2014-11-13T12:49:37-06:00 2013-12-31 GRANT THORNTON LLP 666 THIRD AVENUE NEW YORK NY 100174057 990 2013-01-01 136193105 Crohn's & Colitis Foundation of America Inc % RONALD GOLDSMAN CROH 2126853440 733 Third Avenue Suite 510 New York NY 10017 Ronald Goldsman Controller 2125990100 2014-11-13 true Scott Thompsett P00741490 2125990100 2013 2015-11-30 17:44:51Z richard geswell 733 Third Avenue new york NY 10017 63739145 false X www.ccfa.org X 1965 NY To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. 21 21 379 4300 0 0 49808240 52916365 273683 284995 712453 280895 768556 937733 51562932 54419988 16343303 16592814 0 0 20314221 21164340 250091 299269 4895199 14482965 15250649 51390580 53307072 172352 1112916 23659097 26203655 17258496 17088116 6400601 9115539 X FOR OVER FOUR DECADES, THE CROHN'S & COLITIS FOUNDATION ("CCFA") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. CCFA HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS AND SEEDING THE FIELD WITH GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD"). false false 23298491 16592814 0 Research - Since its inception, CCFA has been at the forefront of medical research in Crohn's disease and ulcerative colitis -collectively known as inflammatory bowel disease (IBD). There are two main research categories. Basic research explores the scientific foundations of the diseases. It answers such questions as: What is the underlying cause of Crohn's and colitis? Which genes are involved in these diseases? Although basic research is complex and can be difficult for laypersons to understand, these studies will ultimately lead to the cure for IBD. Clinical research determines which medical and surgical options work best for patients. - CCFA HAS PLAYED A SIGNIFICANT ROLE IN MANY MAJOR SCIENTIFIC BREAKTHROUGHS IN IBD, FROM GENERATING DATA THAT LED TO NEW THERAPIES TO THE DISCOVERY OF THE FIRST GENE FOR CROHN'S. - CCFA invests in human resources: It takes 10 years to "build" a full-fledged, senior investigator. To make sure that the most talented researchers enter and remain in the field of IBD, CCFA provides research training awards to develop the next generation of investigators. Many of today's most prominent researchers received training awards from CCFA early in their careers. - CCFA sets the research agenda: CCFA brings together the finest minds in the international scientific community (both basic and clinical) to develop and update our strategic plan for research "Challenges in IBD Research". - CCFA SUPPORTS INNOVATIVE AND ESSENTIAL RESEARCH IN THE FIELD OF IBD. SINCE ITS INCEPTION IN 1967, CCFA HAS FUNDED NEARLY 1,400 PROJECTS AND INVESTED $203 MILLION IN RESEARCH. A 2013 REPORT SHOWED THAT CCFA-FUNDED GRANTEES HAVE RECEIVED NEARLY $2.9 BILLION IN FUNDING FROM THE UNITED STATES NATIONAL INSTITUTES OF HEALTH. THIS FIGURE REPRESENTS A RETURN ON INVESTMENT OF 7.5 FEDERAL AWARDS PER CCFA-SPONSORED PROJECT. - CCFA-SPONSORED GRANTEES HAVE ALSO RECEIVED FUNDING FROM INTERNATIONALLY RENOWNED ORGANIZATIONS INCLUDING 25 DIVISIONS OF THE UNITED STATES NATIONAL INSTITUTES OF HEALTH, THE JOHN D. AND CATHERINE MACARTHUR FOUNDATION, THE LEONA M. AND HARRY B. HELMSLEY CHARITABLE TRUST AND THE BILL AND MELINDA GATES FOUNDATION. - CCFA HAS INVESTED $8.3 MILLION ON PROJECTS CONDUCTED IN FOURTEEN NATIONS OUTSIDE THE UNITED STATES. - CCFA TRAINING AWARD RECIPIENTS HAVE SUCCESSFULLY USED THEIR PROJECTS AS A LAUNCH PAD FOR SUCCESSFUL CAREERS IN IBD RESEARCH. FOR EXAMPLE, CCFA'S $29 MILLION COMMITMENT TO CAREER DEVELOPMENT AWARDEES HAS RESULTED IN $158 MILLION IN FEDERAL SUPPORT. 18255285 0 284995 CCFA provides information and education in an effort to reach the more than 1.6 million IBD patients and their families through a variety of periodicals (Take Charge, Under the Microscope), books, awareness campaigns, local chapters, its Webcasts, and through its website. CCFA also reaches its many members with exclusive mailings. CCFA also offers professional education on Inflammatory Bowel Diseases, its IBD journal, and health professional workshops. Revenues reported as program service revenue of $284,995 represents camp registration fees for workshops/camp programs run for children and families affected by either crohn's disease or colitis. CCFA support services are delivered through its chapters nationwide which offer more than 300 support groups annually, summer camps for children with IBD, and a range of educational and training programs for local communities. Read more about CCFA's chapters on its website, www.ccfa.org, or view its webcasts. 41553776 true true false true false false false false false false true false false false true true true false false false true false false true true true false true false true false false false false false false false true true false false false false false false false false true 614 0 true 379 true false false false false false true true false false false false X 21 21 true false false false false false false true true false true true true true true true true true true false false AL AK AZ AR CA CO CT DC FL HI KS LA ME MD MA MI MN MS NH NM NY OK PA TN UT VA WA WV WI X X RONALD GOLDSMAN 2126853440 733 THIRD AVENUE NEW YORK NY 100178804 Richard Geswell non-voting President 35.0 X X 521795 49646 Paul Salerno Treasurer 6.0 X X 0 0 Lloyd Mayer MD Trustee (thru 9/2013) 6.0 X 0 0 Irwin Rosenthal Trustee 6.0 X 0 0 Suzanne Rosenthal Trustee (thru 2/2013) 6.0 X 0 0 Shelby Modell Trustee 6.0 X 0 0 Maura Breen Chairman 6.0 X X 0 0 David Alberga Trustee 6.0 X 0 0 Jennifer Feikin Trustee 6.0 X 0 0 Lawrence Finkelstein Trustee 6.0 X 0 0 Vance Gibbs Esquire General Counsel & Secretary 6.0 X X 0 0 Steve Goodman Trustee 6.0 X 0 0 John Hasenauer Trustee 6.0 X 0 0 David levenson Trustee 6.0 X 0 0 Joel Margolese Trustee 6.0 X 0 0 Jeffrey Margolis Trustee 6.0 X 0 0 Jeffrey Nedelman Trustee 6.0 X 0 0 Michele Rubin APN CNS CGRN Trustee 6.0 X 0 0 Francisco Sylvester MD Trustee 6.0 X 0 0 Paul Tartell MD Trustee 6.0 X 0 0 Donald Burke Trustee 6.0 X John Crosson Trustee 6.0 X Matt Leavitt Trustee 6.0 X 0 0 james lewis trustee 6.0 X 0 0 0 Robert Territo cfo/coo 35.0 X 196068 8254 Judith Brown Chief development officer 35.0 X 229760 33705 Marie Granieri chief of staff 35.0 X 177535 8796 Kathleen Boggan SVP, volunteer & Chapter mgmt 35.0 X 214062 13269 michael Osso chief business dvlp officer 35.0 X 190967 1754 Kimberly Frederick-snapper sr reg. director, NEw england 35.0 X 166293 11576 Craig Comins National Dir. Team Challenge 35.0 X 147769 14092 Anthony Leon Director of Information Tech. 35.0 X 140812 19810 Erin Mulvey Stoeber Director of Marketing & Comm. 35.0 X 149050 7143 Paula Howell national dir. of take steps 35.0 X 149800 8804 2283911 0 176849 33 false true false direct print communications 201 E SANDPOINTE suite 400 SANTA ANA CA 92707 printing 1266462 Blackbaud Po box 930256 ATLANTA GA 311930256 donor database 820810 convio inc 2000 daniel island drive CHARLESTON SC 294927541 website hosting 616513 Competitor group inc 9477 waples street suite 150 SAN DIEGO CA 92121 marketing 586887 Robert Michael Educational Institut 101 laurel road suite 200 VOORHEES NJ 080432368 educational services 419988 21 X 1508887 25362729 354502 25690247 853787 52916365 EDUCATION & CAMP REGISTRATION FEES 900099 284995 284995 284995 119148 119148 0 604378 604378 0 0 0 2060380 1898633 161747 161747 161747 7048651 25362729 7346149 -297498 -297498 371873 74375 297498 297498 0 IBD JOURNAL SUBSIDY 900099 225000 225000 SETTLEMENT PROCEEDS 900099 70000 70000 MISCELLANEOUS 900099 38355 38355 333355 54419988 284995 1218628 16592814 16592814 0 0 0 1645612 1087301 332097 226214 0 15191675 10037558 3065793 2088324 314958 208101 63561 43296 2651668 1752030 535126 364512 1360427 898872 274544 187011 0 88089 71495 9388 7206 105290 85456 11220 8614 71136 71136 299269 299269 0 4405416 3876156 437831 91429 1223856 797945 240950 184961 1897599 1240311 371847 285441 1049184 768810 158616 121758 0 1607210 1047258 316781 243171 1863016 1328272 302520 232224 0 180718 180718 0 0 341032 255838 48197 36997 281514 183866 55242 42406 PUBLICATIONS 1288377 840542 253353 194482 GRANTS REFUNDED/RESCINDED -730404 -730404 LIST RENTAL FEES 606538 396150 119023 91365 PROV FOR DOUBTFUL ACCTS 136998 89268 27002 20728 835080 545419 163870 125791 53307072 41553776 6858097 4895199 0 0 3988534 3229003 6719202 6458007 0 0 0 0 0 0 0 0 0 0 1503799 1750928 4238700 2156868 909936 2081832 9800921 10995312 0 1019030 0 0 0 0 736705 669543 23659097 26203655 1822728 2175424 14431955 13742189 500000 465050 0 0 0 0 0 0 0 0 0 0 503813 705453 17258496 17088116 X -822331 1342935 7222932 7772604 0 0 6400601 9115539 23659097 26203655 X 1112916 1565894 36128 X false true X true false X 13419858 43742531 49476219 49808240 52916365 209363213 0 0 13419858 43742531 49476219 49808240 52916365 209363213 29146191 180217022 220831 588755 802238 780816 723526 3116166 0 13745 6130 0 0 19875 1176967 5643836 6614989 7552953 7753879 28742624 241241878 1653839 0.74704 0.69042 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false true false false true 58203 false true 71136 129339 false Schedule C, Part II-B, Line 1(i) The Crohn's & Colitis Foundation of America, Inc. (CCFA) pays the Health and Medicine Counsel of Washington D.C. to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. (Total amount paid in 2013 was $71,136). It should be noted that the Health and Medicine Counsel of Washington is a healthcare advocacy group that may lobby on behalf of healthcare organizations; however, it is not paid to directly undertake any lobbying activities on behalf of CCFA. CCFA holds a "Day on the Hill" event every year, in which patients suffering with Crohn's disease volunteer to travel to Washington D.C. to discuss proposed healthcare bills with legislators. The "Day on the Hill" event was conducted during the calendar year 2013, for which expenses incurred were approximately $58,203. Expenditures of $58,203 for the Day on the Hill of event have been reported on Schedule C, Part II-B, 1(g). Included within the $58,203 are expenses incurred for mailings made to members, legislators or the public (line 1(d)); accordingly the Foundation has marked box 1(d) yes, but not reported an expense on that line (to avoid double-counting). 440645 22104 418541 1668044 1634430 33614 2130011 500334 1629677 2081832 0 REINSURANCE CONTRACTS 351834 DEFERRED RENT 177269 CAPITAL LEASE OBLIGATION 176350 705453 X 67299888 1565894 11277878 36128 12879900 54419988 54419988 64584950 11277878 11277878 53307072 53307072 Part XI, Line 2d Changes in gift annuities valuations: $36,128 Part X Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and meaurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The tax years ending 2010, 2011, 2012 and 2013 are still open to audit for both federal and state purposes. The adoption of this guidance did not have an impact on the Foundation's financial statements as management believes that there are no uncertain tax positions within its financial statements. Europe (Including Iceland and Greenland) Fundraising 38734 38734 38734 false false false false false false Schedule F, Part I The Crohn's & Colitis Foundation of America participated in two special event activities in the European Region in 2013. Revenues from that activity totaled $132,642; expenditures totaled $38,734 (as reported in Part I, Line 3(f)). X X X X X X X true sanky communication direct mail false 3402597 259259 3143338 infocision management corp tele- marketing false 81932 40010 41922 3484529 299269 3185260 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY take steps 10614796 9471104 1143692 410720 732978 team challenge 9234984 6131806 3103178 1668176 1435002 77 12561600 9759819 2801781 2266105 833168 32411380 25362729 7048651 4345001 3001148 7346149 -297498 false false 371873 74375 false 371873 74375 74375 297498 CA FL GA MN MO NJ NY NC OH OR PA TX true false false false 1.00000 Ronald Goldsman 733 Third Avenue Suite 510 New York NY 10017 false See part IV 0 none false Schedule G, Part III - Gaming Activities The Crohn's & Colitis Foundation of America, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own special event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only seven chapters held raffles: California, Florida, Georgia, Minnesota, Missouri, North Carolina, New Jersey, New York, Ohio, Oregon, Pennsylvania, and Texas. true Beth Israel Deaconess Medical Center 312 14th Street Lincoln NE 685880430 470049123 501(c)(3) 89911 Research Board of Regents of the University of Nebraska Un 75 Francis Street Boston MA 02115 042312909 501(c)(3) 90000 Research Brigham and Women's Hospital Inc 77 Avenue Louis Pasteur Boston MA 02115 620476822 501(c)(3) 322330 Research Broad Institute Inc 75 Francis Street Boston MA 02115 042312909 501(c)(3) 750000 Research California Institute of Technology The University of Texas MD Anderson Houston TX 77030 174556001 501(c)(3) 58250 Research Case Western Reserve University School of Medicine 10900 Euclid Avenue Cleveland OH 44106 175600286 501(c)(3) 58250 Research Cedars-Sinai Medical Center 1200 E California Blvd Pasadena CA 91125 341018992 501(c)(3) 252740 Research Children's Hospital & Research Center Oakland 8700 Beverly Blvd Los Angeles CA 90048 195165290 501(c)(3) 115830 Research Children's Hospital Boston 300 Longwood Avenue Boston MA 02115 430653611 501(c)(3) 347901 Research Children's Hospital Los Angeles 4650 Sunset Boulevard Los Angeles CA 90027 566001393 501(c)(3) 290565 Research Cincinnati Children's Hospital Medical Center - Re 3333 Burnet Ave Cincinnati OH 45229 951690977 501(c)(3) 321660 Research Cleveland Clinic Foundation 9500 Euclid Avenue Cleveland OH 44195 430653611 501(c)(3) 118330 Research Connecticut Children's Medical Center 4650 Sunset Blvd Los Angeles CA 90027 951690977 501(c)(3) 40000 Research Dartmouth Medical School One Medical Center Drive Lebanon NH 03756 846000555 501(c)(3) 82354 Research Duke University Medical Center C338 LSRC Research Drive Durham NC 27710 060646973 501(c)(3) 166939 Research Emory University 201 Dowmna dr 1599 Clifton Road NE 4th Floor Atlanta GA 30322 158056625 501(c)(3) 1664386 Research Georgia State University PO Box 935084 Atlanta GA 311935084 158056625 501(c)(3) 116500 Research Harvard Medical School University of Pittsburgh Research/C Pittsburgh PA 152517220 125096559 501(c)(3) 148250 Research Harvard University School of Public Health 665 Huntington Avenue Boston MA 02115 846000555 501(c)(3) 290296 Research Icahn School of Medicine at Mount Sinai Office of Research Grants and Contr Dallas TX 753909105 756002868 501(c)(3) 877248 Research Johns Hopkins University Research Financial Services PO Bo Atlanta GA 303023999 586002050 501(c)(3) 166430 Research Keystone Symposia on Molecular and Cellular Biolog 160 US Highway 6 Silverthorne CO 80498 430653611 501(c)(3) 6000 Research La Jolla Institute for Allergy & Immunology PO Box 405803 Atlanta GA 303845803 590624458 501(c)(3) 148250 Research Massachusetts General Hospital (The General Hospit 55 Fruit Street Boston MA 02114 430653611 501(c)(3) 144220 Research Mayo Clinic 677 Huntington Avenue Boston MA 02115 042103580 501(c)(3) 174080 Research NASPGHAN Foundation National Office 3350 La Jolla Village Drive 151A San Diego CA 92161 133018939 501(c)(3) 75000 Research National Cancer Institute One Gustave L Levy Place New York NY 100296574 111361711 501(c)(3) 128700 Research National Institute of Allergy and Infectious Disea 4 Center Drive Betheseda MD 20892 846000555 501(c)(3) 89500 Research New York University School of Medicine One Gustave L Levy Place New York NY 100296574 111361711 501(c)(3) 231660 Research Oklahoma Medical Research Foundation One Gustave L Levy Place New York NY 100296574 111361711 501(c)(3) 57921 Research Oregon Health & Science University 3930 SW Macadam Ave Portland OR 97239 111361711 501(c)(3) 115830 Research Rhode Island Hospital 593 Eddy Street Providence RI 02903 362177139 501(c)(3) 10000 Research Saint Louis University One Gustave L Levy Place New York NY 100296574 111361711 501(c)(3) 115830 Research Sanford-Burnham Medical Research Institute Johns Hopkins University Central Lo Chicago IL 60693 520595110 501(c)(3) 115830 Research Society for Mucosal Immunology Inc 11950 W Lake Park Dr Milwaukee WI 53224 520595110 501(c)(3) 10000 Research St Jude Children's Research Hospital 60 US Highway 6 Silverthorne CO 80498 841326605 501(c)(3) 115830 Research Stanford University 9420 Athena Circle La Jolla CA 92037 330328688 501(c)(3) 111820 Research SUNY Upstate Medical University 1900 East 10th Street Bloomington IN 47401 361408475 501(c)(3) 231660 Research The Children's Hospital of Philadelphia GI Unit Boston MA 02114 104269798 501(c)(3) 204114 Research The Hospital for Sick Children Division of Gastroe Office of Research Mailbox 9 Richmond VA 232980568 546001758 501(c)(3) 110000 Research The Medical College of Wisconsin Inc 8701 Watertown Plank Rd Milwaukee WI 53226 060646973 501(c)(3) 115830 Research The Regents of the University of California Berke GI Unit Boston MA 02114 104269798 501(c)(3) 115600 Research The Regents of the University of California Los A MRL 1519 675 Charles E Young Dr S Los Angeles CA 90095 566001393 501(c)(3) 66386 Research The Regents of the University of California San D NCIFCRDC Bldg 560 Rm 21-89 Frederick MD 217021201 760585072 501(c)(3) 148250 Research The Regents of the University of California San F 513 Parnassus Avenue San Fransciso CA 94143 113556230 501(c)(3) 310580 Research The Regents of the University of Michigan c/o National City Bank PO Box 931 Cleveland OH 44193 161603369 501(c)(3) 526614 Research The Research Institute at Nationwide Children's Ho Office of Sponsored Programs Fusz M St Louis MO 631083306 143065487 501(c)(3) 75000 Research The Rockefeller University 11950 West Lake Park Drive Milwaukee WI 53224 541419447 501(c)(3) 231660 Research The Trustees of the University of Pennsylvania 421 Curie Boulevard Philadelphia PA 19104 756002868 501(c)(3) 168250 Research The University of Alabama at Birmingham 1825 University Boulevard Birmingham AL 35294 430653611 501(c)(3) 607107 Research The University of Chicago 660 South Euclid Avenue Chicago IL 60637 566001393 501(c)(3) 177330 Research The University of North Carolina at Chapel Hill PO Box 405803 Atlanta GA 303845803 590624458 501(c)(3) 1059211 RESEARCH The University of Texas Health Science Center at H Regents of the University of Califo La Jolla CA 920930009 956006144 501(c)(3) 84601 RESEARCH Trudeau Institute Inc 154 Algonquin Avenue Saranac Lake NY 12983 430653611 501(c)(3) 115830 Research University of California San Diego - Health Scien 9500 Gillman Drive La Jolla CA 92093 566001393 501(c)(3) 95000 Research University of Colorado Denver AMC and DC 12700 E 19th Avenue Aurora CO 80045 846000555 501(c)(3) 466588 Research University of Colorado Health Sciences Center Room 1054 Wolverine Tower Ann Arbor MI 48109 138600630 501(c)(3) 295830 Research University of Kentucky Research Foundation 201 Kikead Hall Lexington KY 40508 138600630 501(c)(3) 115799 Research University of Miami 1320 S Dixie hwy Coral Gables FL 33124 138600630 501(c)(3) 172872 Research University of Pittsburgh PO Box 6 Flourtown PA 19031 138600630 501(c)(3) 173890 Research University of texas at southwestern medical center 1230 York Avenue Box 259 New York NY 100656399 131624158 501(c)(3) 86729 Research University of Texas MD Anderson Cancer Center 1230 York Avenue Box 259 New York NY 100656399 131624158 501(c)(3) 75395 Research US Food and Drug Administration 10903 New Hampshire Avenue Silver Spring MD 20993 956006144 501(c)(3) 10000 Research UT Southwestern Medical Center 3451 Walnut Street Franklin Buildin Philadelphia PA 19104 276690619 501(c)(3) 321539 Research Vanderbuilt University Medical Center 2215B Garland Avenue Nashville TN 37232 060646973 501(c)(3) 115830 Research Virginia Commonwealth University 821 W Franklin St RickMond VA 23284 636005396 501(c)(3) 116500 Research Washington University in StLouis 660 South Euclid Avenue St Louis MO 63110 125096559 501(c)(3) 820750 Research Washington University School of Medicine St Louis 5801 South Ellis Avenue Chicago IL 60637 362177139 501(c)(3) 347490 Research Yale School of Medicine Office of Sponsored Programs PO B Houston TX 772104786 746000203 501(c)(3) 403943 Research 69 Part I, Line 1 The Crohn's & Colitis Foundation of America, Inc. ("CCFA") is a non-profit organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. Grants are awarded for specific projects for specific research and CCFA requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years and a progress report to the CCFA Board of Directors is required on an annual basis. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated. X X X X X false false false false false false false true false Richard Geswell non-voting President 489795 32000 30000 19646 571441 Judith Brown Chief development officer 217760 12000 28315 5390 263465 Kimberly Frederick-snapper sr reg. director, NEw england 166293 8459 3117 177869 Marie Granieri chief of staff 170535 7000 8501 295 186331 Craig Comins National Dir. Team Challenge 147769 7695 6397 161861 Kathleen Boggan SVP, volunteer & Chapter mgmt 211562 2500 10649 2620 227331 Robert Territo cfo/coo 189068 7000 5000 3254 204322 Anthony Leon Director of Information Tech. 134812 6000 7239 12571 160622 Erin Mulvey Stoeber Director of Marketing & Comm. 143050 6000 7143 156193 michael Osso chief business dvlp officer 190967 1754 192721 Paula Howell national dir. of take steps 149800 5738 3066 158604 Schedule J, part I, line 7 The President's incentive is predicated off of a set of objectives that are developed and updated each year. These objectives include raising revenues, management of expenses, development of regions and related performance, building of infrastructure and maximization of research expenditures. Each area's results are evaluated by the President's Review Committee and the incentive is ultimately determined based on ratings of performance of these objectives. For all other employees, impact awards are given to employees if the individual meets net income and net revenue targets and must be recommended by their supervisor. David Alberga Board Member 290000 See part V false Form 990, Schedule L, Part IV Board of Trustees member, David Alberga, is the President and CEO of Active Network, Inc., an organization that transacts business with the Crohn's & Colitis Foundation of America, Inc. ("CCFA") CCFA uses a website to process online contributions for its special events; this website is affiliated with Active Network, Inc. CCFA paid $290,000 to Active Network Inc. This transaction has been fully disclosed in CCFA's audited financial statements. X 82 853787 Market Price false true true Governing Body and management Part VI, Line 2 Irwin Rosenthal and Suzanne Rosenthal, co-founders of the Crohn's and Colitis Foundation of America, Inc., have a family relationship. Process used to review form 990 Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the Chair of the Audit and Finance Committee members for discussion and comment. A full copy of the 990 is distributed to all Board of Trustees prior to filing. Conflict of Interest Policy Monitoring & Enforcement Part VI, Section B, Line 12 Each officer, director, trustee and key employee of the Crohn's & Colitis Foundation of America, Inc. ("CCFA") is required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with CCFA. CCFA monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately. Process for determining compensation Part VI, section B, Line 15 The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic locations, tenure, mission and other factors help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board using guidelines and comparability data provided in National Compensation Studies of Chief Staff Executives. The Foundation hired an independent compensation consultant to review and validate the compensation it pays its employees. CCFA anticipates that the consultant will continue the Foundation's policy of relying on benchmarking surveys and other industry data to compare the salaries CCFA pays to its employees with compensation paid to employees of other not for profit organizations of similar size. Availability of documents to the public part vi, section C, line 19 The taxpayer makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.ccfa.org. The Form 990 is likewise published on the internet at www.guidestar.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy are not ordinarily made available to the public, but if requested, will be provided at management's discretion. Contributions Part VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation of America, Inc. ("CCFA") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to CCFA nor does CCFA have ownership rights to them. In 2013, CCFA received $29,017 in revenues from this program. Additionally, CCFA receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of CCFA's programs. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, CCFA has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2013, contributed services and airtime amounted to $11,277,878. Form 990, Part XI, Line 9 Other changes in net assets Changes in Gift Annuities and Remainder Trust Valuations - $36,128