2013-07-25T15:12:30-05:00 2012-12-31 221430039 SOBEL AND CO LLC CPA'S 293 EISENHOWER PARKWAY LIVINGSTON NJ 070391711 990 2012-01-01 820547746 LIFE RAFT GROUP INC LIFE 9738379092 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 NORMAN J SCHERZER 9738379092 2013-07-24 1 BRIDGET HARTNETT P01429163 9739949494 2013-07-24 2012 2016-02-24 21:20:13Z NORMAN J SCHERZER 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 1515612 0 X WWW.LIFERAFTGROUP.ORG X 2002 NJ THE MISSION OF THE LIFE RAFT GROUP IS TO ENSURE SURVIVAL OF GIST PATIENTS THROUGH A COMPREHENSIVE APPROACH CONNECTING INDIVIDUAL PATIENTS' NEEDS, THE WORLDWIDE COMMUNITY OF GIST ADVOCATES AND THE GLOBAL HEALTH AND RESEARCH ENVIRONMENT. 13 13 23 10 0 0 1506315 1471833 0 0 26067 18697 47321 -77865 1579703 1412665 1685000 878734 0 0 886183 1072089 0 0 60057 403210 429322 2974393 2380145 -1394690 -967480 4501557 3578709 85619 130251 4415938 3448458 X THE MISSION OF THE LIFE RAFT GROUP (LRG) IS TO ENSURE SURVIVAL OF GIST PATIENTS WHILE MAINTAINING THE QUALITY OF THEIR LIVES. TO ACCOMPLISH THIS MISSION, THE LIFE RAFT GROUP DEVOTES ITS EFFORTS TO FOUR MAJOR AREAS: RESEARCH, TREATMENT, & SURVEILLANCE, INFORMATION, EDUCATION & SUPPORT, PATIENT OUTREACH & ASSISTANCE, AND ADVOCACY. 0 0 2019804 878734 RESEARCH: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN. TO ACHIEVE THIS, WE FUND AND MANAGE UNIQUELY COORDINATED RESEARCH INITIATIVES THAT ALWAYS KEEP THE NEEDS OF THE GIST PATIENT FOREMOST. THE LIFE RAFT GROUP IS THE ONLY GIST ADVOCACY ORGANIZATION WITH A DEDICATED RESEARCH INITIATIVE LED BY A TEAM OF WORLD RENOWNED SCIENTISTS AND CLINICIANS IN GIST. OUR INITIATIVES ARE CONTSTANTLY ANALYZED TO ENSURE THEIR FOCUS REMAINS ON FINDING A CURE FOR GIST. 120113 INFORMATION, EDUCATION AND SUPPORT: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN.THE LRG PROVIDES SUPPORT & EDUCATION TO PATIENTS & CAREGIVERS LIVING WITH GIST ON AN INDIVIDUAL BASIS BY PROVIDING ONE-ON-ONE COUNSELING SESSIONS, LOCAL IN-PERSON MEETINGS, A BIENNIAL MEETING THAT GATHERS THE PATIENT, PHARMACUETICAL & MEDICAL PROFESSIONAL COMMUNITIES TOGETHER IN A SUPPORTIVE AND EDUCATIONAL SETTING. WE ALSO OFFER EDUCATION TO THE GIST COMMUNITY AT LARGE THROUGH OUR VIDEOS & WEBINARS, WEBSITES, WORLDWIDE GIST SPECIALIST DATABASE, A ONE-OF-A-KIND GIST-SPECIFIC CLINICAL TRIALS DATABASE, NEWSLETTERS & OTHER MATERIALS. 60057 ADVOCACY: THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN.THE LRG IS A VERY ACTIVE PRESENCE IN EFFECTING CHANGE IN THE GIST COMMUNITY. OUR ADVOCACY ROLE RANGES FROM HELPING PATIENTS WITH TREATMENT ACCESS ISSUES ON A ONE-ON-ONE BASIS, CREATING REGIONAL GROUPS IN UNDERSERVED AREAS IN ORDER TO BETTER INFORM & EMPOWER PATIENTS, CHAMPIONING PATIENTS' NEEDS BEFORE GOVERNMENT & POLICY MAKERS AND REPORTING ON TRENDS IN DOSAGE AND SURVIVAL TO THE WORLD. 60057 PATIENT OUTREACH & ASSISTANCE (FAMILY SERVICES): THE LIFE RAFT GROUP HAS A SIMPLE FOCUS: TO CURE A FORM OF CANCER - GIST (GASTROINTESTINAL STROMAL TUMORS) - AND TO HELP THOSE LIVING WITH IT UNTIL THEN.THE LRG PROVIDES SUPPORT & EDUCATION TO PATIENTS & CAREGIVERS LIVING WITH GIST ON AN INDIVIDUAL BASIS BY PROVIDING ONE-ON-ONE COUNSELING SESSIONS, LOCAL IN-PERSON MEETINGS, A BIENNIAL MEETING THAT GATHERS THE PATIENT, PHARMACUETICAL & MEDICAL PROFESSIONAL COMMUNITIES TOGETHER IN A SUPPORTIVE AND EDUCATIONAL SETTING. WE ALSO OFFER EDUCATION TO THE GIST COMMUNITY AT LARGE THROUGH OUR VIDEOS & WEBINARS, WEBSITES, WORLDWIDE GIST SPECIALIST DATABASE, A ONE-OF-A-KIND GIST-SPECIFIC CLINICAL TRIALS DATABASE, NEWSLETTERS & OTHER MATERIALS. 60057 2260031 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 23 1 0 0 0 0 0 1 1 0 0 0 0 X 13 13 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 NJ X X X THE ORGANIZATION 9738379092 155 ROUTE 46 WEST NO 2ND FL WAYNE NJ 07470 JERRY CUDZIL 1.00 X X 0 0 0 RAYMOND MONTAGUE 1.00 X X 0 0 0 STANN BUNN 1.00 X 0 0 0 JIM HUGHES 1.00 X 0 0 0 GERALD KNAPP 1.00 X 0 0 0 JOHN POSS 1.00 X 0 0 0 RODRIGO SALAS 1.00 X 0 0 0 CHRIS CARLEY 1.00 X 0 0 0 LAWRENCE D SELKOVITS 1.00 X 0 0 0 DAVID SAFFORD 1.00 X 0 0 0 MARIA BYRNE 1.00 X 0 0 0 FRED CHAMANARA 1.00 X 0 0 0 GARY GLASSER 1.00 X 0 0 0 DAN MILLER 1.00 X 0 0 0 NORMAN J SCHERZER 35.00 X 106000 0 16343 106000 0 16343 1 0 0 0 0 78315 1393518 1471833 18697 18697 25082 78315 102947 -77865 -77865 1412665 0 0 -59168 728734 728734 150000 150000 122343 112555 4894 4894 786245 723345 31450 31450 14905 13713 596 596 61174 56280 2447 2447 87422 80428 3497 3497 8450 7774 338 338 95741 88081 3830 3830 2360 2172 94 94 56294 51790 2252 2252 2412 2220 96 96 89785 82603 3591 3591 102679 94465 4107 4107 21908 20156 876 876 10343 9515 414 414 PRINTING & PUBLICATIONS 21115 19425 845 845 COMMUNICATIONS 18047 16603 722 722 MISCELLANEOUS 188 172 8 8 2380145 2260031 60057 60057 3407 3772 4334805 3458647 97500 60000 21817 7025 131056 96742 43015 34314 1013 14951 4501557 3578709 85619 130251 85619 130251 X 4415938 3313345 135113 4415938 3448458 4501557 3578709 -967480 0 X X 0 1 X 1 0 X 947608 2960796 2740321 1506315 1471833 9626873 947608 2960796 2740321 1506315 1471833 9626873 2440452 7186421 104796 53529 36782 26067 18697 239871 6861 16136 22997 9889741 98248 0.72670 0.63900 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 109739 79340 30399 21317 17402 3915 34314 X 1412665 0 1412665 0 1412665 2380145 0 2380145 0 2380145 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER SECTION 501(C) (3) OF THE INTERNAL REVENUE CODE. THE ORGANIZATION FOLLOWS ACCOUNTING STANDARDS THAT PROVIDE CLARIFICATION ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN THE ORGANIZATION'S FINANCIAL STATEMENTS. THE GUIDANCE PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN, AND ALSO PROVIDES GUIDANCE ON DE-RECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, DISCLOSURE AND TRANSITION. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ON UNRECOGNIZED TAX BENEFITS IN INCOME TAX EXPENSE. THE TAX YEARS SUBJECT TO AUDIT BY FEDERAL AND STATE JURISDICTIONS ARE THE YEARS 2009 AND FORWARD. NO INTEREST AND PENALTIES WERE RECORDED DURING THE YEARS ENDED DECEMBER 31, 2012 AND 2011. AT DECEMBER 31, 2012 AND 2011, THERE ARE NO SIGNIFICANT INCOME TAX UNCERTAINTIES. 0 0 0 0 0 0 0 0 0 0 EUROPE TO CONDUCT RESEARCH TO DISCOVER REASONS FOR GIST TREATMENT RESISTANCE. 75000 WIRE TRANSFER EUROPE TO CONDUCT RESEARCH TO DISCOVER REASONS FOR GIST TREATMENT RESISTANCE. 75000 WIRE TRANSFER 2 0 0 0 0 0 0 NIGHT TO FIGHT CANCER 80501 69876 10625 10000 6000 8932 3250 LIFE FEST 22896 8439 14457 51662 23103 103397 78315 25082 10000 57662 8932 26353 102947 -77865 1 UNIVERSITY OF PITTSBURGH 5117 CENTRE AVENUE PITTSBURGH PA 15213 250965591 501(C)(3) 100000 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. PORTLAND VA RESEARCH FOUNDATION 3710 US VETERANS HOSPITAL ROAD PORTLAND OR 97201 943090170 501(C)(3) 110000 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. CLEVELAND CLINIC 9500 EUCLID AVENUE L25 CLEVELAND OH 44195 340714575 501(C)(3) 175000 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. STANFORD UNIVERSITY 300 PASTEUR DRIVE L-225 STANFORD CA 94305 941156365 501(C)(3) 100000 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. BRIGHAM & WOMEN'S HOSPITAL 75 FRANCIS STREET THORN 5TH FLOOR BOSTON MA 02115 042312909 501(C)(3) 123734 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. PORTLAND VA MEDICAL CENTER 3710 US VETERANS HOSPITAL ROAD PORTLAND OR 97201 943090170 501(C)(3) 120000 TO CONDUCT RESEARCH REGARDING TREATMENT RESISTANCE IN GIST PATIENTS. 6 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: THE GRANT RECIPIENTS MUST SUBMIT REGULAR PROGRESS REPORTS, BUDGET REPORTS AND COPIES OF ARTICLES AND PRESENTATIONS IN WHICH THE PRINCIPAL INVESTIGATOR IS LISTED AS THE AUTHOR, AS WELL AS PARTICIPATE IN A SPECIFIED NUMBER OF IN-PERSON AND TELECONFERENCE MEETINGS EVERY TWELVE MONTHS. FORM 990, PART VI, SECTION B, LINE 11 FORM 990 IS FIRST REVIEWED BY THE DIRECTOR OF ADMINISTRATION, THEN BY THE EXECUTIVE DIRECTOR AFTER DISCUSSION WITH THE DIRECTOR OF ADMINISTRATION. IT IS ALSO SENT TO THE BOARD TREASURER AND THE BOARD PRESIDENT AND ANY QUESTIONS OR COMMENTS ARE DISCUSSED WITH THE EXECUTIVE DIRECTOR AND DIRECTOR OF ADMINISTRATION. FORM 990, PART VI, SECTION B, LINE 12C POTENTIAL CONFLICTS ARE DISCUSSED ANNUALLY AT A BOARD MEETING. FORM 990, PART VI, SECTION B, LINE 15 AT LEAST ONCE A YEAR THE EXECUTIVE DIRECTOR MEETS TO REVIEW AND DISCUSS REPORTS OF COMPARABLE NON-PROFIT SALARIES PREPARED BY INDEPENDENT ORGANIZATIONS. THIS REVIEW PROVIDES THE GUIDELINES FOR REVIEWING AND APPROVING ANY SALARY RECOMMENDATIONS PROPOSED BY THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION C, LINE 18 THE ORGANIZATION MAKES ITS FORM 1023 AND 990 AVAILABLE FOR PUBLIC INSPECTION THROUGH THE ORGANIZATION'S WEBSITE, AT ANOTHER'S WEBSITE CALLED GUIDESTAR.COM AND UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 ALL GOVERNING DOCUMENTS, INCLUDING A CONFLICT OF INTEREST POLICY (PART OF BY-LAWS), AND FINANCIAL STATEMENTS ARE POSTED TO THE ORGANIZATION'S WEBSITE AND ARE ALSO MADE AVAILABLE UPON REQUEST. OVERSIGHT OF AUDIT FORM 990, PART XII, LINE 2C THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.