWED. WITH THESE SCORES, THE SAC DETERMINES THE LOIS THAT WILL BE INVITED TO SUBMIT A FULL APPLICATION. THE SCORING AND DISCUSSION PROCESS (DURING A SECOND TELECONFERENCE) OF FULL APPLICATIONS FOLLOWS THE PHASES OF THE LOI REVIEW. THE RESEARCH COMMITTEE OF THE NBTS BOARD OF DIRECTORS, IN CONSULTATION WITH SENIOR RESEARCH STAFF, REVIEWS THE SAC RECOMMENDATIONS, DISCUSSES THE FINANCIAL CONSIDERATIONS OF EACH, AND DETERMINES IF THE RESEARCH FURTHERS NBTSS RESEARCH PORTFOLIO. THE RESEARCH COMMITTEE THEN PRESENTS THEIR FINDINGS TO THE FULL NBTS BOARD OF DIRECTORS FOR THE FINAL VOTE. SELECTED RESEARCH GRANT AWARDS ARE FORMALLY ANNOUNCED AND DISTRIBUTED AT THE NBTS ANNUAL MEETING IN THE FALL OF EACH YEAR. WALK - RACE FOR HOPE - D.C. 1257613 1257613 72755 WALK - RACE FOR HOPE - PA 857822 857822 84807 13 3927881 3927881 367751 6043316 6043316 525313 525313 -525313 1 UNIVERSITY OF MINNESOTA - DAVID LARGAESPADA PHD 420 DELAWARE STREET SE MINNEAPOLIS MI 55455 416007513 197117 RESEARCH UNIVERSITY OF CALIFORNIA - JAMES WASCHEK PHD 3501 S FIGUEROA STREET LOS ANGELES CA 90007 956006143 150000 RESEARCH DANA FARBER INSTITUTE 44 BINNEY STREET BOSTON MA 02115 042263040 150000 RESEARCH TOCAGEN 3030 BUNKER HILL STREET SUITE 230 SAN DIEGO CA 92109 261243872 100000 RESEARCH CENTRAL BRAIN TUMOR REGISTRY OF US 244 EAST OGDEN AVE SUITE 116 HINSDALE IL 60521 363918407 25000 RESEARCH 0 5 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY'S RESEARCH GRANT APPLICATION REVIEW IS A TWO-STEP PROCESS BUILT ON STANDARDS SET BY THE NATIONAL INSTITUTES OF HEALTH. LETTERS OF INTENT (LOI) ARE SUBMITTED ELECTRONICALLY AND IMMEDIATELY UNDERGO AN ADMINISTRATIVE REVIEW TO ENSURE THAT APPLICATION GUIDELINES ARE MET. MEMBERS OF THE NBTS SCIENTIFIC ADVISORY COUNCIL (SAC), LED BY THE CHAIR AND VICE CHAIR, OVERSEE THE REVIEW PROCESS FOR EACH NBTS GRANT PROGRAM. TWO REVIEWERS ARE ASSIGNED TO EACH APPLICATION: A PRIMARY REVIEWER AND SECONDARY REVIEWER. CAREFUL CONSIDERATION IS MADE TO PREVENT CONFLICT OF INTEREST BETWEEN THE REVIEWERS AND THE APPLICANTS. REVIEWERS ARE RESPONSIBLE FOR SCORING THE APPLICATION BASED ON SCIENTIFIC MERIT AND PRESENTING THE PROJECT DURING THE REVIEW TELECONFERENCES. THE REVIEW CONFERENCE IS COMPRISED OF ALL MEMBERS OF THE SAC, KEY MEMBERS OF THE RESEARCH COMMITTEE, AND SENIOR RESEARCH STAFF MEMBERS. THE SAC CHAIR FACILITATES PROJECT PRESENTATIONS (MADE BY THE REVIEWERS) AND THE ENSUING DISCUSSION AMONG SAC MEMBERS. DURING THIS REVIEW, THOSE REVIEWERS WHO ARE RECOGNIZED AS HAVING A CONFLICT OF INTEREST WITH THE APPLICANT AND/OR THE PROJECT ARE ASKED TO DISCONNECT FROM THE CALL. THEY DO NOT PARTICIPATE IN THE DISCUSSION, NOR ARE THEY PERMITTED TO SUBMIT A SCORE. AT THE END OF THE DISCUSSION, ALL SAC MEMBERS (WHO DO NOT HAVE A RECOGNIZED CONFLICT OF INTEREST) ASSIGN THE LOI A COLLECTIVE, FINAL SCORE. WHEN DISCUSSION CONCLUDES, THE FINAL SCORES ARE REVIEWED. WITH THESE SCORES, THE SAC DETERMINES THE LOIS THAT WILL BE INVITED TO SUBMIT A FULL APPLICATION. THE SCORING AND DISCUSSION PROCESS (DURING A SECOND TELECONFERENCE) OF FULL APPLICATIONS FOLLOWS THE PHASES OF THE LOI REVIEW. THE RESEARCH COMMITTEE OF THE NBTS BOARD OF DIRECTORS, IN CONSULTATION WITH SENIOR RESEARCH STAFF, REVIEWS THE SAC RECOMMENDATIONS, DISCUSSES THE FINANCIAL CONSIDERATIONS OF EACH, AND DETERMINES IF THE RESEARCH FURTHERS NBTS'S RESEARCH PORTFOLIO. THE RESEARCH COMMITTEE THEN PRESENTS THEIR FINDINGS TO THE FULL NBTS BOARD OF DIRECTORS FOR THE FINAL VOTE. SELECTED RESEARCH GRANT AWARDS ARE FORMALLY ANNOUNCED AND DISTRIBUTED AT THE NBTS ANNUAL MEETING IN THE FALL OF EACH YEAR. X X X X 0 0 0 0 0 0 0 0 0 N PAUL TONTHAT 189053 0 0 0 0 0 5916 0 13016 0 207985 0 0 0 DAVID HURWITZ 154754 0 0 0 0 0 4668 0 6394 0 165816 0 0 0 MARK COLE 140248 0 0 0 0 0 4443 0 13910 0 158601 0 0 0 KEITH LAMPMAN 149674 0 0 0 0 0 4140 0 6628 0 160442 0 0 0 X 43 39314 X SILENT AUCTION 44 19645 FMV 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVEIW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT FORM 990, PART VI, SECTION B, LINE 15 THE CHAIR OF THE BOARD OF DIRECTORS, IN CONJUNCTION WITH THE EXECUTIVE COMMITTEE DETERMINES THE EXECUTIVE DIRECTOR'S SALARY. IN ORDER TO DETERMINE HIS SALARY, COMPARABILITY FIGURES WERE PROVIDED TO THE EXECUTIVE COMMITTEE AND CHAIR OF THE BOARD, WHICH REPRESENTED COMPARABLE POSITIONS IN SCOPE, RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET, AND SIMILAR INDUSTRY. THE SALARY DELIBERATION WAS MADE BY THE CHAIR IN CONJUNCTION WITH THE CHAIR OF THE HR/COMPENSATION COMMITTEE. IN REGARDS TO OTHER OFFICERS AND KEY EMPLOYEES - THE H.R. MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE EXECUTIVE DIRECTOR TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE SOCIETY'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED LOSSES ON INVESTMENTS: -164,122. OVERSIGHT OF AUDIT FORM 990, PART XI, LINE 2C: THE AUDIT COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITORS. THE KELLY HEINZ-GRUNDER BRAIN TUMOR FOUNDATION INC 300 WATER STREET SUITE 103 WILMINTON DE 19801 550887286 BRAIN TUMOR AWARENESS AND RESEARCH DE 501(C)(3) LINE 9 NATIONAL BRAIN TUMOR SOCIETY INC 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0