2013-06-19T13:21:11-05:00 2012-12-31 522041603 SQUIRE LEMKIN COMPANY LLP 111 ROCKVILLE PIKE SUITE 475 ROCKVILLE MD 20850 990 2012-01-01 202897110 BLADDER CANCER ADVOCACY NETWORK INC BLAD 3012159099 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 DIANE ZIPURSKY QUALE 3012159099 2013-06-18 1 CLINT LEHMAN P00840525 3014246800 2012 2016-02-24 21:20:13Z DIANE ZIPURSKY QUALE 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 1344233 0 X WWW.BCAN.ORG X 2005 MD TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER; TO ADVANCE BLADDER CANCER RESEARCH; AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 9 8 7 0 0 0 737781 1317133 34172 25856 65 1244 0 0 772018 1344233 25000 25000 0 0 313528 364438 0 0 121759 426841 424575 765369 814013 6649 530220 317334 839449 99600 91495 217734 747954 X TO INCREASE PUBLIC AWARENESS ABOUT BLADDER CANCER; TO ADVOCATE BLADDER CANCER RESEARCH; AND TO PROVIDE EDUCATIONAL AND SUPPORT SERVICES FOR THE BLADDER CANCER COMMUNITY. 0 0 273626 0 OUTREACH AND ADVOCACY- BCAN PROVIDES INFORMATION, RESOURCES AND SUPPORT TO BLADDER CANCER SURVIVORS, THEIR FAMILIES AND CAREGIVERS, AND THE MEDICAL COMMUNITY THROUGH OUR INTERACTIVE WEBSITE WHICH OFFERS A USER-FRIENDLY RESOURCE FOR PATIENTS, CLINICIANS AND CAREGIVERS AS WELL AS INSPIRATIONAL STORIES FROM SURVIVORS AND AN ONLINE COMMUNITY WHERE PATIENTS AND CAREGIVERS CAN FIND SUPPORT AND INFORMATION FROM OTHERS WHO ARE LIVING WITH THE DISEASE. THE STAFF RESPONDS TO REQUESTS FOR INFORMATION WHICH COMES THROUGH OUR OFFICE. BCAN STAFF, ALONG WITH LOCAL VOLUNTEERS, FACILITATED THE DEVELOPMENT OF SUPPORT GROUPS IN ROCHESTER, NY, INDIANAPOLIS, IN, AND MILWAUKEE, WI. MEMBERS OF OUR GROWING VOLUNTEER NETWORK HAVE PERSONALLY SPOKEN WITH OVER 750 UROLOGY PRACTICES AND CANCER CENTERS IN OVER 30 STATES TO DISTRIBUTE BCAN'S EDUCATIONAL INFORMATION TO OVER 3,000 PHYSICIANS. BCAN HAS DISTRIBUTED OVER 20,000 OF OUR COMPREHENSIVE PATIENT HANDBOOK, "BLADDER CANCER BASICS FOR THE NEWLY DIAGNOSED," TO SURVIVORS, CAREGIVERS, UROLOGY PRACTICES AND CANCER CENTERS ACROSS THE UNITED STATES. BCAN IS A MEMBER OF THE CANCER LEADERSHIP COUNCIL AND ONE VOICE AGAINST CANCER. BCAN PARTICIPATED IN THE ANNUAL MEETING OF THE AMERICAN SOCIETY FOR CLINICAL ONCOLOGY AND THE AMERICAN UROLOGICAL ASSOCIATION, AND NOMINATED VOLUNTEERS TO SERVE AS PATIENT ADVOCATES AT THE SOUTHWEST ONCOLOGY GROUP AND THE DEPARTMENT OF DEFENSE'S CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS. 96008 25856 EDUCATION AND INFORMATION - BCAN HELD THREE REGIONAL PATIENT FORUMS AT DIFFERENT VENUES IN THE COUNTRY WHICH GAVE PATIENTS AND THEIR CAREGIVERS AN OPPORTUNITY TO LEARN MORE ABOUT THEIR DISEASE FROM RECOGNIZED MEDICAL EXPERTS. CLOSE TO 300 SURVIVORS AND CAREGIVERS HEARD PRESENTATIONS ON BLADDER CANCER FROM EXPERTS IN THE FIELD AT PATIENT FORUMS IN LOS ANGELES, DENVER AND HOUSTON. THESE PRESENTATIONS ARE NOW AVAILABLE ON THE BCAN WEBSITE. BCAN CONTINUES TO DEVELOP ADDITIONAL EDUCATIONAL RESOURCES FOR SURVIVORS, CAREGIVERS, AND THE MEDICAL COMMUNITY. 192131 25000 0 RESEARCH - BCAN WORKS TO ADVANCE BLADDER CANCER RESEARCH. BCAN HOSTS THE ONLY ANNUAL SCIENTIFIC CONFERENCE IN NORTH AMERICA SOLELY FOCUSED ON BLADDER CANCER RESEARCH, THE BLADDER CANCER THINK TANK. THIS YEAR, BCAN RAISED $25,000 FOR OUR ANNUAL BCAN AWARD FOR BLADDER CANCER RESEARCH. THE GRANT PERIOD RUNS FROM JULY THROUGH JUNE OF THE FOLLOWING YEAR. FOR THE 2011 GRANT PERIOD, JULY 2011 - JUNE 2012, THE AWARD SUPPORTED DR. GIL REDELMAN-SIDI OF THE MEMORIAL SLOAN-KETTERING CANCER CENTER. FOR THE 2012 GRANT PERIOD, JULY 2012 - JUNE 2013, THE AWARD SUPPORTED DR. AMI S. BHATT OF THE DANA FARBER CANCER INSTITUTE AND BROAD INSTITUTE. 561765 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 17 0 1 7 1 0 0 0 0 0 1 1 0 0 0 0 X 9 8 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MD IL CA CT FL MA MI MO NJ NY OH PA RI VA WA GA X X THE ORGANIZATION 3012159099 4915 ST ELMO AVENUE NO 202 BETHESDA MD 20814 DIANE ZIPURSKY QUALE 25.00 X X 65000 0 0 JANICE ASHLEY 2.00 X 0 0 0 SETH LERNER 2.00 X 0 0 0 DAVID PULVER 2.00 X 0 0 0 MACE ROSENSTEIN 2.00 X X 0 0 0 RICHARD SCOLIO 2.00 X 0 0 0 JARED SHER 2.00 X X 0 0 0 ROBERT LEVIN 2.00 X 0 0 0 WILLIAM SHIPLEY 2.00 X 0 0 0 LAWRENCE RZEPKA 40.00 X 130200 0 0 195200 0 0 1 0 0 0 0 1317133 1317133 CONFERENCE INCOME 900099 23517 23517 OTHER INCOME 900099 2339 2339 25856 1244 1244 1344233 25856 0 1244 25000 25000 195200 136640 25376 33184 125625 88940 14727 21958 15657 11010 1956 2691 27956 19656 3495 4805 2617 626 1991 20533 20533 15339 15339 39692 23788 15904 101212 73195 12051 15966 43827 11502 10974 21351 56952 42714 7119 7119 36947 26637 7986 2324 78398 76399 1999 6247 4685 781 781 2909 2182 363 364 LICENSES & PERMITS 11059 50 377 10632 DUES AND MEMBERSHIP 5231 3000 1671 560 BOARD EXPENSES 2538 2538 BANK FEES 1074 402 648 24 814013 561765 130489 121759 272365 545715 250448 20129 19704 1966 6436 4516 28967 17596 8743 11371 7695 7695 317334 839449 42100 8489 37500 50000 20000 20000 0 13006 99600 91495 X 217734 197970 549984 217734 747954 317334 839449 530220 0 X 0 1 X 1 0 X 337981 345406 387929 737781 1317133 3126230 337981 345406 387929 737781 1317133 3126230 658081 2468149 5032 2401 399 65 1244 9141 3135371 177056 0.78720 0.75350 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 28967 17596 11371 11371 DEFERRED LEASE BENEFIT 13006 13006 X 1344233 0 1344233 0 1344233 814013 0 814013 0 814013 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: BCAN IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. HOWEVER, INCOME FROM CERTAIN ACTIVITIES NOT DIRECTLY RELATED TO BCAN'S TAX-EXEMPT PURPOSE IS SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. FOR THE YEARS ENDED DECEMBER 31, 2012 AND 2011, THERE WAS NO UNRELATED BUSINESS INCOME. FOR THE YEARS ENDED DECEMBER 31, 2012 AND 2011, NO UNRECOGNIZED TAX PROVISION OR BENEFIT EXISTS. 1 RESEARCH 1 25000 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: FOR A 12 MONTH GRANT PERIOD: THE RECIPIENT IS REQUIRED, AFTER THE FIRST 6 MONTHS OF THE GRANT, TO SUBMIT A WRITTEN SUMMARY TO BCAN DOCUMENTING THE PROGRESS MADE IN COMPLETING THE RESEARCH PROCESS. FORM 990, PART VI, SECTION B, LINE 11 THE TREASURER REVIEWS THE ANNUAL FORM 990 AND THE ANNUAL AUDIT WITH THE AUDITOR, AND PRESENTS BOTH TO THE BOARD OF DIRECTORS FOR APPROVAL AS BCAN'S ANNUAL AUDITED FINANCIAL STATEMENTS. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, EACH BOARD MEMBER, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD DELEGATED POWERS SIGNS A STATEMENT WHICH AFFIRMS THEY HAVE READ AND ARE COMPLYING WITH BCAN'S CONFLICT OF INTEREST POLICIES. FORM 990, PART VI, SECTION B, LINE 15 TO DETERMINE APPROPRIATE COMPENSATION FOR BCAN'S EXECUTIVE DIRECTOR, THE OFFICERS ANNUALLY REVIEW THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA BEFORE DESIGNATING A SALARY RANGE BASED ON THE EXECUTIVE DIRECTOR'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS. BCAN'S OFFICERS DO NOT DRAW ANY SALARY, NOR DO THEY GET REIMBURSED FOR TRAVEL TO BOARD MEETINGS. THE APPROPRIATE COMPENSATION FOR BCAN'S OTHER STAFF (CURRENTLY 1.5 FTE) IS REVIEWED AT LEAST ANNUALLY BY BCAN'S EXECUTIVE DIRECTOR. SHE REVIEWS THE MOST RECENTLY AVAILABLE NONPROFIT SALARY SURVEYS FOR THE DC METROPOLITAN AREA TO DESIGNATE A SALARY RANGE BASED ON STAFF'S SKILLS AND EXPERIENCE. THE PROPOSED COMPENSATION IS SUBJECT TO APPROVAL BY THE BOARD OF DIRECTORS EACH YEAR WHEN THEY APPROVE THE ANNUAL BUDGET. FORM 990, PART VI, SECTION C, LINE 19 BLADDER CANCER'S 990 AND DOCUMENTS ARE AVAILABLE TO THE PUBLIC BY REQUEST. THEY ALSO HAVE THE 990 AVAILABLE ON GUIDESTAR.ORG