2012-03-07T11:09:39-06:00 2011-06-30 KPMG LLP 345 PARK AVENUE NEW YORK NY 101540102 990 2010-07-01 135644916 THE LEUKEMIA & LYMPHOMA SOCIETY INC LEUK 9149495213 1311 MAMARONECK AVE ROOM/SUITE 310 WHITE PLAINS NY 10605 JAMES T NANGLE 9149495213 2012-03-07 true KPMG LLP 2127589700 2012-03-07 2010 2016-02-24 21:20:13Z JOHN WALTER 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 372308194 false X WWW.LLS.ORG X 1949 NY THE LEUKEMIA & LYMPHOMA SOCIETY'S MISSION IS TO CURE LEUKEMIA, LYMPHOMA, HODGKIN'S DISEASE AND MYELOMA, AND IMPROVE THE QUALITY OF LIFE OF PATIENTS AND THEIR FAMILIES. 24 23 1923 3000000 -1562 238276411 270364921 0 5945189 10990644 2522446 2476936 246744046 283832501 85577867 109608495 0 81834903 83658857 9299646 9810826 45446413 73769925 77762946 250482341 280841124 -3738295 2991377 221660340 224271874 112213271 104487981 109447069 119783893 X THE LEUKEMIA & LYMPHOMA SOCIETY'S MISSION IS TO CURE LEUKEMIA, LYMPHOMA, HODGKIN'S DISEASE AND MYELOMA, AND IMPROVE THE QUALITY OF LIFE OF PATIENTS AND THEIR FAMILIES. false false 68985389 66082184 A) RESEARCH PROGRAMS: WITH ADVISORY INPUT FROM RECOGNIZED BIOMEDICAL RESEARCH EXPERTS, LLS FUNDS EXEMPLARY PROJECTS ACROSS THE ENTIRE RESEARCH CONTINUUM RELEVANT TO IMPROVED OUTCOMES FOR BLOOD CANCER PATIENTS, FROM BASIC LABORATORY SCIENCE THROUGH CLINICAL TRIALS, AND FROM INVESTIGATOR-INITIATED RESEARCH TO PRIVATE-SECTOR DRUG DEVELOPMENT ALLIANCES. LLS IS DELIBERATE AND PURPOSEFUL IN FINDING AND SUPPORTING RESEARCH THAT IS MOST LIKELY TO HELP PATIENTS AS SOON AS POSSIBLE. (CONTINUED ON SCHEDULE O) TO DATE, LLS HAS INVESTED MORE THAN 814 MILLION IN RESEARCH AIMED AT HELPING ALL BLOOD CANCER PATIENTS LIVE BETTER, LONGER LIVES. WE WILL CONTINUE TO SUPPORT RESEARCH THROUGH OUR INNOVATIVE AND INTEGRATED FUNDING PROGRAMS, UNTIL EVERY PATIENT HAS A SAFE AND EFFECTIVE THERAPY. IN FISCAL YEAR 2011, LLS SUPPORTED RESEARCH IN THE U.S., CANADA, AND 10 OTHER COUNTRIES WITH A TOTAL RESEARCH DISBURSEMENT OF MORE THAN 66 MILLION. OUR CRITICAL ROLE LLS PROGRAMS ACCELERATE RELEVANT RESEARCH OUTCOMES BY: -BUILDING A FOCUSED RESEARCH WORK-FORCE: ASSURING THE NEXT ROUND OF BREAKTHROUGHS REQUIRES THAT YOUNG INVESTIGATORS BE ENCOURAGED TO WORK IN BLOOD CANCER RESEARCH FIELDS. -TURNING DISCOVERIES INTO CLINICAL PROGRESS: BASIC SCIENCE DISCOVERIES MUST BE TRANSLATED INTO NEW, SAFE AND EFFECTIVE TREATMENTS THAT CAN ULTIMATELY PROLONG AND ENHANCE PATIENT LIVES. -SUPPORTING SYNERGY: LARGE GRANTS AND CONTRACTS ENABLE SCIENTISTS IN ACADEMIA AND THE PRIVATE-SECTOR TO COLLABORATE, COMBINING RESOURCES AND EXPERTISE TO PRODUCE MORE AND FASTER ADVANCES. -FILLING A VOID: PROMISING RESEARCH PROJECTS THAT ARE HIGH-RISK AND/OR ADDRESS RARE CANCERS ARE LESS LIKELY TO BE FUNDED BY THE GOVERNMENT OR BY FOR-PROFIT COMPANIES, BUT MAY PROVIDE IMPORTANT ADVANCES. -INCREASING ACCESS TO CLINICAL TRIALS: PARTNERING WITH LEADING CLINICAL TRIAL CENTERS CAN ACCELERATE THE CLINICAL TESTING OF NEW BLOOD CANCER THERAPIES THAT ARE OFTEN A PATIENT'S BEST CHANCE FOR CURE. LLS RESEARCH PROGRAMS ARE BASED ON THE BELIEF THAT SCIENTIFICALLY SOUND APPROACHES TOWARD CURES FOR, OR CONTROL OF, BLOOD CANCERS SHOULD BE SUPPORTED WORLDWIDE.TWO MAJOR INTEGRATED RESEARCH FUNDING PROGRAMS THE RESEARCH GRANT PROGRAM AND THE THERAPY ACCELERATION PROGRAM HAVE ADVISORY INPUT FROM WORLD RENOWNED BIOMEDICAL RESEARCH EXPERTS. TOGETHER THESE PROGRAMS: -SUPPORT THE ENTIRE RESEARCH CONTINUUM NEEDED TO IMPROVE OUTCOMES FOR BLOOD CANCER PATIENTS FROM BASIC LABORATORY SCIENCE TO CLINICAL TRIALS OF NEW AGENTS AND FROM INVESTIGATOR INITIATED RESEARCH TO MULTIDISCIPLINARY ACADEMIC COLLABORATIONS AND PRIVATE SECTOR DRUG DEVELOPMENT ALLIANCES. -ARE AIMED AT THE EFFECTIVE DISCOVERY AND DEVELOPMENT OF NEW AND BETTER THERAPIES FOR PEOPLE WITH BLOOD CANCER, AND, THROUGH A RESEARCH INITIATIVE LAUNCHED IN 2009, SUPPORT THE DEVELOPMENT OF MEASURES TO PREVENT OR SIGNIFICANTLY REDUCE POTENTIAL LONG-TERM AND LATE TOXICITIES OF TODAY'S CURATIVE THERAPIES. RESEARCH GRANT PROGRAM THE RESEARCH GRANT PROGRAM PROVIDES GRANT FUNDING TO SUPPORT SCIENTIFIC STUDIES AT ACADEMIC CENTERS IN THE UNITED STATES AND THROUGHOUT THE WORLD, THROUGH THREE GRANT MECHANISMS: 1. THE CAREER DEVELOPMENT PROGRAM (CDP) PROVIDES STIPENDS TO INVESTIGATORS OF EXCEPTIONAL PROMISE IN THE EARLY STAGES OF THEIR CAREERS, HELPING THEM TO DEVOTE THEIR CAREERS TO LEUKEMIA, LYMPHOMA AND/OR MYELOMA RESEARCH. THIS PROGRAM IS STRATIFIED INTO TWO SEPARATELY REVIEWED PROGRAMS IN BASIC OR CLINICAL RESEARCH: -BASIC RESEARCH "SCHOLARS ARE AWARDED UP TO 110,000 A YEAR FOR A TOTAL OF UP TO 550,000 OVER FIVE YEARS. "SPECIAL FELLOWS ARE AWARDED UP TO 65,000 A YEAR FOR A TOTAL OF UP TO 195,000 OVER THREE YEARS. "FELLOWS ARE AWARDED UP TO 55,000 A YEAR FOR A TOTAL OF UP TO 165,000 OVER THREE YEARS. -CLINICAL RESEARCH "SCHOLARS IN CLINICAL RESEARCH ARE AWARDED UP TO 110,000 A YEAR FOR A TOTAL OF UP TO 550,000 OVER FIVE YEARS. "SPECIAL FELLOWS IN CLINICAL RESEARCH ARE AWARDED UP TO 65,000 A YEAR FOR A TOTAL OF UP TO 195,000 OVER THREE YEARS. 2. THE TRANSLATIONAL RESEARCH PROGRAM (TRP) SUPPORTS OUTSTANDING INVESTIGATIONS DEEMED BY OUR EXPERT ADVISORS MOST LIKELY TO TRANSLATE BASIC BIOMEDICAL DISCOVERIES INTO NEW, SAFE AND EFFECTIVE TREATMENTS, ULTIMATELY PROLONGING AND ENHANCING PATIENTS' LIVES. TRANSLATIONAL RESEARCH AWARDS ARE MADE FOR AN INITIAL THREE-YEAR PERIOD. AWARDS UP TO 200,000 PER YEAR FOR THREE YEARS, FOR A TOTAL OF UP TO 600,000, ARE GRANTED EACH YEAR. FUNDING FOR TWO ADDITIONAL YEARS MAY BE PROVIDED FOR HIGHLY PROMISING PROJECTS THAT ARE ENTERING PHASE 1 CLINICAL TRIALS. THUS, RESEARCH REACHING A CLINICAL TRIAL CAN RECEIVE UP TO 1 MILLION OVER FIVE YEARS TO FACILITATE NEW DRUG DISCOVERY OR ADVANCES IN DIAGNOSIS OR PREVENTION. IN 2011, LLS ACTIVELY REQUESTED PROPOSALS TO HELP STIMULATE MORE ACADEMIC RESEARCH IN THREE UNDERDEVELOPED YET IMPORTANT AREAS OF RESEARCH. THE RESEARCH TOPICS EMPHASIZED WERE: 1) THE MALIGNANT STEM CELL IN ACUTE MYELOGENOUS LEUKEMIA AND MYELODYSPLASTIC SYNDROMES; 2) NON-CUTANEOUS T-CELL LEUKEMIAS AND LYMPHOMAS AND 3) HIGH RISK MYELOMA CASES. IN ADDITION, A REQUEST FOR RESEARCH FOCUSED ON LONG-TERM AND LATE EFFECTS OF BLOOD CANCER THERAPIES WAS EXTENDED INTO A SECOND YEAR. PROGRESS IN THESE RESEARCH AREAS IS DEEMED LIKELY TO IMPROVE OUTCOMES FOR PATIENTS WITH PARTICULARLY URGENT NEEDS. 3. THE MARSHALL A. LICHTMAN SPECIALIZED CENTER OF RESEARCH PROGRAM (SCOR) ENCOURAGES MULTIDISCIPLINARY RESEARCH BY LEADING-EDGE ACADEMIC INVESTIGATORS IN TEAMS OF AT LEAST THREE RESEARCH GROUPS THAT INTERACT TO FOSTER ADVANCES IN THE DIAGNOSIS, TREATMENT AND/OR PREVENTION OF BLOOD CANCERS. EACH SCOR GROUP IS FUNDED UP TO 1.25 MILLION PER YEAR OVER A FIVE-YEAR PERIOD, WITH A TOTAL AMOUNT OF UP TO 6.25 MILLION. AWARDS GO TO THOSE GROUPS THAT BEST DEMONSTRATE SYNERGISTIC EXPERTISE IN COMPLEMENTARY AREAS . THE PARTICIPATING SCIENTISTS MAY BE AT DIFFERENT INSTITUTIONS OR FROM ANY COUNTRY. THE GRANT REVIEW PROCESS FOR THE RESEARCH GRANT PROGRAM. SCIENTISTS AND PHYSICIAN SCIENTISTS WHO ARE EXPERTS IN THE FIELD OF BLOOD CANCER RESEARCH VOLUNTEER THEIR SERVICE TO CONSTITUTE PEER-REVIEW SUBCOMMITTEES FOR BASIC RESEARCH CDP, CLINICAL RESEARCH CDP, TRP AND SCOR. THESE COMMITTEES EVALUATE ALL GRANT APPLICATIONS IN THOSE PROGRAMS AND SELECT THOSE APPLICANTS WITH THE MOST INNOVATIVE AND IMPORTANT PROJECTS TO ADVANCE THE MISSION OF LLS. GUIDELINES, INSTRUCTIONS AND APPLICATIONS FOR THE THREE LLS RESEARCH PROGRAMS MAY BE OBTAINED BY VISITING WWW.LLS.ORG OR BY EMAILING RESEARCHPROGRAMS@LLS.ORG. THERAPY ACCELERATION PROGRAM THE THERAPY ACCELERATION PROGRAM (TAP) IS A STRATEGIC LLS INITIATIVE LAUNCHED IN 2007 WITH 4 MILLION IN SEED FUNDING. THE PROGRAM ACCELERATES NEW AND POTENTIALLY BETTER TREATMENTS AND CLINICAL TESTS INTO PRECLINICAL DEVELOPMENT AND CLINICAL TRIALS. WORKING IN CONCERT WITH ACADEMIC INVESTIGATORS, MEDICAL CENTERS AND COMPANIES, TAP IS FURTHER BRIDGING THE GAP BETWEEN DISCOVERY AND HUMAN APPLICATIONS TO INCREASE THE LIKELIHOOD THAT NOVEL, POSSIBLY BREAKTHROUGH, TREATMENTS WILL BE MADE AVAILABLE TO PATIENTS AS SOON AS POSSIBLE. TAP ENCOMPASSES THREE INNOVATIVE EFFORTS: 1. THE ACADEMIC CONCIERGE DIVISION IDENTIFIES CURRENT LLS FUNDED RESEARCH WITH THE GREATEST CLINICAL PROMISE AND PROVIDES THE FUNDING AND SUPPORT NEEDED TO ADVANCE SELECTED PROJECTS TO THE PRODUCT STAGE. 2.THE CLINICAL TRIALS DIVISION PARTNERS LLS WITH ONE OF THE COUNTRY'S LEADING CLINICAL TRIAL CENTERS TO ACCELERATE THE TESTING OF NEW BLOOD CANCER THERAPIES IN CLINICAL TRIALS. 3. THE BIOTECHNOLOGY ACCELERATOR DIVISION ALLIES LLS WITH COMPANIES TO COMBINE SCIENTIFIC AND FINANCIAL RESOURCES AND ACCELERATE THE DEVELOPMENT OF POTENTIAL THERAPIES THAT OTHERWISE WOULD NOT BE PRIORITIZED BY THE COMPANY. THE TAP PROJECT REVIEW PROCESS INVOLVES DUE DILIGENCE BY AN LLS STAFF TEAM OF DRUG DEVELOPMENT SPECIALISTS IN CONCERT WITH A VOLUNTEER PANEL OF LEADING BIOTECHNOLOGY AND PHARMACEUTICAL COMPANY EXECUTIVES AND INTELLECTUAL PROPERTY AND BUSINESS DEVELOPMENT EXPERTS. THE LEARNING COLLABORATIVE IN 2011, LLS BEGAN A UNIQUE COLLABORATION WITH THE UNIVERSITY OF KANSAS CANCER CENTER AND THE NATIONAL INSTITUTES OF HEALTH TO ACCELERATE THE DEVELOPMENT OF POTENTIAL THERAPIES FOR RARE BLOOD CANCERS. THIS COLLABORATION, KNOWN AS THE LEARNING COLLABORATIVE, BRINGS TOGETHER PROVEN EXPERTISE IN BLOOD CANCER RESEARCH AS WELL AS DRUG DISCOVERY AND DEVELOPMENT TO RAPIDLY ADVANCE PROMISING NEW THERAPIES FROM THE BENCH TO THE BEDSIDE. IF SUCCESSFUL, THE LEARNING COLLABORATIVE'S NOVEL MODEL WILL DEMONSTRATE THAT GOVERNMENT, ACADEMIA, DISEASE PHILANTHROPY AND INDUSTRY CAN SUCCESSFULLY PARTNER TO SAFELY AND EFFICIENTLY ADVANCE NEW OR REPURPOSED DRUG THERAPIES TO PATIENTS. 99695257 43526311 B) PATIENT & COMMUNITY SERVICES : AN ESTIMATED 1,012,533 PEOPLE ACROSS THE UNITED STATES (US) CURRENTLY BATTLE LEUKEMIA, LYMPHOMA AND MYELOMA. THE LEUKEMIA & LYMPHOMA SOCIETY (LLS) OFFERS THE MOST COMPREHENSIVE ARRAY OF SERVICES TO BLOOD CANCER PATIENTS AND THEIR FAMILIES. LAST YEAR ALONE, LLS MADE 7.1 MILLION CONTACTS WITH PATIENTS, CAREGIVERS, HEALTHCARE PROFESSIONALS AND THE PUBLIC. (CONTINUED ON SCHEDULE O) CHAPTER-BASED PROGRAMS: EACH LLS CHAPTER IS STAFFED WITH A PATIENT SERVICES MANAGER WHO OVERSEES THE CHAPTER'S SERVICES TO PATIENTS AND THEIR FAMILIES. PATIENT SERVICES MANAGERS ARE HEALTHCARE PROFESSIONALS, OFTEN WITH A BACKGROUND IN ONCOLOGY NURSING OR SOCIAL WORK. COMMUNITY BASED EDUCATION, INCLUDING THE FOLLOWING FOUR PROGRAMS, ARE OFFERED THROUGH ALL THE CHAPTERS - 38,959 PATIENT AND CAREGIVER PARTICIPANTS IN 2011 - 12,236 HEALTHCARE PROFESSIONAL PARTICIPANTS IN 2011 IMPROVING TREATMENTS FOR BLOOD CANCERS: WHAT YOU NEED TO KNOW TO MAKE INFORMED DECISIONS THIS PROGRAM DETAILS NEW TREATMENT DEVELOPMENT, TREATMENT DECISIONS (STANDARD OF CARE VERSUS CLINICAL TRIALS) AND HOW PATIENTS CAN COMMUNICATE MORE EFFECTIVELY WITH THEIR MEDICAL TEAMS. MYELOMA UPDATE: DIAGNOSIS, TREATMENT AND SIDE EFFECTS MANAGEMENT THIS PROGRAM PROVIDES PATIENTS, FAMILY MEMBERS AND CAREGIVERS WITH THE LATEST INFORMATION ON MYELOMA AND MYELOMA THERAPY, INCLUDING A QUESTION AND ANSWER SESSION WITH A MEDICAL EXPERT IN THEIR COMMUNITY. GETTING THE BEST CANCER CARE AT AGE 55 AND OLDER THIS EDUCATION PROGRAM PRESENTS AN OVERVIEW OF THE MANY FACTORS, NOT AGE ALONE, THAT HEALTHCARE PROFESSIONALS SHOULD ASSESS TO DETERMINE AN APPROPRIATE CANCER TREATMENT PLAN FOR AN OLDER ADULT. WELCOME BACK: WORKING TOGETHER TO SUPPORT THE CANCER SURVIVOR AT SCHOOL THIS EDUCATION PROGRAM DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE SHORT- AND LONG-TERM EFFECTS THAT CHILDREN MAY EXPERIENCE AFTER TREATMENT, AND OFFERS NUMEROUS RESOURCES THAT CAN IMPROVE THE TRANSITION OF CANCER SURVIVORS FROM CLINIC TO CLASSROOM. SUPPORT SERVICES: FAMILY SUPPORT GROUPS LLS HAS DEVELOPED 452 FAMILY SUPPORT GROUPS AT CHAPTERS THROUGHOUT THE US AND CANADA. LLS ALSO HAS 825 VOLUNTEER SUPPORT GROUP FACILITATORS WITH BACKGROUNDS IN ONCOLOGY NURSING OR SOCIAL WORK. GROUPS ARE GUIDED BY TWO VOLUNTEER ONCOLOGY HEALTH PROFESSIONALS, AND PROVIDE INFORMATION AND SUPPORT AND ENCOURAGE GREATER COMMUNICATION AMONG PATIENTS, FAMILIES, FRIENDS AND HEALTH CARE PROFESSIONALS. - 13,108 PARTICIPANTS IN FAMILY SUPPORT GROUPS IN 2011 PATTI ROBINSON KAUFMANN FIRST CONNECTION PROGRAM FIRST CONNECTION IS A PROGRAM THAT LINKS NEWLY DIAGNOSED PATIENTS TO A PEER VOLUNTEER WHO HAS EXPERIENCED A SIMILAR DIAGNOSIS. A TRAINED PATIENT-VOLUNTEER CURRENTLY IN REMISSION CONTACTS THE NEW PATIENT TO SHARE INFORMATION AND SUPPORT. THIS PROGRAM IS AVAILABLE THROUGH LLS CHAPTERS. - 5,094 FIRST CONNECTIONS IN 2011 PATIENT FINANCIAL AID PROGRAM FOR MORE THAN 45 YEARS, LLS HAS HELPED PATIENTS DEMONSTRATING SIGNIFICANT NEED TO OBTAIN FINANCIAL ASSISTANCE TO COVER A PORTION OF THEIR TREATMENT COSTS. THE LLS PATIENT FINANCIAL AID PROGRAM PROVIDES A LIMITED AMOUNT OF FINANCIAL ASSISTANCE TO HELP PATIENTS WITH SIGNIFICANT FINANCIAL NEED AND WHO ARE UNDER A DOCTOR'S CARE FOR A CONFIRMED BLOOD CANCER DIAGNOSIS. PATIENT FINANCIAL AID FUNDS ARE SUBJECT TO AVAILABILITY. - 37,210 PATIENTS RECEIVED FINANCIAL AID IN 2011 CO-PAY ASSISTANCE PROGRAM THIS ASSISTANCE PROGRAM HELPS PATIENTS WITH MANY KINDS OF BLOOD CANCERS MEET THEIR HEALTH INSURANCE OR MEDICARE PLAN PART B OR D PREMIUMS OR CO-PAYMENT OBLIGATIONS RELATED TO TREATING THEIR CANCER. PATIENTS WITH PRESCRIPTION DRUG COVERAGE, MEDICARE BENEFICIARIES UNDER MEDICARE PART B AND/OR MEDICARE PART D, MEDICARE SUPPLEMENTARY HEALTH INSURANCE OR MEDICARE ADVANTAGE SHOULD CHECK WITH LLS TO SEE IF THEY MEET ELIGIBILITY REQUIREMENTS TO RECEIVE FINANCIAL SUPPORT. CO-PAY ASSISTANCE IS SUBJECT TO FUND AVAILABILITY BY SPECIFIC BLOOD CANCER DIAGNOSIS. FOR MORE INFORMATION CALL, (877) LLS-COPAY (877) 557-2672 OR VISIT WWW.LLS.ORG/COPAY. - 13,130 PATIENTS RECEIVED LLS CO-PAY ASSISTANCE IN 2011 THE TRISH GREENE BACK TO SCHOOL PROGRAM FOR CHILDREN WITH CANCER THIS PROGRAM IS DESIGNED TO INCREASE COMMUNICATION AMONG HEALTH CARE PROFESSIONALS, PARENTS, PATIENTS AND SCHOOL PERSONNEL TO ASSURE YOUNGSTERS A SMOOTH TRANSITION FROM ACTIVE TREATMENT BACK TO SCHOOL. PRINTED LITERATURE, VIDEOS AND OTHER MATERIALS TO AID THE PROCESS ARE AVAILABLE THROUGH ALL LOCAL CHAPTERS, INCLUDING: "WELCOME BACK: WORKING TOGETHER TO SUPPORT THE CANCER SURVIVOR AT SCHOOL". THIS EDUCATION PROGRAM DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE SHORT- AND LONG-TERM EFFECTS THAT CHILDREN MAY EXPERIENCE AFTER TREATMENT, AND OFFERS NUMEROUS RESOURCES THAT CAN IMPROVE THE TRANSITION OF CANCER SURVIVORS FROM CLINIC TO CLASSROOM. - 3,219 SCHOOL PERSONNEL, HEALTHCARE PROFESSIONALS AND PARENTS PARTICIPATED IN THE 74 WELCOME BACK PROGRAMS ACROSS THE US AND CANADA "LEARNING AND LIVING WITH CANCER: ADVOCATING FOR YOUR CHILD'S EDUCATIONAL NEEDS" THIS BOOKLET OFFERS PARENTS INFORMATION ON THE LEARNING CHALLENGES CHILDREN MAY FACE DURING AND AFTER CANCER TREATMENT, LAWS THAT PROTECT THE EDUCATIONAL NEEDS OF CHILDREN WITH CANCER AND SPECIFIC WAYS THAT SCHOOLS CAN HELP MEET A CHILD'S EDUCATIONAL NEEDS 38403332 C) PUBLIC HEALTH EDUCATION: INFORMATION AND EDUCATION NATIONAL PROGRAMS: INFORMATION RESOURCE CENTER LLS INFORMATION SPECIALISTS ARE MASTER'S LEVEL ONCOLOGY SOCIAL WORKERS, NURSES AND HEALTH EDUCATORS WHO PROVIDE HELP WITH DISEASE, TREATMENT AND CLINICAL TRIALS INFORMATION AND SUPPORT. (CONTINUED ON SCHEDULE O) PATIENTS, FAMILIES AND HEALTHCARE PROFESSIONALS MAY SPEAK TO AN INFORMATION SPECIALIST AT (800) 955-4572 MONDAY THROUGH FRIDAY, 9 A.M. TO 6 P.M., ET OR EMAIL INFOCENTER@LLS.ORG. - 69,777 INQUIRIES IN 2011 - TRANSLATION SERVICES AVAILABLE IN MORE THAN 165 LANGUAGES ONLINE ENGAGEMENT THE LLS WEBSITE SERVES A WIDE VARIETY OF EDUCATION AND INFORMATION NEEDS. USERS CAN PERSONALIZE THEIR LLS WEB PAGES TO KEEP CURRENT WITH DISEASE SPECIFIC UPDATES AND LOCAL CHAPTER EDUCATION, SUPPORT AND EVENT ACTIVITIES. THE SITE FEATURES A COMPREHENSIVE OVERVIEW OF LLS PROGRAMS AND SERVICES, FAMILY SUPPORT GROUP LOCATIONS, INFORMATION ABOUT OUR PEER-TO-PEER PATTI ROBINSON KAUFMANN FIRST CONNECTION PROGRAM, AND OTHER PROGRAMS. PATIENTS, CAREGIVERS AND HEALTHCARE PROFESSIONALS CAN INTERACT WITH LLS IN CONVENIENT AND PERSONAL WAYS THROUGH SOCIAL NETWORKING, PODCASTS AND ENEWSLETTERS. - 5.8 MILLION UNIQUE VISITS TO WWW.LLS.ORG IN 2011, WITH MORE THAN 7.5 MILLION PAGE VIEWS - 409,799 UNIQUE VISITS TO OUR BLOOD CANCER DISCUSSION BOARDS - 157,877 TELECONFERENCE DOWNLOADS - 208,822 SUBSCRIBERS TO OUR DISEASE SPECIFIC ENEWSLETTERS, WHICH ARE ISSUED ON A MONTHLY BASIS - 116,797 FOLLOWERS OF OUR PATIENT AND CAREGIVER COMMUNITY ONLINE TELEPHONE & WEB EDUCATION PROGRAMS LLS SPONSORS TELEPHONE AND WEB EDUCATION PROGRAMS FOR PATIENTS, CAREGIVERS, SURVIVORS AND HEALTHCARE PROFESSIONALS ABOUT LEUKEMIA, LYMPHOMA, MYELOMA AND MYELODYSPLASTIC SYNDROMES. UPCOMING PROGRAMS ARE POSTED AT WWW.LLS.ORG/PROGRAMS AND ARCHIVES OF PAST PROGRAMS ARE AVAILABLE AT WWW.LLS.ORG/PASTPROGRAMS. - 251,077 TELEPHONE AND WEB-BASED PROGRAM PARTICIPANTS IN 2011 EDUCATION MATERIALS AN EXTENSIVE CATALOG OF EDUCATION MATERIALS IS OFFERED FREE-OF-CHARGE TO PATIENTS AND HEALTHCARE PROFESSIONALS. EACH YEAR, LLS DISTRIBUTES BOOKLETS, BROCHURES, FACT SHEETS, EDUCATION PROGRAM TRANSCRIPTS AND DVDS THROUGH THE INFORMATION RESOURCE CENTER AND LOCAL LLS CHAPTERS. - 1,061,018 PRINTED BOOKLETS, BROCHURES, FACT SHEETS, EDUCATION PROGRAM TRANSCRIPTS AND DVDS DISTRIBUTED IN 2011 MANY MATERIALS ARE ALSO AVAILABLE TO VIEW AND DOWNLOAD AT WWW.LLS.ORG/RESOURCECENTER. DOWNLOADABLE MATERIALS ARE AVAILABLE IN ENGLISH, SPANISH AND FRENCH. 7774360 D) PROFESSIONAL EDUCATION: LLS SERVES THE EDUCATIONAL NEEDS OF THE MEDICAL AND RESEARCH COMMUNITY THROUGH A NUMBER OF PROFESSIONAL EDUCATION SYMPOSIA OFFERED THROUGHOUT THE YEAR. THE EDUCATIONAL PROGRAM OFFERS VARYING FORMATS TO FACILITATE THE EXCHANGE OF INFORMATION AND IDEAS ON THE NEWEST DEVELOPMENTS IN CANCER RESEARCH AND TREATMENT. 7774360 214858338 true true false true false false false true false true true true false false false true false true false true true true false true true true false true true true false false false false false true false true true false false false false true true true false false true 1262 40 true 1923 true true true true CA false false true true true true false false false false X 24 23 false false false false true true true true true false true true true true true true true true true true false AK AR AZ CA CT DE FL GA IL IN KS KY LA MA MD ME MI MN MO MS NH NJ NM NV NY OH OK OR PA PR RI SC TN UT VA WA WI WV X X JAMES T NANGLE 9149495213 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 X JAMES A BECK 2.00 X 0 0 0 JORGE L BENITEZ 2.00 X 0 0 0 ELIZABETH J CLARK 2.00 X 0 0 0 JORGE CORTES MD 2.00 X 0 0 0 JAMES H DAVISPHD 2.00 X 0 0 0 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4962639 3145637 29048794 1446752 1098580 2816918 1925834 1779485 9067569 1321031164 192137673 0.94640 0.96910 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false false true true false true 30000 true 8000 false true true 110000 true 16800 164800 false false false false false SCHEDULE C, PART II-B, LINE 1I LLS IS A MEMBER OF A NUMBER OF COALITIONS INCLUDING RESEARCH AMERICA, ONE VOICE AGAINST CANCER, NATIONAL COALITION FOR CANCER RESEARCH,COALITION FOR THE ADVANCEMENT OF MEDICAL RESEARCH, AND ALLIANCE FOR A STRONGER FDA. false false false false X false false false 5023902 111064 938068 -13040 6059994 4481610 563236 -20944 5023902 5228375 -730333 -16432 4481610 0.54000 0.46000 false false false 838350 657891 180459 6909271 4369616 2539655 5893104 3430909 2462195 5182309 FUND OF HEDGE FUNDS-OPERATING 34424715 F LIMITED PARTNERSHIP INDICIES-OPERATI 14138404 F FUND OF HEDGE FUNDS-ENDOWMENT 1020502 F LIMITED PARTNERSHIP INDICIES-ENDOWME 996514 F PRINCIPAL 457B PLAN 973348 F 51553483 283832501 280841124 2991377 7272440 168183 7440623 10432000 309187000 7272440 5982875 12800724 26056039 283130961 701540 701540 283832501 299075000 5982875 12952541 18935416 280139584 701540 701540 280841124 COLLECTIONS AND RELATION TO EXEMPT PURPOSE SCHEDULE D, PAGE 2, PART III, LINE 4 THE LLS'S COLLECTION IS OF PHOTOGRAPHS WHICH ARE USED FOR PUBLIC EXHIBITION AT FUNDRAISING EVENTS HELD TO SUPPORT LLS'S PROGRAMS. INTENDED USES FOR ENDOWMENT FUNDS SCHEDULE D, PAGE 2, PART V, LINE 4 LLS'S ENDOWMENTS ARE INTENDED TO FUND RESEARCH AS WELL AS SUPPORT LLS'S PUBLIC EDUCATION PROGRAMS. LIABILITY UNDER FIN 48 FOOTNOTE SCHEDULE D, PAGE 3, PART X LLS RECOGNIZES THE EFFECT OF INCOME TAX POSITIONS ONLY OF THOSE TAX POSITIONS THAT ARE MORE LIKELY THAN NOT TO BE SUSTAINED. INCOME GENERATED FROM ACTIVITIES UNRELATED TO LLS'S EXEMPT PURPOSE IS SUBJECT TO TAX UNDER INTERNAL REVENUE CODE SECTION 511. LLS DID NOT RECOGNIZE ANY UNRELATED INCOME TAX LIABILITY FOR THE YEARS ENDED JUNE 30, 2011 AND 2010. RECONCILIATION OF CHANGES - OTHER SCHEDULE D, PAGE 4, PART XI, LINE 8 LSRP OTHER REVENUE 35,116 LLS CANADA REVENUE 12,766,323 ROUNDING FOR AUDITED STATEMENTS -715 LSRP EXPENSES -1,511 LLS CANADA EXPENSES -12,949,776 ROUNDING FOR AUDITED STATEMENTS -1,254 REVENUE AMOUNTS INCLUDED IN FINANCIALS - OTHER SCHEDULE D, PAGE 4, PART XII, LINE 2D LSRP OTHER REVENUE 35,116 LLS CANADA REVENUE 12,766,323 ROUNDING FOR AUDITED STATEMENTS -715 EXPENSE AMOUNTS INCLUDED IN FINANCIALS - OTHER SCHEDULE D, PAGE 4, PART XIII, LINE 2D LSRP EXPENSES 1,511 LLS CANADA EXPENSES 12,949,776 ROUNDING FOR AUDITED STATEMENTS 1,254 SUPPLEMENTAL FINANCIAL INFORMATION SCHEDULE D, PAGE 4, PART XIV PART III, LINE 1A: THE LEUKEMIA & LYMPHOMA SOCIETY MAINTAINS A SMALL PHOTOGRAPH COLLECTION FOR PUBLIC EXHIBITION WHICH HAS AN ESTIMATED VALUE BETWEEN 20,000 AND 50,000. AS THIS REPRESENTS A RELATIVELY SMALL PERCENTAGE OF LLS'S ASSETS, IT IS NOT SEPARATELY DISCLOSED IN THE FINANCIAL STATEMENTS OR FOOTNOTES. true EAST ASIA 2 2 RESEARCH FUNDING RESEARCH GRANTS 300000 MIDDLE EAST 1 1 RESEARCH FUNDING RESEARCH GRANTS 200000 EUROPE 8 8 RESEARCH FUNDING RESEARCH GRANTS 1949500 NORTH AMERICA 18 18 RESEARCH FUNDING RESEARCH GRANTS 2338626 CENTRAL AMERICA & THE CARIBBEAN 1 1 INVESTMENTS INVESTMENTS 16736363 30 30 30 30 21524489 21524489 EAST ASIA & PACIFIC RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 110000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 65000 CHECK ACCRUAL MIDDLE EAST & NORTH AFRICA RESEARCH GRANT 200000 CHECK ACCRUAL EUROPE RESEARCH GRANT 110000 CHECK ACCRUAL EUROPE RESEARCH GRANT 200000 CHECK ACCRUAL EUROPE RESEARCH GRANT 65000 CHECK ACCRUAL EAST ASIA & PACIFIC RESEARCH GRANT 100000 CHECK ACCRUAL EUROPE RESEARCH GRANT 200000 CHECK ACCRUAL EUROPE RESEARCH GRANT 1250000 CHECK ACCRUAL EUROPE RESEARCH GRANT 55000 CHECK ACCRUAL EUROPE RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA THERAPY ACCELERATION 307026 CHECK FMV NORTH AMERICA THERAPY ACCELERATION 112977 CHECK FMV NORTH AMERICA THERAPY ACCELERATION 75000 CHECK FMV NORTH AMERICA THERAPY ACCELERATION 48436 CHECK FMV EUROPE THERAPY ACCELERATION 14500 CHECK FMV EAST ASIA & PACIFIC RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 110000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 200000 CHECK ACCRUAL NORTH AMERICA RESEARCH GRANT 65000 CHECK ACCRUAL MIDDLE EAST & NORTH AFRICA RESEARCH GRANT 200000 CHECK ACCRUAL EUROPE RESEARCH GRANT 110000 CHECK ACCRUAL EUROPE RESEARCH GRANT 200000 CHECK ACCRUAL EUROPE RESEARCH GRANT 65000 CHECK ACCRUAL EAST ASIA & PACIFIC RESEARCH GRANT 100000 CHECK ACCRUAL EUROPE RESEARCH GRANT 200000 CHECK ACCRUAL EUROPE RESEARCH GRANT 1250000 CHECK ACCRUAL EUROPE RESEARCH GRANT 55000 CHECK ACCRUAL EUROPE RESEARCH GRANT 55000 CHECK ACCRUAL NORTH AMERICA THERAPY ACCELERATION 307026 CHECK FMV NORTH AMERICA THERAPY ACCELERATION 112977 CHECK FMV NORTH AMERICA THERAPY ACCELERATION 75000 CHECK FMV NORTH AMERICA THERAPY ACCELERATION 48436 CHECK FMV EUROPE THERAPY ACCELERATION 14500 CHECK FMV 29 PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS OUTSIDE THE UNITED STATES SCHEDULE F, PAGE 1, PART I, LINE 2 FIDUCIARY RESPONSIBILITY AND TRANSPARENCY TO OUR DONORS IS A HIGH PRIORITY. THE LEUKEMIA & LYMPHOMA SOCIETY (LLS) PLACES CONSIDERABLE EMPHASIS ON THE OVERSIGHT OF GRANT SPENDING. TO ACCOMPLISH THIS WE REQUIRE THE SUBMISSION OF ANNUAL FINANCIAL REPORTS FOR EACH OF OUR ACTIVE GRANTS. THE REPORT MUST BE SIGNED BY THE FINANCIAL OFFICER AND/OR THE DESIGNATED OFFICIAL OF THE INSTITUTION HOSTING THE AWARD. AT THE END OF THE GRANT, WE REQUIRE A FINAL FINANCIAL REPORT THAT PROVIDES AN OVERVIEW OF ALL SPENDING THROUGH THE DURATION OF THE AWARD. WE REQUIRE SPECIFIC ACCOUNTING OF SPENDING ON PERSONNEL, CONSULTANTS,EQUIPMENT PURCHASES, SUPPLIES, TRAVEL, PATIENT CARE COSTS, ANIMAL CARE COSTS, AND ANY OTHER EXPENSE A GRANTEE MAY INCUR. WE HAVE SPECIFIC INSTRUCTIONS AND DOLLAR AMOUNT LIMITATIONS SET FOR MANY OF THESE CATEGORIES DEPENDING ON THE AWARD TYPE. FINANCIAL REPORTS ARE REVIEWED FOR NUMERICAL ACCURACY, ADHERENCE TO OUR GUIDELINES, AND FOR THE VERIFICATION OF APPROVAL FROM THE INSTITUTION'S FINANCIAL OFFICER. IF THE GRANTEE DOES NOT SUBMIT AN ANNUAL FINANCIAL REPORT BY THE DUE DATE OUTLINED IN THEIR CONTRACT, FUNDING IS SUSPENDED UNTIL LLS RECEIVES AND APPROVES THE DELINQUENT REPORT. X X X X X X X true PARADYZ DIRECT 5 HANOVER SQUARE SIXTH FLOOR NEW YORK NY 10004 DIRECT MAI false 3852425 -3852425 DIRECT PRINT COMMUNICATIONS 201 EAST SANDPOINTE SUITE 400 SANTA ANA CA 92707 DIRECT MAI false 2515663 -2515663 INFOCISION 325 SPRINGSIDE DRIVE AKRON OH 44333 TELEMARKET false 2210192 -2210192 THOMPSON HABIB DENISON 80 HAYDEN AVENUE SUITE 300 LEXINGTON MA 02421 DIRECT MAI false 605325 -605325 HANINES COMPANY 8050 FREEDOM AVENUE CANTON OH 44720 TELEMARKET false 417716 -417716 PIDIBLACKBAUD 1800 DIAGONAL RAOD SUITE 400 ALEXANDRIA VA 22314 DIRECT MAI false 209505 -209505 9810826 All States NIKE WOMENS MAR 11111394 8308343 2803051 2803051 ROCK N ROLL MAR 8301245 5723636 2577609 2577609 720 171840439 140809016 31031423 31031423 191253078 154840995 36412083 36412083 36412083 false false 738168 8615 38437 3638 true 0.06000 738168 8615 38437 3638 50690 687478 AK AZ CA CT DC FL GA LA MA MD MI MN MS NJ NV NY OH PA RI TX VA WA WI true false false false 1.00000 JAMES T NANGLE 1311 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NJ 08901 221776306 3 200000 ACCRUAL RESEARCH GRANT CELATOR PHARMACEUTICALS CELATOR PHARMACEUTICALS 303B COLLEGE ROAD EAST 303B COLLEGE ROAD EAST PRINCETON NJ 08540 202680869 980000 FMV THERAPY ACCELERATION ALBERT EINSTEIN COLLEGE OF MEDICINE ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVE 1300 MORRIS PARK AVE BRONX NY 10461 131624225 3 200000 ACCRUAL RESEARCH GRANT ALBERT EINSTEIN COLLEGE OF MEDICINE ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVE 1300 MORRIS PARK AVE BRONX NY 10461 131624225 3 200000 ACCRUAL RESEARCH GRANT HEALTH RESEARCH INCORPORATED ROSWE HEALTH RESEARCH INCORPORATED ROSWE 1 ELM CARLTON STREETS 1 ELM CARLTON STREETS BUFFALO NY 14201 042158520 3 100000 ACCRUAL RESEARCH GRANT HEALTH RESEARCH INCORPORATED ROSWE HEALTH RESEARCH INCORPORATED ROSWE 1 ELM CARLTON STREETS 1 ELM CARLTON STREETS BUFFALO NY 14201 042158520 3 110000 ACCRUAL RESEARCH GRANT BIOTHERYX BIOTHERYX 20 CABIN RIDGE ROAD 20 CABIN RIDGE ROAD CHAPPAQUA NY 10514 260201342 4500000 FMV 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ST NICHOLAS AVENUE 1150 ST NICHOLAS AVENUE NEW YORK NY 10001 135598093 3 200000 ACCRUAL RESEARCH GRANT COLUMBIA UNIVERSITY MEDICAL CENTER COLUMBIA UNIVERSITY MEDICAL CENTER 1150 ST NICHOLAS AVENUE 1150 ST NICHOLAS AVENUE NEW YORK NY 10001 135598093 3 55000 ACCRUAL RESEARCH GRANT COLUMBIA UNIVERSITY MEDICAL CENTER COLUMBIA UNIVERSITY MEDICAL CENTER 1150 ST NICHOLAS AVENUE 1150 ST NICHOLAS AVENUE NEW YORK NY 10001 135598093 3 200000 ACCRUAL RESEARCH GRANT COLUMBIA UNIVERSITY MEDICAL CENTER COLUMBIA UNIVERSITY MEDICAL CENTER 1150 ST NICHOLAS AVENUE 1150 ST NICHOLAS AVENUE NEW YORK NY 10001 135598093 3 55000 ACCRUAL RESEARCH GRANT CORNELL UNIVERSITY MEDICAL COLLEGE CORNELL UNIVERSITY MEDICAL COLLEGE 1300 YORK AVE 1300 YORK AVE NEW YORK NY 10001 133376695 3 200000 ACCRUAL RESEARCH GRANT CORNELL UNIVERSITY MEDICAL COLLEGE CORNELL UNIVERSITY MEDICAL COLLEGE 1300 YORK AVE 1300 YORK AVE NEW YORK NY 10001 133376695 3 65000 ACCRUAL RESEARCH GRANT CORNELL UNIVERSITY MEDICAL COLLEGE CORNELL UNIVERSITY MEDICAL COLLEGE 1300 YORK AVE 1300 YORK AVE NEW YORK NY 10001 133376695 3 200000 ACCRUAL RESEARCH GRANT CORNELL UNIVERSITY MEDICAL COLLEGE CORNELL UNIVERSITY MEDICAL COLLEGE 1300 YORK AVE 1300 YORK AVE NEW YORK NY 10001 133376695 3 200000 ACCRUAL RESEARCH GRANT JOAN & SANFORD I WEILL MEDICAL COL JOAN & SANFORD I WEILL MEDICAL COL 435 EAST 70TH STREET 435 EAST 70TH STREET NEW YORK NY 10001 133376695 3 65000 ACCRUAL RESEARCH GRANT JOAN & SANFORD I WEILL MEDICAL COL JOAN & SANFORD I WEILL MEDICAL COL 435 EAST 70TH STREET 435 EAST 70TH STREET NEW YORK NY 10001 133376695 3 200000 ACCRUAL RESEARCH GRANT MEMORIAL SLOAN KETTERING CANCER CEN MEMORIAL SLOAN KETTERING CANCER CEN 633 THIRD AVENUE 633 THIRD AVENUE NEW YORK NY 10001 912154267 3 55000 ACCRUAL RESEARCH GRANT MEMORIAL SLOAN-KETTERING CANCER CEN MEMORIAL SLOAN-KETTERING CANCER CEN 633 THIRD AVENUE 633 THIRD AVENUE NEW YORK NY 10001 912154267 3 200000 ACCRUAL RESEARCH GRANT MEMORIAL SLOAN-KETTERING CANCER CEN MEMORIAL SLOAN-KETTERING CANCER CEN 633 THIRD AVENUE 633 THIRD AVENUE NEW YORK NY 10001 912154267 3 55000 ACCRUAL RESEARCH GRANT MEMORIAL SLOAN-KETTERING CANCER CEN MEMORIAL SLOAN-KETTERING CANCER CEN 633 THIRD AVENUE 633 THIRD AVENUE NEW YORK NY 10001 912154267 3 200000 ACCRUAL RESEARCH GRANT MEMORIAL SLOAN-KETTERING CANCER CEN MEMORIAL SLOAN-KETTERING CANCER CEN 633 THIRD AVENUE 633 THIRD AVENUE NEW YORK NY 10001 912154267 3 65000 ACCRUAL RESEARCH GRANT MEMORIAL SLOAN-KETTERING CANCER CEN MEMORIAL SLOAN-KETTERING CANCER CEN 633 THIRD AVENUE 633 THIRD AVENUE NEW YORK NY 10001 912154267 3 200000 ACCRUAL RESEARCH GRANT MEMORIAL SLOAN-KETTERING CANCER CEN MEMORIAL SLOAN-KETTERING CANCER CEN 633 THIRD AVENUE 633 THIRD AVENUE NEW YORK NY 10001 912154267 3 55000 ACCRUAL RESEARCH GRANT NEW YORK UNIVERSITY SCHOOL OF MEDIC NEW YORK UNIVERSITY SCHOOL OF MEDIC 550 FIRST AVENUE 550 FIRST AVENUE NEW YORK NY 10001 136171197 3 200000 ACCRUAL RESEARCH GRANT NEW YORK UNIVERSITY SCHOOL OF MEDIC NEW YORK UNIVERSITY SCHOOL OF MEDIC 550 FIRST AVENUE 550 FIRST AVENUE NEW YORK NY 10001 136171197 3 65000 ACCRUAL RESEARCH GRANT NEW YORK UNIVERSITY SCHOOL OF MEDIC NEW YORK UNIVERSITY SCHOOL OF MEDIC 550 FIRST AVENUE 550 FIRST AVENUE NEW YORK NY 10001 136171197 3 65000 ACCRUAL RESEARCH GRANT NEW YORK UNIVERSITY SCHOOL OF MEDIC NEW YORK UNIVERSITY SCHOOL OF MEDIC 550 FIRST AVENUE 550 FIRST AVENUE NEW YORK NY 10001 136171197 3 200000 ACCRUAL RESEARCH GRANT NEW YORK UNIVERSITY SCHOOL OF MEDIC NEW YORK UNIVERSITY SCHOOL OF MEDIC 550 FIRST AVENUE 550 FIRST AVENUE NEW YORK NY 10001 136171197 3 200000 ACCRUAL RESEARCH GRANT NEW YORK UNIVERSITY SCHOOL OF MEDIC NEW YORK UNIVERSITY SCHOOL OF MEDIC 550 FIRST AVENUE 550 FIRST AVENUE NEW YORK NY 10001 136171197 3 65000 ACCRUAL RESEARCH GRANT NEW YORK UNIVERSITY SCHOOL OF MEDIC NEW YORK UNIVERSITY SCHOOL OF MEDIC 550 FIRST AVENUE 550 FIRST AVENUE NEW YORK NY 10001 136171197 3 110000 ACCRUAL RESEARCH GRANT ROCKEFELLER UNIVERSITY ROCKEFELLER UNIVERSITY 1230 YORK AVENUE 1230 YORK AVENUE NEW YORK NY 10001 131624158 3 110000 ACCRUAL RESEARCH GRANT WEILL MEDICAL COLLEGE OF CORNELL UN WEILL MEDICAL COLLEGE OF CORNELL UN 575 LEXINGTON AVENUE 575 LEXINGTON AVENUE NEW YORK NY 10001 133376695 3 200000 ACCRUAL RESEARCH GRANT ROCKEFELLER UNIVERSITY ROCKEFELLER UNIVERSITY 1230 YORK AVENUE 1230 YORK AVENUE NEW YORK NY 10001 131624158 3 55000 ACCRUAL RESEARCH GRANT UNIVERSITY OF ROCHESTER UNIVERSITY OF ROCHESTER 601 ELMWOOD AVENUE 601 ELMWOOD AVENUE ROCHESTER NY 14603 160473209 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF ROCHESTER UNIVERSITY OF ROCHESTER 601 ELMWOOD AVENUE 601 ELMWOOD AVENUE ROCHESTER NY 14603 160473209 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF ROCHESTER UNIVERSITY OF ROCHESTER 601 ELMWOOD AVENUE 601 ELMWOOD AVENUE ROCHESTER NY 14603 160473209 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF ROCHESTER UNIVERSITY OF ROCHESTER 601 ELMWOOD AVENUE 601 ELMWOOD AVENUE ROCHESTER NY 14603 160473209 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF ROCHESTER UNIVERSITY OF ROCHESTER 601 ELMWOOD AVENUE 601 ELMWOOD AVENUE ROCHESTER NY 14603 160473209 3 110000 ACCRUAL RESEARCH GRANT CHILDRENS HOSPITAL MEDICAL CENTER-C CHILDRENS HOSPITAL MEDICAL CENTER-C 7013 3333 BURNET AVENUE 7013 3333 BURNET AVENUE CINCINNATI OH 45202 310833936 3 110000 ACCRUAL RESEARCH GRANT CHILDRENS HOSPITAL MEDICAL CENTER-C CHILDRENS HOSPITAL MEDICAL CENTER-C 7013 3333 BURNET AVENUE 7013 3333 BURNET AVENUE CINCINNATI OH 45202 310833936 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF CINCINNATI UNIVERSITY OF CINCINNATI 231 ALBERT SABIN WAY 231 ALBERT SABIN WAY CINCINNATI OH 45202 316000989 3 110000 ACCRUAL RESEARCH GRANT CLEVELAND CLINIC CLEVELAND CLINIC 931568 PO BOX 931568 PO BOX CLEVELAND OH 44149 340714585 3 590000 FMV THERAPY ACCELERATION OHIO STATE UNIVERSITY OHIO STATE UNIVERSITY 1960 KENNY ROAD 1960 KENNY ROAD COLUMBUS OH 43085 316401599 3 1250000 ACCRUAL RESEARCH GRANT OHIO STATE UNIVERSITY OHIO STATE UNIVERSITY 1960 KENNY ROAD 1960 KENNY ROAD COLUMBUS OH 43085 316401599 3 110000 ACCRUAL RESEARCH GRANT OHIO STATE UNIVERSITY OHIO STATE UNIVERSITY 1960 KENNY ROAD 1960 KENNY ROAD COLUMBUS OH 43085 316401599 3 65000 ACCRUAL RESEARCH GRANT OHIO STATE UNIVERSITY OHIO STATE UNIVERSITY 1960 KENNY ROAD 1960 KENNY ROAD COLUMBUS OH 43085 316401599 3 200000 ACCRUAL RESEARCH GRANT OREGON HEALTH & SCIENCE UNIVERSITY OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 237083114 3 110000 ACCRUAL RESEARCH GRANT OREGON HEALTH & SCIENCE UNIVERSITY OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 237083114 3 1250000 ACCRUAL RESEARCH GRANT OREGON HEALTH & SCIENCE UNIVERSITY OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 237083114 3 110000 ACCRUAL RESEARCH GRANT ASCENTA THERAPEUTICS ASCENTA THERAPEUTICS 101 LINDENWOOD DRIVE 101 LINDENWOOD DRIVE MALVERN PA 19355 562394460 1150007 FMV THERAPY ACCELERATION ONCONOVA ONCONOVA 375 PHEASANT RUN 375 PHEASANT RUN NEWTOWN PA 18940 223627252 1900000 FMV THERAPY ACCELERATION CHILDRENS HOSPITAL OF PHILADELPHIA CHILDRENS HOSPITAL OF PHILADELPHIA 3615 CIVIC CENTER BOULEVARD 3615 CIVIC CENTER BOULEVARD PHILADELPHIA PA 19102 231352166 3 110000 ACCRUAL RESEARCH GRANT DREXEL UNIVERSITY DREXEL UNIVERSITY 497 245 N 15TH STREET 497 245 N 15TH STREET PHILADELPHIA PA 19102 231352630 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 65000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 65000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 65000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 55000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 65000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PENNSYLVANIA UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET 3451 WALNUT STREET PHILADELPHIA PA 19102 231352685 3 55000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PITTSBURGH UNIVERSITY OF PITTSBURGH 5117 CENTER AVE 5117 CENTER AVE PITTSBURGH PA 15213 250965591 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PITTSBURGH UNIVERSITY OF PITTSBURGH 5117 CENTER AVE 5117 CENTER AVE PITTSBURGH PA 15213 250965591 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF PITTSBURGH UNIVERSITY OF PITTSBURGH 5117 CENTER AVE 5117 CENTER AVE PITTSBURGH PA 15213 250965591 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF MICHIGAN UNIVERSITY OF MICHIGAN 223131 PO BOX 223131 PO BOX PITTSBURGH PA 15213 386006309 3 41800 FMV THERAPY ACCELERATION VANDERBILT UNIVERSITY MEDICAL CENTE VANDERBILT UNIVERSITY MEDICAL CENTE 2220 PIERCE AVE 2220 PIERCE AVE NASHVILLE TN 37201 620476822 3 200000 ACCRUAL RESEARCH GRANT MEMGEN MEMGEN 7557 RAMBLER ROAD 7557 RAMBLER ROAD DALLAS TX 75201 352232976 810795 FMV THERAPY ACCELERATION BAYLOR COLLEGE OF MEDICINE BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PLAZA 1 BAYLOR PLAZA HOUSTON TX 77002 741613878 3 110000 ACCRUAL RESEARCH GRANT BAYLOR COLLEGE OF MEDICINE BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PLAZA 1 BAYLOR PLAZA HOUSTON TX 77002 741613878 3 200000 ACCRUAL RESEARCH GRANT BAYLOR COLLEGE OF MEDICINE BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PLAZA 1 BAYLOR PLAZA HOUSTON TX 77002 741613878 3 65000 ACCRUAL RESEARCH GRANT BAYLOR COLLEGE OF MEDICINE BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PLAZA 1 BAYLOR PLAZA HOUSTON TX 77002 741613878 3 1250000 ACCRUAL RESEARCH GRANT BAYLOR COLLEGE OF MEDICINE BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PLAZA 1 BAYLOR PLAZA HOUSTON TX 77002 741613878 3 200000 ACCRUAL RESEARCH GRANT BAYLOR COLLEGE OF MEDICINE BAYLOR COLLEGE OF MEDICINE 1 BAYLOR PLAZA 1 BAYLOR PLAZA HOUSTON TX 77002 741613878 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 55000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 1250000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS UNIVERSITY OF TEXAS 1515 HOLCOMBE BLVD UNIT 202 1515 HOLCOMBE BLVD UNIT 202 HOUSTON TX 77002 760300816 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF TEXAS SAN ANTONIO UNIVERSITY OF TEXAS SAN ANTONIO 7703 FLOYD CURL DRIVE 7703 FLOYD CURL DRIVE SAN ANTONIO TX 78229 741717115 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF UTAH UNIVERSITY OF UTAH 2000 CIRCLE OF HOPE 2000 CIRCLE OF HOPE SALT LAKE CITY UT 84112 876000525 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF UTAH UNIVERSITY OF UTAH 2000 CIRCLE OF HOPE 2000 CIRCLE OF HOPE SALT LAKE CITY UT 84112 876000525 3 55000 ACCRUAL RESEARCH GRANT UNIVERSITY OF UTAH UNIVERSITY OF UTAH 2000 CIRCLE OF HOPE 2000 CIRCLE OF HOPE SALT LAKE CITY UT 84112 876000525 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF UTAH UNIVERSITY OF UTAH 2000 CIRCLE OF HOPE 2000 CIRCLE OF HOPE SALT LAKE CITY UT 84112 876000525 3 200000 ACCRUAL RESEARCH GRANT UNIVERSITY OF UTAH UNIVERSITY OF UTAH 2000 CIRCLE OF HOPE 2000 CIRCLE OF HOPE SALT LAKE CITY UT 84112 876000525 3 200000 ACCRUAL RESEARCH GRANT VIRGINIA COMMONWEALTH UNIVERSITY VIRGINIA COMMONWEALTH UNIVERSITY 401 COLLEGE STREET 401 COLLEGE STREET RICHMOND VA 23298 546001758 3 200000 ACCRUAL RESEARCH GRANT FRED HUTCHINSON CANCER RESEARCH CEN FRED HUTCHINSON CANCER RESEARCH CEN 1100 FAIRVIEW AVENUE NORTH 1100 FAIRVIEW AVENUE NORTH SEATTLE WA 98109 237156071 3 1250000 ACCRUAL RESEARCH GRANT FRED HUTCHINSON CANCER RESEARCH CEN FRED HUTCHINSON CANCER RESEARCH CEN 1100 FAIRVIEW AVENUE NORTH 1100 FAIRVIEW AVENUE NORTH SEATTLE WA 98109 237156071 3 65000 ACCRUAL RESEARCH GRANT FRED HUTCHINSON CANCER RESEARCH CEN FRED HUTCHINSON CANCER RESEARCH CEN 1100 FAIRVIEW AVENUE NORTH 1100 FAIRVIEW AVENUE NORTH SEATTLE WA 98109 237156071 3 55000 ACCRUAL RESEARCH GRANT FRED HUTCHINSON CANCER RESEARCH CEN FRED HUTCHINSON CANCER RESEARCH CEN 1100 FAIRVIEW AVENUE NORTH 1100 FAIRVIEW AVENUE NORTH SEATTLE WA 98109 237156071 3 65000 ACCRUAL RESEARCH GRANT UNIVERSITY OF WASHINGTON UNIVERSITY OF WASHINGTON 1100 NE 45TH STREET 1100 NE 45TH STREET SEATTLE WA 98105 916001537 3 110000 ACCRUAL RESEARCH GRANT UNIVERSITY OF WASHINGTON UNIVERSITY OF WASHINGTON 1100 NE 45TH STREET 1100 NE 45TH STREET SEATTLE WA 98105 916001537 3 55000 ACCRUAL RESEARCH GRANT UNIVERSITY OF WASHINGTON UNIVERSITY OF WASHINGTON 1100 NE 45TH STREET 1100 NE 45TH STREET SEATTLE WA 98105 916001537 3 65000 ACCRUAL RESEARCH GRANT BLOOD RESEARCH INSTITUTE BLOOD CE BLOOD RESEARCH INSTITUTE BLOOD CE 8727 W WATERTOWN PLANK ROAD 8727 W WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390807235 3 110000 ACCRUAL RESEARCH GRANT MEDICAL COLLEGE OF WISCONSIN MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 3 110000 ACCRUAL RESEARCH GRANT 266 12 PATIENT AID 37210 5579396 CO-PAY ASSISTANCE-CML 1126 3870000 CO-PAY ASSISTANCE-CLL 1468 5040000 CO-PAY ASSISTANCE-LYMPHOM 5611 14367178 CO-PAY ASSISTANCE-MDS 1041 2789737 CO-PAY ASSISTANCE-MYELOMA 3884 11880000 PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS INSIDE THE UNITED STATES SCHEDULE I, PAGE 1, PART I, LINE 2 FIDUCIARY RESPONSIBILITY AND TRANSPARENCY TO OUR DONORS IS A HIGH PRIORITY. THE LEUKEMIA & LYMPHOMA SOCIETY (LLS) PLACES CONSIDERABLE EMPHASIS ON THE OVERSIGHT OF GRANT SPENDING. TO ACCOMPLISH THIS WE REQUIRE THE SUBMISSION OF ANNUAL FINANCIAL REPORTS FOR EACH OF OUR ACTIVE GRANTS. THE REPORT MUST BE SIGNED BY THE FINANCIAL OFFICER AND/OR THE DESIGNATED OFFICIAL OF THE INSTITUTION HOSTING THE AWARD. AT THE END OF THE GRANT, WE REQUIRE A FINAL FINANCIAL REPORT THAT PROVIDES AN OVERVIEW OF ALL SPENDING THROUGH THE DURATION OF THE AWARD.WE REQUIRE SPECIFIC ACCOUNTING OF SPENDING ON PERSONNEL, CONSULTANTS,EQUIPMENT PURCHASES, SUPPLIES, TRAVEL, PATIENT CARE COSTS, ANIMAL CARE COSTS, AND ANY OTHER EXPENSE A GRANTEE MAY INCUR. WE HAVE SPECIFIC INSTRUCTIONS AND DOLLAR AMOUNT LIMITATIONS SET FOR MANY OF THESE CATEGORIES DEPENDING ON THE AWARD TYPE. FINANCIAL REPORTS ARE REVIEWED FOR NUMERICAL ACCURACY, ADHERENCE TO OUR GUIDELINES, AND FOR THE VERIFICATION OF APPROVAL FROM THE INSTITUTION'S FINANCIAL OFFICER. IF THE GRANTEE DOES NOT SUBMIT AN ANNUAL FINANCIAL REPORT BY THE DUE DATE OUTLINED IN THEIR CONTRACT, FUNDING IS SUSPENDED UNTIL LLS RECEIVES AND APPROVES THE DELINQUENT REPORT. X X X X X false false false false false false false true false JOHN WALTER 475000 38000 6525 30870 21623 572018 JAMES T NANGLE 212292 10549 9975 22284 21623 276723 LOUIS DEGENNARO 315217 22050 8789 24500 14609 385165 NANCY KLEIN 315051 12600 9919 24500 21623 383693 DAVID TIMKO 230830 4568 12066 23451 14609 285524 MICHAEL OSSO 210769 9215 10537 14911 14603 260035 GEORGE OMIROS 205904 4093 9959 21000 14609 255565 NON-FIXED PAYMENTS PROVIDED SCHEDULE J, PAGE 1, PART I, LINE 7 BONUSES WERE PAID BASED ON THE ACHIEVEMENT OF GROSS REVENUE EXCEEDING BUDGETED GROSS REVENUE,EMPLOYEE INDIVIDUAL PERFORMANCE AND OTHER METRICS. BONUSES WERE CAPPED ACCORDING TO LLS'S POLICY. JAMES DAVIS BOD MEMBER 307026 EQUITY IN AEGERA false ADDITIONAL INFORMATION SCHEDULE L PART V PART IV LINE 1 JAMES DAVIS IS AN EXECUTIVE OFFICER WITH HUMAN GENOME SCIENCES WHICH HAS AN EQUITY STAKE IN AEGERA THERAPEUTICS A RECIPIENT OF A THERAPY ACCELERATION PROJECT CONTRACT X 88 962451 MARKET VALUE X 34 X PRINTED ITEMS 3 X FURNITURE&EQUIP 5 X VARIOUS OTHERS 39 false true true THIRD PARTY USED TO PROCESS NONCASH CONTRIBUTIONS SCHEDULE M, PAGE 1, PART I, LINE 32B LLS USES ITS INVESTMENT CUSTODIAN TO LIQUIDATE ANY DONATED SECURITIES. EXPLANATION FOR NOT REPORTING REVENUE SCHEDULE M, PAGE 1, PART I, LINE 33 LLS ONLY RECORDS DONATED SECURITIES AS REVENUE. ALL OTHER ITEMS FOR WHICH COLUMN A IS CHECKED ARE NOT RECORDED AS REVENUE OR EXPENSE BECAUSE THEY WOULD NOT HAVE BEEN PURCHASED HAD THEY NOT BEEN DONATED, AND ARE IMMATERIAL IN AMOUNT RELATIVE TO THE STATEMENTS OF LLS. SUPPLEMENTAL INFORMATION SCHEDULE M, PAGE 2, PART II PART I, COLUMN (B) LLS IS REPORTING THE NUMBER OF CONTRIBUTIONS FOR EACH OF THE ITEMS IN PART I, NOT THE NUMBER OF INDIVIDUAL ITEMS. FIRST ACHIEVEMENT DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4A TO DATE, LLS HAS INVESTED MORE THAN 814 MILLION IN RESEARCH AIMED AT HELPING ALL BLOOD CANCER PATIENTS LIVE BETTER, LONGER LIVES. WE WILL CONTINUE TO SUPPORT RESEARCH THROUGH OUR INNOVATIVE AND INTEGRATED FUNDING PROGRAMS, UNTIL EVERY PATIENT HAS A SAFE AND EFFECTIVE THERAPY. IN FISCAL YEAR 2011, LLS SUPPORTED RESEARCH IN THE U.S., CANADA, AND 10 OTHER COUNTRIES WITH A TOTAL RESEARCH DISBURSEMENT OF MORE THAN 66 MILLION. OUR CRITICAL ROLE LLS PROGRAMS ACCELERATE RELEVANT RESEARCH OUTCOMES BY: -BUILDING A FOCUSED RESEARCH WORK-FORCE: ASSURING THE NEXT ROUND OF BREAKTHROUGHS REQUIRES THAT YOUNG INVESTIGATORS BE ENCOURAGED TO WORK IN BLOOD CANCER RESEARCH FIELDS. -TURNING DISCOVERIES INTO CLINICAL PROGRESS: BASIC SCIENCE DISCOVERIES MUST BE TRANSLATED INTO NEW, SAFE AND EFFECTIVE TREATMENTS THAT CAN ULTIMATELY PROLONG AND ENHANCE PATIENT LIVES. -SUPPORTING SYNERGY: LARGE GRANTS AND CONTRACTS ENABLE SCIENTISTS IN ACADEMIA AND THE PRIVATE-SECTOR TO COLLABORATE, COMBINING RESOURCES AND EXPERTISE TO PRODUCE MORE AND FASTER ADVANCES. -FILLING A VOID: PROMISING RESEARCH PROJECTS THAT ARE HIGH-RISK AND/OR ADDRESS RARE CANCERS ARE LESS LIKELY TO BE FUNDED BY THE GOVERNMENT OR BY FOR-PROFIT COMPANIES, BUT MAY PROVIDE IMPORTANT ADVANCES. -INCREASING ACCESS TO CLINICAL TRIALS: PARTNERING WITH LEADING CLINICAL TRIAL CENTERS CAN ACCELERATE THE CLINICAL TESTING OF NEW BLOOD CANCER THERAPIES THAT ARE OFTEN A PATIENT'S BEST CHANCE FOR CURE. LLS RESEARCH PROGRAMS ARE BASED ON THE BELIEF THAT SCIENTIFICALLY SOUND APPROACHES TOWARD CURES FOR, OR CONTROL OF, BLOOD CANCERS SHOULD BE SUPPORTED WORLDWIDE.TWO MAJOR INTEGRATED RESEARCH FUNDING PROGRAMS THE RESEARCH GRANT PROGRAM AND THE THERAPY ACCELERATION PROGRAM HAVE ADVISORY INPUT FROM WORLD RENOWNED BIOMEDICAL RESEARCH EXPERTS. TOGETHER THESE PROGRAMS: -SUPPORT THE ENTIRE RESEARCH CONTINUUM NEEDED TO IMPROVE OUTCOMES FOR BLOOD CANCER PATIENTS FROM BASIC LABORATORY SCIENCE TO CLINICAL TRIALS OF NEW AGENTS AND FROM INVESTIGATOR INITIATED RESEARCH TO MULTIDISCIPLINARY ACADEMIC COLLABORATIONS AND PRIVATE SECTOR DRUG DEVELOPMENT ALLIANCES. -ARE AIMED AT THE EFFECTIVE DISCOVERY AND DEVELOPMENT OF NEW AND BETTER THERAPIES FOR PEOPLE WITH BLOOD CANCER, AND, THROUGH A RESEARCH INITIATIVE LAUNCHED IN 2009, SUPPORT THE DEVELOPMENT OF MEASURES TO PREVENT OR SIGNIFICANTLY REDUCE POTENTIAL LONG-TERM AND LATE TOXICITIES OF TODAY'S CURATIVE THERAPIES. RESEARCH GRANT PROGRAM THE RESEARCH GRANT PROGRAM PROVIDES GRANT FUNDING TO SUPPORT SCIENTIFIC STUDIES AT ACADEMIC CENTERS IN THE UNITED STATES AND THROUGHOUT THE WORLD, THROUGH THREE GRANT MECHANISMS: 1. THE CAREER DEVELOPMENT PROGRAM (CDP) PROVIDES STIPENDS TO INVESTIGATORS OF EXCEPTIONAL PROMISE IN THE EARLY STAGES OF THEIR CAREERS, HELPING THEM TO DEVOTE THEIR CAREERS TO LEUKEMIA, LYMPHOMA AND/OR MYELOMA RESEARCH. THIS PROGRAM IS STRATIFIED INTO TWO SEPARATELY REVIEWED PROGRAMS IN BASIC OR CLINICAL RESEARCH: -BASIC RESEARCH "SCHOLARS ARE AWARDED UP TO 110,000 A YEAR FOR A TOTAL OF UP TO 550,000 OVER FIVE YEARS. "SPECIAL FELLOWS ARE AWARDED UP TO 65,000 A YEAR FOR A TOTAL OF UP TO 195,000 OVER THREE YEARS. "FELLOWS ARE AWARDED UP TO 55,000 A YEAR FOR A TOTAL OF UP TO 165,000 OVER THREE YEARS. -CLINICAL RESEARCH "SCHOLARS IN CLINICAL RESEARCH ARE AWARDED UP TO 110,000 A YEAR FOR A TOTAL OF UP TO 550,000 OVER FIVE YEARS. "SPECIAL FELLOWS IN CLINICAL RESEARCH ARE AWARDED UP TO 65,000 A YEAR FOR A TOTAL OF UP TO 195,000 OVER THREE YEARS. 2. THE TRANSLATIONAL RESEARCH PROGRAM (TRP) SUPPORTS OUTSTANDING INVESTIGATIONS DEEMED BY OUR EXPERT ADVISORS MOST LIKELY TO TRANSLATE BASIC BIOMEDICAL DISCOVERIES INTO NEW, SAFE AND EFFECTIVE TREATMENTS, ULTIMATELY PROLONGING AND ENHANCING PATIENTS' LIVES. TRANSLATIONAL RESEARCH AWARDS ARE MADE FOR AN INITIAL THREE-YEAR PERIOD. AWARDS UP TO 200,000 PER YEAR FOR THREE YEARS, FOR A TOTAL OF UP TO 600,000, ARE GRANTED EACH YEAR. FUNDING FOR TWO ADDITIONAL YEARS MAY BE PROVIDED FOR HIGHLY PROMISING PROJECTS THAT ARE ENTERING PHASE 1 CLINICAL TRIALS. THUS, RESEARCH REACHING A CLINICAL TRIAL CAN RECEIVE UP TO 1 MILLION OVER FIVE YEARS TO FACILITATE NEW DRUG DISCOVERY OR ADVANCES IN DIAGNOSIS OR PREVENTION. IN 2011, LLS ACTIVELY REQUESTED PROPOSALS TO HELP STIMULATE MORE ACADEMIC RESEARCH IN THREE UNDERDEVELOPED YET IMPORTANT AREAS OF RESEARCH. THE RESEARCH TOPICS EMPHASIZED WERE: 1) THE MALIGNANT STEM CELL IN ACUTE MYELOGENOUS LEUKEMIA AND MYELODYSPLASTIC SYNDROMES; 2) NON-CUTANEOUS T-CELL LEUKEMIAS AND LYMPHOMAS AND 3) HIGH RISK MYELOMA CASES. IN ADDITION, A REQUEST FOR RESEARCH FOCUSED ON LONG-TERM AND LATE EFFECTS OF BLOOD CANCER THERAPIES WAS EXTENDED INTO A SECOND YEAR. PROGRESS IN THESE RESEARCH AREAS IS DEEMED LIKELY TO IMPROVE OUTCOMES FOR PATIENTS WITH PARTICULARLY URGENT NEEDS. 3. THE MARSHALL A. LICHTMAN SPECIALIZED CENTER OF RESEARCH PROGRAM (SCOR) ENCOURAGES MULTIDISCIPLINARY RESEARCH BY LEADING-EDGE ACADEMIC INVESTIGATORS IN TEAMS OF AT LEAST THREE RESEARCH GROUPS THAT INTERACT TO FOSTER ADVANCES IN THE DIAGNOSIS, TREATMENT AND/OR PREVENTION OF BLOOD CANCERS. EACH SCOR GROUP IS FUNDED UP TO 1.25 MILLION PER YEAR OVER A FIVE-YEAR PERIOD, WITH A TOTAL AMOUNT OF UP TO 6.25 MILLION. AWARDS GO TO THOSE GROUPS THAT BEST DEMONSTRATE SYNERGISTIC EXPERTISE IN COMPLEMENTARY AREAS . THE PARTICIPATING SCIENTISTS MAY BE AT DIFFERENT INSTITUTIONS OR FROM ANY COUNTRY. THE GRANT REVIEW PROCESS FOR THE RESEARCH GRANT PROGRAM. SCIENTISTS AND PHYSICIAN SCIENTISTS WHO ARE EXPERTS IN THE FIELD OF BLOOD CANCER RESEARCH VOLUNTEER THEIR SERVICE TO CONSTITUTE PEER-REVIEW SUBCOMMITTEES FOR BASIC RESEARCH CDP, CLINICAL RESEARCH CDP, TRP AND SCOR. THESE COMMITTEES EVALUATE ALL GRANT APPLICATIONS IN THOSE PROGRAMS AND SELECT THOSE APPLICANTS WITH THE MOST INNOVATIVE AND IMPORTANT PROJECTS TO ADVANCE THE MISSION OF LLS. GUIDELINES, INSTRUCTIONS AND APPLICATIONS FOR THE THREE LLS RESEARCH PROGRAMS MAY BE OBTAINED BY VISITING WWW.LLS.ORG OR BY EMAILING RESEARCHPROGRAMS@LLS.ORG. THERAPY ACCELERATION PROGRAM THE THERAPY ACCELERATION PROGRAM (TAP) IS A STRATEGIC LLS INITIATIVE LAUNCHED IN 2007 WITH 4 MILLION IN SEED FUNDING. THE PROGRAM ACCELERATES NEW AND POTENTIALLY BETTER TREATMENTS AND CLINICAL TESTS INTO PRECLINICAL DEVELOPMENT AND CLINICAL TRIALS. WORKING IN CONCERT WITH ACADEMIC INVESTIGATORS, MEDICAL CENTERS AND COMPANIES, TAP IS FURTHER BRIDGING THE GAP BETWEEN DISCOVERY AND HUMAN APPLICATIONS TO INCREASE THE LIKELIHOOD THAT NOVEL, POSSIBLY BREAKTHROUGH, TREATMENTS WILL BE MADE AVAILABLE TO PATIENTS AS SOON AS POSSIBLE. TAP ENCOMPASSES THREE INNOVATIVE EFFORTS: 1. THE ACADEMIC CONCIERGE DIVISION IDENTIFIES CURRENT LLS FUNDED RESEARCH WITH THE GREATEST CLINICAL PROMISE AND PROVIDES THE FUNDING AND SUPPORT NEEDED TO ADVANCE SELECTED PROJECTS TO THE PRODUCT STAGE. 2.THE CLINICAL TRIALS DIVISION PARTNERS LLS WITH ONE OF THE COUNTRY'S LEADING CLINICAL TRIAL CENTERS TO ACCELERATE THE TESTING OF NEW BLOOD CANCER THERAPIES IN CLINICAL TRIALS. 3. THE BIOTECHNOLOGY ACCELERATOR DIVISION ALLIES LLS WITH COMPANIES TO COMBINE SCIENTIFIC AND FINANCIAL RESOURCES AND ACCELERATE THE DEVELOPMENT OF POTENTIAL THERAPIES THAT OTHERWISE WOULD NOT BE PRIORITIZED BY THE COMPANY. THE TAP PROJECT REVIEW PROCESS INVOLVES DUE DILIGENCE BY AN LLS STAFF TEAM OF DRUG DEVELOPMENT SPECIALISTS IN CONCERT WITH A VOLUNTEER PANEL OF LEADING BIOTECHNOLOGY AND PHARMACEUTICAL COMPANY EXECUTIVES AND INTELLECTUAL PROPERTY AND BUSINESS DEVELOPMENT EXPERTS. THE LEARNING COLLABORATIVE IN 2011, LLS BEGAN A UNIQUE COLLABORATION WITH THE UNIVERSITY OF KANSAS CANCER CENTER AND THE NATIONAL INSTITUTES OF HEALTH TO ACCELERATE THE DEVELOPMENT OF POTENTIAL THERAPIES FOR RARE BLOOD CANCERS. THIS COLLABORATION, KNOWN AS THE LEARNING COLLABORATIVE, BRINGS TOGETHER PROVEN EXPERTISE IN BLOOD CANCER RESEARCH AS WELL AS DRUG DISCOVERY AND DEVELOPMENT TO RAPIDLY ADVANCE PROMISING NEW THERAPIES FROM THE BENCH TO THE BEDSIDE. IF SUCCESSFUL, THE LEARNING COLLABORATIVE'S NOVEL MODEL WILL DEMONSTRATE THAT GOVERNMENT, ACADEMIA, DISEASE PHILANTHROPY AND INDUSTRY CAN SUCCESSFULLY PARTNER TO SAFELY AND EFFICIENTLY ADVANCE NEW OR REPURPOSED DRUG THERAPIES TO PATIENTS. SECOND ACHIEVEMENT DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4B CHAPTER-BASED PROGRAMS: EACH LLS CHAPTER IS STAFFED WITH A PATIENT SERVICES MANAGER WHO OVERSEES THE CHAPTER'S SERVICES TO PATIENTS AND THEIR FAMILIES. PATIENT SERVICES MANAGERS ARE HEALTHCARE PROFESSIONALS, OFTEN WITH A BACKGROUND IN ONCOLOGY NURSING OR SOCIAL WORK. COMMUNITY BASED EDUCATION, INCLUDING THE FOLLOWING FOUR PROGRAMS, ARE OFFERED THROUGH ALL THE CHAPTERS - 38,959 PATIENT AND CAREGIVER PARTICIPANTS IN 2011 - 12,236 HEALTHCARE PROFESSIONAL PARTICIPANTS IN 2011 IMPROVING TREATMENTS FOR BLOOD CANCERS: WHAT YOU NEED TO KNOW TO MAKE INFORMED DECISIONS THIS PROGRAM DETAILS NEW TREATMENT DEVELOPMENT, TREATMENT DECISIONS (STANDARD OF CARE VERSUS CLINICAL TRIALS) AND HOW PATIENTS CAN COMMUNICATE MORE EFFECTIVELY WITH THEIR MEDICAL TEAMS. MYELOMA UPDATE: DIAGNOSIS, TREATMENT AND SIDE EFFECTS MANAGEMENT THIS PROGRAM PROVIDES PATIENTS, FAMILY MEMBERS AND CAREGIVERS WITH THE LATEST INFORMATION ON MYELOMA AND MYELOMA THERAPY, INCLUDING A QUESTION AND ANSWER SESSION WITH A MEDICAL EXPERT IN THEIR COMMUNITY. GETTING THE BEST CANCER CARE AT AGE 55 AND OLDER THIS EDUCATION PROGRAM PRESENTS AN OVERVIEW OF THE MANY FACTORS, NOT AGE ALONE, THAT HEALTHCARE PROFESSIONALS SHOULD ASSESS TO DETERMINE AN APPROPRIATE CANCER TREATMENT PLAN FOR AN OLDER ADULT. WELCOME BACK: WORKING TOGETHER TO SUPPORT THE CANCER SURVIVOR AT SCHOOL THIS EDUCATION PROGRAM DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE SHORT- AND LONG-TERM EFFECTS THAT CHILDREN MAY EXPERIENCE AFTER TREATMENT, AND OFFERS NUMEROUS RESOURCES THAT CAN IMPROVE THE TRANSITION OF CANCER SURVIVORS FROM CLINIC TO CLASSROOM. SUPPORT SERVICES: FAMILY SUPPORT GROUPS LLS HAS DEVELOPED 452 FAMILY SUPPORT GROUPS AT CHAPTERS THROUGHOUT THE US AND CANADA. LLS ALSO HAS 825 VOLUNTEER SUPPORT GROUP FACILITATORS WITH BACKGROUNDS IN ONCOLOGY NURSING OR SOCIAL WORK. GROUPS ARE GUIDED BY TWO VOLUNTEER ONCOLOGY HEALTH PROFESSIONALS, AND PROVIDE INFORMATION AND SUPPORT AND ENCOURAGE GREATER COMMUNICATION AMONG PATIENTS, FAMILIES, FRIENDS AND HEALTH CARE PROFESSIONALS. - 13,108 PARTICIPANTS IN FAMILY SUPPORT GROUPS IN 2011 PATTI ROBINSON KAUFMANN FIRST CONNECTION PROGRAM FIRST CONNECTION IS A PROGRAM THAT LINKS NEWLY DIAGNOSED PATIENTS TO A PEER VOLUNTEER WHO HAS EXPERIENCED A SIMILAR DIAGNOSIS. A TRAINED PATIENT-VOLUNTEER CURRENTLY IN REMISSION CONTACTS THE NEW PATIENT TO SHARE INFORMATION AND SUPPORT. THIS PROGRAM IS AVAILABLE THROUGH LLS CHAPTERS. - 5,094 FIRST CONNECTIONS IN 2011 PATIENT FINANCIAL AID PROGRAM FOR MORE THAN 45 YEARS, LLS HAS HELPED PATIENTS DEMONSTRATING SIGNIFICANT NEED TO OBTAIN FINANCIAL ASSISTANCE TO COVER A PORTION OF THEIR TREATMENT COSTS. THE LLS PATIENT FINANCIAL AID PROGRAM PROVIDES A LIMITED AMOUNT OF FINANCIAL ASSISTANCE TO HELP PATIENTS WITH SIGNIFICANT FINANCIAL NEED AND WHO ARE UNDER A DOCTOR'S CARE FOR A CONFIRMED BLOOD CANCER DIAGNOSIS. PATIENT FINANCIAL AID FUNDS ARE SUBJECT TO AVAILABILITY. - 37,210 PATIENTS RECEIVED FINANCIAL AID IN 2011 CO-PAY ASSISTANCE PROGRAM THIS ASSISTANCE PROGRAM HELPS PATIENTS WITH MANY KINDS OF BLOOD CANCERS MEET THEIR HEALTH INSURANCE OR MEDICARE PLAN PART B OR D PREMIUMS OR CO-PAYMENT OBLIGATIONS RELATED TO TREATING THEIR CANCER. PATIENTS WITH PRESCRIPTION DRUG COVERAGE, MEDICARE BENEFICIARIES UNDER MEDICARE PART B AND/OR MEDICARE PART D, MEDICARE SUPPLEMENTARY HEALTH INSURANCE OR MEDICARE ADVANTAGE SHOULD CHECK WITH LLS TO SEE IF THEY MEET ELIGIBILITY REQUIREMENTS TO RECEIVE FINANCIAL SUPPORT. CO-PAY ASSISTANCE IS SUBJECT TO FUND AVAILABILITY BY SPECIFIC BLOOD CANCER DIAGNOSIS. FOR MORE INFORMATION CALL, (877) LLS-COPAY (877) 557-2672 OR VISIT WWW.LLS.ORG/COPAY. - 13,130 PATIENTS RECEIVED LLS CO-PAY ASSISTANCE IN 2011 THE TRISH GREENE BACK TO SCHOOL PROGRAM FOR CHILDREN WITH CANCER THIS PROGRAM IS DESIGNED TO INCREASE COMMUNICATION AMONG HEALTH CARE PROFESSIONALS, PARENTS, PATIENTS AND SCHOOL PERSONNEL TO ASSURE YOUNGSTERS A SMOOTH TRANSITION FROM ACTIVE TREATMENT BACK TO SCHOOL. PRINTED LITERATURE, VIDEOS AND OTHER MATERIALS TO AID THE PROCESS ARE AVAILABLE THROUGH ALL LOCAL CHAPTERS, INCLUDING: "WELCOME BACK: WORKING TOGETHER TO SUPPORT THE CANCER SURVIVOR AT SCHOOL". THIS EDUCATION PROGRAM DISCUSSES POSSIBLE EMOTIONAL AND COGNITIVE SHORT- AND LONG-TERM EFFECTS THAT CHILDREN MAY EXPERIENCE AFTER TREATMENT, AND OFFERS NUMEROUS RESOURCES THAT CAN IMPROVE THE TRANSITION OF CANCER SURVIVORS FROM CLINIC TO CLASSROOM. - 3,219 SCHOOL PERSONNEL, HEALTHCARE PROFESSIONALS AND PARENTS PARTICIPATED IN THE 74 WELCOME BACK PROGRAMS ACROSS THE US AND CANADA "LEARNING AND LIVING WITH CANCER: ADVOCATING FOR YOUR CHILD'S EDUCATIONAL NEEDS" THIS BOOKLET OFFERS PARENTS INFORMATION ON THE LEARNING CHALLENGES CHILDREN MAY FACE DURING AND AFTER CANCER TREATMENT, LAWS THAT PROTECT THE EDUCATIONAL NEEDS OF CHILDREN WITH CANCER AND SPECIFIC WAYS THAT SCHOOLS CAN HELP MEET A CHILD'S EDUCATIONAL NEEDS THIRD ACHIEVEMENT DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4C PATIENTS, FAMILIES AND HEALTHCARE PROFESSIONALS MAY SPEAK TO AN INFORMATION SPECIALIST AT (800) 955-4572 MONDAY THROUGH FRIDAY, 9 A.M. TO 6 P.M., ET OR EMAIL INFOCENTER@LLS.ORG. - 69,777 INQUIRIES IN 2011 - TRANSLATION SERVICES AVAILABLE IN MORE THAN 165 LANGUAGES ONLINE ENGAGEMENT THE LLS WEBSITE SERVES A WIDE VARIETY OF EDUCATION AND INFORMATION NEEDS. USERS CAN PERSONALIZE THEIR LLS WEB PAGES TO KEEP CURRENT WITH DISEASE SPECIFIC UPDATES AND LOCAL CHAPTER EDUCATION, SUPPORT AND EVENT ACTIVITIES. THE SITE FEATURES A COMPREHENSIVE OVERVIEW OF LLS PROGRAMS AND SERVICES, FAMILY SUPPORT GROUP LOCATIONS, INFORMATION ABOUT OUR PEER-TO-PEER PATTI ROBINSON KAUFMANN FIRST CONNECTION PROGRAM, AND OTHER PROGRAMS. PATIENTS, CAREGIVERS AND HEALTHCARE PROFESSIONALS CAN INTERACT WITH LLS IN CONVENIENT AND PERSONAL WAYS THROUGH SOCIAL NETWORKING, PODCASTS AND ENEWSLETTERS. - 5.8 MILLION UNIQUE VISITS TO WWW.LLS.ORG IN 2011, WITH MORE THAN 7.5 MILLION PAGE VIEWS - 409,799 UNIQUE VISITS TO OUR BLOOD CANCER DISCUSSION BOARDS - 157,877 TELECONFERENCE DOWNLOADS - 208,822 SUBSCRIBERS TO OUR DISEASE SPECIFIC ENEWSLETTERS, WHICH ARE ISSUED ON A MONTHLY BASIS - 116,797 FOLLOWERS OF OUR PATIENT AND CAREGIVER COMMUNITY ONLINE TELEPHONE & WEB EDUCATION PROGRAMS LLS SPONSORS TELEPHONE AND WEB EDUCATION PROGRAMS FOR PATIENTS, CAREGIVERS, SURVIVORS AND HEALTHCARE PROFESSIONALS ABOUT LEUKEMIA, LYMPHOMA, MYELOMA AND MYELODYSPLASTIC SYNDROMES. UPCOMING PROGRAMS ARE POSTED AT WWW.LLS.ORG/PROGRAMS AND ARCHIVES OF PAST PROGRAMS ARE AVAILABLE AT WWW.LLS.ORG/PASTPROGRAMS. - 251,077 TELEPHONE AND WEB-BASED PROGRAM PARTICIPANTS IN 2011 EDUCATION MATERIALS AN EXTENSIVE CATALOG OF EDUCATION MATERIALS IS OFFERED FREE-OF-CHARGE TO PATIENTS AND HEALTHCARE PROFESSIONALS. EACH YEAR, LLS DISTRIBUTES BOOKLETS, BROCHURES, FACT SHEETS, EDUCATION PROGRAM TRANSCRIPTS AND DVDS THROUGH THE INFORMATION RESOURCE CENTER AND LOCAL LLS CHAPTERS. - 1,061,018 PRINTED BOOKLETS, BROCHURES, FACT SHEETS, EDUCATION PROGRAM TRANSCRIPTS AND DVDS DISTRIBUTED IN 2011 MANY MATERIALS ARE ALSO AVAILABLE TO VIEW AND DOWNLOAD AT WWW.LLS.ORG/RESOURCECENTER. DOWNLOADABLE MATERIALS ARE AVAILABLE IN ENGLISH, SPANISH AND FRENCH. ALL OTHER ACHIEVEMENTS DESCRIPTION FORM 990, PAGE 2, PART III, LINE 4D D) PROFESSIONAL EDUCATION: LLS SERVES THE EDUCATIONAL NEEDS OF THE MEDICAL AND RESEARCH COMMUNITY THROUGH A NUMBER OF PROFESSIONAL EDUCATION SYMPOSIA OFFERED THROUGHOUT THE YEAR. THE EDUCATIONAL PROGRAM OFFERS VARYING FORMATS TO FACILITATE THE EXCHANGE OF INFORMATION AND IDEAS ON THE NEWEST DEVELOPMENTS IN CANCER RESEARCH AND TREATMENT. FINANCIAL ACCOUNTS IN FOREIGN COUNTRIES FORM 990, PART V, LINE 4B CANADA CLASSES OF MEMBERS OR STOCKHOLDERS FORM 990, PAGE 6, PART VI, LINE 6 THE MEMBERS OF LLS CONSIST OF ONE ELECTED REPRESENTATIVE FROM EACH CHAPTER. ELECTION OF MEMBERS AND THEIR RIGHTS FORM 990, PAGE 6, PART VI, LINE 7A THE BOARD OF REPRESENTATIVES (REPRESENTING THE CHAPTERS) ELECTS THE MEMBERS OF LLS'S GOVERNING BODY, ITS NATIONAL BOARD OF DIRECTORS. DECISIONS SUBJECT TO APPROVAL OF MEMBERS FORM 990, PAGE 6, PART VI, LINE 7B SIGNIFICANT DECISIONS AFFECTING THE CHAPTERS REQUIRE AN APPROVING VOTE BY THE CHAPTER DELEGATES. DECISIONS NOT SIGNIFICANTLY AFFECTING THE CHAPTERS DO NOT REQUIRE APPROVAL FROM THE CHAPTER DELEGATES. ORGANIZATION'S PROCESS USED TO REVIEW FORM 990 FORM 990, PAGE 6, PART VI, LINE 11B THE FORM 990 WAS PREPARED BY THE LLS FINANCE DEPARTMENT AND WAS REVIEWED BY THE CFO, VICE PRESIDENT OF FINANCE, AND KPMG FOR COMMENT AND SUGGESTED REVISIONS. THE FORM 990 WAS THEN PROVIDED TO THE AUDIT COMMITTEE, WHICH IS A COMMITTEE OF THE BOARD OF DIRECTORS. THE AUDIT COMMITTEE REVIEWED THE 990 AND PROVIDED INPUT PRIOR TO FILING. THE FINAL DRAFT FORM 990 WAS PROVIDED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING BY POSTING THE FORM ON AN INTRANET WEBSITE. ENFORCEMENT OF CONFLICTS POLICY FORM 990, PAGE 6, PART VI, LINE 12C ALL EMPLOYEES, BOARD OF DIRECTORS MEMBERS, BOARD OF REPRESENTATIVES MEMBERS, CHAPTER BOARD MEMBERS, FAMILY SUPPORT GROUP FACILITATORS, AND TNT COACHES ARE REQUIRED TO REVIEW THE CONFLICT OF INTEREST POLICY ON AN ANNUAL BASIS AND SUBMIT A SIGNED FORM ACKNOWLEDGING THAT THEY HAVE REVIEWED THE POLICY AND DISCLOSED ANY CONFLICTS OF INTEREST. ALL FORMS ARE COLLECTED AND THE AUDIT COMMITTEE REVIEWS ANY FORMS DISCLOSING A POSSIBLE CONFLICT OF INTEREST AND DETERMINES WHETHER OR NOT A CONFLICT EXISTS. COMPENSATION PROCESS FOR TOP OFFICIAL FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE, COMPRISED OF INDEPENDENT MEMBERS OF THE BOARD OF DIRECTORS, REVIEWS AND MONITORS THE CHIEF EXECUTIVE OFFICER'S PERFORMANCE AND COMPENSATION. THE COMMITTEE OBTAINED A SURVEY OF OTHER NOT-FOR-PROFIT ORGANIZATIONS' COMPENSATION RANGES AND SET THE CHIEF EXECUTIVE'S SALARY COMMENSURATELY. THE REVIEW WAS DOCUMENTED IN THE EXECUTIVE COMMITTEE'S MINUTES. COMPENSATION PROCESS FOR OFFICERS FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE COMMITTEE, COMPRISED OF INDEPENDENT MEMBERS OF THE BOARD OF DIRECTORS, REVIEWED A SURVEY OF OTHER NOT-FOR-PROFIT ORGANIZATIONS' COMPENSATION RANGES AND COMPARED THIS TO THE OTHER OFFICER'S SALARY AND DETERMINED THAT IT WAS APPROPRIATE. THE REVIEW WAS DOCUMENTED IN THE EXECUTIVE COMMITTEE'S MINUTES. STATES WHERE COPY OF RETURN IS FILED FORM 990, PAGE 6, PART VI, LINE 17 ALASKA, ARKANSAS, ARIZONA, CALIFORNIA, CONNECTICUT, DELAWARE, FLORIDA, GEORGIA, ILLINOIS, INDIANA, KANSAS, KENTUCKY, LOUISIANA, MASSACHUSETTS, MARYLAND, MAINE, MICHIGAN, MINNESOTA, MISSOURI, MISSISSIPPI, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEVADA, NEW YORK, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, PUERTO RICO, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, UTAH, VIRGINIA, WASHINGTON, WISCONSIN, WEST VIRGINIA GOVERNING DOCUMENTS DISCLOSURE EXPLANATION FORM 990, PAGE 6, PART VI, LINE 19 THE LEUKEMIA & LYMPHOMA SOCIETY, INC. MAKES ITS ANNUAL FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON ITS WEBSITE AT WWW.LLS.ORG. ITS GOVERNING DOCUMENTS ARE MADE AVAILABLE, WHEN CHANGES ARE MADE, AS PART OF THE 990 AVAILABLE FOR PUBLIC INSPECTION. ANY IDENTIFIED CONFLICTS OF INTEREST ARE DISCLOSED IN THE 990. ADDITIONAL INFORMATION FORM 990, PART VII SECTION B, LINE 1 OTHER CHANGES IN NET ASSETS EXPLANATION FORM 990, PART XI, LINE 5 RECONCILIATION OF CHANGE IN NET ASSETS ON A CONSOLIDATED BASIS TO SEPARATE COMPANY BASIS: CHANGE IN NET ASSETS PER AUDITED FINANCIAL STATEMENTS 10,432,000 PLUS: CHANGE IN NET ASSETS LLS CANADA 183,453 PLUS: LLSRF AND LLSRP ACTIVITY 39,395 PLUS: FOREIGN CURRENCY TRANSLATION ADJUSTMENT (320,000) PLUS: AUDITED FINANCIAL STATEMENT ROUNDING 1,976 EQUALS: CHANGE IN NET ASSETS PER 990 10,336,824 SCHEDULE D PART XI LINE 9 7,440,623 CHANGE IN NET ASSETS ABOVE (95,176) 990 PART XI LINE 5 7,345,447 THE AUDITED FINANCIAL STATEMENTS FOR THE LEUKEMIA & LYMPHOMA SOCIETY, INC. INCLUDE THE LEUKEMIA & LYMPHOMA SOCIETY OF CANADA, THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH PROGRAMS, INC., AND THE LEUKEMIA & LYMPHOMA SOCIETY RESEARCH FOUNDATION IN ADDITION TO LLS. THE LLS OF CANADA 804-2 LANSING SQUARE TORONTO CA M2J4P8 PART VII CA N/A false THE LLS RESEARCH PROGRAMS INC 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 133470494 PART VII DE 501C3 11B LLS INC true THE LLS RESEARCH FOUNDATION 1311 MAMARONECK AVENUE WHITE PLAINS NY 10605 133709252 PART VII DE 501C3 11B LLS INC true ROY & ANN BERGER 201 LINCOLN AVENUE NORWELL MA 02061 999999999 CRUT NH N/A TRUST 53892 1.00000 false false true true false false false false false false false false true true false false false false THE LEUKEMIA & LYMPHOMA SOCIETY D 135950 COST OF CANADA GROUP EXEMPTION RELATIONSHIPS SCHEDULE R SCHEDULE R PART II COLUMN B THE LEUKEMIA LYMPHOMA SOCIETY OF CANADA CARRIES OUT THE SAME PRIMARY ACTIVITIES AS THE LEUKEMIA LYMPHOMA SOCIETYINC IN CANADA THE LEUKEMIA LYMPHOMA SOCIETY RESEARCH PROGRAMSINC AND THE LEUKEMIA LYMPHOMA SOCIETY RESEARCH FOUNDATION SUPPORT THE ACTIVITIES OF THE LEUKEMIA LYMPHOMA SOCIETY INC