2014-05-13T13:43:22-05:00 2013-12-31 390974031 WEGNER CPAS LLP 2110 LUANN LN MADISON WI 537133074 990 2013-01-01 450505050 FREE TO BREATHE FREE 6088337905 1 POINT PL NO 200 MADISON WI 537192836 SHERIE REINDERS INTERIM CEO 6088337905 2014-05-07 1 GLENN MILLER CPA P00086726 6082744020 2013 2015-11-30 17:44:51Z SHERIE REINDERS 1 POINT PL NO 200 MADISON WI 537192836 4439378 0 X WWW.FREETOBREATHE.ORG X 2001 LA OUR VISION IS TO DOUBLE LUNG CANCER SURVIVAL BY 2022. TO TURN THIS VISION INTO REALITY WE FOCUS ON FUNDING RESEARCH WITH THE GREATEST POTENTIAL TO SAVE LIVES, HELPING ALL PATIENTS FULLY UNDERSTAND THEIR TREATMENT OPTIONS, ENSURING MOLECULAR TUMOR TESTING IS STANDARD OF CARE, AND DOUBLING THE NUMBER OF LUNG CANCER PATIENTS PARTICIPATING IN CLINICAL TRIALS. 12 12 25 1500 0 0 3860692 4220178 0 0 40131 58847 5413 7468 3906236 4286493 1057580 1002279 0 0 1133108 1242419 0 0 623262 1321775 1358582 3512463 3603280 393773 683213 4523296 5028992 1262603 1023160 3260693 4005832 X FREE TO BREATHE'S MISSION IS TO ENSURE SURVIVING LUNG CANCER IS THE EXPECTATION, NOT THE EXCEPTION. 0 0 1133521 1002279 FREE TO BREATHE SUPPORTS RESEARCH IN LUNG CANCER. IN 2013, GRANTS WERE AWARDED TO 16 RESEARCHERS. IN ADDITION, FREE TO BREATHE ADMINISTERS THE LUNG CANCER MUTATION CONSORTIUM, WHICH IS PROSPECTIVELY ANALYZING THE GENOMIC MAKEUP OF PATIENT TUMORS AND MATCHING PATIENTS TO APPROPRIATE CLINICAL TRIALS. FUNDS ARE PROVIDED TO MEMBER INSTITUTIONS TO OFFSET THE COSTS OF TUMOR TESTING. OVERSIGHT IS PROVIDED BY AN EXECUTIVE COMMITTEE, INCLUDING SEVERAL OF THE TOP LUNG CANCER RESEARCHERS IN THE COUNTRY. 1019333 FREE TO BREATHE COMMUNUITY EVENTS, INCLUDING RUN/WALKS, BIKE RIDES, AND YOGATHONS WERE ORGANIZED THROUGHOUT THE NATION TO RAISE AWARENESS OF AND RESEARCH DOLLARS FOR LUNG CANCER. IN 2013, THE FREE TO BREATHE SERIES TOOK PLACE IN MORE THAN 40 LOCATIONS AND INCLUDED A NATIONAL WALK, MAKING IT THE LARGEST BRANDED NATIONAL LUNG CANCER EVENT SERIES. MORE THAN 34,000 PEOPLE WERE INVOLVED IN THE EVENTS. 376045 FREE TO BREATHE HOSTED THE SIXTH LUNG CANCER ADVOCACY SUMMIT TO EMPOWER ADVOCATES BY GIVING THEM TOOLS, KNOWLEDGE, AND COURAGE TO GO BACK TO THEIR COMMUNITIES AND TAKE ACTION IN THE FIGHT AGAINST LUNG CANCER. SIXTY-THREE ADVOCATES, INCLUDING MULTIPLE SURVIVORS, WERE SELECTED TO ATTEND. FREE TO BREATHE ALSO CREATED AND DISTRIBUTED EDUCATIONAL MATERIALS ON LUNG CANCER TREATMENT AND CLINICAL TRIALS FOR PATIENTS, THEIR CAREGIVERS AND FRIENDS, AND THEIR TREATMENT TEAMS. IN 2013, OVER 100,000 INDIVIDUALS RECEIVED THESE MATERIALS. FREE TO BREATHE PROVIDED EDUCATION TO EXPERTS AND THE PUBLIC ABOUT THE CAUSES, TREATMENT, AND PREVENTION OF LUNG CANCER. INNUMERABLE PEOPLE HAVE RECEIVED THIS INFORMATION THROUGH THE INTERNET, TELEPHONE, ELECTRONIC MESSAGING, IN-PERSON EVENTS, AND A PUBLIC SERVICE ANNOUNCEMENT (PSA) CAMPAIGN. 75269 FREE TO BREATHE ORGANIZED ANNUAL CONFERENCES TO PROVIDE FORUMS FOR INTERNATIONALLY RENOWNED CLINICAL EXPERTS AND COMMUNITY ONCOLOGISTS, NURSES, PHARMACISTS, PATIENT ADVOCATES, AND OTHER HEALTHCARE PROFESSIONALS TO DISCUSS CURRENT AND EVOLVING THERAPIES IN THE SCREENING, DIAGNOSIS, AND MANAGEMENT OF PATIENTS WITH LUNG CANCER. IN 2013, OVER 150 PEOPLE ATTENDED OUR CLINCIAL TRIALS SYMPOSIUM. WITH THE PUBLICATION OF SUMMARIES OF THE PRESENTATIONS IN OUR NEWSLETTER AND ON OUR WEBSITE, THOUSANDS MORE ARE ABLE TO ACCESS THE INFORMATION PRESENTED. 75269 2604168 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 34 0 25 1 0 0 0 0 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT DC FL GA IL KS KY ME MD MA MI MN MS MO NH NJ NM NC ND OH OK OR PA RI SC TN UT VA WV WI X AMY HALL 6088288843 1 POINT PL STE 200 MADISON WI 537192836 JOAN H SCHILLER PRESIDENT 1.00 X X 0 0 0 LORRAINE C PASTORE VICE PRESIDENT 1.00 X X 0 0 0 ANTOINETTE J WOZNIAK TREASURER/SECRETARY 1.00 X X 0 0 0 KATHY ALBAIN DIRECTOR 1.00 X 0 0 0 CHARLES FLORSHEIM DIRECTOR 1.00 X 0 0 0 PETER FRY DIRECTOR 1.00 X 0 0 0 JEAN KAMLA DIRECTOR 1.00 X 0 0 0 SHARON MUNGER DIRECTOR 1.00 X 0 0 0 CHARLES RUDIN DIRECTOR 1.00 X 0 0 0 JILL SIEGFRIED DIRECTOR 1.00 X 0 0 0 DAVID SPIGEL DIRECTOR 1.00 X 0 0 0 ERIC THOMPSON DIRECTOR 1.00 X 0 0 0 REGINA VIDAVER EXECUTIVE DIRECTOR 40.00 X 95000 0 2850 95000 0 2850 0 0 0 0 PUBLIC COMMUNICATIONS INC 1 E WACKER DR STE 2450 CHICAGO IL 606012004 MEDIA RELATIONS SERVICES 159336 EVENT 360 INC 820 W JACKSON BLVD STE 800 CHICAGO IL 606073290 EVENT SERIES CONSULTING 115173 CLAYMAN PROMOTIONAL GROUP INC 2555 GRAND BLVD KANSAS CITY MO 641082613 FREE TO BREATHE SHIRTS AND AWARDS 103346 3 36935 4183243 32372 4220178 52401 52401 7468 7468 159331 152885 6446 6446 6446 4286493 0 0 66315 X 1002279 1002279 97850 83173 9785 4892 961700 499581 212590 249529 95118 52315 19965 22838 87751 48263 18419 21069 33572 19287 14285 11450 11450 5936 5936 492471 370875 24250 97346 1270 667 603 471799 288651 24073 159075 53817 30521 5958 17338 75740 41657 15896 18187 64530 46952 2957 14621 117339 104003 4351 8985 17988 9894 3775 4319 12670 6050 2160 4460 3603280 2604168 375850 623262 X 487471 336727 0 150744 22748 6651 2750460 3274236 931459 851623 19295 29368 71161 41514 47635 29647 751699 837467 4523296 5028992 551103 245061 711500 778099 1262603 1023160 X 912888 1428664 2347805 2577168 3260693 4005832 4523296 5028992 X 683213 41260 20666 X 0 1 X 1 0 X 2081125 2629634 3498562 3860692 4220178 16290191 2081125 2629634 3498562 3860692 4220178 16290191 2626179 13664012 21046 27133 43113 40131 52401 183824 16474015 48525 0.82940 0.84290 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3603280 3603280 330164 82541 0 0 250099 288432 325623 330164 1194318 1791477 251 251 62525 72108 81406 82541 298580 447870 36400 14560 21840 34761 26954 7807 29647 4688195 41260 345712 14730 401702 4286493 0 4286493 3943056 345712 345712 3597344 5936 5936 3603280 PART XI, LINE 2D - OTHER ADJUSTMENTS: UNEXPECTED GRANT MONIES RETURNED 20,666. INVESTMENT MANAGEMENT FEES REPORTED ON FORM 990, PART IX, LINE 11F -5,936. 1 DANA FARBER CANCER INSTITUTE 450 BROOKLINE AVE BOSTON MA 022155418 042263040 501(C)(3) 148500 LUNG CANCER RESEARCH PROGRAMS MARSHFIELD CLINIC 1000 N OAK AVE MARSHFIELD WI 544495702 390452970 501(C)(3) 10000 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF CALIFORNIA DAVIS 2315 STOCKTON BLVD SACREMENTO CA 958172201 946036494 501(C)(3) 13500 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF COLORADO 3100 MARINE ST FL 6 BOULDER CO 803031058 846000555 501(C)(3) 150038 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF TEXAS 5323 HARRY HINES BLVD DALLAS TX 753907208 756002868 501(C)(3) 69200 LUNG CANCER RESEARCH PROGRAMS BOSTON UNIVERSITY 25 BUICK ST FL 2 BOSTON MA 022151301 042103547 501(C)(3) 13500 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM ST STE 425 SAN FRANCISCO CA 941051608 942829914 501(C)(3) 13500 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF MICHIGAN 3003 S STATE ST ANN ARBOR MI 481091276 386006309 501(C)(3) 13500 LUNG CANCER RESEARCH PROGRAMS YALE UNIVERSITY 500 COLLEGE ST NEW HAVEN CT 065118962 060646973 501(C)(3) 15300 LUNG CANCER RESEARCH PROGRAMS VANDERBILT UNIVERSITY 110 21ST AVE S NASHVILLE TN 372032416 620476822 501(C)(3) 108070 LUNG CANCER RESEARCH PROGRAMS UNITING AGAINST LUNG CANCER 27 UNION SQ W STE 304 NEW YORK NY 100033305 134195464 501(C)(3) 108000 LUNG CANCER RESEARCH PROGRAMS DUKE UNIVERSITY 2200 W MAIN ST STE 300 DURHAM NC 277054677 560532129 501(C)(3) 25000 LUNG CANCER RESEARCH PROGRAMS INDIANA UNIVERSITY 980 INDIANA AVE RM 2232 INDIANAPOLIS IN 462022915 356001673 501(C)(3) 13500 LUNG CANCER RESEARCH PROGRAMS THE STATE UNIVERSITY OF NEW YORK AT BUFFALO 701 ELLICOTT ST BUFFALO NY 142031101 146013200 501(C)(3) 12500 LUNG CANCER RESEARCH PROGRAMS THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK RD MILWAUKEE WI 532263548 390806261 501(C)(3) 40500 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF WISCONSIN 2701 INTERNATIONAL LN STE 208 MADISON WI 537043126 391805963 501(C)(3) 7371 LUNG CANCER RESEARCH PROGRAMS EMORY UNIVERSITY 1599 CLIFTON RD NE ATLANTA GA 303224250 580566256 501(C)(3) 55800 LUNG CANCER RESEARCH PROGRAMS MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST BOSTON MA 021142621 041564655 501(C)(3) 14400 LUNG CANCER RESEARCH PROGRAMS MEMORIAL SLOAN-KETTERING CANCER CENTER 1275 YORK AVE NEW YORK NY 100656007 131624182 501(C)(3) 74700 LUNG CANCER RESEARCH PROGRAMS OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 972393079 262765321 501(C)(3) 5400 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF PITTSBURGH 123 UNIVERSITY PL PITTSBURGH PA 152132303 113708851 501(C)(3) 7200 LUNG CANCER RESEARCH PROGRAMS UNIVERSITY OF CALIFORNIA LOS ANGELES 11000 KINROSS AVE STE 211 LOS ANGELES CA 900952000 956006143 501(C)(3) 23400 LUNG CANCER RESEARCH PROGRAMS WASHINGTON UNIVERSITY 660 S EUCLID AVE SAINT LOUIS MO 631101010 430653611 501(C)(3) 57600 LUNG CANCER RESEARCH PROGRAMS 23 PART I, LINE 2: YOUNG INVESTIGATOR RESEARCH GRANT RECIPIENTS MUST SUBMIT TWO PROGRESS REPORTS, ONE AFTER THE FIRST YEAR OF FUNDING TO ENSURE THEY HAVE MADE SUFFICIENT RESEARCH PROGRESS AND ARE ENTITLED TO THE SECOND YEAR OF FUNDING, AND ONE PRIOR TO THE FINAL PAYMENT TO ENSURE THEY HAVE MADE SUFFICIENT RESEARCH PROGRESS AND ARE ENTITLED TO THE FINAL GRANT PAYMENT (12.5% OF THE TOTAL AWARD IS RESERVED UNTIL THE FINAL REPORT IS APPROVED). RESEARCH PROGRESS IS REVIEWED BY OUR SCIENTIFIC EXECUTIVE COMMITTEE THAT IS COMPRISED OF SOME OF THE FINEST LUNG CANCER SCIENTISTS IN THE WORLD. OTHER GRANT RECIPIENTS MUST SUBMIT INVOICES DETAILING AGREED UPON WORK THAT HAS BEEN COMPLETED TO RECEIVE PAYMENT. THESE INVOICES ARE REVIEWED AND APPROVED BY THOSE INVOLVED WITH OVERSIGHT OF THE RESPECTIVE GRANT PROGRAMS. X 1 10187 QUOTED MARKET PRICES X EVENT SUPPLIE 6 22185 COST/SELLING PRICE 0 1 0 PART I, COLUMN (B): THE ORGANIZATION IS REPORTING THE NUMBER OF CONTRIBUTIONS IN COLUMN (B). FORM 990, PART VI, SECTION B, LINE 11 A DRAFT OF THE FORM 990 IS SENT TO ALL DIRECTORS FOR REVIEW. AFTER ALL REVIEW COMMENTS HAVE BEEN ADDRESSED, A REVISED DRAFT OF THE FORM 990 IS EMAILED TO ALL DIRECTORS AND AN ELECTRONIC VOTE IS HELD TO APPROVE THE PREPARED FORM 990 FOR FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, ALL DIRECTORS ARE GIVEN A CONFLICT OF INTEREST STATEMENT TO COMPLETE AND SIGN. THE SIGNED STATEMENTS ARE KEPT AT THE ORGANIZATION'S OFFICE. MANAGEMENT REVIEWS THE STATEMENTS TO DETERMINE INSTANCES OF CONFLICTS OF INTEREST. ANY PERSON WITH A CONFLICT OF INTEREST IS PROHIBITED FROM PARTICIPATING IN THE GOVERNING BODY'S DISCUSSIONS AND DECISIONS REGARDING THE MATTER. FORM 990, PART VI, SECTION B, LINE 15A ANNUALLY, THE GOVERNING BODY REVIEWS COMPENSATION DATA FOR COMPARABLE POSITIONS AT SIMILAR ORGANIZATIONS TO DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EXECUTIVE DIRECTOR. THE MEMBERS OF THE GOVERNING BODY APPROVE THE EXECUTIVE DIRECTOR'S COMPENSATION WITH AN OFFICIAL VOTE. THE DETERMINATION AND APPROVAL OF THE EXECUTIVE DIRECTOR'S COMPENSATION IS DOCUMENTED BY THE GOVERNING BODY. THIS PROCESS WAS LAST UNDERTAKEN IN 2012. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION'S ANNUAL REPORT THAT INCLUDES CERTAIN FINANCIAL STATEMENTS FROM ITS AUDITED FINANCIAL STATEMENTS IS AVAILABLE ON THE ORGANIZATION'S WEBSITE AND IS ALSO AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION DOES NOT MAKE ITS GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FORM 990, PART IX, LINE 11G PUBLICITY SERVICES: PROGRAM SERVICE EXPENSES 198,663. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 12,681. TOTAL EXPENSES 211,344. BRANDING SERVICES: PROGRAM SERVICE EXPENSES 59,737. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 14,934. TOTAL EXPENSES 74,671. HONORARIA AND OTHERS: PROGRAM SERVICE EXPENSES 37,000. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 37,000. DESIGN SERVICES: PROGRAM SERVICE EXPENSES 2,656. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,656. HUMAN RESOURCE AND STRATEGIC CONSULTING SERVICES: PROGRAM SERVICE EXPENSES 5,199. MANAGEMENT AND GENERAL EXPENSES 1,984. FUNDRAISING EXPENSES 2,270. TOTAL EXPENSES 9,453. MOVING SERVICES: PROGRAM SERVICE EXPENSES 282. MANAGEMENT AND GENERAL EXPENSES 107. FUNDRAISING EXPENSES 123. TOTAL EXPENSES 512. PAYROLL PROCESSING FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 2,468. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,468. STATE REGISTRATION FILING SERVICES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 10,945. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 10,945. EMPLOYEE BENEFIT PLAN FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 8,746. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 8,746. EVENT SERIES CONSULTING: PROGRAM SERVICE EXPENSES 67,338. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 67,338. TOTAL EXPENSES 134,676. FORM 990, PART XI, LINE 9: UNEXPECTED GRANT MONIES RETURNED 20,666.