2013-05-08T09:26:50-05:00 2012-12-31 521446779 JOHNSON LAMBERT LLP 700 SPRING FOREST RD STE 115 RALEIGH NC 27609 990 2012-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER 9198096779 2013-05-06 1 JOHN HUSKINS P01081531 9197196400 2013-05-08 2012 2016-02-25 16:41:14Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 788134 0 X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO RAPIDLY DEVELOP EFFECTIVE TREATMENTS AND ULTIMATELY, A CURE FOR CHORDOMA, AND TO HELP CHORDOMA PATIENTS GET THE BEST CARE POSSIBLE 8 7 10 10 0 0 584425 780659 26985 6400 3820 1075 0 0 615230 788134 179321 212807 0 0 112447 179553 0 0 106575 316095 251523 607863 643883 7367 144251 679814 833861 96208 106004 583606 727857 THE MISSION OF THE CHORDOMA FOUNDATION IS TO RAPIDLY DEVELOP EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR CHORDOMA, AND TO HELP CHORDOMA PATIENTS GET THE BEST CARE POSSIBLE. 0 0 435815 212807 THE CHORDOMA FOUNDATION INITIATED, FACILITATED, AND FUNDED RESEARCH AIMED AT DEVELOPING NEW AND IMPROVED TREATMENTS FOR CHORDOMA. THIS INCLUDED PERFORMING GENOMIC ANALYSIS OF CHORDOMA TUMORS, DISTRIBUTING CHORDOMA CELL LINES TO RESEARCHERS ACROSS THE WORLD, FACILITATING THE EXCHANGE OF CHORDOMA TISSUE, AND BROKERING COLLABORATIONS AMONG PHYSICIANS AND SCIENTISTS. 41975 6400 THE CHORDOMA FOUNDATION PROVIDED ACCURATE AND TIMELY INFORMATION ABOUT CHORDOMA, AND CHORDOMA TREATMENT OPTIONS, TO CHORDOMA PATIENTS AND THEIR FAMILIES, RAISED AWARENESS ABOUT CHORDOMA AND OTHER RARE CANCERS, AND SPONSORED A PEER CONNECT PROGRAM TO SUPPORT PATIENTS IN DEALING WITH CHORDOMA. 477790 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 4 0 1 10 1 0 0 0 0 0 1 1 0 0 0 0 X 8 7 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 NC AK AZ AR CA CT FL GA HI IL KS KY ME MD MA MI MN MS MO NH NJ NM NY ND OH OK OR PA RI SC TN UT VA WA WV WI X X JOSH SOMMER 9198096779 512 S MANGUM ST DURHAM NC 27701 JOSH SOMMER 80.00 X X 47012 0 5013 HEATHER LEE 15.00 X X 0 0 0 JACOB EDWARD LES 1.00 X X 0 0 0 JOHN THERIEN 1.50 X X 0 0 0 BRUCE NELSON 1.00 X X 0 0 0 FRANCIS MEYER 1.00 X 0 0 0 ADAM ABRAM 2.00 X 0 0 0 BENJAMIN ABRAM 1.00 X 0 0 0 JOEL BECKMAN 4.00 X 0 0 0 CHANDRA SEN 1.00 X 0 0 0 47012 0 5013 0 0 0 0 0 780659 111725 780659 COMMUNITY CONFERENCE 900099 6400 6400 6400 1075 1075 788134 6400 0 1075 137077 137077 75730 75730 52025 33124 7104 11797 104566 40481 30442 33643 8313 3947 1394 2972 14649 7287 3534 3828 12305 5871 3091 3343 5204 4879 325 22528 9906 549 12073 27291 10193 5807 11291 21968 7233 1569 13166 12000 5685 2991 3324 20584 13908 123 6553 10828 7972 1474 1382 3545 1268 526 1751 4242 2201 914 1127 BIOREPOSITORY EXPENSES 111028 111028 643883 477790 59518 106575 452556 531604 143930 144554 31149 87829 36757 47362 6291 13711 19029 10228 9131 8801 679814 833861 12998 23050 83210 82954 96208 106004 X 397456 535455 186150 192402 583606 727857 679814 833861 144251 0 X 0 1 X 1 0 X 449041 501265 356563 584425 780659 2671953 449041 501265 356563 584425 780659 2671953 300334 2371619 11137 8342 9615 3820 1075 33989 9509 12255 21764 2727706 37013 0.86950 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 19029 10228 8801 8801 X 894381 106247 106247 788134 0 788134 750130 106247 106247 643883 0 643883 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE FOUNDATION CONSIDERS UNCERTAIN TAX POSITIONS AND MANAGEMENT DOES NOT BELIEVE THERE ARE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES. 1 EUROPE 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH 75730 0 0 0 0 0 0 75730 0 75730 EUROPE GENOME SEQUENCING AS PART OF THE CHORDOMA GENOME PROJECT 50730 WIRE TRANSFER NORTH AMERICA RESEARCH GRANT 25000 WIRE TRANSFER 2 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: MONITORING THE USE OF GRANT FUNDS OUTSIDE THE US IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS 1 DUKE UNIVERSITY MEDICAL CENTER 508 FULTON ST DURHAM NC 27705 562070036 501(C)(3) 22000 RESEARCH GRANT JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE 733 N BROADWAY STE 117 BALTIMORE MD 21205 900329755 501(C)(3) 100000 RESEARCH GRANT INNOCENTIVE 201 JONES RD WALTHAM MA 02451 203437526 10000 RESEARCH GRANT 2 1 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: MONITORING USE OF GRANT FUNDS INSIDE THE US IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. X 1 250 FMV X 1510 FMV X 2 106147 FMV X 4 2710 FMV X SOFTWARE 1 1108 FMV 0 0 1 THIRD PARTY USE: PART I, LINE 32B: CONTRIBUTIONS OF PUBLICLY TRADED SECURITIES ARE DISPOSED OF THROUGH AMERITRADE. FORM 990, PART VI, SECTION A, LINE 2 BEN ABRAM AND ADAM ABRAM HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11 FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR AND TREASURER BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PART VI, SECTION B, LINE 12C CONFLICT OF INTEREST POLICY COMPLIANCE IS MONITORED BY REGULAR COMPLETION OF CHECKLISTS BY DIRECTORS FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. FINANCIAL STATEMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE.