2012-05-07T10:36:15-05:00 2011-12-31 910189318 MOSS ADAMS LLP 975 OAK STREET SUITE 500 EUGENE OR 97401 990 2011-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 1801 WILLAMETTE STREET STE 200 NO 200 EUGENE OR 97401 BARRY RUBENSTEIN 5416874658 2012-04-30 1 JOHN GARNSEY P00911103 5416861040 2011 2016-02-24 21:20:13Z BARRY RUBENSTEIN 1801 WILLAMETTE STREET STE 200 NO 200 EUGENE OR 97401 3051928 0 X WWW.FANCONI.ORG X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT TO AFFECTED FAMILIES WORLDWIDE. 12 12 6 10 0 0 1696806 2935471 0 0 135377 105810 2505 14 1834688 3041295 350109 345000 0 0 305384 331131 0 0 104112 710556 785489 1366049 1461620 468639 1579675 5044440 6468934 444895 334739 4599545 6134195 TO FIND EFFECTIVE TREATMENT AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE. 0 0 960828 345000 SUPPORT OF RESEARCH INTO THE CAUSE AND CURE OF FANCONI ANEMIA 255974 14 PROVIDING EDUCATION AND SUPPORT TO FAMILIES AFFECTED BY FANCONI ANEMIA 1216802 1 1 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 6 6 6 1 0 0 0 0 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 1 0 AL AK AZ AR CA FL GA IL KS KY LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X X BEV MAYHEW 5416874658 1801 WILLAMETTE STREET EUGENE OR 97401 BARRY RUBENSTEIN 2.00 X X 0 0 0 LYNN FROHNMAYER 10.00 X X 0 0 0 KEVIN MCQUEEN 1.00 X 0 0 0 RUBY BROCKETT 1.00 X X 0 0 0 DEANE MARCHBEIN 6.00 X 0 0 0 ROBERT SACKS 1.00 X 0 0 0 MICHAEL VANGEL 1.00 X 0 0 0 MARK PEARL 1.00 X 0 0 0 PEG PADDEN 1.00 X 0 0 0 RICHARD GELINAS 3.00 X 0 0 0 KEVIN ROGERS 1.00 X 0 0 0 BRIAN MATTHEWS 1.00 X 0 0 0 BEV MAYHEW 40.00 X 96800 0 0 96800 0 0 0 0 0 0 0 2935471 258258 2935471 116443 116443 10633 -10633 -10633 -10633 OTHER INCOME 900099 14 14 14 3041295 14 0 105810 227500 227500 117500 117500 96800 77440 19360 165920 107468 44457 13995 44303 34345 7289 2669 24108 18533 4172 1403 2490 2490 18386 18386 11337 11337 44011 23781 5466 14764 17733 12634 1878 3221 20688 14482 3103 3103 454743 448712 6031 7640 7640 SPECIAL PROJECTS 49880 49880 MISCELLANEOUS 44955 29192 15763 POSTAGE 36078 22691 3131 10256 PRINTING 29281 29281 48267 39416 4030 4821 1461620 1216802 140706 104112 422414 1040419 18331 232680 30000 31402 2135 1781 90856 81576 12529 9280 4542570 5141302 16461 12070 5044440 6468934 10565 28881 434330 305858 444895 334739 X 4540320 4845202 59225 1288993 4599545 6134195 5044440 6468934 X 1579675 -45025 X 0 1 1 X 0 X 1313423 2500473 1792265 1696806 2935471 10238438 1313423 2500473 1792265 1696806 2935471 10238438 1516032 8722406 210948 214568 187424 139545 116443 868928 11107366 574310 0.78530 0.83270 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 10 1393303 234592 1716561 1 1 90856 81576 9280 9280 INVESTMENTS - OTHER SECURITIES 5141302 F 5141302 3041295 1461620 1579675 -45025 -45025 1534650 2997669 -45025 1399 -43626 3041295 0 3041295 1463019 1399 1399 1461620 0 1461620 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: FANCONI ANEMIA RESEARCH FUND, INC. IS A NOT-FOR-PROFIT ORGANIZATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL INCOME TAXES. THE ORGANIZATION HAS ALSO BEEN CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF THE INTERNAL REVENUE CODE AND AS AN ENTITY THAT QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS. ACCORDINGLY, NO PROVISION HAS BEEN MADE FOR INCOME TAXES IN THE FINANCIAL STATEMENTS PURSUANT TO ACCOUNTING STANDARDS CODIFICATION (ASC) 740, INCOME TAXES. THE ORGANIZATION GENERALLY EVALUATES ANY UNCERTAIN TAX POSITIONS CONSISTENT WITH THE ACCOUNTING AND DISCLOSURE REQUIREMENTS OF ASC 450, CONTINGENCIES. PART XII, LINE 2D - OTHER ADJUSTMENTS: GRANT ADJUSTMENT 1,399. PART XIII, LINE 2D - OTHER ADJUSTMENTS: GRANT ADJUSTMENT 1,399. 1 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH GRANTS 117500 EUROPE 0 0 PROGRAM SERVICE CONDUCTING SYMPOSIUM 206239 0 0 0 0 0 0 323739 0 323739 X EUROPE IDENTIFICATION OF PATHWAY(S) COMPENSATING FOR FA GENE DEFECTS 117500 0 FMV 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: GRANTS MADE OUTSIDE OF THE UNITED STATES ARE MONITORED THE SAME WAY AS GRANTS WITHIN THE UNITED STATES. ALL GRANTS ARE FOR RESEARCH AND THE RESULTS ARE REPORTED BACK TO THE ORGANIZATION. 1 UNIVERSITY OF MASSACHUSETTSWORCESTER MEDICAL SCHOOL BIOTECH V STE 250 381 PLANTATION ST ST WORCESTER MA 01655 043167352 GOV'T 100000 RECOMBINANT ADENO-ASSOCIATED VECTORS FOR IN VIVO GENE THERAPY OF FANCONI ANEMIA NORTHWESTERN UNIVERSITY OFFICE OF SPONSORED RESEARCH (OSR) 750 N LAKE SHORE DRIVE RUBLOFF 7TH FL CHICAGO IL 606114579 362167817 501(C)(3) 127500 PREDISPOSES TO ACUTE MYELOID LEUKEMIA, YEAR 2 PATHOPHYSIOLOGY AND TREATMENT OF FA 2 0 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: GRANTS ARE MADE FOR MEDICAL RESEARCH. ALL RESEARCH RESULTS ARE MONITORED BY THE BOARD OF DIRECTORS. X 3 258258 STOCK MARKET 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 THE 990 IS REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR AND THEN DISTRIBUTED TO THE BOARD. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ANNUALLY STATE ANY REAL OR POTENTIAL CONFLICTS OF INTEREST ON A CONFLICT OF INTEREST DISCLOSURE FORM. FORM 990, PART VI, SECTION B, LINE 15 IN 2011, EMPLOYEE COMPENSATION WAS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES. FORM 990, PART VI, SECTION C, LINE 19 WHEN REQUESTED, WE MAKE A COPY AND MAIL THEM TO THE REQUESTING PARTY. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED LOSSES ON INVESTMENTS: -45,025.