2014-05-01T10:08:49-05:00 2013-09-30 861065772 Deloitte Tax LLP 50 South Sixth Street Minneapolis MN 55402 990 2012-10-01 411704734 Be the Match Foundation BETH 6126275800 3001 Broadway Street NE No 601 Minneapolis MN 554131753 Amy Ronneberg 6126275800 2014-05-01 1 Kristina Rasmussen P00143920 6123974000 2012 2015-11-30 17:44:51Z Christine C Fleming 3001 Broadway Street NE No 601 Minneapolis MN 554131753 17279505 0 X www.bethematch.org X 1992 MN Support of the National Marrow Donor Program, a 501(c)3 entity 84-0865803. 13 10 32 2115 0 0 13317653 13613895 0 0 156975 628642 -1817 -51220 13472811 14191317 7095499 8542187 0 0 2237368 2573613 351159 319850 1512728 1291529 1672824 10975555 13108474 2497256 1082843 19736583 22059197 1332451 2094224 18404132 19964973 X Our Mission: Delivering Cures For Blood Cancers. For patients with blood cancers like leukemia and lymphoma, and other life-threatening diseases, a cure exists. See Schedule O. We are a community of donors, volunteers, health care professionals and researchers who deliver cures by helping patients get the life-saving marrow or cord blood transplant they need. Our passion to save lives drives us to help more patients survive each year. 0 0 4600000 4600000 Recruitment The Be The Match Registry is the world's largest and most diverse donor registry. In 2013, we added 539,000 new potential donors, of which 44 percent were racially and ethnically diverse. We have 11 million donors and 193,000 cord blood units on the Be The Match Registry, and access to 22.5 million potential donors and 601,000 cord blood units worldwide. 3309255 3309255 Patient Assistance - Be The Match Foundation's search assistance program is a pre-transplant grant program that provides guarantees of payment for search and/or procurement costs, enabling patients to proceed to search without delays caused by financial and/or insurance barriers. This fiscal year 709 awards were granted to transplant centers on behalf of patients. The transplant support assistance is a post-transplant grant program that provides direct financial assistance to families in financial need, to help with uncovered post-transplant expenses, such as food, ground transportation, lodging, co-pays, and insurance premiums. This year 1,203 patient awards were granted. The Donor Assistance program helps donors that will suffer a hardship when they take time off work to make a donation. 570711 492146 Research - Research-driven innovations make transplants a viable treatment for more patients. Funding clinical trials, both pediatric and adult, continues to be a priority, giving doctors new tools that impact a patient's survival rate as well as his or her quality of life. Research is conducted in hope of creating better cellular transplant therapies for survival and quality of life. Be The Match Foundation helps cover a portion of the research scholar grants, and during FY13, five Amy Manasevit research scholars as well as collaborative work done by a team of researchers at the Anthony Nolan Trust performed work related to these research efforts. 1341154 140786 BTMF fundraising staff partner with their National Marrow Donor Program colleagues on various initiatives important to both organizations. The related contributions come into BTMF and then are gifted to the NMDP applicable cost center that is incurring the specific expenses (i.e. the annual Council Meeting). 1341154 140786 9821120 1 1 0 0 0 0 0 0 0 1 1 0 0 0 0 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 0 0 0 1 1093 0 32 1 0 0 0 0 0 1 1 0 0 0 0 0 X 13 10 1 0 0 0 1 1 1 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AK AR AZ CA CO CT FL GA IL KS KY ME MD MA MI MN MS NC ND NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WV WI X X Amy Ronneberg 6126275800 3001 Broadway St NE Suite 100 Minneapolis MN 554131753 X Daniel D Arndt 1.00 1.00 X 0 0 0 Jiro Okochi 1.00 0.00 X 0 0 0 Joseph M Loughran 1.00 0.00 X 0 0 0 Lynn Abrahamsen 1.00 1.00 X 0 0 0 Barbara Peterson Burwell 1.00 0.00 X 0 0 0 James E Kwiatkowski 1.00 0.00 X 0 0 0 Anne McGeorge 1.00 0.00 X 0 0 0 William Pomeroy 1.00 1.00 X 0 0 0 Anthony Prioletti 1.00 0.00 X 0 0 0 Richard P Rieger 1.00 0.00 X 0 0 0 Jeffrey W Chell MD 2.00 38.00 X X 0 626352 92903 Dennis L Confer MD 2.00 38.00 X X 0 376078 53120 Bruce P Schmaltz 2.00 38.00 X X 0 135102 22936 Subramanian Krishnan 2.00 38.00 X X 0 316420 21698 Christine C Fleming 35.00 5.00 X 312163 0 30883 Tiffany S Friesen 40.00 0.00 X 116204 0 17041 Joan L Wadkins 40.00 0.00 X 103155 0 14888 Angela K Dahl 40.00 0.00 X 101047 0 10557 Gordon C Bryan 0.00 0.00 X 0 635578 17622 632569 2089530 281648 4 1 1 0 Mal Warwick & Associates 2550 Ninth Street Suite 103 Berkeley CA 94710 Direct Response 341920 OP3 Inc 4 Meadow Road Unit 3 Provincetown MA 02657 Event Planning 172500 Convio Inc 11501 Domain Drive Suite 200 Austin TX 78758 Online Giving 138751 Charity Dynamics Inc 3420 Exec Center Drive Ste G-100 Austin TX 78731 Online Giving 120184 4 2007781 5772078 5834036 257375 13613895 345680 345680 2640381 15000 2366981 5438 273400 9562 282962 282962 664549 2007781 715769 -51220 -51220 14191317 0 0 577422 5232932 5232932 3309255 3309255 366562 164953 183281 18328 1721808 694467 714702 312639 82061 28056 35829 18176 251238 82333 133122 35783 151944 48341 80574 23029 45000 45000 319850 319850 10121 10121 645604 45073 43177 557354 321011 54404 183858 82749 28602 28602 155948 49492 81782 24674 338805 100765 144248 93792 21376 21376 13413 13413 Registration/Membership 69076 750 42464 25862 Recognition 8279 2468 5735 76 15589 7831 7342 416 13108474 9821120 1774626 1512728 6879751 8630145 1137116 504968 15134 59770 8400 148870 108035 67649 40835 11022986 12017565 605547 805914 19736583 22059197 572077 1457385 760374 636839 1332451 2094224 X 13130432 15522458 5273700 4442515 0 18404132 19964973 19736583 22059197 1082843 477998 0 X 0 1 X 1 0 X 16607489 13196593 14001441 13891111 14288006 71984640 16607489 13196593 14001441 13891111 14288006 71984640 71984640 219944 96434 187400 156083 345680 1005541 72990181 5772078 0.98620 0.98660 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 5273700 6728306 0 6563161 996330 0 4442515 4810306 6572987 0 5236657 872936 0 5273700 6815488 8134046 0 9602027 537201 0 4810306 10037993 9681432 0 11527609 1376328 6815488 6854793 7024037 0 2457759 1313780 69298 10037993 1.00000 1 0 105141 65613 39528 38734 37843 891 4995 4579 416 40835 X 396382000 477998 392726769 393204767 3177233 10121 11003964 11014085 14191318 365560000 363465769 363465769 2094231 10121 11004123 11014244 13108475 Description of Intended Use of Endowment Funds: Part V, Line 4: See Schedule O, Form 990, Part III, Line 4a-d disclosure. Description of Uncertain Tax Positions Under FIN 48: Part X, Line 2: The Internal Revenue Service has determined that NDMP and BTMF are tax-exempt organizations under Section 501(c)(3) of the Internal Revenue Code. The not-for-profit status of NDMP and BTMF are considered tax positions under Financial Accounting Standards Board (FASB) Accounting Standards Codification (ASC) 740, Income Taxes. The Organization has reviewed its tax positions for all open tax years and has concluded that the Organization's not-for-profit tax positions have no impact on the consolidated financial statements. Part XI, Line 2d - Other Adjustments: NMDP total revenue eliminated for consolidated financial statement reconciliation purposes 387,594,000. NMDP investment income 1,491,000. NMDP change in unrealized appreciation on investments 2,926,000. Fundraising events direct expenses 715,769. Part XI, Line 4b - Other Adjustments: Intercompany contributions eliminated for consolidated financial statements 11,004,000. Rounding -36. Part XII, Line 2d - Other Adjustments: NMDP expenses eliminated for consolidated financial statement purposes 362,750,000. Fundraising events direct expenses 715,769. Part XII, Line 4b - Other Adjustments: Intercompany expenses eliminated for consolidated financial statements 11,004,000. Rounding 123. X X X X X X 1 Mal Warwick & Associates 2550 Ninth Street Suite 103 Berkeley CA 94710 Fundraising Consultant 0 234348 429500 -195152 Charity Dynamics Inc 3420 Executive Center Drive G-100 Austin TX 78731 Fundraising Consultant 0 0 102532 -102532 Convio Inc 11501 Domain Drive Suite 200 Austin TX 78758 Fundraising Consultant 0 0 125424 -125424 234348 657456 -423108 AK AL AR AZ CA CO CT DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY Learn, Live, Hope Hendrick Golf Eve 748209 670864 77345 0 11364 46644 9318 0 6161 Minneapolis Tribute Event 360710 246764 113946 0 2617 11741 53793 47498 19792 14 1563411 1090153 473258 0 506841 2672330 2007781 664549 13981 58385 63111 47498 532794 715769 -51220 Explanation of Fundraising Payments Schedule G, Part I, Line 2b, Column (v) The professional fee expenses listed on Schedule G Part I are for the consulting work and related fees. We are unable to break out the consulting costs from the printing, paper, and other expenses. Also, the gross receipts column from the Charity Dynamics & Convio activity is not able to be provided as the costs relate to consulting work for various fundraising activities and appeals used to raise money throughout the fiscal year. The gross receipts from activities for Mal Warwick was determined by summing all of our Direct Mail appeals in our Raiser's Edge gift database. 1 National Marrow Donor Program 3001 Broadway St NE Suite 100 Minneapolis MN 554131753 840865803 501(c)(3) 4600000 0 N/A Donor Recruitment to the Be The Match Registry National Marrow Donor Program 3001 Broadway St NE Suite 100 Minneapolis MN 554131753 840865803 501(c)(3) 492146 0 N/A Anthony Nolan Bone Marrow Trust & Amy Strelzer Manasevit Research Scholar Programs National Marrow Donor Program 3001 Broadway St NE Suite 100 Minneapolis MN 554131753 840865803 501(c)(3) 140786 0 N/A Various NMDP programs including Bioinformatics KIR Conference and NMDP Council Meeting 1 0 Patient Search Assistance Funds 617 1589704 0 N/A Patient Post Transplant Support Assistance 1190 1640670 0 N/A Donor Assistance 149 78881 0 N/A Procedure for Monitoring Grants in the U.S.: Part I, Line 2: Schedule I, Part I, Line 2: The National Marrow Donor Program cuts the checks to and has contractual agreements with the recruitment typing labs and research organizations that the Be The Match Foundation helps support. The NMDP monitors these agreements and payments. The NMDP fosters and maintains the long-standing relationships with the various labs tasked with typing our new recruits. NMDP works closely with the research scholars all the way from the grant award application through the end of the project. Schedule I, Part III: Patient search assistance grants are awarded through Be The Match Foundation. Patients apply for pre- and post-transplant support grants through Patient and Health Professional Services, a department within the National Marrow Donor Program, who review applications weekly, determines the grant needs based on the preliminary registry search and transplant center match criteria. The pre-transplant grants are awarded to cover potentially uninsured donor search assistance funds, and checks are written directly to transplant centers (organizations). The patient post-transplant grants are awarded to the applicant based on financial need and are used to cover such items as uninsured costs, co-pays, food, lodging, and ground transportation. Checks are written directly to the patient/applicant (individual). Donor assistance checks are also awarded to the applicant based on financial needs and are used to offset having to take unpaid time off from work in order to donate. Checks are written directly to the donor (individual). X 1 1 1 1 0 0 0 0 0 1 0 Jeffrey W Chell MD 0 489367 0 115474 0 21511 0 60225 0 32678 0 719255 0 0 Dennis L Confer MD 0 287839 0 51316 0 36923 0 15231 0 37889 0 429198 0 14907 Bruce P Schmaltz 0 121701 0 12017 0 1384 0 0 0 22936 0 158038 0 0 Subramanian Krishnan 0 256018 0 42358 0 18044 0 6918 0 14780 0 338118 0 0 Christine C Fleming 251819 0 37565 0 22779 0 3753 0 27130 0 343046 0 0 0 Gordon C Bryan 0 80753 0 53585 0 501240 0 0 0 17622 0 653200 0 12112 Part I, Line 1a BTMF provided for a social club membership for Christine Fleming. This membership was only used for the business purpose of cultivating contributors for BTMF. There was no personal use of this membership. Part I, Line 3 BTMF uses NMDP's compensation committee which is charged with setting the compensation of NMDP's CEO. As reported on NMDP's Form 990, Schedule J, a compensation committee, independent compensation consultant, written employment contract(s), compensation surveys or studies, and approval by the board or compensation committee are all utilized when determining compensation. The NMDP Bylaws state: "The Compensation Committee shall be comprised only of Voting Directors and shall include the Chair of the Board and at least one (1) non-officer Board member as voting committee members. The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation and shall have such other authority and responsibilities as set forth in the Compensation Committee Charter." The Compensation Committee Charter states: "The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation. The Compensation Committee shall conduct the Chief Executive Officer performance evaluation and make Chief Executive Officer compensation and benefit recommendations to the Executive Committee. In making the Chief Executive Officer's compensation and benefit recommendations, the Committee shall utilize, among other things, comparability data for compliance with IRS Intermediate Sanction rules. On a periodic basis, the Compensation Committee shall obtain comparability data from an independent compensation consultant. In addition, the Compensation Committee shall advise the Chief Executive Officer in the evaluation and compensation of and benefits for senior corporation employees, as well as the President of any affiliate of the Corporation reporting to the Chief Executive Officer." Supplemental Information Part III Part I, Line 4a: Gordy Bryan retired on September 30, 2011 and received a separation payment of $457,703 during calendar year 2012. Part I, Line 4b: The organization (BTMF through the National Marrow Donor Program) offers its officers, vice presidents, and directors a 457(b) deferred compensation plan (the "Plan") created in accordance with applicable provisions of the Internal Revenue Code. The Plan permits employees to defer a portion of their salary until future years. The accumulated deferred compensation balance is not available to employees until termination, retirement, death, or unforeseeable emergency. All amounts of compensation deferred under the Plan, and all income attributable to those amounts, are (until paid or made available to the employee or other beneficiary) solely the property of the NMDP, and the NMDP has all the related rights of ownership (not restricted to the payment of benefits under the Plan), subject only to the claim of the NMDP's general creditors. Participants' rights under the Plan are equal to those of general creditors of the NMDP in an amount equal to the fair market value of the deferred account for each participant. The related assets and liabilities are reported at fair market value based on quoted market prices and are included within deferred compensation funds and deferred compensation payable on the consolidated statement of financial position. The organization offers a supplemental benefits plan (the "Supplemental Plan") for its officers and vice presidents. Each year the Supplemental Plan contributes 14% of salary for the chief executive officer, 9% for other officers, and 4% for vice presidents. The Supplemental Plan is a flexible benefit plan allowing the officer to select from limited options, which include payment for individual long-term care, and the balance as a contribution into the 457(b) deferred compensation plan (above), and/or a capital accumulation account to supplement current basic and supplemental benefits. For the vice presidents, the Supplemental Plan is a flexible benefit plan allowing them to select from limited options, which includes a contribution into the 457(b) deferred compensation plan (above), and/or a capital accumulation account to supplement current basic and supplemental benefits. All Supplemental Plan participants receive life insurance. The capital accumulation account was created in accordance with applicable provisions of the Internal Revenue Code. The contributions into the capital accumulation account are subject to a two year vesting period, with an employee election prior to the end of the first year to extend this to a five year vesting period. If the participant remains employed by the organization after the vesting period, the accumulated account balance within the capital accumulation account will be paid out to each plan participant. The Supplemental Plan also provides for additional life insurance up to two times salary. The related assets and liabilities are reported at fair market value based on quoted market prices and are included within deferred compensation funds and deferred compensation payable on the consolidated statement of financial position. Amounts paid in current year 457(f) Capital Accumulation: Dennis Confer - $14,907 Gordon Bryan - $12,112 Supplemental Information Part III Part I, Line 7: Employee discretionary bonus and incentive plan payments are determined each year as part of the performance evaluation completed by Human Resources in collaboration with the individual's manager. X 4 2825 Cost/selling price X 52763 Cost/selling price X 19995 Cost/selling price X 11 3295 Cost/selling price X 132 28814 Cost/selling price X Jewelry 8 2190 Cost/selling price X Gift Cert. 102 68263 Cost/selling price X Tickets 92 79230 Cost/selling price 0 0 1 0 Part III, Line 4a-d: The heart of our mission: Delivering cures for blood cancers. For patients with blood cancers like leukemia and lymphoma, and other life-threatening diseases, a cure exists. Thanks to you-our community of donors, volunteers, health care professionals, researchers and financial supporters-more patients every year are receiving the life-saving marrow or umbilical cord blood transplant they need. Every four minutes someone is diagnosed with a blood cancer. And 70 percent do not have a donor in their family. They depend on Be The Match to find their life-saving match. As the world's leading nonprofit organization focused on saving lives through marrow and cord blood transplantation, Be The Match continues to improve access to transplant by leading efforts to remove barriers to treatment and strengthen our ability to meet the growing need. Thanks to your support, we continue to: - Facilitate more marrow and cord blood transplants every year - Grow and manage the world's largest and most diverse donor registry - Support patients and their families before, during and after transplant - Conduct research and education to expand treatment and improve outcomes - Engage the public in our life-saving mission On behalf of all the people who count on us when they need it most, we thank you for your never-ending passion and dedication to saving lives. Form 990, Part VI, Section A, line 2 The following individuals on the BTMF Board of Directors were also employees of NMDP during tax year 2013, thereby creating a business relationship: Jeffrey Chell, Dennis Confer, Subramanian Krishnan and Bruce Schmaltz. Form 990, Part VI, Section A, line 6 National Marrow Donor Program is the sole corporate member of Be the Match Foundation. The National Marrow Donor Program board elects the Board of Directors of Be the Match Foundation and approves the actions of Be the Match Foundation. Form 990, Part VI, Section A, line 7a See explanation for Form 990, Part VI, Section A, Line 6. Form 990, Part VI, Section A, line 7b See explanation for Form 990, Part VI, Section A, Line 6. Form 990, Part VI, Section A, Line 9: All current and former officers, directors, trustees, and key employees can be reached through the organization's mailing address. Form 990, Part VI, Section B, line 11 The organization contracted with the outside public accounting firm, Deloitte Tax, to prepare the Form 990. Pulling together the details and supporting reports for the return is a collaborative effort among a small group of individuals in the Financial Reporting & Compliance and Internal Audit areas of finance. That work is then reviewed by the Assistant Controller and Controller prior to sending to Deloitte. Once a draft is received back from Deloitte, it is reviewed by the staff that pulled the details together, the Assistant Controller, Controller, CFO and President of Be The Match Foundation. A copy of the return is provided to the organization's Board of Directors prior to filing. Form 990, Part VI, Section B, line 12c BTMF officers, directors, and key employees (NMDP Members) are required to follow the Conflict of Interest Policy enacted by NMDP. The Conflict of Interest Policy states the following: "All NMDP Members must disclose to the [NMDP] Executive Committee all conflicts of interest and business and family relationships and must annually complete and return to the [NMDP] Executive Committee the questionnaire which is a part of this Policy. Whenever in the course of events an NMDP Member's circumstances change such that the NMDP Member knows or has reason to believe that the NMDP Member may have an actual or perceived conflict of interest, such NMDP Member shall promptly disclose the potential conflict to the [NMDP] Executive Committee. As noted herein, if the potential conflict involves a Director, that Director shall not participate in or vote upon such matters until the question of the existence of the conflict of interest has been resolved by the [NMDP] Executive Committee in accordance with this Policy. Likewise, an officer or key employee may not become substantially involved in decision-making involving any covered litigation, contract or transaction until the [NMDP] Executive Committee resolves the conflict of interest question. The existence of an actual or potential conflict of interest turns on the specific facts and circumstances in each case. If an NMDP Member has an interest which may conflict with those of the NMDP, he or she must immediately disclose the matters and discuss them fully and frankly with the [NMDP] Executive Committee as set forth in detail below. An NMDP Member must not participate in any matter in which that the NMDP Member may have a conflict of interest without the express approval of the NMDP Executive Committee." Form 990, Part VI, Section B, line 15 For purposes of the 990 and as President of BTMF, Christine Fleming is considered a key employee and reports directly to the NMDP CEO. The compensation of the BTMF President is reviewed, evaluated, and set in accordance with the NMDP Bylaws and Compensation Committee Charter. The NMDP Bylaws state: "The Compensation Committee shall be comprised only of Voting Directors and shall include the Chair of the Board and at least one (1) non-officer Board member as voting committee members. The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation and shall have such other authority and responsibilities as set forth in the Compensation Committee Charter." The Compensation Committee Charter states: "The Compensation Committee shall review and evaluate the overall compensation and benefit structure of the Corporation. The Compensation Committee shall conduct the Chief Executive Officer performance evaluation and make Chief Executive Officer compensation and benefit recommendations to the Executive Committee. In making the Chief Executive Officer's compensation and benefit recommendations, the Committee shall utilize, among other things, comparability data for compliance with IRS Intermediate Sanction rules. On a periodic basis, the Compensation Committee shall obtain comparability data from an independent compensation consultant. In addition, the Compensation Committee shall advise the Chief Executive Officer in the evaluation and compensation of and benefits for senior corporation employees, as well as the President of any affiliate of the Corporation reporting to the Chief Executive Officer." Form 990, Part VI, Section C, line 19 The conflict of interest policy, Articles of Incorporation and consolidated audited financial statements and additional consolidating information are all made available to the public upon request. The consolidated audited financial statements are also available on our website. Summary financial statements are also included in our annual report, which is mailed to key stakeholders and posted on our website. Additionally, Articles of Incorporation are available at the MN Office of the Secretary of State, and consolidated audited financial statements may be obtained at the MN Office of Attorney General. Form 990, Part VII: The hours listed on the 990 Part VII are based on a 40 hour week that these individuals devoted to NMDP & BTMF during the year. It is estimated that employees of NMDP work approximately 40-50 hours in total for both NMDP & BTMF. The hours listed for the members of the governing body represents time devoted to BTMF based on a 40 hour week. For BTMF Board members also serving on the NMDP Board of Directors, the hours listed indicates time devoted to NMDP & BTMF. Form 990, Part VII: Subramanian Krishnan served as the BTMF Board Treasurer and was the top financial official of BTMF until 10/3/12. During the period of 10/4/12 to 9/30/13, Bruce Schmaltz served as the Interim BTMF Board Treasurer and as the top financial official of BTMF. National Marrow Donor Program 3001 Broadway Street NE Suite 100 Minneapolis MN 554132197 840865803 Save lives through cellular transplantation CO 501(c)(3) Schedule A, Line 7 N/A 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0