2013-07-31T11:13:24-04:00 2012-12-31 020644478 Wagner & Company CPA LLC 1655 W Market Street Suite 525 Akron OH 44313 990 2012-01-01 010771966 Fibromuscular Dysplasia Society of America Inc FIBR 20325 Center Ridge Road Rocky River OH 44116 Cheryl Bailey 2013-07-10 false Steven Wagner P00027993 3308641550 2013-07-31 X 2012 2016-02-24 21:20:13Z FMDSA 126664 false X www.fmdsa.org X 2003 DE FMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Displasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community. 9 9 2 0 0 123766 106541 22199 20033 201 90 0 146166 126664 23310 50456 0 73417 64506 0 8788 55088 47512 151815 162474 -5649 -35810 80396 44586 0 80396 44586 FMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Displasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community. false false 51251 International Patient Registry The patient registry has been developed in cooperation with the University of Michigan Health System9s Cardiovascular Outcomes Research and Reporting Program (M-CORRP). The purpose of the registry is to collect data on FMD patients seeking treatment at one of twelve medical centers in the United States. Until now, minimal research has been initiated on FMD. The database grew in 2012 to almost 700 patients being enrolled. Our FMD registry is the largest registry in th eworld collecting data on patients diagnosed with FMD. The data base is helping us to learn more about the disease and will help us to one day set protocols for treating the disease and leat us to hopefully finding a cure. Several articles were published in medical journals in 2012 with data from th eregistry and several abstracts with data were presented at medical conferences. 21204 Healthcare Professional Education Program This program is a combination of attending medical conferences and presenting training classes within hospital environments. The program is a major focus of FMDSA and has been an avenue to educate literally thousands of medical professionals. The end result is a greater awareness of Fibromuscular Dysplasia within the medical community, improved medical expertise for patients, and development of key partnerships that are helping us spur research activity. FMDSA participated in the following conferences in 2012: The 22nd European Meeting on Hypertension and Cardiovascular Protection in London, the International Stroke and Sociey of Vascular Medicine Conferences. 22598 Annual Medical Conference FMDSA held it9s Fifth Annual Conference in 2012 in Cleveland Ohio. The primary purpose of the conference is to educate patients and medical professionals on the latest data being released on FMD and current research. Speakers included Doctors, Jeffrey Olin of Mount Sinai, Heather Gornik and Esther Kim of the Cleveland Clinic, Kevin Meyers of Children9s Hospital of Philadelphia, Jim Stanley and Santhi Ganesh of the University of Michigan. 3305 Public Awareness Program This program was initiated in July 2005 as GAP patients educate their healthcare providers about FMD. We have a number of valuable resources on our website to help communicate FMD in laymen9s terms as well as more in depth information for physicians that can help bridge the gap and build a better relationship between patient and physician. GAP also includes our work to get represented within the media. 3228 Website Education One of our most important charters is to educate patients and family about FMD. Our website has grown exponentially since inception. FMDSA is the premier resource of FMD information for the layperson and an excellent place for physicians to easliy find medical papers. Our Honcode certification is a stamp of approval that verifies we are an unbiased organization providing only medical certified information. 2320 FMD Research FMDSA did not directly fund any research grants in 2012. This category includes expenses related to the time we spend talking with candidate reserachers and follow up on medical data. 20138 Patient Support As we spread awareness, patient support is becoming a larger part of our responsibility as an organization. A signficant percentage of our paid employee time is spent assisting patients. 28991 124044 true true false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false true 0 0 true 2 true false false false false false false false false false false false false false false X 9 9 false false false false false false false true true false false true true true true true true true true false AA X FMDSA 2168342410 20325 Center Ridge Road Rocky River OH 44116 X Bradley Daar 1.00 X X 0 0 0 Cheryl Bailey 20.00 X X 0 0 0 Cheryl Golden 2.00 X X 0 0 0 Dr Douglas Webster 1.00 X 0 0 0 Dr Glen Graham 1.00 X 0 0 0 Kay Tanner 2.00 X X 0 0 0 Kellie Smiddie 8.00 X 0 0 0 Richard Gould 5.00 X X 0 0 0 Pamela Mace 40.00 X 0 0 0 0 0 0 0 false false false 106541 106541 Annual Medical Conf 541900 20033 20033 20033 90 90 126664 20123 0 0 50456 50456 44168 32231 8662 3275 20338 14537 4346 1455 2500 2500 966 966 5100 5100 6596 6561 35 16546 16546 79 79 Supplies 743 221 522 Postage and mailing 1044 595 449 Telecommunications 1947 1947 Printing and publications 850 690 160 11141 2207 6823 2111 162474 124044 29642 8788 31005 25740 49391 18846 80396 44586 0 0 X 80396 44586 80396 44586 80396 44586 -35810 0 X false false false X 57813 72102 123488 123766 126574 503743 8299 3711 4895 22199 39104 66112 75813 128383 145965 126574 542847 13234 15508 5548 14606 51073 99969 13234 15508 5548 14606 51073 99969 442878 2117 958 403 201 90 3769 2117 958 403 201 90 3769 68229 76771 128786 146166 126664 546616 0.81020 0.85310 0.00690 0.00810 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true MCORRP The Regents of UM 24 Frank Lloyd Wright Drive Ann Arbor MI 48106 O01 Organizational document changes Part VI line 4 Added to the specific functions of the organziation: 4To provide emotional support to patients and family members through online social media and direct contact.4 O02 Form 990 governing body review Part VI line 11 Form 990 is reviewed by the Chairperson and distributed electronically to each board member prior to signature and transmission to the IRS. O03 Conflict of interest policy compliance Part VI line 12c Employees and directors of FMDSA are required to review and sign the FMDSA Code of Ethics and Professional Conduct which outlines the various policies of FMDSA including the conflict of interest and whistleblower policy. O04 CEO executive director top management comp Part VI line 15a The pay of the executive director is reviewed and approved by the board of directors. O05 Other officer or key employee compensation Part VI line 15b The pay of the executive director is reviewed and approved by the board of directors. O06 Governing documents etc available to public Part VI line 19 The governing documents can be obtained through proper request to the organziation through contact information available on the website. O07 General explanation attachment Other states registered: Alabama AL08-351 Alaska Arizona 25431 Arkansas California CT147629 Colorado 20083005977 Florida CH16556 Hawaii Illinois 01-105,443 Kansas 422-044-8 Kentucky 6211 Maryland 13970 Massachusetts 48394 Michigan MICS 28540 Minnesota Missouri CO-157-08 New Hampshire 17337 Additional states registered: New Jersey CH-30785-00 New Mexico New York 20-47-45 North Carolina SL004981 North Dakota 9150 Ohio 03-4369 Oklahoma 4312203627 Oregon 38826 Pennsylvania 36253 Rhode Island 97-3568 South Carolina P15624 Tennessee CO10684 Utah 7096298-CHAR Virginia Washington 25347 West Virginia Wisconsin 10631-800