2013-09-25T14:43:02-05:00 2012-12-31 050409384 KAHN LITWIN RENZA & CO LTD 800 SOUTH STREET SUITE 300 WALTHAM MA 02453 990 2012-01-01 206745475 THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION ADEN 7812489699 PO BOX 442 NEEDHAM MA 02494 JEFFREY A KAUFMAN 7812489699 2013-09-24 1 DEBORAH A HOPKINS P00167843 7815478800 2012 2016-02-24 21:20:13Z JEFFREY A KAUFMAN PO BOX 442 NEEDHAM MA 02494 1712433 0 X WWW.ACCRF.ORG X 2005 MA SUPPORTING RESEARCH INTO THE TREATMENT AND CURE OF ADENOID CYSTIC CARCINOMA 6 5 1 0 0 0 2477245 1677911 0 0 8741 9122 65826 5192 2551812 1692225 715976 864887 0 0 120000 140056 0 0 6462 236142 372808 1072118 1377751 1479694 314474 2511573 2848746 99103 121802 2412470 2726944 THE ADENOID CYSTIC CARCINOMA RESEARCH FOUNDATION (ACCRF) SUPPORTS RESEARCH INTO ADENOID CYSTIC CARCINOMA THAT WILL ACCELERATE THE DEVELOPMENT OF IMPROVED THERAPIES AND A CURE FOR THE DISEASE. 0 0 180161 158500 SPECIMENS AND MODELS: ACCRF SUPPORTS AND COORDINATES THE DEVELOPMENT AND DISTRIBUTION OF BIOBANKING, CELL LINE AND ANIMAL MODEL RESOURCES FOR RESEARCHERS. THESE RESOURCES ARE THE BUILDING BLOCKS UPON WHICH ALL BASIC, TRANSLATIONAL AND CLINICAL RESEARCH ARE CONSTRUCTED. 620283 571986 BASIC RESEARCH: ACCRF SUPPORTS AND COORDINATES THE DESCRIPTIVE AND FUNCTIONAL STUDIES THAT IDENTIFY THE MOLECULAR TARGETS AND PATHWAYS THAT PERMIT ADENOID CYSTIC CARCINOMA TO PROGRESS. BY FOCUSING ON THE MECHANISMS OF ACTION, RESEARCHERS MAY DISCOVER MORE QUICKLY THE ACHILLES' HEELS OF THE DISEASE. 501736 134401 TRANSLATION TO THE CLINIC: ACCRF SUPPORTS AND COORDINATES RESEARCH INTO TREATMENTS MOST LIKELY TO LEAD TO CLINICAL BENEFIT FOR ADENOID CYSTIC CARCINOMA PATIENTS. DRUG DISCOVERY, DRUG DEVELOPMENT, PRECLINICAL DRUG SCREENING AND CORRELATIVE STUDIES ARE CRUCIAL TO THE INITIATION AND OPTIMAL CONDUCT OF CLINICAL TRIALS. 1302180 1 1 0 0 0 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 1 1 0 0 0 0 X 6 5 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 1 1 0 0 MA X MARNIE A KAUFMAN 7814491757 60 SAVOY ROAD NEEDHAM MA 02492 JEFFREY A KAUFMAN 50.00 X X 130000 0 0 RALPH MOLLIS 5.00 X X 0 0 0 MARNIE A KAUFMAN 25.00 X 0 0 0 THOMAS DILENGE 5.00 X 0 0 0 KARA GELB 5.00 X 0 0 0 DOUGLAS MEYER 5.00 X 0 0 0 130000 0 0 1 0 0 0 0 42900 1635011 15596 1677911 9122 9122 25400 42900 20208 5192 5192 1692225 0 0 14314 638357 638357 226530 226530 130867 104694 22247 3926 9189 7350 1563 276 15857 15857 5108 5108 8638 8638 6368 6368 1669 1669 RESEARCH STUDIES EXPENS 319629 319629 WEBSITE DESIGN AND MAIN 11202 11202 LICENSES AND FEES 2825 2825 EVENT EXPENSES 2260 2260 -748 -748 1377751 1302180 69109 6462 282498 79592 2229075 2769154 2511573 2848746 99103 121802 99103 121802 X 2412470 2726944 2412470 2726944 2511573 2848746 314474 0 X 0 1 X 1 0 X 1024221 1159878 951993 2543071 1677911 7357074 1024221 1159878 951993 2543071 1677911 7357074 7090 7349984 14338 3037 3186 8741 9122 38424 7395498 25400 0.99380 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X 1720837 24000 4612 28612 1692225 0 1692225 1406363 24000 4612 28612 1377751 0 1377751 DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: SINCE THE FOUNDATION'S INCEPTION IN DECEMBER 2005, IT HAS BEEN DEEMED AN ORGANIZATION EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE (IRC). INITIALLY, THE FOUNDATION WAS CLASSIFIED AS A PRIVATE FOUNDATION AND WAS SUBJECT TO AN EXCISE TAX OF 1% OR 2%, DEPENDING ON PAYOUT REQUIREMENTS FOR NET INVESTMENT INCOME, AS DEFINED UNDER SECTION 4942(J)(3) OF THE IRC. IN 2007, THE FOUNDATION SOUGHT PERMISSION FROM THE INTERNAL REVENUE SERVICE (IRS) TO CONVERT FROM A PRIVATE FOUNDATION TO A PUBLIC CHARITY. DURING AN ADVANCE RULING PERIOD FROM JANUARY 1, 2007 THROUGH DECEMBER 31, 2011, THE FOUNDATION WAS TREATED AS A PUBLIC CHARITY BUT FILED ANNUALLY THE IRS FORM 990 - RETURN OF PRIVATE FOUNDATION, THE APPROPRIATE FILING DURING SUCH AN ADVANCE RULING PERIOD. IN 2012, THE IRS PROVIDED FINAL APPROVAL OF THE RECLASSIFICATION OF THE FOUNDATION FROM A PRIVATE FOUNDATION TO A PUBLIC CHARITY. THIS APPROVAL WAS RETROACTIVELY EFFECTIVE JANUARY 1, 2007. MANAGEMENT BELIEVES THAT THE FOUNDATION OPERATES IN A MANNER CONSISTENT WITH ITS TAX-EXEMPT STATUS AT BOTH THE STATE AND FEDERAL LEVEL. BEGINNING IN 2012, THE FOUNDATION WILL FILE ANNUALLY THE IRS FORM 990 - RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX TO REPORT INFORMATION THAT THE IRS USES TO MONITOR THE ACTIVITIES OF TAX-EXEMPT ENTITIES. THESE TAX RETURNS ARE SUBJECT TO REVIEW BY THE AUTHORITIES GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. THE FEDERAL INCOME TAX RETURNS FOR 2009, 2010 AND 2011 ARE SUBJECT TO EXAMINATION BY THE IRS. THE FOUNDATION CURRENTLY HAS NO TAX EXAMINATION IN PROGRESS. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES NETTED WITH PROCEEDS 4,612. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENT EXPENSES NETTED WITH PROCEEDS 4,612. 1 EAST ASIA AND THE PACIFIC 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION 73630 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION 152900 0 0 0 0 0 0 226530 0 226530 EAST ASIA AND THE PACIFIC SUPPORT FOR THE STUDY OF THE ACC MODEL 73630 CHECK OR FUND TRANSFER EUROPE (INCLUDING ICELAND & GREENLAND) SUPPORT FOR THE GOTEBORG FUSION GENE PROJECT 152900 CHECK OR FUND TRANSFER 2 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: ALL FOREIGN GRANTS ARE MADE TO MAJOR RESEARCH INSTITUTIONS OR HOSPITALS WITH INTERNATIONAL REPUTATIONS. IN ADDITION TO INTERIM WRITTEN REPORTS ON RESEARCH PROJECTS AND A FINAL REPORT FOLLOWING PROJECT COMPLETION, ACCRF ANNUALLY MEETS WITH EACH OF THE FOREIGN GRANTEES TO RECEIVE AN ORAL REPORT ON THE RESEARCH PROJECTS. 2012 FRIENDS OF ACCRF EVENT 68300 42900 25400 4337 275 15596 68300 42900 25400 4337 275 15596 20208 5192 1 DANA-FARBER CANCER INSTITUTE 450 BROOKLINE AVENUE BOSTON MA 02215 042263040 501(C)(3) 93500 SUPPORT FOR STUDY OF THE TRANSGENIC MODEL HARVARD COLLEGE SPONSORED PROGRAMS ADMINISTRATION 25 SHATTUCK STREET BOSTON MA 02115 042103580 501(C)(3) 134401 SUPPORT FOR HARVARD MEDICAL SCHOOL STUDY OF MYB-SUPPRESSING COMPOUNDS MD ANDERSON CANCER CENTER U 0F TEXAS - MD ANDERSON CANCER CENTER PO BOX 301439 HOUSTON TX 77230 746001118 501(C)(3) 65000 SUPPORT FOR BIOBANKING, MODEL DEVELOPMENT AND GENOMICS MASSACHUSETTS GENERAL HOSPITAL MGH RESEARCH MANAGEMENT PO BOX 414876 BOSTON MA 02241 041564655 501(C)(3) 130000 SUPPORT FOR STUDY OF MYB AND THE CHROMATIN LANDSCAPE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1720 2ND AVENUE SOUTH BIRMINGHAM AL 35233 636005396 501(C)(3) 44000 SUPPORT FOR STUDY OF TRANSCRIPTIONALLY ACTIVE HPV UNIVERSITY OF MICHIGAN 3003 S STATE ST RM 1054 ANN ARBOR MI 48109 386006309 501(C)(3) 40052 SUPPORT FOR STUDY OF CANCER STEM CELLS UNIVERSITY OF NEW MEXICO - HEALTH SCIENCES CENTER MSC 09 5225 HSC ALBUQUERQUE NM 87131 856000642 501(C)(3) 31573 SUPPORT FOR STUDY OF MYB-NFIB FUSION VARIANTS VANDERBILT UNIVERSITY DEPT OF FINANCE DET AT 40303 ATLANTA GA 31192 620475822 501(C)(3) 57500 SUPPORT FOR THE STUDY OF NEUROTROPHIC SIGNALING UNIVERSITY OF VIRGINIA - UVA HEALTH SYSTEM OFFICE OF SPONSORED PROGRAMS PO BOX 400195 CHARLOTTESVILLE VA 22904 546001796 501(C)(3) 42331 SUPPORT FOR STUDY OF DISEASE PATHWAYS 9 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: ACCRF TYPICALLY REQUIRES INTERIM REPORTING ON RESEARCH PROJECTS EVERY SIX MONTHS AS WELL AS A FINAL REPORT FOLLOWING PROJECT COMPLETION. FORM 990, PART VI SECTION B, LINE 13: THE FOUNDATION HAS ONE EMPLOYEE, THE EXECUTIVE DIRECTOR, AND THEREFORE, DOES NOT HAVE A WRITTEN WHISTLEBLOWER POLICY. FORM 990, PART VI SECTION B, LINE 15B: THE FOUNDATION HAS ONE EMPLOYEE, THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION A, LINE 2 THE EXECUTIVE DIRECTOR, JEFFREY A. KAUFMAN, IS MARRIED TO A DIRECTOR ON THE BOARD, MARNIE A. KAUFMAN. FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 IS PREPARED BY THE EXTERNAL AUDITORS AND REVIEWED BY MANAGEMENT. ONCE ALL ARE SATISFIED WITH THE FORM, IT IS FINALIZED AND A COPY IS SENT TO ALL DIRECTORS. AT THE SUBSEQUENT BOARD OF DIRECTORS MEETING, THE DIRECTORS ARE ASKED IF THEY HAVE ANY QUESTIONS OR COMMENTS AND A GENERAL REVIEW OF THE FORM IS CONDUCTED BY MANAGEMENT. REVISIONS AND CORRECTIONS ARE MADE AS NECESSARY. SUBSEQUENT TO THIS MEETING, THE FORM IS SUBMITTED TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C A FORMAL PROCESS IS UNDERTAKEN EACH YEAR TO MONITOR AND ENFORCE THE CONFLICT OF INTEREST POLICY CONTAINED WITHIN THE BYLAWS. EACH JANUARY, AN ANNUAL SURVEY ON CONFLICTS OF INTEREST IS COMPLETED BY EVERY DIRECTOR AND OFFICER COVERING THE PRIOR CALENDAR YEAR. ALL BUSINESS RELATIONSHIPS, IF ANY, ARE REPORTED TO THE BOARD OF DIRECTORS. EXCLUDING ANY INTERESTED PARTIES, A MAJORITY OF REMAINING DIRECTORS DETERMINES WHETHER A CONFLICT OF INTEREST HAS OCCURRED AND WHETHER A MORE ADVANTAGEOUS TRANSACTION IS AVAILABLE TO THE FOUNDATION THAT WOULD NOT LEAD TO A CONFLICT OF INTEREST. THE BOARD IS CHARGED WITH TAKING APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION IN THE CASE OF A VIOLATION OF THE CONFLICT OF INTEREST POLICY. FORM 990, PART VI, SECTION B, LINE 15A A FORMAL STRATEGIC REVIEW, OBJECTIVE SETTING AND PERFORMANCE REVIEW PROCESS IS UNDERTAKEN EACH YEAR. DURING ITS JANUARY MEETING, THE BOARD OF DIRECTORS REVIEWS THE PERFORMANCE OF THE ORGANIZATION AND EXECUTIVE DIRECTOR, BASED ON GOALS AND OBJECTIVES PREVIOUSLY AGREED UPON DURING THE PRIOR CALENDAR YEAR AND ON A PERFORMANCE REPORT SUBMITTED BY THE EXECUTIVE DIRECTOR IN ADVANCE OF THE JANUARY MEETING. THE INDEPENDENT DIRECTORS OF THE BOARD MEET SEPARATELY DURING THE MONTH OF JANUARY TO ASSESS THE EXECUTIVE DIRECTOR'S PERFORMANCE, AGREE ON A PROCESS TO INFORM THE EXECUTIVE DIRECTOR OF ANY AREAS OF NEEDED IMPROVEMENT, AND AGREE UPON A MERIT AND/OR COST OF LIVING SALARY INCREASE FOR THE DIRECTOR, SUBJECT TO AVAILABILITY OF FUNDS AND MAINTENANCE OF AN APPROPRIATE RATIO BETWEEN SUCH SALARY AND ACCRF FUNDRAISING/REVENUE TOTALS IN ANY GIVEN YEAR. DURING THE FEBRUARY MEETING EACH YEAR, THE BOARD OF DIRECTORS SETS PERFORMANCE OBJECTIVES AND METRICS FOR THE ORGANIZATION AND THE EXECUTIVE DIRECTOR FOR THE CURRENT CALENDAR YEAR. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS (ARTICLES OF INCORPORATION AND BY-LAWS), ITS CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. THE ORGANIZATION WILL MAIL COPIES UPON REQUEST OR PROVIDE COPIES TO THOSE WHO COME TO THE ADMINISTRATIVE OFFICES DURING NORMAL BUSINESS HOURS.