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        <State>WA</State>
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        <BusinessNameLine1>PACIFIC NORTHWEST FRIENDS OF FSH RESEARCH</BusinessNameLine1>
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        <State>WA</State>
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      <Title>PRESIDENT</Title>
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      <DateSigned>2013-07-09</DateSigned>
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      <WebSite>WWW.FSHFRIENDS.ORG</WebSite>
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      <StateLegalDomicile>WA</StateLegalDomicile>
      <ActivityOrMissionDescription>SEE STATEMENT 1</ActivityOrMissionDescription>
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      <NbrIndependentVotingMembers>5</NbrIndependentVotingMembers>
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        <Description>GRANT FOR RESEARCH REGARDING DEVELOPMENT OF ANTI-DUX4 THERAPEUTICS FOR FSHD, YEAR 2, TO MICHAEL KYBA AT THE UNIVERSITY OF MICHIGAN.</Description>
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        <Grants>125000</Grants>
        <Description>GRANT FOR RESEARCH ON MODULATORS OF EPIGENETIC DISEASE, YEAR 2 OF 4, STEPHEN TAPSCOTT, AT THE FRED HUTCHINSON RESEARCH CENTERS</Description>
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        <RecipientNameBusiness>
          <BusinessNameLine1>JOEL CHAMBERLAIN PHD</BusinessNameLine1>
        </RecipientNameBusiness>
        <AddressUS>
          <AddressLine1>UNIVERSITY OF WASHINGTON</AddressLine1>
          <City>SEATTLE</City>
          <State>WA</State>
          <ZIPCode>98195</ZIPCode>
        </AddressUS>
        <EINOfRecipient>916001537</EINOfRecipient>
        <IRCSection>1151</IRCSection>
      </RecipientTable>
      <RecipientTable>
        <RecipientNameBusiness>
          <BusinessNameLine1>FRED HUTCHINSON RESEARCH CENTE</BusinessNameLine1>
        </RecipientNameBusiness>
        <AddressUS>
          <AddressLine1>1100 FAIRVIEW AVE N</AddressLine1>
          <City>SEATTLE</City>
          <State>WA</State>
          <ZIPCode>98109</ZIPCode>
        </AddressUS>
        <EINOfRecipient>237156071</EINOfRecipient>
        <IRCSection>501C3</IRCSection>
      </RecipientTable>
      <RecipientTable>
        <RecipientNameBusiness>
          <BusinessNameLine1>DANIEL MILL</BusinessNameLine1>
        </RecipientNameBusiness>
        <AddressUS>
          <AddressLine1>UNIVERSITY OF WASHINGTON</AddressLine1>
          <City>SEATTLE</City>
          <State>WA</State>
          <ZIPCode>98195</ZIPCode>
        </AddressUS>
        <EINOfRecipient>916001537</EINOfRecipient>
        <IRCSection>1151</IRCSection>
      </RecipientTable>
      <RecipientTable>
        <RecipientNameBusiness>
          <BusinessNameLine1>MICHAEL KYBA</BusinessNameLine1>
        </RecipientNameBusiness>
        <AddressUS>
          <AddressLine1>UNIVERSITY OF MINNESOTA</AddressLine1>
          <City>MINNEAPOLIS</City>
          <State>MN</State>
          <ZIPCode>55454</ZIPCode>
        </AddressUS>
        <EINOfRecipient>416007513</EINOfRecipient>
        <IRCSection>1151</IRCSection>
      </RecipientTable>
      <Form990ScheduleIPartIV>
        <Identifier>I1</Identifier>
        <ReturnReference>Monitoring procedures Part I line 2</ReturnReference>
        <Explanation>THE ORGANIZATION REQUIRES REPORTS FROM ALL GRANT RECIPIENTS. IN ADDITION, THE ORGANIZATION HAS A CONSULTING SCIENTIFIC ADVISORY BOARD THAT ASSISTS IN SELECTING GRANT RECIPIENTS AND EVALUATING RESULTS.</Explanation>
      </Form990ScheduleIPartIV>
    </IRS990ScheduleI>
    <IRS990ScheduleM documentId="990M">
      <WorksOfArt>
        <NonCashCheckbox>X</NonCashCheckbox>
        <NumberOfContributions>56</NumberOfContributions>
        <NoncashContribsRptdF990>21887</NoncashContribsRptdF990>
        <MethodOfDeterminingRevenues>STATED VALUE</MethodOfDeterminingRevenues>
      </WorksOfArt>
      <BooksAndPublications>
        <NonCashCheckbox>X</NonCashCheckbox>
        <NoncashContribsRptdF990>612</NoncashContribsRptdF990>
        <MethodOfDeterminingRevenues>STATED VALUE</MethodOfDeterminingRevenues>
      </BooksAndPublications>
      <ClothingAndHouseholdGoods>
        <NonCashCheckbox>X</NonCashCheckbox>
        <NoncashContribsRptdF990>24214</NoncashContribsRptdF990>
        <MethodOfDeterminingRevenues>STATED VALUE</MethodOfDeterminingRevenues>
      </ClothingAndHouseholdGoods>
      <FoodInventory>
        <NonCashCheckbox>X</NonCashCheckbox>
        <NumberOfContributions>121</NumberOfContributions>
        <NoncashContribsRptdF990>8667</NoncashContribsRptdF990>
        <MethodOfDeterminingRevenues>STATED VALUE</MethodOfDeterminingRevenues>
      </FoodInventory>
      <OtherNonCashContributionsTable>
        <NonCashCheckbox>X</NonCashCheckbox>
        <Description>RESTAURANT GIFT CARDS</Description>
        <NumberOfContributions>46</NumberOfContributions>
        <NoncashContribsRptdF990>2420</NoncashContribsRptdF990>
        <MethodOfDeterminingRevenues>FACE VALUE</MethodOfDeterminingRevenues>
      </OtherNonCashContributionsTable>
      <OtherNonCashContributionsTable>
        <NonCashCheckbox>X</NonCashCheckbox>
        <Description>MISCELLANEOUS</Description>
        <NumberOfContributions>1</NumberOfContributions>
        <NoncashContribsRptdF990>300</NoncashContribsRptdF990>
        <MethodOfDeterminingRevenues>STATED VALUE</MethodOfDeterminingRevenues>
      </OtherNonCashContributionsTable>
      <AnyPropertyThatMustBeHeld>false</AnyPropertyThatMustBeHeld>
      <ReviewProcessUnusualNCGifts>false</ReviewProcessUnusualNCGifts>
      <ThirdPartiesUsed>false</ThirdPartiesUsed>
    </IRS990ScheduleM>
    <IRS990ScheduleO documentId="990O">
      <GeneralExplanation>
        <Identifier>O01</Identifier>
        <ReturnReference>Officer directors etc family relationship Part VI line 2</ReturnReference>
        <Explanation>TERRY COLELLA AND RICK COLELLA ARE RELATED BY MARRIAGE. LYNN COLELLA AND RICK COLELLA ARE SIBLINGS.</Explanation>
      </GeneralExplanation>
      <GeneralExplanation>
        <Identifier>O02</Identifier>
        <ReturnReference>Form 990 governing body review Part VI line 11</ReturnReference>
        <Explanation>FORM 990 IS SUBMITTED TO THE BOARD OF DIRECTORS FOR REVIEW BEFORE FINAL SUBMISSION.</Explanation>
      </GeneralExplanation>
      <GeneralExplanation>
        <Identifier>O03</Identifier>
        <ReturnReference>Governing documents etc available to public Part VI line 19</ReturnReference>
        <Explanation>ANY GOVERNING DOCUMENT MAY BE MADE AVAILABLE UPON REQUEST. SOME ADDITIONAL DOCUMENTS ARE ALSO MADE AVAILABLE THROUGH THE ORGANIZATION9S WEB SITE.</Explanation>
      </GeneralExplanation>
    </IRS990ScheduleO>
  </ReturnData>
</Return>