2014-04-24T10:06:42-05:00 2013-12-31 204723636 ISLER CPA LLC 1976 GARDEN AVENUE EUGENE OR 97403 990 2013-01-01 930995453 FANCONI ANEMIA RESEARCH FUND INC FANC 5416874658 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 BARRY RUBENSTEIN PRESIDENT 5416874658 2014-04-14 1 GARY ISKRA P00051776 5413425161 2013 2015-11-30 17:44:51Z BARRY RUBENSTEIN 1801 WILLAMETTE STREET NO 200 EUGENE OR 97401 1960665 0 X WWW.FANCONI.ORG X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE 13 13 9 19 0 0 1579265 1870643 0 0 75194 42664 2197 10570 1656656 1923877 1813068 1170514 0 0 337283 363291 0 0 119398 859502 800539 3009853 2334344 -1353197 -410467 5802617 5325551 1026901 960302 4775716 4365249 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE 0 0 1597860 972008 SUPPORT OF RESEARCH INTO THE CAUSE AND CURE OF FANCONI ANEMIA 465315 198506 10570 PROVIDING EDUCATION AND SUPPORT TO FAMILIES AFFECTED BY FANCONI ANEMIA 2063175 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 0 1 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 1 9 1 0 0 0 0 0 0 0 0 0 0 X 13 13 1 0 1 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 AL AK AZ AR CA CT FL GA IL KS KY LA ME MD MA MI MN MS SC NJ NH MO ND NC NY NM OR OK OH RI PA TN UT VA WA WV WI X X BARRY RUBENSTEIN 5416874658 1801 WILLAMETTE STREET EUGENE OR 97401 BARRY RUBENSTEIN PRESIDENT 2.00 X X 0 0 0 LYNN FROHNMAYER VICE-PRESIDENT 10.00 X X 0 0 0 BRIAN MATTHEWS SECRETARY/TREASURER 1.00 X X 0 0 0 DAVID FIASCHETTI BOARD MEMBER 1.00 X 0 0 0 PETER PLESS BOARD MEMBER 1.00 X 0 0 0 BRIAN HORRIGAN BOARD MEMBER 1.00 X 0 0 0 MARK PEARL BOARD MEMBER 1.00 X 0 0 0 KEVIN MCQUEEN BOARD MEMBER 1.00 X 0 0 0 RICHARD GELINAS BOARD MEMBER 1.00 X 0 0 0 KEVIN ROGERS BOARD MEMBER 1.00 X 0 0 0 AMY FROHNMAYER BOARD MEMBER 1.00 X 0 0 0 CHRISTOPHER BYRD BOARD MEMBER 1.00 X 0 0 0 ANNETTE WAXBERG BOARD MEMBER 1.00 X 0 0 0 LAURA HAYS EXECUTIVE DIRECTOR 40.00 X 55040 0 600 BEVERLY MAYHEW EXECUTIVE DIRECTOR 40.00 X 50011 0 0 105051 0 600 0 0 0 0 0 1870643 1870643 79452 79452 36788 -36788 -36788 -36788 OTHER INCOME 900099 10570 10570 10570 1923877 10570 0 42664 786567 786567 383947 383947 105051 78788 21010 5253 195580 143679 33104 18797 3101 2295 558 248 29274 21662 5270 2342 30285 22411 5451 2423 14543 14543 4887 4887 36790 18264 11719 6807 11992 7061 2725 2206 19318 13522 2898 2898 476766 462464 12302 2000 6844 6844 7252 3463 2750 1039 SPECIAL PROJECTS 64373 6595 57778 POSTAGE 27375 20242 3944 3189 PRINTING 26851 18486 8365 PHYSICIAN RECRUITING 22488 22488 81060 51241 23766 6053 2334344 2063175 151771 119398 949010 190 4880 1061329 1642 1653 90803 86430 6827 4373 4832579 4254718 7679 3288 5802617 5325551 40281 31640 986620 928662 1026901 960302 X 4171026 4365249 604690 0 4775716 4365249 5802617 5325551 -410467 0 X 0 1 X 1 0 X 1792265 1696806 2935471 1579265 1870643 9874450 1792265 1696806 2935471 1579265 1870643 9874450 1888843 7985607 187424 139545 116443 98735 79452 621599 10496049 0.76080 0.79140 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 90803 86430 4373 4373 INVESTMENTS - CD'S & CASH SWEEP 4254718 F 4254718 X 1923877 0 1923877 0 1923877 2334344 0 2334344 0 2334344 PART X, LINE 2: FANCONI ANEMIA RESEARCH FUND, INC. IS A NOT-FOR-PROFIT ORGANIZATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL INCOME TAXES. THE ORGANIZATION HAS ALSO BEEN CLASSIFIED AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF THE INTERNAL REVENUE CODE AND AS AN ENTITY THAT QUALIFIES FOR DEDUCTIBLE CONTRIBUTIONS. ACCORDINGLY, NO PROVISION HAS BEEN MADE FOR INCOME TAXES IN THE FINANCIAL STATEMENTS PURSUANT TO ACCOUNTING STANDARDS CODIFICATION (ASC) 740, INCOME TAXES. THE ORGANIZATION GENERALLY EVALUATES ANY UNCERTAIN TAX POSITIONS CONSISTENT WITH THE ACCOUNTING AND DISCLOSURE REQUIREMENTS OF ASC 450, CONTINGENCIES. 1 EUROPE 0 0 RESEARCH SERVICE GRANT REDUCING THE BURDEN OF SQUAMOUS CELL CARCINOMA IN FANCONI ANEMIA PATIENTS 198506 EUROPE 0 0 RESEARCH GRANT THE EFFECTS OF LOSS OF FANCONI GENE FUNCTION ON THE BEHAVIOR AND THERAPEUTIC RESPONSES OF HEAD AND NECK CANCERS 185441 0 0 0 0 0 0 383947 0 383947 EUROPE REDUCING THE BURDEN OF SQUAMOUS CELL CARCINOMA IN FANCONI ANEMIA PATIENTS 198506 EUROPE THE EFFECTS OF LOSS OF FANCONI GENE FUNCTION ON THE BEHAVIOR AND THERAPEUTIC RESPONSES OF HEAD AND NECK CANCERS 185441 0 0 0 0 0 0 PART I, LINE 2: THE PROPOSAL REVIEW COMMITTEE (PRC), COMPRISED OF FOUR BOD MEMBERS (INCLUDING TWO SCIENTISTS), REVIEWS ALL GRANT PROPOSALS. THE PRC THEN MEETS AND VOTES TO DETERMINE IF FUNDING OF THE PROPOSAL IS RECOMMENDED OR NOT. THE PRC RECOMMENDATION IS THEN SENT TO THE FULL BOD FOR A VOTE. IF THE MAJORITY OF THE BOD AGREES WITH THE PRC RECOMMENDATION, THE GRANT IS FUNDED. AN ACCEPTANCE OF AWARD DOCUMENT IS THEN SENT TO THE INVESTIGATOR THAT DETAILS THE AMOUNT OF FUNDING AND THE DATES OF THE PROJECT. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS, FINANCIAL AND RESEARCH REPORTS ARE REQUIRED EVERY YEAR OF THE PROJECT. 1 PORTLAND VA RESEARCH FOUNDATION PVAMC RD2 BLDG 103 E221B 3710 SW VA HOSPITAL ROAD PORTLAND OR 97239 943090170 242896 THE ROLE OF ALDEHYDE DEHYDROGENASES IN PROTECTING FANCONI ANEMIA HEMATOPOIETIC STEM CELLS DURING THE INFLAMMATORY RESPONSE UNIVERSITY OF PITTSBURGH CANCER INSTITUTE UPMC CANCER PAVILION ROOM 533 5150 CENTRE AVENUE PITTSBURGH PA 15232 250965591 50000 PROTECTION WITH JP4-039 OF NORMAL ORAL CAVITY AND OROPHARYNGEAL TISSUE DURING RADIOTHERAPY OF CANCER IN FANCONI ANEMIA D2-/- AND HPV+ K14E7 FANCD2 -/- MICE NORTHWESTERN UNIVERSITY 303 E SUPERIOR STREET LURIE 5-105 CHICAGO IL 60611 362167817 150000 IMPAIRED EMERGENCY GRANULOPOIESIS IN FA LEADS TO IMMUNE-DEFICIENCY AND PREDISPOSES TO ACUTE MYELOID LEUKEMIA THE FORSYTH INSTITUTE 245 1ST STREET STE 5 CAMBRIDGE MA 021421292 042104230 143670 IDENTIFICATION OF MICROBIAL AND HOST-DERIVED DETERMINANTS OF ORAL CARCINOGENESIS IN FANCONI ANEMIA DANA-FARBER CANCER INSTITUTE - HARVARD MEDICAL SCHOOL 450 BROOKLINE AVENUE M640 BOSTON MA 02215 042263040 200000 NOVEL THERAPEUTIC AGENTS FOR THE TREATMENT OF BONE MARROW FAILURE IN FANCONI ANEMIA 5 5 PART I, LINE 2: THE PROPOSAL REVIEW COMMITTEE (PRC), COMPRISED OF FOUR BOD MEMBERS (INCLUDING TWO SCIENTISTS), REVIEWS ALL GRANT PROPOSALS. THE PRC THEN MEETS AND VOTES TO DETERMINE IF FUNDING OF THE PROPOSAL IS RECOMMENDED OR NOT. THE PRC RECOMMENDATION IS THEN SENT TO THE FULL BOD FOR A VOTE. IF THE MAJORITY OF THE BOD AGREES WITH THE PRC RECOMMENDATION, THE GRANT IS FUNDED. AN ACCEPTANCE OF AWARD DOCUMENT IS THEN SENT TO THE INVESTIGATOR THAT DETAILS THE AMOUNT OF FUNDING AND THE DATES OF THE PROJECT. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS, FINANCIAL AND RESEARCH REPORTS ARE REQUIRED EVERY YEAR OF THE PROJECT. FORM 990, PART VI, SECTION A, LINE 2 DIRECTORS LYNN AND AMY FROHNMAYER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION A, LINE 4 POLICY MANUAL AND BYLAWS UPDATED IN 2013. FORM 990, PART VI, SECTION B, LINE 11 THE 990 IS REVIEWED BY THE PRESIDENT AND THE EXECUTIVE DIRECTOR PRIOR TO FILING AND THEN DISTRIBUTED TO THE BOARD FORM 990, PART VI, SECTION B, LINE 12C BOARD MEMBERS ANNUALLY STATE ANY REAL OR POTENTIAL CONFLICTS OF INTEREST ON A CONFLICT OF INTEREST DISCLOSURE FORM FORM 990, PART VI, SECTION B, LINE 15 IN 2013, EMPLOYEE COMPENSATION WAS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES FORM 990, PART VI, SECTION C, LINE 19 WHEN REQUESTED, WE MAKE A COPY AND MAIL THEM TO THE REQUESTING PARTY