2014-11-12T08:03:16-06:00 2013-12-31 232896692 BBD LLP 1835 MARKET STREET 26TH FLOOR PHILADELPHIA PA 19103 990 2013-01-01 383569922 NEPHCURE KIDNEY INTERNATIONAL NEPH 6105400186 15 WATERLOO AVENUE BERWYN PA 19312 IRVING A SMOKLER PRESIDENT 6105400186 2014-11-12 1 JENNIFER SOLOT P00749373 2155677770 2013 2015-11-30 17:44:51Z IRVING A SMOKLER 15 WATERLOO AVENUE BERWYN PA 19312 3675194 0 X WWW.NEPHCURE.ORG X 2000 MI SEE PAGE 2, PART III STATEMENT OF PROGRAM SERVICE ACCOMPLISHMENTS, LINE 1. 17 17 12 600 0 0 2184438 3277656 273691 5290 3314 2467 0 0 2461443 3285413 516000 525000 0 0 0 73228 0 0 320184 1576300 1643763 2092300 2241991 369143 1043422 1484616 2107561 2197419 1748609 -712803 358952 THE NEPHCURE FOUNDATION IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORT RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME, IMPROVE TREATMENT AND FIND A CURE. 0 0 1232460 525000 RESEARCH - THE NEPHCURE FOUNDATION COMMITTED TO MULTI-YEAR GRANTS FOR BASIC, TRANSLATIONAL AND CLINICAL SCIENTIFIC RESEARCH. THE PURPOSE BEING TO DETERMINE CAUSES OF KIDNEY DISEASE, FSGS & NEPHROTIC SYNDROME THAT COULD LEAD TO EFFECTIVE TREATMENTS. (DONATED PROFESSIONAL SERVICES: $50,860) 496819 5290 HEALTH AND EDUCATION - THE NEPHCURE FOUNDATION FUNDS AND MANAGES PROGRAMS TO EDUCATE PATIENT/FAMILIES ABOUT NEPHROTIC SYNDROME & FSGS. THE NEPHCURE FOUNDATION ALSO PROVIDES EDUCATION MATERIALS (BI-LINGUAL) FOR PHYSICIANS AND DIRECTLY TO PATIENT FAMILIES. (DONATED PROFESSIONAL SERVICES: $542,994) 56302 ADVOCACY - THE NEPHCURE FOUNDATION WORKS WITH THE NATIONAL INSTITUTES OF HEALTH AND OTHER HEALTH FUNDING ORGANIZATIONS TO ENCOURAGE MORE RESEARCH INTO NEPHROTIC SYNDROME & FSGS. 1785581 1 1 0 1 0 1 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 0 1 1 0 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 31 0 12 1 0 0 0 0 0 1 1 0 0 0 0 X 17 17 1 1 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 AL AK AZ AR CA CO CT FL GA KS KY IL LA ME MD MA MI MN MS MO NH NJ NM NY NC OK OH OR PA RI SC TN UT VA WV WA WI X EXECUTIVE DIRECTOR 6105400186 15 WATERLOO AVENUE BERWYN PA 19312 IRVING A SMOKLER PHD PRESIDENT 7.00 X X 0 0 0 RON COHEN VICE PRESIDENT 5.00 X X 0 0 0 ANDREW SILVERMAN TREASURER 1.00 X X 0 0 0 MICHAEL LEVINE SECRETARY 40.00 X X 0 0 0 KATHLEEN BRODERICK BOARD MEMBER 5.00 X 0 0 0 CLAIRE CASCIO RN BOARD MEMBER 5.00 X 0 0 0 JIM DUQUETTE BOARD MEMBER 2.00 X 0 0 0 JENNIFER GEISSER BOARD MEMBER 1.00 X 0 0 0 SCOTT GOLDSTEIN BOARD MEMBER 1.00 X 0 0 0 DAVID KERSHAW MD BOARD MEMBER 1.00 X 0 0 0 ELAINE KAMIL MD BOARD MEMBER 1.00 X 0 0 0 SARETTA MCDONOUGH ESQ BOARD MEMBER 2.00 X 0 0 0 JOHN ROY BOARD MEMBER 1.00 X 0 0 0 CAROL SMOKLER PHD BOARD MEMBER 1.00 X 0 0 0 WILLIAM SMOYER MD BOARD MEMBER 1.00 X 0 0 0 CHARLES TURNER BOARD MEMBER 4.00 X 0 0 0 MANU VARMA BOARD MEMBER 1.00 X 0 0 0 HENRY BREHM EXECUTIVE DIRECTOR 60.00 X 10751 0 780 10751 0 780 0 0 0 0 VIZION GROUP 15 WATERLOO AVENUE BERWYN PA 19312 MGT & OTHER SERVICES 734290 1 1640893 1636763 3277656 PATIENT EDUC SEMINARS 900099 5290 5290 5290 2467 2467 317751 1640893 317751 0 72030 72030 0 3285413 5290 0 2467 425000 425000 100000 100000 10751 9010 97 1644 51799 43412 468 7919 3450 2892 31 527 7228 6058 65 1105 590683 484360 17721 88602 1865 1865 56302 56302 97355 16524 63557 17274 98714 96747 1967 96464 51139 44673 652 18864 15977 718 2169 58646 48090 1760 8796 24385 24345 40 266987 266987 7903 6322 1581 SPECIAL EVENTS 182696 182696 PROFESSIONAL SERVICES 49201 43686 5515 GRANT EXPENSES 22686 22686 71012 64179 6833 2241991 1785581 136226 320184 374470 420932 874078 725419 198409 855527 37659 105683 1484616 2107561 70453 97869 2075325 1594119 51641 56621 2197419 1748609 X -771013 -389758 58210 748710 -712803 358952 1484616 2107561 X 1043422 28333 X 0 1 X 1 0 X 2021853 2069743 2358766 2362438 3277656 12090456 2021853 2069743 2358766 2362438 3277656 12090456 680923 11409533 19274 6097 4205 3314 2467 35357 132417 181334 270091 374988 587260 1546090 13671903 100981 0.83450 0.88510 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 0 0 0 0 0 1 28151 0 0 28151 0 PART II-B, LINE 1: THE ORGANIZATION PARTICIPATES IN "HILL DAYS" WHEN STAFF AND VOLUNTEERS MEET WITH LEGISLATORS TO DISCUSS THEIR PERSONAL STORIES AND THE NEED FOR GREATER RESEARCH FUNDING. 6 18713 167810 1 1 0 X 4269048 593854 389781 983635 3285413 0 3285413 3197293 593854 389781 983635 2213658 28333 28333 2241991 PART X, LINE 2: UNCERTAIN TAX POSITIONS UNDER ASC 740 GAAP REQUIRES ENTITIES TO EVALUATE, MEASURE, RECOGNIZE AND DISCLOSE ANY UNCERTAIN INCOME TAX POSITIONS TAKEN ON THEIR TAX RETURNS. GAAP PRESCRIBES A MINIMUM RECOGNITION THRESHOLD THAT A TAX POSITION IS REQUIRED TO MEET IN ORDER TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS. THE FOUNDATION BELIEVES THAT IT HAD NO UNCERTAIN TAX POSITIONS AS DEFINED IN GAAP AND THE STANDARD HAD NO IMPACT ON THE FOUNDATION'S FINANCIAL STATEMENTS. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 389,781. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 389,781. PART XII, LINE 4B - OTHER ADJUSTMENTS: GRANT RECOVERY 28,333. 0 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH 75000 NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION RESEARCH 25000 0 0 0 0 0 0 100000 0 100000 UNITED KINGDOM FOR RESEARCH 75000 CHECK CANADA FOR RESEARCH 25000 CHECK 0 0 0 0 0 0 PART I, LINE 2: GRANTS MONITORING PROCEDURES THE FOUNDATION GRANT AWARDS STIPULATE THAT DISBURSEMENT OF FUND IS TIED TO THE RECEIPT OF WRITTEN PROGRESS REPORTS EVERY SIX MONTHS. THE PRINCIPAL INVESTIGATOR MUST NOTE IN THOSE REPORTS IF THERE ARE ANY BUDGET CHANGES THAT DEVIATE FROM THE APPROVED PROJECT BUDGET ABOVE A DEFINED POINT (USUALLY $5,000). ON AN ANNUAL BASIS, THE PRINCIPAL INVESTIGATOR AND HIS/HER INSTITUTION MUST PROVIDE A DETAILED BUDGET REPORT LISTING ACTUAL EXPENDITURES BY BUDGET CATEGORY (E.G. SALARY AND FRINGE, EQUIPMENT, SUPPLIES, TRAVEL). NEPHCURE WALKS 695179 626305 68874 173 472 68229 COUNTDOWN TO A CURE 659093 509747 149346 129800 73 19473 4 604372 504841 99531 99531 1958644 1640893 317751 173 130272 73 187233 317751 0 72030 300 5000 66730 1 0.98000 72030 300 5000 66730 72030 NY 0 THE STATE OF NEW YORK DOES NOT PROVIDE LICENSES FOR CHARITY CASINO EVENTS. 0 1 0 1.00000 EXECUTIVE DIRECTOR OF THE ORGANIZAT 15 WATERLOO AVENUE BERWYN PA 19312 0 0 1 CHILDREN'S HOSPITAL OF PHILADELPHIA 3401 CIVIC CENTER BLVD PHILADELPHIA PA 19104 231352166 501(C)(3) 100000 NEPHCURE FOUNDATION-ASN RESEARCH GRANT MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST BOSTON MA 02114 041564655 501(C)(3) 75000 YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT UNIVERSITY OF PENNSLYVANIA 3451 WALNUT STREET PHILADELPHIA PA 19104 231352685 501(C)(3) 50000 POST-DOCTOTRAL FELLOWSHIP GRANT CHILDREN'S HOSPITAL OF PITTSBURG - UPMC 1405 SHADY AVENUE PITTSBURGH PA 15217 232935278 501(C)(3) 100000 ESTABLISHED INVESTIGATOR NEW DIRECTION GRANTS UNIVERSITY OF MICHIGAN 500 S STATE STREET ANN ARBOR MI 48109 386006309 501(C)(3) 100000 NEPHCURE FOUNDATION-ASN RESEARCH GRANT 5 0 PART I, LINE 2: THE ORGANIZATION MONITORS THE USE OF GRANT FUNDS THROUGH ITS GRANT APPLICATION PROCESS, WHICH REQUESTS A NUMBER OF DEPARTMENT AUTHORIZATIONS THAT ENSURE SUPPORT FOR EACH GRANT RECIPIENT. THE ORGANIZATION ALSO REQUIRES AN INTERIM REPORT FROM EACH GRANT RECIPIENT. UPON APPROVAL OF THE RECIPIENT'S INTERIM REPORT THE REMAINDER OF FUNDING IS DISBURSED. A FINAL REPORT IS ALSO REQUESTED OF THE GRANT RECIPIENT ONCE THE GRANT PERIOD HAS ENDED. VIZION GROUP ENTITY >35% OWNED BY THE EXECUTIVE DIRECTOR 816973 INDEPENDENT CONTRACTOR ARRANGEMENT 0 FORM 990, PART VI, SECTION A, LINE 2 FAMILY RELATIONSHIP AMONG VOTING MEMBERS IRVING A. SMOKLER, PHD AND CAROL SMOKLER, PHD ARE HUSBAND AND WIFE AND SERVE AS OFFICERS OF THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION A, LINE 3 DELEGATION OF MANAGEMENT DUTIES TO A MANAGEMENT COMPANY FOR EFFICIENCY PURPOSES THE ORGANIZATION CONTRACTS WITH AN INDEPENDENT CHARITY MANAGEMENT SERVICE COMPANY, INCLUDING THE POSITION OF EXECUTIVE DIRECTOR (NON-VOTING MEMBER OF THE BOARD) AND OTHER MANAGEMENT PERSONNEL OF THE ORGANIZATION. THE ORGANIZATION COVERS THE COST OF THE PERSONNEL WITHOUT MARK-UP AND MAY REDUCE THE FEE BY TERMINATING FUNCTIONS. THE ORGANIZATION INCURRED MANAGEMENT FEES AND OTHER PROFESSIONAL SERVICES FOR A TOTAL OF $816,973 FOR THE TAX YEAR ENDING 2013. FORM 990, PART VI, SECTION B, LINE 11 GOVERNING BODY REVIEW OF FORM 990 PRIOR TO ITS FILING, A FINAL COPY OF THE FORM 990 IS DISTRIBUTED TO EACH VOTING MEMBER OF THE GOVERNING BOARD. FORM 990, PART VI, SECTION B, LINE 12C MONITORING AND ENFORCEMENT OF CONFLICTS POLICY THE BOARD REVIEWS COMPLETED QUESTIONNAIRES AND DISCLOSES INFORMATION DURING THE ANNUAL BOARD MEETING FOR BOARD APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 PUBLIC AVAILABILITY OF OTHER DOCUMENTS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENT, AND FORM 990 ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9: GRANT RECOVERY 28,333.