2013-05-15T15:47:36-05:00 2012-12-31 113518842 MARKS PANETH & SHRON LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2012-01-01 132298956 CHILDREN'S TUMOR FOUNDATION CHIL 2123446633 95 PINE STREET NEW YORK NY 100053904 JUDI SWARTOUT 2123446633 2013-05-15 1 ROBERT LYONS P00227472 2125038800 2012 2016-02-24 21:20:13Z JOHN RISNER 95 PINE STREET NEW YORK NY 100053904 9951387 0 X WWW.CTF.ORG X 1978 NY THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS. 25 25 44 1250 0 0 9337715 9359822 0 0 67827 115814 54072 67007 9459614 9542643 3401857 2161598 0 0 2169561 2789885 0 0 990324 2577169 3232032 8148587 8183515 1311027 1359128 9102033 9263630 2872603 1606418 6229430 7657212 X THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A) FUND RESEARCH B) INCREASE PUBLIC AWARENESS C) SUPPORT PATIENTS AND FAMILIES D) ENCOURAGE ESTABLISHMENT OF NF CLINICS. 0 0 3996087 2161598 RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITIONALLY, OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH. 1375041 PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR. 1098054 PUBLIC EDUCATION - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE, NF WALK, RACING 4 RESEARCH, AND CUPID'S UNDIE RUN PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. 6469182 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 10 0 44 1 0 0 0 0 0 1 1 0 0 0 0 X 25 25 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 NY AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X JUDI SWARTOUT 2123446633 95 PINE STREET NEW YORK NY 100053904 STUART MATCH SUNA 1.00 X X 0 0 0 LINDA MARTIN 1.00 X X 0 0 0 JOHN MCCARTHY 1.00 X X 0 0 0 ARAM FUCHS 1.00 X X 0 0 0 BRUCE R KORF 1.00 X 0 0 0 SUZANNE EARLE 1.00 X 0 0 0 DANIEL ALTMAN 1.00 X 0 0 0 LAURA GANIO BONA 1.00 X 0 0 0 WILLIAM BROOKS 1.00 X 0 0 0 COLIN BRYAR 1.00 X 0 0 0 JOHN CATSIMATIDIS 1.00 X 0 0 0 TRACY GALLOWAY 1.00 X 0 0 0 DANIEL GILBERT 1.00 X 0 0 0 JOHN GOLFINOS MD 1.00 X 0 0 0 DANIEL GRAEFF 1.00 X 0 0 0 STEVE MCKENZIE 1.00 X 0 0 0 JOANNE PASTEL 1.00 X 0 0 0 LAURA PERFETTI 1.00 X 0 0 0 DENISE PITZMAN 1.00 X 0 0 0 JASON PONTIN 1.00 X 0 0 0 ROBERT SCHAFFER 1.00 X 0 0 0 RACHEL B TIVEN 1.00 X 0 0 0 DAVID VISKOCHIL MD PHD 1.00 X 0 0 0 NATE WALKER 1.00 X 0 0 0 PEGGY WALLACE PHD 1.00 X 0 0 0 ANNETTE BAKKER 40.00 X 185000 0 26288 RICHARD LEPKOWSKI 40.00 X 141225 0 4324 JOHN RISNER 40.00 X 140809 0 23095 JOHN HEROPOULOS 40.00 X 91168 0 15421 JUDI SWARTOUT 40.00 X 77009 0 6200 635211 0 75328 3 0 1 0 PATTON BOGGS LLP 2550 M STREET NW WASHINGTON DC 20037 LOBBYING/ADVOCACY 180000 1 109466 3546336 5704020 331754 9359822 107055 107055 236923 228164 8759 8759 8759 180580 3546336 180580 0 MISC. INCOME 999999 67007 67007 67007 9542643 0 0 182821 1991598 1991598 170000 170000 804300 526156 160560 117584 1488945 980116 169566 339263 23966 15823 2751 5392 313428 221976 34509 56943 159246 104993 22411 31842 6010 6010 16275 1163 15112 180000 180000 192360 128959 21817 41584 112393 96885 3205 12303 288266 174654 57576 56036 272629 206425 33433 32771 234894 178989 21625 34280 732972 640542 62665 29765 15279 9596 2627 3056 23213 15334 3274 4605 FOOD AND BEVERAGE 228904 179557 32801 16546 PRINTING AND PUBS. 188304 135069 8786 44449 DUES AND OTHER FEES 158746 89266 13595 55885 APPAREL 152351 108730 13485 30136 429436 313351 38201 77884 8183515 6469182 724009 990324 4709474 3868817 11649 181782 217136 150398 173607 95187 79198 78420 4063953 4967697 20623 16516 9102033 9263630 46707 152934 2791033 1232250 34863 221234 2872603 1606418 X 4786444 5699042 1253060 1958170 189926 0 6229430 7657212 9102033 9263630 1359128 258580 -189926 0 X X 0 1 X 1 0 X 7002673 6289335 7508599 9337715 9359822 39498144 7002673 6289335 7508599 9337715 9359822 39498144 2696993 36801151 -597817 79312 81555 67827 343978 -25145 10932 10735 63447 54072 67007 206193 39679192 0.92750 0.94550 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 180000 0 0 180000 0 189926 189926 185876 4050 189926 182534 3342 185876 179809 2725 182534 93964 71087 22877 50293 18742 31551 29350 5358 23992 78420 DEFERRED RENT 25434 ASSETS HELD IN TRUST 195800 221234 X 9801223 258580 258580 9542643 0 9542643 8183515 0 8183515 0 8183515 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: MANAGEMENT EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THAT THE FOUNDATION HAS NO UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2012 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740 ("INCOME TAXES"), WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. THE FOUNDATION IS NO LONGER SUBJECT TO FEDERAL OR STATE AND LOCAL TAX EXAMINATIONS BY TAX AUTHORITIES FOR YEARS BEFORE 2009. 1 EAST ASIA AND THE PACIFIC 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH - DRUG DISCOVERY 44000 EUROPE 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH - DRUG DISCOVERY AND YOUNG INVESTIGATOR AWARD 76000 NORTH AMERICA 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH - DRUG DISCOVERY 50000 0 0 0 0 0 0 170000 0 170000 AUSTRALIA RESEARCH - DRUG DISCOVERY 44000 WIRE N/A N/A CANADA RESEARCH - DRUG DISCOVERY 50000 WIRE N/A N/A GERMANY RESEARCH - YOUNG INVESTIGATOR AWARD 64000 WIRE N/A N/A ENGLAND RESEARCH - DRUG DISCOVERY 12000 WIRE N/A N/A 0 4 0 0 0 0 0 0 VARIOUS EVENTS 3726916 3546336 180580 180580 3726916 3546336 180580 180580 180580 0 1 BOSTON CHILDREN'S HOSPITAL PO BOX 414413 BOSTON MA 02241 042774441 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK BRIGHAM & WOMEN'S HOSPITAL PO BOX 3887 BOSTON MA 02241 042312909 501(C)(3) 111100 RESEARCH - PRECLINICAL CONSORTIUM CENIX BIOSCIENCE USA 80 SOUTH EIGHTH STREET SUITE 900 MINNEAPOLIS MN 55402 233044047 223000 RESEARCH - CORPORATE PARTNERSHIP CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BLVD LOS ANGELES CA 90027 951690977 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL OF PHILADELPHIA 34TH STREET CIVIC CENTER ABRAHAMSON 1ST FLOOR PHILADELPHIA PA 19104 231352166 501(C)(3) 6000 RESEARCH - OTHER CHILDREN'S HOSPITAL OF PITTSBURGH 4401 PENN AVENUE PITTSBURGH PA 15224 251865744 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL OF WISCONSIN 9000 W WISCONSIN AVENUE MILWAUKEE WI 53226 391500075 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 521640403 501(C)(3) 137822 RESEARCH - OTHER CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE ML 4006 CINCINNATI OH 45229 310833936 501(C)(3) 81800 RESEARCH - PRECLINICAL CONSORTIUM CLEVELAND CLINIC 9500 EUCLID AVENUE CLEVELAND OH 44195 340714585 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK DUKE UNIVERSITY BOX 3936 DURHAM NC 27705 560532129 501(C)(3) 105500 RESEARCH - YOUNG INVESTIGATOR AWARD FLORIDA HOSPITAL FOR CHILDREN 601 E ROLLINS STREET ORLANDO FL 32804 592965441 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK FOX CHASE CANCER CENTER 510 TOWNSHIP LINE ROAD CHELTENHAM PA 19012 232003072 501(C)(3) 25600 RESEARCH - PRECLINICAL CONSORTIUM HENRY FORD HEALTH SYSTEM 30131 WEST GRAND BLVD SUITE 700 DETROIT MI 48202 381357020 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK HOUSE RESEARCH INSTITUTE 2100 WEST THIRD STREET LOS ANGELES CA 90057 952127707 501(C)(3) 78200 RESEARCH - YOUNG INVESTIGATOR AWARD, SCHWANNAMATOSIS INDIANA UNIVERSITY PO BOX 66057 INDIANAPOLIS IN 46266 356001673 501(C)(1) 153962 RESEARCH - PRECLINICAL CONSORTIUM, YOUNG INVESTIGATOR AWARD LOUISIANA STATE UNIVERSITY 200 HENRY CLAY AVENUE NEW ORLEANS LA 70118 726000848 501(C)(1) 6000 PATIENT SUPPORT - CLINIC NETWORK MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK MEMORIAL SLOAN-KETTERING CANCER CENTER 1275 YORK AVENUE NEW YORK NY 10065 131924236 501(C)(3) 50000 RESEARCH - DRUG DISCOVERY MIAMI CHILDREN'S HOSPITAL 3100 SW 62ND AVENUE MIAMI FL 33155 591720704 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK NEW YORK PRESBYTERIAN HOSPITAL 525 EAST 68TH STREET NEW YORK NY 10065 133957095 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK NEW YORK UNIVERSITY MEDICAL CENTER 160 EAST 32ND STREET NEW YORK NY 10016 135562309 501(C)(3) 6600 PATIENT SUPPORT - CLINIC NETWORK OHIO STATE UNIVERSITY 456 W 10TH AVENUE SUITE 4A COLUMBUS OH 43210 316401599 501(C)(1) 30000 RESEARCH - PRECLINICAL CONSORTIUM PISCES THERAPEUTICS LLC 16192 COASTAL HIGHWAY LEWES DE 19958 273893082 25000 RESEARCH - DRUG DISCOVERY SANTA CLARA VALLEY MEDICAL CENTER 2400 MOORPARK AVENUE SAN JOSE CA 95128 770187890 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF ALABAMA BIRMINGHAM 720 20TH STREET SOUTH BIRMINGHAM AL 35294 636005396 501(C)(1) 16702 RESEARCH - OTHER UNIVERSITY OF CALIFORNIA LOS ANGELES 695 CHARLES YOUNG DRIVE SOUTH LOS ANGELES CA 90095 941539563 501(C)(1) 82500 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM STREET SUITE 425 SAN FRANCISCO CA 94143 946036493 501(C)(1) 56000 RESEARCH - PRECLINICAL CONSORTIUM, DRUG DISCOVERY UNIVERSITY OF CHICAGO 1427 E 60TH STREET SUITE 120 CHICAGO IL 60637 362177139 501(C)(1) 108000 RESEARCH - YOUNG INVESTIGATOR AWARD UNIVERSITY OF IOWA HOSPITAL B5 JESSUP HILL IOWA CITY IA 52242 426004813 501(C)(1) 6000 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF MICHIGAN 109 ZINA PITCHER PLACE ANN ARBOR MI 48109 386006309 501(C)(1) 64600 RESEARCH - YOUNG INVESTIGATOR AWARD UNIVERSITY OF MINNESOTA 420 DELAWARE STREET MINNEAPOLIS MN 55455 416007513 501(C)(1) 6600 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF OKLAHOMA 1200 N PHILLIPS AVENUE OKLAHOMA CITY OK 73104 736017987 501(C)(1) 6000 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF TEXAS SOUTHWESTERN PO BOX 841753 DALLAS TX 75284 752556007 501(C)(1) 65466 RESEARCH - YOUNG INVESTIGATOR AWARD UNIVERSITY OF UTAH 50 N MEDICAL DRIVE SALT LAKE CITY UT 84132 876000525 501(C)(1) 6600 PATIENT SUPPORT - CLINIC NETWORK VANDERBILT UNIVERSITY MEDICAL CENTER DEPT AT 40303 ATLANTA GA 31192 620476822 501(C)(3) 95500 RESEARCH - YOUNG INVESTIGATOR AWARD WASHINGTON UNIVERSITY 660 SOUTH EUCLID AVENUE ST LOUIS MO 62110 061043412 501(C)(3) 165279 RESEARCH - YOUNG INVESTIGATOR AWARD GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON MA 02114 426979830 501(C)(3) 47224 RESEARCH - DRUG DISCOVERY, YOUNG INVESTIGATOR AWARD, SCHWANNAMATOSIS JOHNS HOPKINS UNIVERSITY 733 N BROADWAY BALTIMORE MD 21205 237424440 501(C)(3) 116023 RESEARCH - DRUG DISCOVERY, YOUNG INVESTIGATOR AWARD, SCHWANNAMATOSIS 37 2 X X X 0 0 0 0 0 0 0 0 0 ANNETTE BAKKER 185000 0 0 0 0 0 0 0 26288 0 211288 0 0 0 JOHN RISNER 140809 0 0 0 0 0 0 0 23095 0 163904 0 0 0 X 4 232143 FMV X AUCTION ITEMS 416 99611 FMV 0 1 0 FORM 990, PART VI, SECTION B, LINE 11 THE COMPLETE FORM 990 IS DISTRIBUTED IN DRAFT FORM VIA E-MAIL TO ALL BOARD MEMBERS WITH A RETURN RECEIPT PRIOR TO FILING. EACH BOARD MEMBER ACKNOWLEDGES THEIR RECEIPT, REVIEW, AND ACCEPTANCE OF THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY AND REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE POLICY ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S TOP MANAGEMENT AND KEY EMPLOYEES ARE REVIEWED FOR PERFORMANCE ON AN ANNUAL BASIS. COMPENSATION FOR THESE POSITIONS ARE REVIEWED AND APPROVED BY THE BOARD'S PERSONNEL COMMITTEE. COMPENSATION IS DETERMINED USING CURRENTLY AVAILABLE SALARY DATA FOR NON-PROFITS OF SIMILAR SIZE AND MISSION IN THE NEW YORK CITY AREA. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST WITHIN THE PRESCRIBED TIME FRAMES AS REQUIRED. FORM 990, PART XII, LINE 2C THE CHILDREN'S TUMOR FOUNDATION HAS AN AUDIT COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT.