2013-09-03T10:06:49-05:00 2012-12-31 042571780 ALEXANDER ARONSON FINNING & CO PC 21 EAST MAIN STREET WESTBORO MA 01581 990 2012-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET NO 200 NEWTON MA 02458 MICHAEL CORKIN 6179249997 2013-08-30 1 JOHN BUCKLEY CPA P00830631 5083669100 2013-08-30 2012 2016-02-24 21:20:13Z X N PAUL TONTHAT 55 CHAPEL STREET NO 200 NEWTON MA 02458 10357365 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY (NBTS) IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMORTODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS THROUGH THOUGHTFUL ENGAGEMENT WITHWORLD-RENOWNED LEADERS IN THE FIELD, OUR STAFF STRIVE TO DEEPLY UNDERSTAND THE STATE OF BRAIN TUMOR RESEARCH IN ORDER TO DESIGN TARGETED, HIGHIMPACTRESEARCH AND PUBLIC POLICY INITIATIVES. 15 14 40 1250 0 0 2907695 8815314 0 0 126698 143547 -143537 -959220 2890856 7999641 839383 1570523 0 0 1069718 3805613 0 0 1137608 878869 3011469 2787970 8387605 102886 -387964 7126946 7941767 1736642 2833423 5390304 5108344 X NATIONAL BRAIN TUMOR SOCIETY (NBTS) IS FIERCELY COMMITTED TO FINDING BETTER TREATMENTS, AND ULTIMATELY A CURE, FOR PEOPLE LIVING WITH A BRAIN TUMOR TODAY AND ANYONE WHO WILL BE DIAGNOSED TOMORROW. THIS MEANS EFFECTING CHANGE IN THE SYSTEM AT ALL LEVELS.THROUGH THOUGHTFUL ENGAGEMENT WITH WORLD-RENOWNED LEADERS IN THE FIELD, OUR CHIEF SCIENTIFIC OFFICER AND STAFF STRIVE TO DEEPLY UNDERSTAND THE STATE OF BRAIN TUMOR RESEARCH IN ORDER TO DESIGN TARGETED, HIGH-IMPACT RESEARCH INITIATIVES. 0 0 2873920 1570523 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY, INC. (NBTS) FOCUSES ON FUNDING TRANSFORMATIVE RESEARCH FOR BOTH ADULT AND PEDIATRIC BRAIN TUMORS WITHIN NORTHAMERICA AND DOES NOT RESTRICT ITS FUNDING BY CITY, STATE, OR INSTITUTION.ALL RESEARCH GRANTS GO THROUGH A RIGOROUS REVIEW PROCESS IN ORDER TO FUND EFFICIENT, TRANSLATIONAL, AND IMPACTFUL PROGRAMS, WHICH WILL DELIVER NEWTHERAPIES AND TREATMENTS, AND ULTIMATELY THE DISCOVERY OF A CURE AS QUICKLY AS POSSIBLE.. NATIONAL BRAIN TUMOR SOCIETY IS COMMITTED TO BUILDINGRESEARCH PROGRAMS WHICH FOSTER COLLABORATION AND ACCELERATE SCIENTIFIC DISCOVERYY, TO CREATE SIGNIFICANT IMPROVEMENTS IN THE FIELD OF BRAINTUMORS/CANCER RESEARCH.AS RESULTS, FINDINGS, AND DISCOVERIES FROM CURRENT RESEARCH PROGRAMS ARE MADE AVAILABLE, OTHER INDIVIDUALS AND ORGANIZATIONS CAN LEVERAGE THESEFINDINGS FOR ADDITIONAL AND FUTURE BRAIN TUMOR-SPECIFIC RESEARCH. 2883860 CONSTUTUENT ENGAGEMENT & COMMUNICATIONS: NATIONAL BRAIN TUMOR SOCIETY SEEKS TO INCREASE PUBLIC AWARENESS OF THE BRAIN TUMOR CAUSE, AS WELL AS EDUCATE AND CONNECT MEMBERS OF THE BRAINTUMOR COMMUNITY TO EACH OTHER TO BRING FORTH BETTER TREATMENTS AND A CURE..NBTS OFFERS THE FOLLOWING AS A PART OF THIS PROGRAM:(1) TIMELY & RELEVANT BRAIN TUMOR NEWS & UPDATES THROUGH OUR MONTHLY NEWSLETTER (ENEWS),(2) COMPREHENSIVE WEBSITE,(3) EXTERNAL COMMUNICATIONS AND AWARENESS/EDUACTIONAL CAMPAIGNS,(4) ONLINE RESOURCES AND BRAIN TUMOR INFORMATION(5) CONFERENCES, WORKSHOPS, AND EVENTS TO FOSTER COLLABORATION AMONG KEY STAKEHOLDERS AND DELIVER EDUCATION TO PATIENTS, SURVIVORS AND FAMILIES(6) CLINICAL TRIALS MATCHING DATABASE (WITH EMERGINGMED),(7) THE ESSENTIAL GUIDE TO BRAIN TUMORS AND OTHER HELPFUL PUBLICATIONS(8) SPANISH-LANGUAGE RESOURCES AND INFORMATION, AND (11) A WIDE ARRAY OF OTHER RESOURCES FOR THOSE AFFECTED BY A BRAIN TUMOR. 930990 PUBLIC POLICY: ADVOCACY: HAVING A UNIFIED VOICE IS CRITICAL IN IMPACTING PUBLIC POLICIES AND FUNDING FOR THE BRAIN TUMOR CAUSE. FOCUSING ON CREATING LEGISLATIVE,REGULATORY, AND POLICY CHANGE, THIS PROGRAM TAKES BOTH WHAT WE KNOW AND BELIEVE ABOUT BRAIN TUMOR RESEARCH AND THE NEEDS OF PEOPLE AFFECTED BYBRAIN TUMORS AND PUTS IT TO WORK IN THE PUBLIC POLICY ARENA. 6688770 1 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 39 0 40 1 0 0 0 0 0 0 0 0 0 0 0 0 X 15 14 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 MA CA X X X JAMES CHARNLEY CFO 6173932816 55 CHAPEL STREET NEWTON MA 02458 MICHAEL CORKIN 2.00 X X 0 0 0 BARRY GLASSMAN 2.00 X 0 0 0 KEN GREY 2.00 X 0 0 0 SHEILA KILLEEN 2.00 X 0 0 0 JEFFREY KOLODIN 2.00 X X 0 0 0 ERIC LINDQUIST 2.00 X 0 0 0 SUSAN PANNULLO MD 2.00 X 0 0 0 VINCENT PATRONE ESQ 2.00 X 0 0 0 ALISON ROSS ESQ 2.00 X 0 0 0 RICHARD GENDERSON 2.00 X 0 0 0 MICHAEL NATHANSON 2.00 X 0 0 0 RABBI ERIC B WISNIA 2.00 X 0 0 0 CORD SCHLOBOHM 2.00 X X 0 0 0 SCOTT MEMMOTT ESQ 2.00 X 0 0 0 ANN GORDON 2.00 X 0 0 0 MARY CATHERINE CALISTO 2.00 X 0 0 0 PAUL FISHER MD 2.00 X X 0 0 0 N PAUL TONTHAT 40.00 X 208340 0 20852 JODY SUNDQUIST 40.00 X 124850 0 17976 DAVID HURWITZ 40.00 X 137730 0 10729 KRISTINA KNIGHT 40.00 X 122620 0 10180 BARBRA VEJVOLDA 40.00 X 139490 0 10640 733030 0 70377 6 0 1 0 FILCO EVENTS 605 SOUTH FIRST ST SAN JOSE CA 95113 EVENT CONSULTING 198550 MORGAN LEWIS & BOCKIUS LLP 1701 MARKET STREET PHILADELPHIA PA 191032921 LEGAL 182111 2 19030 6729850 2066434 8815314 132366 132366 1409685 1398504 11181 11181 11181 0 6729850 959220 -959220 -959220 7999641 0 0 -815673 1554523 1554523 16000 16000 372016 223209 111605 37202 2825327 2247006 165660 412661 74336 59419 4046 10871 307032 241482 20058 45492 226902 176010 18953 31939 243436 217621 9614 16201 34450 34450 10964 10964 327804 238872 17064 71868 424339 291423 2559 130357 213542 102975 22748 87819 552127 399771 41352 111004 249401 196273 20408 32720 432350 339108 3593 89649 34677 34677 153794 119960 18455 15379 15750 12434 1099 2217 SPECIAL EVENTS 200611 200611 TRAINING & RECRUITING 40697 19454 14447 6796 DUES AND SUBSCRIPTIONS 39402 28268 6297 4837 MERCHANT & BANK FEES 20517 20517 17608 4351 3178 10079 8387605 6688770 561227 1137608 1189636 1268160 250718 203508 460534 1927 7757 80617 105860 741818 529519 296179 212299 5334311 5577065 20768 59374 7126946 7941767 355338 535421 1331854 2232728 49133 65274 317 0 1736642 2833423 X 4702412 3679259 391238 1132431 296654 296654 5390304 5108344 7126946 7941767 -387964 106003 0 X X 0 1 X 1 0 X 6836725 6778425 7626704 2907695 8815314 32964863 6836725 6778425 7626704 2907695 8815314 32964863 65881 32898982 360145 274679 338285 126698 132366 1232173 8894 8894 34205930 0.96180 0.95070 X 52426 52426 9294398 9346824 617341 154335 0 0 428138 518852 289399 617341 1853730 2780595 19985 25481 4170 52426 102062 107035 129713 72350 154335 463433 695150 17189 17189 307008 3404 12000 298412 306106 2071 1169 307008 302499 8283 4676 306106 308473 5845 11819 302499 314763 12219 18509 308473 0.00000 0.99410 0.00590 0 0 108021 70865 37156 181189 154560 26629 452608 304094 148514 212299 X 9407989 106003 354089 959220 1419312 7988677 10964 10964 7999641 9689949 354089 959220 1313309 8376640 10965 10965 8387605 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE SOCIETY HAS PERMANENTLY RESTRICTED NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2012 WAS INVESTED IN BOND FUNDS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS. DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE SOCIETY FOLLOWS THE STANDARDS FOR ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH REQUIRES THE SOCIETY TO REPORT ANY UNCERTAIN TAX POSITIONS AND TO ADJUST ITS FINANCIAL STATEMENTS FOR THE IMPACT THEREOF. AS OF DECEMBER 31, 2012, THE SOCIETY DETERMINED THAT IT HAD NO TAX POSITIONS THAT DID NOT MEET THE "MORE LIKELY THAN NOT" THRESHOLD OF BEING SUSTAINED BY THE APPLICABLE TAX AUTHORITY. THE SOCIETY FILES TAX AND INFORMATION RETURNS IN THE UNITED STATES FEDERAL AND VARIOUS STATE JURISDICTIONS. THESE RETURNS ARE GENERALLY SUBJECT TO EXAMINATION BY TAX AUTHORITIES FOR THE LAST THREE YEARS. PART XI, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. DIRECT FUNDRAISING EXPENSES SHOWN NET ON STATEMENT OF REVENUE IN FORM 990. ($ 1,485,084) INVESTMENT MANAGEMENT EXPENSES SHOWN GROSS ON THE STATEMENT OF FUNCTIONAL EXPENSES IN FORM 990 $10,964 0 0 0 0 0 0 0 0 0 0 NORTH AMERICA CONFERENCE SPONSORSHIP 5000 NORTH AMERICA CONFERENCE SPONSORSHIP 10000 2 0 0 0 0 0 0 WALK - RACE FOR HOPE - PA 966080 966080 171780 WALK - RACE FOR HOPE - DC 1387300 1387300 122890 21 4376470 4376470 664550 6729850 6729850 959220 959220 -959220 1 MEMORIAL SLOAN KETTERING CANCER CENTER 1275 YORK AVENUE NEW YORK NY 10065 501 (C) 3 150000 RESEARCH SANFORD-BURNHAM MEDICAL INSTITUTE 10901 N TORREY PINES ROAD LA JOLLA CA 92037 501 (C) 3 150000 RESEARCH CBTRUS 244 EASE OGDEN AVENUE SUITE 166 HINSDALE IL 60521 501 (C) 3 25000 RESEARCH WASHINGTON UNIVERSITY 660 EUCLID AVE ST LOUIS MO 63110 501 (C) 3 75000 RESEARCH DANA FARBER CANCER INSTITUTEHCC - KOCH INSTITUTE 10 BROOKLINE PLACE WEST FL6 BROOKLINE MA 02445 501 (C) 3 75000 RESEARCH MIT - KOCH INSTITUTE 77 MASSACHUSETTS AVE BLDG 76-145 CAMBRIDGE MA 02319 501 (C) 3 75000 RESEARCH THE LUDWIG INSTITUTE FOR CANCER RESEARCH AT THE UNIVERSITY OF CALIFORNIA 9500 GILMAN DR LA JOLLA CA 92037 501 (C) 3 500000 RESEARCH MD ANDERSON CANCER CENTER 1515 HOLCOMBE BLVD HOUSTON TX 77030 501 (C) 3 415256 RESEARCH SOCIETY FOR NEURO - ONCOLOGY 4617 BIRCH STREET BELLAIRE TX 77401 501 (C) 3 45000 RESEARCH TRUSTEES OF UNIVERSITY OF PENNSYLVANIACME 333 BLOCKLEY HALL 423 GUARDIAN DRIVE PHILADELPHIA PA 19104 501 (C) 3 20000 RESEARCH SWEDISH MEDICAL CENTER FOUNDATION 4640 DUCKHORN DRIVE SACRAMENTO CA SACRAMENTO CA 95834 501 (C) 3 8400 RESEARCH 11 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY'S RESEARCH GRANT APPLICATION REVIEW IS A TWO-STEP PROCESS BUILT ON STANDARDS SET BY THE NATIONAL INSTITUTES OF HEALTH. LETTERS OF INTENT (LOI) ARE SUBMITTED ELECTRONICALLY AND IMMEDIATELY UNDERGO AN ADMINISTRATIVE REVIEW TO ENSURE THAT APPLICATION GUIDELINES ARE MET. MEMBERS OF THE NBTS SCIENTIFIC ADVISORY COUNCIL (SAC), LED BY THE CHAIR AND VICE CHAIR, OVERSEE THE REVIEW PROCESS FOR EACH NBTS GRANT PROGRAM. TWO REVIEWERS ARE ASSIGNED TO EACH APPLICATION: A PRIMARY REVIEWER AND SECONDARY REVIEWER. CAREFUL CONSIDERATION IS MADE TO PREVENT CONFLICT OF INTEREST BETWEEN THE REVIEWERS AND THE APPLICANTS. REVIEWERS ARE RESPONSIBLE FOR SCORING THE APPLICATION BASED ON SCIENTIFIC MERIT AND PRESENTING THE PROJECT DURING THE REVIEW TELECONFERENCES. THE REVIEW CONFERENCE IS COMPRISED OF ALL MEMBERS OF THE SAC, KEY MEMBERS OF THE RESEARCH COMMITTEE, AND SENIOR RESEARCH STAFF MEMBERS. THE SAC CHAIR FACILITATES PROJECT PRESENTATIONS (MADE BY THE REVIEWERS) AND THE ENSUING DISCUSSION AMONG SAC MEMBERS. DURING THIS REVIEW, THOSE REVIEWERS WHO ARE RECOGNIZED AS HAVING A CONFLICT OF INTEREST WITH THE APPLICANT AND/OR THE PROJECT ARE ASKED TO DISCONNECT FROM THE CALL. THEY DO NOT PARTICIPATE IN THE DISCUSSION, NOR ARE THEY PERMITTED TO SUBMIT A SCORE. AT THE END OF THE DISCUSSION, ALL SAC MEMBERS (WHO DO NOT HAVE A RECOGNIZED CONFLICT OF INTEREST) ASSIGN THE LOI A COLLECTIVE, FINAL SCORE. WHEN DISCUSSION CONCLUDES, THE FINAL SCORES ARE REVIEWED. WITH THESE SCORES, THE SAC DETERMINES THE LOIS THAT WILL BE INVITED TO SUBMIT A FULL APPLICATION. THE SCORING AND DISCUSSION PROCESS (DURING A SECOND TELECONFERENCE) OF FULL APPLICATIONS FOLLOWS THE PHASES OF THE LOI REVIEW. THE RESEARCH COMMITTEE OF THE NBTS BOARD OF DIRECTORS, IN CONSULTATION WITH SENIOR RESEARCH STAFF, REVIEWS THE SAC RECOMMENDATIONS, DISCUSSES THE FINANCIAL CONSIDERATIONS OF EACH, AND DETERMINES IF THE RESEARCH FURTHERS NBTS'S RESEARCH PORTFOLIO. THE RESEARCH COMMITTEE THEN PRESENTS THEIR FINDINGS TO THE FULL NBTS BOARD OF DIRECTORS FOR THE FINAL VOTE. SELECTED RESEARCH GRANT AWARDS ARE FORMALLY ANNOUNCED AND DISTRIBUTED AT THE NBTS ANNUAL MEETING IN THE FALL OF EACH YEAR. X X X X 0 0 0 0 0 0 0 0 0 N PAUL TONTHAT 208340 0 0 0 0 0 6250 0 14602 0 229192 0 0 0 BARBRA VEJVOLDA 139490 0 0 0 0 0 4185 0 6455 0 150130 0 0 0 FORM 990, PART VI, SECTION B, LINE 11 A COPY OF THE FEDERAL FORM 990 AND MASSACHUSETTS FORM PC IS EMAILED TO THE BOARD OF DIRECTORS FOR REVIEW PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVEIW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE CHAIR OF THE BOARD OF DIRECTORS, IN CONJUNCTION WITH THE EXECUTIVE COMMITTEE DETERMINES THE EXECUTIVE DIRECTOR'S SALARY. IN ORDER TO DETERMINE HIS SALARY, COMPARABILITY FIGURES WERE PROVIDED TO THE EXECUTIVE COMMITTEE AND CHAIR OF THE BOARD, WHICH REPRESENTED COMPARABLE POSITIONS IN SCOPE, RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET, AND SIMILAR INDUSTRY. THE SALARY DELIBERATION WAS MADE BY THE CHAIR IN CONJUNCTION WITH THE CHAIR OF THE HR/COMPENSATION COMMITTEE. IN REGARDS TO OTHER OFFICERS AND KEY EMPLOYEES - THE H.R. MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE EXECUTIVE DIRECTOR TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE SOCIETY'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. OVERSIGHT OF AUDIT FORM 990, PART XI, LINE 2C: THE AUDIT COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITORS.