2013-01-07T11:06:29-06:00 2012-06-30 541498950 RENNER AND COMPANY CPA PC 700 NORTH FAIRFAX ST SUITE 400 ALEXANDRIA VA 22314 990 2011-07-01 112779073 SJOGREN'S SYNDROME FOUNDATION INC SJOG 3015304420 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 STEVEN TAYLOR 3015304420 2012-11-27 1 JOAN MRENNER P00456765 7035351200 2011 2016-02-25 16:41:14Z STEVEN TAYLOR 6707 DEMOCRACY BLVD NO 325 BETHESDA MD 20817 1890740 0 X WWW.SJOGRENS.ORG X 1983 NY THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 18 18 11 0 109732 0 1379765 1127854 577034 564685 5804 9547 24626 55944 1987229 1758030 250750 211250 0 0 948574 799081 0 0 194385 837997 833166 2037321 1843497 -50092 -85467 745613 642235 512991 503490 232622 138745 X THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE. 0 0 371090 211250 RESEARCH GRANTS TO PROMOTE CONTINUED MEDICAL AND SCIENTIFIC RESEARCH IN THE AREA OF SJOGREN'S SYNDROME. SIX GRANTS WERE AWARDED TO UNIVERSITY AFFILIATED RESEARCHERS DURING FYE 2012. TWO FELLOWSHIPS WERE ALSO AWARDED FOR INTERNSHIPS IN A SJOGREN'S RESEARCH LABORATORY. 247226 109732 NEWSLETTER - THE SSF PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANISFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S. 211931 193622 ONE REGIONAL SEMINAR WAS HELD THIS PAST YEAR AND ONE NATIONAL PATIENT CONFERENCE. THESE PROGRAMS WERE HELD FOR PATIENTS AND THEIR FAMILIES TO LEARN FROM HEALTHCARE PROFESSIONALS ABOUT TREATMENT AND MANAGEMENT OF SJOGRENS SYNDROME. COLLECTIVELY, OVER 600 INDIVIDUALS ATTENDED THESE CONFERENCES. 342948 261331 AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO PROFESSIONALS. 379037 51757 OTHER MEMBER SERVICES 721985 313088 1552232 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 1 11 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 X X SJOGREN'S SYNDROME FOUNDATION 3015304420 6707 DEMOCRACY BLVD SUITE 325 BETHESDA MD 20817 DENISE FAUSTMAN MD PHD 2.00 X 0 0 0 FRED FERNANDEZ 2.00 X 0 0 0 STEVEN CARSONS MD 2.00 X 0 0 0 MARY MCNEIL 2.00 X 0 0 0 LYNN M PETRUZZI RN MSN 2.00 X 0 0 0 VIDYA SANKAR DMD MPH 2.00 X 0 0 0 PETER DONSHIK MD 2.00 X 0 0 0 NANCY L CARTERON MD FACR 2.00 X 0 0 0 ESTRELLA BIBBEY 2.00 X 0 0 0 SHARI ROOD 2.00 X 0 0 0 S LANCE FORSTOT MD 2.00 X 0 0 0 KATHRYN P MCCARREN 2.00 X 0 0 0 PAMELA S BROWN 2.00 X 0 0 0 KEN ECONOMOU 2.00 X 0 0 0 ELAINE ALEXANDER MD PHD 2.00 X 0 0 0 MICHAEL BRENNAN DDS 2.00 X 0 0 0 STEPHEN COHEN OD 2.00 X 0 0 0 THERESA LAWRENCE FORD MD 2.00 X 0 0 0 STEVEN TAYLOR 40.00 X 214597 0 21063 SHERIESE DEFRUSCIO 40.00 X 100883 0 17641 315480 0 38704 2 0 1 0 0 296581 831273 24065 1127854 MEMBERSHIP DUES 541900 261331 261331 CONFERENCES 541900 193622 193622 ADVERTISING 541800 109732 109732 564685 10328 10328 4187 4187 227 0 1008 227 -1008 -781 -781 92003 296581 92003 0 91456 39699 51757 51757 1758030 506710 109732 13734 211250 211250 208173 166539 20817 20817 465022 401985 19336 43701 10633 9138 491 1004 68232 58571 3212 6449 47021 39781 2740 4500 20247 20247 4104 4104 60678 52810 2468 5400 181097 103345 2161 75591 20719 17529 1207 1983 109903 92978 6407 10518 68437 68175 262 136343 135821 522 5729 5729 30408 25725 1773 2910 6506 5503 380 623 POSTAGE AND DELIVERY 103891 94165 3682 6044 BANK AND CREDIT CARD FE 27558 17198 120 10240 OTHER EXPENSES 14592 12383 740 1469 STAFF DEVELOPMENT 12690 10735 741 1214 30264 28601 3 1660 1843497 1552232 96880 194385 22309 -24897 21673 21708 188324 175046 6875 1628 29341 10339 184902 117342 85050 67560 385182 383992 6859 6859 745613 642235 28825 46123 321250 265000 134339 144747 28577 47620 512991 503490 X 232622 138745 232622 138745 745613 642235 X -85467 -8410 X X 0 1 1 X 0 X 1626173 1481166 1403954 1634110 1389185 7534588 292991 334570 246454 230508 245379 1349902 15372 743 6101 -7880 -781 13555 1934536 1816479 1656509 1856738 1633783 8898045 636405 903042 817293 791836 682380 3830956 0 636405 903042 817293 791836 682380 3830956 5067089 29887 16266 8368 17154 14515 86190 29887 16266 8368 17154 14515 86190 1964423 1832745 1664877 1873892 1648298 8984235 0.56400 0.56010 0.00960 0.00950 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 124056 86703 37353 60846 30639 30207 67560 CAPITAL LEASE PAYABLE-ST 11186 CAPITAL LEASE PAYABLE-LT 17901 DEFERRED RENT 18533 47620 1758030 1843497 -85467 -8410 -8410 -93877 1786223 -8410 -8410 1794633 4104 -40707 -36603 1758030 1880100 40707 40707 1839393 4104 4104 1843497 PART XII, LINE 4B - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII -39,699. LOSS ON DISPOSAL OF PROPERTY -1,008. PART XIII, LINE 2D - OTHER ADJUSTMENTS: COST OF GOODS SOLD REPORTED ON PART VIII 39,699. LOSS ON DISPOSAL OF PROPERTY 1,008. WALKABOUTS AND SIPS EVENTS 335825 243822 92003 92003 ADDRESS LABEL 27457 27457 2 25302 25302 388584 296581 92003 92003 92003 0 1 BOSTON UNIVERSITY 75 E CONCORD ST BOSTON MA 02118 042103547 SECTION 501(C)(3) 35000 RESEARCH GRANT UNIVERSITY OF CALIFORNIA 2150 SHATUCK AVE SUITE 313 BERKELEY CA 94704 946002123 SECTION 501(C)(3) 30000 RESEARCH GRANT UNIVERSITY OF MINNESOTA 450 MCNAMARA ALUMNI CENTER MINNEAPOLIS MN 55455 416007513 SECTION 501(C)(3) 15000 RESEARCH GRANT ALLEGHENY-SINGER RESEARCH INSTITUTE 320 EAST NORTH AVE PITTSBURGH PA 15212 251320493 SECTION 501(C)(3) 50000 RESEARCH GRANT UNIVERSITY AT ALBANY 1400 WASHINGTON AVE LSRB 1086 ALBANY NY 12222 141368361 SECTION 501(C)(3) 35000 RESEARCH GRANT UCLA SCHOOL OF DENTISTRY 10833 LE CONTE AVE CHS LOS ANGELES CA 90095 956006143 SECTION 501(C)(3) 35000 RESEARCH GRANT PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE SJOGREN'S SYNDROME FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S SYNDROME BY OFFERING ANNUAL RESEARCH GRANT AND STUDENT FELLOWSHIPS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE. X X X X X 0 0 0 0 0 0 0 0 0 STEVEN TAYLOR 146913 0 67684 0 0 0 3034 0 18029 0 235660 0 0 0 X VARIOUS 24065 FAIR MARKET VALUE 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY. FORM 990, PART VI, SECTION C, LINE 19 FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BE CONTACTING MAIN OFFICE. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 5: NET UNREALIZED LOSSES ON INVESTMENTS: -8,410. RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT: FORM 990, PART XI, LINE 2C THE ORGANIZATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR.