2013-11-13T12:37:36-06:00 2012-12-31 541487262 MATTHEWS CARTER & BOYCE 11320 RANDOM HILLS ROAD SUITE 600 FAIRFAX VA 22030 990 2012-01-01 850357897 NATIONAL COALITION FOR CANCER SURVIVORSHIP NATI 3016509127 1010 WAYNE AVENUE NO 315 SILVER SPRING MD 20910 EUGENIA WENDLING 3016509127 2013-11-05 1 KATHLEEN M FLAHERTY P00969957 7032183600 2012 2016-02-24 21:20:13Z X CANCER SURVIVORS COALITION EUGENIA WENDLING 1010 WAYNE AVENUE NO 315 SILVER SPRING MD 20910 1795728 0 X WWW.CANCERADVOCACY.ORG X 1987 NM ADVOCATES FOR CHANGES IN HOW THE NATION RESEARCHES, REGULATES, FINANCES AND DELIVERS QUALITY CANCER CARE. 15 15 12 15 0 0 1659681 1009638 785000 610000 43381 48506 19391 37024 2507453 1705168 0 0 0 0 1354585 753793 0 0 558355 2531637 1602248 3886222 2356041 -1378769 -650873 2255310 2016073 449989 847044 1805321 1169029 X TO ADVOCATE FOR QUALITY CANCER CARE FOR ALL PEOPLE TOUCHED BY CANCER. 0 0 658989 PATIENT EDUCATION- NCCS OFFERS FREE RESOURCES TO HELP CANCER SURVIVORS BE MORE ACTIVELY ENGAGED IN THEIR CANCER CARE AND THE DECISION-MAKING PROCESS. THROUGH THE JOURNEY FORWARD PROGRAM AND OTHER OUTREACH EFFORTS, NCCS EDUCATES PATIENTS TO EMPOWER THEM TO SEEK A CANCER CARE PLAN TO FACILITATE THEIR PARTICIPATION IN THEIR CARE. THE FOLLOWING PUBLICATIONS ARE AVAILABLE ONLINE AND IN HARD COPY:A. WHAT CANCER SURVIVORS NEED TO KNOW ABOUT HEALTH INSURANCEB. TEAMWORK: THE CANCER PATIENT'S GUIDE TO TALKING WITH YOUR DOCTORC. WORKING IT OUT: YOUR EMPLOYMENT RIGHTS AS A CANCER SURVIVORD. YOU HAVE THE RIGHT TO BE HOPEFULE. SELF- ADVOCACY: A CANCER SURVIVOR'S HANDBOOKPATIENT EDUCATION- SUMMARY CANCER CARE PLANS HAVE BEEN IDENTIFIED BY THE INSITUTE OF MEDICINE AS A NECESSITY FOR SURVIVORS WHO ARE TRANSITIONING OFF ACTIVE CANCER TREATMENT. THE CANCER CARE PLAN AND CANCER CARE PLANNING ENCOURAGE HONEST AND OPEN CONVERSATIONS BEFORE TREATMENT BEGINS AND THROUGH POST-TREATMENT CARE. CARE PLANS INCLUDE A TREATMENT PLAN, TREATMENT SUMMARY, AND FOLLOW-UP CARE PLAN.THE JOURNEY FORWARD PROGRAM IS AN INNOVATIVE FREE SOFTWARE PROGRAM THROUGH WHICH COMPONENTS OF THE CANCER CARE PLAN ARE CREATED BY THE HEALTH CARE TEAM IN CONJUNCTION WITH THE SURVIVOR TO ENSURE THE INDIVIDUAL'S NEEDS AND CONCERNS ARE ADDRESSED AND TAKEN INTO CONSIDERATION. THIS COMPREHENSIVE MEDICAL SUMMARY, GIVEN TO THE SURVIVOR AND THEIR PRIMARY CARE PYSICIAN, HELPS SUPPORT BETTER SURVIVORSHIP CARE. THE PLAN INCLUDES IMPORTANT INFORMATION ON MONITORING FOR POSSIBLE SECONDARY CANCERS AND LATE OR LONG-TERM EFFECTS OF CANCER TREATMENT. ADDITIONAL NCCS PUBLICATIONS AND RESOURCES ENCOURAGE COMMUNICATIONS BETWEEN PROVIDERS AND PATIENTS BY PROVIDING TOOLS AND RESOURCES TO IMPROVE THEIR ABILITY TO ADVOCATE FOR THEMSELVES AND THEIR NEEDS. 273412 PUBLIC POLICY- NCCS' PUBLIC POLICY ACTIVITIES ENHANCE CANCER SURVIVORS' ACCESS TO QUALITY CARE. NCCS WORKS TO ADVANCE FEDERAL, STATE AND PRIVATE POLICY SOLUTIONS TO ENCOURAGE HEALTH CARE PROVIDER ACCEPTANCE AND PRACTICE OF CARE PLANNING AND CARE COORDINATION AMONG THE BENEFITS THEY FINANCE. NCCS WORKS TO ADVOCATE AND ADVANCE A PROGRAM FOR THE DEVELOPMENT OF PRACTICE GUIDELINES AND ADVICE RELATED TO PATIENT-PHYSICIAN COMMUNICATION AND CARE PLANNING AND ADVOCATES FOR A REGULATORY SYSTEM THAT EFFICIENTLY AND EFFECTIVELY REVIEWS NEW CANCER PRODUCTS AND ALSO ENCOURAGES RELIABLE STANDARDS FOR REVIEW OF DIAGNOSTIC TESTS THAT WILL GUARANTEE THE APPROPRIATE USE OF TARGETED THERAPIES. IN ADDDITION, NCCS REMAINS ENGAGED IN THE HEALTH REFORM DEBATE TO ENSURE ALL CANCER PATIENTS ACCESS TO QUALITY CARE. 348161 CANCER SURVIVAL TOOLBOX- THE NATIONAL COALITION FOR CANCER SURVIVORSHIP (NCCS) DEVELOPS PROGRAMS AND RESOURCES TO INFORM AND EMPOWER PEOPLE DEALING WITH A CANCER DIAGNOSIS SO THEY CAN ACTIVELY AND EFFECTIVELY PARTICIPATE IN THEIR OWN CARE. THE AWARD-WINNING CANCER SURVIVAL TOOLBOX IS A FREE, SELF-LEARNING AUDIO PROGRAM CREATED BY LEADING CANCER ORGANIZATIONS TO HELP PEOPLE DEVELOP ESSENTIAL SKILLS TO MEET THE CHALLENGES OF THEIR ILLNESS. DESIGNED TO HELP PEOPLE FROM THE MOMENT OF DIAGNOSIS, THROUGH TREATMENT AND BEYOND, THE TOOLBOX HAS EVOLVED TO INCLUDE TOPICS THAT CAN ASSIST ANYONE WHO IS FACING HARD DECISIONS AND CHANGES IN LIFE DUE TO CANCER AT ANY STAGE OF THEIR EXPERIENCE. FAMILY MEMBERS AND CAREGIVERS CAN ALSO USE THE TOOLBOX ON BEHALF OF SOMEONE ELSE WHO IS DIAGNOSED WITH CANCER, INCLUDING A CHILD. CANCER SURVIVAL TOOLBOX- LAUNCHED IN 1998, THE TOOLBOX WAS DEVELOPED AS A RESPONSE TO EVIDENCE THAT PEOPLE AFFECTED BY CANCER LACKED THE NECESSARY SKILLS IDENTIFIED IN THE LITERATURE TO FACE A LIFE-THREATENING ILLNESS. AS INDICATED IN A SURVEY OF SURVIVORS AND FOCUS GROUPS WITH HEALTHCARE PROFESSIONALS, SURVIVORS DID NOT FEEL EQUIPPED WITH THE EVIDENCE-BASED SKILLS FOR NAVIGATING THEIR DIAGNOSIS. WITH INPUT FROM HEALTH CARE PROFESSIONALS, NCCS, IN COLLABORATION WITH THE ASSOCIATION OF ONCOLOGY SOCIAL WORK, THE ONCOLOGY NURSING SOCIETY, AND, LATER, THE NATIONAL ASSOCIATION OF SOCIAL WORKERS, DEVELOPED AN AUDIO PROGRAM TO TEACH THESE ESSENTIAL SKILLS. SPECIAL TOPICS HAVE BEEN ADDED OVER THE YEARS. IN 2007 NCCS RECEIVED A GRANT FROM THE CENTERS FOR DISEASE CONTROL AND PREVENTION TO EXPAND THE PROGRAM TO FOCUS ON BLOOD CANCERS. TO DATE, THERE ARE FIVE INDIVIDUAL PROGRAMS FOCUSED ON HEMOTOLOGIC CANCERS. IN ADDITION, NCCS HAS ADDED AN END OF LIFE PROGRAM CALLED DYING WELL, THE FINAL STAGE OF SURVIVORSHIP. 369693 647024 OUTREACH, LOBBYING, ADVOCACY,CANCER POLICY ROUNDTABLE, AND OTHER PROGRAMS. 369693 647024 1650255 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 40 0 1 12 1 0 0 0 0 0 1 1 0 0 0 0 X 15 15 0 0 0 0 0 1 0 1 1 0 0 1 1 1 1 1 1 1 0 0 NM MD NJ X THE ORGANIZATION 3016509127 1010 WAYNE AVENUE SUITE 315 SILVER SPRING MD 20910 TOM KOUTSOUMPAS 5.00 X X 0 0 0 BRAD STUART MD 5.00 X 0 0 0 CATHERINE D SEVIER RN DRPH 2.00 X 0 0 0 TOM DOWLING 2.00 X 0 0 0 YSABEL DURON 2.00 X 0 0 0 MICHELLE JOHNSTON-FLEECE MPH 2.00 X 0 0 0 CHERYL SHERI LEONARDO 5.00 X X 0 0 0 BARBARA HOFFMAN 5.00 X 0 0 0 MICHAEL L KAPPEL 5.00 X X 0 0 0 ELEANOR WINTER 2.00 X 0 0 0 SAMIRA K BECKWITH 2.00 X 0 0 0 RICHARD PAYNE MD 5.00 X 0 0 0 NEERAJ K ARORA PHD 2.00 X 0 0 0 WENDY HOBBIE MSN PNP-BC FAAN 2.00 X 0 0 0 LYMAN G SANDY WELTON 2.00 X 0 0 0 EUGENIA WENDLING 40.00 X 112885 0 6032 ELLEN STOVALL 40.00 X 125460 0 9432 WOULITA SEYOUM 40.00 X 110000 0 5945 348345 0 21409 3 0 0 0 TURNER & GOSS LLP 2446 39TH STREET NW WASHINGTON DC 20007 LEGAL 204115 MEDICAL MINDS 6535 CAMINITO SINNECOCK LA JOLLA CA 92037 PUBLISHING 169182 UCMMDC-1010 WAYNE LLC PO BOX 60713 CHARLOTTE NC 28260 RENT 151036 DUFOUR & CO LLC 1901 NORTH FT MYER DRIVE STE 502 ARLINGTON VA 22209 CONSULTING 125017 4 18492 248117 743029 1009638 CANCER POLICY ROUNDTAB 900099 535000 535000 WOMEN IN CANCER TOWNHA 900099 75000 75000 610000 30849 30849 85334 67677 17657 17657 17657 22883 248117 22883 0 37024 0 37024 37024 1705168 647024 0 48506 X 369754 258828 22079 88847 284908 171681 113227 4316 3021 352 943 37264 26085 2236 8943 57551 40286 3453 13812 30129 18267 3941 7921 36844 21384 4706 10754 439864 391665 14255 33944 78155 62356 5381 10418 287422 171898 37110 78414 98758 62420 23008 13330 45351 27112 5854 12385 9245 5539 1193 2513 EVENT EXPENSES 193174 47936 13493 131745 PRINTING 185217 175070 854 9293 MIS SUPPORT 133648 114734 7605 11309 SERVICE CHARGES 30403 24945 1687 3771 34038 27028 224 6786 2356041 1650255 147431 558355 256799 176285 422512 57764 12164 50177 195215 192928 72262 615601 483144 417656 110839 65488 1167452 839763 18067 18067 2255310 2016073 404989 182044 45000 665000 449989 847044 X 1018143 572963 787178 596066 1805321 1169029 2255310 2016073 -650873 14581 0 X X 0 1 X 1 0 X 3485419 3726442 3389767 1954681 1038638 13594947 3485419 3726442 3389767 1954681 1038638 13594947 5984633 7610314 83630 56959 53507 39680 30849 264625 13859572 3412183 0.54910 0.51400 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 31892 31892 2324149 2356041 267802 66951 0 0 333948 337952 344311 267802 1284013 1926020 273136 153756 58744 31892 517528 83487 84488 86078 66951 321004 481506 1845 2606 29170 33621 483144 417656 65488 65488 X 1719749 14581 14581 1705168 0 1705168 2356041 0 2356041 0 2356041 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) ISSUED INTERPRETATION (FIN) NO. 48, ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, AN INTERPRETATION OF FASB STATEMENT NO. 109, WHICH IS CODIFIED AS FASB ASC 740. FASB ASC 740 REQUIRES CHANGES IN RECOGNITION AND MEASUREMENT FOR UNCERTAIN TAX POSITIONS. NCCS HAS DETERMINED THAT IT CURRENTLY DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS. IF THIS POSITION CHANGES, NCCS WILL ASSESS THE IMPACT OF ANY SUCH MATTERS ON ITS STATEMENT OF FINANCIAL POSITION AND ITS RESULTS OF OPERATIONS. GALA 271000 248117 22883 22883 271000 248117 22883 22883 22883 0 X 0 0 0 0 0 0 0 0 0 FORM 990, PART VI, SECTION A, LINE 7A ANY INDIVIDUAL MAY NOMINATE HIMSELF, HERSELF, OR ANOTHER MEMBER IN WRITING BY SUBMITTING THE NOMINATION TO THE CENTRAL OFFICE OR TO ANY MEMBER OF THE GOVERNANCE COMMITTE NO LESS THAN NINETY (90) DAYS PRIOR TO THE OPENING OF THE ANNUAL BOD MEETING. THE GOVERNANCE COMMITTEE SHALL SUBMIT IN WRITING AT LEAST THIRTY (30) DAYS PRIOR TO THE ANNUAL BOD MEETING THE NAMES OF PERSONS TO BE NOMINATED AS MEMBERS OF THE BOD AND AS OFFICERS OF THE CORPORATION. THE BOD SHALL ELECT OFFICERS AND THE DIRECTORS BY MAJORITY VOTE. EACH DIRECTOR SHALL BE ELECTED TO A TERM OF THREE (3) YEARS. FORM 990, PART VI, SECTION B, LINE 11 THE FEDERAL FORM 990 IS REVIEWED IN DETAIL BY MANAGEMENT. AFTER MANAGEMENT'S REVIEW AND APPROVAL OF THE FORM 990, THE 990 IS REVIEWED BY THE TREASURER AND/OR THE FINANCE COMMITTEE. ONCE THE TREASURER AND/OR THE FINANCE COMMITTEE APPROVES THE FORM 990 IT IS FILED WITH THE IRS. THE FORM 990 IS ALSO PRESENTED TO THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY BY ANNUALLY PROVIDING A COPY OF THE POLICY TO EACH INDIVIDUAL AND BY MAKING IT MANDATORY FOR ALL OFFICERS, DIRECTORS, EMPLOYEES OR COMMITTEE MEMBERS TO COMPLETE AND SIGN BOTH AN ANNUAL DISCLOSURE AND AN ACKNOWLEDGEMENT OF RECEIPT OF THE CONFLICT OF INTEREST POLICY. ALL COMPLETED ACKNOWLEDGEMENTS AND DISCLOSURE FORMS, ALONG WITH ALL OTHER CONFLICT INFORMATION, ARE REVIEWED BY THE ORGANIZATION'S PRESIDENT AND CHAIR. FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION FOR THE ORGANIZATION'S CEO IS DETERMINED BY THE ORGANIZATION'S EXECUTIVE COMMITTEE. THE EXECUTIVE COMMITTEE ASSISTS THE BOARD IN SETTING THE CEO'S COMPENSATION AND TO REVIEW AND MAKE RECOMMENDATIONS REGARDING COMPENSATION PLANS, POLICIES, AND PROGRAMS OF THE ORGANIZATION. THE ORGANIZATION'S COMPENSATION PACKAGES ARE SET AND GOVERNED BY ITS EXECUTIVE COMMITTEE, WHICH INITIALLY APPROVES THEM AND HAS DISCRETION TO CHANGE THEM. THE COMMITTEE DOES UTILIZE INDEPENDENT SOURCES AND OTHER TIMELY AND COMPARABLE DATA TO REACH ITS RECOMMENDATIONS. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE CONFLICT OF INTERST POLICY AND FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON THE ORGANIZATION'S WEBSITE. OTHER FEES FORM 990, PART IX, LINE 11G CONSULTANTS : PROGRAM SERVICE EXPENSES 317,009. MANAGEMENT AND GENERAL EXPENSES 9,270. FUNDRAISING EXPENSES 23,914. TOTAL EXPENSES 350,193. TEMPORARY HELP: PROGRAM SERVICE EXPENSES 26,091. MANAGEMENT AND GENERAL EXPENSES 4,727. FUNDRAISING EXPENSES 9,604. TOTAL EXPENSES 40,422. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 48,565. MANAGEMENT AND GENERAL EXPENSES 258. FUNDRAISING EXPENSES 426. TOTAL EXPENSES 49,249. FORM 990, PART XII, LINE 2C THE PROCESS FOR THE OVERSIGHT OF THE ORGANIZATION'S AUDITED FINANCIAL STATMENTS AND SELECTION OF THE INDEPENDENT ACCOUNTANT HAS NOT CHANGED SINCE THE PREVIOUS FORM 990 FILING. A DESCRIPTION OF THE PROCESS IS AS FOLLOWS: OVERSIGHT OF THE FINANCIAL STATEMENTS: THE ORGANIZATION'S DRAFT FINANCIAL STATEMENTS ARE REVIEWED IN DETAIL BY MANAGEMENT WITH THE AUDITORS. ONCE MANAGEMENT APPROVES THE DRAFT FINANCIAL STATEMENTS THE STATEMENTS ARE PRESENTED TO THE FINANCE COMMITTEE. THE FINANCE COMMITTEE REVIEWS THE STATEMENTS AND THEN HAS EITHER A MEETING OR A CONFERENCE CALL WITH THE AUDITOR TO REVIEW THE STATEMENTS IN DETAIL. AT THIS TIME THE FINANCE COMMITTEE WILL INQUIRE OF THE OUTSIDE AUDITOR AS TO ANY ACCOUNTING ISSUES, FOOTNOTE DISCLOSURES AND/OR OTHER ITEMS THAT THE AUDIT IS THEN PRESENTED TO THE ENTIRE BOARD OF DIRECTORS. SELECTION OF THE INDEPENDENT AUDITOR: MANAGEMENT OF THE ORGANIZATION RECOMMENDS THE CHOICE OF AUDITORS ON AN ANNUAL BASIS. THE CHOICE IS THEN APPROVED BY THE TREASURER AND/OR THE BOARD OF DIRECTORS.