2013-04-19T08:41:55-05:00 2012-06-30 232932984 PARENTEBEARD LLC 1650 MARKET STREET SUITE 4500 PHILADELPHIA PA 19103 990 2011-07-01 221482276 THE MATHENY SCHOOL AND HOSPITAL INC MATH 9082340011 PO BOX 339 MAIN STREET PEAPACK NJ 07977 STEVEN M PROCTOR 9082340011 2013-04-18 1 JULIUS GREEN CPA P00350393 2159720701 2011 2016-03-07 17:11:31Z MATHENY MEDICAL & EDUCATIONAL CENTER STEVEN M PROCTOR PO BOX 339 MAIN STREET PEAPACK NJ 07977 54446116 0 X WWW.MATHENY.ORG X 1950 NJ PROVIDE COMPREHENSIVE SERVICES TO INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES. 17 15 658 299 0 0 1049008 766314 41570965 43226015 1198679 1140974 2882 -32130 43821534 45101173 0 0 0 0 33166189 34920310 0 0 436187 9836304 10591976 43002493 45512286 819041 -411113 52795784 50244966 10541303 8926351 42254481 41318615 X THE MISSION OF THE MATHENY SCHOOL AND HOSPITAL IS TO OPTIMIZE THE QUALITY OF LIFE FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES AND SIGNIFICANT FUNCTIONAL IMPAIRMENTS.MATHENY MEDICAL AND EDUCATIONAL CENTER PROVIDES COMPREHENSIVE HABILITATIVE SERVICES; DEVELOPS AND MAINTAINS PROGRAMS THAT SUPPORT FURTHER INTEGRATION INTO THE COMMUNITY; CONTRIBUTES TO THE FIELD OF HABILITATION THROUGH RESEARCH, TECHNOLOGY, PROFESSIONAL/MEDICAL TRAINING AND EDUCATION; AND, SUPPORTS INDIVIDUAL AND FAMILY NEEDS THROUGH PUBLIC AWARENESS AND THE PROMOTION OF SELF-ADVOCACY. 0 0 22312218 27113749 PROFESSIONAL CARE AND NURSING - PRIMARY, SUBSPECIALTY AND REHABILITATIVE CARE TO PATIENTS WITH CHRONIC NEUROLOGICAL DISABLING CONDITIONS OF ALL AGES. PROVIDE SUPPORT FOR NURSING AND ALL CLINICAL, THERAPEUTIC AND EDUCATIONAL DISCIPLINES. PROVIDE THE SCHOOL HEALTH FUNCTIONS FOR THE MATHENY SCHOOL. OFFER GUIDANCE TO THE LEADERSHIP OF THE HOSPITAL WITH OPERATIONS AND LONG RANGE PLANNING. STAFF THE INPATIENT AND OUTPATIENT UNITS OF MATHENY MEDICAL AND EDUCATIONAL CENTER. TO PROVIDE EACH PATIENT WITH THE HIGHEST LEVEL OF PROFESSIONAL NURSING AND PARAPROFESSIONAL PERSONAL CARE. TO BE INTEGRATED INTO THE TEAM WHICH PROVIDES COMPREHENSIVE, TRANSDISCIPLINARY SERVICES TO INDIVIDUALS WITH DISABILITIES OF A DEVELOPMENTAL NATURE. TO MAINTAIN WELLNESS BY CREATING AN ATMOSPHERE WHICH IS HARMONIOUS AND PROMOTES INDIVIDUAL GROWTH AND DEVELOPMENT. TO PROVIDE RELATED SERVICES TO THE MATHENY COMMUNITY, INCLUDING INFECTION CONTROL, ENTERSTOMAL THERAPY, EMPLOYEE HEALTH SERVICES, RESPIRATORY THERAPY AND PHLEBOTOMY SERVICES. ALSO CONSULT WITH THE ADULT LEARNING CENTER AT HILLSBORO (MALCH) AND THE CENTER OF MEDICINE AND DENTISTRY (MCMD). 6243442 7587014 THERAPY - TO PROVIDE A CONTINUUM OF SERVICES IN THE AREAS OF OCCUPATIONAL THERAPY, PHYSICAL THERAPY, SPEECH-LANGUAGE THERAPY, MUSIC THERAPY, RECREATION THERAPY AND ASSISTIVE TECHNOLOGY TO CHILDREN AND ADULTS WITH DEVELOPMENTAL DISABILITIES IN BOTH MATHENY'S INTERNAL AND EXTERNAL PROGRAMS. 7015528 8525252 EDUCATION AND PSYCHOLOGICAL CURE AND DIETARY - TO PROVIDE AN INTEGRATED EDUCATIONAL EXPERIENCE FOR STUDENTS WITH A DIVERSE RANGE OF ABILITIES AND DISABILITIES. EACH STUDENT IS GIVEN OPPORTUNITIES TO REACH HIS OR HER HIGHEST LEVEL OF ACADEMIC ACHIEVEMENT, TO OBTAIN MAXIMUM INDEPENDENCE, AND TO TRANSITION INTO POST-SECONDARY FUNCTIONAL AND COMMUNITY-BASED PROGRAMS. THE MATHENY SCHOOL WILL BE THE PREMIER LEARNING INSTITUTION FOR STUDENTS WITH DEVELOPMENTAL DISABILITIES, STRIVING FOR EXCELLENCE AND BEST PRACTICES IN EDUCATIONAL ADAPTATIONS AND LEARNING OUTCOMES. ALSO TO FACILITATE CHANGE AND MAXIMIZE THE POTENTIAL OF PERSONS SERVED SO THAT THEY MAY ACHIEVE INDEPENDENCE AND INTEGRATION INTO THE COMMUNITY. 35571188 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 1 1 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 64 0 1 658 1 0 0 0 0 0 1 1 0 0 0 0 X 17 15 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 1 0 NJ X WAYNE GUBERMAN 9082340011 65 HIGHLAND AVENUE PEAPACK NJ 07977 DANIEL MCLAUGHLIN 12.00 X X 0 0 0 WILLIAM KRAIS 1.00 X 0 0 0 STEVEN M PROCTOR 37.50 X X 306327 0 88246 GARY EDDEY 51.50 X X 342841 0 53371 LINDA HORTON 1.00 X 0 0 0 ARNOLD D ROSENHECK DMD 1.00 X 0 0 0 GARY A SQUIRES 1.00 X 0 0 0 DAVID SZOTT 1.00 X 0 0 0 VALERIE BYRD ANDERSON 1.00 X 0 0 0 PETER M HOLLOWAY 1.00 X 0 0 0 EDANA DESATNICK 1.00 X 0 0 0 GERALD SYDELL DDS 1.00 X 0 0 0 PAM CEMBROOK 1.00 X 0 0 0 JUNE CIOPPETTINI 1.00 X 0 0 0 BRUCE FISHER 1.00 X 0 0 0 BRIAN FOLEY ESQ 1.00 X 0 0 0 KENNETH ALTER 1.00 X 0 0 0 WAYNE GUBERMAN 37.50 X 221900 0 58148 CHRISTOPHER KING 37.50 X 168577 0 42385 ANDREA C MARINO 37.50 X 168383 0 24250 NANCY PETRILLO 37.50 X 122945 0 8264 CHRISTINE P MAND 37.50 X 209714 0 19066 KEVIN RALPH 37.50 X 152493 0 320 KENNETH ROBEY 37.50 X 146561 0 10139 SUSAN ROELOFFS 37.50 X 140095 0 15759 SURBPARKASH SINGH 37.50 X 135816 0 12709 2115652 0 332657 28 0 1 0 HEROLD LAW 25 INDEPENDENCE BLVD WARREN NJ 07059 LEGAL 345761 THE HILLIER GROUP 275 7TH AVENUE 24 FLOOR NEW YORK NY 10001 ARCHITECT 101083 2 130632 31152 604530 766314 PROFESSIONAL CARE AND 623000 27113749 27113749 THERAPY 900099 8525252 8525252 EDUCATION AND PSYCHOLO 611600 7587014 7587014 43226015 577410 577410 9848261 9284697 563564 563564 563564 14550 130632 60246 -45696 -45696 MISCELLANEOUS REVENUE 900099 13566 13566 13566 45101173 43803145 0 531714 1686569 404383 1282186 27012670 23850150 2816153 346367 1449387 1405453 43934 2701818 2359517 342301 2069866 1797219 249824 22823 16000 16000 10086 10086 90751 90751 172717 172717 563351 467550 50837 44964 178472 178472 4998868 3104105 1876089 18674 521524 417219 104305 28957 26985 1972 4005 4005 18340 18340 1201166 1201166 885811 885811 MEDICATION EXPENSES 722780 722780 AGENCY HELP 536241 536241 FOOD & SUPPLIES 502566 502566 LAUNDRY & LINENS 105018 105018 35323 33936 1387 45512286 35571188 9504911 436187 2441864 3068628 7767391 5611477 4779416 4160411 14690 14690 135381 83500 38216274 20346914 18512144 17869360 18778860 19255640 366038 181260 52795784 50244966 7426513 6421699 2600000 2400000 514790 104652 10541303 8926351 X 42082210 41098484 72271 120131 100000 100000 42254481 41318615 52795784 50244966 X -411113 -524753 X 0 1 1 X 1 1 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 24443838 -950068 23493770 21363083 3080755 24443838 19703580 1659503 21363083 23640870 -2937290 1000000 19703580 1.00000 0.00000 0.00000 0 0 270094 270094 26976627 15459764 11516863 7071227 4887150 2184077 3898326 3898326 17869360 SUNDRY LIABILITIES 104652 104652 45101173 45512286 -411113 -524753 -524753 -935866 44463949 -524753 -524753 44988702 172717 -60246 112471 45101173 45399815 60246 60246 45339569 172717 172717 45512286 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X: THE CENTER ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES USING A RECOGNITION THRESHOLD OF MORE-LIKELY-THAN-NOT TO BE SUSTAINED UPON EXAMINATION BY THE APPROPRIATE TAXING AUTHORITY. MEASUREMENT OF THE TAX UNCERTAINTY OCCURS IF THE RECOGNITION THRESHOLD HAS BEEN MET. MANAGEMENT DETERMINED THAT THERE WERE NO TAX UNCERTAINTIES THAT MET THE RECOGNIZED THRESHOLD IN 2012 AND 2011. THE CENTER'S FEDERAL INCOME TAX RETURNS ARE NO LONGER SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE FOR YEARS BEFORE JUNE 30, 2008. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES -60,246. PART XIII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 60,246. NJ MILES FOR MATHENY 145182 130632 14550 429 59817 145182 130632 14550 429 59817 60246 -45696 0 0 3977481 3345062 632419 0.01390 184980 184980 0.00410 4162461 3345062 817399 0.01800 4162461 3345062 817399 0.01800 195469 195469 0 1 1 MATHENY SCHOOL & HOSPITAL INC

65 HIGHLAND AVENUE PEAPACK NJ 07977

X SPECIALTY HOSPITAL SECTION OPTIONAL - NOT COMPLETED 1 0 0 0 0 0 0 0 0 0 X 0 0 PART I, LINE 7: THE AMOUNTS REPRESENT REVENUE FROM OUR GROUP HOMES AND THE RELATED EXPENSES FOR THE GROUP HOMES AND RELATED BENEFITS. LINE H RESEARCH ARE THE EXPENSES FOR RESEARCH DEPARTMENT. THE DENOMINATOR USED TO CALCULATE PERCENTAGES OF EXPENSES INCLUDES TOTAL EXPENSES LESS BAD DEBT. PART VI, LINE 2: MATHENY'S COMMUNITY IS NOT THE GEOGRAPHICAL AREA WE SERVE. IT'S THE POPULATION WE SERVE - PEOPLE WITH DISABILITIES AND THEIR FAMILIES THROUGHOUT THE STATE OF NEW JERSEY AND SOMETIMES REACHING OUT INTO OTHER STATES. IT IS OUR RESPONSIBILITY, COLLABORATING WITH OTHER AGENCIES, TO ASSESS THE NEEDS OF THESE CONSTITUENTS AND TO HELP MEET THE NEEDS OF AS MUCH OF THIS POPULATION AS POSSIBLE. WE UNDERSTAND THAT WE CAN'T TREAT EVERYONE, BUT WE CAN PROVIDE INFORMATION, RESOURCES, REFERRALS, TRAINING IN AN EFFORT TO HELP THOSE WHO HAVE NOWHERE ELSE TO TURN. WE ALSO HAVE A RESPONSIBILITY TO EDUCATE THE GENERAL POPULATION ABOUT THE CHALLENGES FACING PERSONS WITH DISABILITIES AND TO ADVOCATE FOR THIS POPULATION. MATHENY RECENTLY SURVEYED OTHER AGENCIES FOR PEOPLE WITH DISABILITIES, GOVERNMENT AGENCIES AND LEGISLATORS TO ASSESS THE MOST PRESSING NEEDS IN THE STATE OF NEW JERSEY FOR PEOPLE WITH DISABILITIES. SOME OF THOSE UNMET NEEDS ARE: - COORDINATION OF MEDICAL CARE. - MEDICAL AND NURSING PROFESSIONALS WHO ARE FAMILIAR WITH THE "CULTURE OF DISABILITY." - BETTER ACCESS TO ADAPTIVE EQUIPMENT AND MEDICAL DEVICES. - OUTPATIENT FACILITIES THAT FAMILIES CAN ACCESS. - DAY PROGRAMMING/TRANSPORTATION. A KEY FINDING OF THE SURVEY WAS THE OBSERVATION THAT THE MEDICAL PROFESSION IS GEARED TO ACUTE, RATHER THAN CHRONIC, ILLNESSESS. CHILDREN AND ADULTS WITH LIFELONG DEVELOPMENTAL DISABILITIES ARE OFTEN WITHOUT MEDICAL CHAMPIONS OR EVEN HEALTHCARE PROVIDERS WHO TAKE AN INTEREST IN THEIR COMPLEX NEEDS. OUR TRANSITIONAL CARE PROJECT, MENTIONED EARLIER IN THIS REPORT, IS ONE EFFORT TO CHANGE THAT. BUT WE RECOGNIZE THAT MUCH MORE NEEDS TO BE DONE. WE RECOGNIZE THAT WE CANNOT PROVIDE CARE FOR THE ENTIRE DISABLED POPULATION. WE DO EVERYTHING POSSIBLE TO ENSURE THAT FUTURE HEALTHCARE PROFESSIONALS UNDERSTAND HOW TO CARE FOR AND TREAT PERSONS WITH DISABILITIES. AS PART OF THAT EFFORT, WE HAVE ESTABLISHED A PROGRAM THAT PROVIDES TRAINING FOR MEDICAL AND DENTAL STUDENTS FROM UMDNJ, WHO ROTATE THROUGH MATHENY ON A WEEKLY BASIS. MATHENY ALSO HAS INTERNSHIP AND TRAINING PROGRAMS WITH MORE THAN 100 COLLEGES AND UNIVERSITIES.HELPED BY A GRANT FROM THE ROBERT WOOD JOHNSON FOUNDATION'S NEW JERSEY HEALTH INITIATIVES PROGRAM WE HAVE DEVELOPED, TESTED AND IMPLEMENTED A MODEL FOR IMPROVING THE QUALITY OF TRANSITIONAL CARE FOR PERSONS WITH CHRONIC HEALTH ISSUES AND MEDICAL COMPLEXITIES ASSOCIATED WITH DEVELOPMENTAL DISABILITIES. OUR PARTNERS IN THIS PROJECT ARE MORRISTOWN MEDICAL CENTER IN MORRISTOWN, NJ; THE ROBERT WOOD JOHNSON UNIVERSITY HOSPITAL IN NEW BRUNSWICK, NJ; AND NEWTON MEDICAL CENTER IN NEWTON, NJ. IN ADDITION TO IMPROVING THE CARE OF OUR PATIENTS WHEN TRANSFERRED TO ACUTE CARE HOSPITALS AND REDUCING THE NUMBER OF READMISSIONS, THIS PROJECT HAS EDUCATED STAFF MEMBERS AT THE ACUTE CARE HOSPITALS SO THAT THEY WILL BE MORE COMFORTABLE TREATING PATIENTS WITH DISABILITIES. IT HAS NOT ONLY HELPED MATHENY PATIENTS BUT HAS ALSO BENEFITED PATIENTS WITH DISABILITIES WHO ARE ADMITTED TO THE HOSPITALS FROM FAMILIES AND OTHER INSTITUTIONS.NUMBERS OF READMISSIONS WITHIN 30 DAYS OF DISCHARGE FROM THE ACUTE CARE SETTING, AS WELL AS NUMBERS OF EMERGENCY ROOM VISITS WITHIN 30 DAYS OF DISCHARGE, SERVE AS A PRIMARY OUTCOMES MEASURE OF THE TRANSITIONAL CARE PROGRAM. IN THE FIRST 10 MONTHS OF THE PROGRAM, THE HOSPITAL READMISSION RATE DROPPED TO 7.1% FROM 25.05%. MATHENY'S COMMUNITY IS NOT THE GEOGRAPHICAL AREA WE SERVE. IT'S THE POPULATION WE SERVE - PEOPLE WITH DISABILITIES AND THEIR FAMILIES THROUGHOUT THE STATE OF NEW JERSEY AND SOMETIMES REACHING OUT INTO OTHER STATES. IT IS OUR RESPONSIBILITY, COLLABORATING WITH OTHER AGENCIES, TO ASSESS THE NEEDS OF THESE CONSTITUENTS AND TO HELP MEET THE NEEDS OF AS MUCH OF THIS POPULATION AS POSSIBLE. WE UNDERSTAND THAT WE CAN'T TREAT EVERYONE, BUT WE CAN PROVIDE INFORMATION, RESOURCES, REFERRALS, TRAINING IN AN EFFORT TO HELP THOSE WHO HAVE NOWHERE ELSE TO TURN. PART VI, LINE 3: MATHENY'S TYPICAL OUTPATIENT HAS INSURANCE COVERAGE THROUGH NJ MEDICAID. THESE PATIENTS OFTEN HAVE PRIMARY COVERAGE THROUGH MEDICARE. AT TIMES SOME ALSO MAY HAVE A PRIMARY COMMERCIAL INSURANCE; BUT THIS IS NOT TYPICAL.IF IT IS DISCOVERED THAT A PATIENT HAS NO INSURANCE COVERAGE WHATSOEVER, THEY WOULD BE DIRECTED TO THE APPROPRIATE SOCIAL SERVICE AGENCY FOR SUPPORT AND GUIDANCE. THERE ARE A FEW PATIENTS THAT DO NOT HAVE DENTAL COVERAGE AND ONLY HAVE PRIVATE/COMMERCIAL MEDICAL INSURANCE AND/OR MEDICARE. MEDICARE DOES NOT COVER DENTAL SERVICES. WE WOULD THEN OFFER AN OPTION TO PAY FOR SERVICES BASED ON SPECIFIC FINANCIAL CRITERIA AND A SLIDING FEE SCHEDULE. IF A PATIENT MEETS THE ELIGIBILITY OF THE SLIDING FEE SCHEDULE, THEY WOULD BE PLACED IN THE APPROPRIATE SCHEDULE TO PAY FOR SERVICES. THESE PATIENTS PROVIDE FINANCIAL DOCUMENTATION THAT STAFF IN THE FINANCE/BILLING DEPARTMENT VIEWS AND SHE THEN MAKES THE DETERMINATION FOR ELIGIBILITY. PART VI, LINE 4: COMMUNITY SERVICESMATHENY STAFF MEMBERS, INCLUDING THERAPISTS, TEACHERS, SOCIAL WORKERS, PSYCHOLOGISTS, NUTRITIONISTS AND NURSES, PARTICIPATE IN THE EARLY INTERVENTION PROGRAM IN NEW JERSEY. WE ALSO PROVIDE NEW JERSEY STATE DEPARTMENT OF EDUCATION APPROVED ACADEMICALLY-BASED SPECIAL EDUCATION ASSISTANCE THROUGH A PROGRAM CALLED MATHENY SOLUTIONS FOR SCHOOLS. IN ADDITION TO THE PROFESSIONAL SERVICES WE PROVIDE, WE ALSO TRY TO KEEP PERSONS WITH DISABILITIES AND THEIR FAMILIES UP-TO-DATE AND KNOWLEDGEABLE ABOUT OTHER ACTIVITIES AND EVENTS THAT ARE OCCURRING IN THE COMMUNITY. FOR EXAMPLE, WE MIGHT MAKE THEM AWARE OF WORKSHOPS FOR PARENTS OF CHILDREN WITH SPECIAL NEEDS OR MUSICAL PRESENTATIONS FOR THE VISUALLY IMPAIRED OR WORKSHOPS ON PREVENTING DRUG ABUSE.A NEW OUTREACH PROGRAM WITHIN COMMUNITY SERVICES IS A PROJECT WHICH WILL TEACH SOCIAL SKILLS TO TWO AND THREE-YEAR-OLD CHILDREN WHO HAVE AUTISM SPECTRUM DISORDER, ADHD OR WHO HAVE DIFFICULTIES WITH SENSORY INTEGRATION. THESE CLASSES WILL BE TAUGHT AT FACILITIES IN THE COMMUNITY SUCH AS NURSERY SCHOOLS. AS WE ASSESS THE NEED FOR THIS SERVICE, IT MAY EXPAND BEYOND THIS AGE GROUP. AS OUR FIELD SUPERVISOR, WHO IS ALSO AN EARLY INTERVENTION SOCIAL WORKER, EXPLAINS, PARENTS OF THESE CHILDREN, "OFTEN REPORT TO ME THAT THEIR CHILDREN REALLY HAVE A HARD TIME BEING IN A GROUP OR OUT IN PUBLIC. THIS MAKES MANY OF THEIR PARENTS AFRAID TO TAKE THEM OUT IN PUBLIC. THESE PARENTS ARE LOOKING FOR A WAY TO HELP THEIR CHILDREN FEEL MORE COMFORTABLE IN GROUPS OF PEERS AND OTHER PUBLIC PLACES."WHEN MATHENY THERAPISTS AND EDUCATORS GO INTO PUBLIC SCHOOL DISTRICTS, THEY NOT ONLY TEACH THE STUDENTS, BUT THEY ALSO TRAIN THE PUBLIC SCHOOL STAFF, SO THAT THERAPIES AND OTHER TOOLS CAN BE USED WHEN THE MATHENY STAFF IS NOT ON DUTY. AS ONE PUBLIC SCHOOL DIRECTOR OF SPECIAL SERVICES SAYS OF THE MATHENY PHYSICAL THERAPIST ON HER STAFF: "SHE'LL TEACH THE TEACHER THE SKILLS THAT SHE'S TEACHING INDIVIDUALLY, AND THAT CONTINUES ALL DAY. SHE'S NOT JUST WORKING WITH THE CHILD; SHE'S WORKING WITH THE TEACHERS AND THE AIDES."OUR DIRECTOR OF COMMUNITY SERVICES BELONGS TO COMMUNITY ORGANIZATIONS SUCH AS HEALTHIER SOMERSET, AN ORGANIZATION WHOSE GOAL IS TO IMPROVE HEALTH OF PEOPLE WHO LIVE AND WORK IN SOMERSET COUNTY; SOMERSET COUNTY COALITION FOR CHILDREN WITH DISABILITIES; AND CHILD & MATERNAL HEALTH NETWORK, WHICH IS DEDICATED TO IMPROVING ACCESS FOR WOMEN AND THEIR CHILDREN TO HEALTHCARE IN THE COUNTY.MATHENY SOCIAL MEDIA MAKES PEOPLE AWARE OF ISSUES AND DEVELOPMENTS AFFECTING PEOPLE WITH DISABILITIES. FOR EXAMPLE, RECENT FACEBOOK POSTS INCLUDED: A REPORT ON A BILL TO PREVENT DISCRIMINATION AGAINST PEOPLE WITH DISABILITIES IN NEED OF TRANSPLANTS; AN ARTICLE ON NEW JERSEY PARENTS' REACTION TO NEWS THAT THE AMERICAN PSYCHIATRIC ASSOCIATION WAS PROPOSING A NARROWER DEFINITION OF AUTISM; A REPORT ON HOW ADVOCATES WERE PUSHING FOR MORE MONEY FOR THE SPECIAL NEEDS HOUSING TRUST FUND.INTERNATIONAL COMMUNITIES:WHEN POSSIBLE, WE HELP IMPROVE SERVICES AND KNOWLEDGE ABOUT CARING AND TREATING FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES IN OTHER COUNTRIES. FOR EXAMPLE, OUR DIRECTOR OF COMMUNITY SERVICES AND ONE OF OUR PHYSICAL THERAPISTS TRAVELED TO UGANDA TO HELP A FACILITY FOR PEOPLE WITH DISABILITIES IN THAT COUNTRY BETTER CARE FOR THEIR PATIENTS. THE PURPOSE OF THE TRIP WAS TO ASSESS THE NEEDS OF 60 PATIENTS WHO RANGED IN AGE FROM A 12-YEAR-OLD CHILD TO SENIOR CITIZENS. MATHENY IS ALSO FREQUENTLY VISITED BY GROUPS FROM OTHER COUNTRIES, SEEKING TO LEARN ABOUT THE NEWEST TECHNIQUES FOR THE CARE AND TREATMENT OF PEOPLE WITH DISABILITIES.REHABILITATION TECHNOLOGY/SEATING & MOBILITY CLINICMATHENY'S REHABILITATION TECHNICIANS ARE TRAINED AND CERTIFIED IN THE SKILLS NECESSARY TO EVALUATE AND RESOLVE SEATING NEEDS OF PEOPLE IN WHEELCHAIRS BY RECOMMENDING AND PROVIDING THE APPROPRIATE EQUIPMENT, IN COLLABORATION WITH THERAPISTS - EITHER MATHENY'S THERAPISTS OR THERAPISTS IN OTHER FACILITIES THAT WE SERVE. OUR REHAB TECHNICIANS AND THERAPISTS SEEK TO EMPOWER INDIVIDUALS, THEIR FAMILIES AND CAREGIVERS WITH THE INFORMATION NECESSARY TO MAKE INFORMED DECISIONS ABOUT ASSISTIVE TECHNOLOGY.ONE RECENT EXAMPLE OF HOW OUR REHAB TECHNICIANS AND THERAPISTS REACH OUT INTO THE COMMUNITY INVOLVED A YOUNG WOMAN WITH A CONDITION CALLED FIBRODYSPLASIA OSSIFICANS PROGRESSIVA (FOP), A RARE GENETIC DISORDER CHARACTERIZED BY THE ABNORMAL GROWTH OF BONE IN SOFT TISSUE. THE DISEASE PROGRESSIVELY DISABLES THE BODY AS NEW BONE FUSES JOINTS AND CREATES IMMOBILITY. THE YOUNG WOMAN WITH THIS CONDITION WAS GETTING READY TO ENTER COLLEGE, AND SHE AND HER PARENTS WERE HOPING THERAPISTS AND REHAB TECHNICIANS AT MATHENY COULD EVALUATE HER FOR ADAPTIVE EQUIPMENT THAT MIGHT MAKE HER LIFE A LITTLE EASIER. SINCE HER MOBILITY WAS EXTREMELY LIMITED, MATHENY RECOMMENDED A POWER WHEELCHAIR WITH A STANDING FEATURE. THE RESULT IS THAT SHE IS ABLE TO NAVIGATE AROUND CAMPUS AND LIVE AS NORMAL A LIFE AS POSSIBLE. MEMBERS OF OUR REHABILITATION TECHNOLOGY DEPARTMENT REGULARLY VISIT PUBLIC SCHOOL DISTRICTS IN NEW JERSEY, IN SUCH CITIES AND COMMUNITIES AS DIVERSE AS NEWARK, CRANFORD AND BEDMINSTER. THEY CONSULT WITH THERAPISTS WORKING IN THOSE SCHOOL DISTRICTS TO DECIDE WHAT NEEDS TO BE DONE TO EQUIPMENT FOR STUDENTS WITH DISABILITIES. SAYS A PHYSICAL THERAPIST IN THE NEWARK SCHOOL DISTRICT: "IT IS A PLEASURABLE WORKING EXPERIENCE, NOT ONLY FOR ME, BUT THE TEACHING STAFF, TOO."THESE ARE JUST TWO ILLUSTRATIONS OF HOW WE ARE ABLE TO PROVIDE THE EXPERTISE TO HELP PEOPLE IN THE COMMUNITY WITH SEATING AND MOBILITY ISSUES. IN ADDITION TO WORKING WITH FAMILIES, WE PROVIDE EVALUATIONS, SERVICE AND ADVICE TO SCHOOLS, DEVELOPMENTAL CENTERS AND RESIDENTIAL FACILITIES FOR PEOPLE WITH DISABILITIES.OUTREACH TO SCHOOLSIN AN EFFORT TO EDUCATE THE GENERAL PUBLIC ABOUT THE CHALLENGES FACED BY PEOPLE WITH DISABILITIES AND TO BREAK DOWN THE BARRIERS BETWEEN ABLE-BODIED STUDENTS AND STUDENTS WITH DISABILITIES, WE VISIT AND COLLABORATE WITH PUBLIC AND INDEPENDENT SCHOOLS ON A VARIETY OF PROGRAMS. FOR EXAMPLE, WE VISITED AN EIGHTH GRADE CLASS IN A PUBLIC SCHOOL IN HUNTERDON COUNTY. THE ABLE-BODIED STUDENTS PLAYED ADAPTED VERSIONS OF HOCKEY AND BASKETBALL WHILE SITTING IN WHEELCHAIRS, BOWLED BY PUSHING A BUTTON AND PARTICIPATED IN MANUAL AND POWER WHEELCHAIR RACES. ALL OF THESE ACTIVITIES WERE PART OF A SPECIAL PHYSICAL EDUCATION CLASS THAT INCLUDED SIX STUDENTS FROM THE MATHENY SCHOOL. MATHENY STAFF AND STUDENTS DEMONSTRATED THE ADAPTED VERSIONS OF THESE SPORTS, AND THE TWO GROUPS OF STUDENTS COMPETED AGAINST EACH OTHER. GOAL OF THE PROGRAM IS TO PROMOTE INTERACTION BETWEEN BOTH GROUPS, ENABLING THEM TO COMPETE AS PEERS. STUDENTS FROM SCHOOLS THROUGHOUT THE NEARBY COMMUNITIES VOLUNTEER AT MATHENY, AND WE ARE OFTEN THANKED BY PARENTS, TEACHERS, SCOUT LEADERS, CHURCH YOUTH GROUP LEADERS, ETC. FOR THE ENRICHING EXPERIENCES WE OFFER THESE STUDENTS AND THE EDUCATION AND ENLIGHTENMENT THAT THEY WILL CARRY WITH THEM THROUGH THE REST OF THEIR LIVES. PATIENT/STUDENT PHILANTHROPYFACED WITH THEIR OWN PHYSICAL CHALLENGES, MATHENY PATIENTS AND STUDENTS, NEVERTHELESS, ENJOY GIVING BACK TO THE COMMUNITY. DURING WEAR RED DAY, STUDENTS PARTICIPATED IN ADAPTED VERSIONS OF JUMP ROPE AND HOOPS 4 HEART TO RAISE MONEY TO SUPPORT HEART HEALTH WELLNESS AMONG WOMEN. MATHENY ADULT PATIENTS RAISED MONEY TO SPONSOR A CHILD IN THE CHANGE A LIFE UGANDA PROGRAM THAT PROVIDES EDUCATION THROUGH SCHOOL-BASED PROGRAMS IN THAT COUNTRY. AND THROUGHOUT THE YEAR, PATIENTS AND STUDENTS ARE INVOLVED IN FUNDRAISING ACTIVITIES FOR A VARIETY OF CAUSES AND ORGANIZATIONS SUCH AS FOOD PANTRIES, THE SALVATION ARMY AND THE AMERICAN RED CROSS.ARTS OUTREACHOUR INNOVATIVE MUSIC THERAPY PROGRAM ENABLES OUR STUDENTS AND PATIENTS TO PERFORM IN THE COMMUNITY AS PART OF THE MATHENY CHOIRS. THESE PERFORMANCES TAKE PLACE AT CHURCHES, SCHOOLS AND AT COMMUNITY EVENTS SUCH AS TREE LIGHTING CEREMONIES. THE MATHENY MUSES, A GROUP OF YOUNG ARTISTS AND PERFORMERS FROM MATHENY'S CHOIR, PERFORMED LAST FALL AT "EXPRESS YOURSELF", AN EVENT SPONSORED BY ARTWORKS, AN ORGANIZATION THAT PROVIDES CHILDREN AND YOUNG ADULTS SUFFERING FROM CHRONIC AND LIFE-THREATENING ILLNESSES ACCESS TO CREATIVE AND PERFORMING ARTS PROGRAMS THAT ENCOURAGE THE USE OF THE CREATIVE PROCESS AS A VEHICLE FOR HEALING, COMMUNICATION, SELF-EXPRESSION AND PERSON DEVELOPMENT.OUR UNIQUE ARTS ACCESS PROGRAM, WHICH ENABLES PEOPLE WITH DISABILITIES TO CREATE FINE ART, ASSISTED BY PROFESSIONAL ARTIST-FACILITATORS, IS BEING ADAPTED BY OTHER ORGANIZATIONS SERVING PEOPLE WITH DISABILITIES. MOST RECENTLY, THE ARC OF MERCER COUNTY HIRED A PROFESSIONAL ARTIST, HAD HIM TRAINED IN THE ARTS ACCESS METHOD OF FACILITATION AND STARTED A PROGRAM FOR ITS ADULT CLIENTS.ARTS ACCESS ALSO REACHES OUT INTO THE COMMUNITY VIA EXHIBITS IN VARIETY OF VENUES FROM MUSEUMS TO HOSPITALS TO LOCAL RESTAURANTS. PART VI, LINE 5: PROMOTION OF HEALTH IN THE COMMUNITY:THE MATHENY INSTITUTE FOR RESEARCH IN DEVELOPMENTAL DISABILITIES CONDUCTS RESEARCH THAT HELPS PEOPLE WITH DEVELOPMENTAL DISABILITIES AND THEIR CAREGIVERS. WE PUBLISH OUR RESEARCH IN LEADING MEDICAL JOURNALS AND IN LEADING PUBLICATIONS IN THE FIELD OF DISABILITIES. WE PRESENT OUR RESEARCH AT REGIONAL, NATIONAL AND INTERNATIONAL CONFERENCES AND OFTEN ADDRESS MEDICAL SCHOOLS AND GOVERNMENT-SPONSORED MEETINGS. AND WE CREATE MULTIMEDIA TRAINING TOOLS TO HELP MEDICAL SCHOOLS IN PREPARING THEIR STUDENTS TO CARE FOR AND TREAT PERSONS WITH DISABILITIES. WE WERE RECENTLY RESPONSIBLE FOR THE PASSAGE OF A LAW IN NEW JERSEY THAT PROVIDES FAMILIES OF PERSONS WITH DEVELOPMENTAL DISABILITIES GREATER AUTONOMY IN MAKING DECISIONS ABOUT PARTICIPATION IN POTENTIALLY BENEFICIAL RESEARCH. BEING AWARE OF AN INCONSISTENCY REGARDING GUARDIAN REQUIREMENTS CONTAINED IN TWO PREVIOUS PIECES OF LEGISLATION, OUR RESEARCH DIRECTOR AND CORPORATE COUNSEL BROUGHT THIS ISSUE TO THE ATTENTION OF NEW JERSEY STATE SENATOR CHRISTOPHER BATEMAN. SENATOR BATEMAN, ALONG WITH SENATOR ROBERT W. SINGER AND ASSEMBLYWOMAN MILA M. JASEY, SPONSORED BILLS THAT RESULTED IN THE NEW LAW. IN ADDITION TO CLEARING UP THE PREVIOUS INCONSISTENCY, THE NEW LAW EXPANDED THE RANGE OF STUDIES THAT ARE ALLOWED, TO INCLUDE ONES THAT MIGHT NOT HAVE DIRECT BENEFIT TO THE INDIVIDUAL PARTICIPANT, BUT MIGHT HAVE BROADER BENEFIT TO PERSONS WITH DISABILITIES. THE PRACTICAL BENEFIT OF THE NEW LAW IS THAT FAMILIES OF PERSONS WITH DEVELOPMENTAL DISABILITIES WILL HAVE THE FREEDOM THAT OTHER FAMILIES ENJOY TO WEIGH THE RISKS AND BENEFITS OF AN APPROPRIATELY REVIEWED AND APPROVED RESEARCH STUDY. AND THEY WILL MAKE THEIR OWN INFORMED DECISIONS ABOUT WHETHER OR NOT THEIR FAMILY MEMBERS WILL PARTICIPATE.THE DIRECTOR OF THE MATHENY INSTITUTE FOR RESEARCH SERVED AS PRESIDENT OF THE ALLIANCE FOR DISABILITY IN HEALTH CARE EDUCATION FOR TWO YEARS. THE GOAL OF THE ALLIANCE IS TO DEVELOP A SET OF COMPETENCIES THAT HEALTHCARE PROFESSIONALS NEED TO KNOW ABOUT PEOPLE WITH DISABILITIES. THE LONG-TERM GOAL OF THE ORGANIZATION IS TO ENSURE THAT EVERY MEDICAL SCHOOL, NURSING SCHOOL AND MEDICAL TRAINING PROGRAM IN THE UNITED STATES HAS SOME COMPONENT TO ADDRESS DISABILITY-SPECIFIC ISSUES. THE DIRECTOR OF THE INSTITUTE FOR RESEARCH WAS SELECTED LAST YEAR TO AN ELITE GROUP OF SCHOLARS IN THE FULBRIGHT SPECIALISTS ROSTER, A NATIONAL PROGRAM WHICH PLACES LEADERS FROM HIGHER EDUCATION AND INDUSTRY IN GLOBAL COLLABORATIONS THAT STRENGTHEN THE POSITIONS OF U.S. INSTITUTIONS.MATHENY HAS ALSO CREATED AN ONLINE DATABASE OF DENTISTS WHO SERVE PEOPLE WITH DEVELOPMENTAL DISABILITIES. THIS WAS MADE POSSIBLE BY A GRANT FROM THE NEW JERSEY COUNCIL ON DEVELOPMENTAL DISABILITIES (NJCDD). THAT DATABASE IS AVAILABLE AT WWW.DISABILITYHEALTH.ORG/DENTAL.MATHENY STAFF MEMBERS HAVE DEVELOPED A GREAT DEAL OF EXPERTISE IN CARING FOR PATIENTS WITH LESCH-NYHAN DISEASE. IN ADDITION TO CARING FOR THE SIX LESCH-NYHAN PATIENTS RESIDING AT MATHENY AND ONE OF ITS COMMUNITY RESIDENCES, MATHENY HAS BECOME A RESOURCE FOR FAMILIES AND OTHER INSTITUTIONS CARING FOR THESE PATIENTS. WE ARE OFTEN CALLED UPON TO CONDUCT EVALUATIONS OF LND PATIENTS AND WE ARE CONTINUALLY DISTRIBUTING INFORMATION ABOUT THE NUANCES OF CARING FOR AND TREATING THESE PATIENTS. LESCH-NYHAN DISEASE IS A RARE AND DEVASTATING GENETIC DISORDER CHARACTERIZED BY SEVERE DYSTONIA, SPASTICITY, SPEECH IMPAIRMENT, RENAL DISEASE, VARYING DEGREES OF COGNITIVE DEFICIT, AND THE HALLMARK SYMPTOM, COMPULSIVE SELF-INJURY. LESCH-NYHAN PATIENTS ARE SOMETIMES REFERRED TO MATHENY FROM OUT-OF-STATE AGENCIES BECAUSE NO ONE ON THOSE STATES HAS THE EXPERTISE FOR CARING FOR THESE PATIENTS. IN ONE CASE OF A MATHENY LND PATIENT FROM NEW YORK, THE PATIENT'S FATHER ACKNOWLEDGED THAT, WHILE THE DIAGNOSIS OF LESCH-NYHAN WAS "DEVASTATING, THE FACT THAT OUR SON IS GETTING PROPER TREATMENT AT ONE OF THE FEW FACILITIES IN THE WORLD WITH STAFF WHO UNDERSTAND THE DISEASE IS A RELIEF." PART VI, LINE 6: THE ORGANIZATION IS NOT PART OF AN AFFILIATED HEALTH CARE SYSTEM. PART VI, LINE 7 THERE ARE NO STATES IN WHICH THE COMMUNITY REPORT NEEDS TO BE FILED. X X X X 0 0 0 0 0 0 0 0 0 STEVEN M PROCTOR 306327 0 0 0 0 0 78559 0 9687 0 394573 0 0 0 GARY EDDEY 342841 0 0 0 0 0 47724 0 5647 0 396212 0 0 0 WAYNE GUBERMAN 221900 0 0 0 0 0 50017 0 8131 0 280048 0 0 0 CHRISTOPHER KING 168577 0 0 0 0 0 37214 0 5171 0 210962 0 0 0 ANDREA C MARINO 168383 0 0 0 0 0 11229 0 13021 0 192633 0 0 0 CHRISTINE P MAND 209714 0 0 0 0 0 13952 0 5114 0 228780 0 0 0 KEVIN RALPH 152493 0 0 0 0 0 0 0 320 0 152813 0 0 0 KENNETH ROBEY 146561 0 0 0 0 0 8613 0 1526 0 156700 0 0 0 SUSAN ROELOFFS 140095 0 0 0 0 0 8630 0 7129 0 155854 0 0 0 NEW JERSEY HEALTH CARE FACILITIES FINANCING AUTHORITY 222845542 64579E8JE 2003-06-20 3500000 CONSTRUCTION AND RENOVATION VARIOUS CAPTIAL IMPROVEMENTS 0 0 0 1100000 3500000 2003 0 0 1 1 0 0 0 0 1 0 0 0 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 THE FINANCE COMMITTEE WILL REVIEW THE TAX RETURN. THIS REVIEW IS PERFORMED PRIOR TO THE FILING OF THE RETURN. FORM 990, PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY ALL MATHENY BOARD OF TRUSTEES, OFFICERS, AND KEY EMPLOYEES AS WELL AS ANY IDENTIFIED STAFF. THE CORPORATE COMPLIANCE OFFICER IS RESPONSIBLE FOR MONITORING THIS PROCESS. A COMMITTEE CONSISTING OF THE DIRECTOR OF OPERATIONS, LEGAL COUNSEL AND THE COMPLIANCE OFFICER REVIEWS AND ADDRESSES ANY POTENTIAL CONFLICTS OF INTEREST IDENTIFIED. THE COMMITTEE SHALL MAKE A RECOMMENDATION TO THE PRESIDENT OR HIS/HER DESIGNEE REGARDING APPROPRIATE STEPS TO BE TAKEN TO ELIMINATE THE POTENTIAL EFFECT OF THE CONFLICT OF INTEREST ON INDEPENDENCE OF JUDGMENT OR PATIENT SAFETY AND QUALITY OF PATIENT CARE. THE PRESIDENT OR HIS/HER DESIGNEE SHALL EVALUATE THE COMMITTEE'S RECOMMENDATION AND SHALL DIRECT THE STEPS NECESSARY. THE COMMITTEE KEEPS WRITTEN MINUTES OF THEIR MEETINGS WHICH INCLUDE IDENTIFIED CONFLICTS, THE NATURE OF THE CONFLICT, THE CONTENT OF THE DISCUSSION, AND THE NECESSARY ACTIONS TO BE TAKEN. FORM 990, PART VI, LINE 14: THE ORGANIZATION EXPECTS TO ADOPT A FORMAL RECORD RETENTION POLICY BY THE END OF DECEMBER 2012. FORM 990, PART VI, SECTION B, LINE 15 THE COMPENSATION PHILOSOPHY CLEARLY DESCRIBES GUIDING PRINCIPLES, MARKET COMPARISONS AND MARKETPLACE POSITIONING OF COMPENSATION, STANDARD AND SUPPLEMENTAL BENEFITS AND PERQUISITES AND RETIREMENT BENEFITS. THE COMPENSATION COMMITTEE EXERCISES CONTROL OVER MANAGEMENT COMPENSATION MATTERS, AND ESTABLISHES AND/OR APPROVES PROGRAMS AND/OR COMPENSATION LEVELS BASED ON THE COMPENSATION PHILOSOPHY, COMPETITIVE MARKET PRACTICES AND THE NEEDS OF MATHENY. THE COMMITTEE RELIES ON APPROPRIATE MARKET DATA FOR COMPARABLE JOBS AND ORGANIZATIONS, I.E. ORDINARILY PROVIDED BY "SIMILARLY SITUATED ORGANIZATIONS, UNDER LIKE CIRCUMSTANCES." THE COMMITTEE ACTIONS ARE REPORTED TO THE FULL BOARD, AS APPROPRIATE. THE REVIEW PROCESS FOLLOWS THE INTERMEDIATE SANCTIONS GUIDELINES FOR QUALIFYING FOR THE "REBUTTABLE PRESUMPTION OF REASONABLENESS." COMPENSATION DECISIONS DO NOT JEOPARDIZE THE TAX-EXEMPT STATUS AND PURPOSE OF THE ORGANIZATION. APPROPRIATE AND TIMELY DOCUMENTATION REGARDING DECISIONS IS PREPARED AND MAINTAINED. A CONSULTANT WAS HIRED TO CONDUCT HEALTHCARE COMPENSATION BENCHMARKING TRENDS AND ANALYSIS AND PROVIDES A SOURCE OF CRITICAL BENCHMARK SALARY INFORMATION FOR OFFICERS AND KEY EMPLOYEES OF THE ORGANIZATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED LOSSES ON INVESTMENTS: -524,753.