2014-05-12T13:25:35-05:00 2013-12-31 113518842 MARKS PANETH LLP 685 THIRD AVENUE NEW YORK NY 10017 990 2013-01-01 132298956 CHILDREN'S TUMOR FOUNDATION CHIL 2123446633 120 WALL STREET NEW YORK NY 100053904 JUDI SWARTOUT CHIEF FINANCIAL OFFICER 2123446633 2014-05-12 1 ROBERT LYONS CPA P00227472 2125038800 2013 2015-11-30 17:44:51Z X ANNETTE BAKKER 120 WALL STREET NEW YORK NY 100053904 12835508 0 X WWW.CTF.ORG X 1978 NY THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS. 21 21 55 1275 0 0 9359822 12171729 0 0 115814 66964 67007 229554 9542643 12468247 2161598 4166679 0 0 2789885 3158081 0 0 1436451 3232032 4544363 8183515 11869123 1359128 599124 9263630 10987913 1606418 2165593 7657212 8822320 X THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A) FUND RESEARCH B) INCREASE PUBLIC AWARENESS C) SUPPORT PATIENTS AND FAMILIES D) ENCOURAGE ESTABLISHMENT OF NF CLINICS. 0 0 6357258 4166679 RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITIONALLY, OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH. 1398277 PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR. 1951514 PUBLIC EDUCATION - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE, NF WALK, RACING 4 RESEARCH, AND CUPID'S UNDIE RUN PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. 9707049 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 26 0 55 1 0 0 0 0 0 1 1 0 0 0 0 X 21 21 0 0 1 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 NY AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY X X JUDI SWARTOUT 2123446633 120 WALL STREET NEW YORK NY 100053904 STUART MATCH SUNA CHAIRPERSON 1.00 X X 0 0 0 LINDA MARTIN VICE CHAIRPERSON 1.00 X X 0 0 0 ARAM FUCHS TREASURER 1.00 X X 0 0 0 RACHEL B TIVEN SECRETARY 1.00 X X 0 0 0 SUZANNE EARLE CHAIRPERSON EMERITUS 1.00 X 0 0 0 DANIEL ALTMAN DIRECTOR 1.00 X 0 0 0 LAURA GANIO BONA DIRECTOR 1.00 X 0 0 0 WILLIAM BROOKS DIRECTOR 1.00 X 0 0 0 COLIN BRYAR DIRECTOR 1.00 X 0 0 0 TRACY GALLOWAY DIRECTOR 1.00 X 0 0 0 DANIEL B GILBERT DIRECTOR 1.00 X 0 0 0 JOHN GOLFINOS MD DIRECTOR 1.00 X 0 0 0 DANIEL GRAEFF DIRECTOR 1.00 X 0 0 0 MATTHEW HAY DIRECTOR 1.00 X 0 0 0 JOHN MCCARTHY DIRECTOR 1.00 X 0 0 0 STEVE MCKENZIE DIRECTOR 1.00 X 0 0 0 LESLEY OSLICA DIRECTOR 1.00 X 0 0 0 JOANNE PASTEL DIRECTOR 1.00 X 0 0 0 LAURA PERFETTI DIRECTOR 1.00 X 0 0 0 ROBERT SCHAFFER DIRECTOR 1.00 X 0 0 0 NATE WALKER DIRECTOR 1.00 X 0 0 0 ANNETTE BAKKER PRESIDENT/CHIEF SCIENTIFIC OFFICER 40.00 X 201750 0 28190 JOHN RISNER PRESIDENT/CEO (FORMER) 40.00 X 144875 0 27131 JUDI SWARTOUT CFO 40.00 X 118833 0 16924 JOHN HEROPOULOUS VICE PRESIDENT 40.00 X 91208 0 10197 556666 0 82442 3 0 1 0 PATTON BOGGS 2550 M STREET NW WASHINGTON DC 20037 LOBBYING/ADVOCACY 165000 1 90790 5487071 6593868 103653 12171729 85008 85008 23891 41935 -18044 -18044 -18044 325326 5487071 325326 0 MISC. INCOME 999999 229554 229554 229554 12468247 0 0 296518 3679500 3679500 487179 487179 639110 490653 61553 86904 1978118 1384993 213942 379183 13943 10104 1419 2420 339039 266673 25421 46945 187871 136142 19123 32606 4676 4676 25115 25115 165000 165000 452593 375720 12162 64711 132213 92956 39257 276274 178007 48763 49504 301384 189663 62670 49051 256610 198228 4441 53941 923046 636710 3532 282804 22484 11695 6891 3898 20678 13305 4435 2938 APPAREL 398203 264635 132928 640 DUES AND OTHER FEES 339757 229818 43889 66050 FOOD AND BEVERAGE 303520 246056 6794 50670 SUPPLIES 258848 138786 4290 115772 663962 511226 43579 109157 11869123 9707049 725623 1436451 3868817 4007570 181782 983263 150398 272850 176366 117671 78420 58695 4967697 5586519 62500 16516 16516 9263630 10987913 152934 282577 1232250 1665695 221234 217321 1606418 2165593 X 5699042 6545882 1958170 2276438 7657212 8822320 9263630 10987913 X 599124 579499 -13515 X X 0 1 X 1 0 X 6289335 7508599 9337715 9359822 12171729 44667200 6289335 7508599 9337715 9359822 12171729 44667200 4541447 40125753 79312 81555 67827 343978 65814 638486 10735 63447 54072 67007 229554 424815 45730501 0.87740 0.92750 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 165000 0 0 165000 0 189926 189926 185876 4050 189926 182534 3342 185876 179809 2725 182534 93964 74261 19703 53052 33859 19193 29350 9551 19799 58695 DEFERRED RENT 21521 ASSETS HELD IN TRUST 195800 217321 X 13347746 579499 300000 879499 12468247 0 12468247 12182638 300000 13515 313515 11869123 0 11869123 PART X, LINE 2: THE FOUNDATION HAS NO UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2013 IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. THE FOUNDATION IS NO LONGER SUBJECT TO FEDERAL OR STATE AND LOCAL TAX EXAMINATIONS BY TAX AUTHORITIES FOR YEARS BEFORE 2010. 0 EAST ASIA AND THE PACIFIC 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH - DRUG DISCOVERY 260179 EUROPE 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH - DRUG DISCOVERY, CONTRACT AWARD AND YOUNG INVESTIGATOR AWARD 225000 NORTH AMERICA 0 0 RESEARCH GRANTS TO SCIENTISTS RESEARCH - DRUG DISCOVERY 2000 0 0 0 0 0 0 487179 0 487179 EAST ASIA AND THE PACIFIC RESEARCH - DRUG DISCOVERY 203000 WIRE N/A N/A EUROPE RESEARCH - YOUNG INVESTIGATOR AWARD 34000 WIRE N/A N/A EUROPE RESEARCH - CONTRACT AWARD 78000 WIRE N/A N/A EUROPE RESEARCH - CONTRACT AWARD 60000 WIRE N/A N/A EAST ASIA AND THE PACIFIC RESEARCH - DRUG DISCOVERY AWARD 57179 WIRE N/A N/A EUROPE RESEARCH - YOUNG INVESTIGATOR AWARD 25000 WIRE N/A N/A EUROPE RESEARCH - YOUNG INVESTIGATOR AWARD 13500 WIRE N/A N/A EUROPE RESEARCH - YOUNG INVESTIGATOR AWARD 13500 WIRE N/A N/A 8 0 0 0 0 0 0 0 DETROIT GALA 2392193 2257193 135000 13600 5684 13145 102571 NEW YORK CITY GALA 814360 727110 87250 3558 702 2500 80490 5 2605844 2502768 103076 103076 5812397 5487071 325326 17158 6386 15645 286137 325326 0 1 BOSTON CHILDREN'S HOSPITAL PO BOX 414413 BOSTON MA 02241 042774441 501(C)(3) 149999 PATIENT SUPPORT - CLINIC NETWORK BRIGHAM & WOMEN'S HOSPITAL PO BOX 3887 BOSTON MA 02241 042312909 501(C)(3) 291885 RESEARCH - PRECLINICAL CONSORTIUM CENIX BIOSCIENCE USA 80 SOUTH EIGHTH STREET SUITE 900 MINNEAPOLIS MN 55402 233044047 511806 RESEARCH - CORPORATE PARTNERSHIP CHADD NATIONAL 8181 PROFESSIONAL PLACE SUITE 150 LANDOVER MD 20785 680480736 501(C)(3) 15000 RESEARCH - CONTRACT AWARD CHILDREN'S HEALTHCARE OF ATLANTA 1605 CHANTILLY DR SUITE 300 ATLANTA GA 30324 580572412 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL AND CLINICS OF MINNESOTA 2525 CHICAGO AVE S - CSC 560 MINNEAPOLIS MN 55404 411814223 501(C)(3) 12000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL OF PENNSYLVANIA DIVISIONS OF ONCOLOGY 11TH FLOOR CTRB RM 11032 3501 CIVIC CENTER BLV PHILADELPHIA PA 19104 231352166 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL OF PITTSBURGH 4401 PENN AVENUE PITTSBURGH PA 15224 251865744 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL BOSTON BOSTON CHILDRENS HOSPITAL 300 LONGWOOD AVE HUNNEWELL 542 BOSTON MA 02115 042774441 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL COLORADO 13123 E 16TH AVE B-155 AURORA CO 80045 840166760 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BLVD MS 82 LOS ANGELES CA 90027 951690977 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK CHILDREN'S RESEARCH INSTITUTE 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 521654453 501(C)(3) 72334 RESEARCH - CLINICAL RESEARCH AWARD, CONTRACT AWARD CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER 3333 BURNET AVENUE ML 4006 CINCINNATI OH 45229 310833936 501(C)(3) 314814 RESEARCH - PRECLINICAL CONSORTIUM DANA-FARBER CANCER INSTITUTE 10 BROOKLINE PLACE WEST 6TH FLOOR BROOKLINE MA 02445 042263040 501(C)(3) 23875 RESEARCH - YOUNG INVESTIGATOR AWARD, SCHWANNAMATOSIS DUKE UNIVERSITY BOX 3936 DURHAM NC 27705 560532129 501(C)(3) 52750 RESEARCH - YOUNG INVESTIGATOR AWARD FLORIDA HOSPITAL FOR CHILDREN 601 E ROLLINS STREET ORLANDO FL 32804 592965441 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK FOX CHASE CANCER CENTER 510 TOWNSHIP LINE ROAD CHELTENHAM PA 19012 232003072 501(C)(3) 187500 RESEARCH - PRECLINICAL CONSORTIUM GENERAL HOSPITAL CORPORATION 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)(3) 229125 RESEARCH - DRUG DISCOVERY, YOUNG INVESTIGATOR AWARD, SCHWANNAMATOSIS GILBERT NEUROFIBROMATOSIS INSTITUTE 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 521640403 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK HENRY FORD HEALTH SYSTEM 30131 WEST GRAND BLVD SUITE 700 DETROIT MI 48202 381357020 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK INDIANA UNIVERSITY PO BOX 66057 INDIANAPOLIS IN 46266 356001673 501(C)(1) 431587 RESEARCH - PRECLINICAL CONSORTIUM, YOUNG INVESTIGATOR AWARD JOHNS HOPKINS UNIVERSITY 733 N BROADWAY BALTIMORE MD 21205 237424440 501(C)(3) 102215 RESEARCH - DRUG DISCOVERY, YOUNG INVESTIGATOR AWARD, SCHWANNAMATOSIS LOUISIANA STATE UNIVERSITY 200 HENRY CLAY AVENUE NEW ORLEANS LA 70118 726000848 501(C)(1) 6000 PATIENT SUPPORT - CLINIC NETWORK MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55905 416011702 501(C)(3) 6600 PATIENT SUPPORT - CLINIC NETWORK MEDICAL COLLEGE OF WISCONSIN 8701 W WATERTOWN PLANK RD CCC 540 MILWAUKEE WI 53226 390806261 501(C)(3) 15250 RESEARCH - CONTRACT AWARD MIAMI CHILDREN'S HOSPITAL 3100 SW 62ND AVENUE MIAMI FL 33155 591720704 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK NEW YORK PRESBYTERIAN HOSPITAL 525 EAST 68TH STREET NEW YORK NY 10065 133957095 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK NEW YORK UNIVERSITY MEDICAL CENTER 160 EAST 32ND STREET NEW YORK NY 10016 135562309 501(C)(3) 6600 PATIENT SUPPORT - CLINIC NETWORK OHIO STATE UNIVERSITY 456 W 10TH AVENUE SUITE 4A COLUMBUS OH 43210 316401599 501(C)(1) 192500 RESEARCH - PRECLINICAL CONSORTIUM PISCES THERAPEUTICS LLC 16192 COASTAL HIGHWAY LEWES DE 19958 273893082 25000 RESEARCH - DRUG DISCOVERY SANTA CLARA VALLEY MEDICAL CENTER 2400 MOORPARK AVENUE SAN JOSE CA 95128 770187890 501(C)(3) 5000 PATIENT SUPPORT - CLINIC NETWORK SCRIPPS RESEARCH INSTITUTE 10550 N TORREY PINES RD LA JOLLA CA 92037 330435954 501(C)(3) 54147 RESEARCH - YOUNG INVESTIGATOR AWARD ST JOSEPH'S CHILDREN'S HOSPITAL 703 MAIN STREET PATERSON NJ 07503 222448138 501(C)(3) 6000 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF ALABAMA BIRMINGHAM 720 20TH STREET SOUTH BIRMINGHAM AL 35294 636005396 501(C)(1) 68100 RESEARCH - OTHER UNIVERSITY OF CALIFORNIA SAN FRANCISCO 1855 FOLSOM STREET SUITE 425 SAN FRANCISCO CA 94143 946036493 501(C)(1) 351790 RESEARCH - PRECLINICAL CONSORTIUM, DRUG DISCOVERY UNIVERSITY OF CENTRAL FLORIDA 12424 RESEARCH PARKWAY SUITE 300 ORLANDO FL 32826 592924021 501(C)(1) 51606 RESEARCH - CONTRACT AWARD UNIVERSITY OF CHICAGO 1427 E 60TH STREET SUITE 120 CHICAGO IL 60637 362177139 501(C)(1) 63997 RESEARCH - YOUNG INVESTIGATOR AWARD UNIVERSITY OF FLORIDA 123 GRINTER PO BOX 113001 GAINSVILLE FL 326113001 596002052 501(C)(1) 20000 RESEARCH - CONTRACT AWARD UNIVERSITY OF MICHIGAN 3014 FLEMING ANN ARBOR MI 481091340 386006309 501(C)(1) 32000 RESEARCH - YOUNG INVESTIGATOR AWARD, CONTRACT AWARD, CLINICAL RESEARCH AWARD UNIVERSITY OF MINNESOTA 420 DELAWARE STREET MINNEAPOLIS MN 55455 416007513 501(C)(1) 21490 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF OKLAHOMA 1200 N PHILLIPS AVENUE OKLAHOMA CITY OK 73104 736017987 501(C)(1) 6000 PATIENT SUPPORT - CLINIC NETWORK UNIVERSITY OF TEXAS SOUTHWESTERN PO BOX 841753 DALLAS TX 75284 752556007 501(C)(1) 82599 RESEARCH - YOUNG INVESTIGATOR AWARD UNIVERSITY OF UTAH 50 N MEDICAL DRIVE SALT LAKE CITY UT 84132 876000525 501(C)(1) 6600 PATIENT SUPPORT - CLINIC NETWORK VANDERBILT UNIVERSITY MEDICAL CENTER DEPT AT 40303 ATLANTA GA 31192 620476822 501(C)(3) 69750 RESEARCH - YOUNG INVESTIGATOR AWARD WASHINGTON UNIVERSITY 660 SOUTH EUCLID AVENUE ST LOUIS MO 62110 061043412 501(C)(3) 100966 RESEARCH - YOUNG INVESTIGATOR AWARD WOLTER KLUWER HEALTH PO BOX 64914 BALTIMORE MD 64914 132932696 28615 RESEARCH - OTHER 43 3 X X X 0 0 0 0 0 0 0 0 0 ANNETTE BAKKER PRESIDENT/CHIEF SCIENTIFIC OFFICER 201750 0 0 0 0 0 6053 0 22137 0 229940 0 0 0 JOHN RISNER PRESIDENT/CEO (FORMER) 144875 0 0 0 0 0 4346 0 22785 0 172006 0 0 0 X 7 37741 FMV X AUCTION ITEMS 211 65922 FMV 0 1 0 FORM 990, PART VI, SECTION A, LINE 4 THE ARTICLES OF INCORPORATION AND BY-LAWS WERE AMENDED AND RESTATED IN 2013. FORM 990, PART VI, SECTION B, LINE 11 THE COMPLETE FORM 990 IS DISTRIBUTED IN DRAFT FORM VIA E-MAIL TO ALL BOARD MEMBERS WITH A RETURN RECEIPT PRIOR TO FILING. EACH BOARD MEMBER ACKNOWLEDGES THEIR RECEIPT, REVIEW, AND ACCEPTANCE OF THE FORM 990. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY AND REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE POLICY ON AN ANNUAL BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S TOP MANAGEMENT AND KEY EMPLOYEES ARE REVIEWED FOR PERFORMANCE ON AN ANNUAL BASIS. COMPENSATION FOR THESE POSITIONS ARE REVIEWED AND APPROVED BY THE BOARD'S PERSONNEL COMMITTEE. COMPENSATION IS DETERMINED USING CURRENTLY AVAILABLE SALARY DATA FOR NON-PROFITS OF SIMILAR SIZE AND MISSION IN THE NEW YORK CITY AREA. FORM 990, PART VI, SECTION C, LINE 19 ALL DOCUMENTS ARE AVAILABLE UPON REQUEST WITHIN THE PRESCRIBED TIME FRAMES AS REQUIRED. FORM 990, PART XI, LINE 9: LOSS ON UNCOLLECTIBLE ACCOUNTS -13,515. FORM 990, PART XII, LINE 2C THE CHILDREN'S TUMOR FOUNDATION HAS AN AUDIT COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT.