2013-08-12T10:42:31-05:00 2012-12-31 135381590 BDO USA LLP 7101 WISCONSIN AVE SUITE 800 BETHESDA MD 208144827 990 2012-01-01 131665552 MUSCULAR DYSTROPHY ASSOCIATION INC MUSC 5205292000 3300 EAST SUNRISE DRIVE TUCSON AZ 85718 STEPHEN P EVANS CPA 5205292000 2013-08-12 1 MICHAEL SORRELLS CPA P00001737 3016544900 2012 2016-02-24 21:20:13Z STEVEN DERKS 3300 EAST SUNRISE DRIVE TUCSON AZ 85718 183058713 0 X WWW.MDA.ORG X 1950 NY MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. 19 18 1435 1500000 251115 14876 157086290 149557236 0 0 -1772204 1348594 1274531 1209221 156588617 152115051 46352169 47570979 0 0 70159258 67163193 86908 497284 23577129 58995870 51592591 175594205 166824047 -19005588 -14708996 98307873 100099622 84950677 98635094 13357196 1464528 X MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. 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THE COLLECTION, ON PERMANENT DISPLAY AT MDA NATIONAL HEADQUARTERS IN TUCSON, ARIZ., COMPRISES NEARLY 400 ORIGINAL WORKS BY ADULTS AND CHILDREN WHO HAVE ANY OF THE NEUROMUSCULAR DISORDERS IN MDA'S PROGRAM. ARTISTS IN THE COLLECTION REPRESENT ALL 50 STATES, THE DISTRICT OF COLUMBIA AND PUERTO RICO, AND RANGE IN AGE FROM 2 TO 82. THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES, AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY. DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE ASSOCIATION IS A NONPROFIT ORGANIZATION AND IS EXEMPT FROM TAXATION UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND NEW YORK CODES, RULES AND REGULATIONS (NCRR20 SECTION 1-3.4(B)(6)). GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR THE YEARS ENDED DECEMBER 31, 2012, 2011, AND 2010 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. 1 CENTRAL AMERICA AND THE CARIBBEAN 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 103116 EAST ASIA AND THE PACIFIC 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 1293192 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 2079723 MIDDLE EAST AND NORTH AFRICA 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 217966 NORTH AMERICA 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 1662244 SOUTH AMERICA 0 0 PROGRAM SERVICES GRANTS TO RECIPIENTS LOCATED IN REGION 72500 0 0 0 0 0 0 5428741 0 5428741 CENTRAL AMERICA AND THE CARIBBEAN RESEARCH 103116 CHECK EAST ASIA AND THE PACIFIC RESEARCH 1293192 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 2079723 CHECK MIDDLE EAST AND NORTH AFRICA RESEARCH 217966 CHECK NORTH AMERICA RESEARCH 1662244 CHECK SOUTH AMERICA RESEARCH 72500 CHECK 6 0 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. 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STREET STE 600 PHOENIX AZ 85004 753065445 501 (C) (3) 129076 RESEARCH THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 630 WEST 168TH ST BOX 49 NEW YORK NY 10032 135598093 501 (C) (3) 1013750 RESEARCH THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT STREET FRANKLIN BLDG P-221 PHILADELPHIA PA 19104 231352685 STATE OF PA 273040 RESEARCH THE UNIVERSITY OF ALABAMA AT BIRMINGHAM 1530 3RD AVENUE SOUTH - AB 1170 BIRMINGHAM AL 35294 636005396 STATE OF AL 116711 RESEARCH THE UNIVERSITY OF CHICAGO 5801 SOUTH ELLIS AVENUE CHICAGO IL 60637 362177139 501 (C) (3) 20000 RESEARCH THE UNIVERSITY OF IOWA 2 GILMORE HALL IOWA CITY IA 52242 426004813 STATE OF IA 245500 RESEARCH THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL 104 AIRPORT DR STE 2200 CAMPUS BOX 1350 CHAPEL HILL NC 27599 566001393 STATE OF NC 142000 RESEARCH THE UNIV OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON POST OFFICE BOX 20036 HOUSTON TX 77225 741761309 STATE OF TX 318024 RESEARCH THE UNIVERSITY OF TEXAS MEDICAL BRANCH AT GALVESTON 301 UNIVERSITY BOULEVARD GALVESTON TX 77555 746000949 STATE OF TX 112544 RESEARCH THE UNIVERSITY OF TOLEDO 2801 WEST BANCROFT STREET TOLEDO OH 43606 346401483 STATE OF OH 108868 RESEARCH THOMAS JEFFERSON UNIVERSITY 900 WALNUT STREET SUITE 408 PHILADELPHIA PA 19147 231352651 501 (C) (3) 60000 RESEARCH TIVORSAN PHARMACEUTICALS INC 3 DAVOL SQUARE A301 PROVIDENCE RI 02903 770702642 150000 RESEARCH TRUSTEES OF BOSTON UNIVERSITY 881 COMMONWEALTH AVENUE BOSTON MA 02215 042103547 501 (C) (3) 119133 RESEARCH UMDNJ-NEW JERSEY MEDICAL SCHOOL 185 S ORANGE AVENUE MSB C-690 NEWARK NJ 07101 221775306 501 (C) (3) 125000 RESEARCH UNIVERSITY OF CINCINNATI 51 GOODMAN DRIVE PO BOX 210222 CINCINNATI OH 45221 316000989 STATE OF OH 109750 RESEARCH UNIVERSITY OF CONNECTICUT 438 WHITNEY ROAD EXT UNIT 1133 STORRS CT 06269 060772160 STATE OF CT 125000 RESEARCH UNIVERSITY OF FLORIDA 219 GRINTER HALL GAINESVILLE FL 32611 596002052 STATE OF FL 314424 RESEARCH UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 109 KINKEAD HALL LEXINGTON KY 40506 616033693 STATE OF KY 111124 RESEARCH UNIVERSITY OF MARYLAND BALTIMORE 620 W LEXINGTON STREET 4TH FLOOR BALTIMORE MD 21201 526002033 STATE OF MD 100281 RESEARCH UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 55 LAKE AVENUE NORTH WORCESTER MA 01655 043167352 STATE OF MA 240000 RESEARCH UNIVERSITY OF MIAMI SCHOOL OF MEDICINE 1400 NW 10TH AVENUE MIAMI FL 33136 590624458 STATE OF FL 721038 RESEARCH UNIVERSITY OF ROCHESTER 518 HYLAN BLDG BOX 270140 ROCHESTER NY 14627 160743209 501 (C) (3) 723192 RESEARCH UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER 1515 HOLCOMBE BLVD HOUSTON TX 77030 746001118 STATE OF TX 111188 RESEARCH UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVE NE BOX 359472 SEATTLE WA 98195 916001537 STATE OF WA 701042 RESEARCH USCUNIVERSITY OF SOUTHERN CALIFORNIA 837 WEST DOWNEY WAY STO 330 LOS ANGELES CA 90089 951642394 STATE OF CA 50500 RESEARCH UT SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS TX 75390 756002868 STATE OF TX 320452 RESEARCH WAKE FOREST UNIVERSITY HEALTH SCIENCES 1 MEDICAL CENTER BLVD WINSTONSALEM NC 27157 223849199 501 (C) (3) 160000 RESEARCH WASHINGTON STATE UNIVERSITY ROOM 423 NEILL HALL PULLMAN WA 99164 916001108 STATE OF WA 71171 RESEARCH WASHINGTON UNIVERSITY IN ST LOUIS 660 S EUCLID AVE CB 8018 ST LOUIS MO 63110 430653611 501 (C) (3) 474439 RESEARCH YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN CT 06520 060646973 STATE OF CT 56878 RESEARCH 161 108 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. X X 1 1 X X X X 0 0 0 0 0 0 0 0 0 GAIL SCHMERTZ KERNER ESQ 191302 0 35000 0 0 0 0 0 11519 0 237821 0 0 0 VALERIE A CWIK MD 197274 0 90000 0 0 0 0 0 5984 0 293258 0 0 0 PETER MORGAN 165547 0 65000 0 0 0 0 0 11519 0 242066 0 0 0 KEVIN W MORAN 146623 0 65000 0 0 0 0 0 11519 0 223142 0 0 0 JOHN WALSH 149818 0 0 0 0 0 0 0 11519 0 161337 0 0 0 SANJAY I BIDICHANDANI 158944 0 0 0 0 0 0 0 11498 0 170442 0 0 0 GERALD C WEINBERG 142412 0 0 0 0 0 0 0 5941 0 148353 0 0 0 DANIEL G FRIES MDA BOARD MEMBER 415007 MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. 0 STEVE FARELLA MDA BOARD MEMBER 166303 MDA BOARD MEMBER STEVE FARELLA IS CHIEF EXECUTIVE OFFICER OF TARGETCAST. TARGETCAST PROVIDES MDA WITH PLACEMENT OF FREE PUBLIC SERVICE ANNOUNCEMENTS IN NATIONAL MEDIA PUBLICATIONS. STEVE FARELLA IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. 0 X 3 0 X 26 200956 FAIR MARKET VALUE X MEDICAL EQUIPMENT 37 510220 APPRAISAL X JEWELRY 1 9635 FAIR MARKET VALUE 37 0 1 0 FORM 990, PART VI, SECTION B, LINE 11 ALL BOARD MEMBERS WERE INVITED TO THE AUDIT COMMITTEE MEETING FOR THE FEDERAL FORM 990 REVIEW BY BDO BEFORE FILING WITH THE IRS. THOSE NOT IN ATTENDANCE WERE PROVIDED A HARD COPY. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH THE MDA LEGAL DEPARTMENT. FORM 990, PART VI, SECTION B, LINE 15 A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. CHANGES IN NET ASSETS OR FUND BALANCES: FORM 990, PART XI, LINE 9: CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -4,206,078. CHANGES IN TEMPORARILY RESTRICTED NET ASSETS 53,588. CHANGES IN PERMANENTLY RESTRICTED NET ASSETS 75,883. OVERSIGHT OF THE AUDIT: FORM 990, PART XI, LINE 2C THERE HAVE BEEN NO CHANGES DURING THE YEAR IN THE PROCESS FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS. PROGRAM SERVICE ACCOMPLISHMENTS (CONTINUED): FORM 990, PART III, LINE 4A: HEALTH CARE AND COMMUNITY SERVICES THROUGHOUT THE UNITED STATES AND PUERTO RICO, THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) PROVIDES A WIDE VARIETY OF SERVICES TO THOSE AFFECTED BY ANY OF THE DISORDERS IN ITS PROGRAM, IRRESPECTIVE OF AGE, RACE, CREED, OR GENDER. MDA'S SERVICES PROGRAM IS DESIGNED TO ASSIST THOSE AFFECTED BY MUSCULAR DYSTROPHY AND RELATED DISEASES OF THE NEUROMUSCULAR SYSTEM, WHICH AFFECT CHILDREN AS WELL AS ADULTS. A COMPLETE LIST OF DISEASES COVERED BY MDA IS CONTAINED IN THE ASSOCIATION'S SERVICES BROCHURE, COPIES OF WHICH ARE AVAILABLE UPON REQUEST THROUGH MDA'S NATIONAL HEADQUARTERS AT 3300 EAST SUNRISE DRIVE, TUCSON, ARIZONA 85718, FROM ANY OF ITS MORE THAN 123 FIELD OFFICES IN THE UNITED STATES AND PUERTO RICO, OR ITS WEB SITE AT WWW.MDA.ORG. MDA MAINTAINS THE MOST COMPREHENSIVE SERVICES PROGRAM OF ANY VOLUNTARY HEALTH AGENCY IN THE COUNTRY, HELPING INDIVIDUALS AND THEIR FAMILIES MEET THE PROBLEMS IMPOSED BY CHRONIC, PROGRESSIVE NEUROMUSCULAR DISEASES. THIS ASPECT OF THE ASSOCIATION'S PROGRAM ACCOUNTED FOR OVER $70,503,567 OF ITS 2012 EXPENDITURES. THE ASSOCIATION MAKES AVAILABLE A BROAD PROGRAM OF SERVICES RANGING FROM A NATIONWIDE NETWORK OF CLINICS PROVIDING ACCESS TO TOP HEALTH PROFESSIONALS SKILLED IN THE DIAGNOSIS AND MEDICAL MANAGEMENT OF NEUROMUSCULAR DISEASES TO ASSISTANCE WITH ESSENTIAL SUPPORT SERVICES, INCLUDING THE FOLLOWING: > ACCESS TO CARING MDA STAFFS, WHO WORK IN COMMUNITIES ACROSS THE COUNTRY TO PROVIDE SUPPORT, INFORMATION AND RESOURCE REFERRALS > DIAGNOSTIC CONSULTATIONS AND FOLLOW-UP EXAMINATIONS BY NEUROMUSCULAR SPECIALISTS THROUGH A NATIONWIDE NETWORK OF 200 MDA CLINICS > A NATIONAL MEDICAL EQUIPMENT PROGRAM PROVIDING GENTLY-USED ITEMS, SUCH AS WHEELCHAIRS, COMMUNICATION TECHNOLOGIES, WALKERS, HOSPITAL BEDS, BATH AIDS AND OTHER ASSISTIVE DEVICES, TO ENHANCE INDEPENDENCE > ASSISTANCE WITH REPAIRS TO PRESCRIBED DURABLE MEDICAL EQUIPMENT > NEARLY 80 WEEK-LONG SUMMER CAMP PROGRAMS ACROSS THE COUNTRY PROVIDING FUN AND FRIENDSHIP FOR CHILDREN AFFECTED BY NEUROMUSCULAR DISEASE > ANNUAL PHYSICAL, OCCUPATIONAL, RESPIRATORY AND SPEECH THERAPY CONSULTATIONS > FLU SHOTS > TRANSITIONAL SERVICES DESIGNED TO PROVIDE SUPPORT AND RESOURCES FOR YOUTH WITH NEUROMUSCULAR DISEASE WHO ARE ENTERING ADULTHOOD, INCLUDING AN ONLINE TRANSITIONS CENTER AT HTTP://TRANSITIONS.MDA.ORG/ > REFERRALS TO FEDERAL, STATE AND COMMUNITY-BASED RESOURCES THAT OFFER ASSISTANCE TO THOSE LIVING WITH DISABILITIES > SUPPORT GROUPS TO ASSIST FAMILIES AND INDIVIDUALS IN COPING WITH THE SPECIAL PROBLEMS IMPOSED BY NEUROMUSCULAR DISEASES > ONLINE CARE COORDINATION TOOL FOR FAMILIES SERVED BY MDA, WWW.MDA.ORG/MYMUSCLETEAM/ > EDUCATIONAL SEMINARS AND WEBINARS THAT PROVIDE INFORMATION ABOUT NEUROMUSCULAR DISEASES AND OFFER A FORUM TO DISCUSS SUBJECTS OF IMPORTANCE TO FAMILIES LIVING WITH THESE DISORDERS MDA CLINICS MDA MAINTAINS A NETWORK OF 200 HOSPITAL-AFFILIATED NEUROMUSCULAR CLINICS LOCATED AT MEDICAL INSTITUTIONS AND UNIVERSITY-BASED FACILITIES ACROSS THE UNITED STATES AND PUERTO RICO. EACH YEAR MDA PROVIDES TENS OF THOUSANDS OF MEDICAL VISITS THROUGH ITS CLINIC PROGRAM. INDIVIDUALS AFFECTED BY ANY OF THE DISORDERS IN MDA'S PURVIEW HAVE ACCESS TO THESE CLINICS STAFFED BY TOP HEALTH PROFESSIONALS USING A MULTIDISCIPLINARY TEAM APPROACH. THESE EXPERTS ADVISE ABOUT ALL ASPECTS OF MEDICAL MANAGEMENT OF NEUROMUSCULAR DISEASE, INCLUDING RESPIRATORY CARE AND PHYSICAL THERAPY. ANYONE WHOSE PHYSICIAN SUSPECTS A NEUROMUSCULAR DISORDER, UPON REFERRAL BY THE PERSON'S PHYSICIAN, IS ELIGIBLE FOR A DIAGNOSTIC EVALUATION AT AN MDA CLINIC. SHOULD THE DIAGNOSIS INDICATE A DISEASE OTHER THAN ONE INCLUDED IN MDA'S PROGRAM, THE ASSOCIATION WILL THEN REFER THE INDIVIDUAL TO AN APPROPRIATE COMMUNITY RESOURCE. ALSO, MDA CLINICS ARE ESSENTIAL TO THE ADVANCEMENT OF NEUROMUSCULAR DISEASE RESEARCH AND SERVE AS FOCAL POINTS FOR THE CLINICAL APPLICATION OF SCIENTIFIC ADVANCES DESIGNED TO TREAT THESE DISORDERS. THEY SERVE AS KEY CENTERS FOR ONGOING CLINICAL TRIALS FOR THE DEVELOPMENT OF POTENTIAL THERAPIES, WHICH IS THE ULTIMATE GOAL OF MDA'S RESEARCH PROGRAM. TOWARD THIS END, IN 2012 THE ASSOCIATION ESTABLISHED THE MDA U.S. NEUROMUSCULAR DISEASE REGISTRY, WITH THE AIM OF IMPROVING SURVIVAL AND QUALITY OF LIFE FOR THOSE WITH NEUROMUSCULAR DISEASES, AS WELL AS EXPEDITING CLINICAL TRIALS. THE REGISTRY WILL BE PILOTED AT 25 MDA CLINICS BEFORE EXPANDING TO THE ASSOCIATIONS ENTIRE CLINIC NETWORK. AS PART OF ITS CLINIC PROGRAM, THE ASSOCIATION HAS ESTABLISHED OVER 40 AMYOTROPHIC LATERAL SCLEROSIS (ALS) CENTERS ACROSS THE COUNTRY TO FOCUS ATTENTION ON THIS VERY RAPIDLY PROGRESSIVE DEBILITATING NEUROMUSCULAR DISORDER THAT STRIKES ADULTS IN THE PRIME OF LIFE. A LIST OF MDA'S ALS CENTERS IS AVAILABLE AT MDA.ORG MDA'S SERVICES PROGRAM IS ADMINISTERED THROUGH ITS NETWORK OF 123 FIELD OFFICES LOCATED IN THE UNITED STATES AND PUERTO RICO. CARING MDA STAFF IN THESE OFFICES PROVIDES SUPPORT FOR LOCAL FAMILIES UPON DIAGNOSIS AND THROUGHOUT THEIR NEUROMUSCULAR DISEASE JOURNEY. MDA HEALTH CARE SERVICE COORDINATORS, WHO ARE KNOWLEDGEABLE ABOUT FEDERAL, STATE AND LOCAL COMMUNITY RESOURCES, ALSO ASSIST FAMILIES SERVED BY THE ASSOCIATION BY ADVISING THEM ABOUT OTHER SERVICES FOR WHICH THEY MAY BE ELIGIBLE. MDA PROVIDES ASSISTANCE TO THOSE IT SERVES IN NEED OF PRESCRIBED MEDICAL EQUIPMENT. IN 2012, THOUSANDS OF ADAPTIVE DEVICES WERE PROVIDED TO INDIVIDUALS THROUGH MDA'S EQUIPMENT PROGRAM -- INCLUDING, BUT NOT LIMITED TO, WALKERS, CANES, BATH EQUIPMENT, WHEELCHAIRS, HYDRAULIC LIFTS, COMMUNICATION TECHNOLOGIES AND HOSPITAL BEDS. MDA ALSO ASSISTED WITH REPAIRS TO ALL TYPES OF DURABLE MEDICAL EQUIPMENT FOR THOSE IT SERVES. IN 2012, THOUSANDS OF CHILDREN AGES 6-17 ENJOYED A WEEK OF FUN AND FRIENDSHIP THROUGH MDA SUMMER CAMPS WHICH OFFER ACTIVITIES GEARED TO THE SPECIAL NEEDS AND ABILITIES OF THOSE WITH NEUROMUSCULAR DISEASE. ADDITIONALLY, INDIVIDUALS AND THEIR FAMILIES RECEIVED SUPPORT THROUGH MDA'S NATIONWIDE NETWORK OF NEARLY 200 SUPPORT GROUPS, AS WELL AS THROUGH MDA-SPONSORED EDUCATIONAL SEMINARS, REFERRAL SERVICES, AND ONLINE CHAT SESSIONS AT WWW.MDA.ORG/CHAT/CALENDAR.HTML AND LIVE EXPERT-HOSTED WEBINARS WHICH ARE ARCHIVED AT WWW.MDA.ORG. SUPPORT ALSO WAS AVAILABLE THROUGH MDA'S CARE COORDINATION TOOL, WWW.MDA.ORG/MYMUSCLETEAM, WHICH ENABLES FAMILIES TO POST JOURNAL ENTRIES TO KEEP FRIENDS AND LOVED ONES UPDATED AND TO LIST TASKS FOR WHICH ASSISTANCE MAY BE NEEDED SUCH AS TRANSPORTATION TO MEDICAL APPOINTMENTS, MEAL PREPARATION, HOUSEHOLD CHORES AND MORE. ADDITIONAL INFORMATION ABOUT MDA'S HEALTH CARE AND COMMUNITY SERVICES PROGRAM IS AVAILABLE THROUGH MDA'S WEB SITE AT WWW.MDA.ORG/SERVICES.HTML. PROGRAM SERVICE ACCOMPLISHMENTS: FORM 990, PART III, LINE 4B: RESEARCH - MDA IS CURRENTLY SPONSORING RESEARCH GRANTS IN THE UNITED STATES AND A DOZEN FOREIGN COUNTRIES. THE ASSOCIATION'S RESEARCH PROGRAM ACCOUNTED FOR SOME $38,447,079 OF ITS EXPENDITURES FOR THE 2012 CALENDAR YEAR. MDA'S SCIENTIFIC AND MEDICAL ADVISORY COMMITTEES, WHOSE MEMBERS ARE AMONG THE NATION'S FOREMOST SCIENTISTS AND PHYSICIANS IN THE FIELD OF NEUROMUSCULAR DISEASE, CAREFULLY EVALUATE ALL RESEARCH GRANT AND DEVELOPMENT GRANT PROPOSALS SUBMITTED TO THE ASSOCIATION. MDA MAINTAINS A DIVERSE PROGRAM OF BASIC RESEARCH, WHICH ADVANCES INVESTIGATIONS OF POSSIBLE TREATMENTS FOR NEUROMUSCULAR DISEASES, MUSCLE FUNCTION, REGULATION AND REGENERATION; BIOCHEMICAL CHANGES INVOLVED IN MUSCLE DISEASE; THE GENETICS OF NEUROMUSCULAR DISEASE; AND THE INTERACTION OF NERVE AND MUSCLE. THIS WORK IS CRUCIAL FOR PROVIDING A SOUND SCIENTIFIC FOUNDATION UPON WHICH PRACTICAL ADVANCES AGAINST DISEASE CAN BE BUILT. ADDITIONALLY, THE ASSOCIATION'S TRANSLATIONAL RESEARCH PROGRAM IS FOCUSED ON MILESTONE DRIVEN CONTRACTS WITH THE BIOTECH INDUSTRY, PHARMACEUTICAL COMPANIES AND ACADEMIC INVESTIGATORS FOR RESEARCH THAT IS DIRECTLY RELEVANT TO BRINGING NEW THERAPIES TO MARKET. ADVISORS TO MDA'S TRANSLATIONAL RESEARCH PROGRAM INCLUDE A NUMBER OF TOP NEUROMUSCULAR DISEASE RESEARCHERS, AS WELL AS REPRESENTATIVES OF NIH AND INDUSTRY. PROGRAM SERVICE ACCOMPLISHMENTS: FORM 990, PART III, LINE 4C: PROFESSIONAL AND PUBLIC HEALTH EDUCATION - IN THE YEAR ENDED DECEMBER 31, 2012, THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) EXPENDED $19,664,141 ON ITS PROFESSIONAL AND PUBLIC HEALTH EDUCATION PROGRAM. MDA ANNUALLY PROVIDES THE MEDICAL PROFESSION, SCIENTIFIC COMMUNITY, GENERAL PUBLIC, AND PEOPLE AFFECTED BY NEUROMUSCULAR DISEASES WITH TIMELY AND THOROUGH INFORMATION ABOUT MDA'S PROGRAMS AND THE MORE THAN 40 DISEASES THEY COVER. MDA SUCCESSFULLY WORKED WITH MEDIA OUTLETS NATIONWIDE IN 2012, PLACING THOUSANDS OF DOCUMENTED NEWS STORIES ABOUT ITS LIFESAVING MISSION WITH NETWORK, SYNDICATED AND LOCAL BROADCAST OUTLETS, PRINT NEWS PUBLICATIONS, AND ON THE INTERNET, INCLUDING SOCIAL MEDIA SITES. REPRESENTING MILLIONS OF IMPRESSIONS COLLECTIVELY, THE VALUABLE EARNED MEDIA PLACEMENTS WERE REINFORCED BY THOUSANDS OF NO-COST PUBLIC SERVICE ADVERTISEMENTS. IN ADDITION TO FREE BANNER ADVERTISEMENTS ON MANY HIGH-TRAFFIC WEBSITES, A SUBSTANTIAL NUMBER OF MDA'S AWARD-WINNING "MAKE A MUSCLE, MAKE A DIFFERENCE" PSAS WERE: PUBLISHED BY NEWSPAPERS AND OTHER PERIODICALS; AND BROADCAST BY NATIONAL, REGIONAL, AND LOCAL TELEVISION, CABLE AND RADIO STATIONS. MDA PUBLICATIONS AND EXTENSIVE ONLINE POSTINGS PRODUCED A STEADY STREAM OF INFORMATION ABOUT MDA-FUNDED RESEARCH AND HEALTH CARE SERVICES, AS WELL AS INSIGHTFUL ARTICLES ON RELEVANT LEGISLATION AND INSPIRING INDIVIDUALS. IN ADDITION TO POSTING TWO TO THREE ONLINE NEWS ARTICLES PER WEEK DURING 2012, MDA PRODUCED FOUR PRINT ISSUES OF ITS AWARD-WINNING NATIONAL MAGAZINE, QUEST, OFFERING A READERSHIP OF MORE THAN 350,000 A STIMULATING MIX OF ARTICLES. THE ASSOCIATION ALSO PUBLISHED SIX PRINT ISSUES OF THE MDA/ALS NEWSMAGAZINE FOR THOSE AFFECTED BY ALS (AMYOTROPHIC LATERAL SCLEROSIS, OR LOU GEHRIG'S DISEASE), HELPING TO KEEP NEARLY 60,000 READERS INFORMED. IN ADDITION, MDA PRODUCED AND DISTRIBUTED A VARIETY OF EDUCATIONAL VIDEOS FOR FAMILIES AFFECTED BY MUSCULAR DYSTROPHY AND RELATED DISEASES. THESE VIDEOS WERE REINFORCED BY AN EXTENSIVE ARRAY OF PROGRAM-SPECIFIC SPOTS BROADCAST DURING THE 2012 MDA SHOW OF STRENGTH TELETHON VIEWED BY MILLIONS WORLDWIDE. AMONG THESE SPOTS WERE: SPECIAL PROFILES OF PEOPLE LIVING WITH NEUROMUSCULAR DISEASES; RESEARCH UPDATES; EDUCATIONAL SPOTS ON THE MYRIAD MEDICAL AND HEALTH CARE SERVICES AVAILABLE THROUGH MDA'S NATIONAL NETWORK OF 200 MEDICAL CLINICS; A SPOTLIGHT ON MDA'S EXTRAORDINARY SUMMER CAMP PROGRAM FOR CHILDREN AGES 6 TO 17; AND MUCH MORE. THE ASSOCIATION ALSO CONTINUED TO ENHANCE ITS POPULAR WEBSITE AT MDA.ORG, AS WELL AS MANY OTHER PROGRAM-SPECIFIC SITES. INTERNATIONALLY RECOGNIZED AS A KEY SOURCE OF INFORMATION ABOUT NEUROMUSCULAR DISEASES, TOTAL 2012 PAGE VIEWS AT MDA.ORG SURPASSED 5 MILLION, WITH UNIQUE VISITORS EXCEEDING 2.2 MILLION FOR THE YEAR. MDA ALSO FACILITATED AND PROMOTED A VARIETY OF MONTHLY ONLINE CHATS TO GIVE THE FAMILIES IT SERVES, AS WELL AS MEDICAL AND HEALTH CARE PROFESSIONALS, AMPLE OPPORTUNITIES TO ASK QUESTIONS ABOUT DISEASES, RESEARCH, SERVICES, AND MANY OTHER TOPICS.