2013-06-20T16:19:13-05:00 2012-12-31 910189318 MOSS ADAMS LLP 975 OAK STREET SUITE 500 EUGENE OR 97401 990 2012-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 BARRY RUBENSTEIN 5416874658 2013-06-03 1 RAY L WIDMER III P01236627 5416861040 2012 2016-02-24 21:20:13Z BARRY RUBENSTEIN 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 1680197 0 X WWW.FANCONI.ORG X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE. 13 13 5 13 0 0 2935471 1579265 0 0 105810 75194 14 2197 3041295 1656656 345000 1813068 0 0 331131 337283 0 0 110192 785489 859502 1461620 3009853 1579675 -1353197 6468934 5802617 334739 1026901 6134195 4775716 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE. 0 0 2469847 1813068 SUPPORT OF RESEARCH INTO THE CAUSE AND CURE OF FANCONI ANEMIA 315206 2197 PROVIDING EDUCATION AND SUPPORT TO FAMILIES AFFECTED BY FANCONI ANEMIA 2785053 1 1 0 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 5 1 0 0 0 0 0 0 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CT FL GA IL KS KY LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X BEV MAYHEW 5416874658 1801 WILLAMETTE STREET EUGENE OR 97401 BARRY RUBENSTEIN 2.00 X X 0 0 0 LYNN FROHNMAYER 10.00 X X 0 0 0 RUBY BROCKETT 1.00 X X 0 0 0 DAVID FIASCHETTI 1.00 X 0 0 0 ROBERT SACKS 1.00 X 0 0 0 BRIAN HORRIGAN 1.00 X 0 0 0 MARK PEARL 1.00 X 0 0 0 KEVIN MCQUEEN 1.00 X 0 0 0 RICHARD GELINAS 1.00 X 0 0 0 KEVIN ROGERS 1.00 X 0 0 0 BRIAN MATTHEWS 1.00 X 0 0 0 CHRISTOPHER BYRD 1.00 X 0 0 0 ANNETTE WAXBERG 1.00 X 0 0 0 BEV MAYHEW 40.00 X 95500 0 0 95500 0 0 0 0 0 0 0 1579265 1579265 98735 98735 23541 -23541 -23541 -23541 OTHER INCOME 900099 2197 2197 2197 1656656 2197 0 75194 1395423 1395423 417645 417645 95500 76400 19100 177840 134516 29156 14168 40792 31732 6949 2111 23151 17864 4087 1200 4895 4895 19186 19186 32195 22528 5137 4530 14158 8907 1336 3915 17708 12396 2656 2656 564480 558521 5959 6844 6844 SPECIAL PROJECTS 66315 377 65938 RESEARCH MATERIALS 38833 38833 PRINTING 36980 28934 8046 POSTAGE 30041 23453 3488 3100 27867 12629 10710 4528 3009853 2785053 114608 110192 1040419 949010 232680 4880 31402 0 1781 1642 90856 84029 9280 6827 5141302 4832579 12070 7679 6468934 5802617 28881 40281 305858 986620 334739 1026901 X 4845202 4171026 1288993 604690 6134195 4775716 6468934 5802617 -1353197 -5282 0 X 0 1 X 1 0 X 2500473 1792265 1696806 2935471 1579265 10504280 2500473 1792265 1696806 2935471 1579265 10504280 1592674 8911606 214568 187424 139545 116443 98735 756715 11260995 4737 0.79140 0.78530 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 11 108410 1397235 427736 1 1 90856 84029 6827 6827 INVESTMENTS - OTHER SECURITIES 4832579 F 4832579 X 1646270 -5282 -5282 1651552 5104 5104 1656656 3004749 0 3004749 5104 5104 3009853 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: FANCONI ANEMIA RESEARCH FUND, INC. IS A NOT-FOR-PROFIT ORGANIZATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL INCOME TAXES. THE ORGANIZATION HAS ALSO BEEN CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF THE INTERNAL REVENUE CODE AND AS AN ENTITY THAT QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS. ACCORDINGLY, NO PROVISION HAS BEEN MADE FOR INCOME TAXES IN THE FINANCIAL STATEMENTS PURSUANT TO ACCOUNTING STANDARDS CODIFICATION (ASC) 740, INCOME TAXES. THE ORGANIZATION GENERALLY EVALUATES ANY UNCERTAIN TAX POSITIONS CONSISTENT WITH THE ACCOUNTING AND DISCLOSURE REQUIREMENTS OF ASC 450, CONTINGENCIES. PART XI, LINE 4B - OTHER ADJUSTMENTS: GRANT ADJUSTMENT 5,104. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANT ADJUSTMENT 5,104. 1 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH GRANTS 324000 CANADA 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH GRANTS 93645 0 0 0 0 0 0 417645 0 417645 EUROPE TARGETED TREATMENT OF ORAL CANCER AND PRECANCER IN FA 324000 FMV CANADA EXPLORING THE ROLE OF FANCC IN DEVELOPMENTAL CELL DEATH 93645 FMV 2 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: GRANTS MADE OUTSIDE OF THE UNITED STATES ARE MONITORED THE SAME WAY AS GRANTS WITHIN THE UNITED STATES. ALL GRANTS ARE FOR RESEARCH AND THE RESULTS ARE REPORTED BACK TO THE ORGANIZATION. 1 CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE CINCINNATI OH 45229 310833936 501(C)(3) 40000 SEROLOGY BIOMARKER FOR IMMUNE RESPONSE TO HPV VACCINATION & EXPOSURE IN FA HARVARD UNIVERSITY - WALTER LAB PRESIDENT AND FELLOWS OF HARVARD COLLEGE PO BOX 415649 BOSTON MA 022415649 104210358 501(C)(3) 148500 FANCONI ANEMIA AND THE REPAIR OF DNA PROTEIN CROSS-LINKS MEMORIAL SLOAN KETTERING CANCER CENTER ATTN AUDREY MCINTERNEY 633 3RD AVENUE 28TH FLOOR NEW YORK NY 10017 131924236 501(C)(3) 101531 MULTICENTER PILOT TRIAL OF HSCT LACKING A GENOTYPE IDENTICAL DONOR NATIONAL HUMAN GENOME RESEARCH INSTITUTE 5635 FISHERS LANE STE 30580 MSC 9307 BETHESDA MD 208929307 520858115 501(C)(3) 202300 PREVALENCE OF FA GENE GERMLINE MUTATIONS AMONG YOUNG ADULTS WITH HEAD AND NECK CANCER OREGON HEALTH & SCIENCE UNIVERSITY SPONSORED PROJECTS ADMINISTRATION 0690 SW BANCROFT L106SPA PORTLAND OR 97239 193117610 501(C)(3) 83817 TESTING CLINICALLY RELEVANT COMPOUNDS IN FA UNIVERSITY OF CALIFORNIA LOS ANGELES OFFICE OF CONTRACT AND GRANT ADMIN MC 951406 11000 KINROSS AVE STE 211 LOS ANGELES CA 900951406 956006143 501(C)(3) 193588 SALIVARY BIOMARKERS FOR ORAL CANCER DETECTION IN FA UNIVERSITY OF CHICAGO GIFT SERVICES 1427 E 60TH ST SUITE 120 CHICAGO IL 60637 362177139 501(C)(3) 198910 NON-GENOTOXIC INHIBITORS FOR HPV-INDUCED HNSCC IN FA UNIVERSITY OF COLORADO DENVER GRANTS AND CONTRACTS MAIL STOP F428 BOX 238 DENVER CO 802910238 846000555 501(C)(3) 100000 POTENTIAL THERAPEUTIC USE OF RESVERATROL FOR HEAD AND NECK CARCINOGENESIS IN FA UNIVERSITY OF PITTSBURGH RESEARCH/COST ACCOUNTING PO BOX 371220 PITTSBURGH PA 152517220 250965591 501(C)(3) 33044 GS-NITROXIDE (JP4-039)/F15 LIPOSOME ORAL RADIOPROTECTIVE THERAPY FOR FA PATIENTS REQUIRING CHEMORADIOTHERAPY FOR HNSCC UNIVERSITY OF SOUTH DAKOTA GRANTS ACCOUNTING SLAGLE 105B 414 EAST CLARK ST VERMILLION SD 570692390 466003541 501(C)(3) 186545 INVESTIGATE THE MOLECULAR MECHANISMS OF HOW FANCJ REGULATES CENTROSOME CYCLE UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER ATTN GRANTS AND CONTRACTS PO BOX 4390 HOUSTON TX 772104390 746001118 501(C)(3) 38160 PREVALENCE OF FA GENE GERMLINE MUTATIONS AMONG YOUNG ADULTS WITH HEAD AND NECK CANCER UNIVERSITY OF WASHINGTON - SEATTLE CHILDREN'S RESEARCH INSTITUTE SEATTLE CHILDRENS HOSPITAL PO BOX 24728 SEATTLE WA 981240728 910564748 501(C)(3) 69028 HPV INFECTION AND SEROLOGY IN FA PATIENTS 12 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: GRANTS ARE MADE FOR MEDICAL RESEARCH. ALL RESEARCH RESULTS ARE MONITORED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 11 THE 990 IS REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR AND THEN DISTRIBUTED TO THE BOARD. FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ANNUALLY STATE ANY REAL OR POTENTIAL CONFLICTS OF INTEREST ON A CONFLICT OF INTEREST DISCLOSURE FORM. FORM 990, PART VI, SECTION B, LINE 15 IN 2012, EMPLOYEE COMPENSATION WAS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES. FORM 990, PART VI, SECTION C, LINE 19 WHEN REQUESTED, WE MAKE A COPY AND MAIL THEM TO THE REQUESTING PARTY.