2013-07-01T11:56:17-05:00 2013-02-28 113518842 MARKS PANETH & SHRON LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2012-03-01 237191992 TOURETTE SYNDROME ASSOCIATION INC TOUR 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 11361 JUDIT UNGAR 7182242999 2013-07-01 1 ROBERT R LYONS CPA P00227472 2125038800 2012 2016-02-24 21:20:13Z JUDIT UNGAR 42-40 BELL BOULEVARD BAYSIDE NY 11361 8141698 0 X TSA-USA.ORG X 1972 NY TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 16 16 35 70 0 0 6586765 4301410 50360 131231 466557 415997 40000 443 7143682 4849081 2909446 1858357 0 0 2620514 2630888 0 0 606597 1790727 1960575 7320687 6449820 -177005 -1600739 19992672 18600148 1653197 1268226 18339475 17331922 X TO IDENTIFY THE CAUSE OF, FIND THE CURE FOR, AND CONTROL THE EFFECTS OF TOURETTE SYNDROME. 0 0 2568688 1858357 RESEARCH - IDENTIFY THE CAUSES OF TOURETTE SYNDROME, IMPROVE PATIENT CARE AND ULTIMATELY FIND A CURE FOR THE DISORDER BY PROVIDING FUNDING FOR RESEARCH INVESTIGATIONS IN THE AREAS OF NEUROSCIENCES AND CLINICAL CARE. 1435006 131231 PUBLIC EDUCATION - PROVIDES FOR EDUCATION AND AWARENESS TO THE PUBLIC ON TOURETTE SYNDROME, AMONG OTHER THINGS, MAILING OF TOURETTE SYNDROME PAMPHLETS, BROCHURES, VIDEOS AND FILMS. 865342 CENTER FOR DISEASE CONTROL PROGRAM - THE ASSOCIATION AND CENTERS FOR DISEASE CONTROL PREVENTION (CDC) MEDICAL EDUCATION PARTNERSHIP IS PART OF A LARGER APPROPRIATION FROM THE US CONGRESS TO PROMOTE EXPERT MEDICAL EDUCATION ON TOURETTE SYNDROME (TS). THE GOALS OF THE MEDICAL EDUCATION PROGRAM ARE TO PROVIDE EXPERT EDUCATION IN TS TO PHYSICIANS AND TO ALLIED PROFESSIONALS, AND TO ENCOURAGE PHYSICIANS APPLICATION TO THE ASSOCIATION'S REFERRAL LISTS. 50881 NEW YORK COUNSELING PROGRAM - PROVIDES CASE MANAGEMENT, ADVOCACY, COUNSELING AND GROUP SESSION SERVICES TO PERSONS WITH TOURETTE SYNDROME WHO RESIDE IN NEW YORK CITY. 147315 PROFESSIONAL EDUCATION - PROVIDES FOR THE EDUCATION AND AWARENESS OF TOURETTE SYNDROME TO MEDICAL PROFESSIONALS, THROUGH AMONG OTHER THINGS, SEMINARS AND DISTRIBUTION OF RESEARCH UPDATES. 198196 5067232 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 24 0 35 1 0 0 0 0 0 1 1 0 0 0 0 X 16 16 0 0 0 0 1 1 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CT FL IL LA ME MD MI MA MN MS NH NJ NC ND OH OK OR PA RI SC TN UT VA WA WV WI X JULIE NOULAS 7182242999 42-40 BELL BOULEVARD BAYSIDE NY 113612820 REID ASHINOFF 2.00 X X 0 0 0 MICHAEL WOLFE 2.00 X X 0 0 0 ROVENA SCHIRLING 2.00 X X 0 0 0 BRUCE D OCHSMAN 2.00 X X 0 0 0 ALICE KANE 2.00 X X 0 0 0 BRIAN KEMPNER 2.00 X X 0 0 0 FRED COOK 2.00 X X 0 0 0 SOL BARER 2.00 X 0 0 0 PAUL S DEVORE 2.00 X 0 0 0 ROBIN JOSEPHS 2.00 X 0 0 0 MARIE KIRKPATRICK LIPSITZ 2.00 X 0 0 0 CINDY KURTZ 2.00 X 0 0 0 LISA MATLIN 2.00 X 0 0 0 KENNETH D MOELIS 2.00 X 0 0 0 MONTE REDMAN 2.00 X 0 0 0 RANDI ZEMSKY 2.00 X 0 0 0 JUDIT UNGAR 35.00 X 360539 0 50585 GARY FRANK 35.00 X 119827 0 19584 JULIE NOULAS 35.00 X 115999 0 9857 KEVIN MCNAUGHT 35.00 X 108873 0 19248 JOSEPH MARK LEVINE 35.00 X 98715 0 18298 DANIEL ROSTAN 35.00 X 95761 0 8285 ELRIDGE PROCTOR 35.00 X 87747 0 7212 987461 0 133069 4 0 1 0 0 156000 1703261 1772675 669474 4301410 CONFERENCE INCOME 900099 106706 106706 SALE OF INFO MATERIAL 900099 24525 24525 131231 413354 413354 2737657 2735014 2643 2643 2643 557603 1703261 557603 0 MISCELLEANEOUS INCOME 900099 443 443 443 4849081 131231 0 416440 1444877 1444877 413480 413480 1111928 699568 220256 192104 1125612 759452 198476 167684 57946 35720 13232 8994 191793 130579 40789 20425 143609 90118 30836 22655 33500 33500 37626 37626 53840 14060 35805 3975 86977 86431 546 301724 187130 20847 93747 174443 123120 31987 19336 215986 194308 8643 13035 377898 377898 26922 17890 5629 3403 43765 33207 9050 1508 PRINTING AND PUBS. 280128 249435 30693 RECRUITMENT & TRAINING 121914 26448 95466 GENETIC ANALYSIS & LAB 82552 82552 MISCELLANEOUS 48540 4950 19496 24094 74760 58383 11979 4398 6449820 5067232 775991 606597 1031985 396279 13233135 11868407 246875 85688 102431 185301 182187 168883 258192 210874 53954 47318 5142105 5848272 19992672 18600148 836876 580811 777641 681915 38680 5500 1653197 1268226 X 17855785 16839090 157690 166832 326000 326000 18339475 17331922 19992672 18600148 -1600739 593186 0 X X 0 1 X 1 1 1 X 4041071 6716325 6910924 6586765 4301410 28556495 4041071 6716325 6910924 6586765 4301410 28556495 28556495 696849 578979 524023 467734 413354 2680939 -86606 -95765 40000 443 -141928 31095506 457717 0.91830 0.91180 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 1 21096 0 0 1 16530 0 0 37626 0 326000 3417 3417 326000 326000 5841 5841 326000 326000 6437 6437 326000 326000 8194 8194 326000 326000 14068 14068 326000 1.00000 0 0 258192 210874 47318 47318 X 5630720 593186 188453 781639 4849081 0 4849081 6638273 188453 188453 6449820 0 6449820 DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: PART V, LINE 4: THE INTENDED USE OF THE ORGANIZATION'S ENDOWMENT FUNDS IS TO SUPPORT THE WORK OF THE ED & SERVICE (INFORMATION & REFERRAL SERVICE PROGRAM). DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: PART X, LINE 2: THE ASSOCIATION HAS NO UNCERTAIN TAX POSITIONS AS OF FEBRUARY 28, 2013 AND FEBRUARY 29, 2012 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. THE ASSOCIATION IS NO LONGER SUBJECT TO FEDERAL OR STATE AND LOCAL TAX EXAMINATIONS BY TAX AUTHORITIES FOR YEARS ENDED BEFORE 2010. 1 NORTH AMERICA, CANADA 0 0 GRANT RECIPIENT NIH RESEARCH 29518 SOUTH AMERICA 0 0 GRANT RECIPIENT RESEARCH 100000 ISRAEL 0 0 GRANT RECIPIENT NIH RESEARCH 60000 ENGLAND 0 0 GRANT RECIPIENT RESEARCH 223962 0 0 0 0 0 0 413480 0 413480 ISRAEL RESEARCH GRANT 60000 CHECK SOUTH AMERICA RESEARCH GRANT 100000 CHECK ENGLAND RESEARCH GRANT 74959 CHECK ENGLAND RESEARCH GRANT 149003 CHECK NORTH AMERICA NIH GRANT - RESEARCH 29518 CHECK 0 0 0 0 0 0 PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: SCHEDULE F, PART I, LINE 2: TSA MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. DINNER DANCE/JOURNALS 1111921 1024421 87500 66386 16450 15638 GOLF TOURNAMENTS 802811 535221 267590 254855 20000 77211 2 346132 143620 202512 107062 2260864 1703262 557602 254855 86386 16450 199911 557602 0 1 JOHN HOPKINS UNIVERSITY OFFICE OF RESEARCH ADMIN 720 RUTLAND AVE BALTIMORE MD 212052196 520595110 501(C)(3) 32866 NIH GRANT - RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA UNIV OF CALIFORNIA - LA 10920 WILSHIRE BLVD STE 1200 LOS ANGELES CA 90095 956006143 501(C)(3) 77459 NIH GRANT - RESEARCH THE UNIVERSITY OF CHICAGO 970 EAST 58TH ST CHICAGO IL 60637 362177139 501(C)(3) 15757 NIH GRANT - RESEARCH THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN 21 N PARK STREET SUITE 6401 MADISON WI 53715 396006492 501(C)(3) 149985 RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA UCSD CASHIERS OFFICE 9500 GILAM DRIVE LA JOLLA CA 920930009 956006144 501(C)(3) 75000 RESEARCH THE UNIVERSITY OF ALABAMA AT BIRMINGHAM CONTRACTS AND GRANTS ACCOUNTING 1530 3RD AVENUE S AB 990 BIRMINGHAM AL 35294 416007513 501(C)(3) 150000 RESEARCH THE UNIVERSITY OF CA-SAN FRANCISCO UCSF CONTROLLERS OFFICE 1855 FOLSOM STREET MCB 425 BOX 0897 SAN FRANCISCO CA 94143 946036493 501(C)(3) 57716 RESEARCH WASHINGTON UNIVERSITY 700 ROSEDALE CAMPUS BOX 1034 ST LOUIS MO 631121408 430653611 501(C)(3) 39997 RESEARCH YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 065081873 060646973 501(C)(3) 39998 RESEARCH 9 0 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: TSA MUST RECEIVE A FINAL PROGRESS REPORT DESCRIBING RESEARCH AND OUTCOMES AS WELL AS HOW FUNDS HAVE BEEN USED. ADVISORY BOARDS REVIEW AND APPROVE BEFORE FINAL PAYMENT IS MADE. X X X 0 0 0 0 0 0 0 0 0 JUDIT UNGAR 279251 0 0 0 81288 0 50585 0 0 0 411124 0 0 0 FORM 990, PART VI, SECTION A, LINE 6 THE IS A MEMBERSHIP ORGANIZATION. FORM 990, PART VI, SECTION A, LINE 7A CLASS OF MEMBERS, ONLY RIGHTS ARE TO ELECT THE GOVERNING BOARD. FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 IS PROVIDED TO EACH BOARD MEMBER FOR THEIR REVIEW, THE FORM 990 IS ONLY FILED AFTER EACH BOARD MEMBER EITHER FORMALLY APPROVES THE 990 OR OTHERWISE RAISES QUESTIONS DURING A PRESCRIBED TIME PERIOD. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED ANNUALLY BY BOARD MEMBERS. FORM 990, PART VI, SECTION B, LINE 15 THERE IS A PERSONNEL/COMPENSATION COMMITTEE. THE CHAIR ASSIGNS THE MEMBERS TO DO RESEARCH AND COME UP WITH RECOMMENDATIONS TO THE COMMITTEE. THE CHAIRMAN TAKES THE AMOUNTS TO THE FULL BOARD FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 FINANCIAL STATEMENTS AND ANNUAL REPORT ARE ON THE WEB. ALL OTHER POLICIES ARE AVAILABLE UPON REQUEST. THE PROCESS OF OVERSEEING THE AUDIT AND SELECTION OF INDEPENDENT ACCOUNTANT FORM 990, PART XI, LINE 2C: HAS NOT BEEN CHANGED FROM PRIOR YEAR.