2014-11-10T09:08:20-06:00 2014-06-30 010720052 MORRISON BROWN ARGIZ & FARRA LLC 1450 BRICKELL AVENUE 18TH FLOOR MIAMI FL 33131 990 2013-07-01 590968031 NATIONAL PARKINSON FOUNDATION INC NATI 8003274545 200 SE 1ST STREET SUITE 800 MIAMI FL 33131 JOYCE OBERDORF PRESIDENT AND CEO 8003274545 2014-11-05 1 P00124528 3053735500 2013 2016-02-25 16:41:14Z X JOYCE OBERDORF 200 SE 1ST STREET SUITE 800 MIAMI FL 33131 10206111 0 X WWW.PARKINSON.ORG X 1957 FL SEE SCHEDULE O. 24 24 50 0 0 0 8643105 8987310 642594 898374 665130 320427 0 0 9950829 10206111 2890095 3133173 0 0 3370485 3967564 376100 667791 2365512 4054872 4279519 10691552 12048047 -740723 -1841936 18946557 19289914 1839955 2341710 17106602 16948204 X SEE SCHEDULE O 0 0 3029982 1857855 SEE SCHEDULE O. 1590528 829141 RESEARCH PROGRAMS CONSISTS OF GRANTS TO FUND RESEARCH TO ADVANCE THE BETTER TREATMENT AND CARE OF PARKINSON'S PATIENTS THROUGH THE DEVELOPMENT OF NEW EVIDENCE, ANALYSIS OF EXISTING EVIDENCE, CREATION OF NEW GUIDELINES/BEST PRACTICES. NPF'S PARKINSON'S OUTCOMES PROJECT IS THE LARGES CLINICAL STUDY IN PARKINSON'S TRACKING THE IMPACT OF TREATMENTS ON PATIENT OUTCOMES, WITH MORE THAN 7,500 PEOPLE, 150 NEUROLOGISTS IN 20 CENTERS IN FOUR COUNTRIES PARTICIPATING. 2002644 124996 38400 PUBLIC EDUCATION CONSISTS OF RESOURCES, AND SUPPORT DESIGNED PRIMARILY TO EDUCATE AND RAISE AWARENESS OF PARKINSON'S DISEASE, EXPLAIN HOW IT AFFECTS PEOPLE, ADVOCATE FOR BETTER CARE, AND EDUCATE PATIENTS AND FAMILIES IN ORDER TO ENGAGE THEM IN IMPROVING AND EXTENDING THEIR LIVES WITH THE DISEASE. THESE PROGRAMS INCLUDE PUBLICATIONS, PATIENT AND PROFESSIONAL CONFERENCES, WEBCASTS, AND OUR ON-LINE INITIATIVES INCLUDING OUR WEBSITE (WWW. PARKINSON.ORG)AND SMART PHONE APPS.. NPF HAS DISTRIBUTED FOR FREE OVER 60,000 EDUCATIONAL MATERIALS, CONNECTED WITH AN ESTIMATED 1 MILLION PEOPLE IN OUR ON-LINE NETWORK, AND REACHED OVER 1.2 MILLION PEOPLE ACROSS ALL CHANNELS. 1878729 321181 859974 CHAPTER SERVICES CONSISTS OF ACTIVITIES AND PROGRAMS THAT SUPPORT NPF'S CHAPTER NETWORK, WHICH ARE DESIGNED TO OFFER EDUCATION, SUPPORT AND REFERRAL SERVICES. NPF HAS A NETWORK OF 23 CHAPTERS IN THE US PLUS THE BAHAMAS TO RAISE AWARENESS OF PARKINSON'S DISEASE AT THE GRASSROOTS LEVEL. 1878729 321181 859974 8501883 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 50 0 0 0 0 0 0 0 0 0 X 24 24 1 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT FL GA HI IL KS KY LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN UT VA WA WV WI X X X JOYCE OBERDORF 3055379900 200 SE 1ST STREET SUITE 800 MIAMI FL 33131 JOHN W KOZYAK ESQ CHAIRMAN 0.50 X 0 0 0 RICHARD ALHADEFF VICE CHAIRMAN 0.50 X 0 0 0 ANDREW B ALBERT VICE CHAIRMAN 0.50 X 0 0 0 MARSHALL R BURACK ESQ SECRETARY 0.50 X 0 0 0 BERNARD J FOGEL MD PAST CHAIRMAN 0.50 X 0 0 0 MARTIN SOLOMON TREASURER 0.50 X 0 0 0 PAUL F OREFFICE PRESIDENT EMERITUS 0.50 X 0 0 0 A JEFFREY BARASH ESQ BOARD MEMBER AT LARGE 0.50 X 0 0 0 PATRICIA DE STACY HARRISON BOARD MEMBER AT LARGE 0.50 X 0 0 0 CARMEN CARTAYA ESQ BOARD MEMBER AT LARGE 0.50 X 0 0 0 ALESSANDRO DI ROCCO MD BOARD MEMBER AT LARGE 0.50 X 0 0 0 HON SHELLEY J KRAVITZ BOARD MEMBER AT LARGE 0.50 X 0 0 0 TIMOTHY MARTORELLA BOARD MEMBER AT LARGE 0.50 X 0 0 0 ROBERT M MELZER BOARD MEMBER AT LARGE 0.50 X 0 0 0 ALAN SLEWETT BOARD MEMBER AT LARGE 0.50 X 0 0 0 JAMES FT MONHART BOARD MEMBER AT LARGE 0.50 X 0 0 0 ENRIQUE J SOSA PHD BOARD MEMBER AT LARGE 0.50 X 0 0 0 SEN PAUL B STEINBERG ESQ BOARD MEMBER AT LARGE 0.50 X 0 0 0 ROBERTO L PALENZUELA BOARD MEMBER AT LARGE 0.50 X 0 0 0 BRUCE WISNICKI BOARD MEMBER AT LARGE 0.50 X 0 0 0 J GORDON BECKHAM JR BOARD MEMBER AT LARGE 0.50 X 0 0 0 GAIL MILHOUS BOARD MEMBER AT LARGE 0.50 X 0 0 0 DANIEL ARTY CPA BOARD MEMBER AT LARGE 0.50 X 0 0 0 JOYCE OBERDORF PRESIDENT AND CEO 40.00 X 289000 0 12730 PETER SCHMIDT VP OF RESEARCH PROFESSIONAL PROGRAMS 40.00 X 207000 0 25297 DARCY TAYLOR VP OF CONSTITUENT RELATIONS 40.00 X 155000 0 18462 AMY GRAY VP CHAPTER RELATIONS & COMMUNITY PARTNERSHIPS 40.00 X 124000 0 17945 ROB SHAW SENIOR DIRECTOR ,NATIONAL SIGNATURE EVENTS 40.00 X 122750 0 10503 JILL WISTH VP FINANCE & ADMINISTRATION 40.00 X 119000 0 8705 JORGE ZAMUDIO SENIOR DIRECTOR OF PATIENT SERVICES 40.00 X 113000 0 21352 1129750 0 114994 9 0 1 0 LW ROBBINS 201 SUMMER ST HOLLISTON MA 01746 FUNDRAISING 646849 JC WHITE ARCHITECTURAL INTERIOR 3501 COMMERCE PARKWAY MIRAMAR FL 33025 OFFICE BUILDOUT 240732 FRANKLIN-DODD COMMUNICATIONS PO BOX 83053 CHICAGO IL 60691 PRINTING 228401 MERKLE RESPONSE SERVICE INC 100 JAMISON COURT HAGERSTOWN MD 21740 GIFT PROCESSING 147122 GRIZZARD 229 PEACHTREE STREET NE STE 1400 ATLANTA GA 30353 MAIL CAMPAIGN SVC 138261 5 8987310 8987310 CHAPTER SERVICES 900099 859974 859974 EDUCATION CONFERENCES 611710 38400 38400 898374 320427 320427 10206111 898374 0 320427 3133173 3133173 534027 383162 30173 120692 2680610 1617697 266546 796367 83823 52711 8295 22817 400342 284066 56415 59861 268762 169610 31380 67772 19664 19314 350 56000 56000 667791 667791 1117935 855287 262648 303747 289309 9698 4740 1026117 629743 46858 349516 609256 288081 241788 79387 508123 376187 57262 74674 298946 267418 13964 17564 59633 59633 85602 64202 5136 16264 113994 85495 6840 21659 80502 5742 8702 66058 12048047 8501883 1180652 2365512 2291173 1700285 1298836 401152 172477 63631 1812442 1331864 72200 480578 15069004 16564310 42867 79958 18946557 19289914 614852 656321 269675 593904 346250 512965 609178 578520 1839955 2341710 X 14972113 14641007 1054673 1227381 1079816 1079816 17106602 16948204 18946557 19289914 -1841936 1535414 148124 0 X X 0 1 X 1 0 X 8881327 9695787 7564998 9182180 9477342 44801634 319508 294292 243088 103520 173205 1133613 9200835 9990079 7808086 9285700 9650547 45935247 255020 185866 155585 134040 90961 821472 0 255020 185866 155585 134040 90961 821472 45113775 402632 428669 409251 349117 320427 1910096 402632 428669 409251 349117 320427 1910096 9603467 10418748 8217337 9634817 9970974 47845343 0.94290 0.92680 0.03990 0.04850 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 17982345 2069929 574623 16564310 17982345 319310 3232651 15069004 18789565 1172160 1979380 17982345 16469642 10070453 2356371 10106901 18789565 14032363 9330392 1469015 8362128 16469642 0 0 215999 71464 144535 1596443 1260400 336043 480578 ANNUITIES PAYABLE 578520 578520 X 11889649 1535414 148124 1683538 10206111 0 10206111 0 0 0 0 0 PART V, LINE 4: TO FUND PATIENT-CENTERED PROGRAMS, RESEARCH AND GENERAL CHARITABLE PURPOSES. PART X, LINE 2: THE FOUNDATION RECOGNIZES AND MEASURES TAX POSITIONS BASED ON THEIR TECHNICAL MERIT AND ASSESSES THE LIKELIHOOD THAT THE POSITIONS WILL BE SUSTAINED UPON EXAMINATION BASED ON THE FACTS, CIRCUMSTANCES AND INFORMATION AVAILABLE AT THE END OF EACH PERIOD. INTEREST AND PENALTIES ON TAX LIABILITIES, IF ANY, WOULD BE RECORDED IN INTEREST EXPENSE AND OTHER NON-INTEREST EXPENSE, RESPECTIVELY. PART XII, LINE 4B - OTHER ADJUSTMENTS: ROUNDING 0 EUROPE (INCLUDING ICELAND & GREENLAND) - 0 0 GRANTMAKING 75300 NORTH AMERICA - CANADA AND MEXICO, BUT 0 0 GRANTMAKING 346793 MIDDLE EAST AND NORTH AFRICA 0 0 GRANTMAKING 68625 0 0 0 0 0 0 490718 0 490718 NORTH AMERICA - CANADA AND MEXICO, BUT RESEARCH - (SEE SCHEDULE O) 60000 CHECK NORTH AMERICA - CANADA AND MEXICO, BUT RESEARCH - (SEE SCHEDULE O) 60000 CHECK NORTH AMERICA - CANADA AND MEXICO, BUT RESEARCH - (SEE SCHEDULE O) 6000 CHECK NORTH AMERICA - CANADA AND MEXICO, BUT RESEARCH - (SEE SCHEDULE O) 6900 CHECK NORTH AMERICA - CANADA AND MEXICO, BUT RESEARCH - (SEE SCHEDULE O) 6150 CHECK NORTH AMERICA - CANADA AND MEXICO, BUT QII - (SEE SCHEDULE O) 27908 CHECK EUROPE (INCLUDING ICELAND & GREENLAND) - RESEARCH - (SEE SCHEDULE O) 60000 CHECK MIDDLE EAST RESEARCH - (SEE SCHEDULE O) 60000 CHECK 0 0 0 0 0 0 PART I, LINE 2: ALL GRANT RECIPIENTS (DOMESTIC & FOREIGN) MAKE A FULL WRITTEN REPORT OF THE UTILIZATION OF FUNDS AWARDED BY NPF'S SCIENTIFIC ADVISORY BOARD AND GRANT ADMINISTRATION AT NPF. X X X X X 1 LW ROBBINS 201 SUMMER ST HOLLISTON MA 01746 FUNDRAISING 0 1617215 646849 970366 1617215 646849 970366 AL AK AZ AR CA CO CT FL GA HI IL KS LA ME MD MA MI MN MS MO NH NJ NM NY NC ND OH OK OR PA RI SC TN VA WA WV WI KY UT NONE 1 BAYLOR COLLEGE OF MEDICINE PARKINSON'S DISEASE CENTER & MOV DIS CLINIC 6550 FANNIN 1801 HOUSTON TX 77030 60000 PATIENT CARE - (SEE SCHEDULE O) BETH ISRAEL DEACONESS MEDICAL CENTER PARKINSON'S DISEASE & MOV DIS CENTE 330 BROOKLINE AVE - ROOM KS 228 BOSTON MA 02215 60000 PATIENT CARE - (SEE SCHEDULE O) BETH ISRAEL MEDICAL CENTER PARKINSONS DISEASE AND MOV DIS CLINIC NEUROLOGY DEPT PHILLIPS AMBULATORY CARE CENTER10 UNION SQUARE EAST SUI NEW YORK NY 10003 60000 PATIENT CARE - (SEE SCHEDULE O) DUKE HEALTH CENTER AT MORREENE ROAD 932 MOREENE ROAD DURHAM NC 27705 60000 ADVOCACY GEORGETOWN UNIVERSITY HOSPITAL DEPT OF NEUROLOGY MOVDIS PROGRAM 7PHC 3800 RESEIVOR ROAD NW WASHINGTON DC 20007 60000 PATIENT CARE - (SEE SCHEDULE O) GEORGIA REGENTS UNIVERSITY DIVISION OF SPONSORED PROGRAMS 1120 15TH STREET CJ-3301 AUGUSTA GA 30912 60000 PATIENT CARE - (SEE SCHEDULE O) JOHNS HOPKINS MEDICAL INSTITUTE PARKINSON'S DISEASE AND MOV DIS CENTER 600 N WOLFE STREET MEYER 6-119B BALTIMORE MD 21287 60000 PATIENT CARE - (SEE SCHEDULE O) KUMC RESEARCH INSTITUTE 3599 RAINBOW BLVD - MS 2012 KANSAS CITY KS 66160 60000 PATIENT CARE - (SEE SCHEDULE O) MASSACHUSETTS GENERAL HOSPITAL PO BOX 414876 MGH- RESEARCH FINANCE FINANCE BOSTON MA 02241 60000 PATIENT CARE - (SEE SCHEDULE O) NEW YORK UNIVERSITY SCHOOL OF MEDICINE 545 FIRST AVE GREENBERG HALL SCI-81 SCI-81 NEW YORK NY 10016 60000 PATIENT CARE - (SEE SCHEDULE O) NORTHWESTERN UNIVERSITY PARKINSON'S DISEASE & MOVEMENT DISORDERS CENTER 750 N LAKE SHORE DRIVERUBLOFF 7TH FLOOR CHICAGO IL 60611 60000 PATIENT CARE - (SEE SCHEDULE O) OREGON HEALTH & SCIENCE UNIVERSITY 3181 SW SAM JACKSON PARK RD OP -32 PORTLAND OR 97201 60000 PATIENT CARE - (SEE SCHEDULE O) STJOSEPH'S HOSPITAL & MEDICAL CENTER 240 W THOMAS ROAD SUITE 301 PHOENIX AZ 85013 60000 PATIENT CARE - (SEE SCHEDULE O) STRUTHERS PARKINSON'S CENTER 6701 COUNTRY CLUB DRIVE GOLDEN VALLEY MN 55427 60000 PATIENT CARE - (SEE SCHEDULE O) THE PARKINSON'S INSTITUTE AND CLINICAL CENTER 675 ALMANOR AVE SUNNYVALE CA 94085 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF CALIFORNIA SAN FRANCISCO PARKINSON'S DISEASE CLINIC AND RESE 1855 FOLSOM STREET MCG 425 BOX 0897 DEPT UCSF CONTROLLERS OFFICE EXT SAN FRANCISCO CA 94143 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF FLORIDA PARKINSON'S DISEASE & MOVDIS CENTER DEPT OF NEUROLOGY PO BOX 100236 GAINESVILLE FL 32610 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE SPONSORED PROGRAMS PO BOX 025405 MIAMI FL 33102 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL SCHOOL OF MEDICINE 107 MANNING DRIVE CB 7025 CHAPEL HILL NC 27599 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF PENNSYLVANIA PARKINSON'S DISEASE AND MOVEMENT DISORDERS CENT DEPT OF NEUROLOGY 330 SOUTH NINTH STREET PHILADELPHIA PA 19107 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF ROCHESTER MEDICAL CENTER 601 ELMWOOD AVENUE BOX 673 ROCHESTER NY 14642 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF SOUTH FLORIDA PARKINSON'S DISEASE & MOV DIS CENTER PO BOX 864568 ORLANDO FL 32886 60000 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF SOUTHERN CALIFORNIA PARKINSON'S DISEASE AND OTHER MOV DIS 1520 SAN PABLO STREET SUITE 3000 LOS ANGELES CA 90033 60000 PATIENT CARE - (SEE SCHEDULE O) VANDERBILT UNIVERSITY MEDICAL CENTER DEPT AT 40303 DEPARTMENT OF FINANCE FINANCE ATLANTA GA 31192 60000 PATIENT CARE - (SEE SCHEDULE O) NORTHWESTERN UNIVERSITY 710 NORTH LAKE SHORE DRIVE CHICAGO IL 60611 27908 PATIENT CARE - (SEE SCHEDULE O) UNIVERSITY OF FLORIDA DEPT OF NEUROLOGY CFO-CONRACTS GRANTS PO BOX 11301 GAINESVILLE FL GAINESVILLE FL 32611 25000 PATIENT CARE - (SEE SCHEDULE O) PART I, LINE 2: ALL GRANT RECIPIENTS (DOMESTIC & FOREIGN) MAKE A FULL WRITTEN REPORT OF THE UTILIZATION OF FUNDS AWARDED BY NPF'S SCIENTIFIC ADVISORY BOARD AND GRANT ADMINISTRATION AT NPF. X X 0 0 0 0 0 0 0 0 0 JOYCE OBERDORF PRESIDENT AND CEO 289000 0 0 0 0 0 6420 0 6310 0 301730 0 0 0 PETER SCHMIDT VP OF RESEARCH PROFESSIONAL PROGRAMS 207000 0 0 0 0 0 7500 0 17797 0 232297 0 0 0 DARCY TAYLOR VP OF CONSTITUENT RELATIONS 155000 0 0 0 0 0 2148 0 16314 0 173462 0 0 0 AMY GRAY VP CHAPTER RELATIONS & COMMUNITY PAR 124000 0 0 0 0 0 1631 0 16314 0 141945 0 0 0 ROB SHAW SENIOR DIRECTOR ,NATIONAL SIGNATURE 122750 0 0 0 0 0 4193 0 6310 0 133253 0 0 0 JILL WISTH VP FINANCE & ADMINISTRATION 119000 0 0 0 0 0 2395 0 6310 0 127705 0 0 0 JORGE ZAMUDIO SENIOR DIRECTOR OF PATIENT SERVICES 113000 0 0 0 0 0 3555 0 17797 0 134352 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 HAROLD KRAVITZ, SHELLEY KRAVITZ - FAMILY RELATIONSHIP PAUL OREFFICE - FAMILY RELATIONSHIP FORM 990, PART VI, SECTION B, LINE 11 AS INFORMATION IS COMPILED, VARIOUS COMPONENTS ARE REVIEWED BY SENIOR MANAGEMENT AND THE CHAIRMAN OF THE BOARD. ONCE FINALIZED, THE ENTIRE FORM 990 IS REVIEWED BY THE V.P. OF FINANCE AND PRESIDENT AND CEO. A COPY OF THE FORM 990 IS DISTRIBUTED ELECTRONICALLY TO DIRECTORS BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT MUST BE COMPLETED AND SIGNED BY EACH BOARD MEMBER, EMPLOYEE, AGENT, OR TRUSTEE OF THE FOUNDATION. ANY KNOWN OR REASONABLY FORESEEABLE ACTUAL OR POTENTIAL CONFLICT OF INTEREST MUST BE DISCLOSED IN WRITING AS SOON AS POSSIBLE TO THE VICE PRESIDENT, FINANCE AND ADMINISTRATION, CHIEF EXECUTIVE OFFICER OR A MEMBER OF THE EXECUTIVE COMMITTEE OF THE BOARD. THE DISCLOSURE STATEMENT MUST BE COMPLETED, EXECUTED AND FILED WITH THE FOUNDATION BY ALL INDIVIDUALS SEEKING TO SERVE THE FOUNDATION AS AN INTERESTED PERSON PRIOR TO SUCH INDIVIDUALS COMMENCING HIS OR HER SERVICE TO THE FOUNDATION. FORM 990, PART VI, SECTION B, LINE 15A THE PRESIDENT AND CEO'S COMPENSATION WAS ESTABLISHED BASED ON ADVICE PROVIDED BY A PROFESSIONAL RECRUITING FIRM RETAINED BY NPF, WHICH ADVICE WAS BASED ON COMPARABLE MARKET DATA. NPF HAD FORMED A COMMITTEE, COMPRISED OF THREE BOARD MEMBERS, TO RECRUIT A NEW CEO, AND THAT COMMITTEE VOTED TO APPROVE THE LEVEL OF COMPENSATION PROPOSED. NO ADJUSTMENTS TO THE CEO'S SALARY HAVE BEEN MADE SINCE THE DATE OF HIRE. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE LATEST FINANCIAL STATEMENTS AND TAX RETURN ARE ALSO AVAILABLE FOR DOWNLOAD FROM THE ORGANIZATION'S WEBSITE. FORM 990, PART XI, LINE 2C THE ORGANIZATION'S AUDIT COMMITTEE IS RESPONSIBLE FOR THE SELECTION OF THE INDEPENDENT ACCOUNTANTS AND OVERSIGHT OF THE ANNUAL AUDIT. THIS PROCESS HAS NOT CHANGED FROM THE PREVIOUS YEAR. FORM 990, PART III, LINE 1 & PART I, LINE 1 THE MISSION OF THE NATIONAL PARKINSON FOUNDATION IS TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH PARKINSON'S DISEASE THROUGH RESEARCH, EDUCATION AND OUTREACH. FOUNDED IN 1957, NPF IS A LEADING NATIONAL ORGANIZATION WITH AN EXTENSIVE GRASSROOTS NETWORK OF CENTERS OF EXCELLENCE, CHAPTERS AND SUPPORT GROUPS IN THE UNITED STATES, CANADA AND INTERNATIONALLY. UNIQUE AMONG THE NATIONAL PARKINSON'S ORGANIZATIONS, NPF IS THE ONLY ORGANIZATION WITH A SINGULAR FOCUS ON IMPROVING THE QUALITY OF CARE IN PARKINSON'S DISEASE. SINCE 1982, NPF HAS FUNDED MORE THAN $172 MILLION IN RESEARCH AND SUPPORT SERVICES. THE CORE OF OUR EFFORTS IS THE NPF CENTER OF EXCELLENCE NETWORK, 39 LEADING MEDICAL CENTERS AROUND THE GLOBE THAT DELIVER CARE TO MORE THAN 50,000 PARKINSON'S PATIENTS. THROUGH THIS NETWORK, NPF CREATES A COMMUNITY OF HEALTH CARE PROFESSIONALS DEDICATED TO IMPROVING CLINICAL CARE IN PARKINSON'S DISEASE. IN EACH OF OUR RESEARCH, EDUCATION AND OUTREACH PROGRAMS, NPF IS DEDICATED TO PROMOTING OUR PASSIONATE BELIEF THAT THE BEST CARE IS A COMPREHENSIVE APPROACH THAT ADDRESSES THE WHOLE PERSON AND THE FULL RANGE OF SYMPTOMS OF THE DISEASE. SCHEDULE F, PART II, COLUMN (F) AND SCHEDULE I, PART II, COLUMN (H) GRANTS WERE AWARDED TO INSTITUTIONS IN THE FOUNDATION'S NETWORK OF 39 CENTERS OF EXCELLENCE (COE'S) AND 11 CARE CONSORTIUM MEMBER CENTERS. THROUGH THE COES ALONE, NPF REACHES MORE THAN 50,000 PATIENTS WITH PARKINSON'S DISEASE AND ALMOST 70,000 PATIENTS WITH MOVEMENT DISORDERS. RESEARCH FUNDED IS LARGELY THROUGH NPF'S CLINICAL RESEARCH FUND, DESIGNED TO SUPPORT CUTTING-EDGE CLINICAL STUDIES OF NEW THERAPEUTIC OPTIONS FOR PARKINSON'S PATIENTS AS WELL AS RESEARCH COMPARING THE EFFECTIVENESS OF EXISTING TREATMENT OPTIONS. EACH YEAR, NPF, UNDER THE DIRECTION OF OUR CLINICAL AND SCIENTIFIC ADVISORY BOARD (CSAB), SUPPORTS FORWARD-LOOKING RESEARCH CONDUCTED BY THE WORLD'S TOP PARKINSON'S DISEASE (PD) EXPERTS. THE SINGULAR AIM OF NPF'S CLINICAL RESEARCH FUND IS TO DISCOVER THE BEST TREATMENT AND CARE OPTIONS FOR PEOPLE LIVING WITH PARKINSON'S DISEASE ANNUAL FUNDING PROCESS: REQUEST FOR APPLICATIONS ("RFAS") ARE ISSUED AS FUNDING BECOMES AVAILABLE, BUT NO LESS THAN ONCE PER YEAR. APPLICATIONS ARE ACCEPTED FROM ANY PRINCIPAL INVESTIGATOR AFFILIATED WITH A CURRENTLY CERTIFIED COE INDIVIDUAL INVESTIGATORS AT NON-CERTIFIED INSTITUTIONS ARE INVITED TO APPLY AS COLLABORATORS ALL RESEARCH IS PEER-REVIEWED BY NPF'S CLINICAL AND SCIENTIFIC ADVISORY BOARD, (CSAB) NPF DOES NOT FUND BASIC LABORATORY RESEARCH. PROGRAMS FUNDED IN COMPREHENSIVE CARE WERE AWARDED TO OFFER PATIENTS ACCESS TO AN ARRAY OF SERVICES THAT MANY TIMES ARE NOT COVERED BY INSURANCE INCLUDING TELEMEDICINE, EXERCISE AND PHYSICAL AND VOICE THERAPY. COMPREHENSIVE CARE GRANTS ALSO PROMOTED EDUCATION OF PATIENTS, CAREGIVERS AND HEALTHCARE PROVIDERS IN MULTIPLE AREAS; THESE EDUCATION PROGRAMS OFFERED THE TOOLS NECESSARY TO IMPROVE QUALITY OF LIFE AND PROMOTE CONTINUITY OF CARE OF THOSE AFFECTED BY PARKINSON'S DISEASE. THE PARKINSONS OUTCOME PROJECT IS NPF'S SIGNATURE INITIATIVE; THE CORE IS THE CREATION OF A STANDARDIZED, MULTI-CENTER CLINICAL PRACTICE DATABASE IN REAL-WORLD CLINICAL SETTINGS. IN PARTNERSHIP WITH OUR CENTERS OF EXCELLENCE, IN 2009 NPF LAUNCHED THE FIRST DATA-DRIVEN QUALITY IMPROVEMENT INITIATIVE TO INTRODUCE TO PARKINSON'S DISEASE A FOCUS ON CONTINUOUS IMPROVEMENT. THIS PROJECT SYSTEMATICALLY MEASURES AND TRACKS CARE OVER TIME FOR EVERY PATIENT DIAGNOSED WITH PARKINSON'S DISEASE. THE GOAL IS TO EXPLORE THE VARIATION IN CURRENT CLINICAL PRACTICE IN ORDER TO DETERMINE THE "RECIPES" FOR BEST OUTCOMES IN PARKINSON'S. OUR ULTIMATE AIM IS TO CREATE AND SHARE MODELS OF EXCELLENT CARE, SO THAT EVERY PARKINSON'S PATIENT RECEIVES THE MOST EFFECTIVE TREATMENT OPTIONS AVAILABLE, WHETHER THEY ARE SEEN BY A SPECIALIST AT A NPF CENTER OF EXCELLENCE, A GENERAL NEUROLOGIST OR THEIR PRIMARY CARE PHYSICIAN. THIS TYPE OF CLINICAL DATABASE, CAPTURING NON-SELECTED PATIENTS WHO ARE PROSPECTIVELY FOLLOWED OVER TIME IN LARGE NUMBERS AND MULTIPLE LOCATIONS, DOES NOT CURRENTLY EXIST IN PARKINSON'S CARE. IN ADDITION TO IMPROVING THE QUALITY OF CARE AND EXPANDING THE RESEARCH CAPACITY ACROSS THE NETWORK OF CENTERS. NPF'S PARKINSONS OUTCOME PROJECT AIMS TO: DRIVE IDENTIFICATION OF BEST PRACTICES IN PD CARE DISSEMINATE THESE PRACTICES TO BENEFIT EVERY PATIENT ESTABLISH PROVEN BASELINES FOR CARE TO INCREASE THE SENSITIVITY OF FUTURE RESEARCH THE DATA COLLECTED RELIES NOT ONLY ON PHYSICIANS TO ASSESS BUT ALSO THE EXPERIENCES OF PATIENTS. THE INTENT IS TO DEVELOP SCIENTIFICALLY VALIDATED QUALITY INDICATORS OF PARKINSON'S CARE WHICH CAN BE USED BY CENTERS TO BENCHMARK THEIR PROGRESS, TARGET CARE PROCESSES IN NEED OF IMPROVEMENT AND THUS, ENHANCE THEIR POSITIVE TREATMENT OUTCOMES. IN ADDITION THE DATABASE FORMS THE BASELINE INFRASTRUCTURE FOR CLINICAL STUDIES. NATIONAL PARKINSON FOUNDATION SOUTH FLORIDA INC 200 SE 1ST STREET MIAMI FL 33131 453266918 FUNDRAISING FL 501(C)(3) LINE 7 NATIONAL PARKINSON FOUNDATION INC 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 1 0 0 0 0