2012-05-09T14:26:19-05:00 2011-12-31 521446779 JOHNSON LAMBERT & CO LLP 700 SPRING FOREST ROAD STE 115 RALEIGH NC 27609 990 2011-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER 9198096779 2012-05-09 1 9197196400 2011 2016-02-24 21:20:13Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 615230 0 X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO RAPIDLY DEVELOP EFFECTIVE TREATMENTS AND ULTIMATELY, A CURE FOR CHORDOMA, AND TO HELP CHORDOMA PATIENTS GET THE BEST CARE POSSIBLE 8 7 9 10 0 0 356563 584425 3628 26985 9615 3820 0 0 369806 615230 85243 179321 0 0 169932 112447 0 0 94557 141138 316095 396313 607863 -26507 7367 579247 679814 9043 96208 570204 583606 THE MISSION OF THE CHORDOMA FOUNDATION IS TO RAPIDLY DEVELOP EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR CHORDOMA, AND TO HELP CHORDOMA PATIENTS GET THE BEST CARE POSSIBLE. 0 0 383952 179321 9500 THE CHORDOMA FOUNDATION INITIATED, FACILITATED, AND FUNDED RESEARCH AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS FOR CHORDOMA. THIS INCLUDED PERFORMING GENOMIC ANALYSIS OF CHORDOMA TUMORS, DISTRIBUTING CHORDOMA CELL LINES TO RESEARCHERS ACROSS THE WORLD, FACILITATING THE EXCHANGE OF CHORDOMA TISSUE, AND BROKERING COLLABORATIONS AMONG PHYSICIANS AND SCIENTISTS. 75756 17485 THE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND OTHER RARE CANCERS, AND INITIATED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA. 459708 1 1 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 10 0 1 9 1 0 0 0 0 0 1 1 0 0 0 0 X 8 7 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NC AK AZ AR CA CT FL GA HI IL KS KY ME MD MA MI MN MS MO NH NJ NM NY ND OH OK OR PA RI SC TN UT VA WA WV WI DC X X JOSH SOMMER 9198096779 512 S MANGUM STREET DURHAM NC 27701 JOSH SOMMER 80.00 X X 29386 0 1066 HEATHER LEE 15.00 X X 0 0 0 JACOB EDWARD LES 3.00 X X 0 0 0 JOHN THERIEN 1.50 X X 0 0 0 BRUCE NELSON 3.00 X X 0 0 0 FRANCIS MEYER 4.00 X 0 0 0 BENJAMIN ABRAM 2.00 X 0 0 0 JOEL BECKMAN 1.00 X 0 0 0 29386 0 1066 0 0 0 1 0 7000 577425 1521 584425 COMMUNITY CONFERENCE 900099 17485 17485 RESEARCH WORKSHOP 900099 9500 9500 26985 3820 3820 615230 30805 0 0 121854 121854 57467 57467 30320 18885 4834 6601 69896 25719 19454 24723 3701 1234 786 1681 8530 3734 2240 2556 1500 1500 6500 6500 18334 8676 3989 5669 6337 6337 14159 6708 1240 6211 35227 12775 6158 16294 34632 17302 1046 16284 12000 5415 2734 3851 15793 7081 1236 7476 95606 93977 815 814 3138 1122 466 1550 2437 990 600 847 BIOBANK 70432 70432 607863 459708 53598 94557 412802 452556 141829 143930 15000 31149 36757 894 6291 15814 6683 8722 9131 579247 679814 9043 12998 83210 9043 96208 X 529795 397456 40409 186150 570204 583606 579247 679814 X 7367 6035 X 0 1 1 X 0 X 220335 449041 501265 356563 584425 2111629 220335 449041 501265 356563 584425 2111629 201491 1910138 1329 11137 8342 9615 3820 34243 9509 12255 21764 2167636 30613 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: REGISTRATION FEES-CONFERENCE RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 15814 6683 9131 9131 615230 607863 7367 6035 6035 13402 778623 163393 163393 615230 0 615230 771256 163393 163393 607863 0 607863 THE FOUNDATION CONSIDERS UNCERTAIN TAX POSITIONS AND MANAGEMENT DOES NOT BELIEVE THERE ARE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES. 1 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH 57467 0 0 0 0 0 0 57467 0 57467 EUROPE GENOME SEQUENCING AS PART OF THE CHORDOMA GENOME PROJECT 54095 WIRE TRANSFER 1 0 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: MONITORING THE USE OF GRANT FUNDS OUTSIDE THE US IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS 1 DUKE UNIVERSITY 2200 W MAIN STREET STE 710 DURHAM NC 27705 560532129 501(C)(3) 16888 RESEARCH FELLOWSHIP IN THE PROGRAM ON GLOBAL HEALTH AND TECHNOLOGY ACCESS; CHORDOMA MOUSE MODEL UNIVERSITY OF PITTSBURGH 123 UNIVERSITY PL PITTSBURGH PA 15213 220965591 501(C)(3) 25000 RESEARCH GRANT JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE 733 N BROADWAY STE 117 BALTIMORE MD 21205 900329755 501(C)(3) 50000 RESEARCH GRANT MASSACHUSETTS GENERAL HOSPITAL 100 BLOSSOM ST JACKSON 1115 BOSTON MA 02114 041564655 501(C)(3) 25000 RESEARCH GRANT 4 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: MONITORING USE OF GRANT FUNDS INSIDE THE US IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. X X X 0 0 0 0 0 0 0 0 0 SUPPLEMENTAL INFORMATION PART III JOSH SOMMER, EXECUTIVE DIRECTOR, RECEIVED $16,343 IN W-2 COMPENSATION FROM DUKE UNIVERSITY, AN UNRELATED ORGANIZATION, FOR SERVICES HE PROVIDED TO THE CHORDOMA FOUNDATION. FORM 990, PART VI, SECTION A, LINE 4 THE ORGANIZATION AMENDED ITS BYLAWS IN THE FOLLOWING SIGNIFICANT WAYS: -BOARD TERMS WERE STANDARDIZED TO 2 YEARS -BOARD MEMBERS ARE PREVENTED FROM RECEIVING ANY COMPENSATION FOR SERVICES -A SECTION CONCERNING CONFLICTS OF INTEREST WAS ADDED -THE COMPOSITION AND STRUCTURE OF BOARD COMMITTEES WAS OUTLINED SPECIFICALLY -CONSECUTIVE TERM LIMITS FOR BOARD MEMBERS WERE ENACTED -EMPLOYEES WERE RESTRICTED FROM BEING ELECTED TO THE BOARD -AN OPTION TO INCLUDE EX-OFFICIO BOARD MEMBERS WAS ADDED -THE ABILITY TO REMOVE BOARD MEMBERS FOR MEETING NON-ATTENDANCE WAS ADDED -BOARD MEMBERS WERE GIVEN THE ABILITY TO RESIGN -AN ABILITY TO TAKE ACTION THROUGH UNANIMOUS WRITTEN CONSENT WAS ADDED -THE BOARD'S ABILITY TO REQUIRE SURETY BONDS WAS REMOVED -THE BOARD WAS GIVEN THE ABILITY TO APPOINT ASSISTANT SECRETARIES AND TREASURERS -A BAN ON LOANS TO DIRECTORS WAS ADDED FORM 990, PART VI, SECTION B, LINE 11 FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND TREASURER BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY COMPLIANCE IS MONITORED BY REGULAR COMPLETION OF CHECKLISTS BY DIRECTORS FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. FINANCIAL STATEMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: PRIOR PERIOD ADJUSTMENTS: 6,035.