2014-11-13T13:58:05-06:00 2013-12-31 341945695 SS&G INC 301 SPRINGSIDE DRIVE AKRON OH 443332434 990 2013-01-01 650404623 CREUTZFELDT-JAKOB DISEASE FOUNDATION INC CREU 2127195900 341 W 38TH STREET NO 501 NEW YORK NY 10018 FLORENCE KRANITZ PRESIDENT 2127195900 2014-11-13 1 THOMAS KOTICK P00235542 3306689696 2014-10-29 2013 2015-11-30 17:44:51Z FLORENCE KRANITZ 341 W 38TH STREET NO 501 NEW YORK NY 10018 684517 0 X WWW.CJDFOUNDATION.ORG X 1993 FL TO PROMOTE RESEARCH, EDUCATION, AWARENESS, PATIENT AND FAMILY SUPPORT SERVICES, AND OTHER CHARITABLE PROGRAMS REGARDING CREUTZFELDT-JAKOB DISEASE. 21 20 6 20 0 0 364010 619472 59470 41567 11763 5722 115703 13869 550946 680630 0 130000 0 0 233140 201438 0 0 64898 241801 334591 474941 666029 76005 14601 806446 798230 16667 17165 789779 781065 THE CREUTZFELDT-JAKOB DISEASE FOUNDATION CONSISTS OF MEMBERS WHO ARE CONCERNED ABOUT THE COMPLEXITY OF ISSUES SURROUNDING THIS FATAL BRAIN DISEASE. OUR MISSION IS TO SUPPORT FAMILIES AND LOVED ONES TOUCHED BY CJD. 0 0 415562 130000 42586 ADVOCACY EXPENSE TO PROMOTE RESEARCH ON THE DISEASE. EDUCATION SEMINARS TO FUNDERS OF CREUTZFELDT-JAKOB DISEASE. GRANTS TO SUPPORT RESEARCH ON HUMAN PRION DISEASE. 415562 1 1 0 0 0 0 0 0 0 0 1 0 0 1 0 1 1 0 0 0 1 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 6 1 0 0 0 0 0 0 0 0 0 0 X 21 20 1 0 0 0 0 0 0 1 1 0 0 1 0 0 1 1 0 0 OH FL NY X RUTHIE R GEORGE TREASURER 2127195900 341 W 38TH ST STE 501 NEW YORK NY 10018 FLORENCE KRANITZ PRESIDENT 40.00 X X 78750 0 0 SYBIL WILLEN SECRETARY 2.00 X X 0 0 0 RUTHIE R GEORGE TREASURER 15.00 X X 0 0 0 DR PIERLUIGI GAMBETTI MEDICAL DIRECTOR 2.00 X X 0 0 0 ANA BETRO VP OF FUNDRAISING 2.00 X X 0 0 0 MARK GOLDFARB CHAIRPERSON 2.00 X X 0 0 0 BOB KASSAI VICE CHAIRPERSON 2.00 X X 0 0 0 TOM HAUGHT BOARD MEMBER 2.00 X 0 0 0 MAYRA LICHTER BOARD MEMBER & CO-FOUNDER 2.00 X 0 0 0 SCOTT PATERNOSTER BOARD MEMBER 2.00 X 0 0 0 TOM SAWYER BOARD MEMBER 2.00 X 0 0 0 STUART YAFFA BOARD MEMBER 2.00 X 0 0 0 DEANA SIMPSON BOARD MEMBER 2.00 X 0 0 0 VERONICA OBERDORF BOARD MEMBER 2.00 X 0 0 0 PAUL PATERNOSTER BOARD MEMBER 2.00 X 0 0 0 BRIAN APPLEBY BOARD MEMBER 2.00 X 0 0 0 MARIE KASSAI BOARD MEMBER 2.00 X 0 0 0 AMANDA BAXLEY KALINSKY BOARD MEMBER 2.00 X 0 0 0 CHARLES CASH BOARD MEMBER 2.00 X 0 0 0 MICHAEL VITANZA BOARD MEMBER 2.00 X 0 0 0 DEBBIE YOBS BOARD MEMBER 2.00 X 0 0 0 78750 0 0 0 0 0 0 0 619472 619472 CONFERENCE INCOME 541900 41567 41567 41567 4903 4903 11000 0 11000 11000 11000 819 0 819 819 819 5737 3887 1850 1850 OTHER REVENUE 453000 1019 1019 1019 680630 42586 0 18572 90000 90000 40000 40000 78750 55125 15750 7875 106276 60683 16954 28639 2399 2399 14013 10388 1775 1850 145 145 20616 20616 6805 6805 39279 16646 13497 9136 88006 3286 84214 506 7836 7836 4576 4576 1684 1684 EDUCATION & SEMINARS 131306 131306 ANNUAL FUND EXPENSE 10670 10670 MOVING EXPENSE 6692 6692 WEBSITE & DATABASE 5926 5926 11050 2202 2626 6222 666029 415562 185569 64898 238256 232208 45000 61212 3981 2205 2054 1908 27247 20969 8958 6278 510333 441649 1694 48940 806446 798230 16667 17165 16667 17165 X 789779 781065 789779 781065 806446 798230 14601 -23315 0 X 0 1 X 1 0 X 334262 336883 285398 364010 619472 1940025 334262 336883 285398 364010 619472 1940025 6094 1933931 14652 14344 12347 11763 5722 58828 86122 124358 120592 164330 1054 496456 2495309 215781 0.77500 0.68990 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 27247 20969 6278 6278 DEPOSITS 21584 LT PLEDGE RECEIVABLE 27356 48940 X 676927 -23315 15725 3887 -3703 680630 0 680630 685641 15725 3887 19612 666029 0 666029 PART X, LINE 2: THE FOUNDATION IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES UNDER THE PROVISIONS OF INTERNAL REVENUE CODE SECTION 501(C)(3). THE FOUNDATION QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER SECTION 170(B)(1)(A). THE PREPARATION OF FINANCIAL STATEMENTS IN CONFORMITY WITH ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRES THE FOUNDATION TO REPORT INFORMATION REGARDING ITS EXPOSURE TO VARIOUS TAX POSITIONS TAKEN BY THE FOUNDATION. THE FOUNDATION HAS DETERMINED WHETHER ANY TAX POSITIONS HAVE MET THE RECOGNITION THRESHOLD AND HAVE MEASURED THE FOUNDATION'S EXPOSURE TO THOSE TAX POSITIONS. MANAGEMENT BELIEVES THAT THE FOUNDATION HAS ADEQUATELY ADDRESSED ALL RELEVANT TAX POSITIONS AND THAT THERE ARE NO UNRECORDED TAX LIABILITIES. FEDERAL AND STATE TAX AUTHORITIES GENERALLY HAVE THE RIGHT TO EXAMINE AND AUDIT THE PREVIOUS THREE YEARS OF TAX RETURNS FILED. ANY INTEREST OR PENALTIES ASSESSED TO THE FOUNDATION, OF WHICH THERE WERE NONE, ARE RECORDED IN ADMINISTRATIVE EXPENSES. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES NETTED AGAINST INCOME 3,887. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES NETTED AGAINST INCOME 3,887. 1 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 RESEARCH GRANT TO RECIPIENT LOCATED IN THIS REGION 40000 0 0 0 0 0 0 40000 0 40000 RESEARCH GRANT EUROPE (INCLUDING ICELAND & GREENLAND) 1 40000 WIRE TRANSFER 0 0 0 0 0 0 PART I, LINE 2: THE ORGANIZATION AWARDS 1 YEAR GRANTS FOR RESEARCH BEING CONDUCTED. FOR EACH AWARD, A 6 MONTH AND 12 MONTH PROGRESS REPORT ARE DONE. 1 RESEARCH GRANTS 3 90000 PART I, LINE 2: THE ORGANIZATION AWARDS 1 YEAR GRANTS FOR RESEARCH BEING CONDUCTED. FOR EACH AWARD, A 6 MONTH AND 12 MONTH PROGRESS REPORT ARE DONE. FORM 990, PART VI, SECTION A, LINE 2 BOB KASSAI AND MARIE KASSAI HAVE A FAMILY RELATIONSHIP. AS WELL AS, PAUL AND SCOTT PATERNOSTER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11 CREUTZELDT-JAKOB DISEASE FOUNDATION RECEIVES A COPY OF FORM 990 TO REVIEW BEFORE THE RETURN IS FILED. FORM 990 IS REVIEWED BY THE PRESIDENT AND BOARD OF DIRECTORS FOR REVIEW OF ACCURACY AND COMPLETENESS. FORM 990, PART VI, SECTION B, LINE 15A THE ORGANIZATION RESEARCHED AND COMPARED THE SALARY OF OTHER CEO'S WORKING FOR OTHER NON-PROFIT ORGANIZATION'S OF ABOUT THE SAME SIZE. ONCE A FAIR AND COMPARABLE COMPENSATION WAS DETERMINED THE ORGANIZATION PRESENTED THE SALARY TO THE EXECUTIVE BOARD AND THE FULL BOARD FOR APPROVAL. THE CEO WAS NOT PRESENT DURING THE VOTE ON COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST.