2014-05-13T16:33:44-05:00 2013-12-31 870794732 Bonifield Accounting Services 12717 E 64th Ct Kansas City MO 64133 990 2013-01-01 454597425 The Familial Hypercholesterolemia Foundation FAMI 1515 Hope Street South Pasadena CA 91030 David Pickhardt Treasurer 9134998657 2014-04-25 true Robert Bonifield P00832071 8168530257 2014-05-13 2013 2015-11-30 17:44:51Z The FH Foundation Katherine Wilemon 2284 Mar Vista Avenue Altadena CA 91001 766332 false X www.thefhfoundation.org X 2012 CA To raise awareness of FH (familial hypercholesterolemia) through education, advocacy, and research 6 6 3 0 0 765018 0 67 -2708 762377 0 0 58567 0 79622 786736 845303 -82926 444503 366923 5346 444503 361577 To raise awareness of FH (familial hypercholesterolemia) through education, advocacy, and research false false 450851 Establishment of the FH Foundation as a formal corporate entity with Articles of Incorporation, tax exemption, governance, mission, and strategic planRecruitment of board members - all of whom have FH or are clinicians who treat FHEstablishment of our Scientific Advisory Board and recruitment of members from among the most respected lipidologists in the USNumerous outreach initieatives to support funding of the Foundation - through initial donations from board members and continuing from industry and individualsEstablishment of our administrative offices in CaliforniaCreation and execution of an outsourcing plan for all administrative and support activitiesCreation and launch of our web site, which is our primary face to all patients, caregivers and clinicians, which supports all elements of our FH Foundation Mission Creation and production of educational materials for patients, caregivers, and clinicians that support awareness and appropriate diagnosis of FHEstablishment of a National FH Awareness Day, accompanied by a media tour that included our president and a nationally known research lipidologist and expert on the diseaseEstablishment of our plan for a national disease registry for the advancement of resarch around FH - began the evaluation process to choose a scientific and technology firm as vendorHeld our first Scientific Advisory Board meeting for the purpose of designing the clinical profile requirements of the national disease registryCompletion of regular board meetings to support governance of the foundation 450851 true true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 11 0 true 3 true false false false false false false X 6 6 false false false false false false false true true false false true true true true false false true true false CA X Dave Pickhardt 9134998657 14016 Nicklaus Drive Overland Park KS 66223 Katherine Wilemon President and CEO 50.00 0.00 X 20769 0 0 Dave Pickhardt Chairman of the Board 25.00 0.00 X 0 0 0 Josh Knowles Chief Medical Officer 15.00 0.00 X 0 0 0 Kathryn Langeder Office Manager 45.00 0.00 X 0 0 0 20769 0 0 0 false false false 765018 765018 67 67 3955 -3955 -3955 FH Product Sales 453220 1222 1222 Miscellaneous Revenue 900099 25 25 1247 762377 -2641 0 0 X 20769 20769 37798 37798 30 30 4728 4728 865 865 230694 30379 200315 7338 4571 2767 17796 17796 323639 323639 2055 2055 88339 11484 76855 71325 67682 3643 3251 3251 Postage and Printing 24550 24550 Small Furniture and Equip 1989 1989 Telecommunications 1202 1202 Business Registration Fees 2200 2200 6735 6735 845303 450851 314830 79622 341720 364140 100000 2783 2783 2783 444503 366923 5346 0 5346 X 444503 361577 444503 361577 444503 366923 -82926 0 X true X false true false X 581875 765111 1346986 581875 765111 1346986 1346986 966 1222 2188 0 0 582841 766333 1349174 0.99840 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2783 2783 2783 Form 990 governing body review Part VI line 11 990 Document emailed to each member and reviewed via electronic media Conflict of interest policy compliance Part VI line 12c All expenses and contracts are reviewed and approved by the board. Any conflicts are discussed prior to approval. CEO executive director top management comp Part VI line 15a The CEO is a compensated manager. All other top management is on a volunteer basis at this time. Other officer or key employee compensation Part VI line 15b The CEO is a compensated managaer, all other officers and key employees are voluntary positions at this time. Governing documents etc available to public Part VI line 19 All documents are made available to the public on request. List of other fees for services expenses Part IX line 11g Initial Advertising and Promotion efforts with Promotional materials.