2014-11-17T12:09:55-06:00 2014-06-30 930900579 MCDONALD JACOBS PC 520 SW YAMHILL ST STE 500 PORTLAND OR 97204 990 2013-07-01 930571472 NATIONAL PSORIASIS FOUNDATION NATI 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 RANDY BERANEK PRESIDENT/CEO 5032447404 2014-10-17 1 SANG AHN P00540880 5032270581 2013 2015-11-30 17:44:51Z RANDY BERANEK 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 10382498 0 X WWW.PSORIASIS.ORG X 1968 OR TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED. 12 12 56 8360 602111 -500 6743692 8404896 672786 665631 277184 363271 -134118 -208187 7559544 9225611 1463175 1806264 0 0 3585051 3969545 27384 36501 1177000 2595758 3280315 7671368 9092625 -111824 132986 7393252 7766193 499099 538338 6894153 7227855 X THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE. 0 0 3396982 1806264 63520 RESEARCH AND PROFESSIONAL EDUCATIONDIRECTLY SUPPORTING THIRTEEN PROMISING EARLY-STAGE RESEARCH AND EMERGING RESEARCHERS THROUGH OUR DISCOVERY AND TRANSLATIONAL GRANTS. AWARDED THIRTEEN MEDICAL RESEARCH FELLOWSHIPS DESIGNED TO INCREASE THE NUMBER OF PHYSICIAN RESEARCHERS INVESTIGATING PSORIATIC DISEASES, LEADING TO MORE DISCOVERIES, BETTER TREATMENTS AND ULTIMATELY, A CURE. MORE THAN $11.3 MILLION HAS BEEN COMMITTED TO RESEARCH SINCE OUR INCEPTION.HOSTED PROFESSIONAL EDUCATION FOR MEDICAL PROFESSIONALS AND DERMATOLOGY RESIDENTS TO LEARN ABOUT THE LATEST ADVANCEMENTS IN TREATMENTS AND THE MANAGEMENT OF PSORIASIS.PROMOTED PATIENT INVOLVEMENT IN RESEARCH STUDIES AND CLINICAL TRIALS.CONTINUE TO COLLECT AND PROVIDE SCIENTISTS WITH DNA SAMPLES THROUGH THE NATIONAL PSORIASIS VICTOR HENSCHEL BIOBANK, AIDING IN THEIR SEARCH FOR SPECIFIC GENES THAT CAUSE PSORIASIS AND PSORIATIC ARTHRITIS.PUBLISHED PSORIASIS FORUM, A PEER-REVIEWED MEDICAL JOURNAL TO PROVIDE RHEUMATOLOGISTS, DERMATOLOGISTS AND OTHER MEDICAL PROFESSIONALS WITH THE LATEST RESEARCH AND TREATMENT INFORMATION.LEAD DISCUSSIONS WITH HEALTH POLICY AND REGULATORY GROUPS TO IMPROVE HEALTH OUTCOMES MEASURES AND REMOVE BARRIERS TO CARE. 842910 ADVOCACYTHE FOUNDATION'S ADVOCACY PRIORITIES ARE FOCUSED ON STRATEGIES THAT PROMOTE FEDERAL RESEARCH EFFORTS AND ENSURE INDIVIDUALS LIVING WITH PSORIATIC DISEASES HAVE FAIR AND AFFORDABLE ACCESS TO NEEDED TREATMENTS. HARNESSING THE COLLECTIVE EFFORTS OF TENS OF THOUSANDS OF ADVOCATES, THE PSORIASIS FOUNDATION WORKED TO: MAKE INSURANCE MORE FAIR AND AFFORDABLE AND HELP IMPROVE COVERAGE FOR PEOPLE WITH PSORIATIC DISEASE, HELP SET PUBLIC HEALTH POLICY FOR PSORIASIS AND PSORIATIC ARTHRITIS THROUGH THE FINDINGS FROM DATA COLLECTION AT THE CENTERS FOR DISEASE CONTROL (CDC), WORKED TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSORIATIC ARTHRITIS TREATMENTS, AND INCREASE FEDERAL FUNDING FOR PSORIASIS AND PSORIATIC ARTHRITIS RESEARCH IN ORDER TO FIND BETTER TREATMENTS AND A CURE. 3117906 12195 EDUCATION, OUTREACH AND PATIENT SERVICESPUBLISHED INFORMATION ON LIVING WELL WITH PSORIATIC DISEASES, AS WELL AS THE LATEST SCIENCE AND TREATMENT UPDATES FOR SOME 165,000 READERS OF PSORIASIS ADVANCE MAGAZINE AND OTHER PRINT PUBLICATIONS.PROVIDED COMPREHENSIVE RESOURCES AT WWW.PSORIASIS.ORG AND OTHER SITES FOR MORE THAN 4.2 MILLION VISITORS, INCLUDING MORE THAN 1.7 MILLION WHO CONNECTED THROUGH OUR ONLINE COMMUNITIES AND SOCIAL MEDIA.SENT EDUCATIONAL E-NEWSLETTERS TO MORE THAN 270,000 SUBSCRIBERS.HOSTED THE NPF NATIONAL VOLUNTEER LEADERSHIP CONFERENCE WITH 150 ATTENDEES.HOSTED 22 MORE THAN SKIN DEEP AND SIX BE JOINT SMART EDUCATIONAL EVENTS ATTRACTING MORE THAN 1,160 PARTICIPANTS.HOSTED TEN WEBINARS TO PROVIDE NEARLY 5,200 VIEWERS WITH DETAILED INFORMATION FROM LEADING EXPERTS ON SPECIFIC ASPECTS OF PSORIATIC DISEASES.PROVIDED SUPPORT AND INFORMATION FOR NEARLY 2,500 THROUGH ONE TO ONE MENTOR PROGRAM AND DIRECT RESPONSES TO INDIVIDUAL REQUESTS FOR INFORMATION ON HEALTH, TREATMENT, INSURANCE AND OTHER RELATED ISSUES. 7357798 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 0 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 45 0 56 1 1 1 0 0 0 0 1 1 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X BETTE DRAKE 5032447404 6600 SW 92ND AVENUE NO 300 PORTLAND OR 97223 DANIEL E FARRINGTON IMMEDIATE PAST CHAIR 1.00 X X 0 0 0 KRISTA KELLOGG CHAIR 1.00 X X 0 0 0 COLBY EVANS MD CHAIR-ELECT 1.00 X X 0 0 0 PETE REDDING VICE-CHAIR 1.00 X X 0 0 0 CHIP NEWTON TREASURER 1.00 X X 0 0 0 TERRI THEISEN SECRETARY 1.00 X X 0 0 0 STEVE BISHKOFF TRUSTEE 1.00 X 0 0 0 KATHLEEN GALLANT TRUSTEE 1.00 X 0 0 0 HOLLY FIELDS KRAFSUR TRUSTEE 1.00 X 0 0 0 SARAH KURTS PA-C TRUSTEE 1.00 X 0 0 0 MIKE LAUB TRUSTEE 1.00 X 0 0 0 CAROL OSTROW TRUSTEE 1.00 X 0 0 0 RON GRAU TRUSTEE 1.00 X 0 0 0 RANDY BERANEK PRESIDENT/CEO 40.00 X 265440 0 21293 WILLIAM CARDAMON CHIEF FIELD SVC OFFICER 40.00 X 200825 0 21417 SALLY NORBY DIRECTOR OF TRAINING & ORGANIZATIONAL DEVELOPMENT 40.00 X 107052 0 17333 ANDREW ROBERTSON CHIEF SCIENTIFIC AND MEDICAL OFFICER 40.00 X 177830 0 17789 LEAH HOWARD DIRECTOR OF GOVERNMENT RELATIONS AND ADVOCACY 40.00 X 103534 0 6294 CATHERINE COMAN VICE PRESIDENT OF MARKETING & COMMUNICATIONS 40.00 X 117849 0 14224 972530 0 98350 6 0 1 0 SMART BUSINESS NETWORK INC 835 SHARON DRIVE STE 200 CLEVELAND OH 44145 PUBLICATION DEVELOPMENT AND DISTRIBUTION 209011 CLINICA HEALTH DBA INSPIRE 66 WITHERSPOON ST STE 402 PRINCETON NJ 08540 SURVEY AND ANALYSIS 150625 DRINKER BIDDLE REATH LLP ONE LOGAN SQUARE SUITE 2000 PHILIDELPHIA PA 19103 CONSULTING 118245 3 83977 2152093 6168826 211295 8404896 ADVERTISING INCOME 541800 602111 602111 EDUCATION CONFERENCES 532000 61270 61270 CONFERENCE REGISTRATION 611710 2250 2250 665631 84661 84661 1208690 930080 278610 278610 278610 0 2152093 220382 -220382 -220382 18620 6425 12195 12195 9225611 75715 602111 142889 X 1731264 1731264 75000 75000 512110 400613 35761 75736 2604678 2037584 181888 385206 105184 82283 7345 15556 493720 386227 34477 73016 253853 198584 17727 37542 46099 40309 2960 2830 147276 147276 36501 36501 956373 849670 73205 33498 30762 36885 -6123 632895 353446 66045 213404 267834 207026 21669 39139 537635 303232 91875 142528 446271 400989 17911 27371 21771 17031 1520 3220 38322 29979 2676 5667 SPECIAL EVENTS 53523 53523 DUES & SUBSCRIPTIONS 43566 25578 1017 16971 BAD DEBT 28834 11000 17834 STAFF EDUCATION & TRAIN 17075 14814 701 1560 12079 9008 1050 2021 9092625 7357798 557827 1177000 X 187952 108558 0 79394 81475 95102 1339286 353364 1051609 2009542 180491 144140 21585 31743 182247 115835 577719 541015 34198 36704 4476414 4947706 25947 32057 7393252 7766193 439659 449512 53675 14324 5765 74502 499099 538338 X 5064501 4552220 1829652 2675635 6894153 7227855 7393252 7766193 132986 200716 0 X X 0 1 X 1 0 X 5509700 6190828 8320464 6743692 8404896 35169580 5509700 6190828 8320464 6743692 8404896 35169580 11039434 24130146 73409 82130 82622 84774 84661 407596 35577176 0.67820 0.65020 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 34188 323628 357816 7557809 7915625 545781 136445 0 0 496550 477977 477188 545781 1997496 2996244 456996 354968 361373 357816 1531153 124138 119494 119297 136445 499374 749061 13135 18016 28318 34188 93657 4839410 350615 513960 285000 5418985 4433255 506647 159508 260000 4839410 2578880 1872185 72190 90000 4433255 2193590 288450 202725 105885 2578880 431146 1749437 13007 2193590 1.00000 0 0 562022 528630 33392 15697 12385 3312 36704 DEFERRED RENT 74502 74502 9432752 200716 6425 207141 9225611 0 9225611 9099050 6425 6425 9092625 0 9092625 PART V, LINE 4: THE ENDOWMENT WILL BE USED FOR SUPPORT OF THE ORGANIZATION'S EXEMPT PURPOSE, LIMITED TO FIVE PERCENT OF PRINCIPAL PER YEAR, AS WELL AS SUBJECT TO APPROVAL. PART XI, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 6,425. PART XII, LINE 2D - OTHER ADJUSTMENTS: COST OF SALES 6,425. 1 EUROPE (INCLUDING ICELAND & GREENLAND) GRANTS TO RECIPIENTS RESEARCH 75000 0 0 0 0 0 0 75000 0 75000 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 75000 CHECK COST 0 1 0 0 0 0 0 0 PART I, LINE 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE CHIEF SCIENCE AND MEDICAL OFFICER OF THE NATIONAL PSORIASIS FOUNDATION. X X X X X X 1 ARIA COMMUNICATIONS 717 WEST ST GERMAIN STREET ST CLOUD MN 56301 12 MONTH PHONE CAMPAIGN, FROM MAY 2013 TO APRIL 2014 0 61098 26154 34944 61098 26154 34944 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY WALK FOR A CURE 1293776 1293776 74986 1020 25736 COMMIT TO CURE GALA 595839 595839 112881 1830 3978 1889615 1889615 187867 2850 29714 220431 -220431 SCHEDULE G, PART I, LINE 2B, COLUMN (V) THE AGREEMENT WITH FUNDRAISER PROVIDED THAT POSTAGE AND PRINTING WERE PAID SEPARATELY FROM OTHER FEES, IN THE AMOUNT OF $10,346. ENTIRE AMOUNT PAID TO FUNDRAISER IS LISTED ABOVE. 1 CASE WESTERN RESERVE UNIVERSITY CWRU 10900 EUCLID AVE CLEVELAND OH 44106 341018992 501(C)(3) 225000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST RM P-221 PHILADELPHIA PA 19104 231352685 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS BAYLOR RESEARCH INSTITUTE 3310 LOVE OAK STE 501 DALLAS TX 75204 751921898 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS UNIVERSITY OF UTAH 30 N 1900 E 4A330 SCHOOL OF MEDICINE SALT LAKE CITY UT 84132 876000525 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO 9500 GILMAN DR 0041 LA JOLLA CA 92093 956006144 501(C)(3) 100000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS TUFTS MEDICAL CENTER 200 HARRISON AVE BOSTON MA 02111 042103634 501(C)(3) 100000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS UNIVERSITY HOSPITALS OF CLEVELAND PO BOX 74420 CLEVELAND OH 44194 341567805 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS MOUNT SINAI SCHOOL OF MEDICINE 5 EAST 98TH ST BOX 1048 NEW YORK NY 10029 136171197 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS NORTHWESTERN UNIVERSITY 633 CLARK ST EVANSTON IL 60208 362167817 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS MASS GENERAL HOSPITALHARVARD MEDICAL SCHOOL MGH DEVELOPMENT OFFICE 100 CAMBRIDGE ST STE 1310 BOSTON MA 02114 041564655 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS WARREN ALPERT MEDICAL SCHOOL OF BROWN UNIVERSITY 220 RICHMOND ST PROVIDENCE RI 02903 050258809 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS UNIVERSITH OF COLORADO DENVER PO BOX 910238 DENVER CO 80291 846000555 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS UNIVERSITY OF CALIFORNIA DAVIS 1850 RESEARCH PARK DR STE 300 DAVISC CA 95618 946036494 501(C)(3) 50000 RESEARCH IN ORDER TO IMPROVE DIAGNOSOS AND TREATMENT, AND EVENTUALLY CURE PS THE REGENTS OF THE UNIVERSITY OF CALIFORNIA UCSF 1855 FOLSOM ST STE 425 SAN FRANCISCO CA 94143 946036493 501(C)(3) 250000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE PO BOX 41428 BALTIMORE MD 21203 526002033 501(C)(3) 75000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS UNIVERSITY OF ROCHESTER SCHOOL OF MEDICINE 910 GENEESE ST STE 200 ROCHESTER NY 14611 160746209 501(C)(3) 75000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS HARVARD MEDICAL SCHOOL PO BOX 3887 BOSTON MA 02241 042312909 501(C)(3) 75000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS ROCKEFELLER UNIVERSITY 1230 YORK AVE BOX 259 NEW YORK NY 10065 131624158 501(C)(3) 75000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS NATIONAL CANCER INST NIH BUILDING 31 ROOM 11A-16 9000 ROCKVILLE PIKE BETHESDA MD 20892 530196960 501(C)(3) 75000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS PITTSBURGH MEDICAL CENTER PO BOX 371220 PITTSBURGH PA 15251 250965591 501(C)(3) 75000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS HARVARD UNIVERSITY PO BOX 415649 BOSTON MA 02241 042103580 501(C)(3) 100000 RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PS 21 0 PART I, LINE 2: GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE CHIEF SCIENCE AND MEDICAL OFFICER OF THE NATIONAL PSORIASIS FOUNDATION. X X X 0 0 0 0 0 0 0 0 0 RANDY BERANEK PRESIDENT/CEO 236190 0 29250 0 0 0 11808 0 9485 0 286733 0 0 0 WILLIAM CARDAMON CHIEF FIELD SVC OFFICER 196854 0 3971 0 0 0 9984 0 11433 0 222242 0 0 0 ANDREW ROBERTSON CHIEF SCIENTIFIC AND MEDICAL OFFICER 174330 0 3500 0 0 0 8750 0 9039 0 195619 0 0 0 X 13 211295 SALE PRICE 0 1 1 PART I, LINE 32B: THE ORGANIZATION USES AN OUTSIDE COMPANY THAT RECEIVES DONATED AUTOMOBILES AND SELLS THEM ON BEHALF OF THE ORGANIZATION. FORM 990, PART VI, SECTION B, LINE 11 THE FORM 990 IS EMAILED TO ALL BOARD MEMBERS FOR THEIR REVIEW PRIOR TO ITS BEING FILED ELECTRONICALLY WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST POLICY IS SIGNED BY ALL TRUSTEES ANNUALLY. ALL TRUSTEES AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF TRUSTEES ANNUALLY REVIEWS AND APPROVES THE CEO'S COMPENSATION. THE FOUNDATION UTILIZES AN INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY FOR COMPARABLE INFORMAITON FOR SALARIES. WE HAVE A CONFLICT OF INTEREST POLICY THAT IS SIGNED BY ALL TRUSTEES ANUALLY. ALL TRUSTEES AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AUDTIED FINANCIAL STATEMENTS ARE ALSO DISPLAYED ON THE WEBSITE. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 849,670. MANAGEMENT AND GENERAL EXPENSES 73,205. FUNDRAISING EXPENSES 33,498. TOTAL EXPENSES 956,373. FORM 990, PART XII, LINE 2C: PROCESS HAS NOT CHANGED