2014-07-15T08:56:48-05:00 2013-12-31 BDO USA LLP 8405 GREENSBORO DRIVE 7TH FLOOR MCLEAN VA 22102 990 2013-01-01 136161105 CYSTIC FIBROSIS FOUNDATION - GROUP RETURN FOR THE CHAPTERS % ROBERT J BEALL PHD CYST 3019514422 6931 ARLINGTON ROAD Suite 200 BETHESDA MD 20814 ROBERT J BEALL PHD PRESIDENT AND CEO 7038930600 2014-06-30 true Jeffrey J Schragg 7038930600 2013 2015-11-30 17:44:51Z ROBERT J BEALL PHD 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 134288075 true false 1393 X WWW.CFF.ORG X THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. 17 16 451 250000 0 0 117695692 118721081 0 0 0 0 1203317 1048800 118899009 119769881 0 0 0 0 18382976 19362586 0 0 6416316 100516033 100407295 118899009 119769881 0 0 0 0 0 0 0 THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENeTIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF NEARLY 30,000 CHILDREN AND YOUNG ADULTS IN THE U.S. CURRENTLY, THERE IS NO CURE. false false 96336381 MEDICAL PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION HAS 70 OFFICES IN 39 STATES THAT HELP TO COMMUNICATE AND DISTRIBUTE INFORMATION ABOUT SCIENTIFIC STUDIES AND INVESTIGATIONS, CYSTIC FIBROSIS CENTERS AND OTHER MEDICAL PROGRAMS. 7532196 PUBLIC INFORMATION AND EDUCATION: TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CYSTIC FIBROSIS FOUNDATION HAS PROGRAMS DESIGNED TO INFORM CYSTIC FIBROSIS PATIENTS, THEIR FAMILIES AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2013, CHAPTER OFFICES PREPARED AND DISTRIBUTED EDUCATIONAL MATERIALS TO THE CF COMMUNITY, INCLUDING AUDIO AND VISUAL AIDS, EXHIBITS AND CORRESPONDENCE. THE CHAPTER OFFICES ALSO MADE AVAILABLE UP TO 30 PUBLICATIONS AND 9 INFORMATIONAL WEBCASTS THAT WERE DEVELOPED SPECIFICALLY FOR THE CF COMMUNITY BY THE CYSTIC FIBROSIS FOUNDATION. 5021464 COMMUNITY SERVICE PROGRAMS: THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM AND EMPOWER PATIENTS AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING THOSE WITH CYSTIC FIBROSIS. APPROXIMATELY 28,100 PATIENTS WERE SERVED IN 2013, INCLUDING APPROXIMATELY 959 PATIENTS WHO WERE NEWLY DIAGNOSED. 108890041 true true false false false false false false false false false false false false false false true false false false false false false true true false false false true false false false false false false false false true false false false false true false false false true 1015 15 true 451 true false false false false false true true false false false true false X 17 16 false false false false false false false true true false true true true true true true true true true true false AL AK AZ AR CA CT FL GA HI IL IN KS KY MD MA MI MS NH NJ NM NY OK OR PA RI SC TN UT VA WA WV WI X X ROBERT J BEALL PHD 3019514422 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 X Michael L Beatty TRUSTEE 3.0 3.0 X 0 0 0 J Taylor Crandall TRUSTEE 3.0 3.0 X 0 0 0 Richard L Dandurand TRUSTEE 3.0 5.0 X 0 0 0 Richard J Gray ESQ TRUSTEE 3.0 5.0 X 0 0 0 Barry M Gump TRUSTEE 3.0 3.0 X 0 0 0 Susan L Hook TRUSTEE 3.0 3.0 X 0 0 0 Catherine C McLoud TRUSTEE 3.0 11.0 X 0 0 0 Chad T Moore TRUSTEE 3.0 3.0 X 0 0 0 David A Mount TRUSTEE 3.0 3.0 X 0 0 0 Gray B Sabin TRUSTEE 3.0 5.0 X 0 0 0 Christy L Shaffer PhD TRUSTEE 3.0 8.0 X 0 0 0 Steven Shak MD TRUSTEE 3.0 6.0 X 0 0 0 Charles J Thayer TRUSTEE 3.0 3.0 X 0 0 0 Amy S Weinberg TRUSTEE 3.0 3.0 X 0 0 0 Paul W Whetsell TRUSTEE 3.0 5.0 X 0 0 0 KC Bryan White TRUSTEE 3.0 3.0 X 0 0 0 Robert J Beall PhD PRESIDENT & CEO 4.0 56.0 X X 0 1101877 261787 C Richard Mattingly EXEC VP, COO & SECRETARY 5.0 55.0 X 0 752470 220754 Preston W Campbell MD EXEC VP FOR MEDICAL AFFAIRS 4.0 56.0 X 0 1191147 202914 Vera H Twigg EXEC VP & CFO 5.0 55.0 X 0 486851 91349 Barbara Balik DIRECTOR OF SPECIAL GIVING 50.0 X 131449 0 18636 131449 3532345 795440 2 false true false VAIL CASCADE RESORT SPA 1300 WESTHAVEN DR VAIL CO 81657 EVENT venue 742890 SOFTREK CORPORATION 30 BRYANT WOODS NORTH AMHERST NY 14228 DATA PROCESSING 627159 GG OUTFITTERS 4901 FORBES BLVD LANHAM MD 20706 EVENT MATERIAL 414189 WARNER BROS STUDIO FACILITIES 4000 WARNER BLVD BURBANK CA 91522 EVENT VENUE 224997 CIPRIANI USA INC 110 EAST 42ND ST NEW YORK NY 10017 EVENT VENUE 184748 12 1409263 97038894 20272924 11481446 118721081 0 0 0 0 0 0 0 1088791 1088791 0 13097526 97038894 13097526 0 1380677 331877 1048800 1048800 0 0 119769881 1048800 0 0 0 0 0 0 15487944 9447646 2478071 3562227 659717 402427 105555 151735 1859108 1134056 297457 427595 1355817 827048 216931 311838 0 0 0 0 0 0 0 6618 4037 1059 1522 2981490 1818709 477038 685743 1407559 858611 225209 323739 0 2293293 1398909 366927 527457 732521 446838 117203 168480 0 193644 118123 30983 44538 0 91872857 91872857 423621 258409 67779 97433 0 MISCELLANEOUS 495692 302371 79312 114009 119769881 108890041 4463524 6416316 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 X false true X true false X 100206974 101601796 106170741 117695633 118721081 544396225 0 0 100206974 101601796 106170741 117695633 118721081 544396225 0 544396225 0 0 12605019 13271440 12838318 14069535 14478203 67262515 611658740 0.89003 0.88949 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED GALA 4158837 3834372 324465 33460 115499 7844 167662 GALA 2179365 1927612 251753 36392 148816 6000 60545 1247 103798218 91276910 12521308 27472 130647 3318273 3615577 436876 4992463 110136420 97038894 13097526 27472 130647 3388125 3879892 450720 5220670 13097526 1380677 4040 259624 38049 30164 false 1380677 4040 259624 38049 30164 331877 1048800 AL AK AZ AR CA CO CT DE DC FL GA IL IN IA KS LA ME MD MA MI MN MO NE NV NJ NM NY NC OH OK OR PA RI SC TN TX UT VT WA WI true false false false 1.00000 THE ORGANIZATION 6931 ARLINGTON ROAD STE 200 bethesda MD 20814 false false FORM 990, SCHEDULE G, PART III on occasion, the cystic fibrosis foundation conducts raffles, drawings, or games of chance as part of its fundraising events. gaming licenses are obtained when applicable per state or local regulation. there are certain states where cff only conducts opportunity drawings. X X X X X X false true false false false false false false false Robert J Beall PhD PRESIDENT & CEO 0 571172 0 501644 0 29061 0 243281 0 18506 0 1363664 289453 C Richard Mattingly EXEC VP, COO & SECRETARY 0 387406 0 341899 0 23165 0 203248 0 17506 0 973224 215658 Preston W Campbell MD EXEC VP FOR MEDICAL AFFAIRS 0 383913 0 334102 0 473132 0 177549 0 25365 0 1394061 515178 Vera H Twigg EXEC VP & CFO 0 292024 0 174583 0 20244 0 66034 0 25315 0 578200 90322 Barbara Balik DIRECTOR OF SPECIAL GIVING 122433 0 6008 0 3008 0 11014 0 7622 0 150085 0 0 0 Part I, Line 4b Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Part II Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $364,891, 401(k) bonus - $15,410; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $129,736, long-term incentive plan payment, of which $193,934 was previously reported (6) - $206,365; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,349, automobile allowance - $4,824, other benefits including taxable general organization group term life insurance premium - $12,738; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $79,883, SERP (4) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $11,282, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $183,281, 401(k) bonus - $7,590; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $63,900, long-term incentive plan payment, of which $95,519 was previously reported (6) - $101,643; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,649, automobile allowance - $2,376, other benefits - $4,125; (C) Deferred Compensation: long-term incentive plan benefit (6) - $39,346, SERP (4) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $254,125; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $71,937, long-term incentive plan payment, of which $142,760 was previously reported (6) - $151,911; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $5,867, Section 457(b) Plan (5) - $11,725, SERP account that became vested, of which $202,408 was previously reported (3) - $301,343; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $59,896, SERP (4) - $41,607; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $15,982, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $129,788; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $35,431, long-term incentive plan payment, of which $70,315 was previously reported (6) - $74,823; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,775, SERP account that became vested, of which $99,695 was previously reported (3) - $148,422; (C) Deferred Compensation: long-term incentive plan benefit (6) - $29,501, SERP (4) - $20,493; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $387,406; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $112,417, long-term incentive plan payment, of which $215,658 was previously reported (6) - $229,482; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,500; other benefits including taxable general organization group term life insurance premium - $5,665; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $88,833, SERP (4) - $88,363; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $11,282, employee contribution to flexible spending account benefit - $1,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation - Headquarters. EIN 13-1930701. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $292,024; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $78,471, long-term incentive plan payment, of which $90,322 was previously reported (6) - $96,112; (B)(iii) Other Reportable Compensation: taxable general organization group term life insurance premium - $2,744, Section 457(b) Plan (5) - $17,500; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $35,067, SERP (4) - $4,915; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $15,982, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,833 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include royalty-related revenues (such as royalty streams, lump-sum royalty payments and sales proceeds of royalty rights) related to CF drugs. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2013 Plan Year. (3) This amount is the aggregate of employer contributions to the SERP that were earned by the participant and accrued from 2007 through 2012, and which became vested (but have not yet been paid, in accordance with the governing SERP documents) during the reporting year. As required, SERP contributions have been reported as "Contributions to Employee Benefit Plans" and "Deferred Compensation" on prior years' Form 990s and therefore (as required by the instructions) are double-reported here. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or date, depending on the participant). C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include royalty-related revenues (such as royalty streams, lump-sum royalty payments and sales proceeds of royalty rights) related to CF drugs. Each year, a new three-year performance period begins. As required by the Form 990 instructions, the amounts reported on this Form 990 reflect an estimate of the portion of each award that the executive accrued under the Plan for performance in 2013 (i.e., with respect to the 2011-2013, 2012-2014 and the 2013-2015 performance periods), but the amounts reported have not been earned, awarded or paid under the Plan. The individual must be employed on 12/31/14 and 12/31/15 to be eligible to receive full payment of the award for the 2012-2014, and the 2013-2015 performance periods, respectively. The award relating to the 3-year performance period ending 12/31/12 was paid in 2013, and is properly reported again (as compensation) on this Form 990.) X 75 44394 Net Cash Receipts X 114 1088791 Net Cash Receipts X tangible and service auction items 23007 10348261 Net Cash Receipts false true true Sch M, Line 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS. PART VI, Section B, LINE 11B (Page 6 Core Form) The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVED A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED. PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM) A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2013 and had no conflicts of interest as defined by the policy. PART VI, SECTION B, LINE 15A & 15B (PAGE 6 CORE FORM) The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent, to fulfill the critically important mission of curing cystic fibrosis and providing all people with the disease the opportunity to lead full, productive lives. The subordinates included in this group return do not have their own officers. Rather, the officers of CF Foundation serve as the officers of each subordinate included in this group return. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation for officers. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers or positions: President & CEO Executive Vice President, COO and Secretary Executive Vice President for Medical Affairs Executive Vice President & CFO The process was last undertaken in 2012 (and again in 2014). PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM) Forms 1023 and 990-T for the Cystic Fibrosis Foundation were available on its website, CFF.org and the Cystic Fibrosis Foundation's website provided a direct link to its Form 990 on Guidestar.org. The Foundation's governing documents (Bylaws and Articles of Incorporation) were available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents was also available on the Foundation's website, www.cff.org during 2013. The Board and Officer Conflict of Interest Policy and the audited financial statements were available on the Foundation's website, www.cff.org during 2013. FORM 990, PART VII NAME AND TITLE MICHAEL L. BEATTY, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE J. TAYLOR CRANDALL, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE RICHARD L. DANDURAND, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE RICHARD J. GRAY, ESQ., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE BARRY M. GUMP, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE SUSAN L. HOOK, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CATHERINE C. MCLOUD, CHAIR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 11 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CHAD T. MOORE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE DAVID A. MOUNT, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE GARY B. SABIN, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CHRISTY L. SHAFFER, PH.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 8 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE STEVEN SHAK, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE CHARLES J. THAYER, TREASURER AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE AMY S. WEINBERG, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE PAUL W. WHETSELL, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 5 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE KC BRYAN WHITE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP NONE NAME AND TITLE ROBERT J. BEALL, PH.D, PRES/CEO AVG HRS WORKED 4 HRS AVG HRS WORKED - RELATED 56 HRS POSITION INDIVIDUAL TRUSTEE & OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 1,101,877 EST. AMT OF OTHER COMP 261,787 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP & COO AND SECRETARY AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 752,470 EST. AMT OF OTHER COMP 220,754 NAME AND TITLE PRESTON W. CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 4 HRS AVG HRS WORKED - RELATED 56 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 1,191,147 EST. AMT OF OTHER COMP 202,914 NAME AND TITLE VERA H. TWIGG, EXEC VP & CFO AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 55 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG 486,851 EST. AMT OF OTHER COMP 91,349 NAME AND TITLE BARBARA BALIK, DIR OF SPECIAL GIVING AVG HRS WORKED 50 HRS POSITION HIGHEST COMP EMPLOYEE REPORTABLE COMP FROM THE ORG 131,449 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP 18,636 TOTAL REPORTABLE COMP FROM THE ORG 131,449 TOTAL REPORTABLE COMP FROM RELATED ORG 3,532,345 TOTAL EST. AMT OF OTHER COMP 795,440 cystic fibrosis foundation therapeutics 6931 ARLINGTON RD BETHESDA MD 20814 912059167 RESEARCH MD 501(c)(3) 11A cff hq false Cystic fibrosis foundation- headquarters 6931 ARLINGTON RD BETHESDA MD 20814 131930701 research DE 501(c)(3) 7 na false false true false false false false false false false false false false false false false false false false false Cystic fibrosis foundation - headquarters 1b 91872857 FMV NORTHERN NEW ENGLAND CHAPTER 114 Perimeter Rd Units G and H Nashua NH 03063 026013029 CYST MASSACHUSETTS-RHODE ISLAND CHAPTER 220 North Main St Suite 104 Natick MA 01760 042297106 CYST CONNECTICUT CHAPTER 306 INDUSTRIAL PARK ROAD STE 107 MIDDLETOWN CT 06457 060834391 CYST GREATER NEW YORK CHAPTER 424 MADISON AVE 6TH FLOOR New York NY 10017 133133923 CYST NORTHEASTERN NEW YORK CHAPTER 16 WADE ROAD SUITE 2 LATHAM NY 12110 146027360 CYST WESTERN NEW YORK CHAPTER 1775 WEHRLE DRIVE SUITE 150 WILLIAMSVILLE NY 14221 160869529 CYST ROCHESTER CHAPTER PO BOX 368 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6931 ARLINGTON ROAD SUITE 200 BETHESDA MD 20814 381966896 CYST WISCONSIN CHAPTER 20875 CROSSROADS CIR SUITE 350 Waukesha WI 53186 390987132 CYST MINNESOTA CHAPTER 8011 34TH AVENUE SOUTH SUITE 116 BLOOMINGTON MN 55425 410877670 CYST IOWA CHAPTER 4150 WESTOWN PARKWAY SUITE 203 W Des Moines IA 50266 426096497 CYST HEART OF AMERICA CHAPTER 6950 Squibb Rd Suite 310 Mission KS 66202 430814799 CYST GATEWAY CHAPTER 10801 Pear Tree Lane Suite 110 St Ann MO 63074 436016821 CYST NEBRASKA CHAPTER 11917 Pierce Plaza Omaha NE 68144 470527737 CYST MARYLAND CHAPTER 10626 YORK ROAD SUITE A Cockeysville MD 21030 526019357 CYST METROPOLITAN WASHINGTON DC CHAPTER 6931 Arlington Rd Suite 312 Bethesda MD 20814 526068825 CYST VIRGINIA CHAPTER 1500 FOREST AVENUE SUITE 124 Richmond VA 23229 540859311 CYST CAROLINAS CHAPTER 2301 Stonehenge Dr SUITE 200 Raleigh NC 27615 560902621 CYST SOUTH CAROLINA CHAPTER 537 LONG POINT ROAD SUITE 203 MOUNT PLEASANT SC 29464 570539635 CYST GEORGIA CHAPTER 2302 Parklake Dr NE Suite 210 Atlanta GA 30345 580943901 CYST NORTHERN OHIO CHAPTER 5410 transportation blvd suite 5 Garfield heights OH 44125 581315123 CYST FLORIDA CHAPTER 3443 NW 55th St Bldg 1 Ft Lauderdale FL 33309 591280455 CYST KENTUCKY-WEST VIRGINIA CHAPTER 1941 BISHOP LANE SUITE 108 LOUISVILLE KY 40218 610673019 CYST TENNESSEE CHAPTER 4825 Trousdale Dr Suite 238 Nashville TN 37220 620851705 CYST ALABAMA CHAPTER 200 cahaba park circle suite 114 birmingham AL 35242 630511731 CYST MISSISSIPPI CHAPTER 1907 Dunbarton Dr Suite C Jackson MS 39216 640473630 CYST SACRAMENTO CHAPTER 4804 GRANITE DRIVE SUITE F-140 ROCKLIN CA 95677 680448497 CYST ARKANSAS CHAPTER 10515 W Markham Soho Ctr ste K9 Little Rock AR 72205 716053928 CYST LOUISIANA CHAPTER 4621 W Napoleon Ave Suite 207 Metairie LA 70001 720572440 CYST SOONER CHAPTER 2642 E 21st St Suite 100 Tulsa OK 74114 730932820 CYST TEXAS GULF COAST CHAPTER 50 Briar Hollow Lane suite 250E Houston TX 77027 741400718 CYST LONE STAR CHAPTER 6800 PARK TEN BVLD SUITE 131e San Antonio TX 78213 741487797 CYST CENTRAL TEXAS CHAPTER 3316 Bee Cave Rd Suite A Austin TX 78746 742326310 CYST NORTH-EAST TEXAS CHAPTER 3102 MAPLE AVENUE SUITE 120 Dallas TX 75201 751233021 CYST COLORADO CHAPTER 400 S COLORADO BLVD SUITE 840 Denver CO 80246 840513516 CYST NEW MEXICO CHAPTER PO BOX 16232 Albuquerque NM 87191 850193380 CYST ARIZONA CHAPTER 3800 North Central AVE Suite 700 Phoenix AZ 85012 860185398 CYST UTAH CHAPTER 124 SOUTH 400 EAST SUITE 250 SALT LAKE CITY UT 84111 876127344 CYST NEVADA CHAPTER 7582 LAS VEGAS BLVD SUITE 474 LAS VEGAS NV 89123 880364349 CYST WASHINGTON CHAPTER 520 Pike St Suite 1075 Seattle WA 98101 911742590 CYST GREATER MICHIGAN WESTERN REGION 967 SPAULDING AVENUE SE SUITE C ADA MI 49301 912031303 CYST OREGON CHAPTER 2701 NW VAUGHN ST SUITE 203 Portland OR 97210 936038596 CYST NORTHERN CALIFORNIA CHAPTER 455 MARKET ST SUITE 640 San Francisco CA 94105 941710453 CYST SAN DIEGO AND IMPERIAL COUNTIES CHP 10455 SORRENTO VALLEY RD Suite 103 San Diego CA 92121 952248725 CYST SOUTHERN CALIFORNIA CHAPTER 2150 Towne Center Pl Suite 120 Anaheim CA 92806 956219308 CYST